Wednesday, May 1, 2013

Diagnosis: Leukemia; May 1, 1989

I woke up at eight thirty. After I had gotten Alex his breakfast, given Kelly his medicine, I had a shower and got dressed. Then I did the dishes and tided up the house.

We had an early lunch then we left to go to the hospital. It was really busy but that’s pretty normal for Monday.

Mary called Alex for his blood test. I was going to go with him but Alex said to stay there he wanted to go by himself. When Alex came back he said he got his blood test in his arm. I said I’m really proud of you and I didn’t even hear you cry. In a little while Mary came to tell me how good Alex was. I said I was really impressed that Alex did so well. Mary said yes I was impressed too.

We went to the cafeteria, Alex had jello and I had potato chips and a glass of milk. After Alex had finished eating his jello he wanted potato chips but he didn’t want mine since they were salt and vinegar chips.

We went back to the clinic where we saw Dr. K., Dr. S was away again. Dr. K asked if we had seen him before. I said yes back in November remember? He said oh yes. The doctor thought Alex was pale and he asked if Alex had a cold lately. I said he was just getting over one. I asked whether or not when they do the blood test if they check for diabetes. The only reason I’m asking is because there is diabetes in our family and Alex has been drinking a lot more fluids lately. Dr. K said the only test they would do would be to test their urine. I said you mean with the sticks. The doctor said yes. I said well I’ve already done that and it was okay. Dr. K said well then Alex should be okay.

Dr. K asked me what medication Alex was taking. I told him Alex’s medication was Mercaptopurine 1 pill alternating with ¾ pill, Methotrexiate 4 ½ pills and prednisone 6 pills daily for five days. I said I didn’t need any Septra as I had a years supply. Dr. K was really surprised, he said how did you get so many, we don’t usually give that many out. I said the doctor gave me a prescription for that many.

Alex and I went to the pharmacy to do Alex’s prescription. We stopped at the gift shop and Alex bought a police car. Then we went back to the clinic. By this time it was after three o’clock.

Alex was able to watch the Chipmunks and COPS while we waited for his I.V. push. Alex did have quite a bit of trouble hearing as there were two babies crying.

It was four fifteen by the time we left we had gone earlier to get Alex’s medicine. We phoned Charlie to tell him we were going to McDonald’s for dinner. Charlie was surprised we were still at the hospital.

Alex slept all the way to McDonald’s, we got home at six o’clock. Alex had opened his hospital surprise this morning he got Leonardo of the Turtles. He wanted me to play Turtles when we got home but I was too tired to play. Alex wasn’t too happy but I find going to the hospital really tires me out.

Alex went to bed at nine o’clock. I went to bed at ten o’clock.

Tests

WBC 2.1
HGB 12.5
Platelets 302
ANC 1323

Medication

Bactrim 9:30 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 8:10 p.m.
Methotrexiate ------- ------- 8:10 p.m.

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