Alex woke me up just after eight o’clock. He was calling Pa, oh Papa, but Charlie was still asleep. He wanted help in the bathroom.
I got our breakfast and I made Charlie his coffee.
I had a shower and got dressed while Alex and Charlie watched TV. Then I gave Alex a bath and got him dressed.
I did the dishes, the laundry and tided up the house.
We went to Marla’s for lunch. Alex and Lanie argued quite a bit. Whatever one of them wanted to do the other one wanted to do something else. Then they decided they would tie me up.
We left after four o’clock. Charlie didn’t work again today so we had to get back early for dinner. I started to cook dinner when we got home. We ate dinner at five thirty.
After dinner I had a bath, I’m not feeling myself. Too many things seem to be coming at once. Alex being sick will never leave my mind. It’s something I think about every day. Then Charlie isn’t working that much. The company is holding work back because their contract hasn’t been settle yet. Today it just seemed to be too much to handle. It makes me wonder where we’re heading.
Charlie and Alex went for a walk. I got Alex ready for bed at eight o’clock.
I wrote in the journal and watched TV. I’ll be going to bed soon it’s after eleven o’clock now.
No tests
Medicine
Bactrim 8:30 a.m. ------- 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.23C 8:30 a.m.
Monday, April 30, 2012
Sunday, April 29, 2012
Diagnosis: Leukemia; April 28, 1988
Alex woke me up at eight thirty. He wanted to have breakfast and get dressed. I did both then I had my breakfast. I tided up the house, Marla dropped Lanie off at ten o’clock. I tided up the house while they played.
Alex asked if they could have Alligator soup at 10:45 a.m. I couldn’t believe that he would wanted it so early. I told him it was too early. They both had a bun and cheese around eleven o’clock.
Marla came before noon, Alex was annoyed that Marla and Lanie left. I didn’t tell him that they left because we had to go to a class or he would be really mad.
We had lunch then we left for Dinosaur delight. I couldn’t believe it on the way there we got stuck at the train tracks by a very slow cargo train. I had to go back to Lougheed. We were late again, I apologized to the teach for being late.
I went to the mall while the class was on. I went and picked Alex up then we went to Lougheed mall. Shirley had given Alex $20 for his birthday. Alex bought two more Ghostbuster guys with the money. We got home at three thirty.
I phoned Allison, she lost her voice. I told her I needed the mother care book. She said Davis would bring it over, but I phoned her back and told he I would come and get it.
We had dinner at five o’clock. I did the dishes and while I was doing them Alex fell asleep on the sofa. I took him into his room and got him ready for bed.
I did some work at my desk. Then I watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 5:00 p.m.
Temperature 35.59C 8:45 a.m. 36.39C 5:00 p.m.
Alex asked if they could have Alligator soup at 10:45 a.m. I couldn’t believe that he would wanted it so early. I told him it was too early. They both had a bun and cheese around eleven o’clock.
Marla came before noon, Alex was annoyed that Marla and Lanie left. I didn’t tell him that they left because we had to go to a class or he would be really mad.
We had lunch then we left for Dinosaur delight. I couldn’t believe it on the way there we got stuck at the train tracks by a very slow cargo train. I had to go back to Lougheed. We were late again, I apologized to the teach for being late.
I went to the mall while the class was on. I went and picked Alex up then we went to Lougheed mall. Shirley had given Alex $20 for his birthday. Alex bought two more Ghostbuster guys with the money. We got home at three thirty.
I phoned Allison, she lost her voice. I told her I needed the mother care book. She said Davis would bring it over, but I phoned her back and told he I would come and get it.
We had dinner at five o’clock. I did the dishes and while I was doing them Alex fell asleep on the sofa. I took him into his room and got him ready for bed.
I did some work at my desk. Then I watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 5:00 p.m.
Temperature 35.59C 8:45 a.m. 36.39C 5:00 p.m.
Saturday, April 28, 2012
Diagnosis: Leukemia; April 27, 1988
I woke up before nine o’clock. I made breakfast and had a shower and got dressed.
I invited Allison and the kids over. They came just after ten o’clock. Alex and Kurt played pretty good. We had an early lunch then we had to go to Mini-Sport. It was too bad since Allison and I were having a really good conversation. She helps me out by asking about Alex and the beginning when he first got sick.
We were late for Mini-Sport. I went to K-mart to get something for Lanie and Paxton for their trip on the plane. Then I went and got Alex.
We came home and played some games.
I phoned Marla and asked if Lanie could come over. Alex said he wanted Lanie to come over before she went on her holiday.
Shirley and the kids came over for dinner. We ordered pizza in and it didn’t come until after seven o’clock.
The kids had a good time playing before dinner.
They left just after eight o’clock.
I got Alex ready for bed he said he wasn’t tired. I told him he had to get to sleep if Lanie was to come over. Alex finally fell asleep at ten o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 8:45 p.m.
Mercaptopurine ------ ------ 8:45 p.m.
Temperature 36.27C 9:00 a.m. 36.20C 8:45 p.m.
I invited Allison and the kids over. They came just after ten o’clock. Alex and Kurt played pretty good. We had an early lunch then we had to go to Mini-Sport. It was too bad since Allison and I were having a really good conversation. She helps me out by asking about Alex and the beginning when he first got sick.
We were late for Mini-Sport. I went to K-mart to get something for Lanie and Paxton for their trip on the plane. Then I went and got Alex.
We came home and played some games.
I phoned Marla and asked if Lanie could come over. Alex said he wanted Lanie to come over before she went on her holiday.
Shirley and the kids came over for dinner. We ordered pizza in and it didn’t come until after seven o’clock.
The kids had a good time playing before dinner.
They left just after eight o’clock.
I got Alex ready for bed he said he wasn’t tired. I told him he had to get to sleep if Lanie was to come over. Alex finally fell asleep at ten o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 8:45 p.m.
Mercaptopurine ------ ------ 8:45 p.m.
Temperature 36.27C 9:00 a.m. 36.20C 8:45 p.m.
Friday, April 27, 2012
Diagnosis: Leukemia; April 26, 1988
I woke up at nine o’clock. Alex was feeling pretty tired, he didn’t go to sleep right away. He had fallen asleep just before dinner. He finally fell asleep around ten or eleven.
I was planning on taking Alex to a make-up class this morning but Alex said he was too tired. Alex said he couldn’t go to two classes in one day.
I made breakfast then I gave Alex a bath and got him dressed.
After lunch we went to his gym class. After gym we came home. We did some puzzles. Alex played with his new Ghostbusters guy.
Charlie had left by the time we got home.
Alex got Dizzy Dizzy Dinosaur in the mail. We also played that for awhile.
We had dinner around six o’clock. We went outside, for awhile Alex rode his bike.
Alex went to bed at eight o’clock. I watched TV, I didn’t feel like doing much. Alex has started the “WHY”stage. I find it very exhausting answering questions for no reason.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 7:10 p.m.
Temperature 36.47C 9:00 a.m. 35.67C 7:10 p.m.
I was planning on taking Alex to a make-up class this morning but Alex said he was too tired. Alex said he couldn’t go to two classes in one day.
