Diagnosis: Leukemia; December 30, 1987

We woke up at eight o’clock. I had a shower and got dressed.

We left at nine thirty for Bellingham. We went there to see if we could find any Atari games. They don’t seem to have any up here.

We got there at noon and had lunch at McDonald’s. Alex got annoyed at me because I touched his fries, which were actually mine!

Marla said Toy Parade was a good toy store. We finally got there at three o’clock. They had three games we didn’t have and the salesclerk said they would be getting more in.

We started home at four o’clock. We had to pay duty and federal tax on the games. It was only $8.00 so it wasn’t too bad.

We got home at six o’clock. We watched TV and I got Alex ready for bed at nine o’clock.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------- 7:50 p.m.
Mercaptopurine ------- -------- 7:50 p.m.

Diagnosis: Leukemia; December 29, 1987

We woke up at eight o’clock. I had a shower and got dressed.

We got ready to go to Joan’s. We got the 11:30 a.m. ferry and arrived there at 12:30 p.m.

Paul was at work.

Joan and the kids looked good. Mitch looked a bit skinny. Karen looks about the same. Paige has grown quite a bit, she’s now seven months old.

We stayed for a few hours and left to catch the four thirty ferry.

They’re adding an addition onto the house. When it’s finished it’ll be really nice.

We went to a Won Ton House for dinner then we came home.

Alex went to bed at nine o’clock.

I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.

Diagnosis: Leukemia: December 28, 1987

We woke up at ten o’clock. I had a shower and got dressed.

In the afternoon we went out to the mall. We looked at the stores with the Boxing Day sales. It use to be just one day, now it seems to be extended for a week. We came home and had dinner at six o’clock.

We watched TV after dinner, Alex went to bed around nine o’clock.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 11:30 a.m. ------- 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Methotrexiate ------- 4:30 pm. -------

Temperature 36.52C 6:00 p.m.

Diagnosis: Leukemia; December 27, 1987

We woke up at ten o’clock. I had a shower and got dressed.

We didn’t do too much today, we just rested. Charlie went out to the mall.

We had dinner around six o’clock. We watched TV and I got Alex ready for bed at eight o’clock.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 11:00 a.m. ------- 7:00 p.m.
Mercaptopurine ------- -------- 7:00 p.m.

Diagnosis: Leukemia; December 26, 1987

I woke up at nine o’clock. I had breakfast, had a shower and got dressed.

We went out after lunch. We went to Mom and Dad’s for the mail. Then we went to Stanley Park to ride the Christmas train. Afterwards we went out for dinner then to the Chew’s.

Carrie and Robert gave Alex an outfit, Fred and Cindy gave Alex pin the tail on the donkey game.

We came home at eight o’clock.

Alex has been having more temper tantrums today.

Alex went to bed at nine o’clock. He’s been going to bed a lot better and last night he slept in his own bed.

We both were able to get a good night sleep.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------ 7:30 p.m.
Mercaptopurine ------- ------- 7:30 p.m.

Diagnosis: Leukemia; December 25, 1987

It’s Christmas Day!

I woke up at six o’clock. As usual I can’t sleep on Christmas eve.

I had a shower, got dressed and did the laundry.

Alex woke up at seven thirty. I didn’t tell Alex it was Christmas eve last night. When Alex walked into the living room he was really surprised to see that Santa had come. Alex took the stuff out of the stocking. He kept on saying WOW LOOK AT THIS! Alex said WOW look two police cars, one big and one small.

Then we opened our presents. Alex would start to open a present then he would say is this one for me. Alex got an outfit and a book (all around the town) from Grandma and Grandpa. Lanie gave him a song book and cassette set. Alain gave him my busy day by Fisher Price. Monique Chew gave him an outfit. Jolene gave him a crayon, print and marker set. Mr & Mrs Chew gave him a big car and a box of coffee crisp.

I got a sweater, a cookbook and book markers from Mom and Dad. Alex gave me two video games. Charlie gave me the Atari.

Charlie got a sweat shirt form Mom and Dad. I gave him a charger and a wireless screw driver. Alex gave him a rechargeable flash light.

