I woke up at nine o’clock, I gave Alex a bath and got him dressed. Then he had breakfast and watched TV.
I vacuumed upstairs and downstairs then I washed all the floors.
I made Alex go for a nap after lunch. Which he didn’t want to do but he was pretty tired.
Alex was suppose to go to gym class today but I felt it would be better for him to rest more.
Alex and I watched Mary Poppins then Charlie came home from work.
Charlie went to Save-On-Foods while I was cooking dinner. When he came back he said the clerk told him to get out of the store, there was a bomb scare. Charlie said people were actually waiting outside to go back into the store.
After dinner Alex and I went downstairs to exercise then we played video games.
I got Alex ready for bed at eight thirty but he didn’t fall asleep until ten o’clock.
I wrote in the journal and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.32C 11:00 a.m. 36.58C 5:30 p.m.
Thursday, May 31, 2012
Diagnosis: Leukemia; May 30, 1988
I woke up at nine o’clock, Alex seems pretty cranky today. Not enough sleep I suppose. Alex had breakfast but he only ate about a quarter of it. After breakfast I got him a blanket and he watched TV.
I had a shower and got dressed. Actually I cleaned the bathrooms first.
After lunch we went to see Dr. W, he said Alex didn’t have the mumps that mumps would have gone by now. Dr. W said Alex didn’t have anything wrong with his glands from Chemotherapy. The doctor said it looked like Alex had eaten a few extra groceries. He told me that a mump test could take up to six weeks to do.
I told Dr. W we lived near a power tower and had he seen the study that had been done on it. Dr. W said he hadn’t seen it.
When we got home I got to thinking about what he had said. It seems to me that he really didn’t know why Alex’s jaw line was swollen. Alex also has a rash were it is swollen on the right side.
Alex watched tv while I did some work around the house.
Charlie came home at four o’clock. When Charlie came into our bedroom where Alex was watching tv, Alex said to Charlie “Get out of here!” Which made Charlie mad and he said to Alex what’s the matter with you. I told Charlie Alex wasn’t feeling good and it was better to leave him alone. Charlie said I didn’t do anything and Alex screamed at me. I said I know but there’s still no point in talking to him.
I phoned Shirley to wish her Happy Birthday at work earlier but the line was busy.
We ate dinner at five thirty. After dinner Alex and I played video games. Then we went outside and did some gardening. Charlie cut the grass and I put the top soil around the trees. We moved one of the Maple trees by the stairs to the right side of the yard.
We came inside and Alex went to bed at nine o’clock.
I wrote in the journal and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:20 a.m. ------- 5:30 a.m.
Mercaptopurine ------ ------ 5:30 a.m.
Methotrexiate ------- 4:30 p.m. ------
Temperature 36.13C 9:20 a.m. 36.07C 5:30 p.m.
I had a shower and got dressed. Actually I cleaned the bathrooms first.
After lunch we went to see Dr. W, he said Alex didn’t have the mumps that mumps would have gone by now. Dr. W said Alex didn’t have anything wrong with his glands from Chemotherapy. The doctor said it looked like Alex had eaten a few extra groceries. He told me that a mump test could take up to six weeks to do.
I told Dr. W we lived near a power tower and had he seen the study that had been done on it. Dr. W said he hadn’t seen it.
When we got home I got to thinking about what he had said. It seems to me that he really didn’t know why Alex’s jaw line was swollen. Alex also has a rash were it is swollen on the right side.
Alex watched tv while I did some work around the house.
Charlie came home at four o’clock. When Charlie came into our bedroom where Alex was watching tv, Alex said to Charlie “Get out of here!” Which made Charlie mad and he said to Alex what’s the matter with you. I told Charlie Alex wasn’t feeling good and it was better to leave him alone. Charlie said I didn’t do anything and Alex screamed at me. I said I know but there’s still no point in talking to him.
I phoned Shirley to wish her Happy Birthday at work earlier but the line was busy.
We ate dinner at five thirty. After dinner Alex and I played video games. Then we went outside and did some gardening. Charlie cut the grass and I put the top soil around the trees. We moved one of the Maple trees by the stairs to the right side of the yard.
We came inside and Alex went to bed at nine o’clock.
I wrote in the journal and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 9:20 a.m. ------- 5:30 a.m.
Mercaptopurine ------ ------ 5:30 a.m.
Methotrexiate ------- 4:30 p.m. ------
Temperature 36.13C 9:20 a.m. 36.07C 5:30 p.m.
Wednesday, May 30, 2012
Diagnosis: Leukemia; May 29, 1988
I woke up before nine o’clock, Alex had gotten up earlier and Charlie had given him breakfast.
I had breakfast then I had a bath. Usually if I have a bath I don’t feel so tired. Today I feel like I didn’t sleep at all.
I was planning on doing some gardening but when I got outside it started to pour.
I decided to tidy up the house, it seems to be always in a mess. I did the dishes and made the beds.
Mom had invited us for dinner. By the time we got ready it was three o’clock. Alex had a nap after lunch and slept until just before three o’clock.
Mom was just getting dinner ready when we got there. We had breaded veal cutlets which was a really nice change from roast beef. We brought strawberries for dessert.
Alex wasn’t feeling that good. He kept on arguing with me. I had to slap his hand because he started to hit me. Then Alex stepped on my foot which felt like the skin was coming off.
We left at eight o’clock, I had enough of Alex arguing with me for one day.
When we got home I put Alex to bed. He didn’t fall asleep until eleven o’clock. At ten o’clock Alex asked for a snack, he said I can’t wait, I can’t wait.
I watched TV then I went to bed at eleven thirty.
No tests
Medicine
Mercaptopurine ------ -------- 6:00 p.m.
Temperature 36.80C 9:00 a.m.
I had breakfast then I had a bath. Usually if I have a bath I don’t feel so tired. Today I feel like I didn’t sleep at all.
I was planning on doing some gardening but when I got outside it started to pour.
I decided to tidy up the house, it seems to be always in a mess. I did the dishes and made the beds.
Mom had invited us for dinner. By the time we got ready it was three o’clock. Alex had a nap after lunch and slept until just before three o’clock.
Mom was just getting dinner ready when we got there. We had breaded veal cutlets which was a really nice change from roast beef. We brought strawberries for dessert.
Alex wasn’t feeling that good. He kept on arguing with me. I had to slap his hand because he started to hit me. Then Alex stepped on my foot which felt like the skin was coming off.
We left at eight o’clock, I had enough of Alex arguing with me for one day.
When we got home I put Alex to bed. He didn’t fall asleep until eleven o’clock. At ten o’clock Alex asked for a snack, he said I can’t wait, I can’t wait.
I watched TV then I went to bed at eleven thirty.
No tests
Medicine
Mercaptopurine ------ -------- 6:00 p.m.
Temperature 36.80C 9:00 a.m.
Tuesday, May 29, 2012
Diagnosis: Leukemia; May 28, 1988
I was able to sleep until nine thirty this morning. I had told Charlie I was so tired and that I needed to sleep in. Alex did come in and asked if his temperature should be taken around eight o’clock. I got up but I still felt pretty tired. I had breakfast, a shower and got dressed. I tried tidying up the house but I just didn’t have the energy to do it.
After lunch we went to Capilano mall. As soon as we got there Alex said he was hungry. Charlie bought him some fires and a drink. Alex also said he couldn’t walk but we hadn’t brought the stroller so Charlie got a shopping cart.
We looked around the stores. Charlie had seen in the paper that Cotton Ginny was having a sale. He said he would give me the money for some clothes. I got a pair of pants and a t-shirt. I thought that was really nice of him.
Then we went to a Won-Ton House for dinner. We came home at seven o’clock.
Alex and I played some video games then he went to bed. I went to bed at nine thirty.
No tests
Medicine
Mercaptopurine ------ ------- 7:45 p.m.
Temperature 36.46C 12:45 p.m. 36.73C 7:45 p.m.
After lunch we went to Capilano mall. As soon as we got there Alex said he was hungry. Charlie bought him some fires and a drink. Alex also said he couldn’t walk but we hadn’t brought the stroller so Charlie got a shopping cart.
We looked around the stores. Charlie had seen in the paper that Cotton Ginny was having a sale. He said he would give me the money for some clothes. I got a pair of pants and a t-shirt. I thought that was really nice of him.
Then we went to a Won-Ton House for dinner. We came home at seven o’clock.
Alex and I played some video games then he went to bed. I went to bed at nine thirty.
No tests
Medicine
Mercaptopurine ------ ------- 7:45 p.m.
Temperature 36.46C 12:45 p.m. 36.73C 7:45 p.m.
Monday, May 28, 2012
Diagnosis: Leukemia; May 27, 1988
Alex woke me up at eight thirty. I made breakfast, had a shower and got dressed. I tided up the house, did a number of loads of laundry, changed the sheets on Alex’s bed and did the dishes.
I phoned Allison to see if we were still getting together for lunch. She said give us five minutes we just got back.
Alex had been talking about Kurt all week. He really enjoys going over there for lunch.
Alex was really excited to hear that we could go. He wanted to wear his raincoat over to show Kurt and Allison
The kids enjoyed themselves they had a good time playing together. Allison has a cold so she didn’t sound that great.
As usual I had a hard time getting Alex to leave. Erin was over she stays at Allison’s and Mac comes to pick her up at five. Rayon works form Thursday to Sunday.
By the time we left it was four thirty, I’m sure Allison was glad to see us go! It was quite a house full with all the kids.
When we got home Charlie was back. Alex asked if we could go out for dinner.
We left at five o’clock, we went to the bank then we went to Boston Pizza.
After dinner we went to the mall. The Bay had comforters on sale for $19.99 we got one for our bed. It sure is a lot nicer than our old one. It’s beige, pink and grey and has nice big flowers on it. It sure matches our bedroom.
We came home around eight o’clock. Alex and I played video games for awhile then he went to bed.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:30 a.m. 9:00 p.m.
Mercaptopurine ------ ------ 6:30 p.m.
