Friday, March 28, 2014

Diagnosis: Leukemia; March 28, 1990

Alex woke me up to ask me if he could have a shower. I don’t know why he does that. I never have a shower before Samantha wakes up.

Samantha woke up at eight o’clock. She sure is stuffed up, it’s too bad I couldn’t give her something.

After I fed her I had my breakfast and got dressed then I did the dishes.

Samantha ate again at ten o’clock. She still isn’t eating enough but I can’t get her to eat too much since she’s feeling so miserable. Sam had a nap after her feeding.

I did the laundry, made our beds and tided up the house. By that time it was time to go to school

We saw Bonny leaving. I told Alex to run over to her and ask her if Marty asked if he could come over today. After I had gotten Samantha out of the car I went over. She said Marty said he was going to Alex’s house. Alex could come over to their house if Alex wanted to. We’re all well right now. I said Samantha is sick now. She said the poor little thing, she looks like a tulip! I said I know. Bonny said to Alex so Bonny will pick you up today Alex. Alex said okay.

After taking Alex to school I went to the lab at Leigh Square to get more urine bags. The nurse told me that it’s very hard to get a urine sample from female babies. I said well it leaked at the bottom. She said that’s where it usually leaks.

When we came home I fed Samantha and had my lunch. Samantha went for a nap at three o’clock.

I remembered that this morning Alex said to me how come Samantha gets to eat breakfast first. I said she’s a baby. Alex said it isn’t fair.

I wrote in the journal for about an hour. I went to pick up Alex at four thirty. We went to Safeway afterwards. I bought a few groceries and a aspirator to try and clear Sam’s nose.

Of course when we got home Charlie asked WHAT’S FOR DINNER! I said you’ve been home all this time. He said I’ve had to hold Samantha all the time! I said what do you think I do all day.

Charlie made himself and Alex dinner while I fed Samantha. This time she ate for half an hour which was a lot better.

I ate dinner at seven o’clock. Charlie held Samantha while I did the dishes and had a shower. Samantha went for a nap at eight o’clock. Alex got ready for bed at eight o’clock as well. Even though he complained a lot.

I’m writing in the journal now, it’s almost nine o’clock. I have to feed Samantha again then I’ll go to bed.

No Tests

Medication

Bactrim ------- ------ 8:00 p.m.
Mercaptopurine ------- ------- 8:00 p.m.

Thursday, March 27, 2014

Diagnosis: Leukemia; March 27, 1990

Samantha woke up at six thirty. She was really upset, she still isn’t eating that much. Maybe ten minutes at the most. She keeps on going on and off.

I had breakfast, Alex had gotten up at seven o’clock. He’s getting up quite early theses days.

Samantha ate again at nine and ate for twenty minutes this time. I put her to her crib. Surprisingly she was able to sleep. Maybe she was tired from yesterday.

I put on the laundry, made our bed and cleaned some of the kitchen. Alex saw at Save On foods they had Turtles for sale. He decided with his money he’ll buy Leonardo and someone else. He said his turtles are falling apart. Alex said lets go now. I said I’m not going now and coming home and going out again. Alex said how about eleven thirty. I said no the earliest I’ll go is eleven fifty five.

Alex bought Leonardo and Donatello. I said don’t tell Pa because he’ll just say it’s a waste of money. I’ll put them in your room for you.

When I took Alex to school I told him remember you’re going to Patrick’s house today so I’ll see you afterwards. Alex said okay bye. I said bye Alex.

I fed Samantha when we got home then I had lunch. Sam stayed in the playpen for about an hour while I cleaned the kitchen. Then I put her to bed but she didn’t stay there for very long. She really wants to be held. Quite the opposite from what I’m like, more like Alex and Charlie.

When Charlie came home I was cleaning out the fridge. I didn’t finish because Sam was crying again.

Charlie held her while I went to get Alex. Morgan said I just missed you. I have to go to the store, so I was going to drop Alex off.

When we got home Alex went straight to his room to play with his turtles.

I fed Samantha while Charlie cooked dinner. I put the bag on Samantha and hope it works. Charlie thought it would be gross to put urine in the fridge but where else am I going to put it!

After dinner I did the dishes and cleaned up the kitchen. Samantha woke up at seven thirty. I held her for awhile then put her back to her crib.

It’s nine o’clock and Sam is still asleep. I’ll probably have to wake her up for her feeding. I wrote in the journal for an hour.

No Tests

Medication

Mercaptopurine ------- ----- 9:00 p.m.

