I woke up to the alarm ringing at nine o’clock. I had asked Charlie to set the alarm because we have to go to the hospital today.
I had a shower, got dressed and woke Alex up. I got Alex and my breakfast, I got Alex to have a shower. After Alex had his shower I dried him and helped him get dressed.
We left after ten o’clock. We had to wait once we got to the hospital. It was about half an hour before Alex had his blood taken. I told Mary that Alex was glad he wasn’t having his blood taken from his arm. He said that it hurts and he usually cries when he has it. Mary said if it’s done right it shouldn’t hurt at all. She said we’ll have to do something about that. She also said that when their finger is used too much it become hard and they can’t use it anymore. Luckily Alex didn’t hear that.
We waited to see Dr. S. Then we talked to Laurel, before we were finished Alex had his blood test. Lorraine talked to us but she got interrupted and then finally Laurel came back to talk to us.
They didn’t have it in Alex’s chart that he had been into the hospital last week. So I explained to Laurel exactly what his problem had been. She was very nice about it all. She seemed to be one of the nicest people we have met during our time at the clinic. Not saying that the other nurses and doctors haven’t been helpful. I’m very thankful that they’ve been able to help Alex, but they don’t seem to want to listen to our problems they’re in a hurry all the time.
I told Laurel that Alex had pain in his foot on Tuesday night. I had phoned 3B and the nurse said she couldn’t help me that there wasn’t a doctor on the floor. That the nurse then transferred me to Emergency where I talked to a doctor but the doctor told me she would have to see Alex first. I told her we decided we would wait first before giving Alex Tempra. I wasn’t sure if Tempra and the antibiotic were okay together, that’s all I wanted to know. Laurel was quite upset that the nurse on 3B couldn’t help me. She said in future we would be able to give Alex Tempra with his antibiotic
I also asked Laurel what risk level Alex was, that in the hospital they had asked me and I didn’t know. Laurel came back later and said that Alex was a moderate risk.
We finally saw Dr. S, I told her Alex had been in the hospital last week. She said she knew, she said that Dr. P had told her. She then asked me what ward Alex had been in. I told her 3B. Dr. S said she didn’t know what they had done with the information but it wasn’t with Alex’s chart. I then had to supply her with all the information, starting with the day it started. I explained that Alex had a temperature on November 8th and that I had phoned 3H and they told me to give Alex Tylenol and if his temperature didn’t go down to bring him into Emergency. If it did go down in two hours to take him to his family doctor the next day. I told her Alex’s temperature did go down and we went to see our family doctor. Dr. S then asked when we saw our doctor. I told her we saw Dr. C on Wednesday the 9th at three o’clock. Dr. C heard rattling in Alex’s chest. She ordered a X-Ray, blood and urine tests. Dr. C then consulted with Dr. R because she wanted an Oncologist’s opinion. I then told Dr. S that Dr. R advised her to send Alex to Children’s Hospital to be admitted to the hospital. Dr. S seemed surprised, she said without anyone seeing him? I said yes then I went on to say that we went to Emergency at seven o’clock that evening where we saw an Emergency doctor. We then went to 3H at ten o’clock. I told her Alex had been put on an I.V. with antibiotics. She asked me when he came off them. I told her Alex came off them on Saturday afternoon. She said so that was four days ago? I said yes. I showed her what Alex was taking now. Dr. S checked Alex’s chest and said it was clear now. I told the doctor that Alex had a pain in his foot. She also checked that and said it was okay.
I told her that on the ward they thought Alex shouldn’t have had some or all of his Chemotherapy on the 2nd. Dr. S didn’t like that at all, she seemed to take offence. She said we don’t know when a child’s counts will go down and we can’t stop Chemotherapy every time it is low. I told her I wanted to avoid this in the future. I feel that Alex had his cough too long and I had told the clinic about Alex’s cough and it was just left. Dr. S went into a great explanation that a cough treated with cough medicine did little use or sometimes made it worse. She said you can’t treat a cough with antibiotics every time. It could be an irritation to something in the air, it’s very hard to know. I said I realize cough medicine doesn’t help much but two months with a cough is not good and I’m just not happy to see Alex having it that long.
Dr. S gave us our next appointment. She decided we should come again on Monday. Alex’s counts weren’t high enough yet.
I told Alex it was time for us to go Alex said go where? I told him home. Alex said but I want to play. I said well I’m going home.
We stopped at McDonalds drive-thru and took our lunch home. After lunch Alex asked me to play with him. I played for a little while then I typed in the journal while Alex watched TV.
Charlie came home at four o’clock. We had dinner at five thirty, after dinner I went out to the mall. I did some Christmas shopping and got Alex a few more things. So far there are two items that nobody has. I sure hope I can find them, I like to get Alex everything he wants.
I came home just after seven o’clock. I got Alex ready for bed after he had his snack.
I watched TV and went to bed at midnight after I had given Alex his medicine.
Tests
WBC 2.5
HGB 12.4
Platelets 375
ANC 780
Medication
Erythromycin 5:35 a.m. 11:40 a.m. 5:30 p.m. 11:30 a.m.
Temperature 36.04C 9:30a.m. 36.38C 2:30 p.m.
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