I woke up at nine o’clock. I still feel really tired. Alex didn’t wake me up, he was playing with Jay.
Blair said she wanted to go to Metrotown. Paul said he was going to stay home as he was tired of going to the mall. We left around eleven o’clock. I decided to take my own car as I thought Alex might get too tired. I didn’t want a screaming child in the mall!
Jay wanted to come with us. Blair and Holly went ahead and told us to meet them at the 6/49 counter.
We looked around at a few stores after we met them. Then we went for lunch. We shopped for awhile then Alex and I came home.
Alex was feeling pretty tired. He laid down on my bed.
At four o’clock we went to return the movie. I rented Dirty Dancing for tonight.
When we got back Blair, Holly and Jay had come back. They had bought quite a lot of stuff.
Everyone was happy I had rented Dirty Dancing. Blair and Paul said they had heard it was really good.
We went to Chuck E. Cheese for dinner. Jay was really pleased he had asked Paul to take him there. Paul wasn’t too pleased, he said do they take plastic. It seemed that he thought he was suppose to get free meals the whole time they’re here.
We had a good time at Chuck E. Cheese. The kids took Alex around so I had a chance to relax.
Blair talked quite a bit about Jays computer. About how Jay was paying for it and that he had bought a printer since they were down.
We got home around seven o’clock, I got Alex ready for bed. Paul informed me that Charlie wanted to watch the movie and he had to get up early you know! Like give me a break, I really don’t know what he thinks I am. He must think I’m a lousy wife, I’m going to worry about Charlie watching the movie when I’m the one who had to get Alex ready for bed every night.
Alex went to bed at eight o’clock then we watched the movie. It was really good, I really enjoyed it. Charlie fell asleep during the movie so I guess he didn’t enjoy it.
I went to bed around midnight.
No tests
Medicine
Bactrim 9:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Saturday, March 31, 2012
Friday, March 30, 2012
Diagnosis: Leukemia; March 29, 1988
I woke up at nine o’clock. Alex had gotten up earlier but he didn’t wake me up. Charlie’s on dayshift this week. Paul had told Alex to stay in his room and he did.
I was really tired, the party really tired me out. I did a lot of cleaning and preparation. I also wanted the house in good shape when all the company came this week.
Blair was meeting her old boss for lunch. Paul and the kids were going somewhere else. They all went out together.
Alex and I went out to look for a present for Alain. We came back in the afternoon to cook the roast.
Blair and them came back around four o’clock. We had dinner around six o’clock.
Charlie told them he was too tired to go to the hockey game. This really seemed to piss Paul off. They left for the game not long after dinner.
We went and rented a couple of movies. I got Alex ready for bed at eight thirty. We watched the movie.
Blair and them came back around ten thirty.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------- 8:30 p.m.
Temperature 36.88C 9:45 a.m. 35.70C 8:30 p.m.
I was really tired, the party really tired me out. I did a lot of cleaning and preparation. I also wanted the house in good shape when all the company came this week.
Blair was meeting her old boss for lunch. Paul and the kids were going somewhere else. They all went out together.
Alex and I went out to look for a present for Alain. We came back in the afternoon to cook the roast.
Blair and them came back around four o’clock. We had dinner around six o’clock.
Charlie told them he was too tired to go to the hockey game. This really seemed to piss Paul off. They left for the game not long after dinner.
We went and rented a couple of movies. I got Alex ready for bed at eight thirty. We watched the movie.
Blair and them came back around ten thirty.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------- 8:30 p.m.
Temperature 36.88C 9:45 a.m. 35.70C 8:30 p.m.
Thursday, March 29, 2012
Diagnosis: Leukemia; March 28, 1988
I woke up around eight o’clock. I made breakfast for Alex and myself. Alex watched TV while I got dressed.
I finished getting the spare room ready. Blair, Paul and the kids arrived before ten o’clock. I helped them bring some of their stuff into the house. Paul wanted me to make some coffee but when he hears that I wasn’t too sure how to make it, he decided to make it. As Paul was making it, he complained that while he was on holidays he had to work. He must of forgotten last summer when we came up. Paul asked me to do the cooking since Blair was working. If anyone needed a holiday or a break it sure was me!
All of them were hungry so Blair made them lunch.
We went to the mall around one o’clock. I was going to come home around two but Alex wanted to stay with his cousins.
We got home around four thirty. They expected me to cook dinner but I had planned to cook a roast and now it was too late.
We decided to order some food, Charlie and Paul went out. They got pizza for the kids and Chinese food for us.
Charlie said Paul paid for the food. Then Paul said, I paid for it as I expect you to make me dinner for the next while. I thought what is with him we never expected them to give us our meals when we go up. We usually buy the food for every other night.
After dinner we watched TV, Paul asked if we wanted to go to a hockey game. I told Charlie we probably shouldn’t go since he just started dayshift. I figured he would be too tired. He said he would be okay. The game is tomorrow night.
I got Alex ready for bed at eight o’clock. Then we all watched a movie on TV. I went to bed around midnight.
No tests
Medicine
Bactrim 9:55 a.m. ------- 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Methotrexiate ------ 5:55 p.m. -------
Temperature 35.82C 9:55 a.m. 36.67C 5:55 p.m.
I finished getting the spare room ready. Blair, Paul and the kids arrived before ten o’clock. I helped them bring some of their stuff into the house. Paul wanted me to make some coffee but when he hears that I wasn’t too sure how to make it, he decided to make it. As Paul was making it, he complained that while he was on holidays he had to work. He must of forgotten last summer when we came up. Paul asked me to do the cooking since Blair was working. If anyone needed a holiday or a break it sure was me!
All of them were hungry so Blair made them lunch.
We went to the mall around one o’clock. I was going to come home around two but Alex wanted to stay with his cousins.
We got home around four thirty. They expected me to cook dinner but I had planned to cook a roast and now it was too late.
We decided to order some food, Charlie and Paul went out. They got pizza for the kids and Chinese food for us.
Charlie said Paul paid for the food. Then Paul said, I paid for it as I expect you to make me dinner for the next while. I thought what is with him we never expected them to give us our meals when we go up. We usually buy the food for every other night.
After dinner we watched TV, Paul asked if we wanted to go to a hockey game. I told Charlie we probably shouldn’t go since he just started dayshift. I figured he would be too tired. He said he would be okay. The game is tomorrow night.
I got Alex ready for bed at eight o’clock. Then we all watched a movie on TV. I went to bed around midnight.
No tests
Medicine
Bactrim 9:55 a.m. ------- 6:30 p.m.
Mercaptopurine ------- ------ 6:30 p.m.
Methotrexiate ------ 5:55 p.m. -------
Temperature 35.82C 9:55 a.m. 36.67C 5:55 p.m.
Wednesday, March 28, 2012
Diagnosis: Leukemia; March 27, 1988
I woke up a couple of times in the night. I usually do that when I know I have to wake up at a certain time.
I got up at eight o’clock, had breakfast then I had a shower and got dressed.
I did some last minute tiding up, then I set up the table for the party. I started to blow up the balloons to put on the banister. Charlie and Alex finished while I went and rented a movie for the party and bought some film.
