Diagnosis: Leukemia; November 30, 1987

I woke up at nine o’clock. I got ready to go to the exercise class. I came home from my class at 11:30 p.m. I had lunch, had a shower and got dressed.

Alex and I went to K-Mart, we bought clothes for Alex. Alex said he was tired and wanted to come home. Alex asked me to make his dinner, he ate dinner then he fell asleep.

I had dinner at five o’clock. While Alex was asleep I made butter tarts. It’s such an easy recipe and Aaron said I make the best butter tarts! What a nice compliment!

Alex and I watched TV when he woke up.

We went to bed around eleven o’clock.

Alex has been having trouble sleeping in his bed. He sleeps better when I hold him. He holds my arm really tight.

No tests

Medicine

Bactrim 9:20 a.m. ------ 9:40 p.m.
Mercaptopurine ------ ------ 9:40 p.m.
Methotrexiate ------ 3:30 p.m. ------

Temperature 36.59C 9:20 a.m. 36.45C 3:30 p.m.

Diagnosis: Leukemia; November 29, 1987

I woke up at eight o’clock. I made waffles for breakfast. We went to Mom and Dad’s to get their mail and to rake the leaves. We got about three bags, the orange garbage bags.

We went to McDonalds for lunch, then we came home.

I put the roast in the oven at 2:30 p.m. then I went to the mall. Alex and Charlie stayed home.

I came home at four o’clock.. I finished cooking dinner, I roasted the potatoes and made gravy. We ate before six o’clock. After dinner we watched TV. I got Alex ready for bed at eight o’clock.

I watched TV and went to bed around eleven o’clock.

No tests

Medicine

Bactrim 8:30 a.m. ----- 6:00 p.m.
Mercaptopurine ----- ----- 6:00 p.m.

Diagnosis: Leukemia; November 28, 1987

Alex and I woke up at ten o’clock. I made Alex breakfast then I had a shower and got dressed.

We left to go to downtown at eleven o’clock, to see the parade. It’s was really good, it was a bit cold. My feet felt like they were frozen.

After the parade we went to the Pacific Centre mall. Charlie went to get his hair permed. Alex and I went shopping in the mall. We met Charlie at the hair place at five thirty.

We went out for dinner, then we came home. I felt terrible when we came home, I was sick to my stomach. I went to bed early.

Alex came to bed with me.

No tests

Medicine

Bactrim 10:20 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.

Temperature 36.47C 9:00 p.m.

Diagnosis: Leukemia; November 27, 1987

I woke up at nine o’clock. I got ready to go to my exercise class. I came home at 11:30 p.m. I had my lunch then I had a shower and got dressed.

I phoned Shirley to see if they were going to the Grey Cup Parade. They weren’t but she asked if we wanted to meet Brent, Aaron and Monique at McDonalds. Then at seven thirty pick her up at the sky train station.

First Alex and I went to the bank, K-Mart then we went to McDonalds. We met Aaron and the kids, we all had dinner then Brent came home with us.

We left at seven thirty to pick up Shirley then we came home. We watched a video we had rented.

Alex and Brent played really well together. They didn’t fight which is really nice to see.

We drove Shirley and Brent home then we came home.

Alex said he was still hungry. I got him something to eat. Alex helped me put away the toys.

Charlie came home while we were putting the stuff away.

Alex stayed up with Charlie while I went to bed. They went to bed around one o’clock.

No tests

Medicine

Bactrim 12:00 p.m. ------ 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.

Temperature 36.62C 12:00 p.m.

Diagnosis: Leukemia; November 26, 1987

I woke up at nine o’clock. I had a shower and got dressed.

We went to the mall and had lunch there. I love seeing the mall decorated at Christmas. Santa looks so good sitting in his castle. Mrs. Claus was escorting the children up to see Santa. We came home around one o’clock.

Alex and I played games in the afternoon. He seems to need my attention all the time, he’s not one to play by himself much.