Temperature 36.41C 8:30 a.m.
I phoned Allison to see if we were still getting together for lunch. She said give us five minutes we just got back.
Alex had been talking about Kurt all week. He really enjoys going over there for lunch.
Alex was really excited to hear that we could go. He wanted to wear his raincoat over to show Kurt and Allison
The kids enjoyed themselves they had a good time playing together. Allison has a cold so she didn’t sound that great.
As usual I had a hard time getting Alex to leave. Erin was over she stays at Allison’s and Mac comes to pick her up at five. Rayon works form Thursday to Sunday.
By the time we left it was four thirty, I’m sure Allison was glad to see us go! It was quite a house full with all the kids.
When we got home Charlie was back. Alex asked if we could go out for dinner.
We left at five o’clock, we went to the bank then we went to Boston Pizza.
After dinner we went to the mall. The Bay had comforters on sale for $19.99 we got one for our bed. It sure is a lot nicer than our old one. It’s beige, pink and grey and has nice big flowers on it. It sure matches our bedroom.
We came home around eight o’clock. Alex and I played video games for awhile then he went to bed.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:30 a.m. 9:00 p.m.
Mercaptopurine ------ ------ 6:30 p.m.
Temperature 36.41C 8:30 a.m.
Sunday, May 27, 2012
Diagnosis: Leukemia; May 26, 1988
Alex and I got up at nine o’clock. He’s still not feeling that great. He’s still got his cold and cough, his jaw line is still swollen and he feels tired. He’s not so energetic.
We had breakfast then I had a shower and got dressed. I tided up the house and did the dishes, after lunch we went to Dinosaur delight.
I came home while he was at the class and tided up the house some more, it was in a terrible mess. I wrapped some prizes for Alex’s bucket. Then it was time to go and get him.
We came home and Alex went into our room to watch TV.
Charlie came home at four o’clock. We ate dinner at five thirty. After dinner Alex and I played video games. Alex is getting pretty good at Robotron, he can get to level five now.
Alex went to bed at eight o’clock. I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 5:30 p.m.
Temperature 35.79 10:00 a.m.
We had breakfast then I had a shower and got dressed. I tided up the house and did the dishes, after lunch we went to Dinosaur delight.
I came home while he was at the class and tided up the house some more, it was in a terrible mess. I wrapped some prizes for Alex’s bucket. Then it was time to go and get him.
We came home and Alex went into our room to watch TV.
Charlie came home at four o’clock. We ate dinner at five thirty. After dinner Alex and I played video games. Alex is getting pretty good at Robotron, he can get to level five now.
Alex went to bed at eight o’clock. I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------- 5:30 p.m.
Temperature 35.79 10:00 a.m.
Saturday, May 26, 2012
Diagnosis: Leukemia; May 25, 1988
Alex woke me up at eight o’clock. He wanted his breakfast. I made breakfast then I had a shower and got dressed.
After lunch I took Alex to Mini Sport. Alex said he couldn’t run around.
After the class we came home. Alex watched TV in our bedroom. He seemed to be quite tired.
Charlie came home at four o’clock. I started to cook dinner shortly afterwards. We ate dinner at six o’clock.
After dinner we watched TV. Alex went to bed at nine o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:30 a.m. ------ 9:00 p.m.
Mercaptopurine ------- ------- 9:00 p.m.
Temperature 36.12C 8:30 a.m.
Friday, May 25, 2012
Diagnosis: Leukemia; May 24, 1988
I woke up at eight thirty. I phoned Dr. W and they said they would give him the message. Dr. W phoned back at nine thirty. I told him I was concerned about Alex, the swelling hasn’t gone down yet and on Saturday the other side was swollen. He said he was going to phone the hospital and wanted me to phone five minutes later. Dr. W said he wanted the hospital to explain what chemotherapy can do to a patients glands.
I phoned the hospital and they said to come in at one o’clock. I asked them if we could come at three o’clock instead. Joan checked and said that was okay.
I had a shower and got dressed. Alex and I went to the bank and McDonald’s. We came home and had lunch.
We took Kurt to gym class, they had “friend day” today. There was about twenty kids there. The parents were told to stay and supervise their child and his or her friend. It sure was exhausting following Alex and Kurt around. They didn’t stay on anything for very long. The last twenty minutes the instructors made up games for the kids to do.
We took Kurt home, Nora invited us in but I told her I had to take Alex to the hospital. Nora said I hope it’s nothing serious. I told her my doctor thought it was from Chemotherapy.
We went to the hospital and got there before three o’clock. Alex and I played some games while we waited. We saw Dr. R, I told him all Alex’s symptoms. Dr. R said Alex had the mumps, but he said they would do a test to confirm it. I asked Dr. R if Alex could be around other children. He said Alex couldn’t be around his kids but other kids would be okay. He told us to wait in the room for the tests. Mary did a blood test and Heather took a throat swab.
Heather asked us to go out the back door so we wouldn’t infect anyone.
We went to Mom and Dad’s, Mom had invited us over. We had dinner then Mom and Dad watched the hockey game on TV.
Alex said he didn’t want me to leave him while I went to the Candlelighters meeting. It’s a support group for parents of Cancer patients.
Alex said he was really tired and wanted to lie down. I put him into Mom and Dad’s bed. Alex asked me to lie down with him. Alex fell asleep and about fifteen minutes later I left for the meeting.
When I got to the meeting there were three people there. The chairperson, her husband and another woman. The chairperson introduced herself and the other woman. They asked me who my child was and what type of Cancer he had. Both of their children had ALL and were about the same age as Alex. They said their kids were on radiation which surprised me. The other woman said her son was a high risk patient. The chairperson’s daughter had been given a double dose of Methotrexiate by the hospital.
Once the meeting got started we had to tell who we were, how many children we had, what our child had, and how they were doing. I do terrible in front of more than four people, so I had a hard time. I was the second person to speak and I got quite emotional. I cut my intro quite short but if I had carried on I know I would of broken down.
One of the women broke down and cried when she talked about her son. She has twin boys, one of the boys has a tumour around his pelvis and they were unable to operate. That’s all she could say.
I felt really badly for her it’s very hard talking to people about a sick child.
After everyone had done their intro, the chairperson told us some of the things they planned to do.
She explained that Candlelighters isn’t from the hospital. The hospital group would be having a meeting on June 21st. The group then decided to have their next meeting a week after the hospital.
The meeting finished before ten o’clock and I went to get Alex.
Mom had made me some tea and cake when I got back. Mom seemed quite anxious to hear about the meeting. I told her all about it. Then Alex woke up and we went home.
On the way home Alex asked why I hadn’t gone to the meeting. I told him I had gone. Alex was really surprised I had gone. He said I didn’t see you go. I said that’s because you were asleep.
When we got home we both went to bed. It was about eleven thirty by then.
Tests N/A
Medicine
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 35.43C 9:00 a.m.
I phoned the hospital and they said to come in at one o’clock. I asked them if we could come at three o’clock instead. Joan checked and said that was okay.
I had a shower and got dressed. Alex and I went to the bank and McDonald’s. We came home and had lunch.
We took Kurt to gym class, they had “friend day” today. There was about twenty kids there. The parents were told to stay and supervise their child and his or her friend. It sure was exhausting following Alex and Kurt around. They didn’t stay on anything for very long. The last twenty minutes the instructors made up games for the kids to do.
We took Kurt home, Nora invited us in but I told her I had to take Alex to the hospital. Nora said I hope it’s nothing serious. I told her my doctor thought it was from Chemotherapy.
We went to the hospital and got there before three o’clock. Alex and I played some games while we waited. We saw Dr. R, I told him all Alex’s symptoms. Dr. R said Alex had the mumps, but he said they would do a test to confirm it. I asked Dr. R if Alex could be around other children. He said Alex couldn’t be around his kids but other kids would be okay. He told us to wait in the room for the tests. Mary did a blood test and Heather took a throat swab.
Heather asked us to go out the back door so we wouldn’t infect anyone.
We went to Mom and Dad’s, Mom had invited us over. We had dinner then Mom and Dad watched the hockey game on TV.
Alex said he didn’t want me to leave him while I went to the Candlelighters meeting. It’s a support group for parents of Cancer patients.
Alex said he was really tired and wanted to lie down. I put him into Mom and Dad’s bed. Alex asked me to lie down with him. Alex fell asleep and about fifteen minutes later I left for the meeting.
When I got to the meeting there were three people there. The chairperson, her husband and another woman. The chairperson introduced herself and the other woman. They asked me who my child was and what type of Cancer he had. Both of their children had ALL and were about the same age as Alex. They said their kids were on radiation which surprised me. The other woman said her son was a high risk patient. The chairperson’s daughter had been given a double dose of Methotrexiate by the hospital.
Once the meeting got started we had to tell who we were, how many children we had, what our child had, and how they were doing. I do terrible in front of more than four people, so I had a hard time. I was the second person to speak and I got quite emotional. I cut my intro quite short but if I had carried on I know I would of broken down.
One of the women broke down and cried when she talked about her son. She has twin boys, one of the boys has a tumour around his pelvis and they were unable to operate. That’s all she could say.
I felt really badly for her it’s very hard talking to people about a sick child.
After everyone had done their intro, the chairperson told us some of the things they planned to do.
She explained that Candlelighters isn’t from the hospital. The hospital group would be having a meeting on June 21st. The group then decided to have their next meeting a week after the hospital.
The meeting finished before ten o’clock and I went to get Alex.
Mom had made me some tea and cake when I got back. Mom seemed quite anxious to hear about the meeting. I told her all about it. Then Alex woke up and we went home.
On the way home Alex asked why I hadn’t gone to the meeting. I told him I had gone. Alex was really surprised I had gone. He said I didn’t see you go. I said that’s because you were asleep.
When we got home we both went to bed. It was about eleven thirty by then.
Tests N/A
Medicine
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 35.43C 9:00 a.m.