I made breakfast then I gave Alex a bath and got him dressed.
After lunch we went to his gym class. After gym we came home. We did some puzzles. Alex played with his new Ghostbusters guy.
Charlie had left by the time we got home.
Alex got Dizzy Dizzy Dinosaur in the mail. We also played that for awhile.
We had dinner around six o’clock. We went outside, for awhile Alex rode his bike.
Alex went to bed at eight o’clock. I watched TV, I didn’t feel like doing much. Alex has started the “WHY”stage. I find it very exhausting answering questions for no reason.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 7:10 p.m.
Temperature 36.47C 9:00 a.m. 35.67C 7:10 p.m.
Thursday, April 26, 2012
Diagnosis: Leukemia; April 25, 1988
Alex woke me up before eight o’clock.
Charlie is working day shift today.
I made Alex breakfast then I gave him a bath and got him dressed. Then I had a shower and got dressed. I tided up the house, I had invited Marla and kids over.
Marla phoned around eleven o’clock, she said she was too busy to come over today. She invited us over for lunch on Friday. I was disappointed, this was the second time she had cancelled.
Alex wasn’t feeling too good today, he has another cold. He’s quite congested and he’s been coughing quite a bit.
After lunch Alex and I played some games.
Charlie got home at four o’clock. We had dinner at six thirty. After dinner we watched TV. Alex went to bed at eight o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------- 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Methotrexiate -------- 6:30 p.m. -------
Temperature 36.44C 8:00 a.m. 36.38C 6:30 p.m.
Charlie is working day shift today.
I made Alex breakfast then I gave him a bath and got him dressed. Then I had a shower and got dressed. I tided up the house, I had invited Marla and kids over.
Marla phoned around eleven o’clock, she said she was too busy to come over today. She invited us over for lunch on Friday. I was disappointed, this was the second time she had cancelled.
Alex wasn’t feeling too good today, he has another cold. He’s quite congested and he’s been coughing quite a bit.
After lunch Alex and I played some games.
Charlie got home at four o’clock. We had dinner at six thirty. After dinner we watched TV. Alex went to bed at eight o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------- 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Methotrexiate -------- 6:30 p.m. -------
Temperature 36.44C 8:00 a.m. 36.38C 6:30 p.m.
Wednesday, April 25, 2012
Diagnosis: Leukemia; April 24, 1988
I woke up at nine o’clock. I made breakfast and got dressed. Charlie went to Save-On-Foods. I vacuumed the house and washed the floors while he went grocery shopping.
Mom phoned and invited us for dinner. We went there around two o’clock.
Alex and I did some exercises in his McDonald’s book.
After dinner Alex feel asleep on the sofa.
We left at nine o’clock. Alex woke up on the way home. I got him ready for bed when we got home.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 8:30 p.m.
Temperature 37.57 9:30 a.m. 37.72C 6:00 p.m. 36.29C 8:30 a.m.
Mom phoned and invited us for dinner. We went there around two o’clock.
Alex and I did some exercises in his McDonald’s book.
After dinner Alex feel asleep on the sofa.
We left at nine o’clock. Alex woke up on the way home. I got him ready for bed when we got home.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 8:30 p.m.
Temperature 37.57 9:30 a.m. 37.72C 6:00 p.m. 36.29C 8:30 a.m.
Monday, April 23, 2012
Diagnosis: Leukemia; April 23, 1988
I woke up at ten o’clock. I had breakfast, a shower and got dressed. I worked around the house to keep it tided. I invited Marla and the kids over on Monday.
In the late afternoon we went for a drive. Then we went to Shanghai for dinner. We went to the Chew’s afterwards.
Laura said he due date is September 21st, she says she feels a lot better. Jolene was at a wedding so we didn’t see her.
We got home around nine o’clock. Alex went to bed around ten o’clock. I went to bed not long afterwards.
No tests
Medicine
Mercaptopurine ----- ------ 7:00 p.m.
Temperature 36.29C 10:35 a.m. 36.56C 7:00 p.m.
In the late afternoon we went for a drive. Then we went to Shanghai for dinner. We went to the Chew’s afterwards.
Laura said he due date is September 21st, she says she feels a lot better. Jolene was at a wedding so we didn’t see her.
We got home around nine o’clock. Alex went to bed around ten o’clock. I went to bed not long afterwards.
No tests
Medicine
Mercaptopurine ----- ------ 7:00 p.m.
Temperature 36.29C 10:35 a.m. 36.56C 7:00 p.m.
Sunday, April 22, 2012
Diagnosis: Leukemia; April 22, 1988
I woke up at nine o’clock. I made breakfast, had a shower and got dressed.
Marla and the kids were suppose to come over but she said she had too many things to do. That really bothered me, since I asked them over last week.
We didn’t do much today Alex was not feeling very good. He has another cold.
We went to McDonald’s for dinner then we went to the mall. We got home around eight.
Alex bought himself a Ghostbusters guy, Egon. He really likes Ghostbusters, he even took him to bed. He went to bed at nine o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:20 a.m. ----- 8:30 p.m.
Mercaptopurine ------ ------ 8:30 p.m.
Temperature 36.43C 10:20 a.m. 36.89C 8:30 p.m.
Marla and the kids were suppose to come over but she said she had too many things to do. That really bothered me, since I asked them over last week.
We didn’t do much today Alex was not feeling very good. He has another cold.
We went to McDonald’s for dinner then we went to the mall. We got home around eight.
Alex bought himself a Ghostbusters guy, Egon. He really likes Ghostbusters, he even took him to bed. He went to bed at nine o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:20 a.m. ----- 8:30 p.m.
Mercaptopurine ------ ------ 8:30 p.m.
Temperature 36.43C 10:20 a.m. 36.89C 8:30 p.m.
Saturday, April 21, 2012
Diagnosis: Leukemia; April 21, 1988
Alex woke me up at eight o’clock. I made breakfast, gave him a bath and got him dressed.
I got dressed and dusted all the furniture.
After lunch we took Alex to Dinosaur Delight. Charlie and I went to the mall while the class was on.
After the class we went to Lions Park then we came home.
We ate dinner around six o’clock. After dinner, we all went for a walk.
Alex went to bed at eight o’clock.
I couldn’t believe it this morning. Alex said why did you put me into so many classes. I can only go to one class at a time not three! I told him fine I won’t put you into anything next time. Alex didn’t like that very much.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 8:00 p.m.
Temperature 36.28C 8:30 a.m.
I got dressed and dusted all the furniture.
After lunch we took Alex to Dinosaur Delight. Charlie and I went to the mall while the class was on.
After the class we went to Lions Park then we came home.
We ate dinner around six o’clock. After dinner, we all went for a walk.
Alex went to bed at eight o’clock.
I couldn’t believe it this morning. Alex said why did you put me into so many classes. I can only go to one class at a time not three! I told him fine I won’t put you into anything next time. Alex didn’t like that very much.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 8:00 p.m.
Temperature 36.28C 8:30 a.m.
Diagnosis: Leukemia; April 20, 1988
I woke up at nine thirty. We were suppose to be at Allison’s at ten o’clock. I sure had to rush around to get there nearly on time.