We had dinner around five o’clock. After dinner we went downstairs and exercised. Well I exercised and Alex rode his bike.

I got Alex ready for bed at eight o’clock. I watched TV and went to bed around eleven o’clock.

No tests

Medicine

Bactrim 1:45 p.m. ------- 8:15 p.m.
Mercaptopurine ------ ------- 8:15 p.m.

Temperature 36.88 8:15 p.m.

Diagnosis Leukemia; November 25, 1987

I woke up before nine o’clock. I got ready to go to my exercise class. I got home after the class at 11:30 a.m. I had lunch then I had a shower and got dressed.

I told Alex we had to get ready for his cooking class. He said last night that he wanted to go, but now he said he wouldn’t go. I told him I would buy him a car if he went. He finally agreed and said he would go.

I took Alex to his class and he didn’t complain at all. I went to consumers, it took an hour to get the stuff I wanted. Then I went to pick Alex up. They were having a tea party. The teacher gave us tea and the kids served us butter cake they had made. They also made fruit salad.

We went to the mall since I promised Alex a car. After we got home I started to cook dinner. We ate at five o’clock.

I got Alex ready for bed at eight o’clock.

I watched TV and went to bed a eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

Temperature 36.30C 9:00 a.m. ------- 36.70C

Diagnosis: Leukemia; November 24, 1987

I woke up at eight o’clock. I had a shower and got dressed.

I tried the cookie gun last night. It works really well. I made Spritz cookies, they are similar in taste to Shortbread. It sure saves a lot of time. I just put the dough in the cylinder, choose a design plate, press the trigger and out comes the cookie shape! In no time at all I have a dozen cookies to go into the oven!

We didn’t do much, Alex wanted me to play cars with him.

We had dinner at five o’clock. After dinner we went downstairs to exercise.

I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 8:15 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

Temperature 36.08C 8:15 p.m.

Diagnosis: Leukemia; November 23, 1987

I woke up at nine o’clock. I got dressed and got ready. Kurt came over while Nora went shopping. Alex and Kurt played quite well together, they didn’t fight too much. Nora came to get Kurt just after twelve o’clock.

We didn’t do much in the afternoon. We Played with Alex’s cars.

We had dinner at five o’clock. After dinner we went downstairs to exercise.

I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock

No tests

Medicine

Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Methotrexiate ------ 4:30 p.m. -------

Temperature 36.59C 10:00 a.m. 35.85C 4:30 p.m.

Diagnosis: Leukemia; November 22, 1987

I woke up at eight thirty. I had a shower and got dressed.

I picked Shirley and Monique up and went to McDonald’s. Alex was really excited. Ronald McDonald was coming for the grand opening. Brent and Aaron came after Church.

After McDonald’s Shirley, Brent, Alex and I went back to our house. They stayed for a few hours, Aaron and Monique came to pick them up.

Charlie went out and got dinner. They ate around five thirty, I ate later.

Alex went to bed around nine o’clock. I watched TV then went to bed around eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

Temperature 36.07C 9:00 a.m. ------ 36.55C 8:00 p.m.

Diagnosis: Leukemia; November 21, 1987

I woke up at eight o’clock. I had a shower and got dressed.

We went out shopping to Coquitlam Centre and had lunch out. We came home, Charlie and Alex watched TV while I tided up.

We went out for dinner to Shanghai Restaurant, then we went to the Chew’s. Alex played with Carrie and Robert. He seems to get along better with Carrie. Robert never wants to share any of his toys with Alex. We came home around nine o’clock. I got Alex ready for bed.

I watched TV and did my knitting. I went to bed around midnight.

No tests

Medicine

Bactrim 9:40 a.m. ------ 7:00 p.m.
Mercapotopurine ------ ------ 7:00 p.m.
Prednisone 9:40 a.m. ------ ------

Diagnosis: Leukemia; November 20, 1987

I woke up at eight o’clock. I had a shower and got dressed.

