December 31, 1989
Samantha woke up at four o’clock for her feeding. Charlie got up as well, he said he couldn’t sleep. Samantha and I went to sleep after her feeding.
Samantha woke up again at eight o’clock. After he feeding I had a shower and got dressed. Then I slept until her next feeding which was at eleven o’clock.
After I had fed Samantha we went out looking for a house. We looked in Port Coquitlam but I wasn’t too impressed with the houses. Actually the houses aren’t too bad, it’s just the way the area is kept. Then in Coquitlam it’s too expensive, most houses are over $230,0000. It sure is getting depressing I want so much to have our own place.
We stopped at Video stop to rent a movie and of course Alex wanted to rent a game. Alex rented Bugs Bunny game. It was pretty good more for a younger child. Alex got up to level 17 the first time he played.
I fed Samantha when we got home and Charlie put on the roast. When I had put Samantha back to her crib, I put the potatoes around the roast. We ate dinner at five thirty.
I went for a nap at seven o’clock and woke up at nine thirty when Samantha woke up as well.
We watched the video and waited for the New Year to come in. It’s now 12:05 a.m. I’ll be going to bed soon.
No Tests
Medication
Cough syrup 11:30 a.m. 5:40 p.m. 12:10
Mercaptopurine -------- ------- 11:20 p.m.
January 1, 1990
HAPPY NEW YEAR! It’s hard to believe the 80’s are gone already.
Samantha woke up at three o’clock but she didn’t seem hungry to me so I gave her a smoother. She went back to sleep and woke up again at six o’clock.
Samantha woke up again at ten o’clock. After I had put her back to her crib I had a shower and got dressed. I’m feeling a bit better today. On December 29th my vision became blurred for about ten minutes. It cleared and left me with a headache. Then on December 30th and 31st I was so tired I had to have a nap or two. This morning I felt rather dizzy but not so tired.
I gave Samantha a bath at her next feeding. After her feeding we went to Maple Ridge to look at houses. The first complex we went to the houses were quite nice but the new houses are $194,000. The second complex I didn’t care for too much. It seemed too congested to me.
We got home at four o’clock. I fed Samantha shortly after we got home.
We ate dinner at five thirty. After dinner I put away the laundry and put a load on to wash.
We all played a Turtle game, as usual Alex yelled at us for not jumping or doing something at the right time.
Alex went to bed at eight o’clock. I wrote in the journal. It’s now nine o’clock. I’ll be going to bed soon.
No Tests
Medication
Cough syrup ------- ------ 8:00 p.m.
Bactrim 11:00 a.m. ------- 7:20 p.m.
Mercaptopurine ------- ----- 7:20 p.m.
Methotrexiate ------- ------ 7:20 p.m.
January 2, 1990
Samantha ate at six, nine thirty, twelve, two, four and eight forty five.
No Tests
Medication
Cough syrup 9:00 a.m. ------ -----
Mercaptopurine ------ ----- 8:00 p.m.
January 3, 1990
Samantha ate at six forty five, ten forty five, two thirty, five thirty and ten o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
January 4, 1990
Samantha woke up at six thirty, eleven, two, six and eight thirty.
We went to see a house on Cove Place yesterday. It’s $217,0000 quite a nice house with a big lot. Just what we’re looking for. We made an offer and Lex presented the offer. He came back last night with a counter offer, they won’t go any lower than $217,000. I phoned Mom and Dad to tell them that the deal had fallen. They offered to give us the $7,000 as part of my inheritance. I thanked them very much and told them how much we appreciated it.
I left Charlie a message that night as to what had happened. The next morning we made a counter offer. Charlie thought it over very carefully and talked to Dad. He asked Dad for his help in case he needed a financial assistance. Dad said he would.
By that time Lex told us the counter offer had been accepted. He said we would have to act fast as the possession date is January 11th. We’ll have a lot to do the next couple of days.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
January 5, 1990
Samantha woke up at five o’clock. She sure isn’t feeling good. She has a cold as well as a cough. Samantha was quite bad last night. She had a temperature of 38.3C, so I gave her Tempra. Unfortunately I can’t give her cold medicine like I give Alex.
We both went back to sleep after her feeding. Samantha woke up for her next feeding at ten o’clock. Her temperature was 37.3C, I gave Sam another dose of Tempra. When I finished feeding her I made an appointment with the doctor. The receptionist said to come between two thirty and four thirty.
After I had put Samantha back to her crib I had a shower, got dressed and had my breakfast. Then I made the beds and tided the upstairs.
By that time it was time for lunch and to feed Sam again. We left at two forty five. Charlie had already left for work. He did a lot of running around today. Mostly signing papers re the mortgage and he gave Lex the business card of the lawyer.
We had to wait a long time to see the doctor but Samantha was good. She feel asleep after awhile. Alex was more of the problem. He wasn’t able to sit still for one second!
