June 22, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim 10:30 a.m. ----- ------ 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
June 23, 1990
Samantha ate at eight, eleven two and six o’clock.
It’s Charlie’s birthday today. He’s 41 today. I invited Mom and Dad over for dinner. I made an Angel Food birthday cake.
Mom phoned this morning and asked if we were doing anything this morning. I said no I don’t think so. She said meet us at Dream Carpets, we want to buy you carpeting for your house. I said are you sure? I was really shocked they would want to buy us carpeting. It’s an expensive thing to buy. So we meet them at the store and we finally decided on the carpeting. Charlie wasn’t too happy with the store and he kept on telling me he wasn’t getting any carpeting. I thought give me a break we don’t have to pay for it and he’s complaining already.
No Tests
Medication
Mercaptopurine ------- ------ 8:30 p.m.
June 24, 1990
Samantha ate at eight, eleven two and six o’clock.
In the afternoon we went out and then for dinner.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
June 25, 1990
Samantha ate at eight, eleven two and six o’clock.
There’s no school today, it’s Professional day. It sure is nice when Alex is off school.
No Tests
Medication
Bactrim 11:00 a.m. ----- ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Methotrexiate ------ ----- 9:00 p.m.
June 26, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today. This is the last week of school, I can hardly wait!
No Tests
Medication
Mercaptopurine ------- ------ 8:30 p.m.
June 27, 1990
Samantha ate at eight, eleven two and six o’clock.
We went to the doctors at eleven o’clock. Alex had been sick yesterday and I wanted Dr. C to check him. Alex threw up last night but he’s okay this morning. Dr. C said his stomach was making gurgling which meant Alex had the flu. I told Dr. C that Alex’s eye is itchy and red. Dr. C said Alex’s eye is infected.
In the afternoon we went to a picnic. It was for the kindergarten and their buddies (grade 5’s) the kids had a good time playing in the playground and the wading pool. We stayed until two thirty and came home.
Charlie got ready to go to work.
No Tests
Medication
Sod Sol ------ ----- 8:00 p.m.
Bactrim 9:00 a.m. ----- ------ 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
June 28, 1990
Samantha ate at eight, eleven two and six o’clock.
This is the last day of school for the kindergarteners.
No Tests
Medication
Sod Sol 9:00 a.m. 3:00 p.m. 9:00 p.m.
Bactrim 10:00 a.m. ----- ------ 9:00 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
June 29, 1990
Samantha ate at eight, twelve and six o’clock.
We saw Dr. C at ten thirty this morning. She said to keep using the eye drops for Alex’s eye infections. I told her it’s really difficult getting the drops in his eye. Alex says it really hurts when it goes in. Dr. C said I’m really surprised with all the tests Alex, you’ve had to have. I wouldn’t think it would bother you.
Dr C said Samantha is doing better she’s really starting to fill out. I asked Dr. C if Samantha could go to three feedings. She seems to be eating better now. She said that would be fine. She wants to see them both in a month.
No Tests
Medication
Sod Sol 8:30 a.m. 3:00 p.m. 9:00 p.m.
Bactrim 8:30 a.m. ----- ------ 9:00 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
June 30, 1990
Samantha ate at eight, twelve and six o’clock.
No Tests
Medication
Sod Sol 10:00 a.m. ------- 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
Tuesday, June 24, 2014
Monday, June 16, 2014
Diagnosis: Leukemia; July 1-7, 1990
July 1, 1990
It’s Canada’s birthday today. Mom and Dad invited us over for dinner.
Samantha ate at eight, twelve and six o’clock.
The salesman from Dream Carpets came to measure the house today. He told us he needed a cheque for all the amount not including the labour. Charlie told him he didn’t want to do that as he’s had problems in the past with companies going bankrupt and he didn’t get anything. The salesman was pretty annoyed and said you should have checked with the Better Business Bureau. He claimed his company was very reliable and he still needed a cheque before the carpeting could be laid.
When we told Mom and Dad we needed a cheque for the full amount Dad said no way! I explained to them that the salesman said they wouldn’t lay the carpeting without the money. They sure weren’t happy. Later I told Mom about the salesman saying Charlie should have phoned the Better Business Bureau. Mom said tomorrow I’m phoning them.
We went to Mom and Dad’s at four thirty. I fed Samantha after we had our dinner. We came home around nine o’clock.