The doctor asked me to fast before having my blood test. I had done this last night. We went to the doctor’s office for my blood test. Alex wanted to watch. Alex didn’t see the needle go in. I told him, look the blood is coming out. Alex’s eyes got really big. He said doesn’t it hurt, I told him just a little bit. He stared blowing for me!

We went to the mall afterwards then we came home.

We had dinner at five o’clock. After dinner we went to rent a movie and came home.

Shirley phoned and asked if we wanted to meet them at McDonald’s. We met them then we came back to our house. Brent and Alex played while Shirley, Charlie and I watched the movie.

They left around eleven o’clock. I got Alex ready for bed, he was really mad he didn’t want to go to bed. He had a temper tantrum, I finally got him to bed. I went to bed around eleven thirty.

No tests

Medicine

Bactrim 8:30 a.m. ------ 7:45 p.m.
Mercaptopurine ------ ------ 7:45 p.m.
Prednisone 8:30 a.m. 1:30 p.m. 7:45 p.m.

Temperature 36.06C 1:30 p.m. 35.79C 7:45 p.m.

Diagnosis: Leukemia; November 19, 1987

I woke up at eight o’clock. I had a shower and got dressed.

Charlie wanted to go for Dim Sum, we left around ten o’clock. It’s always so crowded in the restaurant for Dim Sum. The noise is unbelievable, I find it rather intimidating. We came home around one o’clock.

I left at one thirty, I dropped Alex off at Nora’s and went to the doctor’s. Dr. W said I was in pretty good health. There are days were I feel totally drained, I’m tired a lot and I do seem to get sick more often. Dr. W said that's normal considering the year I've had.


I went shopping after the doctor’s. The doctor told me I should have an afternoon off.

I got Alex around four o’clock. We went to McDonald’s for dinner and went to the mall afterwards.

Alex went to bed around eight o’clock. I went to bed at eleven o’clock.

No tests

Medicine

Bactrim 8:00 a.m. ------ 6:15 p.m.
Mercaptopurine ------ ------ 6:15 p.m.
Prednisone 8:00 p.m. 1:00 p.m. 6:15 p.m.

Temperature 26.12C 1:00 p.m. 35.87C 6:15 p.m.

Diagnosis: Leukemia; November 18, 1987

I woke up at nine o’clock. I had breakfast showered and got dressed. I tided up the house then we went to the Bay to get Alex’s pictures. They’re really good, they have a special on for $24.95, otherwise it would cost about $100. We bought the package as well as two more 5X7’s.

Afterwards we drove Alex to his cooking class. When we got there Alex said he didn’t want to go. We took him inside but there was no way he would stay.

We came home and I felt totally frustrated, I just don’t know why Alex doesn’t want to go.

We didn’t do much the rest of the afternoon. We had dinner at five o’clock. Alex went to bed at nine o’clock. I watched TV and went to bed.

No tests

Medicine

Bactrim 9:15 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------- 7:30 p.m.
Prednisone 9:15 a.m. 3:50 p.m. 8:45 p.m.

Temperature 35.73C 3:50 p.m.

Diagnosis: Leukemia; November 17, 1987

I slept in until ten o’clock, I just didn’t seem to be able to get going.

Charlie went to get his car fixed this morning.. I cleaned up the house and then we went outside. I planted the bulbs in the front and back, cleaned up the garden for winter.

We came in the house at three o’clock. I played with Alex for awhile then I started dinner. We ate at five o’clock.

Alex has been very irritable since yesterday. This seems to be pretty normal every time he goes to the hospital and once he starts on prednisone.

We watched TV and Alex went to bed around nine o’clock.

I went to be at eleven o’clock.

No tests

Medicine

Bactrim 12:00 p.m. ------ 6:30 p.m.
Mercaptopurine ------ ------ 6:30 p.m.
Prednisone 8:00 a.m. 2:30 p.m. 7:40 p.m.