Dr. C checked Samantha. She said she could hear something in her chest. It could be the start of bronchitis. She asked me if Samantha was lethargic and had a temperature. I said what do you mean by that. She said if she has become tired, doesn’t eat very well and has a temperature. I told her Sam had a temperature yesterday of 38.3C but she was okay other than that. Samantha was quite cranky yesterday.
Dr. C said her chest isn’t that bad but with the color of the discharge in her nose it would be advisable to start her on antibiotics. I asked her if it would be okay if I gave Samantha Tempra if she had a temperature. Dr. C said yes but watch how Samantha is. Dr. C said to give Samantha the medication for ten days and she wants to see Sam in one week.
We made an appointment for next Friday at 4:10 p.m. Then we went to London Drugs to get the medication. After that we went to the Drive through at McDonald’s and came home. Alex ate dinner while I fed Samantha. I also gave her the medicine which she doesn’t seem to like. Some of the medicine came out of her mouth.
I phoned Mom to tell her I had gotten the cheque this afternoon. Then I had dinner and cleaned up the kitchen.
Samantha didn’t sleep that well, it’s hard for her to breath very well. I fed her again at nine thirty, she went back to her crib at ten thirty.
I keep telling Alex not to get too close but he doesn’t listen to me. If he gets it he’ll be in trouble. I don’t know who would stay with him.
I wrote in the journal until eleven thirty. I’m going to bed.
No Tests
Medication
Cough syrup ------ ----- 11:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Bactrim ------ ------ 8:00 p.m.
January 6, 1990
I woke up quite a few times to check on Samantha. She slept until eight forty five. That was rather amazing but Charlie said it was probably the medicine that made her sleep.
Samantha was really hungry, she ate for about fifteen minutes.
I had a shower, got dressed and had my breakfast in between her feedings.
Samantha ate again at eleven fifteen, she ate for about fifteen minutes again. So the two feedings were like three feedings.
We went to Toronto Dominion Bank to get our bonds. Then we went to Van City Credit Union where we cashed in our bonds. We asked whether the RRSP would come out on time or not. I explained it was for the payment of our house we had recently bought. The clerk checked, she said it usually takes ten days for it to be done so it was cutting it pretty close. Then she said it should be in our account on January 9th. If it wasn’t we should phone and it could be done that day. Then we asked about the Fire Insurance policy that the lawyers said we had to take out payable to Van City. We were told it had to do with the mortgage. They won’t give you the mortgage without house insurance. The fire insurance pays off the mortgage first so Van City doesn’t get stuck with the mortgage. The clerk outlined a rough copy of how much the insurance would be on the house we’re buying. It’ll be $232 plus $50 for earth wake insurance. Charlie said he would let him know on Monday.
We came home, I put Samantha into her crib. Charlie and Alex went grocery shopping. At four o’clock I fed Samantha and at five o’clock I gave her her medicine. I had given it to her this morning at nine thirty.
When they came home they had brought a pizza home from Save On Foods.
After dinner I cleaned up the kitchen, did the dishes and wrote in the journal.
Alex and I wrote a letter to Grandma and Grandpa thanking them for his and Sam’s Christmas presents.
It’s nine o’clock I’ll be feeding Samantha soon and going to bed.
No tests
Medication
Cough syrup 11:00 a.m. ------- -------
Mercaptopurine ------ ------- 8:00 p.m.
Tuesday, December 31, 2013
Monday, December 23, 2013
Diagnosis: Leukemia; December 23-30, 1989
December 23, 1989
Samantha woke up at three thirty, eight, twelve thirty, four thirty and nine thirty.
I’m still doing my Christmas baking believe it or not. I started really late so I’ve had to do something almost every day. Doesn’t leave much time for anything else.
No Tests
Medication
Mercaptopurine -------- -------- 11:00 p.m.
December 24, 1989
Samantha ate at six forty, ten, one, six and nine thirty.
Alex is really excited, he keeps on saying I wonder what Santa will bring me. I hope he can find some of my turtle stuff.
Tonight was no trouble in getting him to go to sleep. I hope he doesn’t get up before us.
No Tests
Medication
Mercaptopurine 3:00 p.m.
December 25, 1989
It’s Christmas morning, MERRY CHRISTMAS!
Samantha woke up at seven o’clock. Just after I had finished feeding her Alex came downstairs. He said Santa already came. Charlie was already up and having coffee. I said it’s morning already. Alex couldn’t wait to open his presents.
We went to the living room. Luckily Sam is still awake to open her presents! That’s the way Alex wants it!
Alex got in his stocking a Turtle van soap dish, Riddler, Turtle figures, Batman socks and a Mario sticker book. Kelly gave him Leonardo, a stuffed toy to stick on a window. Kurt and Pearl gave him a book called the Polar Express. Lanie and Paxton gave him Joker and Batman suspenders. Santa gave him the Turtle Blimp. We gave him Batwing, a Batman game, Batman t-shirt, Batman pants and Batman slippers.
