Samantha woke up at nine o’clock. That sure was nice for me.
At the second feeding I gave her cereal. Marla’s idea of giving it to her on my finger is working so far. Samantha still has a problem getting the food to the back of her mouth. I still think she’s not old enough or her mouth isn’t mature enough yet.
The morning sure went by quickly with feeding Sam, having a shower, getting ready, making bottles and feeding her again.
We got to Mom and Dad’s around noon. I told Mom I didn’t know if Samantha would take the bottle as it’s formula.
We got to the theatre at twelve fifty. Charlie said someone had said the box office opens at one o’clock. It actually didn’t open until one fifteen. I sat in the car for awhile until it opened.
I sure had a time getting water. They won’t give it to you in a large cup I was told the cups cost $.50 that’s the costs is when you buy pop and the pop is free! She said I could have two small cups of water. It makes no sense to me!
Alex really enjoyed the movie, her definitely didn’t fall asleep. Even Charlie didn’t fall asleep, totally amazing. Alex said totally amazing dude! I thought the movie was really good, I quite enjoyed it but I usually like children’s movies.
Mom was feeding Samantha when we got there. Sam cried when she heard my voice. Mom said she was laughing only a few minutes ago. She said Samantha was only gumming the nipple and not drinking any of it. I tried but I had the Sam problem. At least it gave Alex a chance to feed her like he has been wanting to for some time now.
Mom invited us to stay for dinner. After dinner I fed Samantha.
We came home at nine o’clock. I had fed Samantha before we left so, I put her in her crib when we got home.
Alex and I had our snacks then we went to bed.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
Tuesday, February 25, 2014
Diagnosis: Leukemia; April 21, 1990
Samantha woke up at eight o’clock. After I fed her I made breakfast. Charlie had gone to work today.
At nine thirty Alex and I watched a special on drugs. It had a lot of cartoon characters helping a teenager who was taking drugs to stop taking them.
I had a shower and got dressed then I fed Samantha again. We went shopping, Alex bought Mr. Freeze.
When we came home I fed Sam, she went for a nap right away.
Charlie got home at four o’clock. Shortly afterwards he went grocery shopping and to get a take out.
Charlie got back around five thirty and we ate dinner.
Samantha woke up at six o’clock. I fed her and we watched TV.
Alex went to bed on time because we’re going to see the Teenage Mutant Ninja Turtle movie tomorrow.
Samantha ate again at nine o’clock before going to bed for the night.
I went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
At nine thirty Alex and I watched a special on drugs. It had a lot of cartoon characters helping a teenager who was taking drugs to stop taking them.
I had a shower and got dressed then I fed Samantha again. We went shopping, Alex bought Mr. Freeze.
When we came home I fed Sam, she went for a nap right away.
Charlie got home at four o’clock. Shortly afterwards he went grocery shopping and to get a take out.
Charlie got back around five thirty and we ate dinner.
Samantha woke up at six o’clock. I fed her and we watched TV.
Alex went to bed on time because we’re going to see the Teenage Mutant Ninja Turtle movie tomorrow.
Samantha ate again at nine o’clock before going to bed for the night.
I went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Diagnosis: Leukemia; April 20, 1990
Charlie set the alarm for me. It woke me up at seven o’clock. Alex woke up as well. Alex had his shower while I made his breakfast and made him a lunch to take to school.
I fed Samantha before we left for school. The school buses were already there. I gave Mrs. Wall Alex’s money. Alex was in Susie’s group which had Neil, Joy, Sharon and Alex. The classroom was pretty busy since the morning class was there as well.
The grade one and kindergarten classes are going to Science World.
After I made sure Alex was okay, I told him I was leaving. I would like to go on the field trips with him but I find it impossible.
When we came home I had my breakfast. Samantha had a nap. I had a shower and got dressed. It was time for Sam to have another feeding.
I tided up the house which included putting away all Alex’s toys. Samantha had a nap while I vacuumed the house.
Samantha woke up after two o’clock. I fed her before we left to pick up Alex.
We went to Mom and Dad’s afterwards, we still have a few things there.
The house behind Mom and Dad’s sure has destroyed their view.
Charlie phoned at four thirty wondering where we were. He said why didn’t you call me I was waiting for you. I said waiting for what? Anyways I’m leaving now I was planning on leaving before but I couldn’t.
When we got home Charlie hadn’t even had a shower, I couldn’t believe that!
We went to Wendy’s and saw Sally, her brother and Candy there. A lot of people were looking at Samantha. I had put her in a high chair. She was able to sit quite well.
We came home after dinner, I fed Samantha then she had a nap.
I wrote in the journal afterwards and finally completed the month of February. Now I only have March to finish.
Alex went to bed at ten o’clock. I fed Samantha and went to bed as well.
No Tests
Medication
Bactrim 8:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
I fed Samantha before we left for school. The school buses were already there. I gave Mrs. Wall Alex’s money. Alex was in Susie’s group which had Neil, Joy, Sharon and Alex. The classroom was pretty busy since the morning class was there as well.
The grade one and kindergarten classes are going to Science World.
After I made sure Alex was okay, I told him I was leaving. I would like to go on the field trips with him but I find it impossible.
When we came home I had my breakfast. Samantha had a nap. I had a shower and got dressed. It was time for Sam to have another feeding.
I tided up the house which included putting away all Alex’s toys. Samantha had a nap while I vacuumed the house.
Samantha woke up after two o’clock. I fed her before we left to pick up Alex.
We went to Mom and Dad’s afterwards, we still have a few things there.
The house behind Mom and Dad’s sure has destroyed their view.
Charlie phoned at four thirty wondering where we were. He said why didn’t you call me I was waiting for you. I said waiting for what? Anyways I’m leaving now I was planning on leaving before but I couldn’t.
When we got home Charlie hadn’t even had a shower, I couldn’t believe that!
We went to Wendy’s and saw Sally, her brother and Candy there. A lot of people were looking at Samantha. I had put her in a high chair. She was able to sit quite well.
We came home after dinner, I fed Samantha then she had a nap.