After we opened our presents we had breakfast. We tided up the house as Shirley, Aaron and the kids were coming over in the afternoon.

They came at two o’clock. We exchanged presents then Alex and Brent went and played.

I put chips and dip, cheese and crackers, and my baking out.

Alex got P.J.‘s from Monique, Brent gave him Hamburger (the game).

Charlie got a jar of peanuts from Shirley. I got a perfume set from Shirley.

Alex has been very weepy today. He cried twice this morning and he had temper tantrums as well. It seems like Christmas was too much for him.

Shirley, Aaron and the kids left at six o’clock.

We were full from snacking, so we didn’t bother to have the ham Charlie got from work.

Christmas was very enjoyable. I don’t think I could of handled cooking dinner again this year.

Alex fell asleep at five o’clock and woke up at seven o’clock.

Alex and I played his new games.

We went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------- 10:00 p.m.
Mercaptopurine ------ ------10:00 p.m.

Temperature 35.95C 10:00 p.m.

Diagnosis: Leukemia; December 24, 1987

We woke up at nine o’clock. I had breakfast, a shower and got dressed.

Alex and I went to the mall to buy the rest of Charlie’s Christmas present.

There sure are a lot of people in the mall. We came home around two o’clock.

Alex and I played together in the afternoon. Then I started to cook dinner.

I put Alex to bed around eight o’clock. He’s still having a lot of trouble sleeping. He gets into bed with us in the middle of the night every night. At one point during the night I checked him and he wasn’t having a good sleep. He was making a few noises and his eye lids were fluttering.

I didn’t tell him it was Christmas eve as I thought he would sleep better.

I finished wrapping all the presents and I put them under the tree.

I finally got to bed after midnight.

No tests

Medicine

Bactrim 9:20 a.m. ------ 6:15 p.m.
Mercaptopurine ------ ------- 6:15 p.m.

Temperature 35.29C 9:20 a.m.

Diagnosis: Leukemia; December 23, 1987

Charlie is on holidays!

We woke up at nine o’clock. I got dressed and had breakfast.

I vacuumed the house cleaned all the furniture, cleaned the bathrooms and washed the floors. I finished around three o’clock. I had a shower and got dressed.

Charlie came home around four o’clock. He had been out all day.

We went out for dinner, then we went to the Chew’s. We exchanged Christmas presents, we only bought for the children. Laura, Andrea and I had decided it would be best to buy just for the children.

We got home around nine o’clock. I got Alex ready for bed.

I watched TV and went to bed after eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.

Temperature 35.59C 9:00 p.m.

Diagnosis: Leukemia; December 22, 1987

We woke up at nine o’clock. I had a shower, got dressed and had breakfast.

In the morning I made fruit cake, spritiz cookies and shortbread with cherries inside.

We went to Shirley’s at four o’clock. We stayed for an hour and a half. Charlie asked me to buy a jacket from K-Mart.

Alex and I came home at six o’clock.

I went to the mall after I took Alex home. Charlie looked after Alex while I went out.

I met Shirley in the mall at seven thirty. Then we separated and met at Woodward’s at nine o’clock. We went to P.J.’s afterwards.

I got home around eleven thirty. I watched TV then I went to bed.

No tests

Medicine

Bactrim 9:00 a.m. ------ 8:000 p.m.
Mercaptopurine ------ ------ 8:000 p.m.

Diagnosis: Leukemia; December 21, 1987

We woke up at nine o’clock. I had a shower, got dressed and had breakfast.

Charlie is starting holiday’s on the 23rd.

We went to the mall in the morning. We came home after lunch.

I did some more baking.

We went to Coral’s house at two o’clock and stayed until four thirty. Coral had all the kids over for a Christmas party. We exchanged gifts, it was a lot of fun. Marla and the kids were also there.

Charlie came home around four o’clock, he’s on day shift.

We had dinner around five o’clock.

I got Alex ready for bed around eight o’clock.

I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:000 p.m.
Methotrexiate ------ 5:15 p.m. ------
36.20C 9:30 a.m.

