Monday, December 23, 2013

Diagnosis: Leukemia; December 23-30, 1989

December 23, 1989

Samantha woke up at three thirty, eight, twelve thirty, four thirty and nine thirty.

I’m still doing my Christmas baking believe it or not. I started really late so I’ve had to do something almost every day. Doesn’t leave much time for anything else.

No Tests

Medication

Mercaptopurine -------- -------- 11:00 p.m.

December 24, 1989

Samantha ate at six forty, ten, one, six and nine thirty.

Alex is really excited, he keeps on saying I wonder what Santa will bring me. I hope he can find some of my turtle stuff.

Tonight was no trouble in getting him to go to sleep. I hope he doesn’t get up before us.

No Tests

Medication

Mercaptopurine 3:00 p.m.

December 25, 1989

It’s Christmas morning, MERRY CHRISTMAS!

Samantha woke up at seven o’clock. Just after I had finished feeding her Alex came downstairs. He said Santa already came. Charlie was already up and having coffee. I said it’s morning already. Alex couldn’t wait to open his presents.

We went to the living room. Luckily Sam is still awake to open her presents! That’s the way Alex wants it!

Alex got in his stocking a Turtle van soap dish, Riddler, Turtle figures, Batman socks and a Mario sticker book. Kelly gave him Leonardo, a stuffed toy to stick on a window. Kurt and Pearl gave him a book called the Polar Express. Lanie and Paxton gave him Joker and Batman suspenders. Santa gave him the Turtle Blimp. We gave him Batwing, a Batman game, Batman t-shirt, Batman pants and Batman slippers.

Mom and Dad phoned in the morning. We thanked each other for the presents. I asked Mom if we should say Alex got the Nintendo from us instead of them. They gave Alex the Nintendo system and the Teenage Mutant Ninja Turtle game. Alex sure was excited the look on his face was priceless. He sure was happy to get it!

Anyways the reason I asked Mom was we’re planning on going to visit Joan and family. Mom said that’s okay as we bought Josh one as well.

Shirley and Aaron and kids arrived at one o’clock. I said I didn’t know you were coming. Shirley said I told you when I talked to you last. I said you told me you didn’t know what you were doing and you would phone me back. I said anyways you’re here.

Alex got a Ninja suit, Samantha got a sleeper and night gown from Shirley. We got cookies and candies from them.

They left around two o’clock. I had put the turkey on earlier. We bought a turkey and had it cut in half. This way we won’t have so much turkey left.

Samantha ate at two, seven, ten, two, five and ten o’clock.

We had quite a nice dinner. It was quiet but very enjoyable. I don’t think I would have been able to do too much more. It was good for Alex he was able to play with whatever he wanted to.

I went to bed around nine o’clock.

No Tests

Medication

Bactrim ------- 3:00 p.m. -------
Methotrexiate 3:00 p.m.

Temperature 36.87C 3:00 p.m.

December 26, 1989

Samantha ate at one thirty, six, ten thirty, two, five and ten o’clock.

I phoned Joan but Mitch and Karen have the flu. First of all when I talked to her she said it was Karen who was sick and she was almost over it. Then Mitch came home and he said he was going to toss his cookies, so much for going there. I found out later that Paige got it as well. It was a good thing we didn’t go.

No Tests

Medication

Bactrim 10:55 a.m. ------- -------
Mercaptopurine 10:55 a.m. ------- 10:00 p.m.

December 27, 1989

Samantha woke up at seven o’clock for her feeding. That was a pretty long sleep.

Samantha ate again at eleven thirty, three and eight o’clock.

No Tests

Medication

Bactrim 8:30 p.m. ------ 10:40 p.m.
Mercaptopurine ------ ------- 10:40 p.m.

December 28, 1989

Samantha woke up at five o’clock for her feeding. We both went back to sleep.

Samantha woke up again at nine thirty. After her feeding I put her back to her crib. I had a shower, got dressed and had my shower.

