I woke up around nine thirty. I was going to go to the exercise class but I was too sore. I wanted to be able to take Alex out tomorrow on Halloween.
We went to the bank and then to the mall. Alex and Charlie had lunch while I wandered through the mall. We came home before noon and I had lunch. Kurt came over before one o’clock.
Alex and Kurt had a fight. They were about to punch each other out. Alex was upset because he didn’t want Kurt to do something. Alex started to cry and finally told me what happened. Kurt went home around three thirty.
Alex and I went out for dinner then to the mall. Alex sure loves to go out. We came home around eight o’clock.
Alex went to bed at nine o’clock.
I watched TV and went to bed after eleven o’clock.
No tests
Medicine
Bactrim ------ 12:45 p.m. 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Temperature 36.18C 12:45 p.m. 36.38C 8:00 p.m.
Monday, October 31, 2011
Sunday, October 30, 2011
Diagnosis: Leukemia; October 29, 1987
I woke up around nine o’clock. I made breakfast had a shower and got dressed
We went to the mall and came home for lunch. After lunch Alex and I played games most of the afternoon.
We had dinner after five o’clock. Alex had another temper tantrum, he didn’t want to eat what I had cooked. I told him if he didn’t eat it there would be no snack. He wouldn’t eat any of it.
I got him ready for bed around eight o’clock. Alex wanted a snack but I told him no.
I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Temperature ------ 35.38C 1:00 p.m.
We went to the mall and came home for lunch. After lunch Alex and I played games most of the afternoon.
We had dinner after five o’clock. Alex had another temper tantrum, he didn’t want to eat what I had cooked. I told him if he didn’t eat it there would be no snack. He wouldn’t eat any of it.
I got him ready for bed around eight o’clock. Alex wanted a snack but I told him no.
I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Temperature ------ 35.38C 1:00 p.m.
Saturday, October 29, 2011
Diagnosis: Leukemia; October 28, 1987
I woke up around nine o’clock. I got ready to go to the Dyna Fit class. I came home at eleven thirty. Charlie and Alex were out. I had a shower and got dressed.
I took Alex to his class and came home. I vacuumed the house, put away Alex’s toys and tided up the house. I went and got Alex, we came home afterwards.
Kurt invited Alex over to play. He came home around five o’clock.
We had dinner after five o’clock. We had a big fight over dinner. Alex wanted to pick his own food. He had a temper tantrum, he finally had dinner.
I got Alex ready for bed around eight o’clock. I watched TV and went to bed after eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------- 6:50 p.m.
Mercaptopurine ------ ------- 6:50 p.m.
Temperature 35.47C 9:00 p.m. 36.46C 6:50 p.m.
I took Alex to his class and came home. I vacuumed the house, put away Alex’s toys and tided up the house. I went and got Alex, we came home afterwards.
Kurt invited Alex over to play. He came home around five o’clock.
We had dinner after five o’clock. We had a big fight over dinner. Alex wanted to pick his own food. He had a temper tantrum, he finally had dinner.
I got Alex ready for bed around eight o’clock. I watched TV and went to bed after eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------- 6:50 p.m.
Mercaptopurine ------ ------- 6:50 p.m.
Temperature 35.47C 9:00 p.m. 36.46C 6:50 p.m.
Friday, October 28, 2011
Diagnosis: Leukemia; October 27, 1987
I woke up at nine o’clock and had my breakfast. Then I had a shower and got dressed.
We went to the Bay to have Alex’s portrait taken. We came home and had lunch. Alex didn’t want me to have lunch, he wanted me to play with him first. I told him after lunch I would. He was really mad and threw on of his small cars. I put it away and he started to cry.
After lunch I played with Alex for a couple of hours.
We had dinner at five o’clock. Alex told me he wouldn’t eat it. I told him he couldn’t have a snack. He made a big deal about it. He ended up having another temper tantrum.
After dinner we went downstairs to exercise.
I got Alex ready for bed at 7:30 p.m. I did the dishes and helped Alex put away his toys. He was in bed by eight o’clock.
I watched TV and wrote in the journal for an hour.
I’ll probably go to bed around eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:30 p.m.
Mercapotpurine ------ ------ 7:30 p.m.
Temperature 35.06C 1:00 p.m. 35.28C 7:30 p.m.
We went to the Bay to have Alex’s portrait taken. We came home and had lunch. Alex didn’t want me to have lunch, he wanted me to play with him first. I told him after lunch I would. He was really mad and threw on of his small cars. I put it away and he started to cry.
After lunch I played with Alex for a couple of hours.
We had dinner at five o’clock. Alex told me he wouldn’t eat it. I told him he couldn’t have a snack. He made a big deal about it. He ended up having another temper tantrum.
After dinner we went downstairs to exercise.
I got Alex ready for bed at 7:30 p.m. I did the dishes and helped Alex put away his toys. He was in bed by eight o’clock.
I watched TV and wrote in the journal for an hour.
I’ll probably go to bed around eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:30 p.m.
Mercapotpurine ------ ------ 7:30 p.m.
Temperature 35.06C 1:00 p.m. 35.28C 7:30 p.m.
Thursday, October 27, 2011
Diagnosis: Leukemia; October 26, 1987
At eight o’clock Alex yelled from his room. Charlie was already up so I asked him to check on him. I went back to sleep and got up at nine thirty.
Alex had also gone back to bed and he woke up before ten o’clock. He’s in a much better mood after having more sleep.
We had breakfast, I had a shower and got dressed. Alex wanted to go to Toy City, we went at eleven o’clock.
We came home and had lunch. After lunch we took Kelly for a walk. We watched TV and played with Alex’s cars in the afternoon.
We had dinner at five o’clock. After dinner we went downstairs to exercise.
I got Alex ready for bed at 7:30 p.m.
I watched TV and did my knitting I went to bed at eleven o’clock. Alex had woken up at 10 15 p.m. and went to bed with me. When Charlie came home he went and watched TV with Charlie.
Alex woke me up after one o’clock, he was chattering away. He definitely wasn’t tired!
No tests
Medicine
Bactrim 9:50 a.m. ------ 7:15 p.m.
Mercaptopurine ------ ------ 7:15 p.m.
Methotrexiate ------ 2:30 p.m. -------
Temperature 37.48C 9:50 a.m. 36.68C 2:30 p.m. 36.98C 7:15 p.m.
Alex had also gone back to bed and he woke up before ten o’clock. He’s in a much better mood after having more sleep.
We had breakfast, I had a shower and got dressed. Alex wanted to go to Toy City, we went at eleven o’clock.
We came home and had lunch. After lunch we took Kelly for a walk. We watched TV and played with Alex’s cars in the afternoon.
We had dinner at five o’clock. After dinner we went downstairs to exercise.
I got Alex ready for bed at 7:30 p.m.
I watched TV and did my knitting I went to bed at eleven o’clock. Alex had woken up at 10 15 p.m. and went to bed with me. When Charlie came home he went and watched TV with Charlie.
Alex woke me up after one o’clock, he was chattering away. He definitely wasn’t tired!
No tests
Medicine
Bactrim 9:50 a.m. ------ 7:15 p.m.
Mercaptopurine ------ ------ 7:15 p.m.
Methotrexiate ------ 2:30 p.m. -------
Temperature 37.48C 9:50 a.m. 36.68C 2:30 p.m. 36.98C 7:15 p.m.
Tuesday, October 25, 2011
Diagnosis: Leukemia; October 25, 1987
Alex woke me up at eight o’clock, he wanted his breakfast. I made him breakfast and clean up the kitchen. I made our beds and did our laundry.
I forgot that the time was put back one hour last night. I though I had gotten up at eight but I had gotten up at seven o’clock. That’s early for me on a Sunday!
We went out for the afternoon and had dinner out. We came home at six o’clock. I did the dishes and got Alex ready for bed at 7:30 p.m.
I watched TV and wrote in the journal for about an hour. I probably will go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
I forgot that the time was put back one hour last night. I though I had gotten up at eight but I had gotten up at seven o’clock. That’s early for me on a Sunday!
We went out for the afternoon and had dinner out. We came home at six o’clock. I did the dishes and got Alex ready for bed at 7:30 p.m.
I watched TV and wrote in the journal for about an hour. I probably will go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Diagnosis: Leukemia; October 24, 1987
I woke up before nine o’clock, I made our breakfast. Then I had a shower and got dressed.
We went to the bank and then to the mall. I bought some bonds and returned something at the mall. We had lunch in the mall and came home.
Charlie wanted to get his hair cut. We left at one o’clock. Afterwards we went out for dinner then we went to the Chew’s. Alex was mad when we left the Chew’s, he wanted to stay longer.