I wrote in the journal afterwards and finally completed the month of February. Now I only have March to finish.
Alex went to bed at ten o’clock. I fed Samantha and went to bed as well.
No Tests
Medication
Bactrim 8:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis; Leukemia; April 19, 1990
Samantha woke up at seven thirty. After I had fed her I had my breakfast. While I was changing her, Alex woke up and came into her room. Alex said Can’t I have breakfast first this time. I said she’s already had breakfast. Alex said Alright! Alex has been having bacon for breakfast every day this week.
I put Samantha down for a nap much to Alex’s disgust. He wanted Samantha to stay up longer.
I fed Samantha again at eleven thirty. She didn’t eat that much, she kept on getting disrupted.
I took Alex to school and came home. Samantha had a nap while I had lunch. She ate again at two o’clock.
After school we came home. Alex wanted to play outside but I said no. Iit’s been raining outside all day and I don’t want him to get sick. He was pretty annoyed to say the least.
I invited Marla over for lunch next week. I told her how much trouble I’m having with Samantha and I don’t think she’s ready for solids. She agreed with me especially since she won’t take breast milk on a spoon.
Charlie and Alex went grocery shopping while I cooked dinner. Samantha cried on and off, she seems to be really tired but won’t go to sleep.
We ate dinner before six o’clock. After dinner I cleaned up the kitchen and fed Samantha.
Charlie looked after Samantha while I got Alex ready for bed. We finished the Turtle book. I thought it was really good. Alex has to get to sleep early tonight as they go on an all day field trip. That should be pretty tiring.
Samantha is having a nap. I’m writing in the journal, it’s nine thirty. I’ll have my snack and go to bed soon.
No Tests
Medication
Bactrim ------- ------ 7:45 p.m.
Mercaptopurine ------- ----- 7:45 p.m.
I put Samantha down for a nap much to Alex’s disgust. He wanted Samantha to stay up longer.
I fed Samantha again at eleven thirty. She didn’t eat that much, she kept on getting disrupted.
I took Alex to school and came home. Samantha had a nap while I had lunch. She ate again at two o’clock.
After school we came home. Alex wanted to play outside but I said no. Iit’s been raining outside all day and I don’t want him to get sick. He was pretty annoyed to say the least.
I invited Marla over for lunch next week. I told her how much trouble I’m having with Samantha and I don’t think she’s ready for solids. She agreed with me especially since she won’t take breast milk on a spoon.
Charlie and Alex went grocery shopping while I cooked dinner. Samantha cried on and off, she seems to be really tired but won’t go to sleep.
We ate dinner before six o’clock. After dinner I cleaned up the kitchen and fed Samantha.
Charlie looked after Samantha while I got Alex ready for bed. We finished the Turtle book. I thought it was really good. Alex has to get to sleep early tonight as they go on an all day field trip. That should be pretty tiring.
Samantha is having a nap. I’m writing in the journal, it’s nine thirty. I’ll have my snack and go to bed soon.
No Tests
Medication
Bactrim ------- ------ 7:45 p.m.
Mercaptopurine ------- ----- 7:45 p.m.
Diagnosis: Leukemia; April 18, 1990
Samantha woke up at seven thirty. I fed her again at ten o’clock but she didn’t eat that much since she was so tired.
We saw Birgit’s husband at school. I said congratulations. He said thanks. I said I bet you’re glad that’s over with! He said Brigit’s labour was only a couple of hours. I said that sure was unusual the baby was born on Hallie’s birthday. He said yes it was but you know Wendy’s baby was born on the second child’s birthday. I said wow, that’s really unusual. He said we left at six and Brigit had the baby at eight o’clock. I was afraid after hearing Candy had her baby in the car that it might happen to us.
When we got home I had lunch and fed Samantha. I picked Alex up from school but Bonny forgot to asked me if Alex could come over. So I went to school for nothing. I walked part of the way with Lettie and Joy. Joy wanted to keep on walking with me.
Samantha went for a nap when we got home. Charlie came home at four o’clock, I went to get Alex at four thirty. Bonny didn’t even let me come in which was a bit weird. Some people can be strange. I like to know the environment my child is in. She was quite friendly in the beginning but ever since her daughter got whopping cough she’s been a bit funny. She had to be rather cautious because of Alex.
We ate dinner shortly after we got home. Samantha woke up about the time we were finished dinner.
I fed her then she had another nap before her last feeding.
Alex went to bed at eight thirty. We’ve almost finished reading the Turtle book.
I went to bed at eleven o’clock.
No Tests
Medication
Bactrim ------- ------ 8:30 p.m.
Mercaptopurine ------ ------- 8:30 p.m.
We saw Birgit’s husband at school. I said congratulations. He said thanks. I said I bet you’re glad that’s over with! He said Brigit’s labour was only a couple of hours. I said that sure was unusual the baby was born on Hallie’s birthday. He said yes it was but you know Wendy’s baby was born on the second child’s birthday. I said wow, that’s really unusual. He said we left at six and Brigit had the baby at eight o’clock. I was afraid after hearing Candy had her baby in the car that it might happen to us.
When we got home I had lunch and fed Samantha. I picked Alex up from school but Bonny forgot to asked me if Alex could come over. So I went to school for nothing. I walked part of the way with Lettie and Joy. Joy wanted to keep on walking with me.
Samantha went for a nap when we got home. Charlie came home at four o’clock, I went to get Alex at four thirty. Bonny didn’t even let me come in which was a bit weird. Some people can be strange. I like to know the environment my child is in. She was quite friendly in the beginning but ever since her daughter got whopping cough she’s been a bit funny. She had to be rather cautious because of Alex.
We ate dinner shortly after we got home. Samantha woke up about the time we were finished dinner.
I fed her then she had another nap before her last feeding.
Alex went to bed at eight thirty. We’ve almost finished reading the Turtle book.
I went to bed at eleven o’clock.
No Tests
Medication
Bactrim ------- ------ 8:30 p.m.
Mercaptopurine ------ ------- 8:30 p.m.
