I woke up at eight thirty. I made Alex and myself breakfast then I got dressed. I cleaned the bathrooms and cleaned all the floors. I had a shower and got dressed by this time it was lunch time.
After lunch I tided up the house. Alex has taken to bringing a lot of his toys into the living room while he watches TV and making a big mess.
Evelyn from Children’s Hospital phoned to tell me that she would have to cancel our appointment for tomorrow as Dr. S was sick with the flu. Evelyn asked us to come in next Tuesday afternoon. I asked if Dr. S would like Alex to see another doctor and Evelyn said no that they were too booked up this week. I said well Alex has to have a LP, how can it be done in the afternoon? Evelyn said that they were sharing the facilities with another clinic so they had been doing them in the afternoon. I said okay then we’ll see you next Tuesday.
Alex went to Kurt’s house at four o’clock. Kurt had phoned and asked Alex if he could come over to play. Kurt said he couldn’t come over to Alex’s house to play. That was good since when Kurt asked Alex if he could play Alex said can you come over to my house. I said to Alex don’t say that maybe Kurt wants you to come over to his house. Then Kurt said I can’t come over but you can come over here. I thought maybe Daniel was looking after Kurt but it was Nora who said that. When I took Alex over Nora waited until the boys were upstairs to tell me that she had told Kurt that he couldn’t go over to Alex’s house that she thought it would help Alex.
I phoned Shirley when I got home, she asked us to come over after dinner. She said she would be over at the house looking after the kids. A very different set-up but it seems to be okay.
I went to get Alex at five o’clock. Nora said that Alex could stay longer but I told her that we had to go out.
Alex had said earlier that he wanted to go to McDonald’s. He seemed so upset that I figured we might as well. Afterwards we went to the library to photo copy Alex’s schedule for the upcoming months. We had to go to two libraries since at the first one the photo copier was out of order. Then we went to Shirley’s, Aaron answered the door. He seemed so surprised to see us that I said I guess Shirley didn’t tell you we were coming. He said no I knew you were coming.
The were just finishing dinner, then Aaron left to go to bible study. Brent and Alex played in Brent’s room for awhile. They went down to the basement and jumped on an old mattress down there. Then Alex asked if they could watch his tape that he had brought. After watching the tape they played upstairs for awhile.
Monique sure was cute, she asked me if she could sit with me and have a cuddle. Shirley put her to bed around eight o’clock. We left around nine o’clock.
I got Alex ready for bed when we got home and also gave him his medicine. I gave him his Methotrexiate since we aren’t’ going to the hospital this week.
I watched TV and went to bed at eleven thirty, just as I’m getting into bed I heard Alex crying. I went into his room and he said that his legs hurt. I gave him Tempra for the pain but Alex still complained. I took him into our bed then I got an ice cube and put it where he said it hurt. We finally got to sleep around midnight. The only way Alex would go to sleep was for me to hold him.
No Tests
Medication
Mercaptopurine 9:00 a.m. ----- -----
Methotrexiate ------ ----- 10:00 p.m.
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