I woke up at eight thirty. I had breakfast then I gave Kelly his medicine and had a shower. Alex woke up shortly after I had finished getting dressed. I gave him his breakfast and got him to have a shower.
The rest of the morning. I did the dishes, made the beds and put away the toys with Alex’s help. We left at twelve forty five for the hospital. The clinic was just jammed today, I told them we were here and went out to the hall to sit down. There was no way I was going to stand up for very long. We were out in the hall for awhile when Alex said he wanted to go inside to play. Charlie said he would go in with him. I said outside in the hall and read. Dr. K came and said he wanted to examine Alex. I said okay and then he said are you alone? I said no Alex is in the clinic with his father. Then he asked me if Alex had his blood work and I told him not yet. Another parent walked by and said we haven’t either. Dr. K said he would examine them both but first he would see Alex.
I took Alex into the examining room. Dr. K asked how Alex was and I said he seemed to be okay. I asked him about Alex’s rash around his belly button. Which has been there for three months. Dr. K said it was nothing probably an irritation. We could apply Destin which has 1% cortisone in it. He took Alex’s blood pressure which was 110/70.
Finally Alex has his blood test, Mary wasn’t there today. Alex had his blood taken from his finger again and the nurse had to poke him twice before it would come out.
When Alex came back, he said you know what the nurse told me? I said what? He said she told me that most kids like the blood test from this finger (the index finger). Alex said isn’t that funny!
So now we had to wait for the blood test results, before anything else was done.
At three o’clock the results finally came. Dr. K said that the blood count was up and asked me if any changes were made recently. I said a few months ago the medication was decreased. He checked Alex’s chart, he said Mercaptopurine is 1 pill daily. I said no it’s ¾ alternating with 1 pill. Then he said oh, yes here it is. Dr. K said that they like to keep there counts between one and two, so he was increasing Alex’s medication to 1 pill daily for Mercaptopurine and everything else was to stay the same; Methotrexiate 4 ½ pills, Prednisone 6 pills daily for 5 days and Bactrim ¼ twice daily three times a week.
Then Dr. K asked when Alex should have his next LP. I told him next time Alex should have it. Dr. K checked but it wasn’t written down. He said it must have been in March. So the doctor put it on for the next appointment.
I went to the pharmacy while Alex and Charlie stayed in the clinic. The pharmacist said it would be half an hour.
It wasn’t too long before Alex was able to have his chemotherapy. Then we picked up the prescription and went to the Won Ton House on Hastings Street. Alex had picked out a prize from the gift shop at the hospital, micro machines.
We came home to let Kelly out then we went to visit Mom and Dad. Alex was in a really good mood, that’s surprising since he had chemo today. Alex was laughing and telling jokes. He ran around Dad’s chair until Dad grabbed him, Alex thought that was pretty funny.
We got home around nine o’clock. It took me awhile to get Alex into bed. He wanted a snack before he went to bed.
Tests
WBC 3.0
HGB 13.4
Platelets 298
ANC 2430
Medication
Bactrim 9:55 a.m. ------ 7:55 p.m.
Mercaptopurine ----- ---- 7:00 p.m.
Methotrexiate ------- ----- 7:00 p.m.
Prednisone ------ ------ 7:00 p.m.
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