On the way home Alex fell asleep but when we got home Alex woke up. He kept on saying I don’t want to go home. I finally got him to bed at ten o’clock.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 9:000 a.m. ----- 7:30 p.m.
Mercaptopurine ----- ------ 7:30 p.m.
Prednisone 9:00 a.m. 1:30 p.m. 7:30 p.m.
Temperature 35.29C 9:00 a.m. 36.05C 1:30 p.m. 35.39C 7:30 p.m.
We went to the bank and then to the mall. I bought some bonds and returned something at the mall. We had lunch in the mall and came home.
Charlie wanted to get his hair cut. We left at one o’clock. Afterwards we went out for dinner then we went to the Chew’s. Alex was mad when we left the Chew’s, he wanted to stay longer.
On the way home Alex fell asleep but when we got home Alex woke up. He kept on saying I don’t want to go home. I finally got him to bed at ten o’clock.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 9:000 a.m. ----- 7:30 p.m.
Mercaptopurine ----- ------ 7:30 p.m.
Prednisone 9:00 a.m. 1:30 p.m. 7:30 p.m.
Temperature 35.29C 9:00 a.m. 36.05C 1:30 p.m. 35.39C 7:30 p.m.
Monday, October 24, 2011
Diagnosis: Leukemia; October 23, 1987
Alex woke me up at eight o’clock,, he wanted his breakfast. We had breakfast then I started to clean the kitchen. I cleaned the door of the oven then I put it on self-clean. I cleaned the counter tops and everything on them. It took a couple of hours, I also cleaned the fridge.
Charlie and Alex went out to get lunch. I had a shower and got dressed.
After lunch Alex asked if Kurt could come over. He came over at one thirty and stayed until three thirty. They had made a mess in Alex’s room, I asked them to clean it up. Kurt would have but Alex said he couldn’t do it. He had one of his temper tantrums. He screamed and yelled for about 30 minutes. I told him he had to stay in our room until he had calmed down.
Alex was fine after he calmed down, he apologized and continued playing with Kurt.
We went out for dinner then we went to the mall. We came home around seven o’clock.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Prednisone 8:00 a.m. 1:30 p.m. 7:30 p.m.
Temperature 35.39C 8:00 a.m. 36.05C 1:30 p.m. 35.39C 7:30 p.m.
Charlie and Alex went out to get lunch. I had a shower and got dressed.
After lunch Alex asked if Kurt could come over. He came over at one thirty and stayed until three thirty. They had made a mess in Alex’s room, I asked them to clean it up. Kurt would have but Alex said he couldn’t do it. He had one of his temper tantrums. He screamed and yelled for about 30 minutes. I told him he had to stay in our room until he had calmed down.
Alex was fine after he calmed down, he apologized and continued playing with Kurt.
We went out for dinner then we went to the mall. We came home around seven o’clock.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Prednisone 8:00 a.m. 1:30 p.m. 7:30 p.m.
Temperature 35.39C 8:00 a.m. 36.05C 1:30 p.m. 35.39C 7:30 p.m.
Sunday, October 23, 2011
Diagnosis: Leukemia; October 22, 1987
Alex woke me up at eight o’clock, he wanted his breakfast. I made our breakfast then I cleaned the bathrooms and the floors. I had a shower, got dress and did the dishes.
We went out for lunch and to the mall then we came home.
I gave Alex his medicine and a snack then he went to bed.
I wrote in the journal for half an hour. I did my knitting while Alex had his nap. Alex woke up at four o’clock. We had dinner at five o’clock after dinner we went downstairs to exercise. I put away the laundry then we watched TV.
I got Alex ready for bed at nine o’clock. I watched TV and wrote in the journal. I’m going to go to bed soon.
No tests
Medicine.
Bactrim 8:00 a.m. ------ 7:50 p.m.
Mercaptopurine ------ ------- 7:50 p.m.
Prednisone 8:00 a.m. 2:00 p.m. 7:50 p.m.
Temperature 35.97C 2:00 p.m. 35.25C 7:50 p.m.
We went out for lunch and to the mall then we came home.
I gave Alex his medicine and a snack then he went to bed.
I wrote in the journal for half an hour. I did my knitting while Alex had his nap. Alex woke up at four o’clock. We had dinner at five o’clock after dinner we went downstairs to exercise. I put away the laundry then we watched TV.
I got Alex ready for bed at nine o’clock. I watched TV and wrote in the journal. I’m going to go to bed soon.
No tests
Medicine.
Bactrim 8:00 a.m. ------ 7:50 p.m.
Mercaptopurine ------ ------- 7:50 p.m.
Prednisone 8:00 a.m. 2:00 p.m. 7:50 p.m.
Temperature 35.97C 2:00 p.m. 35.25C 7:50 p.m.
Saturday, October 22, 2011
Diagnosis: Leukemia; October 21, 1987
I woke up at nine o’clock, Alex slept in our bed last night. Charlie went into Alex’s bed.
I made Alex his breakfast and gave him his medicine. Then I made bran muffins, cleaned up the kitchen, had a shower and got dressed.
We went to Hutch at eleven o’clock. Alex was hard to control in the store. We came home, I made Alex his lunch then I took Alex to this class and came home.
I had my lunch and cleaned up the kitchen. I went and picked Alex up then we went to the mall. We came home around four o’clock. We had dinner at five o’clock. After diner we went downstairs and exercised, I also cleaned the basement.
I got Alex read for bed after seven o’clock. He said he was tired and wanted to go to bed.
I wrote in the journal and watched TV. It’s 8:30 p.m. I’m going to do my knitting. I’ll go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:000 a.m. ------ 7:25 p.m.
Mercaptopurine ------ ------ 7:25 P.m.
Prednisone 9:00 a.m. 2:30 p.m. 7:25 p.m.
Temperature 35.37C 2:30 p.m. 35.67C 7:25 p.m.
I made Alex his breakfast and gave him his medicine. Then I made bran muffins, cleaned up the kitchen, had a shower and got dressed.
We went to Hutch at eleven o’clock. Alex was hard to control in the store. We came home, I made Alex his lunch then I took Alex to this class and came home.
I had my lunch and cleaned up the kitchen. I went and picked Alex up then we went to the mall. We came home around four o’clock. We had dinner at five o’clock. After diner we went downstairs and exercised, I also cleaned the basement.
I got Alex read for bed after seven o’clock. He said he was tired and wanted to go to bed.
I wrote in the journal and watched TV. It’s 8:30 p.m. I’m going to do my knitting. I’ll go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:000 a.m. ------ 7:25 p.m.
Mercaptopurine ------ ------ 7:25 P.m.
Prednisone 9:00 a.m. 2:30 p.m. 7:25 p.m.
Temperature 35.37C 2:30 p.m. 35.67C 7:25 p.m.
Friday, October 21, 2011
Diagnosis: Leukemia; October 20, 1987
Alex woke up at one o’clock, Charlie went to check on him. Alex screamed I don’t want you I want Mama. Charlie told him to be quiet that I was asleep. Alex came into bed with us.
I woke up at eight o’clock. I gave Alex his medicine which he complained about. I had my breakfast, a shower and got dressed. I tided up the house and vacuumed the house.
Charlie and Alex went outside to wash the car.
After lunch we went for a walk. Alex was mad at me, I hadn’t done anything but he sure thought I had. I told him I didn’t want to go with them. Alex cried for about ten minutes. He kept on telling Charlie I was bad. Charlie said so, what do you want me to do. After ten minutes he calmed down and asked me if I would go with them. Halfway on our walk Alex said he couldn’t walk any more. Charlie carried him the rest of the way home.
Alex fell asleep on the sofa at two o’clock and slept until three thirty. While he was sleeping I did the dishes and went outside to do the gardening.
We went to Toy City and came home at four thirty. Alex played while I started dinner. We ate dinner at five o’clock.
After dinner we went downstairs to exercise. I got Alex ready for bed at eight o’clock.
I watched TV and wrote in the journal. It’s eleven o’clock I’m going to go to bed soon.
No tests
Medicine
Bactrim 8:20 a.m. ------ 7:50 p.m.
Mercaptopurine ------ ------ 7:50 p.m.
Prednisone 8:20 a.m. 1:30 p.m. 6:50 p.m.
Temperature 35.70C 8:20 a.m. ------ 36.77C 7:50 p.m.
I woke up at eight o’clock. I gave Alex his medicine which he complained about. I had my breakfast, a shower and got dressed. I tided up the house and vacuumed the house.
Charlie and Alex went outside to wash the car.