Diagnosis: Leukemia; December 20, 1987

We woke up around nine o’clock. We had breakfast then I had a shower and got dressed.

In the afternoon we went to the mall.

Shirley had come over in the morning and stayed for a few hours.

We came home from the mall at four o’clock.

Laura phoned around four thirty. She said oh I’m having so much trouble with the gingerbread house. She said it won’t stick together. I asked her what kind of icing she used. She said she used butter icing. I told her you can’t use that kind for the house. I told her it should say in the magazine. She said it didn’t, then she said what do I do with the roof it broke!

I told Charlie, he said that figures.

I started to cook dinner, we ate around six o’clock.

After dinner we watched TV. Alex went to bed at nine o’clock.

I went to bed after eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

Temperature 34.92C 9:30 a.m. 36.33C 8:00 p.m.

Diagnosis: Leukemia; December 19, 1987

We woke up before nine o’clock. I had a shower, got dressed and had breakfast.

We went to Oakridge mall in the afternoon. We met Laura and Andrea at Woodward’s. Laura asked if we were coming over. She said she was making a gingerbread house. She said you’re the expert and I need your help. I asked her if she was using the kit. Laura said she was making it from scratch!

We went for dinner then we went to the Chew’s. Laura asked me to help her knead the dough. I did a little of it but it’s hard work. Laura asked if I wasn’t busy tomorrow if I could come over and help her put the gingerbread house together. I have no intention of putting someone else gingerbread house together. It may sound selfish but Laura likes to compete but doesn’t like to do whatever projects she’s competing in.

We came home around nine o’clock. I put Alex to bed around ten o’clock.

I went to bed after eleven o’clock.

No tests

Medicine

Bactrim 8:45 a.m. ------ 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Prednisone 8:45 p.m. 5:30 p.m.

Diagnosis: Leukemia; December 18, 1987

We woke up before nine o’clock. I had a shower, got dressed and had breakfast.

We went to the mall and came back around noon.

I did some more baking. I gave Marla a small tin when we saw her on Tuesday.

Alex has been having temper tantrums again. It seems to come more when he’s on prednisone. His temper has been getting worse, he’s been starting to kick us or anything that’s around.

Kurt came over in the afternoon.

Shirley dropped by around three o’clock. She stayed for an hour or so.

We went to McDonald’s for dinner then we came home.

I got Alex ready for bed at eight thirty.

I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 8:45 a.m. ------ 8:20 p.m.
Mercaptopurine ------ ----- 8:20 p.m.
Prednisone 8:45 a.m. 1:50 p.m. 8:20 p.m.

Temperature 35.70C 1:50 p.m.

Diagnosis: Leukemia; December 17, 1987

We woke up at eight o’clock. I had a shower, got dressed and had breakfast.

I did some more baking in the afternoon. I made Nanaimo Bars, Alex’s favorite. I usually have extra on hand for Alex when he isn’t feeling good. There are a few things I have found Alex needs to have, to either make him feel better or settle his stomach. He likes to have Instant hot cereal, Apple and Cinnamon flavor. He also likes the fruit cup that are in the little containers. I don’t know what they do but the cereal and the fruit cup seem to settle his stomach. I guess they are just comfort foods and he does need that after having Chemotherapy.

We had dinner at five o’clock.

I got Alex ready for bed at eight o’clock.

I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactgrim 8:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:000 p.m.
Prednisone 8:00 a.m. 2:45 p.m. 8:00 p.m.

Temperature 35.69C 8:00 a.m.

Diagnosis: Leukemia; December 16, 1987

We woke up at nine o’clock. I had breakfast, a shower and got dressed.

I tided up the house and in the afternoon I did some baking. Well I iced the sugar cookies. I like to pipe the icing on the cookies. For the trees I make different colored lights, the stars I usually outline them in yellow icing, the snowmen I make their gloves, hats and buttons different colors, and the bells I outline in different colors. I find it a lot of work but they look really good in the end. I like to make the cookies the day before, otherwise I find it too much work!

We had dinner after five o’clock.