Thursday, May 24, 2012
Diagnosis: Leukemia; May 23, 1988
Shirley phoned at nine o’clock and woke us up. She’s going to Science World and wondered if we wanted to come. Aaron was going to his parents in Surrey to help do the landscaping. I told her I would phone back. Charlie was getting out of bed.
We decided to go and went to meet Shirley and the kids down there at eleven o’clock. Brent and Alex really enjoyed everything, especially the dinosaurs. They’re so life like they gave me the creeps. The dinosaurs are made half the size as they were in real life. No wonder humans weren’t around yet! We decided to get a membership.
We all went to Whit Spot for a late lunch. The kids all had Dinosaur packs!
Brent kept on asking Shirley if he could go to Alex’s house to play. I told her they were welcome to come over. They stayed for about an hour then Monique started to complain. She was pretty tired.
Alex fell asleep at six o’clock., and woke up at nine o’clock. He said he was hungry, I got Alex finally went back to bed at eleven o’clock. I went to bed as well.
No tests
Medicine
Bactrim 9:30 a.m. -------- 6:00 p.m.
Mercaptopurine ------- ------- 6:00 p.m.
Methotrexiate ------- 6:000 p.m. --------
Temperature 36.21C 9:30 36.47C 6:00 p.m.
We decided to go and went to meet Shirley and the kids down there at eleven o’clock. Brent and Alex really enjoyed everything, especially the dinosaurs. They’re so life like they gave me the creeps. The dinosaurs are made half the size as they were in real life. No wonder humans weren’t around yet! We decided to get a membership.
We all went to Whit Spot for a late lunch. The kids all had Dinosaur packs!
Brent kept on asking Shirley if he could go to Alex’s house to play. I told her they were welcome to come over. They stayed for about an hour then Monique started to complain. She was pretty tired.
Alex fell asleep at six o’clock., and woke up at nine o’clock. He said he was hungry, I got Alex finally went back to bed at eleven o’clock. I went to bed as well.
No tests
Medicine
Bactrim 9:30 a.m. -------- 6:00 p.m.
Mercaptopurine ------- ------- 6:00 p.m.
Methotrexiate ------- 6:000 p.m. --------
Temperature 36.21C 9:30 36.47C 6:00 p.m.
Wednesday, May 23, 2012
Diagnosis: Leukemia; May 22, 1988
Alex woke me up last night at three o’clock. He said he needed a glass of milk. Then he came into bed with us and kept on talking to me. He told me when they went to White Spot they had the same dinosaurs that Grandma had gotten him. Then he asked me if I had a good time. Alex finally fell asleep at four o’clock.
Then Alex woke me up before eight o’clock, he said he wanted breakfast. I was hoping to sleep in until at least nine o’clock, too bad!
After breakfast I had a shower, got dressed and vacuumed the house.
Shirley phoned to say they would be coming over around two thirty.
Before one o’clock I told Alex to go for a nap. Alex was really mad that he had to go for a nap. He screamed and yelled and tried to get away. He finally fell asleep.
Shirley and Brent came over at 1:45 p.m. Alex was still asleep. Brent played video games while Shirley and I talked.
I woke Alex up at two thirty, but he said he was too tired to get up yet. Brent was really upset that he couldn’t play with Alex. When Shirley told Brent it was time to go he started to cry. Brent said but I didn’t get to play with Alex.
Alex woke up when they were leaving. I thought he would be really mad but when I told him Brent cried. Alex thought that was really funny. Charlie came home from work shortly afterwards. Mom had invited us for dinner, we left at four thirty.
Charlie stopped to buy gas, they were having a gas war at Turbo. They were selling it for $39.9 a litre.
We got to Mom and Dad’s at quarter after five. I thought we might be late but dinner wasn’t ready yet.
Alex was in a pretty good mood for having his nap today. We came home around ten o’clock. Alex went to bed and I watched TV and went to bed after eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 10:30 p.m.
Temperature 36.41 8:00 p.m.
Then Alex woke me up before eight o’clock, he said he wanted breakfast. I was hoping to sleep in until at least nine o’clock, too bad!
After breakfast I had a shower, got dressed and vacuumed the house.
Shirley phoned to say they would be coming over around two thirty.
Before one o’clock I told Alex to go for a nap. Alex was really mad that he had to go for a nap. He screamed and yelled and tried to get away. He finally fell asleep.
Shirley and Brent came over at 1:45 p.m. Alex was still asleep. Brent played video games while Shirley and I talked.
I woke Alex up at two thirty, but he said he was too tired to get up yet. Brent was really upset that he couldn’t play with Alex. When Shirley told Brent it was time to go he started to cry. Brent said but I didn’t get to play with Alex.
Alex woke up when they were leaving. I thought he would be really mad but when I told him Brent cried. Alex thought that was really funny. Charlie came home from work shortly afterwards. Mom had invited us for dinner, we left at four thirty.
Charlie stopped to buy gas, they were having a gas war at Turbo. They were selling it for $39.9 a litre.
We got to Mom and Dad’s at quarter after five. I thought we might be late but dinner wasn’t ready yet.
Alex was in a pretty good mood for having his nap today. We came home around ten o’clock. Alex went to bed and I watched TV and went to bed after eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------- 10:30 p.m.
Temperature 36.41 8:00 p.m.
Tuesday, May 22, 2012
Diagnosis: Leukemia; May 21, 1988
It’s Paige’s Birthday today, she’s one years old today!
Charlie has gone to work today. Alex woke me up at eight he wanted his breakfast. I really didn’t want to get up so early but anyways.
After I had gotten Alex and my breakfast. I did the dishes, made the beds and tided up the house.
In the afternoon we went to the bank and London Drugs.
When we came home I wrapped Shirley’s birthday present. Shirley said she would be over at six thirty. I’m taking her out for her birthday which is on the 30th.
Charlie and Alex went to White Spot. Alex has been asking us to take him there since he found out they have dinosaurs for sale.
Shirley and I went to P.J.’s for dinner. We talked for quite awhile we left at nine o’clock.
I phoned Charlie to see if Alex was in bed yet. I wanted to make sure he was okay before we went to the movie.
We saw Bright Lights Big city, Michael J. Fox was starring in it. It was a good movie but not as good as his previous movies.
After the movie we came home. Shirley thanked me for everything, then she left.
I felt really depressed when I got home. I went to bed at midnight.
No tests
Medicine
Mercaptopurine -------- --------- 5:00 p.m.
Temperature 35.78 8:30 a.m. 36.96C 5:00 p.m.
Charlie has gone to work today. Alex woke me up at eight he wanted his breakfast. I really didn’t want to get up so early but anyways.
After I had gotten Alex and my breakfast. I did the dishes, made the beds and tided up the house.
In the afternoon we went to the bank and London Drugs.
When we came home I wrapped Shirley’s birthday present. Shirley said she would be over at six thirty. I’m taking her out for her birthday which is on the 30th.
Charlie and Alex went to White Spot. Alex has been asking us to take him there since he found out they have dinosaurs for sale.
Shirley and I went to P.J.’s for dinner. We talked for quite awhile we left at nine o’clock.
I phoned Charlie to see if Alex was in bed yet. I wanted to make sure he was okay before we went to the movie.
We saw Bright Lights Big city, Michael J. Fox was starring in it. It was a good movie but not as good as his previous movies.
After the movie we came home. Shirley thanked me for everything, then she left.
I felt really depressed when I got home. I went to bed at midnight.
No tests
Medicine
Mercaptopurine -------- --------- 5:00 p.m.
Temperature 35.78 8:30 a.m. 36.96C 5:00 p.m.
Monday, May 21, 2012
Diagnosis: Leukemia; May 20, 1988
I woke up at nine o’clock. Alex wanted his breakfast. He’s not feeling well today. Alex had a fruit cup for breakfast then he went and watched TV. Alex asked me to get him a blanket.
Allison phoned and said she would have to cancel lunch today. She said Kurt had been throwing up for the past few days. Allison said she was going to take Kurt to the doctor and she would phone me back.
I told Alex we wouldn’t be going to Allison’s for lunch today that Kurt was sick. Alex started to cry and he said but I want to go to Kurt’s house. Then he said I’m going to go over there right now!
I phoned the dentist and was able to get an appointment for 11:30 a.m. Alex’s face is still swollen and I thought there might be something wrong with his teeth.
We left before eleven o’clock. Dr. E looked at Alex. I told him that Alex had been grinding his and that his jaw was all swollen. Dr. E said that Alex probably got a Charlie horse when he ground his teeth. He also said that it’s very painful.
I had my bottom teeth cleaned. Alex sat in the room with me and played with his cars.
We left at twelve thirty. I told Alex since he had been so good at the dentist I was taking him out for lunch. We went to Lougheed mall and shared lunch. We walked around the mall for awhile then we came home.
I phoned Mom but she wasn’t back from her dentist. She had to have a root canal done.
I talked to Allison and she’s quite concerned about Kurt. He hasn’t eaten anything for the past few days and isn’t able to keep anything down.
Mom phoned before four o’clock. She spent two hours at the dentist and they had to remove some of her gum when they did the root canal.
Charlie came home at four o’clock. We ate dinner at five thirty.
After dinner Alex and I went outside. Alex rode his bike with the other kids.
Alex went to bed at eight thirty. I watched tv and tided up the house. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------- 5:30 p.m.
Mercaptopurine -------- --------- 5:30 p.m.
Allison phoned and said she would have to cancel lunch today. She said Kurt had been throwing up for the past few days. Allison said she was going to take Kurt to the doctor and she would phone me back.
I told Alex we wouldn’t be going to Allison’s for lunch today that Kurt was sick. Alex started to cry and he said but I want to go to Kurt’s house. Then he said I’m going to go over there right now!
I phoned the dentist and was able to get an appointment for 11:30 a.m. Alex’s face is still swollen and I thought there might be something wrong with his teeth.
We left before eleven o’clock. Dr. E looked at Alex. I told him that Alex had been grinding his and that his jaw was all swollen. Dr. E said that Alex probably got a Charlie horse when he ground his teeth. He also said that it’s very painful.