No Tests
Medication
Sod Sol 11:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 2, 1990
Samantha ate at nine, one and six o’clock.
Alex seems to be having fun playing with the other kids. I’m just glad I don’t have to go to the school to pick him up. I don’t mind going to the school but some of the mothers are such snobs it’s unbelievable. I couldn’t never understand people like that.
This morning Mom phones to tell us she cancelled the order with Dream Carpets. The Better Business Bureau said they’ve had six complaints so far this year and most of the people still didn’t get the job done right. Mom said she put a stop payment on the deposit cheque.
They asked us to meet them at another carpeting place. It’s call J & R Carpeting. What a difference in the two stores. Dream Carpets was such a dump, the ceiling was leaking and they had junk all over the place.
We picked out the carpeting and the salesman said he would be out to measure tomorrow.
No Tests
Medication
Bactrim 10:00 a.m. ------ 8:30 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Methotrexiate ------ ------ 8:30 p.m.
July 3, 1990
Samantha ate at eight, twelve and six o’clock.
The salesman came this morning to measure for the carpeting. He told us the baseboards should come off. Charlie doesn’t want to take them off.
Mom phoned to tell me the salesman phoned them. He said I don’t think your son-in-law understood that the baseboards have to come off. I said he told us it would look better not that they had to come off.
Charlie took them off but with a lot of grumbling.
Then the fun began we had to get everything out of the living room, dining room, Alex’s room and Samantha’s room. What a job it’s like moving all over again.
Anyways today finally came for them to lay the carpeting. Charlie had quite a few arguments with the layers. It didn’t help that they both smoked, luckily not in the house, they had their radio on and the one guy was singing away.
Alex, Samantha and I went to Mom and Dad’s for awhile. We all came back so Charlie could go to work.
The layers finally finished at six o’clock and Mom and Dad left shortly afterwards.
They had to glue the carpet to the stairs because of the ceramic tiles. The smell was something awful almost made me ill.
No Tests
Medication
Mercaptopurine ------. ----- 8:30 p.m.
July 4, 1990
Samantha ate at nine, one and six o’clock.
Now the fun begins on getting the house back in order. Yesterday Mom helped me vacuum the carpet bits up and there was a lot.
No tests
Medication
Bactrim 11:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 5, 1990
Samantha ate at nine, cone, and six o’clock.
It sure is nice having carpeting throughout the whole house. Especially in Samantha’s room. The floor really creaked before the carpeting was laid. It was hardwood floors under the carpet. Alex would run down the hall and then slide the rest of the way into the living room. He also slipped many times on the stairs on the ceramic tile. I thought it was a strange place for ceramic tiles.
It’s going to take awhile to get everything put away.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
July 6, 1990
It’s Mom’s birthday today, we’re having them over for dinner tomorrow. Charlie is on afternoon shift this week.
I phoned Mom to wish her a HAPPY BIRTHDAY!
Alex, Samantha and I went to McDonald’s drive through and came home.
No Tests
Medication
Bactrim 10:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 7, 1990
Samantha ate at nine, one and six o’clock.
I’ve been busy getting the house ready for Mom and Dad. Alex likes it when I make a cake and he puts sprinkles on the icing.
They came over around five and left at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
It’s Canada’s birthday today. Mom and Dad invited us over for dinner.
Samantha ate at eight, twelve and six o’clock.
The salesman from Dream Carpets came to measure the house today. He told us he needed a cheque for all the amount not including the labour. Charlie told him he didn’t want to do that as he’s had problems in the past with companies going bankrupt and he didn’t get anything. The salesman was pretty annoyed and said you should have checked with the Better Business Bureau. He claimed his company was very reliable and he still needed a cheque before the carpeting could be laid.
When we told Mom and Dad we needed a cheque for the full amount Dad said no way! I explained to them that the salesman said they wouldn’t lay the carpeting without the money. They sure weren’t happy. Later I told Mom about the salesman saying Charlie should have phoned the Better Business Bureau. Mom said tomorrow I’m phoning them.
We went to Mom and Dad’s at four thirty. I fed Samantha after we had our dinner. We came home around nine o’clock.
No Tests
Medication
Sod Sol 11:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 2, 1990
Samantha ate at nine, one and six o’clock.