I watched TV and got Alex ready for bed at eight o’clock.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:47 a.m. ------ 7:50 p.m.
Mercaptopurine ------ ------- 7:50 p.m.
Prednisone 9:47 a.m. 2:50 p.m. 7:50 p.m.

Temperature 35.70C 9:47 a.m. 36.36C 2:50 p.m.

Diagnosis: Leukemia; December 15, 1987

We woke up at nine o’clock. I had a shower, got dressed and had breakfast.

We went to Marla’s for a Christmas party. Charlie stayed a few minutes and left. We had lunch then the kids played for awhile before Santa came. There were about twelve kids there, most of the kids were dressed up. They sure looked cute. Santa came at two o’clock, the kids were so excited. The look on their faces was priceless. We left at four o’clock and came home. Alex played in the snow when we got back.

We had dinner after five o’clock. Alex went to bed at eight o’clock. I went to bed around eleven o’clock.

No tests

Medicine

Bactgrim 9:00 a.m. ------ 8:00 p.m.
Mercaptopruine ------- ------ 8:000 p.m.
Prednisone 9:00 a.m. 2:30 p.m. 8:00 p.m.

Temperature 35.61C 9:00 a.m.

Diagnosis: Leukemia; December 14, 1987

I woke up at nine o’clock. It snowed last night about five or six inches. Alex was really excited. Charlie and Alex went outside to shovel the snow.

Alex came in at eleven o’clock. I made him hot chocolate and made our lunches.

I got ready to go to the hospital. We left at noon and arrived there at twelve thirty.

They were behind schedule, I guess because of the snow.

We saw Alex’s doctor at two o’clock. I told her about Alex’s sleeping habits. She said it had nothing to do with Alex having Leukemia. Dr S said it’s just a phase he’s going through. I really don’t believe it. I can see different signs which shows Alex is more insecure. He doesn’t like to sleep alone and he comes into bed every night. He doesn’t’ like going to his cooking class anymore. He doesn’t like to leave us. He’s started to hold a Kleenex and sucks his thumb a lot more. The way he holds the Kleenex is like a child holding a blanket.

Dr. S suggested we lock our door at night so he couldn’t get in. She said you have to be very hard with him. Quite different from what Dr. W said. He said we would just have to work through it slowly.

Right now I’m not going to worry about it. I don’t let him sleep in our bed when he first goes to sleep. Maybe when he feels more secure he’ll sleep in his bed all night.

I’ve also noticed that he likes to do a lot of hold and hugging. Alex takes his bear in the car with him which he didn’t do before.

The doctor sent his prescription for Chemotherapy then we waited for about half an hour.

We left at three o’clock. We got Alex’s prescription for his medicine he takes at home.

We got home at four o’clock. Charlie decided he wouldn’t go to work.

I started to cook dinner at four thirty. We ate at five thirty. After dinner I went to the mall.

When I got back I got Alex ready for bed. I went to bed at eleven o’clock.

Tests

WBC 3.1
HGB 13.3
Platelets 452 000
ANC 1,922

Medicine

Bactrim 11:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Methotrexiate ---------- 4:30 p.m. --------
Prednisone --------- -------- 8:000 p.m.

Temperature 35.68C 11:00 a.m. 36.17C 4:30 p.m.

Diagnosis: Leukemia; December 13, 1987

I woke up ate ten o’clock. I had a shower and got dressed. Charlie made us pancakes.

We went out shopping and came home at two o’clock. We watched TV.

We went out for dinner then we went to North Vancouver to watch the carol ships. They were suppose to come at six or seven thirty but they didn’t come until almost eight thirty. I was almost frozen, we only stayed to watch for about ten minutes then we left. Alex wasn’t too interested in the boats. He wanted to play in the sand!

We looked at some more Christmas lights then we came home.

I got Alex ready for bed at ten o’clock.

I went to bed around eleven o’clock.

No tests

Medicine

Bactrim 10:50 a.m. ------- 10:00 p.m.
Mercaptopurine ------- ------ 10:00 p.m.

Temperature 36.28C 10:50 a.m. 35.19C 10:00 p.m.

