After the one o’clock feeding Samantha woke up at three o’clock. I picked her up and she fell asleep almost right away. I put Samantha back to her crib and went back to sleep myself.
Samantha woke up again at six o’clock and nine o’clock. After the nine o’clock feeding I had a shower and got dressed. Alex had a bath earlier, gotten dressed and was having his breakfast. I had my breakfast as well.
After breakfast I expressed my milk and sterilized a bottle. Alex turned the TV so loud that it woke Samantha up. Luckily she went back to sleep. Charlie told Alex to turn the TV down he had woken Samantha up. Alex said So what I don’t care! I said What! Do you want to watch TV down in the basement. Alex just laughed. We are having quite a time with him.
I did a few loads of laundry and put the garbage into the compactor.
After Alex had his lunch I asked him to get ready for school.
Alex had come to tell Charlie that Kelly was having a seizure. Kelly had one last night at nine o’clock. I had talked to Dr. Hi this morning. He said to stop the valium and to give Kelly Rivotral three times a day, a dose of 2 pills. Dr. Hi said it looks like Kelly has a tumour because epilepsy can be controlled with medication and Kelly’s seizure doesn’t seem to be controlled with medication.
I told him Kelly was disorientated, walks in circles and looses control of his bladder. Dr. Hi said that’s from the tumour not the medication. Dr. Hi said at some point you are going to have to make a decision.
I tided up the house and got Alex ready for school. Alex didn’t want to wear what I had picked out. They’re having their pictures taken today. Alex actually wanted to wear a sweat suit. Alex finally agreed to wear the sweater and cord pants I had picked out.
I took Alex to school while Charlie stayed at home with Samantha. When I came home Charlie went grocery shopping. Marla and Paxton came before Charlie left. They brought Samantha a present, socks with rattles in them.
They didn’t stay long as they had to go get Lanie.
Samantha and I went to get Alex. By the time we got there, Alex was coming out of the school.
When we got home I fed Samantha and put her in her crib. I started to cook dinner, clean up the kitchen and wrote in the journal. We ate dinner at six o’clock.
Samantha had another feeding at six thirty, she had a long feeding for twenty minutes. I put her back in her crib.
Alex put away his toys and got ready for bed. He watched Cosby of course. I read him a story then he went to sleep.
I watched TV and wrote in the journal. It’s now almost nine thirty I’m going to go to bed.
No Tests
Medication
Mercaptopurine ------ ------- 7:45 p.m.
Temperature 36.18C 7:45 p.m.
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