Diagnosis: Leukemia; April 17, 1990
Samantha woke up at seven thirty. She went for a nap at nine thirty. Alex woke up around that time and I made him breakfast.
Before Samantha’s next feeding I tried giving her cereal. I actually started a week ago. She still doesn’t like solids. I feel like I’m getting nowhere with her. I’ve tried cereal, bananas, pears, breast milk and different cereals. She still spits them all out. Even breast milk which didn’t make much sense. I feel she’s not ready for solids but Dr. F is really pushing them.
I took Alex to school. We found out Wendy and Birgit both had their babies. Wendy had a baby girl on April 13th her due date. Birgit had a baby girl on April 14th Hallie’s birthday. I wonder what the chances are of having two children born on the same day!
When we came home Samantha went for a nap. I woke her up at two o’clock for her feeding.
When we went to pick Alex up, Marci said Birgit name the baby Chelsea she weighed 8 pounds 8 ounces.
Alex played outside after school. We ate dinner at six o’clock. Alex played outside after dinner after he had rested of course!
Alex went to bed at eight thirty. We’ve been reading the Teenage Mutant Ninja Turtle book. It’s about the movie, I find it really interesting.
I went to bed after I had fed Samantha.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Before Samantha’s next feeding I tried giving her cereal. I actually started a week ago. She still doesn’t like solids. I feel like I’m getting nowhere with her. I’ve tried cereal, bananas, pears, breast milk and different cereals. She still spits them all out. Even breast milk which didn’t make much sense. I feel she’s not ready for solids but Dr. F is really pushing them.
I took Alex to school. We found out Wendy and Birgit both had their babies. Wendy had a baby girl on April 13th her due date. Birgit had a baby girl on April 14th Hallie’s birthday. I wonder what the chances are of having two children born on the same day!
When we came home Samantha went for a nap. I woke her up at two o’clock for her feeding.
When we went to pick Alex up, Marci said Birgit name the baby Chelsea she weighed 8 pounds 8 ounces.
Alex played outside after school. We ate dinner at six o’clock. Alex played outside after dinner after he had rested of course!
Alex went to bed at eight thirty. We’ve been reading the Teenage Mutant Ninja Turtle book. It’s about the movie, I find it really interesting.
I went to bed after I had fed Samantha.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Diagnosis: Leukemia; April 16, 1990
Samantha woke up at eight o’clock. After her second feeding we went to Sek Kee for Dim Sum. They have a lot of variety which is good. Usually restaurants only have a few varieties.
We went to the mall, to see if we could return the stroller. I found it very difficult to steer, it’s getting harder and harder to lock when it’s open, and it’s becoming out of alignment. We didn’t have any trouble exchanging. We decided on a stroller which was more expensive but it’s so much easier to control.
I bought a pair of shoes and a t-shirt. Alex pestered us to go to the arcade. Charlie and Alex went while Sam and I walked around. I was rather annoyed they took so long to come back.
When we got home I fed Samantha and put her down for a nap.
Charlie worked outside edging the driveway while I started dinner. We ate dinner before six o’clock. Alex has been playing outside most of the time. Wanda came to the door while we were eating dinner. Alex told her he would be out after dinner. I told Alex he could go out in fifteen minutes after he had finished. He complained they would be gone by then. I said that’s too bad, I want you to rest after dinner. Alex was so upset he started to cry. He just doesn’t’ understand that he needs to rest more than the average child.
Alex came in at seven thirty. He had his snack and went to bed.
I went to bed after feeding Samantha.
No Tests
Medication
Bactrim 8:30 p.m. ------- 8:30 p.m.
Mercaptopurine ------- ----- 8:30 p.m.
Methotrexiate ------- ------ 8:30 p.m.
We went to the mall, to see if we could return the stroller. I found it very difficult to steer, it’s getting harder and harder to lock when it’s open, and it’s becoming out of alignment. We didn’t have any trouble exchanging. We decided on a stroller which was more expensive but it’s so much easier to control.
I bought a pair of shoes and a t-shirt. Alex pestered us to go to the arcade. Charlie and Alex went while Sam and I walked around. I was rather annoyed they took so long to come back.
When we got home I fed Samantha and put her down for a nap.
Charlie worked outside edging the driveway while I started dinner. We ate dinner before six o’clock. Alex has been playing outside most of the time. Wanda came to the door while we were eating dinner. Alex told her he would be out after dinner. I told Alex he could go out in fifteen minutes after he had finished. He complained they would be gone by then. I said that’s too bad, I want you to rest after dinner. Alex was so upset he started to cry. He just doesn’t’ understand that he needs to rest more than the average child.
Alex came in at seven thirty. He had his snack and went to bed.
I went to bed after feeding Samantha.
No Tests
Medication
Bactrim 8:30 p.m. ------- 8:30 p.m.
Mercaptopurine ------- ----- 8:30 p.m.
Methotrexiate ------- ------ 8:30 p.m.
Sunday, February 23, 2014
Diagnosis: Leukemia; Apirl 15, 1990
It’s Easter Sunday!
Samantha woke up at seven thirty. Alex was up actually before that. He asked me if he could collect his Easter eggs. I had to ask him to repeat it about three times. Alex was talking so softly. Alex collected all the eggs. he seemed pretty excited. Alex said the Easter bunny didn’t fool me. I got all the eggs. A little while later I noticed a few Alex had missed and called him back. He missed some on his bunk bed and one in his drawer!
We had breakfast after Samantha had been fed.
After Samantha had her second feeding I did some gardening. There sure are a lot of weeds. Charlie was cutting the lawn which took a lot of time and work.
We went to Mom and Dad’s for Easter dinner. The Easter bunny left a nice Easter nest of eggs and candies on the dining room table.
We stayed until nine o’clock. We were pretty tired from gardening. I put Samantha and Alex to bed and went to bed myself.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
Samantha woke up at seven thirty. Alex was up actually before that. He asked me if he could collect his Easter eggs. I had to ask him to repeat it about three times. Alex was talking so softly. Alex collected all the eggs. he seemed pretty excited. Alex said the Easter bunny didn’t fool me. I got all the eggs. A little while later I noticed a few Alex had missed and called him back. He missed some on his bunk bed and one in his drawer!