We went to Richmond Market, it had opened recently and this is the first time we have been there. They have a lot of seating in the cafeteria better than the North Vancouver Market. We looked around the Market after we had lunch and came home.

I feed Samantha on the way home. Charlie stopped to buy groceries at a small shopping centre but the store had moved.

We got home after three o’clock. I started to cook dinner at four o’clock. We ate dinner at five o’clock. After dinner Alex and I played the Turtle game on Nintendo.

Samantha woke up at six o’clock for her feeding. I put her back into her crib around seven o’clock.

Samantha sure is a happy baby. When we talk to her she talks back or she’ll smile. She sure is cute.

Alex went to bed at nine o’clock. Then he coughed so much we told him to come down. At ten o’clock Charlie gave Alex his cough medicine. Then we told Alex to go to bed. Alex was pretty mad that he had to go to bed.

Samantha woke up for her feeding again. I watched “The Accidental Tourist” a video we had rented. Charlie was asleep of course!

I went to bed at eleven thirty.

No Tests

Medication

Cough Syrup 8:00 a.m. 4:00 p.m. 10:00 p.m.
Mercaptopurine ------- ------ 8:30 p.m.

Temperature 36.68C 8:30 p.m.

December 29, 1989

Samantha woke up at six o’clock for her feeding. After she had eaten we both went to sleep.

Samantha woke up again at nine thirty. I still feel tired in which I probably will for quite awhile.

We went to Lonsdale Quay Market at noon. We probably shouldn’t have gone as Alex is feeling so miserable. He has a terrible cold. We had lunch there then we walked around. Alex went to the ballroom and looked at the toy store. One of the toy stores had Thomas the train toys and another one had Ducktale figures.

Samantha started to cry so I had to find a place to feed her. Charlie said I couldn’t feed her in public. I was just about to feed her when he got mad and said it was obscene to feed in public. I couldn’t believe he would say that! Luckily they had a room where I could breast feed Samantha.

We left at three o’clock and stopped at McDonald’s on the way home. Alex ate hardly anything at all. He wanted to go to playroom but we told him no. He looks so awful and has a terrible cold.

When we got home Alex watched TV and played his Turtle game. I played with him but it’s very frustrating as he keeps on yelling at me. I yelled at him how would you like it if I yelled at you while you played? Alex said fine I’m leaving.

Alex went to bed at seven o’clock. It’s now eight o’clock and I’m writing in the journal.

No Tests

Medication

Cough syrup 8:00 a.m. -------- 5:00 p.m.
Bactrim 10:00 a.m. ------ 6:30 p.m.
Mercaptopurine ---- ----- 6:30 p.m.

Temperature 37.38C 6:30 p.m.

December 30, 1989

Samantha woke up at eight o’clock. After I had fed her and put her back to her crib I had a shower, got dressed and had my breakfast.

I went back to sleep until Samantha woke up for her next feeding. She woke up at eleven thirty. After Samantha had her feeding I put her into the super swing. She seems to like it but she tends to lean to one side. Samantha is probably a bit young to be in it.

In the afternoon I made up the beds did the laundry and played a video game with Alex.

When Samantha woke up for her next feeding, I gave her vitamins and a bath.

Charlie went to get dinner at five o’clock. We ate at five thirty. After dinner Alex and I played another game. Then after the news was over Charlie and Alex played a game. Alex was pretty upset as Charlie went past where he had gotten before. I had said Alex was the expert but now Alex said Pa was the expert.

Samantha woke up again at eight o’clock. She sure is a good baby and such a happy baby.

I watched a video Charlie had rented, he feel asleep as usual!

Alex went to bed at ten o’clock. It’s now eleven thirty, I’m going to bed.

No Tests

Medication

Cough syrup 9:00 a.m. 4:00 p.m. 10:15 p.m.
Mercaptopurine ------- ----- 9:30 p.m.

Temperature 36.78C 9:00 a.m.

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