Wednesday, March 26, 2014

Diagnosis: Leukemia; March 26, 1990

Samantha woke up at six o’clock. She sure isn’t feeling very well. Sam has a terrible cold and a cough, she has a hard time breathing her nose is so plugged up.

When I fed Samantha, she didn’t eat very much. Sam didn’t want to stay in the playpen and she wasn’t happy when I put her into her crib. All morning I spent holding or soothing her in her crib. Nothing seems to make her happy. Well there is, actually holding Sam with her soother and rocking her. This will put her to sleep.

At noon after I had given her Tempra she threw up. I was holding her and she threw up all over my back. It sure was hard getting my shirt off with out getting it all over myself.

I phoned the doctors office, Dr. C is on maternity leave. Dr. F is taking over for her. The receptionist said Dr. F is seeing all Dr. C maternity patients today, you’ll have to see someone else. All the doctors are booked so you’ll have to wait to see someone. She said to come after two thirty.

I took Alex to school and came home. Samantha ate again but not very much. I took Sam’s temperature it was 37.8C.

Miriam said when I went to pick up Alex that Susanna had a baby girl. Morgan asked if Alex could come over but I said we were going to order Alex’s cake. She said how about tomorrow. I said that would be fine.

We went to the doctors after school. It was pretty strange, we ended up seeing Dr. F. I don’t care for her too much. Of course it didn’t help when she said Samantha was so small. It’s getting quite irritating. To me she’s put on quite a lot. She actually has rolls and Sam isn’t short, she’s considered average for her height.

Anyways Dr. F checked her over and said her chest was clear and her stomach was okay. Hopefully it isn’t a virus she said. She asked what solids Samantha was eating. I said nothing just milk. The only things she’ll take in her mouth are a soother or milk. Dr. F suggested trying her on biscuits and to start her on Fer-in-sol. She also said she wanted to check Samantha for a urine test. A bag fitted on baby’s at home and brought back to the lab. All supplied by the lab.

Dr. F said to come in again in two weeks or if Samantha has a fever or throws up again.

Then we went to order Alex’s cake. Alex had said he wanted a Turtle cake, he just had to have a Turtle cake! So what does he order but BATMAN! Alex said the two Turtle cakes were skinny or too fat. He has all Turtle party stuff so I figure it would look better with a Turtle cake but Alex wouldn’t have it!

Then we went to Save On Foods for baby cereal and Fer-in-Sol. By the time we got home it was five o’clock.

Charlie was already home and of course he asked what’s for dinner. If I really knew at that point! We decided on chicken for dinner which Charlie cooked. Samantha wouldn’t sleep in her crib. The only way was to hold her.

We watched the Oscars then I put Samantha to bed but she was up in no time.

Alex feel asleep on the couch at six o’clock and woke up at eight o’clock. Charlie got him ready for bed at nine o’clock.

I fed Samantha at nine and put her to bed. She cried again at ten thirty and finally went to sleep. I went to bed as well.

No Tests

Medication

Bactrim 9:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------- 9:00 p.m.
Methotrexiate ------- ------ 9:00 p.m.

Diagnosis: Leukemia; March 25, 1990

Samantha woke up for her feeding after seven o’clock. After I fed her we came upstairs so I could have my breakfast. Charlie woke up at nine o’clock. I asked him to watch Samantha while I had a shower.

I did a couple loads of laundry, changed the sheets on our bed and did the dishes.

I fed Samantha again at ten o’clock. She went for a nap at eleven o’clock.

I phoned Kim to see if Jeff had come yet. She said he was already there. I said we would be over soon.

They were waiting for us when we arrived. Kim asked us to take a picture of all four of them. There were two pictures left. It sure is a different situation. Jeff was married to Kim for six years and they had two children; Jada and Orion.

After they left we went into the house. Everything looks okay. Charlie unplugged all the TV’s, VCR’s and video games. Then we reset the furnace to come on at 55F.

We went to Lonsdale Market Place. We had something to eat first then we took Alex to the ball room. Actually before that I fed Samantha in the First Aid Room. Another baby came in who was 8 months old but looks more like 1 ½ years old. The mother said she was 20 pounds and already walking. That was sure hard to believe.

We got home at four o’clock. I fed Samantha again. I don’t think she ate enough earlier.

We ate dinner at five thirty. Samantha was in her playpen. She started to complain after dinner. I put her into her crib. Samantha isn’t feeling too well. It looks like another cold and cough.