We had breakfast after Samantha had been fed.
After Samantha had her second feeding I did some gardening. There sure are a lot of weeds. Charlie was cutting the lawn which took a lot of time and work.
We went to Mom and Dad’s for Easter dinner. The Easter bunny left a nice Easter nest of eggs and candies on the dining room table.
We stayed until nine o’clock. We were pretty tired from gardening. I put Samantha and Alex to bed and went to bed myself.
No Tests
Medication
Mercaptopurine ------ ----- 9:00 p.m.
Diagnosis: Leukemia; April 14, 1990
Samantha woke up at eight o’clock. Charlie decided we’re going to Bellingham. We left after Samantha’s second feeding.
This time it didn’t take very long to get down and there wasn’t any wait at the border. We went by highway #1 and turned off at #13 which led us directly to the border. After the border we drove straight until the sign for Bellis Fair Mall.
Charlie bought a pair of pants but I couldn’t find anything. Charlie bought Alex a Leonardo suit for his hospital visit. When Alex saw it he wanted it but he only had $3.00. I asked Charlie if he was planning on giving Alex any money. Charlie said no. Alex started to cry. He sure gets upset easily. It was then Charlie decided to buy it for a hospital prize.
I fed Samantha in the washroom. It was the only place they had unfortunately. Charlie makes a big deal if I try to fed Samantha in public!
We left around four o’clock. At the border we were asked how much we spent.. Charlie said $35 and the customs officer said okay. That really surprised us both.
We got home around five o’clock. I fed Samantha while Charlie phoned for a take out.
After dinner I rested, I found it pretty tiring. I phoned Mom to let her know we didn’t go to Gibsons.
Alex went to bed at ten o’clock. I went to bed after feeding Samantha.
No Tests
Medicating
Mercaptopurine ------ ------ 9:00 p.m.
This time it didn’t take very long to get down and there wasn’t any wait at the border. We went by highway #1 and turned off at #13 which led us directly to the border. After the border we drove straight until the sign for Bellis Fair Mall.
Charlie bought a pair of pants but I couldn’t find anything. Charlie bought Alex a Leonardo suit for his hospital visit. When Alex saw it he wanted it but he only had $3.00. I asked Charlie if he was planning on giving Alex any money. Charlie said no. Alex started to cry. He sure gets upset easily. It was then Charlie decided to buy it for a hospital prize.
I fed Samantha in the washroom. It was the only place they had unfortunately. Charlie makes a big deal if I try to fed Samantha in public!
We left around four o’clock. At the border we were asked how much we spent.. Charlie said $35 and the customs officer said okay. That really surprised us both.
We got home around five o’clock. I fed Samantha while Charlie phoned for a take out.
After dinner I rested, I found it pretty tiring. I phoned Mom to let her know we didn’t go to Gibsons.
Alex went to bed at ten o’clock. I went to bed after feeding Samantha.
No Tests
Medicating
Mercaptopurine ------ ------ 9:00 p.m.
Diagnosis; Leukemia; April 13, 1990
Samantha woke up at eight thirty. After I had fed her I made breakfast for Alex and myself.
Charlie went out to buy new tires. Mom and Dad dropped by with some of our stuff. Mom kept on asking me where exactly Charlie went but I couldn’t remember. Dad and Alex played video games.
After they left I tided up the house and did a lot of laundry.
We went to Burger King for dinner. When we got home I fed Samantha and made cupcakes to take to Gibsons.
Joan phoned to ask us not to come tomorrow as planned. She had spotted on Thursday and wanted to rest over the weekend. I said I understand and for her to take it easy.
Joan was upset that Mom and Dad didn’t seem so happy. Mom tends to act rather funny when we’re pregnant anyways.
I told Charlie and Alex we wouldn’t be going. Alex was upset he was going nowhere. Charlie thinks we should go to Bellingham tomorrow.
Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Prednisone ------- ------ 9:00 p.m.
Bactrim -------- ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Charlie went out to buy new tires. Mom and Dad dropped by with some of our stuff. Mom kept on asking me where exactly Charlie went but I couldn’t remember. Dad and Alex played video games.
After they left I tided up the house and did a lot of laundry.
We went to Burger King for dinner. When we got home I fed Samantha and made cupcakes to take to Gibsons.
Joan phoned to ask us not to come tomorrow as planned. She had spotted on Thursday and wanted to rest over the weekend. I said I understand and for her to take it easy.
Joan was upset that Mom and Dad didn’t seem so happy. Mom tends to act rather funny when we’re pregnant anyways.
I told Charlie and Alex we wouldn’t be going. Alex was upset he was going nowhere. Charlie thinks we should go to Bellingham tomorrow.
Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Prednisone ------- ------ 9:00 p.m.
Bactrim -------- ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis: Leukemia; April 12, 1990
Alex woke me up, he said he wanted bacon for breakfast. I told him he ate it all. Alex was quite mad and left. Then he came back and said he wanted hot cereal. After making breakfast I had a shower and got dressed.
Samantha woke up at eight thirty. After I had fed her I did the dishes and tided up the house.
Sam went for a nap then I woke her up at eleven o’clock for another feeding.
After taking Alex to school, we went to Woodward’s to pay a bill then we came home.
When I picked Alex up from school he threw his lunchbox across the grass. I don’t know why he does things like that. Alex said oh no my egg is in there it’s probably broken. I said it serves you right I’ve told you not to throw you’re lunchbox.
Alex played outside after we got home. Samantha had a nap while I tided up the house. The house seems to be getting into a real mess these days. I spend my time doing laundry or putting things away.
Charlie came home at four o’clock. We ate dinner at five thirty. I fed Samantha at six thirty, she stayed until her next feeding.
Alex went to bed at eight thirty. I went to bed at ten o’clock after Sam went to bed.
No Tests
Medication
Prednisone ------- ------- 8:30 p.m.
Mercaptopurine -------- ------ 8:30 p.m.