Mom and Dad phoned in the morning. We thanked each other for the presents. I asked Mom if we should say Alex got the Nintendo from us instead of them. They gave Alex the Nintendo system and the Teenage Mutant Ninja Turtle game. Alex sure was excited the look on his face was priceless. He sure was happy to get it!
Anyways the reason I asked Mom was we’re planning on going to visit Joan and family. Mom said that’s okay as we bought Josh one as well.
Shirley and Aaron and kids arrived at one o’clock. I said I didn’t know you were coming. Shirley said I told you when I talked to you last. I said you told me you didn’t know what you were doing and you would phone me back. I said anyways you’re here.
Alex got a Ninja suit, Samantha got a sleeper and night gown from Shirley. We got cookies and candies from them.
They left around two o’clock. I had put the turkey on earlier. We bought a turkey and had it cut in half. This way we won’t have so much turkey left.
Samantha ate at two, seven, ten, two, five and ten o’clock.
We had quite a nice dinner. It was quiet but very enjoyable. I don’t think I would have been able to do too much more. It was good for Alex he was able to play with whatever he wanted to.
I went to bed around nine o’clock.
No Tests
Medication
Bactrim ------- 3:00 p.m. -------
Methotrexiate 3:00 p.m.
Temperature 36.87C 3:00 p.m.
December 26, 1989
Samantha ate at one thirty, six, ten thirty, two, five and ten o’clock.
I phoned Joan but Mitch and Karen have the flu. First of all when I talked to her she said it was Karen who was sick and she was almost over it. Then Mitch came home and he said he was going to toss his cookies, so much for going there. I found out later that Paige got it as well. It was a good thing we didn’t go.
No Tests
Medication
Bactrim 10:55 a.m. ------- -------
Mercaptopurine 10:55 a.m. ------- 10:00 p.m.
December 27, 1989
Samantha woke up at seven o’clock for her feeding. That was a pretty long sleep.
Samantha ate again at eleven thirty, three and eight o’clock.
No Tests
Medication
Bactrim 8:30 p.m. ------ 10:40 p.m.
Mercaptopurine ------ ------- 10:40 p.m.
December 28, 1989
Samantha woke up at five o’clock for her feeding. We both went back to sleep.
Samantha woke up again at nine thirty. After her feeding I put her back to her crib. I had a shower, got dressed and had my shower.
We went to Richmond Market, it had opened recently and this is the first time we have been there. They have a lot of seating in the cafeteria better than the North Vancouver Market. We looked around the Market after we had lunch and came home.
I feed Samantha on the way home. Charlie stopped to buy groceries at a small shopping centre but the store had moved.
We got home after three o’clock. I started to cook dinner at four o’clock. We ate dinner at five o’clock. After dinner Alex and I played the Turtle game on Nintendo.
Samantha woke up at six o’clock for her feeding. I put her back into her crib around seven o’clock.
Samantha sure is a happy baby. When we talk to her she talks back or she’ll smile. She sure is cute.
Alex went to bed at nine o’clock. Then he coughed so much we told him to come down. At ten o’clock Charlie gave Alex his cough medicine. Then we told Alex to go to bed. Alex was pretty mad that he had to go to bed.
Samantha woke up for her feeding again. I watched “The Accidental Tourist” a video we had rented. Charlie was asleep of course!
I went to bed at eleven thirty.
No Tests
Medication
Cough Syrup 8:00 a.m. 4:00 p.m. 10:00 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
Temperature 36.68C 8:30 p.m.
December 29, 1989
Samantha woke up at six o’clock for her feeding. After she had eaten we both went to sleep.
Samantha woke up again at nine thirty. I still feel tired in which I probably will for quite awhile.
We went to Lonsdale Quay Market at noon. We probably shouldn’t have gone as Alex is feeling so miserable. He has a terrible cold. We had lunch there then we walked around. Alex went to the ballroom and looked at the toy store. One of the toy stores had Thomas the train toys and another one had Ducktale figures.
Samantha started to cry so I had to find a place to feed her. Charlie said I couldn’t feed her in public. I was just about to feed her when he got mad and said it was obscene to feed in public. I couldn’t believe he would say that! Luckily they had a room where I could breast feed Samantha.
We left at three o’clock and stopped at McDonald’s on the way home. Alex ate hardly anything at all. He wanted to go to playroom but we told him no. He looks so awful and has a terrible cold.
When we got home Alex watched TV and played his Turtle game. I played with him but it’s very frustrating as he keeps on yelling at me. I yelled at him how would you like it if I yelled at you while you played? Alex said fine I’m leaving.
Alex went to bed at seven o’clock. It’s now eight o’clock and I’m writing in the journal.