Blair, Paul and the kids came around noon. We left shortly afterwards for McDonald’s. We had to wait awhile for them to clean up but we were early.
Everyone seemed to enjoy themselves. Ryan brought Alain but he didn’t talk to us at all, I found that a bit weird. Marla told Ryan she would take Alain home.
The hostess asked if they could take some pictures of the party for a promo. They said they would give us a 5X7.
We all ordered our food and the kids played at the end of the caboose. After the kids had finished their lunch they went on a tour of the kitchen. The kids went to the playroom for about ten minutes then we came home.
We looked for Blair and Paul but they had disappeared. We decided to go on ahead, we told Holly and Jay to stay by the car. They came back not long after we got back.
Laura, Paul, Andrea and the kids didn’t come back to the house. They said they had to go somewhere else. That really annoyed me, they seem to do this every year. They always have to go somewhere afterwards.
The kids played for awhile. Blair said oh Nancy when she saw all Alex’s toys. I said I know I spoil him. Then I walked away, Marla seemed quite taken back by her comment.
Then I got the birthday cake ready. We sang Happy Birthday and Alex blew out his candles.
At McDonald’s Brent said he didn’t want any cake but when he saw that it was a Ghostbusters’s cake he wanted to eat the head.
After we had our cake Alex opened his presents. Alex got houses from Kurt (Allison); t-shirt and two cars from Kurt (Nora); track for the wooden train from Lanie; rocket hockey, three different types of art design, a bag and bubbles from Brent; yoyo and activity book from Carrie and Robert; Lego and a cassette from Alain; a big truck from Monique (Andrea); and a time jammer and Ducktales puzzle from Blair, Paul, Holly and Jay.
After Alex had opened all his presents Charlie brought up our present. We gave Alex a two wheeler with training wheels. Alex was really happy that he got his BMX bike. The other kids thought it was nice.
I had rented a movie but the kids were more interested in playing. The mothers enjoyed the movie more! I had rented Lady and the Tramp.
Most of them left around four o’clock.
We went out to dinner with Shirley and Monique. Brent had gone with Aaron to a Easter concert.
After dinner we went home, Shirley went home to put Monique to bed.
Alex went to bed before eight o’clock. I tided up the house, it took me a long time to clean up. I also had to take all the toys out of the spare room and get it ready for when Blair, Paul and the kids come tomorrow.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 7:15 p.m.
Temperature 35.60C 11:00 a.m. 36.73C 7:15 p.m.
I got up at eight o’clock, had breakfast then I had a shower and got dressed.
I did some last minute tiding up, then I set up the table for the party. I started to blow up the balloons to put on the banister. Charlie and Alex finished while I went and rented a movie for the party and bought some film.
Blair, Paul and the kids came around noon. We left shortly afterwards for McDonald’s. We had to wait awhile for them to clean up but we were early.
Everyone seemed to enjoy themselves. Ryan brought Alain but he didn’t talk to us at all, I found that a bit weird. Marla told Ryan she would take Alain home.
The hostess asked if they could take some pictures of the party for a promo. They said they would give us a 5X7.
We all ordered our food and the kids played at the end of the caboose. After the kids had finished their lunch they went on a tour of the kitchen. The kids went to the playroom for about ten minutes then we came home.
We looked for Blair and Paul but they had disappeared. We decided to go on ahead, we told Holly and Jay to stay by the car. They came back not long after we got back.
Laura, Paul, Andrea and the kids didn’t come back to the house. They said they had to go somewhere else. That really annoyed me, they seem to do this every year. They always have to go somewhere afterwards.
The kids played for awhile. Blair said oh Nancy when she saw all Alex’s toys. I said I know I spoil him. Then I walked away, Marla seemed quite taken back by her comment.
Then I got the birthday cake ready. We sang Happy Birthday and Alex blew out his candles.
At McDonald’s Brent said he didn’t want any cake but when he saw that it was a Ghostbusters’s cake he wanted to eat the head.
After we had our cake Alex opened his presents. Alex got houses from Kurt (Allison); t-shirt and two cars from Kurt (Nora); track for the wooden train from Lanie; rocket hockey, three different types of art design, a bag and bubbles from Brent; yoyo and activity book from Carrie and Robert; Lego and a cassette from Alain; a big truck from Monique (Andrea); and a time jammer and Ducktales puzzle from Blair, Paul, Holly and Jay.
After Alex had opened all his presents Charlie brought up our present. We gave Alex a two wheeler with training wheels. Alex was really happy that he got his BMX bike. The other kids thought it was nice.
I had rented a movie but the kids were more interested in playing. The mothers enjoyed the movie more! I had rented Lady and the Tramp.
Most of them left around four o’clock.
We went out to dinner with Shirley and Monique. Brent had gone with Aaron to a Easter concert.
After dinner we went home, Shirley went home to put Monique to bed.
Alex went to bed before eight o’clock. I tided up the house, it took me a long time to clean up. I also had to take all the toys out of the spare room and get it ready for when Blair, Paul and the kids come tomorrow.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ------ ------ 7:15 p.m.
Temperature 35.60C 11:00 a.m. 36.73C 7:15 p.m.
Tuesday, March 27, 2012
Diagnosis; Leukemia; March 26, 1988
I woke up at eight o’clock. Shirley had asked us to baby sit her kids. She said she would bring them over at nine o’clock and pick them up at twelve o’clock. I really had a lot planned to do today to get ready for Alex’s party tomorrow. I find it really hard to tell her I can’t.
Shirley phoned at nine to say she would be over in about an hour. I really don’t know what’s going on. Shirley came at ten o’clock and left. It gave me a chance to get to know Monique. Brent and Alex played in the spare room.
Shirley phoned at twelve thirty to say she was at a friends house and was staying for coffee then going to look for a present for Alex. She said she wanted to know if it was okay. Well she did say until noon and I had told Shirley I had a lot of cleaning in the afternoon. I told Shirley we had to go to Mom and Dad’s to pick up the mail. She said she would come soon then and not go to the store for the rest of Alex’s present.
I found it a bit weird that she would ask us to baby sit while she told me she was looking for a present for Alex. I would never ask her to baby sit Alex while I got Brent or Monique a present.
Shirley came before one o’clock and left right away. We left as well to pick up the mail from Mom and Dad’s. Then we went and picked up the cake and came home.
I started to vacuum the house, Charlie brought a take-out home. We had dinner, after dinner I washed the floors.
I got Alex ready for bed at eight o’clock but he didn’t fall asleep until ten o’clock.
Alex wanted to draw pictures for each child that was coming to his birthday party.
I did some more cleaning up, as I didn’t want to do much cleaning tomorrow.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ----- ------ 5:40 p.m.
Temperature 35.61C 9:20 a.m. ------- 36.26C 5:40 p.m.
Shirley phoned at nine to say she would be over in about an hour. I really don’t know what’s going on. Shirley came at ten o’clock and left. It gave me a chance to get to know Monique. Brent and Alex played in the spare room.
Shirley phoned at twelve thirty to say she was at a friends house and was staying for coffee then going to look for a present for Alex. She said she wanted to know if it was okay. Well she did say until noon and I had told Shirley I had a lot of cleaning in the afternoon. I told Shirley we had to go to Mom and Dad’s to pick up the mail. She said she would come soon then and not go to the store for the rest of Alex’s present.
