November 18 1989
Samantha ate at midnight, three, six and nine. Then again at one, five and nine o’clock.
I went to bed at ten o’clock.
No Tests
Medication
Prednisone ------- ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Temperature 36.05C 9:00 p.m.
November 19, 1989
Samantha had feedings at midnight, four and eight o’clock. That was really good but during the days wasn’t. It’s better to get a proper sleep. I’d much rather have her up during the day than at night.
Samantha ate again at eleven, one, three, five, seven nine and eleven o’clock.
I went to bed after the last feeding feeling pretty tired.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
November 20, 1989
Samantha woke up at three and seven o’clock.
I took Alex to school. I had fed Samantha before we left. Then she ate at two o’clock. Just in time before I have to pick up Alex.
Samantha ate again at five, eight thirty, ten and eleven o’clock. I then went to bed.
No Tests
Medication
Tempra ------- 6:00 p.m. --------
Bactrim -------- 1:00 p.m. 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate ------- ------ 8:00 p.m.
Temperature 36.65C
November 21, 1989
Samantha ate at three, six and nine thirty. Then at one thirty after I had taken Alex to school. When we came back from school, Samantha ate at four o’clock. Then again at six and nine thirty.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
November 22, 1989
Samantha ate at one thirty, six thirty, ten and one o’clock. I had taken Alex to school at twelve twenty.
Samantha ate when we got home at three thirty, seven thirty and ten thirty.
No Tests
Medication
Bactrim ------- -------- 7:00 p.m.
Mercaptopurine ----- ----- 7:00 p.m.
Temperature 36.39C 7:00 p.m.
November 23, 1989
Samantha ate at twelve thirty, four, seven thirty and eleven o’clock. I took Alex to school at twelve twenty.
When we got back from school Samantha ate at three thirty, six thirty and nine o’clock.
No Tests
Medication
Mercaptopurine ------- ------- 8:00 p.m.
Bactrim ------ ------8:00 p.m.
November 24, 1989
Samantha ate at twelve twenty, four, five and eight o’clock. Then at eleven o’clock.
I took Alex to school and fed Sam at two o’clock. She ate again at five, eight fifty and eleven o’clock.
No Tests
Medication
Bactrim 8:00 a.m. -------- 8:00 p.m.
Mercaptopurine ------- ------- 8:00 p.m.
* I have decided to put a weeks worth of journal entries together. It was during this time I was anemic, I didn't keep the journal up to date as I would of like. There isn't much about Alex but he was doing alright and taking his medication.
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