Alex seems to be having fun playing with the other kids. I’m just glad I don’t have to go to the school to pick him up. I don’t mind going to the school but some of the mothers are such snobs it’s unbelievable. I couldn’t never understand people like that.
This morning Mom phones to tell us she cancelled the order with Dream Carpets. The Better Business Bureau said they’ve had six complaints so far this year and most of the people still didn’t get the job done right. Mom said she put a stop payment on the deposit cheque.
They asked us to meet them at another carpeting place. It’s call J & R Carpeting. What a difference in the two stores. Dream Carpets was such a dump, the ceiling was leaking and they had junk all over the place.
We picked out the carpeting and the salesman said he would be out to measure tomorrow.
No Tests
Medication
Bactrim 10:00 a.m. ------ 8:30 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Methotrexiate ------ ------ 8:30 p.m.
July 3, 1990
Samantha ate at eight, twelve and six o’clock.
The salesman came this morning to measure for the carpeting. He told us the baseboards should come off. Charlie doesn’t want to take them off.
Mom phoned to tell me the salesman phoned them. He said I don’t think your son-in-law understood that the baseboards have to come off. I said he told us it would look better not that they had to come off.
Charlie took them off but with a lot of grumbling.
Then the fun began we had to get everything out of the living room, dining room, Alex’s room and Samantha’s room. What a job it’s like moving all over again.
Anyways today finally came for them to lay the carpeting. Charlie had quite a few arguments with the layers. It didn’t help that they both smoked, luckily not in the house, they had their radio on and the one guy was singing away.
Alex, Samantha and I went to Mom and Dad’s for awhile. We all came back so Charlie could go to work.
The layers finally finished at six o’clock and Mom and Dad left shortly afterwards.
They had to glue the carpet to the stairs because of the ceramic tiles. The smell was something awful almost made me ill.
No Tests
Medication
Mercaptopurine ------. ----- 8:30 p.m.
July 4, 1990
Samantha ate at nine, one and six o’clock.
Now the fun begins on getting the house back in order. Yesterday Mom helped me vacuum the carpet bits up and there was a lot.
No tests
Medication
Bactrim 11:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 5, 1990
Samantha ate at nine, cone, and six o’clock.
It sure is nice having carpeting throughout the whole house. Especially in Samantha’s room. The floor really creaked before the carpeting was laid. It was hardwood floors under the carpet. Alex would run down the hall and then slide the rest of the way into the living room. He also slipped many times on the stairs on the ceramic tile. I thought it was a strange place for ceramic tiles.
It’s going to take awhile to get everything put away.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
July 6, 1990
It’s Mom’s birthday today, we’re having them over for dinner tomorrow. Charlie is on afternoon shift this week.
I phoned Mom to wish her a HAPPY BIRTHDAY!
Alex, Samantha and I went to McDonald’s drive through and came home.
No Tests
Medication
Bactrim 10:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
July 7, 1990
Samantha ate at nine, one and six o’clock.
I’ve been busy getting the house ready for Mom and Dad. Alex likes it when I make a cake and he puts sprinkles on the icing.
They came over around five and left at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
Diagnosis: Leukemia; June 15-19, 1990
June 15, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Prednisone —— —– 8:30 p.m.
Bactrim 9:00 a.m. —— 8:30 p.m.
Mercaptopurine —— —— 8:30 p.m.
June 16, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to Marty’s house after lunch. I picked him up at four o’clock.
Charlie brought home a take out of Chinese food for dinner.
No Tests
Medication
Mercaptopurine —– —- 9:00 p.m.
June 17, 1990
Samantha ate at eight, eleven, two and six o’clock.
We invited Mom and Dad over for dinner. It’s Father’s Day today.
Alex and Samantha bought Charlie a sprayer gun that attaches to the hose.
We bought Dad a case for his Nintendo games. He was really happy with it, so I was glad.
They stayed until nine o’clock.
No Tests
Medication
Mercaptopurine —— —— 9:00 p.m.
June 18, 1990
Samantha ate at eight, eleven, two and six o’clock.
I had to wake up early to listen to the radio. They announce whether or not they’ll have a sports day today. It’s been postponed from the 11th.
The announcer said ranch Park school would be having their sports day. It was a bit overcast but hopefully it won’t rain.
