July 8, 1990
Samantha ate at nine, one, and six o’clock.
I haven’t told Alex what is going to happen tomorrow at the hospital. It’s too bad he’ll have to have a bone marrow and a spinal tap.
I find it extremely hard not know what’s going to happen and that we won’t know right away.
Hopefully Alex won’t be too difficult to handle but I know he won’t want it done.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
July 9, 1990
I woke up at seven o’clock to the alarm. I had a shower, got dressed and made our breakfast.
Samantha was just waking up so I fed her before we left for the hospital. Charlie is staying home with Samantha. Charlie thought if I too k Alex I would be able to handle him better.
We saw Dr. S before Alex had his blood test. He first checked Alex all over. The doctor said if the BM and LP were okay Alex would still have to have blood tests. For the first three months they would check him over very thoroughly. Then he could have his blood tests at the family doctors for two months and come back to the hospital on the third month. Alex would do that for a year then he would come every six months for two years. So lets get this straight, start month one, two and three go to the hospital. Four and five family doctor. Six hospital. Seven and eight family doctor, nine hospital. Ten and eleven family doctor. Twelve hospital. On the following two years he would go to the hospital every six months but would have to see the family doctor every month for blood tests.
Before Alex had his blood test he said he wanted to get something to eat. Unfortunately Mary called him in and then Dr. S said they were ready for him. Alex threw himself on the floor and said he had to have something to eat. I told Dr. S we had a problem that Alex was too hungry! He said we could get something for Alex and to tell him when we’re ready. Mary still had quite a time with Alex and he wouldn’t listen to me at all.
Alex had his snack then it was time for his LP and BM. It didn’t start off too good. As soon as the doctor put his fingers on Alex’s back he started to scream and he didn’t stop. I was holding Alex during his LP, he was pushing so much I thought I was going to end up on the floor. I tried reasoning with Alex but he just wouldn’t listen. Somehow or other we got through it. After the LP Alex said he was finished and started to get up to leave the room. We told him he still had to have a BM but he said no he wasn’t having it.
During the BM Alex was so mad that he started to shake his whole body. As I’ve said before there just wasn’t any reasoning with him.
When it was finally over Dr. S said if he phoned in a couple of days it would mean Alex would have to come back for more treatment. If I didn’t hear anything to phone on Friday he should have the results by then.
Alex laid down on a bed for an hour then we were able to leave.
I left Alex while he was laying down to go to the pharmacy and buy some goodies for Alex at the store.
We got home around two o’clock. I’m exhausted from the whole ordeal. Now we have to wait for the results that sure will be difficult.
Tests
WBC 3.0
HGB 13.1
Platelets 379
ANC N/A
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