I had my bottom teeth cleaned. Alex sat in the room with me and played with his cars.
We left at twelve thirty. I told Alex since he had been so good at the dentist I was taking him out for lunch. We went to Lougheed mall and shared lunch. We walked around the mall for awhile then we came home.
I phoned Mom but she wasn’t back from her dentist. She had to have a root canal done.
I talked to Allison and she’s quite concerned about Kurt. He hasn’t eaten anything for the past few days and isn’t able to keep anything down.
Mom phoned before four o’clock. She spent two hours at the dentist and they had to remove some of her gum when they did the root canal.
Charlie came home at four o’clock. We ate dinner at five thirty.
After dinner Alex and I went outside. Alex rode his bike with the other kids.
Alex went to bed at eight thirty. I watched tv and tided up the house. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 10:00 a.m. ------- 5:30 p.m.
Mercaptopurine -------- --------- 5:30 p.m.
Sunday, May 20, 2012
Diagnosis: Leukemia; May 19, 1988
I woke up at nine o’clock to hear Alex say WHERE IS PA! I said he went to work. Alex said then you’ll have to take me to White Spot. I told him I wasn’t going to take him today and he would have to talk to Pa.
Mom had given Alex two Dinosaurs that they had gotten from White Spot. She had also given Alex posters and a dinosaurs shirt.
Alex had hot cereal for breakfast. I made bran muffins which Alex help make.
Alex watched TV while I had a shower and got dressed. When I was drying my hair Alex came in and said the phone is ringing but I’m not answering it. He’s like I was when I was a kid, I hated to answer the phone.
Mom had phoned and I phoned her back. She was wondering how Alex was.
I had phoned the dentist earlier to find out if the swelling on Alex’s jaw could be from Alex grinding his teeth. Megan said oh my kids use to get pinworms when there jaw swelled up but that’s not your problem. Some people have no brains. She knew that Alex has Leukemia so why say something so stupid. Megan said well we can’t fit you in today and the long weekend is coming so you’ll have to come on Tuesday at noon. That really annoyed me, if someone has a problem why not try and see them right away.
I forgot that’s gym day so I’ll have to cancel the appointment tomorrow.
Alex and I had lunch then we went to Dinosaur delight. I came home and did a lot of work around the house. After I picked Alex up form his class we went to Overwaite to get a few groceries.
We got home at three o’clock. Alex wanted a snack then he watched some of his shows on tv.
Charlie came home at four o’clock. We started to cook dinner and ate at five thirty. After dinner Alex and I played video games. Then we went outside for awhile.
Alex went to bed at nine o’clock. I watched tv and wrote in the journal. It’s eleven o’clock. I’m going to bed now.
No tests
Medicine
Mercaptopurine ------ ------- 5:30 p.m.
Mom had given Alex two Dinosaurs that they had gotten from White Spot. She had also given Alex posters and a dinosaurs shirt.
Alex had hot cereal for breakfast. I made bran muffins which Alex help make.
Alex watched TV while I had a shower and got dressed. When I was drying my hair Alex came in and said the phone is ringing but I’m not answering it. He’s like I was when I was a kid, I hated to answer the phone.
Mom had phoned and I phoned her back. She was wondering how Alex was.
I had phoned the dentist earlier to find out if the swelling on Alex’s jaw could be from Alex grinding his teeth. Megan said oh my kids use to get pinworms when there jaw swelled up but that’s not your problem. Some people have no brains. She knew that Alex has Leukemia so why say something so stupid. Megan said well we can’t fit you in today and the long weekend is coming so you’ll have to come on Tuesday at noon. That really annoyed me, if someone has a problem why not try and see them right away.
I forgot that’s gym day so I’ll have to cancel the appointment tomorrow.
Alex and I had lunch then we went to Dinosaur delight. I came home and did a lot of work around the house. After I picked Alex up form his class we went to Overwaite to get a few groceries.
We got home at three o’clock. Alex wanted a snack then he watched some of his shows on tv.
Charlie came home at four o’clock. We started to cook dinner and ate at five thirty. After dinner Alex and I played video games. Then we went outside for awhile.
Alex went to bed at nine o’clock. I watched tv and wrote in the journal. It’s eleven o’clock. I’m going to bed now.
No tests
Medicine
Mercaptopurine ------ ------- 5:30 p.m.
Saturday, May 19, 2012
Diagnosis: Leukemia; May 18, 1988
I woke up at nine thirty, I feel like I could sleep a few more hours.
Alex woke up shortly afterwards and he wanted fruit cup. He didn’t look very well he’s got dark circles under his eyes. After Alex finished his fruit cup he threw up.
For the rest of the morning he sat and watched TV. He asked to have a blanket wrapped around him.
I cleaned the bathrooms had a shower and got dressed.
Mom and Dad came at noon to pick up Geordie. He didn’t recognize them right away. It seemed like Geordie didn’t think Mom and Dad were going to come back. Then all of a sudden Geordie realized they were here and he started to wash Mom’s face.
They left after fifteen minutes, Dad seemed to be very restless he was pacing around the house.
Alex had lunch before they arrived. I had lunch after they left then we went to Mini-Sport.
I told Alex if he wasn’t feeling well he could stay home but he said he wanted to go.
When we got to the class Alex said he couldn’t do any running around. I said I would tell Cindy which Alex was glad of.
After the class we went to the mall. I had seen a raincoat for Alex that was on sale. Alex complained the whole time on the way to the store. I had told him it had snoopy all over it. Alex said you want me to have the same of everything. I said you mean you don’t want the raincoat. Alex said no I want it. It seemed to me he was just tired and wanted to argue.
Once we got to the jacket Alex really like it. Alex wanted to wear it home.
After we got home Kurt phoned and asked if Alex could come over. I asked Alex and he said I don’t want to go over there. I asked him if he wanted Kurt to come over to our house. Alex said he would like Kurt to come over.
They played for about an hour then Kurt went home. Alex really wasn’t up to playing with anyone today. He was a bit irritable today.
Charlie bought a take-our for dinner. After dinner Alex and I played video games.
Alex went to bed at nine o’clock. I watched tv and did some knitting. I went to bed at ten o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 5:30 p.m.
Mercaptopurine ------- -------- 5:30 p.m.
Temperature 36.16C 9:00 a.m.
Friday, May 18, 2012
Diagnosis: Leukemia; May 17, 1988
I woke up at nine thirty. The first night that Alex hasn’t woken up or come into bed with us. I had an enjoyable sleep!
I made myself breakfast then Alex woke up. I gave him a bath which made him mad. He said he didn’t want a bath. After his bath I got him dressed and gave him his breakfast.
Then I had a shower got dressed and vacuumed the house.
After lunch we went to gym class. We came home after the class. Alex wanted to go to Toy City, but I told him we would go tomorrow.
Alex wanted hot cereal when we got home then he watched TV.
Charlie came home at four o’clock. We had dinner at five o’clock. After dinner Alex and I went out to the backyard to plant Alex’s vegetable garden. We planted peas, radishes, carrots, corn and pumpkins. Then we took the dogs for a walk.
I got Alex ready for bed at eight o’clock. I wrote in the journal and watched TV. It’s ten thirty I’m going to bed soon.
No tests
Medicine
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.18C 10:30 a.m. 36.60 C 5:30 p.m.
I made myself breakfast then Alex woke up. I gave him a bath which made him mad. He said he didn’t want a bath. After his bath I got him dressed and gave him his breakfast.
Then I had a shower got dressed and vacuumed the house.
After lunch we went to gym class. We came home after the class. Alex wanted to go to Toy City, but I told him we would go tomorrow.
Alex wanted hot cereal when we got home then he watched TV.
Charlie came home at four o’clock. We had dinner at five o’clock. After dinner Alex and I went out to the backyard to plant Alex’s vegetable garden. We planted peas, radishes, carrots, corn and pumpkins. Then we took the dogs for a walk.
I got Alex ready for bed at eight o’clock. I wrote in the journal and watched TV. It’s ten thirty I’m going to bed soon.
No tests
Medicine
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.18C 10:30 a.m. 36.60 C 5:30 p.m.
Thursday, May 17, 2012
Diagnosis: Leukemia; May 16, 1988
I woke up at nine o’clock. Alex was just waking up, his face is still swollen. He said his jaw was hurting again. I gave him Tempra and got him his breakfast.
After breakfast I phoned the hospital. I talked to Heather and she said I should take Alex to the family doctor. She didn’t think it was from the Vincristine. I told her Alex never had any jaw pain from it before. Heather said to phone back if the doctor found anything wrong with Alex.
I phoned and made an appointment with Dr. W. I had to tell the receptionist that Alex has Leukemia and that his face was swollen before I could get an appointment. She had said he was fully booked which is usually the case.
I had a shower and got dressed. We left at eleven thirty.
Dr. W said he had received a letter from the hospital. He said the letter stated that Alex was doing good on his treatment. I gave Dr. W the latest blood counts.
I told Dr. W that Alex’s face was swollen. He checked him but he said he couldn’t find anything wrong with him. Dr. W said we would have to wait and see but there was no ear infection or gland problem. He said sometimes when you have chemotherapy a patient can experience swelling in the glands.
I said to him I hear your leaving. He said let’s sit down and talk about it. Dr. W said after a lot of deliberation he had decided to take the offer from the College. He said he had worked there at the college during the year for a few weeks.
He said when he thought of patients like Alex it was a hard decision. He talked about all Alex’s problems and how strong he was through it all.
Dr. W said he was leaving at the end of June and that Dr. C would be taking over his practise in July. He said she worked in the clinic last summer and the other doctors were surprised at the amount of medical knowledge she had. Dr. W said he wanted someone he could recommend well to his patients. He asked me what I was going to do I said the only doctor I saw was Dr. B and I felt he was quite good. Dr. W said he was a very good doctor.
We came home and had lunch afterwards we watched Annie.
Charlie came home at four o’clock. We had dinner at five thirty. After dinner we watched TV.