We got there just after ten o’clock. We ended up going outside it was such a nice morning. They did a really good job on their backyard. They have a cedar and a brick deck which looks really nice.
We had an early lunch there then we came home to go to Mini-sport.
Charlie didn’t have to work today again, so he went with us.
We went to Save-On-Foods while Alex was in his class. After the class we came home.
We sat outside while Alex rode his bike.
We ate dinner around six o’clock. Alex and I played a game after dinner. Alex went to bed at eight o’clock.
No tests
Medicine
Bactrim ------ 3:15 p.m. 8:00 p.m.
Mercaptopurine ------ ---- 8:00 p.m.
Temperature 36.60C 3:15 p.m. 36.77C 8:00 p.m.
We got there just after ten o’clock. We ended up going outside it was such a nice morning. They did a really good job on their backyard. They have a cedar and a brick deck which looks really nice.
We had an early lunch there then we came home to go to Mini-sport.
Charlie didn’t have to work today again, so he went with us.
We went to Save-On-Foods while Alex was in his class. After the class we came home.
We sat outside while Alex rode his bike.
We ate dinner around six o’clock. Alex and I played a game after dinner. Alex went to bed at eight o’clock.
No tests
Medicine
Bactrim ------ 3:15 p.m. 8:00 p.m.
Mercaptopurine ------ ---- 8:00 p.m.
Temperature 36.60C 3:15 p.m. 36.77C 8:00 p.m.
Friday, April 20, 2012
Diagnosis: Leukemia; April 19, 1988
I woke up at nine o’clock. I made breakfast then I got dressed.
I cleaned both bathrooms then I had a shower and got dressed.
After lunch I took Alex to gym. After the class we came home.
Alex watched TV for awhile then we played some games.
We ate dinner at five o’clock. After dinner we went outside, I swept the driveway and the sidewalk. Kurt came over, Alex and Kurt played for awhile.
We came in around seven o’clock. Alex went to bed at eight o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 6:50 p.m.
Temperature 36.76C 4:15 p.m. 36.46C 6:50 p.m.
I cleaned both bathrooms then I had a shower and got dressed.
After lunch I took Alex to gym. After the class we came home.
Alex watched TV for awhile then we played some games.
We ate dinner at five o’clock. After dinner we went outside, I swept the driveway and the sidewalk. Kurt came over, Alex and Kurt played for awhile.
We came in around seven o’clock. Alex went to bed at eight o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 6:50 p.m.
Temperature 36.76C 4:15 p.m. 36.46C 6:50 p.m.
Thursday, April 19, 2012
Diagnosis: Leukemia; April 18, 1988
I woke up at nine o’clock. I made breakfast then had a shower and got dressed.
Charlie didn’t have to go to work today.
In the afternoon we went out to the mall. We got home around four o’clock. I started to cook dinner, we ate around six o’clock.
After dinner Alex and I did some puzzles. Alex went to bed around eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------ 6:00 p.m.
Mercaptopurine ----- ------ 6:00 p.m.
Methotrexiate ------ 6:00 p.m. -------
Temperature 36.29C 10:00 a.m. 36.99C 6:00 p.m.
Charlie didn’t have to go to work today.
In the afternoon we went out to the mall. We got home around four o’clock. I started to cook dinner, we ate around six o’clock.
After dinner Alex and I did some puzzles. Alex went to bed around eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------ 6:00 p.m.
Mercaptopurine ----- ------ 6:00 p.m.
Methotrexiate ------ 6:00 p.m. -------
Temperature 36.29C 10:00 a.m. 36.99C 6:00 p.m.
Tuesday, April 17, 2012
Diagnosis: Leukemia; April 17, 1988
I woke up at nine o’clock. I made breakfast, had a shower and got dressed.
I tided up the house which took a couple of hours.
We went out in the afternoon. We went to Earls on Kingsway for dinner. It’s not a place to bring kids to. They don’t have a children’s menu. I found the atmosphere a bit uncomfortable.
Then we dropped in at Mom and Dad’s we didn’t stay long as Alex wanted to go home.
Alex was still awake when we got home. I gave him his medicine and got him ready for bed.
I watched TV then I went to bed.
No tests
Medicine
Mercaptopurine ------ ------ 10:00 p.m.
Temperature 36.16C 10:00 p.m.
I tided up the house which took a couple of hours.
We went out in the afternoon. We went to Earls on Kingsway for dinner. It’s not a place to bring kids to. They don’t have a children’s menu. I found the atmosphere a bit uncomfortable.
Then we dropped in at Mom and Dad’s we didn’t stay long as Alex wanted to go home.
Alex was still awake when we got home. I gave him his medicine and got him ready for bed.
I watched TV then I went to bed.
No tests
Medicine
Mercaptopurine ------ ------ 10:00 p.m.
Temperature 36.16C 10:00 p.m.
Diagnosis: Leukemia; April 16, 1988
I woke up at nine o’clock. I made breakfast for Alex and myself. Then I had a shower and got dressed.
After lunch we went to the market in New Westminster. We went to a won Ton house for dinner. We were going to go to the Chew’s but Alex didn’t want to go, he wanted to go home.
After we got home Alex and I did some puzzles and played some games.
Alex went to bed at nine o’clock. I watched TV and wrote in the journal. I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------- ------ 7:15 p.m.
Temperature -------- ------- 36.28C 7:15 p.m.
After lunch we went to the market in New Westminster. We went to a won Ton house for dinner. We were going to go to the Chew’s but Alex didn’t want to go, he wanted to go home.
After we got home Alex and I did some puzzles and played some games.
Alex went to bed at nine o’clock. I watched TV and wrote in the journal. I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------- ------ 7:15 p.m.
Temperature -------- ------- 36.28C 7:15 p.m.
Monday, April 16, 2012
Diagnosis: Leukemia; April 15, 1988
I woke up before nine o’clock. I made breakfast, had a shower and got dressed.
We went to Marla’s for lunch, she seems quite worried about flying to England. She had a bad flight from Toronto and is scared to fly ever since. She’s also going by herself with the kids, Adrian is going four weeks later.
We left before five o’clock. Lanie wanted Alex to stay longer.
Charlie was a bit annoyed we had stayed so long, but Alex doesn’t like to come home too early.
We went to the mall and had dinner there. We came home around seven o’clock. Alex went to bed around eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:45 p.m.
Mercaptopurine ------ ------ 7:45 p.m.
Temperature 36.28 C 7:45 p.m.
We went to Marla’s for lunch, she seems quite worried about flying to England. She had a bad flight from Toronto and is scared to fly ever since. She’s also going by herself with the kids, Adrian is going four weeks later.
We left before five o’clock. Lanie wanted Alex to stay longer.
Charlie was a bit annoyed we had stayed so long, but Alex doesn’t like to come home too early.
We went to the mall and had dinner there. We came home around seven o’clock. Alex went to bed around eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:45 p.m.
Mercaptopurine ------ ------ 7:45 p.m.
Temperature 36.28 C 7:45 p.m.
Sunday, April 15, 2012
Diagnosis: Leukemia; April 14, 1988
I woke up at nine o’clock. I made breakfast for Alex and myself. Then I gave him a bath and got him dressed. I got dressed and then I cleaned the bathrooms.
