I woke up at nine o’clock. Alex’s arm is really bothering him. I put an ice pack on his arm. He seems to be really upset, quite down today. He said he doesn’t want to go to Mini-Sport today.
Dr S phoned in the morning, she said Alex’s blood count was down and to stop 6MP (Mercaptopurine) and Methotrexiate. She said he really shouldn’t have had chemotherapy. I told her about he burn and should I continue putting ice on it. All she said was oh yes but it doesn’t have anything to do with his blood count.
It really upsets me when they act like that, they sure don’t have any bed side manner. It’s also a worry for me anyways not knowing if Alex will be okay. His breathing isn’t normal and then there’s a problem with his arm. Nothing has come up yet but Alex says it’s very painful so it must be. Alex doesn’t complain much and he seems to tolerate a lot of pain.
Marla phoned and asked if we wanted to come over for lunch. We went there around noon.
It really helped Alex to be there and play with Lanie. It made him take his mind off the pain.
We stayed until five o’clock. By the time we left I had almost lost my voice. It sure is hard to communicate without it!
We came home and had dinner around six o’clock. Alex went to bed at eight o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:30 a.m. ----- 7:30 p.m.
Prednisone 9:30 a.m. 2:45 p.m. 7:30 p.m.
Temperature 36.73c 2:45 p.m. 36.38C 7:30 p.m.
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