No Tests
Medication
Cough syrup 8:00 a.m. -------- 5:00 p.m.
Bactrim 10:00 a.m. ------ 6:30 p.m.
Mercaptopurine ---- ----- 6:30 p.m.
Temperature 37.38C 6:30 p.m.
December 30, 1989
Samantha woke up at eight o’clock. After I had fed her and put her back to her crib I had a shower, got dressed and had my breakfast.
I went back to sleep until Samantha woke up for her next feeding. She woke up at eleven thirty. After Samantha had her feeding I put her into the super swing. She seems to like it but she tends to lean to one side. Samantha is probably a bit young to be in it.
In the afternoon I made up the beds did the laundry and played a video game with Alex.
When Samantha woke up for her next feeding, I gave her vitamins and a bath.
Charlie went to get dinner at five o’clock. We ate at five thirty. After dinner Alex and I played another game. Then after the news was over Charlie and Alex played a game. Alex was pretty upset as Charlie went past where he had gotten before. I had said Alex was the expert but now Alex said Pa was the expert.
Samantha woke up again at eight o’clock. She sure is a good baby and such a happy baby.
I watched a video Charlie had rented, he feel asleep as usual!
Alex went to bed at ten o’clock. It’s now eleven thirty, I’m going to bed.
No Tests
Medication
Cough syrup 9:00 a.m. 4:00 p.m. 10:15 p.m.
Mercaptopurine ------- ----- 9:30 p.m.
Temperature 36.78C 9:00 a.m.
Samantha woke up at three thirty, eight, twelve thirty, four thirty and nine thirty.
I’m still doing my Christmas baking believe it or not. I started really late so I’ve had to do something almost every day. Doesn’t leave much time for anything else.
No Tests
Medication
Mercaptopurine -------- -------- 11:00 p.m.
December 24, 1989
Samantha ate at six forty, ten, one, six and nine thirty.
Alex is really excited, he keeps on saying I wonder what Santa will bring me. I hope he can find some of my turtle stuff.
Tonight was no trouble in getting him to go to sleep. I hope he doesn’t get up before us.
No Tests
Medication
Mercaptopurine 3:00 p.m.
December 25, 1989
It’s Christmas morning, MERRY CHRISTMAS!
Samantha woke up at seven o’clock. Just after I had finished feeding her Alex came downstairs. He said Santa already came. Charlie was already up and having coffee. I said it’s morning already. Alex couldn’t wait to open his presents.
We went to the living room. Luckily Sam is still awake to open her presents! That’s the way Alex wants it!
Alex got in his stocking a Turtle van soap dish, Riddler, Turtle figures, Batman socks and a Mario sticker book. Kelly gave him Leonardo, a stuffed toy to stick on a window. Kurt and Pearl gave him a book called the Polar Express. Lanie and Paxton gave him Joker and Batman suspenders. Santa gave him the Turtle Blimp. We gave him Batwing, a Batman game, Batman t-shirt, Batman pants and Batman slippers.
Mom and Dad phoned in the morning. We thanked each other for the presents. I asked Mom if we should say Alex got the Nintendo from us instead of them. They gave Alex the Nintendo system and the Teenage Mutant Ninja Turtle game. Alex sure was excited the look on his face was priceless. He sure was happy to get it!
Anyways the reason I asked Mom was we’re planning on going to visit Joan and family. Mom said that’s okay as we bought Josh one as well.
Shirley and Aaron and kids arrived at one o’clock. I said I didn’t know you were coming. Shirley said I told you when I talked to you last. I said you told me you didn’t know what you were doing and you would phone me back. I said anyways you’re here.
Alex got a Ninja suit, Samantha got a sleeper and night gown from Shirley. We got cookies and candies from them.
They left around two o’clock. I had put the turkey on earlier. We bought a turkey and had it cut in half. This way we won’t have so much turkey left.
Samantha ate at two, seven, ten, two, five and ten o’clock.
We had quite a nice dinner. It was quiet but very enjoyable. I don’t think I would have been able to do too much more. It was good for Alex he was able to play with whatever he wanted to.
I went to bed around nine o’clock.
No Tests
Medication
Bactrim ------- 3:00 p.m. -------
Methotrexiate 3:00 p.m.
Temperature 36.87C 3:00 p.m.
December 26, 1989
Samantha ate at one thirty, six, ten thirty, two, five and ten o’clock.
I phoned Joan but Mitch and Karen have the flu. First of all when I talked to her she said it was Karen who was sick and she was almost over it. Then Mitch came home and he said he was going to toss his cookies, so much for going there. I found out later that Paige got it as well. It was a good thing we didn’t go.
No Tests
Medication
Bactrim 10:55 a.m. ------- -------
Mercaptopurine 10:55 a.m. ------- 10:00 p.m.