After lunch Alex and I played some games and did some puzzles.
We ate dinner around five o’clock. After dinner Alex wanted to do some more puzzles.
Alex went to bed at eight o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 7:00 p.m.
Temperature 35.85C 9:30 a.m. ------- 36.46C 7:00 p.m.
After lunch Alex and I played some games and did some puzzles.
We ate dinner around five o’clock. After dinner Alex wanted to do some more puzzles.
Alex went to bed at eight o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 7:00 p.m.
Temperature 35.85C 9:30 a.m. ------- 36.46C 7:00 p.m.
Saturday, April 14, 2012
Diagnosis; Leukemia; April 13, 1988
I woke up at nine o’clock. I got Alex his breakfast and got him dressed. Then I had a shower, got dressed and started to tidy up the house.
Allison, Kurt and Pearl came over for lunch. Kurt and Alex played really well. Alex is like a little mother to Kurt.
We had a good time together, it’s a bit hard to hold a conversation with all the kids.
They left around three o’clock. Pearl needed to go for a nap.
I started to cook dinner at four o’clock. We ate dinner at five o’clock.
After dinner we watched TV. Alex went to bed at eight o’clock.
I watched tv and wrote in the journal.
No tests
Medicine
Bactrim 9:45 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone 9:45 a.m. ------- 8:00 p.m.
Temperature 36.09C 9:45 a.m. 36.50 3:30 p.m.
Allison, Kurt and Pearl came over for lunch. Kurt and Alex played really well. Alex is like a little mother to Kurt.
We had a good time together, it’s a bit hard to hold a conversation with all the kids.
They left around three o’clock. Pearl needed to go for a nap.
I started to cook dinner at four o’clock. We ate dinner at five o’clock.
After dinner we watched TV. Alex went to bed at eight o’clock.
I watched tv and wrote in the journal.
No tests
Medicine
Bactrim 9:45 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone 9:45 a.m. ------- 8:00 p.m.
Temperature 36.09C 9:45 a.m. 36.50 3:30 p.m.
Friday, April 13, 2012
Diagnosis: Leukemia; April 12, 1988
I woke up before eight o’clock. Alex wanted me to make him breakfast. Then I got dressed and vacuumed the house.
We didn’t go to gym class today, we went to Alain’s birthday party. It was at Chuck E. Cheese. Alex was really excited to go there.
Alex went on some of the rides before the party started. Most of the kids had pizza and the mother’s had the salad bar.
Marla and I went to the salad bar and we had to pay for our meal. I don’t think it was planned very well, we shouldn’t had to pay for our meal I don’t think.
Alex wanted to go back to Alain’s house but Coral wasn’t having people back to the house. Marla said she had to study, so I asked if Lanie could come over.
I took Lanie and Alex home. Marla said she would pick Lanie up at four thirty.
I told Alex tonight I was going to register him in some classes. I asked him what classes he wanted to go into. I told him all the classes so he could decide which ones he wanted to go into.
Alex finally decided on Mini-Sport and Dinosaur Delight.
Charlie go home around four o’clock.
I left not long after Marla took Lanie home.
When I got to the registration there wasn’t very many people there. I was the twelfth person there and Allison was number 1. I had phoned Allison in the afternoon but she had already left. She had told me she had phoned the rec centre and they said to come at three o’clock. I told her that was probably too early and that she should go at five o’clock. I guess she decided to go at three o’clock.
I talked to Allison for awhile while we waited for the registration to start.
I was able to get Alex into both classes. By the time I left Dinosaur Delight was full.
I got home after seven thirty, I had dinner that Charlie had made.
I got Alex ready for bed at eight o’clock.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 8:00 p.m.
Prednisone 8:00 a.m. 2:00 p.m. 8:00 p.m.
Temperature 35.79C 8:00 a.m. 36.17C 8:00 p.m.
We didn’t go to gym class today, we went to Alain’s birthday party. It was at Chuck E. Cheese. Alex was really excited to go there.
Alex went on some of the rides before the party started. Most of the kids had pizza and the mother’s had the salad bar.
Marla and I went to the salad bar and we had to pay for our meal. I don’t think it was planned very well, we shouldn’t had to pay for our meal I don’t think.
Alex wanted to go back to Alain’s house but Coral wasn’t having people back to the house. Marla said she had to study, so I asked if Lanie could come over.
I took Lanie and Alex home. Marla said she would pick Lanie up at four thirty.
I told Alex tonight I was going to register him in some classes. I asked him what classes he wanted to go into. I told him all the classes so he could decide which ones he wanted to go into.
Alex finally decided on Mini-Sport and Dinosaur Delight.
Charlie go home around four o’clock.
I left not long after Marla took Lanie home.
When I got to the registration there wasn’t very many people there. I was the twelfth person there and Allison was number 1. I had phoned Allison in the afternoon but she had already left. She had told me she had phoned the rec centre and they said to come at three o’clock. I told her that was probably too early and that she should go at five o’clock. I guess she decided to go at three o’clock.
I talked to Allison for awhile while we waited for the registration to start.
I was able to get Alex into both classes. By the time I left Dinosaur Delight was full.
I got home after seven thirty, I had dinner that Charlie had made.
I got Alex ready for bed at eight o’clock.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 8:00 p.m.
Prednisone 8:00 a.m. 2:00 p.m. 8:00 p.m.
Temperature 35.79C 8:00 a.m. 36.17C 8:00 p.m.
Thursday, April 12, 2012
Diagnosis: Leukemia; April 11, 1988
I woke up at nine o’clock. I made breakfast for myself and Alex. Then I had a shower and got dressed.
After lunch I went out canvassing for the Cancer Society. I did the houses on Goldstream, but first I stopped at Tanya’s on Lostlake. She works afternoon shift a couple days a week so I thought I had better catch her before she went out.
Tanya invited me in for tea, I stayed there for about forty five minutes then I went to Goldstream. About half the people were in. I got home before three o’clock.
I started to make dinner around four o’clock. We had dinner around five o’clock.
I went back out canvassing at seven o’clock. I finished doing Lostlake and Goldstream then I came home.
There sure are a lot of dogs on gold stream and all really big dogs. One came after me and scared me.
I got home around eight thirty. I was glad to get it over with, I’m really not the right sort of person to do canvassing. I’m just not the outgoing type of person for it.
I got Alex ready for bed at nine o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:45 a.m. ------ 9:20 p.m.
Mercaptopurine ------ ------ 9:20 p.m.
Prednisone 9:45 a.m. 3:53 p.m. 9:20 p.m.
Temperature 36.73C 3:53 p.m. 36.09C 9:20 p.m.
After lunch I went out canvassing for the Cancer Society. I did the houses on Goldstream, but first I stopped at Tanya’s on Lostlake. She works afternoon shift a couple days a week so I thought I had better catch her before she went out.
Tanya invited me in for tea, I stayed there for about forty five minutes then I went to Goldstream. About half the people were in. I got home before three o’clock.
I started to make dinner around four o’clock. We had dinner around five o’clock.
I went back out canvassing at seven o’clock. I finished doing Lostlake and Goldstream then I came home.