After lunch we went for a walk. Alex was mad at me, I hadn’t done anything but he sure thought I had. I told him I didn’t want to go with them. Alex cried for about ten minutes. He kept on telling Charlie I was bad. Charlie said so, what do you want me to do. After ten minutes he calmed down and asked me if I would go with them. Halfway on our walk Alex said he couldn’t walk any more. Charlie carried him the rest of the way home.
Alex fell asleep on the sofa at two o’clock and slept until three thirty. While he was sleeping I did the dishes and went outside to do the gardening.
We went to Toy City and came home at four thirty. Alex played while I started dinner. We ate dinner at five o’clock.
After dinner we went downstairs to exercise. I got Alex ready for bed at eight o’clock.
I watched TV and wrote in the journal. It’s eleven o’clock I’m going to go to bed soon.
No tests
Medicine
Bactrim 8:20 a.m. ------ 7:50 p.m.
Mercaptopurine ------ ------ 7:50 p.m.
Prednisone 8:20 a.m. 1:30 p.m. 6:50 p.m.
Temperature 35.70C 8:20 a.m. ------ 36.77C 7:50 p.m.
Wednesday, October 19, 2011
Diagnosis: Leukemia; October 19, 1987
We all got up at seven o’clock. We have to be at the hospital at nine o’clock. I had a shower, got dressed and had my breakfast.
Charlie got Alex his breakfast while I was in the shower.
We left at 8:15 a.m. for the hospital and got there at nine o’clock. After fifteen minutes Alex had his blood taken. I asked Heather if Alex was going to have a sedative. Dr S said she had wanted Alex to have a sedative when he had a LP as he fights during most of the time. Heather said nothing had been ordered and Dr. S is on holidays. Heather asked the relieving doctor and he asked us to come into one of the rooms.
The doctor said he would give Alex a sedative. He checked Alex’s heart, breathing, blood pressure, reflexes and ears.
After that we waited until ten thirty when a nurse gave a Alex a sedative. It didn’t seem to have any effect at all on Alex. Just before twelve o’clock Alex had his LP. He screamed and yelled throughout most of it. The problem was that the nurse had to hold Alex tight which he can’t stand. He finally calmed down the last ten minutes or so.
This time they didn’t have any prizes in the treasure box.
When we went out into the waiting room, Alex was pretty upset. The nurse took the pillow away which really bothered him. Alex cried and cried, it was really difficult to make him happy.
At one o’clock Alex had his I.V. push of Vincristine. Alex was really good, he just moved a little bit and he didn’t cry at all. He said that it hurt, but Vincristine stings when it goes in. We went back to the waiting room.
I asked Lorraine if I could have Alex’s appointment slip. She said there’s nothing on it, I’ll have to find out what he’s coming in for next. A couple minutes later Lorraine left for lunch. I couldn’t believe it, she sure is something else. She never lets you know right away like the other nurses. I asked Heather after Lorraine had left and she filled it in.
When we went to get our next appointment Joan wasn’t there. The women that was taking over said oh you want an appointment. Then she said four weeks that’ll be let see December, January, February, some time in February. I thought what is she talking about, I said it’s for four weeks. She said oh yes that’s in November, how about November 20th that’s on a Thursday. Then I said but it’s for four weeks. It told her I wanted an afternoon appointment. She said why, you came in the morning today why can’t you come in the morning. I told her we came in this morning because Alex had an LP. She said I can’t give you an afternoon appointment. I’m just not sure how the appointments work. I’ll have the other girl give you a call.
We left and I thought I don’t believe this. Charlie said they overbooked this morning. It sure is frustrating waiting around. That’s what really bothers me.
Alex fell asleep on the way home. He woke up when we got home. For the rest of the afternoon he was really cranky, there was no pleasing him.
We had dinner at five o’clock. After dinner we watched TV. Alex was pretty upset, he cried at almost anything.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed after ten o’clock.
Tests
WBC 2.8
HGB 13.4
Platelets 293,000
ANC 2240
Medicine
Bactrim 8:00 a.m. ------- 6:30 p.m.
Mercaptopurine ------ ------- 6:30 p.m.
Prednisone ------ 3:00 p.m.8:00 p.m.
Temperature 35.36C 8:00 a.m. 34.77C 3:00 p.m. 35.94 8:00 p.m.
Charlie got Alex his breakfast while I was in the shower.
We left at 8:15 a.m. for the hospital and got there at nine o’clock. After fifteen minutes Alex had his blood taken. I asked Heather if Alex was going to have a sedative. Dr S said she had wanted Alex to have a sedative when he had a LP as he fights during most of the time. Heather said nothing had been ordered and Dr. S is on holidays. Heather asked the relieving doctor and he asked us to come into one of the rooms.
The doctor said he would give Alex a sedative. He checked Alex’s heart, breathing, blood pressure, reflexes and ears.
After that we waited until ten thirty when a nurse gave a Alex a sedative. It didn’t seem to have any effect at all on Alex. Just before twelve o’clock Alex had his LP. He screamed and yelled throughout most of it. The problem was that the nurse had to hold Alex tight which he can’t stand. He finally calmed down the last ten minutes or so.
This time they didn’t have any prizes in the treasure box.
When we went out into the waiting room, Alex was pretty upset. The nurse took the pillow away which really bothered him. Alex cried and cried, it was really difficult to make him happy.
At one o’clock Alex had his I.V. push of Vincristine. Alex was really good, he just moved a little bit and he didn’t cry at all. He said that it hurt, but Vincristine stings when it goes in. We went back to the waiting room.
I asked Lorraine if I could have Alex’s appointment slip. She said there’s nothing on it, I’ll have to find out what he’s coming in for next. A couple minutes later Lorraine left for lunch. I couldn’t believe it, she sure is something else. She never lets you know right away like the other nurses. I asked Heather after Lorraine had left and she filled it in.
When we went to get our next appointment Joan wasn’t there. The women that was taking over said oh you want an appointment. Then she said four weeks that’ll be let see December, January, February, some time in February. I thought what is she talking about, I said it’s for four weeks. She said oh yes that’s in November, how about November 20th that’s on a Thursday. Then I said but it’s for four weeks. It told her I wanted an afternoon appointment. She said why, you came in the morning today why can’t you come in the morning. I told her we came in this morning because Alex had an LP. She said I can’t give you an afternoon appointment. I’m just not sure how the appointments work. I’ll have the other girl give you a call.
We left and I thought I don’t believe this. Charlie said they overbooked this morning. It sure is frustrating waiting around. That’s what really bothers me.
Alex fell asleep on the way home. He woke up when we got home. For the rest of the afternoon he was really cranky, there was no pleasing him.
We had dinner at five o’clock. After dinner we watched TV. Alex was pretty upset, he cried at almost anything.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed after ten o’clock.
Tests
WBC 2.8
HGB 13.4
Platelets 293,000
ANC 2240
Medicine
Bactrim 8:00 a.m. ------- 6:30 p.m.
Mercaptopurine ------ ------- 6:30 p.m.
Prednisone ------ 3:00 p.m.8:00 p.m.
Temperature 35.36C 8:00 a.m. 34.77C 3:00 p.m. 35.94 8:00 p.m.
Tuesday, October 18, 2011
Diagnosis: Leukemia; October 18, 1987
I woke up around nine o’clock. Charlie had gotten Alex his breakfast. I had my breakfast, had a shower and got dressed.
I cleaned up the house, did the laundry and put away Alex’s toys.
We went to Metrotown after lunch. Then we went to the Westminster market. We came home at four o’clock. We had dinner after five o’clock. After dinner we watched TV. I got Alex ready for bed at eight o’clock. I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 11:00 a.m. ------ 7:000 p.m.
Mercaptopurine ------- ------ 7:000 p.m.
Temperature 35.17C 11:00 a.m. 36.58C 7:00 p.m.
I cleaned up the house, did the laundry and put away Alex’s toys.
We went to Metrotown after lunch. Then we went to the Westminster market. We came home at four o’clock. We had dinner after five o’clock. After dinner we watched TV. I got Alex ready for bed at eight o’clock. I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 11:00 a.m. ------ 7:000 p.m.
Mercaptopurine ------- ------ 7:000 p.m.
Temperature 35.17C 11:00 a.m. 36.58C 7:00 p.m.
Monday, October 17, 2011
Diagnosis: Leukemia; October 17, 1987
I woke up at eight thirty, I woke up quite a few times during the night. It’s hard to get comfortable. I had a shower, got dressed and made breakfast.
Charlie and Alex went to the bank. I tided up the house, did the laundry and started to put the photos in the album.
We went out at one thirty, I want to get my hair cut. We got to Toppy’s but Galena was busy and I was told to come back at four o’clock.