December 27, 1989
Samantha woke up at seven o’clock for her feeding. That was a pretty long sleep.
Samantha ate again at eleven thirty, three and eight o’clock.
No Tests
Medication
Bactrim 8:30 p.m. ------ 10:40 p.m.
Mercaptopurine ------ ------- 10:40 p.m.
December 28, 1989
Samantha woke up at five o’clock for her feeding. We both went back to sleep.
Samantha woke up again at nine thirty. After her feeding I put her back to her crib. I had a shower, got dressed and had my shower.
We went to Richmond Market, it had opened recently and this is the first time we have been there. They have a lot of seating in the cafeteria better than the North Vancouver Market. We looked around the Market after we had lunch and came home.
I feed Samantha on the way home. Charlie stopped to buy groceries at a small shopping centre but the store had moved.
We got home after three o’clock. I started to cook dinner at four o’clock. We ate dinner at five o’clock. After dinner Alex and I played the Turtle game on Nintendo.
Samantha woke up at six o’clock for her feeding. I put her back into her crib around seven o’clock.
Samantha sure is a happy baby. When we talk to her she talks back or she’ll smile. She sure is cute.
Alex went to bed at nine o’clock. Then he coughed so much we told him to come down. At ten o’clock Charlie gave Alex his cough medicine. Then we told Alex to go to bed. Alex was pretty mad that he had to go to bed.
Samantha woke up for her feeding again. I watched “The Accidental Tourist” a video we had rented. Charlie was asleep of course!
I went to bed at eleven thirty.
No Tests
Medication
Cough Syrup 8:00 a.m. 4:00 p.m. 10:00 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
Temperature 36.68C 8:30 p.m.
December 29, 1989
Samantha woke up at six o’clock for her feeding. After she had eaten we both went to sleep.
Samantha woke up again at nine thirty. I still feel tired in which I probably will for quite awhile.
We went to Lonsdale Quay Market at noon. We probably shouldn’t have gone as Alex is feeling so miserable. He has a terrible cold. We had lunch there then we walked around. Alex went to the ballroom and looked at the toy store. One of the toy stores had Thomas the train toys and another one had Ducktale figures.
Samantha started to cry so I had to find a place to feed her. Charlie said I couldn’t feed her in public. I was just about to feed her when he got mad and said it was obscene to feed in public. I couldn’t believe he would say that! Luckily they had a room where I could breast feed Samantha.
We left at three o’clock and stopped at McDonald’s on the way home. Alex ate hardly anything at all. He wanted to go to playroom but we told him no. He looks so awful and has a terrible cold.
When we got home Alex watched TV and played his Turtle game. I played with him but it’s very frustrating as he keeps on yelling at me. I yelled at him how would you like it if I yelled at you while you played? Alex said fine I’m leaving.
Alex went to bed at seven o’clock. It’s now eight o’clock and I’m writing in the journal.
No Tests
Medication
Cough syrup 8:00 a.m. -------- 5:00 p.m.
Bactrim 10:00 a.m. ------ 6:30 p.m.
Mercaptopurine ---- ----- 6:30 p.m.
Temperature 37.38C 6:30 p.m.
December 30, 1989
Samantha woke up at eight o’clock. After I had fed her and put her back to her crib I had a shower, got dressed and had my breakfast.
I went back to sleep until Samantha woke up for her next feeding. She woke up at eleven thirty. After Samantha had her feeding I put her into the super swing. She seems to like it but she tends to lean to one side. Samantha is probably a bit young to be in it.
In the afternoon I made up the beds did the laundry and played a video game with Alex.
When Samantha woke up for her next feeding, I gave her vitamins and a bath.
Charlie went to get dinner at five o’clock. We ate at five thirty. After dinner Alex and I played another game. Then after the news was over Charlie and Alex played a game. Alex was pretty upset as Charlie went past where he had gotten before. I had said Alex was the expert but now Alex said Pa was the expert.
Samantha woke up again at eight o’clock. She sure is a good baby and such a happy baby.
I watched a video Charlie had rented, he feel asleep as usual!
Alex went to bed at ten o’clock. It’s now eleven thirty, I’m going to bed.
No Tests
Medication
Cough syrup 9:00 a.m. 4:00 p.m. 10:15 p.m.
Mercaptopurine ------- ----- 9:30 p.m.
Temperature 36.78C 9:00 a.m.
Diagnosis: Leukemia; December 18-22, 1989
December 18, 1989
Samantha woke up at one twenty five, five, then twelve fifty, four and eight o’clock.
Alex went to school, this Friday is the last day of school for the year. I’ll be glad of that, it is so much easier for me with Alex at home.
I’ve got pretty well all my shopping done. I never did find the Batmobile. Alex found the Bat Wing and talked me into getting it for him. I wrote Allison and she said they don’t have any there either.