Temperature 36.25C 12:00 p.m.

Diagnosis: Leukemia; November 16, 1987

I slept in Alex’s bed last night. I woke up at 7:30 a.m., I had over slept. We have to be at the hospital at 8:45 a.m. I woke Charlie and Alex up. We were half an hour late.

We didn’t have to wait as much this time but the doctor sure was rude.

I told her about Alex’s arm, after she had examined him. She said why didn’t you tell me in the beginning well bring him off the table and take off his shirt. I felt like saying what’s your problem, it’s only the beginning of the week.

Then when Alex had his bone marrow they put in a clear fluid. It looked like Methotrexiate and I asked if it was. Dr S said we never put it in a bone marrow. Her tone of voice was really uncalled for. Krisann looked quite shocked, she said that’s the freezing for the bone marrow.

When we went for Alex’s I.V. push, Alex decided he didn’t want it. Alex fought a lot. I had to hold Alex’s arm while Lenore put the needle in.

We left the hospital around one o’clock, we went to the post office to get a registered letter for Dad. We went to McDonald’s for lunch and then we went home.

When we got home Kurt and Nora were just coming home. Alex asked if Kurt could come over. I also asked Nora if she could look after Alex when I went to the doctors on Thursday. She said she could and Kurt came over to play.

Kurt left around three o’clock. I cleaned up the house and started to cook dinner. We ate dinner at five o’clock and then we went downstairs to exercise.

I got Alex ready for bed at eight thirty.

I watched TV and went to bed. I was totally exhausted from today.

Tests

WBC 2.4
HGB 13.4
Platelets 400
ANC 1968

Medicine

Bactrim 8:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------- 6:00 p.m.
Methotrexiate ------- 5:30 p.m. --------

Temperature 36.11C 6:30 p.m. 36.22C 6:00 p.m.

Diagnosis: Leukemia; November 15, 1987

We had to wake up early as Aaron is coming to pick Brent up. I woke up Brent at eight o’clock. Alex was already awake. He slept in his bed all night, which he hasn’t for a couple of months.

I made them breakfast and got Brent to get dressed.

Aaron came at nine thirty. Shirley phoned and asked me if I would like to go to the mall with her.

We went around two o’clock and came home around four o’clock. Shirley asked us if she could join us for dinner, which was great by me.

After dinner we came home, Shirley stayed for awhile then she went home.

I watched TV and went to bed.

No tests

Medicine

Bactrim 8:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.

Temperature 36.43C 8:00 a.m.

Diagnosis: Leukemia; November 14, 1987

I woke up at nine o’clock. Charlie was working overtime.

Alex and I went to see Santa Clause fly into Coquitlam Centre by helicopter we arrived about fifteen minutes early, there was quite a few people there already. Alex was really excited when Santa got out of the helicopter. We went into the mall and Santa came in on a train. Before the train there was a band playing.

We shopped around for awhile and came home around one thirty.

Shirley phoned at two o’clock. Aaron dropped Shirley and Brent off. We went to P.J.’s and came home after four o’clock. We dropped Shirley off at her house, then we went out for dinner.

Brent stayed over night. Alex and Brent got along really well, they didn’t fight. I had to separate them when they went to bed. Alex kept on talking it was ten o’clock before they were asleep.

I went to bed after eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------- 8:00 p.m.
Mercaptopuine ------ ------- 8:00 p.m.

Temperature 36.14C 4:30 p.m. 36.39C 8:00 p.m.

Diagnosis: Leukemia; November 13, 1987

I woke up around eight thirty. I didn’t want to go out today. I didn’t do much today, cleaned up the house and played with Alex.

Alex wanted to go out, so we went to McDonald's and then to the mall. We didn’t stay in the mall very long. Once Alex had gotten a toy car he wanted to go home and he made it very difficult for me. We came home.