We went to Mom and Dad’s, the house smells of moth balls. It was so strong we had to open the windows. I took the mail and watered the plants. We didn’t stay long, it was getting too cold! I closed the windows and checked everything.
We walked around 4th avenue then we went back to Topy’s . Galena took me at 4:15 p.m.
Afterwards we went for dinner and came home.
I got Alex ready for bed at 8:30 p.m. I watched TV, did my knitting, wrote in the journal and tided up the house. I’m going to bed soon.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:45 p.m.
Mercaptopurine ------ ------ 7:40 p.m.
Temperature 36.32C 36.38C
Charlie and Alex went to the bank. I tided up the house, did the laundry and started to put the photos in the album.
We went out at one thirty, I want to get my hair cut. We got to Toppy’s but Galena was busy and I was told to come back at four o’clock.
We went to Mom and Dad’s, the house smells of moth balls. It was so strong we had to open the windows. I took the mail and watered the plants. We didn’t stay long, it was getting too cold! I closed the windows and checked everything.
We walked around 4th avenue then we went back to Topy’s . Galena took me at 4:15 p.m.
Afterwards we went for dinner and came home.
I got Alex ready for bed at 8:30 p.m. I watched TV, did my knitting, wrote in the journal and tided up the house. I’m going to bed soon.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:45 p.m.
Mercaptopurine ------ ------ 7:40 p.m.
Temperature 36.32C 36.38C
Diagnosis: Leukemia; October 16, 1987
I woke up at eight o’clock, I made breakfast and gave Alex his medicine. My back is still bothering me, I didn’t do much this morning. I had a shower and got dressed then I watched TV and did my knitting.
Alex said he needed a rest so he went for a nap. He woke up at one thirty.
Alex and I went to the mall at three o’clock. Even though my back was bothering me, I had to get out. Alex didn’t want to do anything I wanted to do. He got a balloon in the mall which he lost at Woodward’s. This upset him something terribly.
We went to McDonald’s for dinner, then Alex wanted to go somewhere else. We went to Lougheed mall then we came home.
Since Alex had a nap he didn’t want to go to bed. I finally got him to bed after nine o’clock.
I watched TV and did my knitting. My leg is aching a lot, it seems like the pain in my back has gone down my left leg.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ------ 7:15 p.m.
Mercaptopurine ------ ------- 7:15 p.m.
Temperature 35.67C 8:15 a.m. 35.07C 2:00 p.m. 36.88 7:15 p.m.
Alex said he needed a rest so he went for a nap. He woke up at one thirty.
Alex and I went to the mall at three o’clock. Even though my back was bothering me, I had to get out. Alex didn’t want to do anything I wanted to do. He got a balloon in the mall which he lost at Woodward’s. This upset him something terribly.
We went to McDonald’s for dinner, then Alex wanted to go somewhere else. We went to Lougheed mall then we came home.
Since Alex had a nap he didn’t want to go to bed. I finally got him to bed after nine o’clock.
I watched TV and did my knitting. My leg is aching a lot, it seems like the pain in my back has gone down my left leg.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ------ 7:15 p.m.
Mercaptopurine ------ ------- 7:15 p.m.
Temperature 35.67C 8:15 a.m. 35.07C 2:00 p.m. 36.88 7:15 p.m.
Sunday, October 16, 2011
Diagnosis: Leukemia; October 15, 1987
I woke up at eight thirty, I told Alex today he would get his prize from Grandma. Alex was really excited about this, he picked a small cement truck. He played with it for quite a while.
I went and had my breakfast. Then I made breakfast for Alex, had a shower and got dressed.
Charlie went out to the car dealer.
Alex watched TV for a while. I tided up the house, did our laundry, and made the beds. It probably wasn’t a good ideas as my back is still bothering me.
Charlie came home and Alex went for a nap. I watched TV and did my knitting.
After lunch Kurt came over. Alex had a couple of temper tantrums this afternoon. As soon as Kurt came over Alex started fighting with him. This sure isn’t like Alex, looks more like the medicine taking affect.
I put Alex in our room and told him when he could calm down he could come out. I also told him he had to apologize before he could play with Kurt again. About ten minutes later he came to me and told me he was sorry. He was a lot better after this.
Kurt went home at four o’clock. We watched TV then I started dinner. Alex watched tv, I wrote in the journal.
Alex asked me to make some pudding. I told him on the condition he pick up his toys. He wasn’t too pleased about this. Alex asked me to help, I told him I would but my back hurts too much.
I took him about half an hour to pick up his toys. I made the pudding for Alex then I got him ready for bed.
I watched tv and did my knitting. I’m going to go to bed soon.
No tests
Medicine
Bactrim 10:45 a.m. ------ 8:15 p.m.
Mercaptopurine ------ ------ 8:15 p.m.
Temperature 36.27C 10:45 a.m. 36.17C
I went and had my breakfast. Then I made breakfast for Alex, had a shower and got dressed.
Charlie went out to the car dealer.
Alex watched TV for a while. I tided up the house, did our laundry, and made the beds. It probably wasn’t a good ideas as my back is still bothering me.
Charlie came home and Alex went for a nap. I watched TV and did my knitting.
After lunch Kurt came over. Alex had a couple of temper tantrums this afternoon. As soon as Kurt came over Alex started fighting with him. This sure isn’t like Alex, looks more like the medicine taking affect.
I put Alex in our room and told him when he could calm down he could come out. I also told him he had to apologize before he could play with Kurt again. About ten minutes later he came to me and told me he was sorry. He was a lot better after this.
Kurt went home at four o’clock. We watched TV then I started dinner. Alex watched tv, I wrote in the journal.
Alex asked me to make some pudding. I told him on the condition he pick up his toys. He wasn’t too pleased about this. Alex asked me to help, I told him I would but my back hurts too much.
I took him about half an hour to pick up his toys. I made the pudding for Alex then I got him ready for bed.
I watched tv and did my knitting. I’m going to go to bed soon.
No tests
Medicine
Bactrim 10:45 a.m. ------ 8:15 p.m.
Mercaptopurine ------ ------ 8:15 p.m.
Temperature 36.27C 10:45 a.m. 36.17C
Saturday, October 15, 2011
Diagnosis: Leukemia; October 14, 1987
I woke up after eight o’clock. I’m in agony, my back is worse today. The lower part of my back is really tight.
I made breakfast for Alex and myself. Then I made Nanaimo bars for Alex. I had told him I would make him some.
Then I had a shower and got dressed. I didn’t do much since my back hurt so much. I took a couple of panadol, it was getting so painful. I took Alex to his cooking class. While he was in his class I went to the mall.
I picked Alex up at 2:30 p.m., he sure is enjoying his class. We went to Toy City afterwards then we came home. Alex fell asleep at five o’clock. I woke him up which made him really mad. He calmed down after fifteen minutes. He had dinner, I didn’t feel like eating anything.
After he had dinner we watched TV and played a game of fish. I got him ready for bed.
I watched TV, did my knitting and wrote in the journal. I’ll be going to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:30 p.m.
Mercapoturine ----- ------ 6:30 p.m.
Temperature 35.07C 9:00 a.m. 36.37C 6:30 p.m.
I made breakfast for Alex and myself. Then I made Nanaimo bars for Alex. I had told him I would make him some.
Then I had a shower and got dressed. I didn’t do much since my back hurt so much. I took a couple of panadol, it was getting so painful. I took Alex to his cooking class. While he was in his class I went to the mall.
I picked Alex up at 2:30 p.m., he sure is enjoying his class. We went to Toy City afterwards then we came home. Alex fell asleep at five o’clock. I woke him up which made him really mad. He calmed down after fifteen minutes. He had dinner, I didn’t feel like eating anything.
After he had dinner we watched TV and played a game of fish. I got him ready for bed.
I watched TV, did my knitting and wrote in the journal. I’ll be going to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:30 p.m.
Mercapoturine ----- ------ 6:30 p.m.
Temperature 35.07C 9:00 a.m. 36.37C 6:30 p.m.
Thursday, October 13, 2011
Diagnosis: Leukemia; October 13, 1987
I woke up after eight o’clock, Alex was still in our bed. He had woken me up in the middle of the night.
I had breakfast, had a shower and got dressed.
Charlie and Alex went out shopping. I tided up the house, did the dishes, and did our laundry. I wrote in the journal for about an hour.
Alex went over to Kurt’s house in the afternoon. Nora said she had to get William at three o’clock. She wondered if we wanted to go and met them at 2:50 p.m.. Unfortunately they were repairing the road, I wish I hadn’t come along. The smell of tar was bad and it was hard to walk. When we came back Nora asked me in for tea.