I did the dishes and wrote in the journal. It’s seven o’clock, that’s it for today.

No tests

Medication

Mercaptopurine ------- -------- 9:00 p.m.

Diagnosis: Leukemia; March 24, 1990

Samantha was still asleep when Alex woke me up at seven thirty. Alex said he was going to have a shower. I woke Samantha up for her feeding.

I put Samantha into the playpen while I had my breakfast. Then I had a shower and got dressed. By that time it was time to feed Samantha again. I was going to put Sam on our bed while I did my hair but she was complaining so I put her to bed. Samantha laid there and talked away looking at the elephants or musical bird. She rolled over onto her back so I put her in the middle. There isn’t much point in putting her on her stomach as she rolls right back.

We got ready to go out. We took Alex to Carter’s house for his birthday party. While we were there we saw a few of the children in Alex’s kindergarten class.

We went first to Fanny’s Fabrics to buy the snap on buttons. One of Alex’s jeans needs to be replaced. It had rusted and won’t snap. Then we walked in the mall until it was time to get Alex. We saw Orion and Jada in the mall. Jada said Christine had come over and taken them to the mall. I said where are they? She said we split up. I said that was a good idea, eh? Jada said yes! I said Did Christine have any trouble getting here or did she get lost? Jada said she got lost. I said has she ever been to Coquitlam? Jada said no. I said no wonder then. I said well see you later. Orion had walked right passed us. Whether or not he saw us I don’t know. I said to Charlie if Orion saw us he would probably walk on by anyways. Orion reminds me a lot of Jeff. Orion looks very rebellious just like Jeff was during his teenage years.

When we went to get Alex a lot of people were already there picking up their children.

When we came home Alex went outside to play. He changed out of his party clothes first.

I fed Samantha then we came upstairs. I asked Alex to come in to have cough medicine. Rick was crying when I went. Alex said Rick went down to the bay into someone’s backyard. I dragged him out of there and now Rick is saying bad words. Lola took him into the house.

I went to get Alex’s bike. Lola said she washed Rick’s mouth out with soap. She said she doesn’t know what to do with him. Alex grabbed his bike from me which he said he didn’t want to bring in!

Charlie went to get Chinese food for dinner. I had put Samantha into her crib. I was surprised that she went to sleep so fast.

We ate dinner at five thirty. Alex didn’t eat very much, he was coughing something terrible. Alex wanted to go out again but I said no. I didn’t want him to get any sicker. Alex kept on asking but the answer was still no.

I fed Samantha at six thirty. It’s now eight thirty, I’ve been writing in the journal for an hour now. One more feeding for Samantha then we’ll go to bed.

No Tests

Medication

Bactrim ------- ------ 10:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.

Diagnosis: Leukemia; March 23, 1990

Charlie woke me up at seven o’clock. He said Samantha is crying should I give her her soother. I said no I’ll feed her. He said is it feeding time? I said yes!

After I fed Samantha I had my breakfast. Alex had gotten up when we did. He had his shower right away. We always seem to be fighting over the shower theses days. It’s a battle over who can get in there first.

After breakfast I had a shower and got dressed. I fed Samantha again at ten o’clock. Then I gave her a bath. Samantha had a nap at eleven o’clock.

Charlie went out shopping. I cleaned the racks in the oven. Alex was outside playing with Rick.

Charlie brought us our food from McDonald’s, so we ate our dinner now and will have lunch at dinner time!

Kurt phoned at two thirty. He asked Alex if he could come over. I asked to talk to his mom. I said to Nora Kurt phoned Alex and asked Alex to come over. Is it alright with you. She said I guess so I said when should I pick him up. Nora said what time is it, the power must have gone off. I said it’s two thirty. She said oh, a couple of hours. It sounded like Kurt hadn’t asked his mother.

I took Alex to Kurt’s house and came home before Charlie left for work.

When I came back I tided up the house. Then it was time to get Alex.

Kim phoned before I left. She wanted directions on how to get here from Richmond. I really wasn’t all that sure so I told her I would get Charlie to tell her tomorrow. Her friend, Christine is coming tomorrow to visit her.

When I picked up Alex, Nora said she looks after a little girl. Actually a baby six months old. Liana. I said Samantha is quite small. She said well Liana was 6.1 at birth, so she isn’t much bigger. I said it’s nice to hear of a small baby, usually they’re nine pounds or more. Nora said they would be coming to Alex’s party.