Diagnosis Leukemia; December 12, 1987

I woke up at ten o’clock. I had breakfast and got dressed.

In the afternoon we went to the Landsdown mall. Then we went out for dinner. We drove around the city and looked at the Christmas lights. The lights are so beautiful, it’s amazing what people will do. The cost must be unbelievable, just to have them on for some many hours and for the month of December. I sure wouldn’t want their electricity bill!

We came home around seven o’clock. We watched TV and I got Alex ready for bed at eight o’clock.

I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:45 p.m. -------- 7:30 p.m.
Mercaptopurine ------- ------- 7:30 p.m.

Temperature 36.28C 7:30 p.m.

Diagnosis: Leukemia; December 11, 1987

I woke up at ten o’clock. I have a cold and feel miserable.

I had a shower and got dressed. In the afternoon Kurt came over and I made sugar cookies. Kurt went home at three o’clock.

We had dinner at five o’clock. We watched TV after dinner.

I go Alex ready for bed at eight o’clock. I watched TV and went to bed at ten o’clock.

No tests

Medicine

Bactrim 11:00 a.m. ------- 7:45 p.m.
Mercaptopurine ------- -------- 7:45 p.m.

Temperature 35.09C 11:00 a.m. 36.51C 7:45 p.m.

Diagnosis: Leukemia; December 10, 1987

I woke up before nine o’clock. I think I’m coming down with a cold. I took some medicine, I had a shower and got dressed.

Alex woke up at ten thirty. He looked really tired, it worried me. I thought maybe his blood count was down. By lunchtime though Alex was back to normal.

In the morning I made shortbread. Then I had lunch. After lunch I vacuumed the house.

At three thirty we went to the bank. Then we went to McDonald's, as we were leaving McDonald’s I dropped Alex’s hot chocolate. Alex made such a big deal out of it. I told him we had to go home so I could change my pants since I had chocolate down the front of them. Alex had a fit, he said I don’t want to go home I want to go to the mall. If I’m going to the mall with a brown stain down my pants!

When we got home Alex had a temper tantrum. He didn’t listen to me, I told him we were going to the mall after I got changed.

We went to the mall. I was able to get a pair of boots and they’re the last pair in my size!

We came home at seven thirty. Alex played while I watch TV. At nine o’clock I got Alex ready for bed. Before I got him ready I went to tape a show for Charlie on the VCR but it ate two tapes. I had put the one tape on the chest of drawers. I told Alex not to touch it. So of course he touched it. I tapped his hand and told him not to touch it. This made him really mad and he started to hit me, he also was swearing at me. I told him to wash his hands and go to bed.

Alex said he was sorry when he got into bed but he wouldn’t look at me.

It sure is frustrating having a fight with him. It sure ruins the night.

I watched TV and wrote in the journal. I’m going to go to bed soon, it’s eleven o’clock now.

No tests

Medicine

Bactrim 11:00 a.m. ------- 7:45 p.m.
Mercaptopurine --------- --------- 7:45 p.m.

Temperature 35.09C 11:00 a.m. 36.51C 7:45 p.m.

Diagnosis: Leukemia; December 9, 1987

I woke up at nine o’clock. Shirley phoned and asked me to do a test for her. I got ready for Aerobics. I came home at eleven thirty.

Charlie and Alex were out when I got home. I had a shower, got dressed and had my lunch.

In the afternoon I made Spritz cookies. Alex went for a nap. I woke him up at four o’clock. We had dinner at five o’clock. Alex didn’t want pork chops, as yet he hasn’t eaten pork. I don’t know why he doesn’t like it.

Alex had pizza, it may seem wrong to give him something else but it’s better to please him right now.

We watched TV and went to bed at ten thirty. Alex wanted to come to bed with me but I told him to sleep in his own bed. He finally went to sleep in his bed, but as usual he came into bed later in the night.

No tests

Medicine

Bactrim ------- 1:40 p.m. 7:15 p.m.
Mercaptopurine ------ ------- 7:15 p.m.

Temperature ------- 35.79C 1:40 35.93C 7:15 p.m.

Diagnosis: Leukemia; December 8, 1987

I woke up at nine thirty. I had a shower and got dressed.