I got Alex ready for bed at eight thirty. At nine o’clock Alex said he couldn’t sleep. He had a nap this afternoon. He finally went to sleep when I did at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Methotrexiate ------- ------ 5:00 p.m.
Temperature 36.56C 9:00 a.m. 37.07C 5:00 p.m.
After breakfast I phoned the hospital. I talked to Heather and she said I should take Alex to the family doctor. She didn’t think it was from the Vincristine. I told her Alex never had any jaw pain from it before. Heather said to phone back if the doctor found anything wrong with Alex.
I phoned and made an appointment with Dr. W. I had to tell the receptionist that Alex has Leukemia and that his face was swollen before I could get an appointment. She had said he was fully booked which is usually the case.
I had a shower and got dressed. We left at eleven thirty.
Dr. W said he had received a letter from the hospital. He said the letter stated that Alex was doing good on his treatment. I gave Dr. W the latest blood counts.
I told Dr. W that Alex’s face was swollen. He checked him but he said he couldn’t find anything wrong with him. Dr. W said we would have to wait and see but there was no ear infection or gland problem. He said sometimes when you have chemotherapy a patient can experience swelling in the glands.
I said to him I hear your leaving. He said let’s sit down and talk about it. Dr. W said after a lot of deliberation he had decided to take the offer from the College. He said he had worked there at the college during the year for a few weeks.
He said when he thought of patients like Alex it was a hard decision. He talked about all Alex’s problems and how strong he was through it all.
Dr. W said he was leaving at the end of June and that Dr. C would be taking over his practise in July. He said she worked in the clinic last summer and the other doctors were surprised at the amount of medical knowledge she had. Dr. W said he wanted someone he could recommend well to his patients. He asked me what I was going to do I said the only doctor I saw was Dr. B and I felt he was quite good. Dr. W said he was a very good doctor.
We came home and had lunch afterwards we watched Annie.
Charlie came home at four o’clock. We had dinner at five thirty. After dinner we watched TV.
I got Alex ready for bed at eight thirty. At nine o’clock Alex said he couldn’t sleep. He had a nap this afternoon. He finally went to sleep when I did at eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Methotrexiate ------- ------ 5:00 p.m.
Temperature 36.56C 9:00 a.m. 37.07C 5:00 p.m.
Wednesday, May 16, 2012
Diagnosis: Leukemia; May 15, 1988
I woke up at nine o’clock. Alex woke up last night at eleven thirty. He said his jaw really hurt. I gave home Tempra but he said he had to sleep in our bed.
Mom phoned and said they had slept in and would be leaving soon. They have to go to Kelowna to have the van repaired. Mom said she didn’t know what to do with Geordie so I said I would look after him.
They came over at ten o’clock. Mom seemed a bit upset about leaving Geordie behind.
Once they were gone Geordie kept on looking for Mom and Dad to come into the house. After an hour he started to cry. I told him they had to go to the store and they couldn’t bring him with them. Not to worry they were coming back. Believe it or not this little talk seemed to help him. Geordie settled down but still followed us around the house.
We went out in the afternoon to Triple Tree nursery. We bought some seeds, vegetable plants and a couple of plants.
After we got home I took out the bulbs at the front. Halfway through doing the bulbs, I started to feel sick. I felt sick to my stomach and had pains in my stomach.
Alex and Kurt played together until five thirty. We started to cook dinner and ate at six o’clock. After dinner we took the dogs for a walk.
Alex fell asleep watching TV at seven o’clock. He woke up at nine o’clock. Alex said his jaw really hurt. At eleven thirty when I put Alex back to his bed he started to cry he said his jaw really hurt. I brought him into our bed and we could see that on his right side his face was swollen. I phoned the hospital and they said they can experience some jaw pain with Vincristine. There shouldn’t be any swelling. The nurse said to give Alex Tylenol and to take his temperature. If Alex still was in pain and had a fever he should come into the hospital. We should phone first.
It took Alex quite awhile before he fell asleep.
At two o’clock Alex woke me up. He was really warm. I took his temperature, it was 38.29c. We went back to sleep.
No tests
Medicine
Mercaptopurine ------ ------- 5:45 p.m.
Temperature 35.79C 11:00 a.m. 37.87 5:45 p.m.
Mom phoned and said they had slept in and would be leaving soon. They have to go to Kelowna to have the van repaired. Mom said she didn’t know what to do with Geordie so I said I would look after him.
They came over at ten o’clock. Mom seemed a bit upset about leaving Geordie behind.
Once they were gone Geordie kept on looking for Mom and Dad to come into the house. After an hour he started to cry. I told him they had to go to the store and they couldn’t bring him with them. Not to worry they were coming back. Believe it or not this little talk seemed to help him. Geordie settled down but still followed us around the house.
We went out in the afternoon to Triple Tree nursery. We bought some seeds, vegetable plants and a couple of plants.
After we got home I took out the bulbs at the front. Halfway through doing the bulbs, I started to feel sick. I felt sick to my stomach and had pains in my stomach.
Alex and Kurt played together until five thirty. We started to cook dinner and ate at six o’clock. After dinner we took the dogs for a walk.
Alex fell asleep watching TV at seven o’clock. He woke up at nine o’clock. Alex said his jaw really hurt. At eleven thirty when I put Alex back to his bed he started to cry he said his jaw really hurt. I brought him into our bed and we could see that on his right side his face was swollen. I phoned the hospital and they said they can experience some jaw pain with Vincristine. There shouldn’t be any swelling. The nurse said to give Alex Tylenol and to take his temperature. If Alex still was in pain and had a fever he should come into the hospital. We should phone first.
It took Alex quite awhile before he fell asleep.
At two o’clock Alex woke me up. He was really warm. I took his temperature, it was 38.29c. We went back to sleep.
No tests
Medicine
Mercaptopurine ------ ------- 5:45 p.m.
Temperature 35.79C 11:00 a.m. 37.87 5:45 p.m.
Tuesday, May 15, 2012
Diagnosis: Leukemia; May 14, 1988
I woke up at nine o’clock. Charlie and Alex were already up, Alex had his breakfast.
I made myself breakfast, had a shower and got dressed. Charlie left at ten thirty to go to a meeting.
I did the dishes, cleaned up the house, and did three loads of laundry.
In the afternoon we went to the mall. They had a Dinosaur exhibit which Alex really liked. After about half an hour Alex said he was too tired. He said he couldn’t walk any more then he fell on the floor. Charlie carried him the rest of the way.
We came home and I told Alex to have a nap but he wouldn’t.
We went to Shanghai for dinner then we went to the Chew’s. Laura is getting really big, she’s five months pregnant.
Jolene said the colon test was okay but she had some more bleeding. She said she’ll probably go back to her doctor.
At seven thirty Alex asked if we could go home.
We got home at eight o’clock then we watched Family Double Dare. Alex waits all week to watch it.
I watched TV and wrote in the journal. Alex went to bed at nine o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 36.09C 7:00 p.m.
I made myself breakfast, had a shower and got dressed. Charlie left at ten thirty to go to a meeting.
I did the dishes, cleaned up the house, and did three loads of laundry.
In the afternoon we went to the mall. They had a Dinosaur exhibit which Alex really liked. After about half an hour Alex said he was too tired. He said he couldn’t walk any more then he fell on the floor. Charlie carried him the rest of the way.
We came home and I told Alex to have a nap but he wouldn’t.
We went to Shanghai for dinner then we went to the Chew’s. Laura is getting really big, she’s five months pregnant.
Jolene said the colon test was okay but she had some more bleeding. She said she’ll probably go back to her doctor.
At seven thirty Alex asked if we could go home.
We got home at eight o’clock then we watched Family Double Dare. Alex waits all week to watch it.
I watched TV and wrote in the journal. Alex went to bed at nine o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 7:00 p.m.
Temperature 36.09C 7:00 p.m.
Sunday, May 13, 2012
Diagnosis: Leukemia; May 13, 1988
I woke up at nine o’clock, not that I wanted to get out of bed!
I made breakfast, had a shower and got dressed. I tided up the house, swept the floor and did the dishes.
Alex had quite a morning he woke up feeling miserable. He followed me everywhere. He kept on wanted me to hold him. At eleven o’clock he threw up, he felt better afterwards.
Allison and the kids came over at noon. Alex and Kurt get along quite well. They were busy bringing us play food for lunch!
Allison put Pearl down for a nap which was good. They left at three o’clock, Allison’s looking after Erin on Thursday and Fridays.
After Alex watched Ghostbusters we went to McDonalds for dinner. Then we went to the mall for an hour.
We played video games before Alex went to bed. He’s really gotten into playing video games now.
At eight thirty Alex said he wanted to go to bed. At nine o’clock he started to cry that he needed to have a snack. Alex said he wanted potato chips. I told him he was suppose to have a snack before he goes to bed. I said next time if you do it again you won’t get a snack. Alex told me he wouldn’t do it again!
Alex finally went to sleep at ten o’clock. He complained he wasn’t tired.
I went to bed as well.
No tests
Medicines
Bactrim 9:30 a.m. ------ 6:40 p.m.
Mercaptopurine ------ ------ 6:40 p.m.
Temperature 36.28C 9:30 a.m. ------- 26.78C 6:40 p.m.
I made breakfast, had a shower and got dressed. I tided up the house, swept the floor and did the dishes.
Alex had quite a morning he woke up feeling miserable. He followed me everywhere. He kept on wanted me to hold him. At eleven o’clock he threw up, he felt better afterwards.
Allison and the kids came over at noon. Alex and Kurt get along quite well. They were busy bringing us play food for lunch!
Allison put Pearl down for a nap which was good. They left at three o’clock, Allison’s looking after Erin on Thursday and Fridays.
After Alex watched Ghostbusters we went to McDonalds for dinner. Then we went to the mall for an hour.
We played video games before Alex went to bed. He’s really gotten into playing video games now.