There sure are a lot of dogs on gold stream and all really big dogs. One came after me and scared me.
I got home around eight thirty. I was glad to get it over with, I’m really not the right sort of person to do canvassing. I’m just not the outgoing type of person for it.
I got Alex ready for bed at nine o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:45 a.m. ------ 9:20 p.m.
Mercaptopurine ------ ------ 9:20 p.m.
Prednisone 9:45 a.m. 3:53 p.m. 9:20 p.m.
Temperature 36.73C 3:53 p.m. 36.09C 9:20 p.m.
Wednesday, April 11, 2012
Diagnosis: Leukemia; April 10, 1988
Alex woke me up at eight o’clock. He said he wanted his breakfast. I made our breakfast then I gave Alex a bath and got him dressed. I had my shower and got dressed as well.
We went to Mom and Dad’s in the afternoon. Mom invited Joan, Paul, the kids, Jeff, Martina and us for dinner. She had wanted to have it yesterday but Shirley and I had already made plans. Paul had gone back last night and Joan and the kids stayed overnight.
Mom and Dad gave me microwave cooking containers and a sweatshirt.
Mom made me a clown cake, Alex thought it was really nice.
Paige sure had changed quite a bit she’s not a baby anymore. Paige walks around really well, she’s not a year old yet.
Joan seemed pretty down, she hardly talked at all. Joan and the kids left around six o’clock.
We left around eight o’clock. Alex went to bed around nine o’clock. I watched TV, wrote in the journal. I went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 8:15 a.m. 1:30 p.m. 6:00 p.m.
Temperature 35.66C 8:15a.m.
We went to Mom and Dad’s in the afternoon. Mom invited Joan, Paul, the kids, Jeff, Martina and us for dinner. She had wanted to have it yesterday but Shirley and I had already made plans. Paul had gone back last night and Joan and the kids stayed overnight.
Mom and Dad gave me microwave cooking containers and a sweatshirt.
Mom made me a clown cake, Alex thought it was really nice.
Paige sure had changed quite a bit she’s not a baby anymore. Paige walks around really well, she’s not a year old yet.
Joan seemed pretty down, she hardly talked at all. Joan and the kids left around six o’clock.
We left around eight o’clock. Alex went to bed around nine o’clock. I watched TV, wrote in the journal. I went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 8:15 a.m. 1:30 p.m. 6:00 p.m.
Temperature 35.66C 8:15a.m.
Tuesday, April 10, 2012
Diagnosis: Leukemia; April 9, 1988
The phone woke me up at ten o’clock. Before I could answer the phone, it had gone to the answering machine. They didn’t leave a message though.
Charlie was outside washing his car. He wanted me to phone Shirley and tell her he would pick Alex up at noon. Shirley had said she was going to bring Alex back around six o’clock but Charlie didn’t like that idea.
Shirley said she would bring Alex back after lunch since Brent wanted to play some more with Alex.
I had breakfast, had a shower and got dressed. Then I tided up the house.
It did us all good being apart for almost a day, especially Alex and myself.
When Alex came home he gave me a hug and told me he had a really good time. Then after awhile his mood changed and he started to argue with me.
Alex told Charlie that he had a cut inside his mouth. He said he got it from the pencil he had been drawing with. The pencil had slipped and gone into his mouth. Shirley said she wasn’t in the room at the time so she doesn’t know what happened.
It worried me since he said the lead of the pencil had made the cut.
Brent, Monique and Shirley left around four o’clock.
Shirley came back around six o’clock to take me out for dinner.
We went to Ming Court for dinner then we sat in the lounge for awhile and had a few drinks.
We got home around eleven thirty.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 9:00 a.m. 1:00 p.m. 6:00 p.m.
Temperature 35.98C 9:00 p.m. 35.55C 1:00 p.m.
Charlie was outside washing his car. He wanted me to phone Shirley and tell her he would pick Alex up at noon. Shirley had said she was going to bring Alex back around six o’clock but Charlie didn’t like that idea.
Shirley said she would bring Alex back after lunch since Brent wanted to play some more with Alex.
I had breakfast, had a shower and got dressed. Then I tided up the house.
It did us all good being apart for almost a day, especially Alex and myself.
When Alex came home he gave me a hug and told me he had a really good time. Then after awhile his mood changed and he started to argue with me.
Alex told Charlie that he had a cut inside his mouth. He said he got it from the pencil he had been drawing with. The pencil had slipped and gone into his mouth. Shirley said she wasn’t in the room at the time so she doesn’t know what happened.
It worried me since he said the lead of the pencil had made the cut.
Brent, Monique and Shirley left around four o’clock.
Shirley came back around six o’clock to take me out for dinner.
We went to Ming Court for dinner then we sat in the lounge for awhile and had a few drinks.
We got home around eleven thirty.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 9:00 a.m. 1:00 p.m. 6:00 p.m.
Temperature 35.98C 9:00 p.m. 35.55C 1:00 p.m.
Monday, April 9, 2012
Diagnosis: Leukemia; April 8, 1988
I woke up at six o’clock. I knew I had to wake up early to go to the hospital. I was planning on getting up at eight but I couldn’t sleep.
I had a shower, got dressed and had my breakfast. I woke Alex up at eight o’clock. I made Alex his breakfast then I gave him a bath and got him ready to go to the hospital.
We left after nine o’clock. When we got to the hospital we had to wait awhile for Alex’s blood test.
Dr. S said Alex’s blood count was up so they would go ahead with Chemo and the LP about fifteen minutes later. They started Alex’s Lp, Dr. S asked if Alex was going to lie down or sit up. I told her we had never tried it sitting up. The doctor said we might as well try.
It was a lot easier, Alex sat down with his back to the doctor then he put his arms around my neck. It was over a lot faster. Dr. S told Alex he was really brave but Alex said he wasn’t. The Doctor kept on telling Alex he was brave but he wouldn’t believe it.
I took Alex out to the waiting area and put him in one of the beds. I told him he had to lie down for awhile which he didn’t like at all.
While he was lying down I went to the Pharmacy. They told me to come back in an hour and an half. They were going for lunch in a half hour and they couldn’t fill it before they left. I said we were almost finished and wanted to go. She said go to the cafeteria for lunch.
I bought Alex a couple of treats then I came back to the clinic.
I had a bit of a hard time getting Alex to lie down.
At one o’clock the Vincristine hadn’t come up yet. Martina phoned and they said they never got Alex’s prescription. So she sent another one down.
Sheila came into the clinic, at first Alex wouldn’t talk to her. Then he told her about Ghostbusters and Sheila said why don’t you go and slim the nurses Alex. Alex thought this was a wonderful idea. At first he wouldn’t go by himself, he wanted me to go. Sheila said she would go with him. For the rest of the time we were there Alex slimmed the nurses.
Heather couldn’t figure out what they were doing. She said what is the slimming business. One of the other kids said it’s Ghosbusters.
Alex’s medicine came up and he had his I.V. push. Martina gave it to him so it was okay.
We left around two thirty and picked up the medication at the Pharmacy. We got home after three o’clock. I phoned Marla to let her know we were back. We were suppose to go over but it was too late. I didn’t think it would take that long. I apologized for not phoning earlier but I didn’t have their phone number with me.