Alex started to cry, he wanted the car Kurt had. He was tired. We came home at four thirty. We had dinner at five o’clock. I had quite a time keeping Alex awake. At six o’clock I gave him a bath, then I got him ready for bed. Alex was in bed by seven o’clock.
I watched TV and did my knitting. I went to bed around ten thirty. I did something to my back it sure hurts.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:45 p.m.
Mercaptopurine ------ ------ 6:45 p.m.
Methotrexiate ------ 4:50 p.m. ------
Temperature ----- 35.66C 4:50 p.m. 26.04C 6:45 p.m.
I had breakfast, had a shower and got dressed.
Charlie and Alex went out shopping. I tided up the house, did the dishes, and did our laundry. I wrote in the journal for about an hour.
Alex went over to Kurt’s house in the afternoon. Nora said she had to get William at three o’clock. She wondered if we wanted to go and met them at 2:50 p.m.. Unfortunately they were repairing the road, I wish I hadn’t come along. The smell of tar was bad and it was hard to walk. When we came back Nora asked me in for tea.
Alex started to cry, he wanted the car Kurt had. He was tired. We came home at four thirty. We had dinner at five o’clock. I had quite a time keeping Alex awake. At six o’clock I gave him a bath, then I got him ready for bed. Alex was in bed by seven o’clock.
I watched TV and did my knitting. I went to bed around ten thirty. I did something to my back it sure hurts.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:45 p.m.
Mercaptopurine ------ ------ 6:45 p.m.
Methotrexiate ------ 4:50 p.m. ------
Temperature ----- 35.66C 4:50 p.m. 26.04C 6:45 p.m.
Wednesday, October 12, 2011
Diagnosis: Leukemia; October 12, 1987
It’s Thanksgiving! Happy Turkey Day!
I woke up at nine o’clock . I had breakfast, had a shower and got dressed.
Alex and I went to buy onions for the stuffing. I was planning on going by myself but Alex wanted to go, even started to cry when I was going.
We came back after one o’clock. I started making the stuffing for the turkey.
Alex said he needed a rest and went to bed.
I prepared the rest of the dinner. We ate at five o’clock. After dinner Charlie helped clean up the kitchen. I froze some of the turkey.
We watched TV, I got Alex ready for bed at nine o’clock, with a lot of complaints.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 11:20 a.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 8:000 p.m.
Temperature 35.66C 11:20 a.m. 35.64 3:00 p.m. 35.68C 8:00 p.m.
I woke up at nine o’clock . I had breakfast, had a shower and got dressed.
Alex and I went to buy onions for the stuffing. I was planning on going by myself but Alex wanted to go, even started to cry when I was going.
We came back after one o’clock. I started making the stuffing for the turkey.
Alex said he needed a rest and went to bed.
I prepared the rest of the dinner. We ate at five o’clock. After dinner Charlie helped clean up the kitchen. I froze some of the turkey.
We watched TV, I got Alex ready for bed at nine o’clock, with a lot of complaints.
I went to bed after eleven o’clock.
No tests
Medicine
Bactrim 11:20 a.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 8:000 p.m.
Temperature 35.66C 11:20 a.m. 35.64 3:00 p.m. 35.68C 8:00 p.m.
Tuesday, October 11, 2011
Diagnosis: Leukemia; October 11, 1987
Alex and I woke up around nine o’clock. I made waffles for breakfast. I had a shower and we all went out. We went to Lumberland to buy some shelves to put in the closets.
We didn’t do much in the afternoon, I watched TV. I was feeling pretty tired.
We met Shirley at the White Spot for dinner. She’s looking after Alex while we go to a concert. We’re going to see Whitney Houston, she’s quite popular right now.
Shirley took Alex in her car, she’s to bring Alex back to our house later.
We came home and got ready to go. We left before 6:30 p.m. The traffic was really heavy it took us a while before we got parked. By the time we got seated it was 7:30 p.m. The back up group came out first. They played for about an hour. Whitney Houston came out around nine o’clock and finished after ten o’clock. I found it really loud some times the sound was even distorted. I was a bit disappointed by her performance.
We got home after eleven o’clock. I made a snack and we watched TV. Shirley left before midnight.
Alex woke up after midnight and told me everything he had done. He was really happy to see me which was nice. I had a hard time getting him back to bed. He had a temper tantrum and was screaming. We finally got to bed at one thirty.
No tests
Medicine
Bactrim 10:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 35.70C 10:00 a.m. 36.03C 6:00 p.m.
We didn’t do much in the afternoon, I watched TV. I was feeling pretty tired.
We met Shirley at the White Spot for dinner. She’s looking after Alex while we go to a concert. We’re going to see Whitney Houston, she’s quite popular right now.
Shirley took Alex in her car, she’s to bring Alex back to our house later.
We came home and got ready to go. We left before 6:30 p.m. The traffic was really heavy it took us a while before we got parked. By the time we got seated it was 7:30 p.m. The back up group came out first. They played for about an hour. Whitney Houston came out around nine o’clock and finished after ten o’clock. I found it really loud some times the sound was even distorted. I was a bit disappointed by her performance.
We got home after eleven o’clock. I made a snack and we watched TV. Shirley left before midnight.
Alex woke up after midnight and told me everything he had done. He was really happy to see me which was nice. I had a hard time getting him back to bed. He had a temper tantrum and was screaming. We finally got to bed at one thirty.
No tests
Medicine
Bactrim 10:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 35.70C 10:00 a.m. 36.03C 6:00 p.m.
Monday, October 10, 2011
Diagnosis: Leukemia; October 10, 1987
I woke up around eight thirty. I had breakfast, had a shower and got dressed.
I told Charlie I wanted to go out shopping by myself. I found it impossible shopping with both of them. I left around eleven o’clock. I went to Lougheed mall then to Coquitlam Centre. I came home after three o’clock. Kurt had come over to play with Alex when I was out. Nora came over to ask if it was okay. She said she had just gotten home.
Kurt left before five o’clock. We left shortly afterwards for dinner. We went to visit the Chew’s after dinner. Robert was naughty again. We really have to watch him, he’s always throwing things.
We got home around ten o’clock. Alex woke up when we got home. He didn’t go to sleep until we all went to bed, which was some time after eleven o’clock.
No tests
Medicine
Bactrim 10:20 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Temperature 36.30 10:20 a.m. 35.30C 7:00 p.m.
I told Charlie I wanted to go out shopping by myself. I found it impossible shopping with both of them. I left around eleven o’clock. I went to Lougheed mall then to Coquitlam Centre. I came home after three o’clock. Kurt had come over to play with Alex when I was out. Nora came over to ask if it was okay. She said she had just gotten home.
Kurt left before five o’clock. We left shortly afterwards for dinner. We went to visit the Chew’s after dinner. Robert was naughty again. We really have to watch him, he’s always throwing things.
We got home around ten o’clock. Alex woke up when we got home. He didn’t go to sleep until we all went to bed, which was some time after eleven o’clock.
No tests
Medicine
Bactrim 10:20 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Temperature 36.30 10:20 a.m. 35.30C 7:00 p.m.
Diagnosis: Leukemia; October 9, 1987
Alex woke me up at 2:30 a.m., he wanted to get changed. I got him changed and we went back to bed. About fifteen minutes later Alex said he had gone to the bathroom and wanted his prize. I said Alex it’s in the middle of the night go back to bed.
Alex woke me up again at seven thirty to tell me he had gone to the bathroom. He still wanted his prize. I told no. He said but I went to the bathroom. Finally I gave in and gave him a puzzle.
I made Alex and my breakfast. I got dressed and polished all the furniture. Then I had a shower and got dressed. I played with Alex for a while. Then I told him it was time for him to have his nap.
I did the dishes and watched TV. I had lunch then I took Kelly for a walk.
Kurt came over to play with Alex at two o’clock. I wrote in the journal for about an hour and a half. Kurt went home before four o’clock.
Alex wanted to ride his bike outside, we went out for about half an hour. We came in and I started dinner. After dinner we went downstairs to exercise.
Alex had a snack and his medicine. Then I gave him a bath, got him ready for bed and read him a story.
I did the dishes, watched TV and did my knitting. I finished writing in the journal. I’ll be going to bed soon.
No tests
Medicine
Bactrim 8:00 a.m. ------ 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Alex woke me up again at seven thirty to tell me he had gone to the bathroom. He still wanted his prize. I told no. He said but I went to the bathroom. Finally I gave in and gave him a puzzle.
I made Alex and my breakfast. I got dressed and polished all the furniture. Then I had a shower and got dressed. I played with Alex for a while. Then I told him it was time for him to have his nap.