I found it a bit weird that she would ask us to baby sit while she told me she was looking for a present for Alex. I would never ask her to baby sit Alex while I got Brent or Monique a present.
Shirley came before one o’clock and left right away. We left as well to pick up the mail from Mom and Dad’s. Then we went and picked up the cake and came home.
I started to vacuum the house, Charlie brought a take-out home. We had dinner, after dinner I washed the floors.
I got Alex ready for bed at eight o’clock but he didn’t fall asleep until ten o’clock.
Alex wanted to draw pictures for each child that was coming to his birthday party.
I did some more cleaning up, as I didn’t want to do much cleaning tomorrow.
I went to bed around midnight.
No tests
Medicine
Mercaptopurine ----- ------ 5:40 p.m.
Temperature 35.61C 9:20 a.m. ------- 36.26C 5:40 p.m.
Monday, March 26, 2012
Diagnosis: Leukemia; March 25, 1988
We woke up before nine o’clock. I gave Alex his breakfast then I got dressed. I cleaned both bathrooms. Then we got ready to go to Marla’s for lunch.
We didn’t get there until twelve thirty. Unfortunately we should have gotten there earlier but I didn’t finish cleaning until eleven thirty. I apologized to Marla but she said it was okay. We had lunch shortly afterwards.
Alex and Lanie played pretty good together. We always have a lot to talk about. I really enjoy getting together.
We left a five o’clock and went to McDonald’s for dinner. Then we went to the mall and came home around seven o’clock.
We watched TV and Alex went to bed at eight o’clock. I watched TV and wrote in the journal, I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 35.20C 9:00 a.m. 35.73C 7:30 p.m.
We didn’t get there until twelve thirty. Unfortunately we should have gotten there earlier but I didn’t finish cleaning until eleven thirty. I apologized to Marla but she said it was okay. We had lunch shortly afterwards.
Alex and Lanie played pretty good together. We always have a lot to talk about. I really enjoy getting together.
We left a five o’clock and went to McDonald’s for dinner. Then we went to the mall and came home around seven o’clock.
We watched TV and Alex went to bed at eight o’clock. I watched TV and wrote in the journal, I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 35.20C 9:00 a.m. 35.73C 7:30 p.m.
Sunday, March 25, 2012
Diagnosis: Leukemia; March 24, 1988
I woke up around nine o’clock. I was planning on doing some cleaning but I had to take Alex to the doctors at 11:20 a.m. it doesn’t give me much time to do the cleaning.
We had breakfast then we got ready to go. I gave Dr. W Alex’s blood count and told him how tired Alex had been yesterday. He said that since Alex had Methotrexiate on Monday that’s probably why he was so tired. I also told Dr. W about the pain in Alex’s arm. Dr. W said that because of the burn from chemotherapy Alex’s tissue was burnt and that could be causing some pain around his bone.
After the doctors, we went to have lunch then we took Alex to his class.
After the class we went to Toy City. Then we came home and played some games.
We had dinner at five o’clock. Shirley and Monique dropped by around six o’clock and stayed for an hour or so.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 6:00 p.m.
Temperature 35.64C 9:30 a.m. 36.47C 3:15 p.m. 36.45C 6:00 p.m.
We had breakfast then we got ready to go. I gave Dr. W Alex’s blood count and told him how tired Alex had been yesterday. He said that since Alex had Methotrexiate on Monday that’s probably why he was so tired. I also told Dr. W about the pain in Alex’s arm. Dr. W said that because of the burn from chemotherapy Alex’s tissue was burnt and that could be causing some pain around his bone.
After the doctors, we went to have lunch then we took Alex to his class.
After the class we went to Toy City. Then we came home and played some games.
We had dinner at five o’clock. Shirley and Monique dropped by around six o’clock and stayed for an hour or so.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 6:00 p.m.
Temperature 35.64C 9:30 a.m. 36.47C 3:15 p.m. 36.45C 6:00 p.m.
Saturday, March 24, 2012
Diagnosis: Leukemia; March 23, 1988
Alex woke me up before eight o’clock. I gave Alex his breakfast. Then I had a shower and got dressed. I went to Save-On -Foods to get some things for lunch.
Marla and the kids came over for lunch. The kids had a good time playing. Lanie asked Marla a few times if they had to go home yet. They left before four o’clock.
I started to cook dinner, we ate around five o’clock. After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------- 6:00 p.m.
Mercaptopurine ------ -------- 6:00 p.m.
Temperature 35.48C 8:00 a.m.
Marla and the kids came over for lunch. The kids had a good time playing. Lanie asked Marla a few times if they had to go home yet. They left before four o’clock.
I started to cook dinner, we ate around five o’clock. After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:00 a.m. ------- 6:00 p.m.
Mercaptopurine ------ -------- 6:00 p.m.
Temperature 35.48C 8:00 a.m.
Friday, March 23, 2012
Diagnosis: Leukemia; March 22, 1988
I woke up at eight o’clock. Alex got himself dressed and I gave Alex his breakfast. I had my breakfast then I got dressed. I dusted all the furniture.
Alex had gotten up at nine o’clock and he said he didn’t feel good. Alex didn’t eat much then he sat and watched TV. He asked for a blanket because he was cold. Alex fell asleep before ten thirty and he woke up at noon. He seemed so tired it worried me, I thought maybe his blood count was down.
Alex said he still wanted to go to gym class. We had lunch then we went to the class.
After the class we went to order his birthday cake then we went to $1.49 day. We came home around four o’clock. Alex seemed to be really tired, he almost fell asleep again. I asked if he was tired and he said he was.
When we got home I started to cook dinner. We ate around five o’clock. After dinner we went downstairs to exercise.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 5:00 p.m.
Temperature 36.24C 8:45 a.m. 36.61C 4:30 p.m. 36.29C 8:00 p.m.
Alex had gotten up at nine o’clock and he said he didn’t feel good. Alex didn’t eat much then he sat and watched TV. He asked for a blanket because he was cold. Alex fell asleep before ten thirty and he woke up at noon. He seemed so tired it worried me, I thought maybe his blood count was down.
Alex said he still wanted to go to gym class. We had lunch then we went to the class.
After the class we went to order his birthday cake then we went to $1.49 day. We came home around four o’clock. Alex seemed to be really tired, he almost fell asleep again. I asked if he was tired and he said he was.
When we got home I started to cook dinner. We ate around five o’clock. After dinner we went downstairs to exercise.
I got Alex ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 5:00 p.m.
Temperature 36.24C 8:45 a.m. 36.61C 4:30 p.m. 36.29C 8:00 p.m.
Thursday, March 22, 2012
Diagnosis: Leukemia; March 21, 1988
Alex woke me up at eight o’clock. Alex went to get dressed while I made him his breakfast. I had mine as well then I did the dishes. I also vacuumed the house, had a shower and got dressed.
We went to Allison’s for lunch. Alex and Kurt got along quite well. It was a really nice afternoon. We came home around four o’clock.
I started to cook dinner, we ate before five o’clock. I did the dishes while Alex watched Inspector Gadget.