Mom had left a Happy Birthday message on the answering machine. She actually sang Happy birthday on the tape. I phoned her and thanked her.
Shirley came around five o’clock to take Alex for the night. Alex had complained since we got home that he couldn’t go. He said he would miss me too much and that they didn’t have a bed for him to sleep on. I told Alex he could bring our sleeping bag.
Alex was fine once he got in the car with Shirley.
We got ready to go our for dinner, we went to the Keg in Coquitlam. Then we went to see a movie which was a real treat.
Dinner was really enjoyable we took our time to eat and just enjoyed the time together. It was great to go to a movie since we hadn’t gone for a very long time.
We got home at eleven thirty. I went to bed not long after we got home.
Tests
WBC 4.3
HGB 13.6
Platelets 380
ANC 3397
Medicine
Bactrim 8:20 a.m. ------- 7:10 p.m.
Mercaptopurine ------- ------- 7:10 p.m.
Prednisone ------- ------ 7:10 p.m.
I had a shower, got dressed and had my breakfast. I woke Alex up at eight o’clock. I made Alex his breakfast then I gave him a bath and got him ready to go to the hospital.
We left after nine o’clock. When we got to the hospital we had to wait awhile for Alex’s blood test.
Dr. S said Alex’s blood count was up so they would go ahead with Chemo and the LP about fifteen minutes later. They started Alex’s Lp, Dr. S asked if Alex was going to lie down or sit up. I told her we had never tried it sitting up. The doctor said we might as well try.
It was a lot easier, Alex sat down with his back to the doctor then he put his arms around my neck. It was over a lot faster. Dr. S told Alex he was really brave but Alex said he wasn’t. The Doctor kept on telling Alex he was brave but he wouldn’t believe it.
I took Alex out to the waiting area and put him in one of the beds. I told him he had to lie down for awhile which he didn’t like at all.
While he was lying down I went to the Pharmacy. They told me to come back in an hour and an half. They were going for lunch in a half hour and they couldn’t fill it before they left. I said we were almost finished and wanted to go. She said go to the cafeteria for lunch.
I bought Alex a couple of treats then I came back to the clinic.
I had a bit of a hard time getting Alex to lie down.
At one o’clock the Vincristine hadn’t come up yet. Martina phoned and they said they never got Alex’s prescription. So she sent another one down.
Sheila came into the clinic, at first Alex wouldn’t talk to her. Then he told her about Ghostbusters and Sheila said why don’t you go and slim the nurses Alex. Alex thought this was a wonderful idea. At first he wouldn’t go by himself, he wanted me to go. Sheila said she would go with him. For the rest of the time we were there Alex slimmed the nurses.
Heather couldn’t figure out what they were doing. She said what is the slimming business. One of the other kids said it’s Ghosbusters.
Alex’s medicine came up and he had his I.V. push. Martina gave it to him so it was okay.
We left around two thirty and picked up the medication at the Pharmacy. We got home after three o’clock. I phoned Marla to let her know we were back. We were suppose to go over but it was too late. I didn’t think it would take that long. I apologized for not phoning earlier but I didn’t have their phone number with me.
Mom had left a Happy Birthday message on the answering machine. She actually sang Happy birthday on the tape. I phoned her and thanked her.
Shirley came around five o’clock to take Alex for the night. Alex had complained since we got home that he couldn’t go. He said he would miss me too much and that they didn’t have a bed for him to sleep on. I told Alex he could bring our sleeping bag.
Alex was fine once he got in the car with Shirley.
We got ready to go our for dinner, we went to the Keg in Coquitlam. Then we went to see a movie which was a real treat.
Dinner was really enjoyable we took our time to eat and just enjoyed the time together. It was great to go to a movie since we hadn’t gone for a very long time.
We got home at eleven thirty. I went to bed not long after we got home.
Tests
WBC 4.3
HGB 13.6
Platelets 380
ANC 3397
Medicine
Bactrim 8:20 a.m. ------- 7:10 p.m.
Mercaptopurine ------- ------- 7:10 p.m.
Prednisone ------- ------ 7:10 p.m.
Sunday, April 8, 2012
Diagnosis: Leukemia; April 7, 1988
I woke up at nine o’clock. I made breakfast and got dressed. I did some housework in the morning. In the afternoon we played some games and took Kelly for a walk.
We ate dinner around six o’clock. After dinner we watched TV.
I got Alex ready for bed at eight o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ -------- 5:30 p.m.
Temperature 36.41C 11:00 a.m. 36.78C 4:00 p.m. 37.07C 6:00 p.m.
We ate dinner around six o’clock. After dinner we watched TV.
I got Alex ready for bed at eight o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ -------- 5:30 p.m.
Temperature 36.41C 11:00 a.m. 36.78C 4:00 p.m. 37.07C 6:00 p.m.
Saturday, April 7, 2012
Diagnosis: Leukemia; April 6, 1988
Alex woke me up at seven thirty. He wanted me to get him dressed. Then I made breakfast.
I decided to go to Dyna-Fit this morning. Since Charlie’s working dayshift I took Alex with me and he stayed in the playroom while I exercised.
On the way there Alex said he couldn’t stay there that he wanted to come with me. I told him it was for Mama’s only that all the kids stayed in the playroom.
Alex was fine once he got to the playroom. In fact when I left to go to my class Alex was already playing.
When I went to pick Alex up he said he had a good time.
We had to hurry home as Marla and the kids were coming. I told her to come around noon so I could get ready.
Marla came not long after we got home. She said Paxton had fallen asleep in the car. I guess they had been out somewhere.
I wasn’t ready I was still in my exercise outfit. I got ready while they came in, then I started to prepare lunch.
The kids played pretty good, they said they wanted Alligator soup for lunch, of course!
They left around three o’clock. I tided up the house then Charlie came home. We had dinner around six o’clock. Alex and I played some games before he went to bed.
We watched TV and I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------- ------- 6:00 p.m.
Temperature 36.21C 8:00 a.m.
I decided to go to Dyna-Fit this morning. Since Charlie’s working dayshift I took Alex with me and he stayed in the playroom while I exercised.
On the way there Alex said he couldn’t stay there that he wanted to come with me. I told him it was for Mama’s only that all the kids stayed in the playroom.
Alex was fine once he got to the playroom. In fact when I left to go to my class Alex was already playing.
When I went to pick Alex up he said he had a good time.
We had to hurry home as Marla and the kids were coming. I told her to come around noon so I could get ready.
Marla came not long after we got home. She said Paxton had fallen asleep in the car. I guess they had been out somewhere.
I wasn’t ready I was still in my exercise outfit. I got ready while they came in, then I started to prepare lunch.
The kids played pretty good, they said they wanted Alligator soup for lunch, of course!
They left around three o’clock. I tided up the house then Charlie came home. We had dinner around six o’clock. Alex and I played some games before he went to bed.
We watched TV and I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------- ------- 6:00 p.m.
Temperature 36.21C 8:00 a.m.
Thursday, April 5, 2012
Diagnosis: Leukemia; April 5, 1988
I woke up at nine o’clock. I made breakfast and got dressed. I vacuumed the house and tided up. The house was pretty messy from all the company.