We watched TV. , then I got Alex ready for bed around eight o’clock.

I wrote in the journal, watched TV and went to bed around eleven o’clock.

No tests

Medicine

Bactrim 8:50 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.

Temperature 36.33C 8:50 a.m.

Diagnosis: Leukemia; November 12, 1987

I woke up at eight thirty. Alex wanted me to play with him right way. I told him I was going to have breakfast first. This made him really mad.

We had breakfast then I had a shower and got dressed.

We went to see Dr. W. , he said he was very pleased with Alex’s condition. He said Alex seems to be doing really well. Dr. W has been very supportive, we are very lucky to have such a good family doctor.

We went to Dairy Queen after the doctors for lunch and came home.

I watched TV and at three o’clock Alex asked to have his dinner. I heated up some leftovers for him. I had dinner at five o’clock.

It’s almost six thirty, I’ll probably watch TV and do some knitting after I get Alex into bed.

No tests

Medicine

Bactrim 9:00 a.m. ------- 6:30 p.m.
Mercaptopurine ------- ------- 6:30 p.m.

Temperature 36.38C 9:00 a.m. 35.79C 6:30 p.m.

Diagnosis: Leukemia; November 11, 1987

I woke up at eight thirty. It’s Remembrance Day today, so it’s a holiday.

Lucy phoned and asked us to meet them for dinner in Richmond.

We went to the mall before lunch, we came home at two o’clock.

We watched a video on TV, then we got ready. We left at 5:45 p.m., we had dinner at Gala in Richmond. The food wasn’t very good. Lucy and Shirley usually pick the restaurant. I think next time we should pick it. Maybe they have different tastes.

We came home after dinner, we got home just after nine o’clock. I read for awhile then I got Alex ready for bed. Alex didn’t want to sleep in his bed, he came into bed with me. Charlie slept in Alex’s bed.

We all were in bed after eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------ 8:000 p.m.
Mercaptopurine ------ ------- 8:00 p.m.

Temperature 36.58C 9:00 a.m. 35.58C 4:30 p.m. 34.96C 8:00 0.m.

Diagnosis: Leukemia; November 10, 1987

I woke up at nine o’clock, I had a shower got dressed and had breakfast.

I felt a lot better today. I don’t feel so run down.

We went to the bank to pay my credit card bill. Alex wanted to go buy a toy car, so we went to the mall. It’s starting to get busy in the mall. A few more weeks and the crowds will start. I’ll have to make sure I get most of my Christmas shopping done before that. It’s so hard moving a stroller through the crowds.

We came home at four o’clock. Alex played, while I started to make dinner at five o’clock.

I got Alex ready for bed at eight o’clock.

I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 9:30 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.

Temperature 36.79C 4:00 p.m. 34.44C 7:00 p.m.

Diagnosis: Leukemia; November 9, 1987

I woke up at ten thirty. I must have been really tired, I don’t feel too energetic. I had breakfast, had a shower, and got dressed.

I didn’t do much today, I just didn’t feel like it. I played with Alex and we watched TV.

We had dinner at five o’clock.

I got Alex ready for bed at eight thirty. I watched TV and went to bed at eleven o’clock.

No tests

Medicine

Bactrim 11:45 a.m. ------ 6:30 p.m.
Mercaptopurine ------ ------- 6:30 p.m.
Methotrexiate ------ 2:30 p.m. --------

Temperature 34.07C 11:45 a.m. 34.86C 6:30 p.m.

Diagnosis: Leukemia; November 8, 1987

I woke up at nine o’clock. We had breakfast then I had a shower and got dressed.

Charlie and Alex went grocery shopping. I tided up the house while they were gone.

We went downtown to Pacific Centre mall in the afternoon. Charlie and Alex had lunch in the food court while I wandered around the stores. I could shop for hours while they would rather not be there!