I did the dishes and watched TV. I had lunch then I took Kelly for a walk.
Kurt came over to play with Alex at two o’clock. I wrote in the journal for about an hour and a half. Kurt went home before four o’clock.
Alex wanted to ride his bike outside, we went out for about half an hour. We came in and I started dinner. After dinner we went downstairs to exercise.
Alex had a snack and his medicine. Then I gave him a bath, got him ready for bed and read him a story.
I did the dishes, watched TV and did my knitting. I finished writing in the journal. I’ll be going to bed soon.
No tests
Medicine
Bactrim 8:00 a.m. ------ 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Sunday, October 9, 2011
Diagnosis: Leukemia; October 8, 1987
Alex woke up around seven o’clock and wanted his prize from Grandma. I told him to go to his room and I would bring in the basket. Alex picked one and it was a cookie mix.
I went back to sleep and was woken up by Alex hitting me in my back. He wanted me to play with him. I told him I would be there in a few minutes and promptly fell asleep. In came Alex again asking me what was taking so long, I figured I had better get up. I had a shower which made Alex really cranky. He started pounding on the door. Charlie took him into the spare room and they played with Alex’s cars.
I had breakfast and got dressed. I played with Alex for awhile then I got Alex ready for his nap.
I tided up the house and did the dishes. I had lunch, Alex had macaroni before he had his nap.
We left at two o’clock for the doctors office. We saw Dr. W, he wants to see Alex ever month. Dr W said that Alex looks better than he did the last visit. The doctor said Alex’s behaviour and eating consumption could be affected by the medication.
Afterwards we went to the bank, to pay my MasterCard bill. Then we went to the mall and came home.
Alex played for about an hour then we had dinner. We went downstairs for our exercising.
I gave Alex a bath and got him ready for bed. I did the dishes and while I was doing them I realized I had forgotten to give Alex Methotrexiate. I felt absolutely sick about it since it was suppose to be given last Monday (three days ago). Alex was fast asleep so I didn’t wake him up.
I put away Alex’s toys. I still had a terrible feeling in my stomach. I just can’t see how I could forget to do it. I couldn’t concentrate on anything so I figured I might as well go to bed. Before I went to bed I checked on Alex. He needed to go to the bathroom, I picked him up and took him to the bathroom. This woke him up so I gave him the methotrexiate. I felt better but not by much. I went to bed after ten o’clock
No tests
Medicine
Bactrim 9:30 a.m. ------ 7:50 p.m.
Mercaptopurine ----- ------ 7:50 p.m.
Methrotrexiate ----- ------ 10:00 p.m.
Temperature 35.80C 9:30 a.m.36.59C 6:50 p.m.
I went back to sleep and was woken up by Alex hitting me in my back. He wanted me to play with him. I told him I would be there in a few minutes and promptly fell asleep. In came Alex again asking me what was taking so long, I figured I had better get up. I had a shower which made Alex really cranky. He started pounding on the door. Charlie took him into the spare room and they played with Alex’s cars.
I had breakfast and got dressed. I played with Alex for awhile then I got Alex ready for his nap.
I tided up the house and did the dishes. I had lunch, Alex had macaroni before he had his nap.
We left at two o’clock for the doctors office. We saw Dr. W, he wants to see Alex ever month. Dr W said that Alex looks better than he did the last visit. The doctor said Alex’s behaviour and eating consumption could be affected by the medication.
Afterwards we went to the bank, to pay my MasterCard bill. Then we went to the mall and came home.
Alex played for about an hour then we had dinner. We went downstairs for our exercising.
I gave Alex a bath and got him ready for bed. I did the dishes and while I was doing them I realized I had forgotten to give Alex Methotrexiate. I felt absolutely sick about it since it was suppose to be given last Monday (three days ago). Alex was fast asleep so I didn’t wake him up.
I put away Alex’s toys. I still had a terrible feeling in my stomach. I just can’t see how I could forget to do it. I couldn’t concentrate on anything so I figured I might as well go to bed. Before I went to bed I checked on Alex. He needed to go to the bathroom, I picked him up and took him to the bathroom. This woke him up so I gave him the methotrexiate. I felt better but not by much. I went to bed after ten o’clock
No tests
Medicine
Bactrim 9:30 a.m. ------ 7:50 p.m.
Mercaptopurine ----- ------ 7:50 p.m.
Methrotrexiate ----- ------ 10:00 p.m.
Temperature 35.80C 9:30 a.m.36.59C 6:50 p.m.
Saturday, October 8, 2011
Diagnosis: Leukemia; October 7, 1987
Alex woke up before eight o’clock. I thought he would sleep in since he went to sleep so late. I gave Alex his breakfast and had mine as well.
I tided up the house them vacuumed it.
Charlie went to work early this morning.
The cabinet man came to fix the bathroom cabinet. Half way through vacuuming I told Alex he had to have a nap. I put him to bed and read him a story, then I finished vacuuming. We had lunch then we got ready to go to Alex’s class.
I had no trouble leaving Alex, he didn’t complain at all. I did some Christmas shopping, came home, put away the stuff and went back to the class.
Alex was really excited about the class. They made muffins which they ate in the class and they also got to take one home with a recipe card.
We came home, Alex wanted to go for a walk.
Charlie came home around four o’clock. I started dinner and we ate at five thirty.
I exercised downstairs at seven o’clock. I started getting Alex ready for bed after eight o’clock.
I went to bed after ten o’clock.
No tests
Medicine
Bactrim 7:40 a.m. ------ 7:15 p.m.
Mercapotpurine ------ ------ 7:15 p.m.
Temperature 36.47C 7:40 a.m. 36.17C 7:15 p.m.
I tided up the house them vacuumed it.
Charlie went to work early this morning.
The cabinet man came to fix the bathroom cabinet. Half way through vacuuming I told Alex he had to have a nap. I put him to bed and read him a story, then I finished vacuuming. We had lunch then we got ready to go to Alex’s class.
I had no trouble leaving Alex, he didn’t complain at all. I did some Christmas shopping, came home, put away the stuff and went back to the class.
Alex was really excited about the class. They made muffins which they ate in the class and they also got to take one home with a recipe card.
We came home, Alex wanted to go for a walk.
Charlie came home around four o’clock. I started dinner and we ate at five thirty.
I exercised downstairs at seven o’clock. I started getting Alex ready for bed after eight o’clock.
I went to bed after ten o’clock.
No tests
Medicine
Bactrim 7:40 a.m. ------ 7:15 p.m.
Mercapotpurine ------ ------ 7:15 p.m.
Temperature 36.47C 7:40 a.m. 36.17C 7:15 p.m.
Friday, October 7, 2011
Diagnosis: Leukemia; October 6, 1987
Alex woke me up at seven o’clock for breakfast. I got Alex his breakfast then I had a shower and got dressed.
We went to A & B Sound in Surrey to look at a stereo. We decided on the one we had seen at the home show. It comes with a stand, when we got home Charlie started to put it together. We put the old stereo downstairs.
Charlie and I checked the stereo and found it was the wrong one. Charlie phoned the salesman and they told him to phone back in an hour. Charlie phoned back after an hour and fifteen minutes. They said he was still out, that’s when Charlie said when will he be back. He’s been gone for more than an hour. Finally Charlie got a hold of him. The salesman said to bring it back.
Charlie went back to the store. When he left Alex cried and cried.
Nora phoned not long after and asked if Alex could come over to play. I took Alex over and when I came back I cleaned the bathrooms. Then I took the records downstairs and put them in the stereo bench.
Charlie came home and went to connect the speakers up, but they didn’t fit the stereo. Charlie phoned back and they told him oh we gave you the wrong stereo. You’ll have to bring it back. By this time he was pretty cranky. He had to pack it all back into the boxes.
I went to get Alex and we came home. Alex wanted dinner but I told him we would be going out later.
Charlie came home again, they even gave him the wrong stand. Charlie put the stand together and we were able to hear the new stereo.
We went out to eat at six o’clock. Afterwards we went to Mom and Dad’s.
We got home at nine thirty, Alex woke up when we came home and didn’t fall asleep until I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 7:30 p.m.
Mercatpopurine ------ ------ 7:30 p.m.
We went to A & B Sound in Surrey to look at a stereo. We decided on the one we had seen at the home show. It comes with a stand, when we got home Charlie started to put it together. We put the old stereo downstairs.
Charlie and I checked the stereo and found it was the wrong one. Charlie phoned the salesman and they told him to phone back in an hour. Charlie phoned back after an hour and fifteen minutes. They said he was still out, that’s when Charlie said when will he be back. He’s been gone for more than an hour. Finally Charlie got a hold of him. The salesman said to bring it back.