I took Alex to gym class in the afternoon.
When we got home we played some puzzles.
We ate dinner around five o’clock. We played some more games.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 5:00 p.m.
Temperature 35.78C 10:30 a.m. 36.10C 5:00 p.m.
I took Alex to gym class in the afternoon.
When we got home we played some puzzles.
We ate dinner around five o’clock. We played some more games.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 5:00 p.m.
Temperature 35.78C 10:30 a.m. 36.10C 5:00 p.m.
Diagnosis: Leukemia; April 4, 1988
I woke up around nine o’clock. I was really tired from getting up so early yesterday. I made breakfast and got dressed.
In the afternoon we went to the market at North Vancouver. We had dinner at a won Ton House on the way home.
The traffic was pretty heavy from the people coming back from the long weekend.
We watched TV when we got home. I got Alex ready for bed at eight o’clock. I forgot to give Alex his Bactrim, so I had to wake him up at eleven o’clock.
I went to bed around midnight.
No tests
Medicine
Bactrim ------ 6:00 p.m. 11:00 p.m.
Mercaptopurine ------ 6:00 p.m. -------
Methotrexiate ------ 6:00 p.m. ------
Temperature 36.87 11:00 p.m.
In the afternoon we went to the market at North Vancouver. We had dinner at a won Ton House on the way home.
The traffic was pretty heavy from the people coming back from the long weekend.
We watched TV when we got home. I got Alex ready for bed at eight o’clock. I forgot to give Alex his Bactrim, so I had to wake him up at eleven o’clock.
I went to bed around midnight.
No tests
Medicine
Bactrim ------ 6:00 p.m. 11:00 p.m.
Mercaptopurine ------ 6:00 p.m. -------
Methotrexiate ------ 6:00 p.m. ------
Temperature 36.87 11:00 p.m.
Wednesday, April 4, 2012
Diagnosis: Leukemia; April 3, 1988
It’s Alex’s Birthday! Happy Birthday Alex!
At 1:30 a.m. some kid was skateboarding out on the street. Kelly was barking so I knew it had to be someone outside. When I went to the window the kid left. Then as I was coming up the stairs, Alex called Mama, Mama. I thought oh no I hope Alex isn’t going to wake up now. I went into his room and he said look what the Easter Bunny left me. He was really excited, I told him to go back to sleep. Alex said okay and he was asleep in a few minutes. I went back to sleep as well.
We were awoken at six thirty from a phone call for Lin. Their friends were leaving and wanted to meet them at McDonald’s in Chilliwack. They weren’t even dressed yet, they had to really rush around.
They left not long afterwards, they gave Alex $20 for his birthday which was really nice.
We gave Beau and Tina Easter chocolates.
I could hear Alex and Tina looking for the Easter eggs. Alex said that silly Easter Bunny put an egg in Miss Mouse’s bed.
After they had left, Alex came into our room and said look at all the Easter eggs the Easter Bunny left. Then he started to look through our room. Alex said wow look the Easter Bunny left some eggs for you too!
We then had breakfast and got dressed.
I started to make Alex’s cake, it took most of the morning.
We went to Mom and Dad’s in the afternoon. Mom and Dad had a lot of presents for Alex. They gave him a Mickey Mouse bank, a musical truck, Easter chocolates, pants, shorts and a t-shirt.
We gave Alex a Fisher Price mixer and Kelly gave him a puzzle. Charlie told me I was something else. The reason I gave him something else besides his bike was I thought we would be by ourselves.
Alex had a good time opening all the presents and having his Grandparents back.
We left around nine o’clock. Alex fell asleep on the way home. I put him to bed.
I went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 6:00 p.m.
At 1:30 a.m. some kid was skateboarding out on the street. Kelly was barking so I knew it had to be someone outside. When I went to the window the kid left. Then as I was coming up the stairs, Alex called Mama, Mama. I thought oh no I hope Alex isn’t going to wake up now. I went into his room and he said look what the Easter Bunny left me. He was really excited, I told him to go back to sleep. Alex said okay and he was asleep in a few minutes. I went back to sleep as well.
We were awoken at six thirty from a phone call for Lin. Their friends were leaving and wanted to meet them at McDonald’s in Chilliwack. They weren’t even dressed yet, they had to really rush around.
They left not long afterwards, they gave Alex $20 for his birthday which was really nice.
We gave Beau and Tina Easter chocolates.
I could hear Alex and Tina looking for the Easter eggs. Alex said that silly Easter Bunny put an egg in Miss Mouse’s bed.
After they had left, Alex came into our room and said look at all the Easter eggs the Easter Bunny left. Then he started to look through our room. Alex said wow look the Easter Bunny left some eggs for you too!
We then had breakfast and got dressed.
I started to make Alex’s cake, it took most of the morning.
We went to Mom and Dad’s in the afternoon. Mom and Dad had a lot of presents for Alex. They gave him a Mickey Mouse bank, a musical truck, Easter chocolates, pants, shorts and a t-shirt.
We gave Alex a Fisher Price mixer and Kelly gave him a puzzle. Charlie told me I was something else. The reason I gave him something else besides his bike was I thought we would be by ourselves.
Alex had a good time opening all the presents and having his Grandparents back.
We left around nine o’clock. Alex fell asleep on the way home. I put him to bed.
I went to bed around eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 6:00 p.m.
Tuesday, April 3, 2012
Diagnosis: Leukemia; April 2, 1988
I woke up at nine o’clock. Alex was playing with Tina. Charlie had given Alex hot cereal for breakfast.
Charlie and Simon went downstairs to fix the cars. Charlie had asked Simon if he could fix the brakes on both cars, Simon is a mechanic.
I made breakfast for Lin, the kids and myself. The kids said they weren’t hungry. Tina and Beau don’t eat very good, they eat a lot of junk food.
Lin was giving Beau chocolate chips cookies for breakfast. She was going to give Alex some but I told her Alex was not allowed to have any. This really seemed to surprise her. Lin said her kids didn’t eat very well so she gave them a lot of junk food.
Charlie and Simon came upstairs, Charlie asked me to make Simon breakfast. After they finished they went back downstairs to do the brakes. Lin seemed a bit annoyed as she wanted to go to Chinatown.
I asked Lin about her sister who had passed away from Cancer when she was sixteen. She said she had cancer in her throat and she went to Singapore for treatment. She stopped going for treatment and she seemed okay but the Cancer came back and shot got a lot worse. Lin said she was till at home when she passed away. Lin had been dating at the time she said she feels guilty that she didn’t spend more time with her sister.
It was good for me to know what kind of Cancer Charlie’s sister had since he didn’t know.
Simon and Charlie finished doing the cars and then they got ready to go to Chinatown. We didn’t go as it was raining so hard.
Later we met them at Shanghai for dinner. Alex really enjoyed his hot and sour soup. Their kids didn’t eat that much, Beau would only eat pork in small strips.
After dinner they went to their friends place and we came home.
Mom phoned not long after we got home. She said they had just gotten home and she wanted to have us over for dinner tomorrow for Alex’s birthday. I said I would bring the cake since Alex wanted a helicopter cake.
