Diagnosis: Leukemia; September 23, 1987

Alex woke me up in the middle of the night, he wanted to get changed. I changed Alex’s clothes and we went back to bed. Alex wanted me to hold him when we went back to sleep.

I woke up at nine o’clock, had my breakfast, got Alex his breakfast, gave him his medicine and had a shower. I got ready to go out, I told Charlie I was going out by myself.

I left at ten o’clock, it was nice to go shopping my by self. I came home at noon I phoned Nora and asked if Kurt could come over today.

They came over at 1:30 p.m., Alex was really excited to see Kurt. Alex doesn’t play as well as he use to. Even with his friends he argues a lot.

Nora left at three o’clock, her other two boys were coming home from school. I told her Kurt could stay so the boys could play together longer. I knew if Kurt left at three o’clock Alex would be mad.

I started cooking dinner while they played.

Kurt went home at four o’clock. Alex has been complaining all day. We went for a walk after dinner, then we stayed outside. Alex rode his bike while I read the paper. He kept on riding his bike where I couldn’t see him. I told him to ride where I could see him but he kept on doing it. So I went inside and told him to come. Alex rode his bike really fast into the garage and said I’ll ride where you can see me come on out with me. We stayed out a bit longer than we came in.

Alex had his medicine and a snack. Charlie phoned and I asked him to tell Alex to have his bath. I had told Alex to have a bath earlier but he threw himself on the floor and he said he was mad.

After we got off the phone Alex had his bath. I got Alex ready for bed and told him to brush his teeth. He complained the whole time he was brushing his teeth.

I baked a cake for Kelly’s birthday tomorrow, Alex wants a cake. I did the dishes and watched TV. I wrote in the journal for half an hour. I’m going to bed soon.

No tests

Medicine

Bactrim 9:00 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Prednisone 9:00 a.m. 2:30 p.m. 7:20 p.m.

Temperature 35.95C 9:00 a.m. 25.39C 2:30 p.m.