Samantha woke up at eight thirty. After I had fed her I did the dishes and tided up the house.
Sam went for a nap then I woke her up at eleven o’clock for another feeding.
After taking Alex to school, we went to Woodward’s to pay a bill then we came home.
When I picked Alex up from school he threw his lunchbox across the grass. I don’t know why he does things like that. Alex said oh no my egg is in there it’s probably broken. I said it serves you right I’ve told you not to throw you’re lunchbox.
Alex played outside after we got home. Samantha had a nap while I tided up the house. The house seems to be getting into a real mess these days. I spend my time doing laundry or putting things away.
Charlie came home at four o’clock. We ate dinner at five thirty. I fed Samantha at six thirty, she stayed until her next feeding.
Alex went to bed at eight thirty. I went to bed at ten o’clock after Sam went to bed.
No Tests
Medication
Prednisone ------- ------- 8:30 p.m.
Mercaptopurine -------- ------ 8:30 p.m.
Diagnosis: Leukemia; April 11, 1990
Samantha woke up at eight thirty. It sure is nice to sleep later.
While I was making breakfast Marla dropped by with movie tickets we could use for the Turtle movie. I was rather embarrassed since I was still in my nightgown and bathrobe.
Samantha went for a nap. Actually she was going to have a nap but I figured I had better feed her again. Anyways Alex beat me to the shower and it would be eleven before I would be able to have a shower which is when Samantha would need another feeding.
So Sam went for a nap around eleven then I had a shower and got dressed.
After taking Alex to school we came home. Sam went back to her crib while I had lunch. I fed her again at two o’clock then we picked up Alex and Patrick from school.
Morgan came to get Patrick at five o’clock. She said they had to reserve a space on the ferry to the Gulf Islands. They’re getting the nine twenty ferry and they’ll be back next Thursday.
After dinner I wrote in the journal. I fed Samantha at six thirty and again at nine o’clock. Alex went to bed at eight thirty.
I went to bed at ten thirty.
No Test
Medication
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
While I was making breakfast Marla dropped by with movie tickets we could use for the Turtle movie. I was rather embarrassed since I was still in my nightgown and bathrobe.
Samantha went for a nap. Actually she was going to have a nap but I figured I had better feed her again. Anyways Alex beat me to the shower and it would be eleven before I would be able to have a shower which is when Samantha would need another feeding.
So Sam went for a nap around eleven then I had a shower and got dressed.
After taking Alex to school we came home. Sam went back to her crib while I had lunch. I fed her again at two o’clock then we picked up Alex and Patrick from school.
Morgan came to get Patrick at five o’clock. She said they had to reserve a space on the ferry to the Gulf Islands. They’re getting the nine twenty ferry and they’ll be back next Thursday.
After dinner I wrote in the journal. I fed Samantha at six thirty and again at nine o’clock. Alex went to bed at eight thirty.
I went to bed at ten thirty.
No Test
Medication
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
Saturday, February 22, 2014
Diagnosis: Leukemia; February 22-28, 1990
February 22, 1990
No Tests
Medication
Mercaptopurine ------ ----- 7:45 p.m.
Temperature 37.29C 7:45 p.m.
February 23, 1990
Charlie is finally getting over the flu. Looking after all was very hard on me. I felt really funny tonight. I laid down for a nap. When I woke up I was dizzy and my vision was blurred.
No Tests
Medication
Mercaptopurine ------ ----- 7:45 p.m.
Temperature ------ ----- 37.29C 7:45 p.m.
February 24, 1990
No Tests
Medication
Mercaptopurine ------ ----- 11:00 p.m.
Temperature ------ ----- 36.70 11:00 p.m.
February 25, 1990
I still don’t feel right, I think I just need to get more rest. Not the easiest thing to do.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Temperature ------ ----- 38.89 5:00 p.m.
February 26, 1990
We saw Dr. C today, Alex had a temperature yesterday. He said his ears hurt. In fact he woke up crying yesterday. Dr. C said both Alex’s ears are infected. She took him off Bactrim and put him on Septra Suspension. Alex said it tastes awful and makes him feel like he could barf!
No Tests
Medication
Septra 11:45 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
Methotrexiate ------- ------- 8:00 p.m.
February 27, 1990
No Tests
Medication
Septra 11:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
February 28, 1990
No Tests
Medication
Septra 10:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
No Tests
Medication
Mercaptopurine ------ ----- 7:45 p.m.
Temperature 37.29C 7:45 p.m.
February 23, 1990
Charlie is finally getting over the flu. Looking after all was very hard on me. I felt really funny tonight. I laid down for a nap. When I woke up I was dizzy and my vision was blurred.
No Tests
Medication
Mercaptopurine ------ ----- 7:45 p.m.
Temperature ------ ----- 37.29C 7:45 p.m.
February 24, 1990
No Tests
Medication
Mercaptopurine ------ ----- 11:00 p.m.
Temperature ------ ----- 36.70 11:00 p.m.
February 25, 1990
I still don’t feel right, I think I just need to get more rest. Not the easiest thing to do.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Temperature ------ ----- 38.89 5:00 p.m.
February 26, 1990
We saw Dr. C today, Alex had a temperature yesterday. He said his ears hurt. In fact he woke up crying yesterday. Dr. C said both Alex’s ears are infected. She took him off Bactrim and put him on Septra Suspension. Alex said it tastes awful and makes him feel like he could barf!
No Tests
Medication
Septra 11:45 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
Methotrexiate ------- ------- 8:00 p.m.
February 27, 1990
No Tests
Medication
Septra 11:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
February 28, 1990
No Tests
Medication
Septra 10:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
Friday, February 21, 2014
Diagnosis: Leukemia; February 21, 1990
I woke up at eight thirty. Samantha woke up shortly afterwards. Alex was already awake, he asked me to make him his breakfast. Charlie was in the kitchen, he stayed home from work. He’s moaning away feeling pretty miserable. He’s had the flu for more than 24 hours. It seems to have hit him pretty hard.