At eight thirty Alex said he wanted to go to bed. At nine o’clock he started to cry that he needed to have a snack. Alex said he wanted potato chips. I told him he was suppose to have a snack before he goes to bed. I said next time if you do it again you won’t get a snack. Alex told me he wouldn’t do it again!
Alex finally went to sleep at ten o’clock. He complained he wasn’t tired.
I went to bed as well.
No tests
Medicines
Bactrim 9:30 a.m. ------ 6:40 p.m.
Mercaptopurine ------ ------ 6:40 p.m.
Temperature 36.28C 9:30 a.m. ------- 26.78C 6:40 p.m.
Diagnosis: Leukemia; May 12, 1988
I woke up at nine o’clock but I felt like I could of slept all day. I made breakfast then I got dressed and vacuumed the house.
After lunch I took Alex to his Dinosaur class. They got to bring a snack which Alex thought was really good.
After the class we came home. Alex was pretty tired so he watched TV in our bedroom. Alex fell asleep, I woke him up to watch Ghostbusters.
Mom phoned and said they were going to go to Kelowna to have the Van repaired. I told her we would take Geordie while they were away.
We ate dinner at five o’clock. After dinner we took Kelly for a walk. Then we went in the backyard. I watered the garden while Alex played on his swing set.
Alex went to bed at eight o’clock. I watched TV and did some knitting. I went to bed at ten o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 4:30 p.m.
Temperature 36.09C 4:30 p.m.
After lunch I took Alex to his Dinosaur class. They got to bring a snack which Alex thought was really good.
After the class we came home. Alex was pretty tired so he watched TV in our bedroom. Alex fell asleep, I woke him up to watch Ghostbusters.
Mom phoned and said they were going to go to Kelowna to have the Van repaired. I told her we would take Geordie while they were away.
We ate dinner at five o’clock. After dinner we took Kelly for a walk. Then we went in the backyard. I watered the garden while Alex played on his swing set.
Alex went to bed at eight o’clock. I watched TV and did some knitting. I went to bed at ten o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 4:30 p.m.
Temperature 36.09C 4:30 p.m.
Saturday, May 12, 2012
Diagnosis: Leukemia; May 11, 1988
I woke up at eight thirty. I gave Alex his medicine then I had a shower and got dressed.
Allison phoned and said she was running late and wondered if we could come an hour later, I said that was fine.
I finished getting ready then I tided up the house and put away Alex’s toys.
We went to Allison’s at eleven o’clock. The boys played for awhile before we had lunch. We left at twelve thirty to go to Mini-Sport.
It sure is warm today it feels like summer weather.
Alex and I came home after the class. He wanted to go to the park.
Alex watched TV but he fell asleep. I woke him up at four o’clock to watch Ghostbusters.
Shirley phoned and asked if they could drop by. I made Nachos with sour cream. Shirley brought ground beef, avocados and bean dip. I had made a cake for dessert.
After dinner Alex and Brent went outside on the swings. Monique was really mad since she wanted to go too. Monique screamed and yelled and had a temper tantrum. Shirley just ignored her, I guess she didn’t want to take her out on the swings.
They left at seven thirty. Alex went to bed at eight o’clock but didn’t fall asleep until ten o’clock. He sat and watched TV with me then we played a video game and finally went back to bed.
I watched TV and wrote in the journal. It’s after ten o’clock, I’m going to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 9:00 a.m. 2:40 p.m. -------
Temperature 31.16C 2:40 p.m. 36.47C 6:00 p.m.
Allison phoned and said she was running late and wondered if we could come an hour later, I said that was fine.
I finished getting ready then I tided up the house and put away Alex’s toys.
We went to Allison’s at eleven o’clock. The boys played for awhile before we had lunch. We left at twelve thirty to go to Mini-Sport.
It sure is warm today it feels like summer weather.
Alex and I came home after the class. He wanted to go to the park.
Alex watched TV but he fell asleep. I woke him up at four o’clock to watch Ghostbusters.
Shirley phoned and asked if they could drop by. I made Nachos with sour cream. Shirley brought ground beef, avocados and bean dip. I had made a cake for dessert.
After dinner Alex and Brent went outside on the swings. Monique was really mad since she wanted to go too. Monique screamed and yelled and had a temper tantrum. Shirley just ignored her, I guess she didn’t want to take her out on the swings.
They left at seven thirty. Alex went to bed at eight o’clock but didn’t fall asleep until ten o’clock. He sat and watched TV with me then we played a video game and finally went back to bed.
I watched TV and wrote in the journal. It’s after ten o’clock, I’m going to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------ ------ 6:00 p.m.
Prednisone 9:00 a.m. 2:40 p.m. -------
Temperature 31.16C 2:40 p.m. 36.47C 6:00 p.m.
Thursday, May 10, 2012
Diagnosis: Leukemia; May 10, 1988
I woke up at nine o’clock. I’m really tired, I just don’t have the energy to get going.
Charlie was making pancakes for breakfast which we all had. After breakfast I had a shower, got dressed and tided up the house.
We all went for a walk at eleven o’clock. When we came back Kurt and Lyle were outside. Alex played with them for awhile then we came in for lunch.
After lunch we went to gym class. Charlie had the day off so he came with us. We went to Safeway to get some meat to B.B.Q for tonight’s dinner. After the class we all went home.
Alex watched TV and I did the dishes and the laundry.
We had dinner at six o’clock. We went for a walk at seven o’clock. Alex and I played in the backyard when we got back, Alex went on the swing set.
Alex went bed at nine o’clock. I watched TV and did some knitting. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ----- ------ 7:30 p.m.
Prednisone 9:30 a.m. 2:30 p.m. 7:30 p.m.
Temperature 35.70C 9:30 a.m. 36.30 2:30 p.m. 35.86C 7:30 p.m.
Charlie was making pancakes for breakfast which we all had. After breakfast I had a shower, got dressed and tided up the house.
We all went for a walk at eleven o’clock. When we came back Kurt and Lyle were outside. Alex played with them for awhile then we came in for lunch.
After lunch we went to gym class. Charlie had the day off so he came with us. We went to Safeway to get some meat to B.B.Q for tonight’s dinner. After the class we all went home.
Alex watched TV and I did the dishes and the laundry.
We had dinner at six o’clock. We went for a walk at seven o’clock. Alex and I played in the backyard when we got back, Alex went on the swing set.
Alex went bed at nine o’clock. I watched TV and did some knitting. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ----- ------ 7:30 p.m.
Prednisone 9:30 a.m. 2:30 p.m. 7:30 p.m.
Temperature 35.70C 9:30 a.m. 36.30 2:30 p.m. 35.86C 7:30 p.m.
Diagnosis: Leukemia; May 9, 1988
Alex woke me up at eight o’clock. He had come into bed with us in the middle of the night., Alex said he wanted his breakfast.
Alex is really cranky again. It’s either from the Vincristine or the Prednisone.
Alex was really annoyed at nine o’clock when there was nothing for him to watch.
We went to the mall in the morning to exchanged my t-shirt that Alex got me. They didn’t have the same one but I found another one in a different style same color. We had lunch there.
We came home at one o’clock. Alex fell asleep for about fifteen minutes he was really cranky and he wouldn’t go back to sleep.
I played with Alex throughout the afternoon.
We ate dinner at five o’clock. After dinner I did the dishes and wrote in the journal.
Alex asked if he could go to bed at seven o’clock. He must be really tired! I got him ready for bed. Alex asked me to help him get dressed.
I wrote in the journal for a few hours. It’s almost ten o’clock. I’m going to bed soon.
No tests
Medicine
Bactrim 8:45 a.m. ------- 7:15 p.m.
Mercaptopurine ------ ------- 7:15 p.m.
Prednisone 8:45 a.m. 1:45 p.m. 7:15 p.m.
Methotrexiate ------- 7:15 p.m. -------
Temperature 36.32C 8:45 a.m. 35.91C 1:45 p.m. 36.29C 7:15 p.m.
Alex is really cranky again. It’s either from the Vincristine or the Prednisone.
Alex was really annoyed at nine o’clock when there was nothing for him to watch.
We went to the mall in the morning to exchanged my t-shirt that Alex got me. They didn’t have the same one but I found another one in a different style same color. We had lunch there.
We came home at one o’clock. Alex fell asleep for about fifteen minutes he was really cranky and he wouldn’t go back to sleep.
I played with Alex throughout the afternoon.
We ate dinner at five o’clock. After dinner I did the dishes and wrote in the journal.
Alex asked if he could go to bed at seven o’clock. He must be really tired! I got him ready for bed. Alex asked me to help him get dressed.
I wrote in the journal for a few hours. It’s almost ten o’clock. I’m going to bed soon.
No tests
Medicine
Bactrim 8:45 a.m. ------- 7:15 p.m.
Mercaptopurine ------ ------- 7:15 p.m.
Prednisone 8:45 a.m. 1:45 p.m. 7:15 p.m.
Methotrexiate ------- 7:15 p.m. -------
Temperature 36.32C 8:45 a.m. 35.91C 1:45 p.m. 36.29C 7:15 p.m.
Wednesday, May 9, 2012
Leukemia Diagnosis; May 8, 1988
Alex woke me up at eight o’clock. I gave him his breakfast and got him dressed.
I tided up the house, did the laundry which took a couple of hours.
Alex gave me a shirt and a chocolate bear for Mother’s Day. Alex was pretty excited about my presents. There were two scratches in the card. Alex was really mad that we didn’t win anything.
Mom and Dad arrived at one o’clock.
After Alex woke up form his nap we all went out looking at houses, but Mom couldn’t see anything she liked. I don’t think they’re really ready to move.
We got back at four o’clock and I started to cook dinner. We ate at six o’clock, Mom brought a cake for dessert.
They left at eight o’clock.
Alex fell asleep on the sofa. I got him ready for bed. He woke up when I got him into his P.J.‘s. Alex asked me to read him a story then he went to bed.
Charlie fell asleep watching TV. as usual. I cleaned up the kitchen and dining room and did all the dishes.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- -------8:00 p.m.