We met Mom and Dad at the school. Alex rode in the bike parade, I stayed with him while Charlie, Samantha, Mom and Dad went to find a seat.
Alex got a ribbon for being in the bike parade. The team captain came to get Alex then they gathered on the field.
There were nineteen stations with two rest stations included in the nineteen stations.
The stations had tug of war, needle in the haystack, dress up, egg carrying, tricycle race, water race, etc.
By the time they were about half way through Alex was pretty tired. It didn’t help that Lindsey was fighting with him. It was too bad one of his friends couldn’t have been on his team.
Near the end of the races Alex said he had enough and was going to sit down. I told him he couldn’t he had to stay with his team until the end. Alex wasn’t too happy to say the least.
Finally the station races were over, Alex’s team won first place! I thought that was really good. Alex was happy to get his ribbon.
Mom and Dad left after lunch. Alex decided he wanted to go in the running race.
Alex’s class had decided that Carter and Scott would win in the running race. So some of the kids didn’t want to go in it because of that. In face Patrick didn’t want to go to Sports day period because of that. It was too bad they made such a big deal over Carter and Steve winning the running race.
Anyways I went down with Alex to the race. I put him at the starting line while I went to the finish line. Charlie stayed with Samantha. She has been really good throughout the while time.
Alex ran a really good race in fact he came in 3rd place. I was really surprised and so was Alex! I found out later Carter won 1st place. I never found out who won 2nd place. I told Alex I was really proud of him. It sure made Alex’s day!
Wendy (Sabrynna’s mom) asked what Alex had gotten. It old her 3rd place and we were really proud of him. She said Sabrynna came in 1st place. I said that’s really good.
There weren’t too many races left then we all helped to clean up the grounds.
We came home around two o’clock. Charlie went to work while we went to Mom and Dad’s. Alex wanted to show them his ribbons. Mom asked us to stay for dinner.
We came home around eight o’clock.
No Tests
Medication
Bactrim 9:00 a.m. —— 9:00 p.m.
Mercaptopurine —— —– 9:00 p.m.
Methotrexiate ——- —– 9:00 p.m.
June 19, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ——- —— 8:30 p.m.
June 20, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today. Marty came home after school. He sure is a quiet child. He hardly ever talks to me.
No Tests
Medication
Bactrim 10:00 a.m. —– —— 9:00 p.m.
Mercaptopurine ——- —— 9:00 p.m.
June 21, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today.
It’s Joan’s birthday today, she’s 37 years old today. She’s expecting her fourth child. History has repeated itself, Mom was pregnant with her fourth child at 37 as well.
No Tests
Medication
Mercaptopurine ——- —— 8:30 p.m.
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Prednisone —— —– 8:30 p.m.
Bactrim 9:00 a.m. —— 8:30 p.m.
Mercaptopurine —— —— 8:30 p.m.
June 16, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to Marty’s house after lunch. I picked him up at four o’clock.
Charlie brought home a take out of Chinese food for dinner.
No Tests
Medication
Mercaptopurine —– —- 9:00 p.m.
June 17, 1990
Samantha ate at eight, eleven, two and six o’clock.
We invited Mom and Dad over for dinner. It’s Father’s Day today.
Alex and Samantha bought Charlie a sprayer gun that attaches to the hose.
We bought Dad a case for his Nintendo games. He was really happy with it, so I was glad.
They stayed until nine o’clock.
No Tests
Medication
Mercaptopurine —— —— 9:00 p.m.
June 18, 1990
Samantha ate at eight, eleven, two and six o’clock.
I had to wake up early to listen to the radio. They announce whether or not they’ll have a sports day today. It’s been postponed from the 11th.
The announcer said ranch Park school would be having their sports day. It was a bit overcast but hopefully it won’t rain.
We met Mom and Dad at the school. Alex rode in the bike parade, I stayed with him while Charlie, Samantha, Mom and Dad went to find a seat.
Alex got a ribbon for being in the bike parade. The team captain came to get Alex then they gathered on the field.
There were nineteen stations with two rest stations included in the nineteen stations.
The stations had tug of war, needle in the haystack, dress up, egg carrying, tricycle race, water race, etc.
By the time they were about half way through Alex was pretty tired. It didn’t help that Lindsey was fighting with him. It was too bad one of his friends couldn’t have been on his team.