At six o’clock we went downstairs to exercise. Then we wrapped some more prizes for Alex’s prize bucket.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. It’s nine thirty, I’ll probably go to bed at eleven o’clock.
No tests
Medicine
Bactrim 11:50 a.m. ------ 4:50 p.m.
Mercaptopurine ------ ------ 4:50 p.m.
Methotrexiate ------ 4:50 p.m. ------
Temperature 36.44C 11:50 a.m. 35.74C 4:50 p.m.
We went to Allison’s for lunch. Alex and Kurt got along quite well. It was a really nice afternoon. We came home around four o’clock.
I started to cook dinner, we ate before five o’clock. I did the dishes while Alex watched Inspector Gadget.
At six o’clock we went downstairs to exercise. Then we wrapped some more prizes for Alex’s prize bucket.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. It’s nine thirty, I’ll probably go to bed at eleven o’clock.
No tests
Medicine
Bactrim 11:50 a.m. ------ 4:50 p.m.
Mercaptopurine ------ ------ 4:50 p.m.
Methotrexiate ------ 4:50 p.m. ------
Temperature 36.44C 11:50 a.m. 35.74C 4:50 p.m.
Wednesday, March 21, 2012
Diagnosis: Leukemia; March 20, 1988
I woke up at nine o’clock. Alex was already dressed and Charlie had gotten him his breakfast. I had my breakfast then I did the dishes and took the garbage downstairs. I had shower and got dressed.
We went to pick up a parcel at the post office, then we went to the mall and McDonalds. Alex fell asleep while we were at the mall watching a fashion show.
We got home around four o’clock. I started to cook dinner. We ate before six o’clock.
After dinner Charlie went grocery shopping. When he came back Alex and I helped put away the groceries.
I cleaned all the glasses on the top of the kitchen cabinet. Then I gave Alex a bath and got him ready for bed. Alex was in bed by nine o’clock.
I watched TV and wrote in the journal. I went to bed before eleven o’clock.
No tests
Medicine
Mercaptopurine ----- ----- 6:30 p.m.
Temperature 36.03C 4:30 p.m. 36.29C 6:30 p.m.
We went to pick up a parcel at the post office, then we went to the mall and McDonalds. Alex fell asleep while we were at the mall watching a fashion show.
We got home around four o’clock. I started to cook dinner. We ate before six o’clock.
After dinner Charlie went grocery shopping. When he came back Alex and I helped put away the groceries.
I cleaned all the glasses on the top of the kitchen cabinet. Then I gave Alex a bath and got him ready for bed. Alex was in bed by nine o’clock.
I watched TV and wrote in the journal. I went to bed before eleven o’clock.
No tests
Medicine
Mercaptopurine ----- ----- 6:30 p.m.
Temperature 36.03C 4:30 p.m. 36.29C 6:30 p.m.
Tuesday, March 20, 2012
Diagnosis: Leukemia; March 19, 1988
I woke up at ten o’clock. Alex had gotten himself dress and Charlie had given him his breakfast. I had my breakfast, did the dishes and cleaned up the house.
In the afternoon we went to Granville Island market. Afterwards we went to Oakridge mall and to Hon Lok for dinner.
After dinner we came home. Alex and I played some games before he went to bed. Alex went to bed at eight o’clock.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- ------- 8:00 p.m.
Temperature 36.96C 8:00 p.m.
In the afternoon we went to Granville Island market. Afterwards we went to Oakridge mall and to Hon Lok for dinner.
After dinner we came home. Alex and I played some games before he went to bed. Alex went to bed at eight o’clock.
I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- ------- 8:00 p.m.
Temperature 36.96C 8:00 p.m.
Monday, March 19, 2012
Diagnosis: Leukemia; March 18, 1988
Alex woke me up at eight o’clock. He said he didn’t feel good and he wanted a fruit cup. Alex seemed to be feeling really mad this morning.
After breakfast Alex and I made necklaces for Lanie. Then I tided up the house, did the dishes, had a shower and got dressed.
Alex and I went to Marla’s for lunch. After we had been there a few minutes I realized I had forgotten to give Alex his medicine. I went back home to get his medicine.
We all had lunch when I got back. Alex didn’t want the same thing as Lanie. It makes a lot of work for Marla unfortunately. The kids played pretty good. Alex kept on wanting more to eat. We left at 4:45 p.m. I had to pay the Bay bill, so we went to Coquitlam Centre. Alex fell asleep on the way there. I carried him into the store and he woke up. We decided to eat in the mall. Then we walked around the mall.
We came home and watched TV. Alex went to bed at eight o’clock.
I went to bed a eleven thirty.
No tests
Medicine
Bactrim ------ 12:30 p.m. 7:20 p.m.
Mercaptopurine ------ ------ 7:20 p.m.
Temperature 36.38C 7:20 p.m.
After breakfast Alex and I made necklaces for Lanie. Then I tided up the house, did the dishes, had a shower and got dressed.
Alex and I went to Marla’s for lunch. After we had been there a few minutes I realized I had forgotten to give Alex his medicine. I went back home to get his medicine.
We all had lunch when I got back. Alex didn’t want the same thing as Lanie. It makes a lot of work for Marla unfortunately. The kids played pretty good. Alex kept on wanting more to eat. We left at 4:45 p.m. I had to pay the Bay bill, so we went to Coquitlam Centre. Alex fell asleep on the way there. I carried him into the store and he woke up. We decided to eat in the mall. Then we walked around the mall.
We came home and watched TV. Alex went to bed at eight o’clock.
I went to bed a eleven thirty.
No tests
Medicine
Bactrim ------ 12:30 p.m. 7:20 p.m.
Mercaptopurine ------ ------ 7:20 p.m.
Temperature 36.38C 7:20 p.m.
Sunday, March 18, 2012
Diagnosis: Leukemia; March 17, 1988
It’s St. Patrick’s Day!
Alex woke up at seven thirty. He didn’t want to get dressed. I got him dressed then I gave him his breakfast. Alex told me he didn’t want to go to mini-sport today. He said they do too much running around. Last week he said he wanted to re-enroll, I can’t figure out what happened!
I cleaned the bathrooms, then I had a shower and got dressed.
We had lunch, Charlie and Alex had gone to get lunch form Yens.
After lunch I took Alex to his class, he finally agreed to go. After the class we went to Toy City, then we came home.
We played some games, then I tided up the house.
Shirley and the kids came at five o’clock. Brent and Aaron left to go swimming at five thirty.
We left at six o’clock for McDonald’s, Aaron and Brent met us there after swimming.
As soon as we got our food Alex said he had to go to the bathroom. Luckily Shirley and Monique were there so we could leave our food there. This is the third time he’s done this while we have been out.
While we were having dinner Monique was terrible. She acted like a little brat and Shirley just ignored it. She asked me if I did the same. I told her I couldn’t, that it really bothers me. I don’t think it’s right for people to let their children to continue to cry.
Alex and I went to the playroom. Shirley and Monique joined us later, then Aaron and Brent came.
At eight o’clock Shirley, Brent, Alex and I came home. Aaron and Monique went home. They stayed until nine o’clock.
I got Alex ready for bed. I had trouble getting him to get into his pajama's.
I went to bed after Alex was asleep.
No tests
Medicine
Mercaptopurine ------- ------ 5:50 p.m.