No Tests
Medication
Bactrim 8:00 p.m. ------ 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate -------- -------- 8:00 p.m.
December 19, 1989
Samantha ate at two thirty, five, ten twelve forty five, three forty five, eight and eleven forty five.
Today Alex went to school . We ate dinner at five thirty. Alex went to bed around nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
December 20, 1989
Samantha ate at five, nine thirty, one, five and eight o’clock.
Alex went to school. Only a few more days until Christmas break.
No Tests
Medication
Bactrim 7:30 p.m. ------- 10:00 p.m.
Mercaptopurine ------- ------ 10:00 p.m.
December 21, 1989
Samantha ate at two, six twenty five, ten, two fifteen, four thirty and nine thirty.
Alex is getting really excited about Christmas. Actually for some time now. He ways Samantha has to open her presents with us. That should be interesting!
No Tests
Medication
Cough syrup ------- ------- 7:30 p.m.
Mercaptopurine -------- ------- 7:30 p.m.
December 22, 1989
Samantha ate at four, nine, one, five and eight fifty.
Alex’s last day of the year for school. He brought home his table decoration which he said isn’t his. Mrs Wall said they share everything. She said they would check when they went back to school in the new year.
No Tests
Medication
Bactrim 10:00 a.m. -------- 9:30 p.m.
Mercaptopurine ------ ------- 9:30 p.m.
Samantha woke up at one twenty five, five, then twelve fifty, four and eight o’clock.
Alex went to school, this Friday is the last day of school for the year. I’ll be glad of that, it is so much easier for me with Alex at home.
I’ve got pretty well all my shopping done. I never did find the Batmobile. Alex found the Bat Wing and talked me into getting it for him. I wrote Allison and she said they don’t have any there either.
No Tests
Medication
Bactrim 8:00 p.m. ------ 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate -------- -------- 8:00 p.m.
December 19, 1989
Samantha ate at two thirty, five, ten twelve forty five, three forty five, eight and eleven forty five.
Today Alex went to school . We ate dinner at five thirty. Alex went to bed around nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
December 20, 1989
Samantha ate at five, nine thirty, one, five and eight o’clock.
Alex went to school. Only a few more days until Christmas break.
No Tests
Medication
Bactrim 7:30 p.m. ------- 10:00 p.m.
Mercaptopurine ------- ------ 10:00 p.m.
December 21, 1989
Samantha ate at two, six twenty five, ten, two fifteen, four thirty and nine thirty.
Alex is getting really excited about Christmas. Actually for some time now. He ways Samantha has to open her presents with us. That should be interesting!
No Tests
Medication
Cough syrup ------- ------- 7:30 p.m.
Mercaptopurine -------- ------- 7:30 p.m.
December 22, 1989
Samantha ate at four, nine, one, five and eight fifty.
Alex’s last day of the year for school. He brought home his table decoration which he said isn’t his. Mrs Wall said they share everything. She said they would check when they went back to school in the new year.
No Tests
Medication
Bactrim 10:00 a.m. -------- 9:30 p.m.
Mercaptopurine ------ ------- 9:30 p.m.
Thursday, December 12, 2013
Diagnosis: Leukemia; December 11-17, 1989
December 11, 1989
Samantha ate at four, ten, one, for, seven forty five and ten thirty.
Alex went to school and came home afterwards. We ate dinner five thirty.
Alex says he wants the Turtle Blimp from Santa for Christmas. From us the Bat mobile, I’ve left it too late and I can’t find it anywhere. So far consumers is the only ones who sell it.
I have to be careful not to do too much. I had a breast infection last week. It wasn’t painful, it made me feel like I had the flu. First of all I became very cold and shivered. So I had an extremely hot shower and went to bed. I had to wear sweats to bed. Then I woke up at three in the morning feeling really hot. Marla told me what breast infections felt like so at least I knew all the symptoms. Feeding Samantha was rather painful but I got over it. A hot water bottle really helps.
This week I had similar symptoms but this time it was the flu. Luckily it was over quite soon.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
December 12, 1989
Samantha had a feeding at four o’clock and at eight o’clock. After her feedings I had a shower, got dressed and had my breakfast.
Charlie and Alex went to the hospital this morning. The doctor increased Alex’s medication; Mercaptopurine 1 pill alternating to ¾ pill daily, Methotrexiate 5 ½ pills weekly and the other medication to stay the same.
I fed Samantha at noon, Charlie and Alex came home shortly afterwards. Charlie took the day off so I wouldn’t have to take Alex in. I thought that was nice of him since it would have been very tiring for me.
We at dinner at five thirty. I fed Samantha at six o’clock.
Alex went to bed at eight o’clock. I thought Sam would have woken up earlier. I waited until eleven thirty and was just getting to bed when she woke up. By the time I fed Sam it was twelve thirty, then we went to bed.