Near the end of the races Alex said he had enough and was going to sit down. I told him he couldn’t he had to stay with his team until the end. Alex wasn’t too happy to say the least.
Finally the station races were over, Alex’s team won first place! I thought that was really good. Alex was happy to get his ribbon.
Mom and Dad left after lunch. Alex decided he wanted to go in the running race.
Alex’s class had decided that Carter and Scott would win in the running race. So some of the kids didn’t want to go in it because of that. In face Patrick didn’t want to go to Sports day period because of that. It was too bad they made such a big deal over Carter and Steve winning the running race.
Anyways I went down with Alex to the race. I put him at the starting line while I went to the finish line. Charlie stayed with Samantha. She has been really good throughout the while time.
Alex ran a really good race in fact he came in 3rd place. I was really surprised and so was Alex! I found out later Carter won 1st place. I never found out who won 2nd place. I told Alex I was really proud of him. It sure made Alex’s day!
Wendy (Sabrynna’s mom) asked what Alex had gotten. It old her 3rd place and we were really proud of him. She said Sabrynna came in 1st place. I said that’s really good.
There weren’t too many races left then we all helped to clean up the grounds.
We came home around two o’clock. Charlie went to work while we went to Mom and Dad’s. Alex wanted to show them his ribbons. Mom asked us to stay for dinner.
We came home around eight o’clock.
No Tests
Medication
Bactrim 9:00 a.m. —— 9:00 p.m.
Mercaptopurine —— —– 9:00 p.m.
Methotrexiate ——- —– 9:00 p.m.
June 19, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ——- —— 8:30 p.m.
June 20, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today. Marty came home after school. He sure is a quiet child. He hardly ever talks to me.
No Tests
Medication
Bactrim 10:00 a.m. —– —— 9:00 p.m.
Mercaptopurine ——- —— 9:00 p.m.
June 21, 1990
Samantha ate at eight, eleven two and six o’clock.
Alex went to school today.
It’s Joan’s birthday today, she’s 37 years old today. She’s expecting her fourth child. History has repeated itself, Mom was pregnant with her fourth child at 37 as well.
No Tests
Medication
Mercaptopurine ——- —— 8:30 p.m.
Monday, June 9, 2014
Diagnosis: Leukemia; June 8-14, 1990
June 8, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim 10:00 a.m. ----- 8:30 p.m.
June 9, 1990
Samantha ate at eight, eleven, two and six o’clock.
We went out in the afternoon.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
June 10, 1990
Samantha ate at nine, twelve, three and six thirty.
We dropped by Mom and Dad’s after dinner. We came home at eight o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 8:30 p.m.
June 11, 1990
Samantha ate at eight, eleven, two and six o’clock.
I took Alex to the hospital this morning. Charlie is on afternoon shift so he stayed home with Samantha.
Alex had his blood test not long after we got there. We saw Dr. C, I asked her when Alex would go off treatment. I had been told the end of July which would make only a few weeks after the next appointment. Dr.C said Alex would come off treatment as of the next appointment, July 9 Alex would have to have an LP and a bone marrow test. That would tell them how Alex’s body was doing in response to the chemotherapy.
Dr. C asked if Alex had an sedatives. I said no he’s allergic to them, Phenergan anyways. She said there is a new sedative given by I.V. with any drug there are side affects. Children can feel drowsy, have slurred speech and in one case a child’s oxygen stopped. She said we gave him oxygen and he was fine. I wasn’t too thrilled about that. Alex already had an allergic reaction. I don’t like to take chances.
Dr. C said well you can make up your mind and let us know next time you come in.
Alex wanted to go to the cafeteria of course! Then we came back to the clinic.
Alex had his chemo then we were able to come home.
By the time we got home it was time for Charlie to get ready to go to work.
Tests
WBC 2.0
HGB 13.2
Platelets 292
ANC 1120
Medication
Bactrim 9:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Methotrexiate ------ ----- 9:00 p.m.
Prednisone ------ ----- 9:00 p.m.
June 12, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex didn’t go to school yesterday, so he was happy to go today.
No Tests
Medication
Mercaptopurine ------ ---- 8:30 p.m.
Prednisone ------ ----- 8:30 p.m.
June 13, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today. When he came out of the class, he asked me if Carter could come over tomorrow. We asked Miriam and she said that would be okay.
