I woke up at six forty five, I had set the alarm for seven o’clock but I woke up earlier.
I went downstairs to give Kelly his pill. He must of just finished having a seizure. I checked the basement and saw that it must have been in the laundry room. I cleaned his mouth, the salvia is so bad that it almost makes me throw up. Then I put him out and gave him food and water.
I had a shower, got dressed and had breakfast. I went into Alex’s room and luckily he was just getting up. Alex had a shower then he had his breakfast.
We left for the hospital at eight fifteen. When we got there, there was only one other family there. It wasn’t long before it started to fill up.
By the time Alex had his blood test and we saw the doctor it was after ten o’clock.
Alex wanted to go to the cafeteria, I told one of the nurse where we were going. Dr. S said you might as well get your prescription done while your at it. It will be quite awhile for Alex’s LP. I thought so why do we have to come so early.
The pharmacy at Shaughnessy is still closed because of the nurses strike. We went to the Jean Matheson Pavilion to the pharmacy, it sure is a long walk. It didn’t take long for the prescription. We walked outside back to Children’s Hospital then inside through the other hospital buildings.
We went to the cafeteria and Alex decided upon Rice Krispies. We went back to the clinic and waited and waited. At eleven fifteen I asked the nurse how much longer it would be for Alex’s LP. The nurse was rather rude, she said his medicine isn’t even here yet. Another nurse said an LP is being done now.
It was just before noon before Alex had his LP done. Lauren held him while Laurel read Alex stories. I sat beside Alex and held his hand. Alex was very good, he cried but he didn’t fight having it done or yell. They probably wish every child was more like Alex.
I asked one of the nurse to lift Alex up on the bed so he could lie down. Lenore put Alex into the bed. I sat down and read my book, unfortunately I couldn’t sit close to Alex’s bed there were so many people!
I kept on having to get up to tell Alex to lie down on his side. Alex had opened his hospital prize while we were at the pharmacy. He was now playing with them on his bed.
Lenore gave Alex his Vincristine I.V. push at one o’clock, then we left for McDonald’s. Alex fell asleep on the way there. We went to the McDonald’s across form Lougheed mall. By the time we got home it was two thirty.
Alex did his new Ghostbusters puzzle and I helped him with it.
Charlie came home at four o’clock. He wanted to go out to the mall tonight but later changed his mind. Maybe he noticed how tired I must have looked.
After dinner I laid down for a nap, I was very very tired! I woke up at seven o’clock and watched tv.
Alex went to bed at nine o’clock. I watched tv and went to bed at eleven o’clock.
Tests
WBC 1.9
HGB 12.4
Platelets 217
ANC 1463
Medication
Mercaptopurine ------ ------- 8:00 p.m.
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