Prednisone 8:45 a.m. 2:15 p.m. 8:00 p.m.
Temperature 36.76C 8:45 a.m. 36.12C 2:15 p.m. 35.46C 8:00 p.m.
I tided up the house, did the laundry which took a couple of hours.
Alex gave me a shirt and a chocolate bear for Mother’s Day. Alex was pretty excited about my presents. There were two scratches in the card. Alex was really mad that we didn’t win anything.
Mom and Dad arrived at one o’clock.
After Alex woke up form his nap we all went out looking at houses, but Mom couldn’t see anything she liked. I don’t think they’re really ready to move.
We got back at four o’clock and I started to cook dinner. We ate at six o’clock, Mom brought a cake for dessert.
They left at eight o’clock.
Alex fell asleep on the sofa. I got him ready for bed. He woke up when I got him into his P.J.‘s. Alex asked me to read him a story then he went to bed.
Charlie fell asleep watching TV. as usual. I cleaned up the kitchen and dining room and did all the dishes.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- -------8:00 p.m.
Prednisone 8:45 a.m. 2:15 p.m. 8:00 p.m.
Temperature 36.76C 8:45 a.m. 36.12C 2:15 p.m. 35.46C 8:00 p.m.
Diagnosis: Leukemia; May 7, 1988
Alex woke me up at eight o’clock. He wanted his breakfast.
Charlie went grocery shopping. I vacuumed the house and washed the floors.
Mom phoned and said Blair sent her some flowers for Mother’s Day. Wonders never cease, this must be the first year she has been on time.
After lunch I went to the mall to look for something else for Mom for Mother’s Day. I didn’t find anything yesterday. I finally found something and got home at three o’clock.
I planted the shrubs at the back that Marla gave us.
We went out for dinner at a Won Ton House, went for a drive and came home.
Charlie took Kelly for a walk when we got home.
Alex fell asleep on the sofa after nine o’clock. I got him into his P.J.’s and put him to bed.
I watched TV and tided up the house. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 9:05 p.m.
Prednisone 8:50 a.m. 4:20 p.m. 9:05 p.m.
Temperature 35.67C 8:50 a.m. 35.76C 9:05 p.m.
Charlie went grocery shopping. I vacuumed the house and washed the floors.
Mom phoned and said Blair sent her some flowers for Mother’s Day. Wonders never cease, this must be the first year she has been on time.
After lunch I went to the mall to look for something else for Mom for Mother’s Day. I didn’t find anything yesterday. I finally found something and got home at three o’clock.
I planted the shrubs at the back that Marla gave us.
We went out for dinner at a Won Ton House, went for a drive and came home.
Charlie took Kelly for a walk when we got home.
Alex fell asleep on the sofa after nine o’clock. I got him into his P.J.’s and put him to bed.
I watched TV and tided up the house. I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------- ------ 9:05 p.m.
Prednisone 8:50 a.m. 4:20 p.m. 9:05 p.m.
Temperature 35.67C 8:50 a.m. 35.76C 9:05 p.m.
Monday, May 7, 2012
Diagnosis: Leukemia; May 6, 1988
I woke up at nine o’clock. I didn’t have breakfast as I wanted to go to Dyna-fit.
I went to the class. Alex and Charlie went to the mall. When I came home they were already home. I got changed and had lunch.
Alex and I left for the hospital at one o’clock. There wasn’t anywhere for us to sit when we got there. On the way in Alex told me he liked having a poke for the blood tests. Mary thought this was a bit weird.
Dr. S wasn’t there, we saw Dr. R. I told the doctor that Alex has a cold and a cough. She checked him over and couldn’t find anything unusual. She said he was okay and gave me his prescription.
When we went to get the prescription the pharmacist said that the doctor had changed the medication. Dr R had put Alex on liquid Septra instead of the pills which he has been taking. I told the pharmacist that Alex wouldn’t take it, so she phoned the doctor. I was able to get it changed to the usual pills. Then the pharmacist said the doctor had increased the dosage on 6MP. I told her I was going to check it to be on the safe side.
I had noticed on the prescription that the doctor had written that Alex was to take his Methotrexiate on Fridays instead of Mondays. I’m going to leave it on Mondays since Dr. S wanted it that way.
Lenore gave Alex his Vincristine. The first time she couldn’t get it in, so she had to take it out and put it in the other arm. Krisann came when Lenore was doing it the second time. Krisann was surprised that Alex was crying. She held his arm when Lenore was doing it and Alex started to kick the table. Krisann told him to stop that, she said you might kick my baby. Alex said what baby. I told him Krisann had a baby in her tummy didn’t he know that. Alex said NO!
We left the hospital at four o’clock. I took Alex to McDonald’s for dinner. He had fallen asleep on the way.
After McDonald’s Alex wanted to go to the mall. We found a Ghostbuster’s slide for his view master and I bought it for him.
I looked around for something else for Mom for Mother’s Day. Then we came home at seven o’clock.
Alex went to bed at eight o’clock. Mom left a message on the answering machine. I phoned her back and let he know wheat had happened.
I watched TV and went to bed a eleven o’clock.
Tests
WBC 3.7
HGB 14.2
Platelets 412
ANC 3034
Medicine
Bactrim 9:30 a.m. ------- 7:40 a.m.
Mercaptopurine ------- ------ 7:40 a.m.
Prednisone ------ ------ 7:40 p.m.
Temperature 35.98C 9:30 a.m. 36.10C 7:40 p.m.
I went to the class. Alex and Charlie went to the mall. When I came home they were already home. I got changed and had lunch.
Alex and I left for the hospital at one o’clock. There wasn’t anywhere for us to sit when we got there. On the way in Alex told me he liked having a poke for the blood tests. Mary thought this was a bit weird.
Dr. S wasn’t there, we saw Dr. R. I told the doctor that Alex has a cold and a cough. She checked him over and couldn’t find anything unusual. She said he was okay and gave me his prescription.
When we went to get the prescription the pharmacist said that the doctor had changed the medication. Dr R had put Alex on liquid Septra instead of the pills which he has been taking. I told the pharmacist that Alex wouldn’t take it, so she phoned the doctor. I was able to get it changed to the usual pills. Then the pharmacist said the doctor had increased the dosage on 6MP. I told her I was going to check it to be on the safe side.
I had noticed on the prescription that the doctor had written that Alex was to take his Methotrexiate on Fridays instead of Mondays. I’m going to leave it on Mondays since Dr. S wanted it that way.
Lenore gave Alex his Vincristine. The first time she couldn’t get it in, so she had to take it out and put it in the other arm. Krisann came when Lenore was doing it the second time. Krisann was surprised that Alex was crying. She held his arm when Lenore was doing it and Alex started to kick the table. Krisann told him to stop that, she said you might kick my baby. Alex said what baby. I told him Krisann had a baby in her tummy didn’t he know that. Alex said NO!
We left the hospital at four o’clock. I took Alex to McDonald’s for dinner. He had fallen asleep on the way.
After McDonald’s Alex wanted to go to the mall. We found a Ghostbuster’s slide for his view master and I bought it for him.
I looked around for something else for Mom for Mother’s Day. Then we came home at seven o’clock.
Alex went to bed at eight o’clock. Mom left a message on the answering machine. I phoned her back and let he know wheat had happened.
I watched TV and went to bed a eleven o’clock.
Tests
WBC 3.7
HGB 14.2
Platelets 412
ANC 3034
Medicine
Bactrim 9:30 a.m. ------- 7:40 a.m.
Mercaptopurine ------- ------ 7:40 a.m.
Prednisone ------ ------ 7:40 p.m.
Temperature 35.98C 9:30 a.m. 36.10C 7:40 p.m.
Sunday, May 6, 2012
Diagnosis: Leukemia; May 5, 1988
Alex woke me up at eight o’clock. He said he wanted to have a bath. I gave Alex a bath. After Alex was dressed, I gave him his breakfast. I also had my breakfast then I got dressed. I cleaned both bathrooms.
Charlie is after me to get a part time job. He saw an ad in the paper and got me to phone. It was a recording so I left a message. Then fifteen minutes later he said oh you should wait until later.
After lunch I took Alex to Dinosaur delight. While Alex was in his class I bought a Mother’s Day present for Mom.
Alex and I got home at three o’clock. Alex fell asleep on the way home. I put him on his bed.
I wrote in the journal while Alex was asleep. I woke him up at four o’clock to watch his show.
We ate dinner at five o’clock. Alex wanted to go outside to ride his bike. I swept out the garage and did some gardening.
We came in at seven o’clock and Alex had his snack,.
Alex went to bed at eight o’clock. I wrote in the journal and watched TV. I’m going to go to bed soon it’s not ten o’clock yet.
No tests
Medicine
Mercaptopurine ----- ------ 5:00 p.m.
Temperature 36.38C 11:00 a.m.
Charlie is after me to get a part time job. He saw an ad in the paper and got me to phone. It was a recording so I left a message. Then fifteen minutes later he said oh you should wait until later.
After lunch I took Alex to Dinosaur delight. While Alex was in his class I bought a Mother’s Day present for Mom.
Alex and I got home at three o’clock. Alex fell asleep on the way home. I put him on his bed.
I wrote in the journal while Alex was asleep. I woke him up at four o’clock to watch his show.
We ate dinner at five o’clock. Alex wanted to go outside to ride his bike. I swept out the garage and did some gardening.
We came in at seven o’clock and Alex had his snack,.
Alex went to bed at eight o’clock. I wrote in the journal and watched TV. I’m going to go to bed soon it’s not ten o’clock yet.
No tests
Medicine
Mercaptopurine ----- ------ 5:00 p.m.
Temperature 36.38C 11:00 a.m.
Saturday, May 5, 2012
Diagnosis: Leukemia; May 4, 1988
I woke up at eight o’clock. Alex didn’t want breakfast again this morning. I don’t know what’s going on with him.
After I had my breakfast I got ready to go to Dyna-fit. Alex went with me.
We came home at eleven thirty and had lunch. After lunch I took Alex to Mini-sport. After the class we came home.