We went to Shanghai for dinner, then we came home. We usually have hot and sour soup, their chicken is so good too.

We watched TV, I went to bed after ten o’clock. I didn’t get much sleep last night as I had an upset stomach.

No tests

Medicine

Bactrim 10:15 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.

Temperature 36.93C 10:15 p.m.

Diagnosis: Leukemia; November 7, 1987

I woke up at nine o’clock. I made Alex and myself breakfast then I had a shower.

We went to Lansdowne mall in the afternoon, it’s such a confusing mall. There is a circle within a circle. If you take a wrong turn it takes forever to find your way back! We went out for dinner, I so enjoy not having to cook or figure out what we should have. We went to the Chew’s after dinner. Robert and Alex never seem to get a long too well. Robert just doesn’t usually want to share any toys with Alex.

We came home at ten o’clock. Alex fell asleep on the way home. I carried him upstairs and got him ready for bed. We went to bed around eleven o’clock. My stomach feels funny I sure hope I can sleep.

No tests

Medicine

Bactrim 10:45 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.

Temperature 36.25C 10:45 a.m. 35.19C 6:00 p.m.

Diagnosis: Leukemia; November 6, 1987

I woke up at nine o’clock. I made Alex breakfast then I got ready to go to my exercise class.

I came home at eleven thirty. We had lunch and after lunch I polished the furniture. I had a shower got dressed and got ready to go out.

Alex and I went to McDonald’s and the mall. Alex wanted to go to the toy store but after he got his car he told me he wanted to go home. He made it really difficult for me to look at anything.

At a shore store Alex threw his car along the chair. I took the car from him and we went home.

When we got home I got Alex ready for bed right away. I told him I would give him his car back if he brushed his teeth and didn’t complain. Alex asked me to read him a story but I told him no. I won’t read him a story when he acts so badly in the store.

Alex was in bed by eight o’clock. I watched tv and wrote in the journal.

No tests

Medicine

Bactrim 9:15 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.

Temperature 35.64C 9:15 a.m. 35.09C 4:00 p.m. 35.95C 6:00 p.m.

Diagnosis: Leukemia; November 5, 1987

I woke up before nine o’clock. I made Alex and myself breakfast. I got dressed and made shortbread.

We had lunch and after lunch I planned to clean the furniture but Alex wanted me to play with him.

Then while I was in the bathroom the doorbell rang. Charlie, Alex and Kelly went to the door, Alex tripped. He said his arm hurt but it looked okay. For the rest of the afternoon I had to sit with him.

This week Alex seems to need a lot of attention. I don’t think he’s been feeling all that well.

We had dinner around five o’clock but Alex didn’t eat that much. After dinner we went downstairs to exercise. Alex ran around a lot, his arm seemed to be okay. He seems to crave sympathy.

I got Alex read y for bed at eight o’clock. I watched TV and went to bed after eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------ 6:30 p.m.
Mercaptopurine ------ ------ 6:30 p.m.

Temperature 35.09C 4:00 p.m. 35.40C 6:30 p.m.

Diagnosis: Leukemia; November 4, 1987

I woke up at nine o’clock, made breakfast for Alex and got ready for my exercise class. I left at ten o’clock and came home at eleven thirty. I had a shower, got dressed, got Alex dressed and had lunch.

Alex and I left for his class then I came home.

Charlie, Kelly and I went for a walk. After we came home I changed the sheets on our bed. Then it was time to get Alex.

Alex wanted to go to the mall. We came home at four o’clock.

I started making dinner but Alex didn’t eat anything. He threw up this morning, he doesn’t seem to be feeling too good this week.

I got Alex ready for bed at eight o’clock.

I watched TV and went to bed after ten o’clock.

No tests

Medicine

Bactrim 9:50 a.m. ------- 5:30 p.m.
Mercaptopurine ------ ------- 5:30 p.m.


Temperature 35.95C ------- 36.07C 5:30 p.m.