Temperature 35.98C 7:45 a.m. 35.84C 5:50 p.m.
Alex woke up at seven thirty. He didn’t want to get dressed. I got him dressed then I gave him his breakfast. Alex told me he didn’t want to go to mini-sport today. He said they do too much running around. Last week he said he wanted to re-enroll, I can’t figure out what happened!
I cleaned the bathrooms, then I had a shower and got dressed.
We had lunch, Charlie and Alex had gone to get lunch form Yens.
After lunch I took Alex to his class, he finally agreed to go. After the class we went to Toy City, then we came home.
We played some games, then I tided up the house.
Shirley and the kids came at five o’clock. Brent and Aaron left to go swimming at five thirty.
We left at six o’clock for McDonald’s, Aaron and Brent met us there after swimming.
As soon as we got our food Alex said he had to go to the bathroom. Luckily Shirley and Monique were there so we could leave our food there. This is the third time he’s done this while we have been out.
While we were having dinner Monique was terrible. She acted like a little brat and Shirley just ignored it. She asked me if I did the same. I told her I couldn’t, that it really bothers me. I don’t think it’s right for people to let their children to continue to cry.
Alex and I went to the playroom. Shirley and Monique joined us later, then Aaron and Brent came.
At eight o’clock Shirley, Brent, Alex and I came home. Aaron and Monique went home. They stayed until nine o’clock.
I got Alex ready for bed. I had trouble getting him to get into his pajama's.
I went to bed after Alex was asleep.
No tests
Medicine
Mercaptopurine ------- ------ 5:50 p.m.
Temperature 35.98C 7:45 a.m. 35.84C 5:50 p.m.
Saturday, March 17, 2012
Diagnosis: Leukemia; March 16, 1988
Alex woke me up at eight o’clock. He sure sounded upset. Alex said he wanted fruit cup which every time he has one, he usually isn’t feeling well. Alex wouldn’t even get dressed himself, I got him dressed and gave him his breakfast. Alex asked me to feed him his breakfast! Then he sat on the sofa and watched TV, he asked me to get him a blanket.
I tided up the house and did the laundry.
Marla and the kids arrived for lunch just after twelve o’clock. After lunch the kids played, they played pretty well. They argued a few times but that’s pretty good.
They left at four thirty, we had dinner at five o’clock.
After dinner we watched TV. Alex went to bed at eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:30 a.m. ------ 5:20 p.m.
Mercaptopurine ------ ------- 5:20 p.m.
Temperature 35.29C 9:30 a.m. 36.48C 5:20 p.m.
I tided up the house and did the laundry.
Marla and the kids arrived for lunch just after twelve o’clock. After lunch the kids played, they played pretty well. They argued a few times but that’s pretty good.
They left at four thirty, we had dinner at five o’clock.
After dinner we watched TV. Alex went to bed at eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:30 a.m. ------ 5:20 p.m.
Mercaptopurine ------ ------- 5:20 p.m.
Temperature 35.29C 9:30 a.m. 36.48C 5:20 p.m.
Friday, March 16, 2012
Diagnosis: Leukemia; March 15, 1988
Alex woke me up at seven thirty. I gave him his clothes and he got dressed. The I made our breakfast.
Alex and I went to the mall. I bought a purse and a pair of shoes. We got home around eleven o’clock.
I made lunch, I couldn’t believe Alex he kept on spilling his milk and then he spilled his soup all over the table.
I took Alex to gym class then we went to Lions Park and Dairy Queen.
We got home around three o’clock. Alex wanted dinner so I heated up some leftovers for him. I ate around four thirty then we went downstairs to exercise.
Shirley and Monique dropped by for an hour while Brent and Aaron were at swimming. They left at seven o’clock. Alex and I played some games. He went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- -------- 7:20 p.m.
Temperature 36.29C ------- 36.52C 7:20 p.m.
Alex and I went to the mall. I bought a purse and a pair of shoes. We got home around eleven o’clock.
I made lunch, I couldn’t believe Alex he kept on spilling his milk and then he spilled his soup all over the table.
I took Alex to gym class then we went to Lions Park and Dairy Queen.
We got home around three o’clock. Alex wanted dinner so I heated up some leftovers for him. I ate around four thirty then we went downstairs to exercise.
Shirley and Monique dropped by for an hour while Brent and Aaron were at swimming. They left at seven o’clock. Alex and I played some games. He went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- -------- 7:20 p.m.
Temperature 36.29C ------- 36.52C 7:20 p.m.
Thursday, March 15, 2012
Diagnosis: Leukemia; March 14, 1988
I woke up at eight o’clock. I had invited Allison and the kids over. Charlie said the house had to be really neat. Charlie vacuumed the sofa and the entrance floor. Then he washed the floor. I vacuumed the rest of the house and finished tiding up the house. Then I had a shower and got dressed.
I phoned Allison at ten o’clock and she said they would be over soon. She has two children, Kurt who’s two years old and Pearl who is six months old. They live beside Nora.
They stayed about an hour or so, Pearl was complaining quite a bit.
The next door neighbour was outside with her dog. We talked to her for awhile. Then we came inside and had lunch. After lunch we all went for a walk.
Later we gave Kurt his invitation to Alex’s party.
I phoned Jeff and wished him a Happy Birthday.
We ate dinner after five o’clock. Then we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:15 a.m. ------ 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Methotrexiate ------ ------- 5:30 p.m.
Temperature 35.18C 10:15 a.m. 36.70C 5:30 p.m.
I phoned Allison at ten o’clock and she said they would be over soon. She has two children, Kurt who’s two years old and Pearl who is six months old. They live beside Nora.
They stayed about an hour or so, Pearl was complaining quite a bit.
The next door neighbour was outside with her dog. We talked to her for awhile. Then we came inside and had lunch. After lunch we all went for a walk.
Later we gave Kurt his invitation to Alex’s party.
I phoned Jeff and wished him a Happy Birthday.
We ate dinner after five o’clock. Then we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:15 a.m. ------ 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Methotrexiate ------ ------- 5:30 p.m.
Temperature 35.18C 10:15 a.m. 36.70C 5:30 p.m.
Wednesday, March 14, 2012
Diagnosis Leukemia; March 13, 1988
I woke up at ten o’clock, Charlie had come into the room and said I was a lazy bum. I just love waking up to something like that!
Alex was already up and dressed. Charlie had given him his breakfast. I had breakfast, a shower and got dressed.
I tided up the house and did the dishes.
Alex and I went to the mall after lunch. We also went to McDonald’s and got a pizza from Saucy’s. We got home before three o’clock.
Shirley and Brent dropped by around four thirty.
Mom and Dad phoned they both have the flu.
Shirley and Brent left before six o’clock.
We ate dinner after six o’clock. We watched TV and Alex went to bed at eight o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 36.68C 4:00 p.m.
Alex was already up and dressed. Charlie had given him his breakfast. I had breakfast, a shower and got dressed.
I tided up the house and did the dishes.
Alex and I went to the mall after lunch. We also went to McDonald’s and got a pizza from Saucy’s. We got home before three o’clock.
Shirley and Brent dropped by around four thirty.
Mom and Dad phoned they both have the flu.