I cleaned the fridge and stove.
We ate dinner at five o’clock. Alex and I did a puzzle.
Alex went to bed at six o’clock. He fell asleep watching TV. I put him into bed, he woke up a seven thirty. I got him into his P.J.‘s and read him a story. I told him he had to go to bed. He’s been feeling tired and he still has his cold so he needs to rest more.
Alex complained that he wasn’t tired but I told him to stay in his bed. Alex finally fell asleep at ten thirty.
I went to bed as well.
No tests
Medicine
Bactrim 9:30 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Temperature 36.14C 5:00 p.m.
After I had my breakfast I got ready to go to Dyna-fit. Alex went with me.
We came home at eleven thirty and had lunch. After lunch I took Alex to Mini-sport. After the class we came home.
I cleaned the fridge and stove.
We ate dinner at five o’clock. Alex and I did a puzzle.
Alex went to bed at six o’clock. He fell asleep watching TV. I put him into bed, he woke up a seven thirty. I got him into his P.J.‘s and read him a story. I told him he had to go to bed. He’s been feeling tired and he still has his cold so he needs to rest more.
Alex complained that he wasn’t tired but I told him to stay in his bed. Alex finally fell asleep at ten thirty.
I went to bed as well.
No tests
Medicine
Bactrim 9:30 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Temperature 36.14C 5:00 p.m.
Diagnosis: Leukemia; May 3, 1988
I was woken up at seven o’clock by Alex. I asked him if he wanted breakfast and he said he wasn’t hungry! I asked him if he was sick! Alex said he felt fine.
I had breakfast then I got dressed and cleaned all the furniture.
After lunch I took Alex to gym class. On the way back from gym class Alex told me he didn’t want to go to gym class again when it was over.
Charlie came home not long after us. He has another day off.
Charlie and Alex watched TV while I did some work around the house.
We had dinner at six o’clock. Alex didn’t eat very much for dinner, in fact he hasn’t eaten much all day. He still has his cold so he may not be feeling that great.
Alex went to bed at nine o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine -------- ------- 6:15 p.m.
Temperature 34.49C 3:15 p.m.
I had breakfast then I got dressed and cleaned all the furniture.
After lunch I took Alex to gym class. On the way back from gym class Alex told me he didn’t want to go to gym class again when it was over.
Charlie came home not long after us. He has another day off.
Charlie and Alex watched TV while I did some work around the house.
We had dinner at six o’clock. Alex didn’t eat very much for dinner, in fact he hasn’t eaten much all day. He still has his cold so he may not be feeling that great.
Alex went to bed at nine o’clock. I watched TV and went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine -------- ------- 6:15 p.m.
Temperature 34.49C 3:15 p.m.
Thursday, May 3, 2012
Diagnosis: Leukemia; May 2, 1988
I woke up at eight o’clock. I made breakfast then I got ready to go to Dyna-fit. I told Alex he could stay home with Charlie, but Alex said he didn’t want to stay with Pa. So I took Alex with me and he went to the playroom while I exercised.
We got home at eleven thirty.
Charlie had another day off and was totally bored. He even told me so!
After lunch I vacuumed the house and cleaned the counter top in the kitchen.
We had dinner at five thirty. After dinner Charlie, Alex and Kelly went for a walk. I was feeling a bit tired from the class.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ------ 5:50 p.m.
Mercaptopurine ------ ------ 5:50 p.m.
Methotrexiate ------- 5:50 p.m. ------
Temperature 36.38C 8:15 p.m. 36.26C 5:50 p.m. 35.98C 5:50 p.m.
We got home at eleven thirty.
Charlie had another day off and was totally bored. He even told me so!
After lunch I vacuumed the house and cleaned the counter top in the kitchen.
We had dinner at five thirty. After dinner Charlie, Alex and Kelly went for a walk. I was feeling a bit tired from the class.
Alex went to bed at eight o’clock. I watched TV and wrote in the journal. I went to bed at eleven o’clock.
No tests
Medicine
Bactrim 8:15 a.m. ------ 5:50 p.m.
Mercaptopurine ------ ------ 5:50 p.m.
Methotrexiate ------- 5:50 p.m. ------
Temperature 36.38C 8:15 p.m. 36.26C 5:50 p.m. 35.98C 5:50 p.m.
Wednesday, May 2, 2012
Diagnosis: Leukemia; May 1, 1988
Alex woke me up at seven o’clock. I made breakfast then I had a shower and got ready to go out.
We left after nine o’clock. Shirley wanted to show me this store she gets clothes at a low price. We get there at nine thirty but it wasn’t opened until noon. We went to a Dutch pancake house, we were there for a couple of hours. Then we went to Maynard’s, we had to wait half an hour before it opened. They didn’t have much stuff that I liked. They had a lot of clothes for the office or evening wear.
We got home at one thirty, Shirley left to go home. Alex said where did you go. He was mad that I had gone out.
Mom had phoned while I was out. I phoned her back and she invited us for dinner.
We went to get Alex’s haircut. Galena was surprised that Alex’s hair had grown so much. It sure looked cute. Galena cut it in a brush cut with a bit of a tail at the back.
We got to Mom and Dad’s before four o’clock. After dinner Alex watched a tape we had brought with us.
We came home at nine o’clock. Alex wasn’t very tired, he went to sleep around ten o’clock.
I went to bed as well, I was really tired from getting up so early.
No tests
Medicine
Mercaptopurine ------ ------ 9:00 p.m.
Temperature 36.51C 7:45 a.m. 36.06C 9:00 p.m.
We left after nine o’clock. Shirley wanted to show me this store she gets clothes at a low price. We get there at nine thirty but it wasn’t opened until noon. We went to a Dutch pancake house, we were there for a couple of hours. Then we went to Maynard’s, we had to wait half an hour before it opened. They didn’t have much stuff that I liked. They had a lot of clothes for the office or evening wear.
We got home at one thirty, Shirley left to go home. Alex said where did you go. He was mad that I had gone out.
Mom had phoned while I was out. I phoned her back and she invited us for dinner.
We went to get Alex’s haircut. Galena was surprised that Alex’s hair had grown so much. It sure looked cute. Galena cut it in a brush cut with a bit of a tail at the back.
We got to Mom and Dad’s before four o’clock. After dinner Alex watched a tape we had brought with us.
We came home at nine o’clock. Alex wasn’t very tired, he went to sleep around ten o’clock.
I went to bed as well, I was really tired from getting up so early.
No tests
Medicine
Mercaptopurine ------ ------ 9:00 p.m.
Temperature 36.51C 7:45 a.m. 36.06C 9:00 p.m.
Tuesday, May 1, 2012
Diagnosis: Leukemia; April 30, 1988
I woke up at nine o’clock, I cold hear Charlie and Alex arguing. Alex wanted to have breakfast and he was telling Charlie what to do!
I made my breakfast and in the middle of me eating it Marla phoned. She said she would drop off the Ghostbuster that Alex had left. Marla said she wanted Alex’s measurements because her Mom’s friend makes really nice sweaters.
I measured Alex then I got dressed.
Shirley phoned and said they would drop by if we were free. I told her we didn’t have anything planned.
Marla came about ten minutes later. We exchanged stuff, I wished her a good trip and she thanked me for the kids stuff.
I felt a bit emotional, I guess I’ll miss our visits. I’m also worrying about the way things are right now, Charlie’s job and all.
Then I went and had a shower and got dressed.
Shirley and the kids came at eleven o’clock. Shirley said she was taking the kids to McDonald’s for lunch. We decided to join them.
After lunch Shirley and the kids went somewhere else. We decided to go to Metrotown.
Charlie and I had a disagreement in the car which makes it difficult to walk in the mall.
We were there only bout half an hour when Alex said he couldn’t walk. So we left and came home. Just before we left I said I would meet them in the car that I wanted to get a scratch ticket. Alex practically jumped out of Charlie’s arms and said he wanted to do it. Charlie said I thought you couldn’t walk. Alex said I’m fine now and went to the information area!
We got home around three o’clock. Alex watched TV, I tided up the house.
We had dinner at five thirty at home. After dinner Alex and I played a game.
Alex went to bed at eight o’clock. I watched TV and did some knitting.
Shirley phoned at ten o’clock and wanted to go out for breakfast tomorrow. We decided to leave at nine o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.47C 11:30 a.m. 37.12 5:30 p.m.
I made my breakfast and in the middle of me eating it Marla phoned. She said she would drop off the Ghostbuster that Alex had left. Marla said she wanted Alex’s measurements because her Mom’s friend makes really nice sweaters.
I measured Alex then I got dressed.
Shirley phoned and said they would drop by if we were free. I told her we didn’t have anything planned.
Marla came about ten minutes later. We exchanged stuff, I wished her a good trip and she thanked me for the kids stuff.
I felt a bit emotional, I guess I’ll miss our visits. I’m also worrying about the way things are right now, Charlie’s job and all.
Then I went and had a shower and got dressed.
Shirley and the kids came at eleven o’clock. Shirley said she was taking the kids to McDonald’s for lunch. We decided to join them.
After lunch Shirley and the kids went somewhere else. We decided to go to Metrotown.
Charlie and I had a disagreement in the car which makes it difficult to walk in the mall.
We were there only bout half an hour when Alex said he couldn’t walk. So we left and came home. Just before we left I said I would meet them in the car that I wanted to get a scratch ticket. Alex practically jumped out of Charlie’s arms and said he wanted to do it. Charlie said I thought you couldn’t walk. Alex said I’m fine now and went to the information area!
We got home around three o’clock. Alex watched TV, I tided up the house.
We had dinner at five thirty at home. After dinner Alex and I played a game.
Alex went to bed at eight o’clock. I watched TV and did some knitting.
Shirley phoned at ten o’clock and wanted to go out for breakfast tomorrow. We decided to leave at nine o’clock.
I went to bed at eleven o’clock.
No tests
Medicine
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.47C 11:30 a.m. 37.12 5:30 p.m.
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