I played with Alex, everyday we play his car game. Each person has to pick a car for the other person and you have to close your eyes.

Alex had a nap in the afternoon. I made Dutch butter cake, it’s a recipe from Alex’s cooking class.

While Alex was still asleep I went downstairs to exercise. I started cooking dinner at five o’clock.

Shirley phone and asked if we wanted to go to P.J.’s. she came at five thirty, then we went to the restaurant. Alex was really good in the restaurant, I was really proud of him.

Afterwards we went to Woodward’s. We came home at nine thirty. Shirley left as soon as we got back.

Alex and I watched TV. We went to bed at eleven o’clock.

No tests

Medicine

Bactrim 10:00 a.m. ------ 7:00 p.m.
Mercaptopurine ----- ------ 7:00 p.m.

Temperature 36.88C 10:00 a.m. 36.06C 7:00 p.m.

Diagnosis: Leukemia; December 7, 1987

I woke up at nine o’clock. I got ready to go to Aerobics. I came home at 11:30 a.m. I had lunch, had a shower and got dressed. In the afternoon I made a fruit cake and cookie dough. The fruit cake I found in a brochure years ago. I like it because it isn’t so strong tasting and it’s pretty moist. I’m usually the only one who will eat it. Charlie and Alex don’t like it. I give away some to friends and they seem to appreciate it.

We had dinner after five o’clock. After dinner we went to McDonald’s. Alex had an ice cream cone. Then we went to the mall. I wanted to buy a pair of boots, but I couldn’t find anything in my size.

We came home before eight o’clock. Alex had a nap this afternoon. I wasn’t able to get him to bed until ten thirty when I went to bed.

No tests

Medicine

Bactrim ------ 11:45 p.m. 10:15 p.m.
Mercaptopurine ----- ----- 10:15 p.m.
Methotrexiate ------ 5:00 p.m. ------

Diagnosis: Leukemia; December 6, 1987

I woke up at eight thirty. Alex came into bed at one o’clock this morning. I made waffles for breakfast.

Charlie went grocery shopping. After he came back I had a shower, got dressed and put the groceries away.

We had lunch and played video games. We left at 2:30 p.m. for Oakridge mall. The mall is sure busy. Afterwards we went out for dinner and to the Chew’s. Alex played with Carrie and Robert.

We came home after eight o’clock. We all watched TV. I have to get Alex ready for bed then I’ll go to bed.

No tests

Medicine

Bactrim 9:30 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.

Temperature 36.00c 9:30 a.m. 35.69C 2:00 p.m. 36.69C 7:00 p.m.

Diagnosis: Leukemia; December 5, 1987

I woke up at 5:30 a.m., we’re going to have breakfast with Santa.

I had a shower, got dressed, had some tea then I woke Alex up. I got Alex dressed and we left at seven o’clock. We followed Shirley and her family to Eaton’s.

We were four tables from the stage which was good. Otherwise you get picked on to go on stage. They had a lot of characters. Santa came around from table to table and we were able to get a picture of Alex with Santa. We sang songs and did the hokey pokey. It was over by ten o’clock.

We went down to Woodward’s to look at the window display.

Then we went for Dim Sum. Alex, Charlie and I went to the mall afterwards. Shirley, Aaron, Brent and Monique went home, they said they would come over at four o’clock.

We got home before three o’clock. Charlie and I were really tired from today. I’m not use to getting up that early.

Shirley phoned and said Aaron and the kids should be over shortly. She was working at the telethon.

They got here at four thirty and left after six o’clock.

After they left we had dinner. I watched TV until eight thirty then I went to bed.

Charlie put Alex to bed sometime around ten o’clock.

No tests

Medicine

Bactrim ------ 3:15 p.m. 8:15 p.m.
Mercaptopurine ------ ------ 8:15 p.m.

Temperature 34.80C 3:15 p.m. 35.98C 8:15 p.m.

Diagnosis: Leukemia; December 4, 1987

I woke up at ten o’clock. Alex woke up at 11:30 last night. He said he heard the dishwasher. Alex seems to hear every little noise.