Tests
WBC 3.2
HGB 12.1
Platelets 339
ANC 2048
Medication
Mercaptopurine ------- ------ 8:00 p.m.
Prednisone -------- ------- 8:00 p.m.
Bactrim ------- ------ 8:00 p.m.
Methotrexiate -------- ------- 8:00 p.m.
December 13, 1989
Samantha ate at four, eight, eleven, three thirty, seven forty five and eleven o’clock.
Alex went to school and came home. He didn’t go yesterday since he went to the hospital. We ate dinner at five thirty. Alex went to bed at nine o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 14, 1989
Samantha ate at three, six thirty five, ten, twelve fifty, five thirty and eight thirty.
Alex went to school today and came home afterwards. Alex’s school had their Christmas concert. Alex was really good. We were sitting in the back and we could hear Alex singing.
We saw Shirley’s in laws there with Monique. They asked us where we were living, we told them at my parents on Mara Drive. They said where are you looking? We said in Ranch Park. They said there first house was on Cove Place.
We ate dinner at six o’clock. I try to get Alex to go to bed on time but it isn’t always easy.
No Tests
Medication
Mercaptopurine ------ 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 15, 1989
Samantha ate at five, nine, ten thirty, one, four and eight o’clock.
Alex went to school at twelve twenty. After school, we picked up dinner from McDonald’s and came home. Alex sure looks forward to Friday night dinners. It’s funny because he doesn’t always eat everything.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 16, 1989
Samantha ate at six, ten, two thirty and seven thirty.
I still don’t have any energy, the doctor said after I had Samantha that I was anemic.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone ------- ------- 8:00 p.m.
December 17, 1989
Samantha woke up at three fifty, eight, eleven, four and seven thirty.
No Tests
Medication
Mercaptopurine ------ ------- 8:00 p.m.
Samantha ate at four, ten, one, for, seven forty five and ten thirty.
Alex went to school and came home afterwards. We ate dinner five thirty.
Alex says he wants the Turtle Blimp from Santa for Christmas. From us the Bat mobile, I’ve left it too late and I can’t find it anywhere. So far consumers is the only ones who sell it.
I have to be careful not to do too much. I had a breast infection last week. It wasn’t painful, it made me feel like I had the flu. First of all I became very cold and shivered. So I had an extremely hot shower and went to bed. I had to wear sweats to bed. Then I woke up at three in the morning feeling really hot. Marla told me what breast infections felt like so at least I knew all the symptoms. Feeding Samantha was rather painful but I got over it. A hot water bottle really helps.
This week I had similar symptoms but this time it was the flu. Luckily it was over quite soon.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
December 12, 1989
Samantha had a feeding at four o’clock and at eight o’clock. After her feedings I had a shower, got dressed and had my breakfast.
Charlie and Alex went to the hospital this morning. The doctor increased Alex’s medication; Mercaptopurine 1 pill alternating to ¾ pill daily, Methotrexiate 5 ½ pills weekly and the other medication to stay the same.
I fed Samantha at noon, Charlie and Alex came home shortly afterwards. Charlie took the day off so I wouldn’t have to take Alex in. I thought that was nice of him since it would have been very tiring for me.
We at dinner at five thirty. I fed Samantha at six o’clock.
Alex went to bed at eight o’clock. I thought Sam would have woken up earlier. I waited until eleven thirty and was just getting to bed when she woke up. By the time I fed Sam it was twelve thirty, then we went to bed.
Tests
WBC 3.2
HGB 12.1
Platelets 339
ANC 2048
Medication
Mercaptopurine ------- ------ 8:00 p.m.
Prednisone -------- ------- 8:00 p.m.
Bactrim ------- ------ 8:00 p.m.
Methotrexiate -------- ------- 8:00 p.m.
December 13, 1989
Samantha ate at four, eight, eleven, three thirty, seven forty five and eleven o’clock.
Alex went to school and came home. He didn’t go yesterday since he went to the hospital. We ate dinner at five thirty. Alex went to bed at nine o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 14, 1989
Samantha ate at three, six thirty five, ten, twelve fifty, five thirty and eight thirty.
Alex went to school today and came home afterwards. Alex’s school had their Christmas concert. Alex was really good. We were sitting in the back and we could hear Alex singing.
We saw Shirley’s in laws there with Monique. They asked us where we were living, we told them at my parents on Mara Drive. They said where are you looking? We said in Ranch Park. They said there first house was on Cove Place.
We ate dinner at six o’clock. I try to get Alex to go to bed on time but it isn’t always easy.
No Tests
Medication
Mercaptopurine ------ 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 15, 1989
Samantha ate at five, nine, ten thirty, one, four and eight o’clock.
Alex went to school at twelve twenty. After school, we picked up dinner from McDonald’s and came home. Alex sure looks forward to Friday night dinners. It’s funny because he doesn’t always eat everything.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
December 16, 1989
Samantha ate at six, ten, two thirty and seven thirty.
