Saturday, June 1, 2013

Diagnosis: Leukemia; May 31, 1989

I woke up at eight thirty. I took my blood, had breakfast, gave Kelly his pill and had my shower. I sure was tired, Alex woke me up three times last night. The first time Alex woke me up at one o’clock, he said he couldn’t sleep anymore. I took Alex back to his room and asked him why he couldn’t sleep. Alex said he couldn’t sleep unless he had a snack. I said okay lets go into the kitchen and get you a snack. Alex had six crackers and a cup of juice, then he went back to bed in his own bed.

The second time Alex woke me up at three o’clock. I told him to get into bed with us, I was too tired to get up.

The third time Alex woke up at five o’clock. He said he was too hungry and wanted something to eat. I said there was no way I was getting up I needed to sleep some more. Charlie said he would get up and get Alex something to eat. Alex was really mad that I wouldn’t get up. He stamped his feet, yelled and screamed then went into his room and slammed the door.

I went back to sleep and woke up again at eight thirty. I could have slept longer but I have to eat at a certain time with the diet from the diabetic clinic. My eating times are 8:30 a.m., 10:30 a.m., 12:30 p.m., 3:00 p.m., 6:00 p.m. and 10:00 p.m.

I found out later that Alex went back to sleep after he had woken us up at 5:00 a.m. and went back to bed in his own bed.

Charlie was really tired since once he’s woken up in the morning he can’t get back to sleep.

In the morning I didn’t do too much. I did the dishes and tided up the house.

In the afternoon Patrick came over to play with Alex. Around two thirty I told Alex he should go to Patrick’s house for awhile. Alex said okay as long as he could bring his Lego vehicle. When they left Alex said remember to phone me. I said yes, do you want me to call you when it’s dinner time? Alex said okay.

I watched tv and wrote in the journal while Alex was at Patrick’s house.

Alex came home after four o’clock. He was really upset, he said Patrick kept on fighting with him. He also said when he left Patrick wouldn’t help him find his Lego man. I asked him if he got it and he said yes. Before he had left Patrick went outside to ride his bike.

We ate dinner at five thirty. After dinner we went downstairs to exercise. Then we watched tv and of course we watched Cosby!

Alex went to bed at eight thirty. I wrote in the journal and went to bed at eleven o’clock.

No Tests

Medication

Bactrim 11:00 a.m. ------ 4:45 p.m.
Mercaptopurine 11:00 a.m. ------ -----
Prednisone 11:00 a.m. 4:45 p.m. -------

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