After I had made Alex’s breakfast I fed Sam. She still is quite cranky and not feeling very good. At least she doesn’t have a temperature. I put Samantha back to her crib. Shortly after I had fed her I made Charlie coffee and toast, Alex toast and myself some toast. By the time I sat down I was already tired. The three sickies are wearing me out!
Charlie keeps on complaining how sick he is and asking me to make him more food. He never eats it so it’s rather dumb but he won’t listen.
In the afternoon I had it! I needed to talk to someone more normal so I phoned Marla. It was a relief to sit down and talk!
We saw Dr. C. she checked Samantha and Alex over since they both threw up. She said it looked like the flu but if they weren’t better or if they had a temperature to come back.
We ate dinner at six o’clock. Charlie didn’t eat dinner of course!
No tests
Medication
Cough syrup 9:00 a.m. ------ 7:00 p.m.
Bactrim 10:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
After I had made Alex’s breakfast I fed Sam. She still is quite cranky and not feeling very good. At least she doesn’t have a temperature. I put Samantha back to her crib. Shortly after I had fed her I made Charlie coffee and toast, Alex toast and myself some toast. By the time I sat down I was already tired. The three sickies are wearing me out!
Charlie keeps on complaining how sick he is and asking me to make him more food. He never eats it so it’s rather dumb but he won’t listen.
In the afternoon I had it! I needed to talk to someone more normal so I phoned Marla. It was a relief to sit down and talk!
We saw Dr. C. she checked Samantha and Alex over since they both threw up. She said it looked like the flu but if they weren’t better or if they had a temperature to come back.
We ate dinner at six o’clock. Charlie didn’t eat dinner of course!
No tests
Medication
Cough syrup 9:00 a.m. ------ 7:00 p.m.
Bactrim 10:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Diagnosis: Leukemia; February 20, 1990
Samantha woke up at seven thirty this morning. After I fed her I took her temperature. It’s 37.20, I sure was glad to see that it had come down. I was going to put her in the playpen but she wasn’t feeling good so I put her in her crib. All she seems to want to do is eat and sleep. Samantha doesn’t want to stay awake for very long.
Alex woke up when I was putting Samantha to bed. I made Alex his breakfast and took his temperature, it’s 37.27C. It looks like we won’t have to go back to the doctors.
After I had my shower, gotten dressed, I had breakfast. Then I made the beds, did the dishes, cleaned up the kitchen and did more laundry. I feel like all I do is laundry.
Samantha woke up at eleven o’clock. I tried Pablum but she didn’t want it she wanted her milk first. After Sam’s feeding I gave her a bath and put her to bed. She was pretty cranky when she went to bed.
Samantha woke up again at two o’clock. It seems like I just get her to bed when she wakes up again. Of course there’s Alex who seems to always ask me to make him something to eat. Busy, busy, busy.
I started to cook dinner at four thirty. We ate at five o’clock.
Samantha woke up at five thirty. She was so upset when she cried she lost her voice. At six o’clock she finished eating and went back to bed. There’s no point in keeping her up she just cries anyways.
After dinner we watched TV and I wrote in the journal. Alex is getting ready for bed except he wants to play one game of Ninja Turtles. Always an excuse to delay going to bed.
I probably will go to bed at ten or eleven o’clock.
No Tests
Medication
Mercaptopurine —— —– 8:00 p.m.
Temperature 37.27C 9:00 a.m. 37.16C 10:10 a.m. 35.75C 7:00 p.m.
Alex woke up when I was putting Samantha to bed. I made Alex his breakfast and took his temperature, it’s 37.27C. It looks like we won’t have to go back to the doctors.
After I had my shower, gotten dressed, I had breakfast. Then I made the beds, did the dishes, cleaned up the kitchen and did more laundry. I feel like all I do is laundry.
Samantha woke up at eleven o’clock. I tried Pablum but she didn’t want it she wanted her milk first. After Sam’s feeding I gave her a bath and put her to bed. She was pretty cranky when she went to bed.
Samantha woke up again at two o’clock. It seems like I just get her to bed when she wakes up again. Of course there’s Alex who seems to always ask me to make him something to eat. Busy, busy, busy.
I started to cook dinner at four thirty. We ate at five o’clock.
Samantha woke up at five thirty. She was so upset when she cried she lost her voice. At six o’clock she finished eating and went back to bed. There’s no point in keeping her up she just cries anyways.
After dinner we watched TV and I wrote in the journal. Alex is getting ready for bed except he wants to play one game of Ninja Turtles. Always an excuse to delay going to bed.
I probably will go to bed at ten or eleven o’clock.
No Tests
Medication
Mercaptopurine —— —– 8:00 p.m.
Temperature 37.27C 9:00 a.m. 37.16C 10:10 a.m. 35.75C 7:00 p.m.
Diagnosis: Leukemia; February 19, 1990
Samantha woke up for her feeding at seven o’clock. She still feels pretty warm. After she had her feeding, I took her temperature it’s 38.15C.
At nine o’clock I phoned the doctors office. I was able to get an appointment for 11:50 a.m.
I put Samantha to bed, made our beds and did the dishes. Then I had a shower and got dressed.
At eleven o’clock Alex still wasn’t awake, so I woke him up. His temperature is 39.05C it sure is hard having them both sick at the same time and having temperatures. Alex wants me to hold him. He told Samantha to go get her own Mama that this is his Mama. I told him he has to share me with Samantha. Alex said no way.
We saw Dr. C, first of all I told her Dad’s PT level is 22. She said it wasn’t very good and it should be monitored. I told her Dad has been taking vitamin pills. She said tell him to stop taking them, the vitamins change the PT level especially vitamin C.
I told Dr. C both children have a temperature. She asked if they have any other symptoms. I said Alex had a sore throat, running nose, a cough and a stomach ache. Samantha has a cough and she threw up this morning.
After Dr. C had checked them both over she said they have a viral infection and both of their chests are clear. If they have a temperature still tomorrow to bring them back so she can re-evaluate them both.
Dr. C said Samantha can have 60ml of Tempra. She doesn’t weigh enough for 80ml but she’s older than what the 40 ml’s is for.