I still don’t have any energy, the doctor said after I had Samantha that I was anemic.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone ------- ------- 8:00 p.m.
December 17, 1989
Samantha woke up at three fifty, eight, eleven, four and seven thirty.
No Tests
Medication
Mercaptopurine ------ ------- 8:00 p.m.
Friday, December 6, 2013
Diagnosis: Leukemia; December 3-10, 1989
December 3, 1989
Samantha ate at three thirty, seven, nine, eleven thirty, four thirty and nine o’clock.
No Tests
Medication
Mercaptopurine ——- —— 9:00 p.m.
December 4, 1989
Samantha ate at five, nine thirty, eleven thirty, one, six and ten thirty.
No Tests
Medication
Bactrim ——– —— 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
December 5, 1989
Samantha ate at five, nine thirty, twelve fifty, four, seven thirty and eleven thirty.
Alex went to school at twelve twenty and came home after school.
We ate dinner at five thirty.
No Tests
Medication
Bactrim ——- —— 8:00 p.m.
Mercaptopurine —— —— 8:00 p.m.
December 6, 1989
Samantha ate at seven, eleven two thirty, five and nine o’clock.
Alex went to school and came home afterwards. We ate after Sam’s five o’clock feeding.
No Tests
Medication
Bactrim 10:00 a.m. —— 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
Methotrexiate 10:00 a.m. ——- ——
December 7, 1989
Samantha ate at five, then, one, four fifteen and eight thirty.
Alex went to school and came home afterwards. We ate dinner at five thirty.
Alex went to bed at eight o’clock. I went to bed after Samantha’s last feeding.
No Tests
Medication
Mercaptopurine ——- —– 8:00 p.m.
December 8, 1989
Samantha woke up at two thirty, eight, eleven, two, five and eight thirty.
Alex went to school and afterwards we went to McDonald’s to bring dinner home. We usually go thought the drive through. I find it a lot easier.
No Tests
Medication
Mercaptopurine ——– —— 8:00 p.m.
December 9, 1989
Samantha ate at three thirty, eight thirty, two thirty, four, seven and eleven forty.
No Tests
Medication
Mercaptopurine ——- —— 8:00 p.m.
Bactrim 10:00 p.m. ——– 8:00 p.m.
December 10, 1989
Samantha ate at six, ten, one, six and nine o’clock.
No Tests
Medication
Mercaptopurine —— —— 8:00 p.m.
*This was a very difficult time for me. I was extremely tired, I was anemic, and felt totally drained. The entries in the journal were very limited.
Leukemia Diagnosis
Samantha ate at three thirty, seven, nine, eleven thirty, four thirty and nine o’clock.
No Tests
Medication
Mercaptopurine ——- —— 9:00 p.m.
December 4, 1989
Samantha ate at five, nine thirty, eleven thirty, one, six and ten thirty.
No Tests
Medication
Bactrim ——– —— 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
December 5, 1989
Samantha ate at five, nine thirty, twelve fifty, four, seven thirty and eleven thirty.
Alex went to school at twelve twenty and came home after school.
We ate dinner at five thirty.
No Tests
Medication
Bactrim ——- —— 8:00 p.m.
Mercaptopurine —— —— 8:00 p.m.
December 6, 1989
Samantha ate at seven, eleven two thirty, five and nine o’clock.
Alex went to school and came home afterwards. We ate after Sam’s five o’clock feeding.
No Tests
Medication
Bactrim 10:00 a.m. —— 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
Methotrexiate 10:00 a.m. ——- ——
December 7, 1989
Samantha ate at five, then, one, four fifteen and eight thirty.
Alex went to school and came home afterwards. We ate dinner at five thirty.
Alex went to bed at eight o’clock. I went to bed after Samantha’s last feeding.
No Tests
Medication
Mercaptopurine ——- —– 8:00 p.m.
December 8, 1989
Samantha woke up at two thirty, eight, eleven, two, five and eight thirty.
Alex went to school and afterwards we went to McDonald’s to bring dinner home. We usually go thought the drive through. I find it a lot easier.
No Tests
Medication
Mercaptopurine ——– —— 8:00 p.m.
December 9, 1989
Samantha ate at three thirty, eight thirty, two thirty, four, seven and eleven forty.
No Tests
Medication
Mercaptopurine ——- —— 8:00 p.m.
Bactrim 10:00 p.m. ——– 8:00 p.m.
December 10, 1989
Samantha ate at six, ten, one, six and nine o’clock.
No Tests
Medication
Mercaptopurine —— —— 8:00 p.m.
*This was a very difficult time for me. I was extremely tired, I was anemic, and felt totally drained. The entries in the journal were very limited.
Leukemia Diagnosis
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