No Tests
Medication
Bactrim 8:30 a.m. ----- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Prednisone ----- ----- 9:00 p.m.
June 14, 1990
Samantha ate at eight, eleven, two and six o’clock.
Carter came over after school. He seems to be more mature than some of the other kids. What strikes me is his attitude towards other parents. He acts well mannered but when he thinks you’re not around he makes remarks and starts laughing. It’s just not something I feel comfortable with. This must be the first friend of Alex’s I haven’t cared for in that way.
No Tests
Medication
Prednisone ------ ----- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim 10:00 a.m. ----- 8:30 p.m.
June 9, 1990
Samantha ate at eight, eleven, two and six o’clock.
We went out in the afternoon.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
June 10, 1990
Samantha ate at nine, twelve, three and six thirty.
We dropped by Mom and Dad’s after dinner. We came home at eight o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 8:30 p.m.
June 11, 1990
Samantha ate at eight, eleven, two and six o’clock.
I took Alex to the hospital this morning. Charlie is on afternoon shift so he stayed home with Samantha.
Alex had his blood test not long after we got there. We saw Dr. C, I asked her when Alex would go off treatment. I had been told the end of July which would make only a few weeks after the next appointment. Dr.C said Alex would come off treatment as of the next appointment, July 9 Alex would have to have an LP and a bone marrow test. That would tell them how Alex’s body was doing in response to the chemotherapy.
Dr. C asked if Alex had an sedatives. I said no he’s allergic to them, Phenergan anyways. She said there is a new sedative given by I.V. with any drug there are side affects. Children can feel drowsy, have slurred speech and in one case a child’s oxygen stopped. She said we gave him oxygen and he was fine. I wasn’t too thrilled about that. Alex already had an allergic reaction. I don’t like to take chances.
Dr. C said well you can make up your mind and let us know next time you come in.
Alex wanted to go to the cafeteria of course! Then we came back to the clinic.
Alex had his chemo then we were able to come home.
By the time we got home it was time for Charlie to get ready to go to work.
Tests
WBC 2.0
HGB 13.2
Platelets 292
ANC 1120
Medication
Bactrim 9:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Methotrexiate ------ ----- 9:00 p.m.
Prednisone ------ ----- 9:00 p.m.
June 12, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex didn’t go to school yesterday, so he was happy to go today.
No Tests
Medication
Mercaptopurine ------ ---- 8:30 p.m.
Prednisone ------ ----- 8:30 p.m.
June 13, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today. When he came out of the class, he asked me if Carter could come over tomorrow. We asked Miriam and she said that would be okay.
No Tests
Medication
Bactrim 8:30 a.m. ----- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Prednisone ----- ----- 9:00 p.m.
June 14, 1990
Samantha ate at eight, eleven, two and six o’clock.
Carter came over after school. He seems to be more mature than some of the other kids. What strikes me is his attitude towards other parents. He acts well mannered but when he thinks you’re not around he makes remarks and starts laughing. It’s just not something I feel comfortable with. This must be the first friend of Alex’s I haven’t cared for in that way.
No Tests
Medication
Prednisone ------ ----- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Tuesday, June 3, 2014
Diagnosis: Leukemia; June 1-7, 1990
June 1, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today. It won’t be long until school is over. It’ll be nice to have Alex home. At least we’ll be able to go out any time we want.
No Tests
Medication
Bactrim 10:00 a.m. ----- 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
June 2, 1990
Samantha ate at eight, eleven, two and six o’clock.
We went out shopping, Charlie brought dinner home.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
June 3, 1990
Samantha ate at nine, twelve, three and six thirty.
We dropped by Mom and Dad’s after dinner and came home at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 10:00 p.m.
June 4, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
Methotrexiate ------- ----- 9:00 p.m.
June 5, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
June 6, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim 10:00 a.m. ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
June 7, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today. It won’t be long until school is over. It’ll be nice to have Alex home. At least we’ll be able to go out any time we want.
No Tests
Medication
Bactrim 10:00 a.m. ----- 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
June 2, 1990
Samantha ate at eight, eleven, two and six o’clock.
We went out shopping, Charlie brought dinner home.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
June 3, 1990
Samantha ate at nine, twelve, three and six thirty.
We dropped by Mom and Dad’s after dinner and came home at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 10:00 p.m.