When we got home Alex said Kurt’s mom asked him which Turtles he needs. I hope they don’t but any I’ve gotten.

I wrote in the journal for awhile. It’s terrible how far behind I’ve gotten. I just finished October and have started on November. From October to March will not be very interesting since I’m not too sure what happened.

We ate dinner at six thirty. Samantha woke up at five forty five for her feeding. She didn’t stay up very long, she seems to be tired.

It’s seven forty five and I’m writing in the journal. I’ll feed Samantha at nine or ten o’clock. Alex is getting ready for bed, tomorrow he goes to Carter’s birthday party and he needs lots of rest.

I’ll probably go to bed at eleven o’clock.

No tests

Medication

Bactrim ------ ----- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.

Diagnosis: Leukemia; March 22, 1990

Samantha woke up at eight o’clock. That sure was a long sleep for her. It was really nice for me.

After her feeding I had my breakfast, a shower and got dressed. Then I did the laundry and made our beds.

We went to the mall at eleven o’clock. Alex sure is bad in the mall. He can’t stand not to be able to buy something.

At Zellers Alex saw a Turtle lunch box. Alex said he really wanted it. I told him we wouldn’t buy it for him but he could buy it if he wanted to. Alex started to cry, he said I didn’t bring my money. I said we can give you the money but when we get home you must give us your money. Alex agreed to that. In the line up Alex said if I have 18 candies and I ate 6 how many would I have. I said 12, Alex said okay. Alex has $18 at home so he was figuring out how much money he would have left. Now when we got to the car it was a different story. He told us he didn’t buy the lunch box that Pa bought it and he didn’t owe Pa anything. I reminded him of what he told me in the line up. Alex said you don’t understand, to forget it. He knew I was right and was just trying to get out of it.

When we got home Alex went to Luke and Wanda’s house. He played with them in front of our house.

I fed Samantha then I put her into her crib, she was fast asleep.

I wrote a letter to Allison, did laundry, cleaned up the kitchen and wrote in the journal.

We ate dinner at six o’clock. Samantha woke up at that time. I fed her and put her in the playpen but she complained so I put her in the swing. She’s almost too big for it now. She sure has grown in the last month.

It’s seven o’clock and I’m writing in the journal. Samantha will need another feeding then we’ll go to bed.

No Tests

Medication

Bactrim 8:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.


Diagnosis: Leukemia; March 21, 1990

Samantha woke up at six thirty for her feeding. At seven thirty we came upstairs, I put her in the playpen while I had my breakfast.

Charlie woke up at eight o’clock. I then had my shower and got dressed.

We went to the motor vehicle branch. I renewed my license while Charlie changed his address.

We stopped at Super Store to buy a few groceries and came home.

Alex played with Luke and Wanda when we got home. I fed Samantha then went outside to do the garden at the front. Charlie put Samantha to bed but I had to come into the house to put her on her stomach. I also gave her her soother. Sam fell asleep almost right away.

We went into the house to have lunch at twelve thirty. Then Alex went outside to play.

Rick came back from the park. Alex said oh no here comes Rick. I said be nice now. Alex said all her does is hit me. Alex said he better not ht anyone at my party. I said Pa and I will watch him.

I told Lola we would take him with us if they wanted. She said that was really nice of us to offer. She never really said either way what she decided.

Alex came in at five o’clock. We ate dinner shortly afterwards. We had pizza which Alex had been wanting for the last few weeks, so he was happy.

Samantha was up from one thirty to four thirty and not much of a nap this morning. She went right to sleep, she must have been tired.

It’s after six o’clock. Almost time for another feeding then we’ll watch TV. Sam needs another feeding before she goes to bed. I’ll go to be shortly afterwards.

No Tests

Medication

No Tests

Medication
Bactrim 12:00 p.m. -------- -------
Mercaptopurine ------ 12:00 p.m. 10:00 p.m.

Diagnosis: Leukemia; March 20, 1990

Samantha woke up at seven thirty for her feeding. She must of woken Alex up since he was in her room giving her her soother. Alex said he needed to go to the bathroom that Samantha hadn’t woke him up.

After I fed Sam I put her in the playpen while I made breakfast. I then had a shower and got dressed.

Kim phoned around ten o’clock and invited us over for lunch. She is staying at Mom and Dad’s. She had been living in Manitoba but decided to move back to B.C. There isn’t too much for them to do since she doesn’t have a car.

We were going to the motor vehicle branch first but Charlie said it was too late and would be too busy.