Shirley and Brent left before six o’clock.
We ate dinner after six o’clock. We watched TV and Alex went to bed at eight o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 36.68C 4:00 p.m.
Tuesday, March 13, 2012
Diagnosis: Leukemia; March 12, 1988
I woke up at nine o’clock. Alex had gotten dressed and Charlie had given him his breakfast.
I had my breakfast and played with Alex, he’s really into building with Lego.
Charlie left for the union meeting.
When Charlie came back we went out to A & B Sound, Mom and Dad’s to get the mail, then we went out for dinner. We dropped by the Chew’s after dinner and gave them their invitations for Alex’s party.
Jolene said she had to fast tomorrow as she had to go for a test on Monday. I asked her what kind of test she had to have. Jolene said she had to have a colon test, there was blood in her stool. I sure hope there’s nothing seriously wrong with her. She hasn’t had a very good year.
We came home at eight o’clock. Alex had fallen asleep on the way home but he woke up when I put him into his room.
We watched TV and I got Alex ready for bed at nine o’clock.
Charlie fell asleep before nine o’clock on the sofa as usual. He then woke up at ten o’clock and went to bed.
I went to bed at eleven o’clock.
No tests
Medicine
Prednisone 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
I had my breakfast and played with Alex, he’s really into building with Lego.
Charlie left for the union meeting.
When Charlie came back we went out to A & B Sound, Mom and Dad’s to get the mail, then we went out for dinner. We dropped by the Chew’s after dinner and gave them their invitations for Alex’s party.
Jolene said she had to fast tomorrow as she had to go for a test on Monday. I asked her what kind of test she had to have. Jolene said she had to have a colon test, there was blood in her stool. I sure hope there’s nothing seriously wrong with her. She hasn’t had a very good year.
We came home at eight o’clock. Alex had fallen asleep on the way home but he woke up when I put him into his room.
We watched TV and I got Alex ready for bed at nine o’clock.
Charlie fell asleep before nine o’clock on the sofa as usual. He then woke up at ten o’clock and went to bed.
I went to bed at eleven o’clock.
No tests
Medicine
Prednisone 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Monday, March 12, 2012
Diagnosis: Leukemia; March 11, 1988
I woke up at eight o’clock. Alex got himself dressed and I gave him his breakfast. I had a shower and got dressed. Then I tided up the house and did the dishes.
We went to Marla’s around noon, she invited us for lunch. Lanie seemed to be feeling pretty tired, she cried quite a number of times. We left at four thirty, we stopped at the video store for a couple of movies.
We had dinner around seven o’clock. Alex went to bed a ten o’clock. Alex had fallen asleep after we had gotten home.
I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ----- 8:00 p.m.
Prednisone 8:15 a.m. 2:30 p.m. 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Temperature 35.58C 8:15 a.m. 34.19C 8:00 p.m.
We went to Marla’s around noon, she invited us for lunch. Lanie seemed to be feeling pretty tired, she cried quite a number of times. We left at four thirty, we stopped at the video store for a couple of movies.
We had dinner around seven o’clock. Alex went to bed a ten o’clock. Alex had fallen asleep after we had gotten home.
I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ----- 8:00 p.m.
Prednisone 8:15 a.m. 2:30 p.m. 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Temperature 35.58C 8:15 a.m. 34.19C 8:00 p.m.
Sunday, March 11, 2012
Diagnosis: Leukemia; March 10, 1988
Alex woke up at six thirty. He got dressed by himself then he asked me to get him his breakfast. I then had my breakfast, got dressed and started to clean the furniture. After I finished I had a shower and got dressed.
After lunch we went to mini-sport. After the class Alex said he wanted to go out for dinner. We went to the mall since it was too early to have dinner. Alex did a lot of complaining while we were at the mall. We ate at McDonald’s at four thirty. Then we came home and watched TV.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:35 p.m.
Prednisone 7:00 a.m. 12:45 p.m. 6:35 p.m.
Temperature 35.33C 7:00 a.m. 36.29C
After lunch we went to mini-sport. After the class Alex said he wanted to go out for dinner. We went to the mall since it was too early to have dinner. Alex did a lot of complaining while we were at the mall. We ate at McDonald’s at four thirty. Then we came home and watched TV.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:35 p.m.
Prednisone 7:00 a.m. 12:45 p.m. 6:35 p.m.
Temperature 35.33C 7:00 a.m. 36.29C
Saturday, March 10, 2012
Diagnosis: Leukemia; March 9, 1988
Alex woke me up at eight o’clock. He wanted to show me how he got dressed. Then Alex asked me to get him his breakfast.
We were suppose to go to Marla’s but she said that Lanie has the flu. She said if Lanie was okay we would get together on Friday.
We dropped by Allison’s to give them an invitation to Alex’s party. Alex and Kurt played really well considering there almost two years apart.
We came home and had lunch. In the afternoon we played games.
We ate dinner after five o’clock. We watched TV after dinner, Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:25 p.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Prednisone 9:25 a.m. 4:25 p.m. 9:25 p.m.
Temperature 36.83C 9:25 a.m. ------ 35.14C 9:25 p.m.
We were suppose to go to Marla’s but she said that Lanie has the flu. She said if Lanie was okay we would get together on Friday.
We dropped by Allison’s to give them an invitation to Alex’s party. Alex and Kurt played really well considering there almost two years apart.
We came home and had lunch. In the afternoon we played games.
We ate dinner after five o’clock. We watched TV after dinner, Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:25 p.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Prednisone 9:25 a.m. 4:25 p.m. 9:25 p.m.
Temperature 36.83C 9:25 a.m. ------ 35.14C 9:25 p.m.
Friday, March 9, 2012
Diagnosis: Leukemia; March 8, 1988
I woke up at nine o’clock. Alex got dressed by himself. I made Alex breakfast and had breakfast myself. Then I got dressed, vacuumed the house, cleaned the bathrooms and washed the floors.
We had lunch then we went to gym. After gym class we came home and played some games.
We had dinner after five o’clock. After dinner we watched TV.
Alex went to bed at eight o’clock. I watched TV and went to bed a eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 8:00 p.m.
Prednisone 10:25 p.m. 3:00 p.m. 8:00 p.m.
Temperature 36.75 10:25 p.m. 36.14C 3:00 p.m. 36.37C 8:00 p.m.
We had lunch then we went to gym. After gym class we came home and played some games.
We had dinner after five o’clock. After dinner we watched TV.
Alex went to bed at eight o’clock. I watched TV and went to bed a eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 8:00 p.m.
Prednisone 10:25 p.m. 3:00 p.m. 8:00 p.m.
Temperature 36.75 10:25 p.m. 36.14C 3:00 p.m. 36.37C 8:00 p.m.
Thursday, March 8, 2012
Diagnosis: Leukemia; March 7, 1988
I woke up at nine o’clock, I had breakfast, had a shower and got dressed. Alex had gotten himself dressed, and Charlie had given him his breakfast.
We left after ten o’clock for the fit-time class. I sat in the car and read while Alex was in his class. I came down with another cold on Saturday, so I’m not feeling that great.
We came home and had lunch. Then we got ready to go to the hospital. Alex wanted to have Kurt over but we couldn’t. He was pretty mad about that.