I went to Aerobics this morning and went shopping afterwards. I got home at 12:30 p.m. I had lunch then I washed my car. I had a shower and got dressed.

Alex and I played games then around four thirty we went to Wendy’s for dinner. After dinner we went to the mall.

We came home before eight o’clock. We watched a Christmas show on TV. I got Alex ready for bed at nine o’clock.

I watched TV, tided up the house, did the dishes and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------ 8:25 p.m.
Mercaptopurine ------ ------ 8:25 p.m.

Temperature 35.79 4:00 p.m. 36.21C 8:25 p.m.

Diagnosis: Leukemia; December 3, 1987

I woke up at ten o’clock, I felt like I had hardly slept at all. Charlie didn’t believe I had gotten to sleep until three a.m.!

I got dressed and had an early lunch. I also made Alex lunch.

I polished all the furniture in the house, cleaned the window sills and the banister. I had a shower and got dressed.

We left at 2:50 p.m. to go see Dr. W. I had a really good talk with him. Dr. W said Alex’s sleeping habits are related to everything that’s happened to Alex in the last year or so. He said basically we would have to work through it. He also explained about Alex’s blood count. It was really nice to talk to the doctor and have him talk to me as a person. Not like at the hospital I feel like I am wasting their time.

We went to Toy City afterwards then we came home.

We had dinner at five thirty. After dinner we went downstairs to exercise.


We watched TV and I wrote in the journal. Alex fell asleep and I had to wake him up for his medicine. This made him cranky but he went back to sleep shortly afterwards.

I wrote in the journal until 11:20 p.m. I’m going to tidy up the house, do the dishes then go to bed.

No tests

Medicine

Bactrim 11:00 a.m. ----- 8:45 p.m.
Mercaptopurine ------ ------ 8:45 p.m.

Diagnosis: Leukemia; December 2, 1987

I woke up at nine thirty. I got ready for the exercise class and came home at eleven thirty.

Charlie said Marla phoned, she invited Alex and I to a Christmas party. I had lunch, had a shower and got dressed.

Alex and I went to his class but the teacher didn’t show up. They gave us a refund for the two remaining classes.

We came home, I did some work around the house. Alex asked if we could go to the mall. We came home at four thirty and I started to cook dinner.

We watched TV after dinner. I caught up in the writing of the journal.

I got Alex ready for bed at eight o’clock. He actually wanted to go to bed.

I watched TV and wrote some more in the journal.

Marla phone and we talked for over an hour. It felt really good to talk to her.

Alex woke up at ten o’clock. He was wide awake. Alex went to bed with me at eleven o’clock.

When Charlie came to bed he told me to put Alex into his own bed. Ten minutes after I did that Alex was awake, he wanted to play in the spare room.

I was up until three o’clock with Alex. I went back to bed.

No tests

Medicine

Bactrim 9:30 a.m. ----- 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.

Temperature ------- 36.30 5:00 p.m. 35.79C 7:00 p.m.

Diagnosis: Leukemia; December 1, 1987

I woke up around ten o’clock. Alex kept me up quite late last night. I guess he wasn’t very tired since he had a nap.

I got dressed then I vacuumed the house. I made lunch for Alex and myself. I cleaned the bathrooms and washed the floors.

Charlie came back from K-Mart he bought my Christmas present. He gave it to me since I already knew what it is. I wanted an Atari, so I could play games with Alex. I’m hoping to get some games that teach Alex something.

Alex went to sleep around two o’clock. I had a shower and got dressed. I started cooking dinner at four o’clock. I woke Alex up and we at five thirty.

After dinner we went downstairs to exercise.

I got Alex ready for bed at eight o’clock.

I phoned Marla to see how they’re doing. I hadn’t heard from her since they moved. The babysitter answered, she said that Marla was working. That sure was a shock.

I watched TV and went to bed at eleven. Alex didn’t go to sleep at eight he wasn’t tired. He went to bed with me.

No tests

Medicine

Bactrim 10:30 a.m. ------ 8:15 p.m.

Temperature 36.18 10:30 a.m.