We got there at eleven thirty. Alex and Orion played video games. Orion also played pool.

The blind wouldn’t go up in the family room at the patio door. Charlie spent most of the time fixing it. Kim felt quite badly but it must of broken before. We had a nice lunch and talked mostly of the family. It seems a bit strange but it’s a special situation. Kim sure is having a tough time right now.

We got home after two o’clock. Alex went to play with Rick. I fed Samantha before Charlie went to work. That way someone can keep an eye on Alex. Alex told me one day to quit looking for him. I told him he’s lucky to have me looking out for him and he should be nice to me.

I made dinner after I put Sam in her crib. She keeps on going onto her back. So I just leave her Samantha finally fell asleep at four thirty on her back. I took a picture of her which startled the poor girl! Then I put her onto her back which disturbed her sleep. Sam did go back to sleep right away.

I called Alex to come into the house as it was hailing outside. I wrote a letter to Mom and Dad then we ate dinner.

After dinner I did the dishes and a load of laundry. Then it was time to wake Samantha up for her feeding. Sam is in the playpen now while I’m writing. It looks like she needs another nap before her feeding then we’ll go to bed.

No Tests

No Medication

Diagnosis: Leuekemia; March 19, 1990

I woke up at eight thirty. Actually Alex woke me up to get his breakfast. Charlie had gone grocery shopping.

I was surprised and worried that Samantha hadn’t woken me up earlier. She had moved in the other direction and had the blanket over her differently. When Charlie came back I asked him if Sam woke up earlier and he said yes. He thought I wanted to sleep so he gave her her soother. It was nice to sleep longer but it isn’t good for Sam. I told Charlie not to do that but you know him!

I made Alex his breakfast then I fed Samantha. I put Sam in her playpen while I had my breakfast. She’s really good in her playpen and doesn’t complain except if she’s tired or hungry.

I got ready to take Kelly to the vet. I put a load of washing on before I left.

We saw Dr. H, he said Kelly is about twenty pounds over weight. He then checked Kelly over, gave him his shots, trimmed his nails and scaled some of his teeth. Dr. H said to continue on as we have.

When I came home I had a shower and got dressed. Then I fed Samantha and put her in her playpen. I made my lunch and ate it before putting Sam to bed.

Alex was playing outside with Rick, Luke and Wanda. Rick was being really rough, so we called Alex in. Alex was annoyed of course. Rick was using a stick and hitting everyone. Charlie said he saw Rick hit Alex and just miss his eye. Alex said he was going outside. I said you need to rest or you won’t be able to have a party. Alex said I don’t care, I’m going outside. I said fine I’ll phone everyone and tell them you can’t have a party. Alex screamed NO! I said then behave yourself. Alex stayed in his room for awhile then he came out and apologized.

I cleaned up the kitchen and started to cook dinner.

Jeff phoned at four o’clock for Mom and Dad’s phone number. He said he took Kim shopping but he wasn’t going to run her around this week, he didn’t have the time. I said she asked me if I had a car.

At four thirty Sam woke up for her next feeding. Then she went into her crib while we ate dinner. Samantha went to bed at six thirty. I did the dishes, put away the laundry and wrote in the journal.

It’s almost eight o’clock. I’ll watch TV, get Alex ready for bed, feed Samantha, get Sam to bed before going to bed myself.

No Tests

Medication

Bactrim -------- ------ 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate ------- ------ 8:00 p.m.

Diagnosis: Leukemia; March 14-18, 1990

March 14, 1990

I took Alex and Samantha to the doctors today. Dr. C checked Alex’s ears they’re okay. Samantha weighs 11 pounds 11 ½ ounces and measures 25”. That sure was an improvement for her. Samantha put on 12 ½ ounces in one week. Dr. C says she’s still three pounds under weight.

No Tests

Medication

Prednisone ------ ----- 8:00 p.m.
Bactrim 8:30 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.

March 15, 1990

No tests

Medication

Prednisone ------ ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

March 16, 1990

Today Alex’s school had a parade. They had to dress up as their favourite character from their favourite book. Alex dressed up as Egon Spengler from Ghostbusters.

No Tests

Medication

Prednisone ------ ----- 8:00 p.m.
Bactrim ------- ----- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.

March 17, 1990

It’s St Patrick’s Day today!

No Tests

Medication

Bactrim ------ ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.

March 18, 1990

No Tests

Medication

Mercaptopurine ------- ----- 10:00 p.m.