We left for the hospital and got there after one o’clock. There were quite a few people there, but it wasn’t too busy.
Alex didn’t know he was having chemo, he though he was just going for a blood test. I told him, he would have to have chemo and explained what the nurse would do, that it was important he keep his arm really still and not move it. Alex said he couldn’t keep from moving his arm. I told him I had a special prize for him at home if he could be good and keep his arm still. Alex said he would try and do it. He was excited that he was getting a prize.
Dr. S asked us to come into the room. She said Alex’s blood count was up and that the 6MP (Mercaptopurine) would go back to the original dosage of 1 pill and ¾ pill alternating. She also said to increase Methotrexiate to four pills. Dr. S said Alex would be having chemo.
Alex and I went to the pharmacy then we came back to the clinic. On the way back we got some Jell-O.
Martina did the chemo, Heather helped to hold Alex’s arm. Martina said Alex has a fat vein but she was having trouble getting it. Alex cried a little bit but he didn’t move his arm. It was done very quickly and then we went home.
Alex fell asleep on the way home, but when I picked him up and put him on his bed he woke up.
I gave Alex his prize, a Lego set. We played with it most of the afternoon.
I started to cook dinner at four o’clock, we ate at five o’clock.
After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
Tests N/A
Medicine
Bactrim ------ 12:00 p.m. 5:15 p.m.
Mercaptopurine ------ ------ 5:15 p.m.
Methotrexiate ------ ------ 5:15 p.m.
Prednisone ------ ------- 5:15 p.m.
Temperature 35.05C 12:00 p.m. 35.84C 5:15 p.m.
We left after ten o’clock for the fit-time class. I sat in the car and read while Alex was in his class. I came down with another cold on Saturday, so I’m not feeling that great.
We came home and had lunch. Then we got ready to go to the hospital. Alex wanted to have Kurt over but we couldn’t. He was pretty mad about that.
We left for the hospital and got there after one o’clock. There were quite a few people there, but it wasn’t too busy.
Alex didn’t know he was having chemo, he though he was just going for a blood test. I told him, he would have to have chemo and explained what the nurse would do, that it was important he keep his arm really still and not move it. Alex said he couldn’t keep from moving his arm. I told him I had a special prize for him at home if he could be good and keep his arm still. Alex said he would try and do it. He was excited that he was getting a prize.
Dr. S asked us to come into the room. She said Alex’s blood count was up and that the 6MP (Mercaptopurine) would go back to the original dosage of 1 pill and ¾ pill alternating. She also said to increase Methotrexiate to four pills. Dr. S said Alex would be having chemo.
Alex and I went to the pharmacy then we came back to the clinic. On the way back we got some Jell-O.
Martina did the chemo, Heather helped to hold Alex’s arm. Martina said Alex has a fat vein but she was having trouble getting it. Alex cried a little bit but he didn’t move his arm. It was done very quickly and then we went home.
Alex fell asleep on the way home, but when I picked him up and put him on his bed he woke up.
I gave Alex his prize, a Lego set. We played with it most of the afternoon.
I started to cook dinner at four o’clock, we ate at five o’clock.
After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
Tests N/A
Medicine
Bactrim ------ 12:00 p.m. 5:15 p.m.
Mercaptopurine ------ ------ 5:15 p.m.
Methotrexiate ------ ------ 5:15 p.m.
Prednisone ------ ------- 5:15 p.m.
Temperature 35.05C 12:00 p.m. 35.84C 5:15 p.m.
Wednesday, March 7, 2012
Diagnosis: Leukemia; March 6, 1988
I woke up at nine o’clock. I heard Alex say to Charlie, look Pa I got myself dressed. I couldn’t believe he had actually got dressed by himself. This is the first time Alex had gotten dressed by himself.
Charlie went grocery shopping at eleven o’clock. When Charlie came back I went to the mall to look for some suspenders for the jeans Mom sent Alex. I came home at four o’clock.
I started to cook dinner when I got home. We ate at six o’clock. After dinner I played some games with Alex.
Alex went to bed at eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 35.79C 1:15 p.m. 35.95C 6:00 p.m.
Charlie went grocery shopping at eleven o’clock. When Charlie came back I went to the mall to look for some suspenders for the jeans Mom sent Alex. I came home at four o’clock.
I started to cook dinner when I got home. We ate at six o’clock. After dinner I played some games with Alex.
Alex went to bed at eight o’clock.
I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 35.79C 1:15 p.m. 35.95C 6:00 p.m.
Tuesday, March 6, 2012
Diagnosis: Leukemia; March 5, 1988
I woke up at seven thirty. Alex wanted his breakfast and to get dressed. I gave him his breakfast then I had mine. I had a shower and got dressed.
In the afternoon we went out to the mall. We had dinner at a Won Ton House, then we went to the Shrine Circus.
Alex wasn’t very interested in the circus, he wanted to see the motorcycling stunt right away. He wasn’t interested in anything else until he saw what he wanted. Unfortunately the motorcycling stunt was the very last.
The show ended before eleven o’clock, we came home. Alex fell asleep on the way home. I put him into his bed but he woke up. He was really cranky and started to kick me. Alex didn’t go back to sleep right away. He had something to eat then he went back to bed. I went to bed as well.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 36.06C 8:00 a.m.
In the afternoon we went out to the mall. We had dinner at a Won Ton House, then we went to the Shrine Circus.
Alex wasn’t very interested in the circus, he wanted to see the motorcycling stunt right away. He wasn’t interested in anything else until he saw what he wanted. Unfortunately the motorcycling stunt was the very last.
The show ended before eleven o’clock, we came home. Alex fell asleep on the way home. I put him into his bed but he woke up. He was really cranky and started to kick me. Alex didn’t go back to sleep right away. He had something to eat then he went back to bed. I went to bed as well.
No tests
Medicine
Mercaptopurine ------ ------ 6:00 p.m.
Temperature 36.06C 8:00 a.m.
Monday, March 5, 2012
Diagnosis: Leukemia; March 4, 1988
We woke up at eight thirty. I got Alex dressed gave him his breakfast then I had breakfast myself.
Marla dropped Lanie off, she and Paxton went to their class.
Alex and Lanie played with the lite brite. Then Marla and Paxton came back and we had lunch. After lunch the kids played they didn’t fight too much which was good. They left before four o’clock. We took the cupcakes to the gym then we went to McDonald’s for dinner. We went to the mall afterwards and came home.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 p.m. ----- 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 35.56C 9:00 p.m. 36.26C 7:30 p.m.
Marla dropped Lanie off, she and Paxton went to their class.
Alex and Lanie played with the lite brite. Then Marla and Paxton came back and we had lunch. After lunch the kids played they didn’t fight too much which was good. They left before four o’clock. We took the cupcakes to the gym then we went to McDonald’s for dinner. We went to the mall afterwards and came home.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:00 p.m. ----- 7:30 p.m.
Mercaptopurine ------ ------ 7:30 p.m.
Temperature 35.56C 9:00 p.m. 36.26C 7:30 p.m.
Sunday, March 4, 2012
Diagnosis: Leukemia; March 3, 1988
We woke up at eight o’clock. I got Alex his breakfast and then got him dressed. I had a shower and got dressed .
