November 25, 1989
Samantha had feedings at four thirty, eight o’clock, eleven, two twenty, three thirty, seven fifty and ten o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Temperature 36.78C 8:00 p.m.
November 26, 1989
Samantha ate at three, five, nine, eleven thirty, four and eight.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
November 27, 1989
Samantha ate at one thirty, five thirty and ten thirty. Then again when we came back from taking Alex to school at one thirty. She ate again at four and eight thirty.
No Tests medication
Bactrim ------ ------- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
November 28, 1989
Samantha had a feeding at one thirty and six thirty. I had a shower, got dressed and had my breakfast after her feedings.
Charlie and Alex went to the hospital this morning. Alex was just going for a blood test. The doctor increased his medicine for Mercaptopurine ¾ pill daily, Methotrexiate 5 pills weekly and the other medicine is to stay the same. They got home at twelve thirty.
I had fed Samantha and was about to feed her again. Charlie’s on afternoon shift, so he went to work at two thirty.
I fed Samantha again at three o’clock. Alex and I ate a five thirty then I fed Samantha at six o’clock.
Alex went to bed at eight o’clock. I fed Samantha at nine o’clock. After I had put her back to her crib and she was asleep I got ready for bed.
Tests
WBC 3.9
HGB 12.6
Platelets 384
ANC
Medication
Bactrim ------ ------ 8:00 p.m.
Methotrexiate ------ ------ 8:00 p.m.
November 29, 1989
Samantha ate at one thirty, seven fifty five and eleven o’clock. Then again at two thirty, five and nine o’clock.
No Tests
Medication
Bactrim ------ ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
November 30, 1989
Samantha ate at three thirty, five thirty, nine, eleven thirty, one thirty, four thirty and nine o’clock.
No Tests
Medication
Bactrim ------- ------ 8:00 p.m.
Mercaptopurine -------- ------ 8:00 p.m.
December 1, 1989
Samantha ate at twelve thirty, five, nine, on thirty, five and eight o’clock.
Alex went to school, after school we picked up food from McDonald’s. I let Alex stay up late on Fridays.
We went to bed at ten o’clock.
No Tests
Medication
Bactrim 11:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
*This was a very difficult time for me. I was extremely tired, I was anemic, and felt totally drained. The entries in the journal were very limited.
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