We came home after we had taken the mail from Mom and Dad’s. Samantha had eaten at the doctors office so I was able to put her back to her crib.
Alex laid down on the couch downstairs, he fell asleep while watching TV.
Samantha woke up at two o’clock for her feeding. Her temperature is still quite high 38.17C at three o’clock. She now has a runny nose. I put her back to bed before four o’clock.
By the time Charlie came home I had really had it. It’s been a difficult day. I feel like I’ve been pulled from one child to the other. Then Charlie says so what’s for dinner. I told him I’ve had a rough day. Charlie said so you still have to eat. We had leftovers for dinner.
Samantha woke up at six thirty for her feeding and went back to bed shortly afterwards. Her temperature is 38.04C, I gave her Tempera before she went back to bed.
I got Alex ready for bed at eight thirty. He actually wanted to go to bed, so you know he must be tired.
Samantha does tend to wake up occasionally in between the time I put her to bed and her feedings. So it isn’t like she sleeps straight through.
Samantha woke up again at nine o’clock. She’s back to having five feedings a day. That should help to put some weight on her.
Samantha was in bed by ten o’clock as was myself.
No tests
Medication
Bactrim 11:05 a.m. ——- 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
Methotrexiate ——- —– 8:00 p.m.
Temperature 39.05C 11:05 a.m. 38.89C 8:00 p.m.
At nine o’clock I phoned the doctors office. I was able to get an appointment for 11:50 a.m.
I put Samantha to bed, made our beds and did the dishes. Then I had a shower and got dressed.
At eleven o’clock Alex still wasn’t awake, so I woke him up. His temperature is 39.05C it sure is hard having them both sick at the same time and having temperatures. Alex wants me to hold him. He told Samantha to go get her own Mama that this is his Mama. I told him he has to share me with Samantha. Alex said no way.
We saw Dr. C, first of all I told her Dad’s PT level is 22. She said it wasn’t very good and it should be monitored. I told her Dad has been taking vitamin pills. She said tell him to stop taking them, the vitamins change the PT level especially vitamin C.
I told Dr. C both children have a temperature. She asked if they have any other symptoms. I said Alex had a sore throat, running nose, a cough and a stomach ache. Samantha has a cough and she threw up this morning.
After Dr. C had checked them both over she said they have a viral infection and both of their chests are clear. If they have a temperature still tomorrow to bring them back so she can re-evaluate them both.
Dr. C said Samantha can have 60ml of Tempra. She doesn’t weigh enough for 80ml but she’s older than what the 40 ml’s is for.
We came home after we had taken the mail from Mom and Dad’s. Samantha had eaten at the doctors office so I was able to put her back to her crib.
Alex laid down on the couch downstairs, he fell asleep while watching TV.
Samantha woke up at two o’clock for her feeding. Her temperature is still quite high 38.17C at three o’clock. She now has a runny nose. I put her back to bed before four o’clock.
By the time Charlie came home I had really had it. It’s been a difficult day. I feel like I’ve been pulled from one child to the other. Then Charlie says so what’s for dinner. I told him I’ve had a rough day. Charlie said so you still have to eat. We had leftovers for dinner.
Samantha woke up at six thirty for her feeding and went back to bed shortly afterwards. Her temperature is 38.04C, I gave her Tempera before she went back to bed.
I got Alex ready for bed at eight thirty. He actually wanted to go to bed, so you know he must be tired.
Samantha does tend to wake up occasionally in between the time I put her to bed and her feedings. So it isn’t like she sleeps straight through.
Samantha woke up again at nine o’clock. She’s back to having five feedings a day. That should help to put some weight on her.
Samantha was in bed by ten o’clock as was myself.
No tests
Medication
Bactrim 11:05 a.m. ——- 8:00 p.m.
Mercaptopurine ——- —— 8:00 p.m.
Methotrexiate ——- —– 8:00 p.m.
Temperature 39.05C 11:05 a.m. 38.89C 8:00 p.m.
Tuesday, February 18, 2014
Diagnosis: Leukemia; February 18, 1990
Samantha woke me up at seven o’clock. I had checked on her in the middle of the night and found her on her back. She keeps on slipping onto her back and isn’t able to go back again.
After I had fed Sam we came upstairs, she sat in the swing while I made breakfast. Charlie had been nice enough to do the dishes. Surprise, surprise!
Alex woke up after I had finished breakfast. I made him breakfast then he went and laid down on the couch. Alex asked me to get his comforter, he said he was cold.
I put Samantha back to her crib at nine o’clock. Then I changed the sheets on Alex’s and our bed and I did the dishes.
Samantha was asleep so I had my shower and got dressed. Alex was still lying on the couch. Alex asked me to heat up the leftovers. While Alex was eating I put the diapers in the washing machine.
Samantha had woken up after I had come out of the shower. I gave her her soother but she kept on spitting it out.
I fed Samantha then it was time for lunch. I put Sam in the playpen, she seems to really like it. She lays on her back and looks around. Sometimes if she thinks we’re ignoring her she’ll complain.
After lunch Alex had a shower and I gave Samantha a bath. Then Sam went back to her crib at one o’clock.
I did three more loads of laundry and the dishes. Alex wants a tuna fish sandwich. He had Alligator soup earlier but he’s still hungry.
It’s three thirty, Charlie will be home from work soon. He’s working overtime. I’m writing in the journal.
Charlie wants to go out for dinner. We went to White Spot. We got there before five and there’s quite a long line up. Samantha fell asleep in my arms while we were waiting and slept most of the time while we were at the booth.
When we got home, I fed Samantha. She seemed rather cranky, so I took her temperature. It was 38.88C, I thought because I had left her in her snowsuit while we were in the restaurant that was why. I didn’t give her Tempra at that time.
Alex fell asleep at eight thirty on the couch. He was feeling okay today hasn’t had a temperature. He can’t be feeling too good if he falls asleep now.
At eleven o’clock I took Alex up to bed and got him into his pajamas. Alex said he was so tired and his eyes hurt. He was very cranky.