After lunch we went to Mini-Sport. We came home after the class. We played some games. These days Alex wants me to play all sorts of games with him. Most of the games he makes up himself. The latest one is where I act as a bad boy and try to runaway from him. Alex is the Papa and he tells me how bad I’ve been. We have a lot of fun doing our little act.
We had dinner after five o’clock. We went downstairs to exercise after dinner.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
No Medicine
Temperature 26.22C 8:30 a.m.
After lunch we went to Mini-Sport. We came home after the class. We played some games. These days Alex wants me to play all sorts of games with him. Most of the games he makes up himself. The latest one is where I act as a bad boy and try to runaway from him. Alex is the Papa and he tells me how bad I’ve been. We have a lot of fun doing our little act.
We had dinner after five o’clock. We went downstairs to exercise after dinner.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
No Medicine
Temperature 26.22C 8:30 a.m.
Saturday, March 3, 2012
Diagnosis: Leukemia; March 2, 1988
We woke up at eight o’clock. I made Alex his breakfast. Then I had a shower and got dressed.
We went to see Dr. W, I gave the doctor a list of Alex’s blood counts for the month. He checked Alex and said he seems to be doing pretty good. Dr. W said he was glad Alex’s ANC level had come up. He says it’s a worry when the blood count changes a lot.
We came home and had lunch.
Nora had phoned when we were out. When I phoned he she said should couldn’t have Alex over like she planned, she had to help Lorrie draft up a letter. They want to set up a neighbourhood watch. There’s been a few break-ins in the neighbourhood.
I played with Alex In the afternoon.
We had dinner at five o’clock then we went downstairs and exercised.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:30 a.m. ------ 5:10 p.m.
Mercaptopurine ------ ------ 5:10 p.m.
Temperature 26.26C 8:30 a.m.
We went to see Dr. W, I gave the doctor a list of Alex’s blood counts for the month. He checked Alex and said he seems to be doing pretty good. Dr. W said he was glad Alex’s ANC level had come up. He says it’s a worry when the blood count changes a lot.
We came home and had lunch.
Nora had phoned when we were out. When I phoned he she said should couldn’t have Alex over like she planned, she had to help Lorrie draft up a letter. They want to set up a neighbourhood watch. There’s been a few break-ins in the neighbourhood.
I played with Alex In the afternoon.
We had dinner at five o’clock then we went downstairs and exercised.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:30 a.m. ------ 5:10 p.m.
Mercaptopurine ------ ------ 5:10 p.m.
Temperature 26.26C 8:30 a.m.
Thursday, March 1, 2012
Diagnosis: Leukemia; March 1, 1988
We woke up at eight o’clock. Alex had an upset stomach before he had breakfast. I had breakfast, a shower and got dressed. Alex had breakfast at nine then I got him dressed.
We went to Playtime we brought the muffins this time. Alex seems to enjoy himself a lot more now, the other kids don’t pick on him anymore. Toni was pretty bad she kept on hitting Ben over the head. We came home around eleven thirty.
We had lunch then we went to gym. The gym had phoned last night and asked me to make a dozen iced cupcakes and to bring them on Friday. I asked Alex’s teacher and she said there wouldn’t be anyone there until three thirty. May (Alex’s teacher) gave me Lorrie’s number and she should be able to tell me when to come.
We came home after gym class. Alex and I played games when we got home.
We had dinner after five o’clock. After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 5:30 p.m.
Temperature 36.85C 8:30 p.m.
We went to Playtime we brought the muffins this time. Alex seems to enjoy himself a lot more now, the other kids don’t pick on him anymore. Toni was pretty bad she kept on hitting Ben over the head. We came home around eleven thirty.
We had lunch then we went to gym. The gym had phoned last night and asked me to make a dozen iced cupcakes and to bring them on Friday. I asked Alex’s teacher and she said there wouldn’t be anyone there until three thirty. May (Alex’s teacher) gave me Lorrie’s number and she should be able to tell me when to come.
We came home after gym class. Alex and I played games when we got home.
We had dinner after five o’clock. After dinner we went downstairs to exercise.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 5:30 p.m.
Temperature 36.85C 8:30 p.m.
Diagnosis: Leukemia; February 29, 1988
I woke up at eight thirty. I got Alex his breakfast then I gave him a shower. Then I had a shower and got dressed.
We took Alex to the clinic for a blood test. It was so busy, there wasn’t anywhere to sit down. We went and sat out in the hall. Alex had his Jell-O then we went back inside. We had gotten there before eleven o’clock and Alex didn’t have his blood test until after twelve o’clock. Then we had to wait for Dr. S to talk to us. She said Alex’s blood count had come up but it wasn’t enough to put him back fully on his medicine. She said change his Methotrexiate to Monday. I told her it was already on Monday, she said that was okay keep it on Monday. We left the clinic. In the area by the elevators they were selling cookies. We bought some from the clinic section.
The we went to McDonald’s for lunch. We got home before two o’clock.
Alex and I played cars, games and wrestling.
I was feeling pretty down, it really worries me when Alex’s blood count is not high enough.
Marla phoned after five o’clock, she wondered how Alex was doing. Then she told me that Paxton does have Arthritis but it’s a lesser strain that they first thought. She said she was quite relieved that it wasn’t so bad. There’s nothing the doctors can do, they’ll give Paxton pain killers when it gets really painful.
We had dinner before six o’clock. Then we went downstairs and exercised.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
Tests
WBC 2.1
HGB 14.1
Platelets 321
ANC 1155
Medicine
Bactrim 8:45 a.m. ------ 5:50 p.m.
Mercaptopurine ------ ------ 5:50 p.m.
Methotrexiate ------ 5:50 p.m. -------
Temperature 36.09C 8:45 a.m.
We took Alex to the clinic for a blood test. It was so busy, there wasn’t anywhere to sit down. We went and sat out in the hall. Alex had his Jell-O then we went back inside. We had gotten there before eleven o’clock and Alex didn’t have his blood test until after twelve o’clock. Then we had to wait for Dr. S to talk to us. She said Alex’s blood count had come up but it wasn’t enough to put him back fully on his medicine. She said change his Methotrexiate to Monday. I told her it was already on Monday, she said that was okay keep it on Monday. We left the clinic. In the area by the elevators they were selling cookies. We bought some from the clinic section.
The we went to McDonald’s for lunch. We got home before two o’clock.
Alex and I played cars, games and wrestling.
I was feeling pretty down, it really worries me when Alex’s blood count is not high enough.
Marla phoned after five o’clock, she wondered how Alex was doing. Then she told me that Paxton does have Arthritis but it’s a lesser strain that they first thought. She said she was quite relieved that it wasn’t so bad. There’s nothing the doctors can do, they’ll give Paxton pain killers when it gets really painful.
We had dinner before six o’clock. Then we went downstairs and exercised.
Alex went to bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
Tests
WBC 2.1
HGB 14.1
Platelets 321
ANC 1155
Medicine
Bactrim 8:45 a.m. ------ 5:50 p.m.
Mercaptopurine ------ ------ 5:50 p.m.
Methotrexiate ------ 5:50 p.m. -------
Temperature 36.09C 8:45 a.m.
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