Diagnosis: Leukemia; November 3, 1987

I woke up at eight o’clock to hear Alex throwing up in the bathroom.

We sat and watched TV, I had breakfast and got dressed.

We went out for lunch and got a part for the mixer.

We came home before one o’clock. Alex painted downstairs for awhile. I vacuumed the house, cleaned the bathrooms and cleaned the floors. Then I had a shower, got dressed and started dinner. Alex was asleep, he fell asleep after three o’clock.

I had dinner at five o’clock,, I let Alex sleep. Alex woke up at five thirty, he had dinner after six o’clock.

After six thirty we went downstairs to exercise. We came upstairs and watched TV.

I wrote in the journal for about an hour and a half.

I’ll probably go to bed around eleven o’clock.

No tests

Medicine

Bactrim 9:00 a.m. ------ 8:00 p.m.
Mercapotpurine ------ ------ 8:00 p.m.

Temperature 35.96C 9:00 a.m. 35.79C 8:00 p.m.

Diagnosis: Leukemia; November 2, 1987

I woke up at nine o’clock, got dressed and ready to go to the exercise class. After the class I came home, had a shower and got dressed.

After lunch Alex went to Kurt’s house. I cleaned up the house then I went shopping. I picked Alex up at four o’clock. We had dinner at five o’clock. Alex didn’t want the ribs I was having, he wanted the leftover roast beef.

Alex fell asleep sometime around six thirty. I had to wake him up for his medicine which made him really cranky.

Alex went to bed at nine o’clock. I watched TV, read for awhile and went to bed around midnight.

No tests

Medicine

Bactrim 9:50 a.m. ------ 7:00 p.m.
Mercapotpurine ----- ------ 7:00 p.m.
Methotrexiate ------ 4:30 p.m. -------

Temperature 35.99C 9:50 a.m. 36.37C 4:30 p.m. 36.09C 7:00 p.m.

Diagnosis: Leukemia; November 1, 1987

I woke up at eight thirty. I made breakfast, had a shower and got dressed.

After lunch we went to the market in North Vancouver, looked at some houses on the way to Deep Cove. For sale by a company which was the builder of our old house, then we went for dinner. After dinner we went grocery shopping and came home.

We all watched TV then I got Alex ready for bed at nine o’clock.

I cleaned up the house then I went to bed around midnight.

No tests

Medicine

Bactrom 9:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.

Temperature 36.51C 9:00 a.m. 35.91C 8:00 p.m.

Diagnosis Leukemia; October 31, 1987

I woke up around eight o’clock. I made breakfast and got dressed.

Charlie had to work overtime today.

Alex and I carved the pumpkin this afternoon. While I cleaned up the house Alex played with his cars.

Alex had a nap at three o’clock. I started cooking dinner, Charlie came home at four o’clock. We had dinner at five o’clock.

The kids started coming at five thirty. Alex and I got ready to go, Nora phone and asked if she and Kurt could join us. We went out at six o’clock. We went down Westlake, part of Lost Lake then to Goldstream and home. We came home around seven thirty. Nora invited us over for the neighbour’s fireworks. She said six of them chipped in together.

I talked to Allison most of the time. She lives next to Nora, they had a baby girl in September. I thought she knew about Alex having Leukemia but she didn’t. I felt badly I had brought it up. We had talked about some kids getting sick and others being so healthy.

We came home at nine o’clock.

Before going to see the fireworks, we lit the sparklers that Mom had given Alex. Alex burnt his fingers on one, he said he wanted to touch the light.

Alex had some of the goodies when we came back. He fell asleep around eleven o’clock in our bed. I put him into his own bed.

I went to bed as well.

No tests

Medicine

Bactrim 9:00 a.m. ------ 9:30 p.m.
Mercaptopurine ------ ------ 9:30 p.m.

Temperature 35.38C 9:00 a.m. 35.38C 9:30 p.m.