Charlie went back to the store. When he left Alex cried and cried.
Nora phoned not long after and asked if Alex could come over to play. I took Alex over and when I came back I cleaned the bathrooms. Then I took the records downstairs and put them in the stereo bench.
Charlie came home and went to connect the speakers up, but they didn’t fit the stereo. Charlie phoned back and they told him oh we gave you the wrong stereo. You’ll have to bring it back. By this time he was pretty cranky. He had to pack it all back into the boxes.
I went to get Alex and we came home. Alex wanted dinner but I told him we would be going out later.
Charlie came home again, they even gave him the wrong stand. Charlie put the stand together and we were able to hear the new stereo.
We went out to eat at six o’clock. Afterwards we went to Mom and Dad’s.
We got home at nine thirty, Alex woke up when we came home and didn’t fall asleep until I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 7:30 p.m.
Mercatpopurine ------ ------ 7:30 p.m.
Thursday, October 6, 2011
Diagnosis: Leukemia; October 5, 1987
I woke up at eight thirty, Alex was still in bed. I made Alex and my breakfast then I had a shower.
We went to the mall to look at stereos. We came back at 12:30 p.m.
Nora had phoned earlier and asked if Kurt was still coming over this afternoon. She said she had some errands to do.
Kurt came over at one o’clock. Alex didn’t play very well with him. Anything Kurt wanted to play with Alex wanted.
I put away the towels, put away the laundry, did the dishes and tided up the house.
Kurt left at four thirty, I started to cook dinner. Alex didn’t want what I was cooking so he had leftovers. After dinner we went downstairs, Alex rode his bike and I exercised.
I gave Alex a bath and got him ready for bed.
I watched TV and did my knitting. I wrote in the journal and did the dishes. I went to bed before eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ----- 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
We went to the mall to look at stereos. We came back at 12:30 p.m.
Nora had phoned earlier and asked if Kurt was still coming over this afternoon. She said she had some errands to do.
Kurt came over at one o’clock. Alex didn’t play very well with him. Anything Kurt wanted to play with Alex wanted.
I put away the towels, put away the laundry, did the dishes and tided up the house.
Kurt left at four thirty, I started to cook dinner. Alex didn’t want what I was cooking so he had leftovers. After dinner we went downstairs, Alex rode his bike and I exercised.
I gave Alex a bath and got him ready for bed.
I watched TV and did my knitting. I wrote in the journal and did the dishes. I went to bed before eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ----- 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Tuesday, October 4, 2011
Leukemia Diagnosis; October 4, 1987
Alex woke me up before seven o’clock, he said he’s hungry and wanted his breakfast. I got him his breakfast and watched TV.
Charlie woke up at 7:30 a.m. and I went back to bed. I woke up at ten o’clock, I started to make waffles. We didn’t have any Aunt Jemima mix so I had to make it from scratch. Alex and I had them for breakfast. There were three left, I put them in the freezer.
I had a shower, got dressed and got Alex’s diaper bag ready. Then I tided up the house. We left at one o’clock for the home show. Afterwards we went out for dinner and dropped by at Mom and Dad’s.
They had gone up to Blair and Paul’s for the weekend. I was glad to hear everything went well. The way Blair was acting when they were down I wondered if they would have a big fight.
Jeff dropped by when we were there. He’s looking really good, so much more rested.
We left at ten o’clock, Alex had fallen asleep on the sofa. He woke up for a few minutes before we left. Mom gave him a basket of little presents, she said he could pick one once a week. Mom got a bit choked up, they will be leaving for Arizona on Thursday if everything goes well.
We got home at eleven o’clock. I put Alex into his bed, he woke for only a few minutes and went back to sleep.
I had a bath and went to bed.
No tests
Medicine
Bactrim 7:00 a.m. ------ 8:00 p.m.
Mercpatopurine ------ ------ 8:00 pm.
Temperature 36.35C 7:00 a.m. ------ 36.40 8:00 p.m.
Charlie woke up at 7:30 a.m. and I went back to bed. I woke up at ten o’clock, I started to make waffles. We didn’t have any Aunt Jemima mix so I had to make it from scratch. Alex and I had them for breakfast. There were three left, I put them in the freezer.
I had a shower, got dressed and got Alex’s diaper bag ready. Then I tided up the house. We left at one o’clock for the home show. Afterwards we went out for dinner and dropped by at Mom and Dad’s.
They had gone up to Blair and Paul’s for the weekend. I was glad to hear everything went well. The way Blair was acting when they were down I wondered if they would have a big fight.
Jeff dropped by when we were there. He’s looking really good, so much more rested.
We left at ten o’clock, Alex had fallen asleep on the sofa. He woke up for a few minutes before we left. Mom gave him a basket of little presents, she said he could pick one once a week. Mom got a bit choked up, they will be leaving for Arizona on Thursday if everything goes well.
We got home at eleven o’clock. I put Alex into his bed, he woke for only a few minutes and went back to sleep.
I had a bath and went to bed.
No tests
Medicine
Bactrim 7:00 a.m. ------ 8:00 p.m.
Mercpatopurine ------ ------ 8:00 pm.
Temperature 36.35C 7:00 a.m. ------ 36.40 8:00 p.m.
Diagnosis: Leukemia; October 3, 1987
I woke up at eight thirty. I had my breakfast, Alex had already had his breakfast. He woke up early with Charlie.
Charlie had asked me yesterday if we were going to buy a new TV. So today I told him either you buy it or you don’t mention it again. Charlie has been talking about it for the last week. He finally decided he should buy it. We went to Woodward’s and bought it.
It sure is a nice TV the color and the picture are so clear.
In the afternoon Alex and I went to the mall, we came home after four o’clock.
I started to cook dinner, we ate at six o’clock. We watched TV after dinner.
Alex went to bed at nine o’clock.
I went to bed at eleven o’clock. I woke up at one o’clock, I heard the doorbell and Kelly was barking. Charlie said some guy had the wrong house. We went back to bed.
No tests
Medicine
Bactrim 11:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Temperature ------ ------ 36.67C
Charlie had asked me yesterday if we were going to buy a new TV. So today I told him either you buy it or you don’t mention it again. Charlie has been talking about it for the last week. He finally decided he should buy it. We went to Woodward’s and bought it.
It sure is a nice TV the color and the picture are so clear.
In the afternoon Alex and I went to the mall, we came home after four o’clock.
I started to cook dinner, we ate at six o’clock. We watched TV after dinner.
Alex went to bed at nine o’clock.
I went to bed at eleven o’clock. I woke up at one o’clock, I heard the doorbell and Kelly was barking. Charlie said some guy had the wrong house. We went back to bed.
No tests
Medicine
Bactrim 11:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Temperature ------ ------ 36.67C
Sunday, October 2, 2011
Diagnosis: Leukemia; October 2, 1987
Alex woke me up at five o’clock. We went back to bed after I got him changed. Alex woke me up again at 6:30 a.m., he wanted his breakfast. I gave him his breakfast and later we watched TV.
Alex had a shower and started to gag in the shower. He threw up all his breakfast. I got him dressed then I went to the bank, Overwaitea Foods and came home.
Marla phoned to tell us she’s sick and she didn’t think we should go over. Marla said her doctor did a blood test, her blood count and blood pressure are both low. She also said she has no energy. I found it very upsetting as it brought back memories.
Alex had a nap at noon until after one o’clock when I woke him up.
Nora phoned and said Kurt wanted Alex to come over to play. I took Alex over at 1:30 p.m. and came home. It sure is quiet without him in the house. Dumb as it seems I almost feel like I don’t know what to do.
I went to get Alex at 2:45 p.m. Kurt asked Alex if he would come back to his house after they came back from school.
Alex went back to Kurt’s house at three thirty. I came home, did some knitting and cleaned up the kitchen.
I went and got Alex at 4:15 p.m. Kurt said can I come over to Alex’s house. Nora said no another day. I told him he could come over Monday afternoon.
We came home and Alex said he wanted Nachos. I made them and we watched TV. After dinner Alex went to watch Mr Dressup and play.
We went downstairs around six o’clock to exercise. Afterwards Alex wanted something to eat.
I told him it was time to have his bath. He said he wasn’t going to. I told him he could have a bath and play afterwards or go to bed. He started to cry and scream. I had quite a time getting him to wash up and brush his teeth.
Alex went to bed before eight o’clock. I watched TV, wrote in the journal, put away Alex’s toys and did the dishes.
I’m going to go to bed soon.
No tests
Medicine
Bactrim 7:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 35.93C 7:00 a.m. ------ 36.13C 7:00 p.m.