We watched TV and went to bed around midnight.
No tests
Medicine
Mercaptopurine ------- ------- 7:00 p.m.
Temperature 36.76C 9:30 a.m. 36.70C 1:00 p
Charlie and Simon went downstairs to fix the cars. Charlie had asked Simon if he could fix the brakes on both cars, Simon is a mechanic.
I made breakfast for Lin, the kids and myself. The kids said they weren’t hungry. Tina and Beau don’t eat very good, they eat a lot of junk food.
Lin was giving Beau chocolate chips cookies for breakfast. She was going to give Alex some but I told her Alex was not allowed to have any. This really seemed to surprise her. Lin said her kids didn’t eat very well so she gave them a lot of junk food.
Charlie and Simon came upstairs, Charlie asked me to make Simon breakfast. After they finished they went back downstairs to do the brakes. Lin seemed a bit annoyed as she wanted to go to Chinatown.
I asked Lin about her sister who had passed away from Cancer when she was sixteen. She said she had cancer in her throat and she went to Singapore for treatment. She stopped going for treatment and she seemed okay but the Cancer came back and shot got a lot worse. Lin said she was till at home when she passed away. Lin had been dating at the time she said she feels guilty that she didn’t spend more time with her sister.
It was good for me to know what kind of Cancer Charlie’s sister had since he didn’t know.
Simon and Charlie finished doing the cars and then they got ready to go to Chinatown. We didn’t go as it was raining so hard.
Later we met them at Shanghai for dinner. Alex really enjoyed his hot and sour soup. Their kids didn’t eat that much, Beau would only eat pork in small strips.
After dinner they went to their friends place and we came home.
Mom phoned not long after we got home. She said they had just gotten home and she wanted to have us over for dinner tomorrow for Alex’s birthday. I said I would bring the cake since Alex wanted a helicopter cake.
We watched TV and went to bed around midnight.
No tests
Medicine
Mercaptopurine ------- ------- 7:00 p.m.
Temperature 36.76C 9:30 a.m. 36.70C 1:00 p
Monday, April 2, 2012
Diagnosis: Leukemia; April 1, 1988
Today is Good Friday!
I woke up at ten o’clock. I’m still pretty tired, I haven’t recuperated yet.
Lin and her family had already left, they’re going to go to Seattle with their friends.
We went to the mall in the afternoon.
Alex said he was annoyed that he couldn’t play with Tina. He said he couldn’t understand why they had gone out so early.
We ate dinner at six o’clock, Alex and I played some games before he went to bed.
We watched TV for awhile. Lin and family came back around nine o’clock. They were surprised that Alex had gone to sleep so early. Lin said Tina and Beau usually go to bed around ten or eleven o’clock. They get up around six or seven in the morning. I didn’t think that was enough sleep for a child.
We went to sleep around midnight.
No tests
Medicine
Bactrim 10:00 a.m. ----- 5:40 a.m.
Mercaptopurine ------ ------- 5:40 a.m.
Temperature 36.29C 5:40 a.m.
I woke up at ten o’clock. I’m still pretty tired, I haven’t recuperated yet.
Lin and her family had already left, they’re going to go to Seattle with their friends.
We went to the mall in the afternoon.
Alex said he was annoyed that he couldn’t play with Tina. He said he couldn’t understand why they had gone out so early.
We ate dinner at six o’clock, Alex and I played some games before he went to bed.
We watched TV for awhile. Lin and family came back around nine o’clock. They were surprised that Alex had gone to sleep so early. Lin said Tina and Beau usually go to bed around ten or eleven o’clock. They get up around six or seven in the morning. I didn’t think that was enough sleep for a child.
We went to sleep around midnight.
No tests
Medicine
Bactrim 10:00 a.m. ----- 5:40 a.m.
Mercaptopurine ------ ------- 5:40 a.m.
Temperature 36.29C 5:40 a.m.
Sunday, April 1, 2012
Diagnosis: Leukemia; March 31, 1988
I woke up at nine o’clock. Every morning Paul seems to expect me to make breakfast I just don’t feel that I should have to make everyone breakfast. The last few mornings he got it himself but this morning he told Blair he wanted a four minute egg and toast. Then he walked away. Blair said why do I have to do it?
After breakfast they packed up all their stuff. They’re staying at Yvonne and Jaz’s until Sunday.
They left around eleven o’clock. Blair asked if we were coming up this summer I told her we might be going to Disneyland this summer.
There’s no way I could stand to go up there this summer. I’d rather stay in a motel, their hide-a-bed is the lumpiest bed I’ve ever slept on. Last summer after we came home from there my back hurt for three weeks after.
Marla was suppose to come for lunch but Paxton wasn’t feeling very good. She said she had to work on her assignment for school.
The hospital phoned the other day, they said they had over booked and they were changing our appointment to the 8th. Joan, the receptionist said is that okay. As far as I was concerned it definitely was not okay, not on my birthday. She said that was the only day. So we don’t have any choice but to go that day.
I cleaned up the house, it was pretty messy from Blair and them. I also had to clean the sheets. Lin and her family were coming down tonight.
Alex and I went to get Fish and Chips for dinner. We ate around seven o’clock.
I got Alex ready for bed at eight o’clock. I wanted to make sure he was asleep by the time they arrived. They didn’t arrive until ten o’clock. They showed us the pictures Barbara had taken when she went home to Brunei. Charlie’s mother doesn’t look very good, it looks like she had a stroke.
They went to bed around eleven o’clock. Tina didn’t want to sleep with Alex. They all slept in the spare room, Beau was in the small playpen.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 7:15 p.m.
Temperature 35.49C 10:55 a.m. 35.06C 7:15 p.m.
After breakfast they packed up all their stuff. They’re staying at Yvonne and Jaz’s until Sunday.
They left around eleven o’clock. Blair asked if we were coming up this summer I told her we might be going to Disneyland this summer.
There’s no way I could stand to go up there this summer. I’d rather stay in a motel, their hide-a-bed is the lumpiest bed I’ve ever slept on. Last summer after we came home from there my back hurt for three weeks after.
Marla was suppose to come for lunch but Paxton wasn’t feeling very good. She said she had to work on her assignment for school.
The hospital phoned the other day, they said they had over booked and they were changing our appointment to the 8th. Joan, the receptionist said is that okay. As far as I was concerned it definitely was not okay, not on my birthday. She said that was the only day. So we don’t have any choice but to go that day.
I cleaned up the house, it was pretty messy from Blair and them. I also had to clean the sheets. Lin and her family were coming down tonight.
Alex and I went to get Fish and Chips for dinner. We ate around seven o’clock.
I got Alex ready for bed at eight o’clock. I wanted to make sure he was asleep by the time they arrived. They didn’t arrive until ten o’clock. They showed us the pictures Barbara had taken when she went home to Brunei. Charlie’s mother doesn’t look very good, it looks like she had a stroke.
They went to bed around eleven o’clock. Tina didn’t want to sleep with Alex. They all slept in the spare room, Beau was in the small playpen.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 7:15 p.m.
Temperature 35.49C 10:55 a.m. 35.06C 7:15 p.m.
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