I woke up at eight o’clock. I had a shower and got Alex to have a bath.
Charlie was really cranky, Alex had woken up at five o’clock and was calling out. Charlie had gotten up and couldn’t go back to sleep. Charlie was quite irritated that I had sleep through it all.
I got Alex dried and dressed. Then I got dressed and packed the diaper bag. All the time Charlie was saying we’re going to be late hurry up, hurry up. Meanwhile he’s sitting on the sofa doing nothing!
We left for the hospital before nine o’clock and got there at nine forty. When we got there Ida the children’s’ therapist was there. Alex did some painting, the doctor saw him and he had his blood taken.
Charlie asked me what Alex was having done today which totally irritated me. You would think by now he would remember. I told him so and he said well I can’t remember everything. I said so it’s up to me to remember it all.
The Dr. S asked us when Alex had Methotrexiate. I told her not last Monday but the Monday before that. No doubt she didn’t understand as she said why was that. I said because Alex is suppose to have a LP today, so I didn’t give him any this week. She said oh you mean last Monday that past. I said Yes!
Dr S said they would be ready for the LP in five minutes.
Charlie said he was going to the Pharmacy. I told him to go later as if he wasn’t there Alex wouldn’t go in. The doctor and the nurses would have to wait which would annoy them.
Charlie does try to get out of going. He doesn’t like to watch, especially since Alex always cries out in pain.
After Alex had his LP he laid down for an hour. Alex didn’t want to but otherwise he’ll end up with a headache for a couple of days. That would be terrible!
Before noon Alex had Vincristine I.V. push and some more blood taken. The blood is to check that his liver and kidney are okay.
We went home, we stopped at Church’s for lunch. On the way home Alex fell asleep, I put him into his bed.
I watched TV and did the dishes. I let Alex sleep as long as he wanted I figured he had been through a lot today and he needed it.
Alex woke up at four o’clock. I gave him a present for being so good at the hospital, he hardly complained at all. I was really proud of him.
I got him light and learn, it took me an hour to put it together. It’s very poorly made, I sure wouldn’t recommend it.
Then I tided up the house. Shirley and the kids came over before seven o’clock.
Alex and Brent were playing light and learn but they started to fight. The problem was Brent would tell Alex the right answer therefore, Alex felt he should have another turn. They started to fight as to who’s turn it was.
I took the game away from them since they wouldn’t stop fighting.
They left at nine o’clock. I got Alex ready for bed shortly after they left.
I also went to bed at ten thirty.
Tests
WBC 2.3
HGB 14.8
Platelets 238,000
ANC 1,403
Medicine
Bactrim 8:45 p.m. ------- 9:15 p.m.
Mercaptopurine --------- ---------- 9:15 p.m.
Prednisone -------- --------- 9:15p.m.
*Methotrexiate was given at the hospital
Temperature 35.85 9:15 p.m.
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