Alex had a shower and started to gag in the shower. He threw up all his breakfast. I got him dressed then I went to the bank, Overwaitea Foods and came home.
Marla phoned to tell us she’s sick and she didn’t think we should go over. Marla said her doctor did a blood test, her blood count and blood pressure are both low. She also said she has no energy. I found it very upsetting as it brought back memories.
Alex had a nap at noon until after one o’clock when I woke him up.
Nora phoned and said Kurt wanted Alex to come over to play. I took Alex over at 1:30 p.m. and came home. It sure is quiet without him in the house. Dumb as it seems I almost feel like I don’t know what to do.
I went to get Alex at 2:45 p.m. Kurt asked Alex if he would come back to his house after they came back from school.
Alex went back to Kurt’s house at three thirty. I came home, did some knitting and cleaned up the kitchen.
I went and got Alex at 4:15 p.m. Kurt said can I come over to Alex’s house. Nora said no another day. I told him he could come over Monday afternoon.
We came home and Alex said he wanted Nachos. I made them and we watched TV. After dinner Alex went to watch Mr Dressup and play.
We went downstairs around six o’clock to exercise. Afterwards Alex wanted something to eat.
I told him it was time to have his bath. He said he wasn’t going to. I told him he could have a bath and play afterwards or go to bed. He started to cry and scream. I had quite a time getting him to wash up and brush his teeth.
Alex went to bed before eight o’clock. I watched TV, wrote in the journal, put away Alex’s toys and did the dishes.
I’m going to go to bed soon.
No tests
Medicine
Bactrim 7:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 35.93C 7:00 a.m. ------ 36.13C 7:00 p.m.
Saturday, October 1, 2011
Diagnosis: Leukemia; October 1, 1987
I couldn’t believe it Alex woke me up at 6:30 a.m. I can’t remember when he woke up so early. I was glad I had gone to bed early or else I would have been really tired.
Alex and I had breakfast then we watched TV. Charlie woke up at 7:30 a.m.
I had a shower and got dressed. I washed the fridge and did the dishes.
Alex and I went outside, I washed my car and Alex rode his bike. Alex decided he wanted to water my garden and he promptly watered me instead! It wasn’t too funny at the time. He was quite annoyed when I sent him inside to change, since he was wet as well.
By the time I finished and came upstairs Alex was having lunch. I played with Alex in his room then I told him to go for a nap. He was quite upset until I told him his friend does it every day. Alex decided this was okay and he went to bed.
Alex slept until 1:30 p.m., I wrote in the journal while he was asleep. I went downstairs to exercise, Alex came down and rode his bike.
Charlie went to work before three o’clock. While Alex was asleep the maintenance man came to replace the fire alarm.
Alex and I went to K-Mart. When we were leaving Alex fell down and hurt his foot. He said he couldn’t walk so I told him we couldn’t go to McDonald’s like he wanted to. Alex said no my foot is okay I can walk now. I told him I couldn’t carry him as I would have to carry the tray. We went to Woodward’s and Toy City then we came home.
Alex closed the closet door and pinched his hand. Poor guy he’s having a rough night!
I gave Alex a bath, got him ready for bed, got him to brush his teeth and read him a story. Alex was asleep by 8:30 p.m.
I watched TV and wrote in the journal. I’ll go to bed soon.
No tests
Medicine
Bactrim 6:50 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 36.06C 6:50 a.m. 36.10 C 7:30 p.m.
Alex and I had breakfast then we watched TV. Charlie woke up at 7:30 a.m.
I had a shower and got dressed. I washed the fridge and did the dishes.
Alex and I went outside, I washed my car and Alex rode his bike. Alex decided he wanted to water my garden and he promptly watered me instead! It wasn’t too funny at the time. He was quite annoyed when I sent him inside to change, since he was wet as well.
By the time I finished and came upstairs Alex was having lunch. I played with Alex in his room then I told him to go for a nap. He was quite upset until I told him his friend does it every day. Alex decided this was okay and he went to bed.
Alex slept until 1:30 p.m., I wrote in the journal while he was asleep. I went downstairs to exercise, Alex came down and rode his bike.
Charlie went to work before three o’clock. While Alex was asleep the maintenance man came to replace the fire alarm.
Alex and I went to K-Mart. When we were leaving Alex fell down and hurt his foot. He said he couldn’t walk so I told him we couldn’t go to McDonald’s like he wanted to. Alex said no my foot is okay I can walk now. I told him I couldn’t carry him as I would have to carry the tray. We went to Woodward’s and Toy City then we came home.
Alex closed the closet door and pinched his hand. Poor guy he’s having a rough night!
I gave Alex a bath, got him ready for bed, got him to brush his teeth and read him a story. Alex was asleep by 8:30 p.m.
I watched TV and wrote in the journal. I’ll go to bed soon.
No tests
Medicine
Bactrim 6:50 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 36.06C 6:50 a.m. 36.10 C 7:30 p.m.
Diagnosis: Leukemai; September 30, 1987
Alex woke me up just after seven o’clock, he wanted to pick a prize. I told him to go ahead, he came back and asked me to open it. Then a little while later he asked me to get him his cereal. I got up and gave him his cereal, it was 7:30 a.m.
I sat and watched TV, while Alex had his breakfast. I had a shower and got dressed. The maintenance man is to come between nine and nine thirty.
The fire alarm started beeping again after we had a shower. Charlie went and turned the power off. He asked the painter if he knew what it might be. He said it might be the moisture from having a shower as it is beside the bathroom.
I got Alex dressed and ready to go out. They’re painting the outside of the house, it’s probably better to go out. We went to get Alex his Halloween costume and came home around noon. We had lunch and shortly afterwards Kurt came over to play with Alex. I told Nora any time between four and five o’clock.
Alex and Kurt played really well together. It nice to see them together. The only problem is that I have a hard time understanding Kurt. Alex and Kurt were looking in the fridge. Kurt said I’d like some doke. Charlie thought he had said dope! I really didn’t know what he had said, finally we figured it out.
Nora came to get Kurt and they left at four thirty. I started to make dinner, Alex wanted something right away so I gave him plain macaroni. We had macaroni and cheese after five o’clock.
Around six o’clock Alex said he was tired so we had better go for a walk to wake him up. I told him, not after yesterday as he threw a temper tantrum right on the street. Alex said I’ll be good, I won’t bring my bike and I won’t scream any more. I said okay but you had better be good. He said okay.
Alex was good on his walk he didn’t complain at all.
Alex refused to have a bath and I was too tired to argue with him. I just let him watch TV on our bed.
I did the dishes and tided up the house. Then I watched TV until nine o’clock. I read in bed for awhile.
No tests
Medicine
Bactrim 7:30 a.m. ----- 5:30 p.m.
Mercaptopurine ----- ------ 5:30 p.m.
Temperature 36.18C 7:30 a.m. 36.50C 12:30 p.m. 35.64C 5:30 p.m.
I sat and watched TV, while Alex had his breakfast. I had a shower and got dressed. The maintenance man is to come between nine and nine thirty.
The fire alarm started beeping again after we had a shower. Charlie went and turned the power off. He asked the painter if he knew what it might be. He said it might be the moisture from having a shower as it is beside the bathroom.
I got Alex dressed and ready to go out. They’re painting the outside of the house, it’s probably better to go out. We went to get Alex his Halloween costume and came home around noon. We had lunch and shortly afterwards Kurt came over to play with Alex. I told Nora any time between four and five o’clock.
Alex and Kurt played really well together. It nice to see them together. The only problem is that I have a hard time understanding Kurt. Alex and Kurt were looking in the fridge. Kurt said I’d like some doke. Charlie thought he had said dope! I really didn’t know what he had said, finally we figured it out.
Nora came to get Kurt and they left at four thirty. I started to make dinner, Alex wanted something right away so I gave him plain macaroni. We had macaroni and cheese after five o’clock.
Around six o’clock Alex said he was tired so we had better go for a walk to wake him up. I told him, not after yesterday as he threw a temper tantrum right on the street. Alex said I’ll be good, I won’t bring my bike and I won’t scream any more. I said okay but you had better be good. He said okay.
Alex was good on his walk he didn’t complain at all.
Alex refused to have a bath and I was too tired to argue with him. I just let him watch TV on our bed.
I did the dishes and tided up the house. Then I watched TV until nine o’clock. I read in bed for awhile.
No tests
Medicine
Bactrim 7:30 a.m. ----- 5:30 p.m.
Mercaptopurine ----- ------ 5:30 p.m.
Temperature 36.18C 7:30 a.m. 36.50C 12:30 p.m. 35.64C 5:30 p.m.
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