June 4, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
Methotrexiate ------- ----- 9:00 p.m.
June 5, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
June 6, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Bactrim 10:00 a.m. ----- 9:00 p.m.
Mercaptopurine ------ ------ 9:00 p.m.
June 7, 1990
Samantha ate at eight, eleven, two and six o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
Diagnosis: Leukemia; May 29-31, 1990
May 29, 1990
Samantha woke up at eight o’clock. After I fed her I put her back to her crib.
Alex woke up at nine o’clock. I told him to have a shower while I made breakfast.
After breakfast I had a shower and got dressed. I made pear puree for Samantha. I gave it to her for lunch with cereal but she didn’t like it at all. She spat most of it out.
When we went to school we had to take our telephone number and address for Susie, a library book, large paper bag, mozzarella cheese and a couple of order forms. Then when we got there I promptly forgot the order forms. I told Mrs. Wall I would come back with them but she said to bring them after school.
Sam and I went to Pharmasave and the Video Stop. I rented a movie for tonight then we came home.
Samantha had a nap while I had my lunch.
Mom phoned to tell me I had mail and they had gone to see Dr. F. They seemed to like her. Mom bought Alex his Christmas present today.
After lunch I cleaned up, did the dishes and the laundry. Then I phoned Marla and invited them for lunch next Wednesday. She said Paxton had the flu yesterday.
I picked Alex and Neil up from school and came home.
Samantha is a bit irritable from having her shot yesterday. She doesn’t have a temperature which is good.
Unfortunately Alex wanted to go outside which he ended up playing with Luke more than Neil. I called him a few times to explain this but all he got was mad. He told me to quit bugging him.
Neil’s father phoned to say he would be coming in five minutes. Charlie called them in, Alex didn’t want to come in. He cried and cried. I told him to stop it but of course he didn’t. I said just go outside there’s no point in staying in the house.
Neil’s dad came at five o’clock. We had dinner at five thirty.
Wanda came to the door while we were eating. I told Alex to get the door and tell whoever it was that he couldn’t play. Alex cried again and said he wouldn’t open the door I told him to open the door now. Finally Alex did and he was pretty upset when he came back to the table.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
May 30, 1990
Samantha ate at eight, eleven, two and six o’clock. Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
May 31, 1990
Samantha ate at eight, eleven, two and six o’clock. Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Samantha woke up at eight o’clock. After I fed her I put her back to her crib.
Alex woke up at nine o’clock. I told him to have a shower while I made breakfast.
After breakfast I had a shower and got dressed. I made pear puree for Samantha. I gave it to her for lunch with cereal but she didn’t like it at all. She spat most of it out.
When we went to school we had to take our telephone number and address for Susie, a library book, large paper bag, mozzarella cheese and a couple of order forms. Then when we got there I promptly forgot the order forms. I told Mrs. Wall I would come back with them but she said to bring them after school.
Sam and I went to Pharmasave and the Video Stop. I rented a movie for tonight then we came home.
Samantha had a nap while I had my lunch.
Mom phoned to tell me I had mail and they had gone to see Dr. F. They seemed to like her. Mom bought Alex his Christmas present today.
After lunch I cleaned up, did the dishes and the laundry. Then I phoned Marla and invited them for lunch next Wednesday. She said Paxton had the flu yesterday.
I picked Alex and Neil up from school and came home.
Samantha is a bit irritable from having her shot yesterday. She doesn’t have a temperature which is good.
Unfortunately Alex wanted to go outside which he ended up playing with Luke more than Neil. I called him a few times to explain this but all he got was mad. He told me to quit bugging him.
Neil’s father phoned to say he would be coming in five minutes. Charlie called them in, Alex didn’t want to come in. He cried and cried. I told him to stop it but of course he didn’t. I said just go outside there’s no point in staying in the house.
Neil’s dad came at five o’clock. We had dinner at five thirty.
Wanda came to the door while we were eating. I told Alex to get the door and tell whoever it was that he couldn’t play. Alex cried again and said he wouldn’t open the door I told him to open the door now. Finally Alex did and he was pretty upset when he came back to the table.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
May 30, 1990
Samantha ate at eight, eleven, two and six o’clock. Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
May 31, 1990
Samantha ate at eight, eleven, two and six o’clock. Alex went to school today.
No Tests
Medication
Bactrim ------ ----- 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
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