Samantha started to cry just as I was getting ready for bed. I took her temperature, it’s 39.08C. This time I gave her tempra. Luckily she was able to get to sleep.
Then I was able to go to bed myself. I left both the kids room doors open just for my piece of mind.
No tests
Medication
Cough syrup —— 2:00 p.m. ——-
Mercaptopurine ——- —– 11:08 p.m.
Temperature 35.58C 9:00 a.m. 36.78C 2:15 p.m. 38.78C 11:00 p.m
After I had fed Sam we came upstairs, she sat in the swing while I made breakfast. Charlie had been nice enough to do the dishes. Surprise, surprise!
Alex woke up after I had finished breakfast. I made him breakfast then he went and laid down on the couch. Alex asked me to get his comforter, he said he was cold.
I put Samantha back to her crib at nine o’clock. Then I changed the sheets on Alex’s and our bed and I did the dishes.
Samantha was asleep so I had my shower and got dressed. Alex was still lying on the couch. Alex asked me to heat up the leftovers. While Alex was eating I put the diapers in the washing machine.
Samantha had woken up after I had come out of the shower. I gave her her soother but she kept on spitting it out.
I fed Samantha then it was time for lunch. I put Sam in the playpen, she seems to really like it. She lays on her back and looks around. Sometimes if she thinks we’re ignoring her she’ll complain.
After lunch Alex had a shower and I gave Samantha a bath. Then Sam went back to her crib at one o’clock.
I did three more loads of laundry and the dishes. Alex wants a tuna fish sandwich. He had Alligator soup earlier but he’s still hungry.
It’s three thirty, Charlie will be home from work soon. He’s working overtime. I’m writing in the journal.
Charlie wants to go out for dinner. We went to White Spot. We got there before five and there’s quite a long line up. Samantha fell asleep in my arms while we were waiting and slept most of the time while we were at the booth.
When we got home, I fed Samantha. She seemed rather cranky, so I took her temperature. It was 38.88C, I thought because I had left her in her snowsuit while we were in the restaurant that was why. I didn’t give her Tempra at that time.
Alex fell asleep at eight thirty on the couch. He was feeling okay today hasn’t had a temperature. He can’t be feeling too good if he falls asleep now.
At eleven o’clock I took Alex up to bed and got him into his pajamas. Alex said he was so tired and his eyes hurt. He was very cranky.
Samantha started to cry just as I was getting ready for bed. I took her temperature, it’s 39.08C. This time I gave her tempra. Luckily she was able to get to sleep.
Then I was able to go to bed myself. I left both the kids room doors open just for my piece of mind.
No tests
Medication
Cough syrup —— 2:00 p.m. ——-
Mercaptopurine ——- —– 11:08 p.m.
Temperature 35.58C 9:00 a.m. 36.78C 2:15 p.m. 38.78C 11:00 p.m
Saturday, February 15, 2014
Diagnosis: Leukemia; February 15-17, 1990
February 15, 1990
No tests
Medication
Bactrim ------ ----- 8:00 p.m.
Mercaptopurine ------ ---- 8:00 p.m.
February 16, 1990
No Tests
Medication
Cough syrup ------ ----- 11:00 p.m.
Bactrim ------ ------- 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Temperature 38.74C 8:00 a.m. 37.24 4:00 p.m. 38.24C 5:00 p.m. 38.58C 8:00 p.m. 37.24C 11:00 p.m.
February 17, 1990
Samantha woke me up at three o’clock. She was lying on her back. I put her on her tummy and she started to really cry. I gave her her soother and she went back to sleep.
Samantha was crying again at seven o’clock but Charlie got up and gave her her soother.
Charlie went out at eight thirty. Samantha woke up at eight forty five and I fed her at that time. I put Samantha in the swing while I made breakfast. She sure is a good baby, hardly complains. She only cries when she’s hungry or tired. It doesn’t bother her if she’s wet but I don’t let her stay in a wet diaper very long.
If you rub her on her tummy she laughs, she sure is cute. Sam sure loves talking to Alex and she smiles at him when she talks.
Charlie went out later in the day to do some shopping. I didn’t feel like going out.
We had Chinese food for dinner which Charlie had gone to get.
After dinner we watched tv and I wrote in the journal.
Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Cough syrup —— —– 8:00 p.m.
Bactrim —— —– 7:30 p.m.
Mercaptopurine —— —– 7:30 p.m.
Temperature 37.88C 7:48 a.m. 37.63C 11:08 a.m.
No tests
Medication
Bactrim ------ ----- 8:00 p.m.
Mercaptopurine ------ ---- 8:00 p.m.
February 16, 1990
No Tests
Medication
Cough syrup ------ ----- 11:00 p.m.
Bactrim ------ ------- 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Temperature 38.74C 8:00 a.m. 37.24 4:00 p.m. 38.24C 5:00 p.m. 38.58C 8:00 p.m. 37.24C 11:00 p.m.
February 17, 1990
Samantha woke me up at three o’clock. She was lying on her back. I put her on her tummy and she started to really cry. I gave her her soother and she went back to sleep.
Samantha was crying again at seven o’clock but Charlie got up and gave her her soother.
Charlie went out at eight thirty. Samantha woke up at eight forty five and I fed her at that time. I put Samantha in the swing while I made breakfast. She sure is a good baby, hardly complains. She only cries when she’s hungry or tired. It doesn’t bother her if she’s wet but I don’t let her stay in a wet diaper very long.
If you rub her on her tummy she laughs, she sure is cute. Sam sure loves talking to Alex and she smiles at him when she talks.
Charlie went out later in the day to do some shopping. I didn’t feel like going out.
We had Chinese food for dinner which Charlie had gone to get.
After dinner we watched tv and I wrote in the journal.
Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Cough syrup —— —– 8:00 p.m.
Bactrim —— —– 7:30 p.m.
Mercaptopurine —— —– 7:30 p.m.
Temperature 37.88C 7:48 a.m. 37.63C 11:08 a.m.
Friday, February 14, 2014
Diagnosis: Leukemia; February 14, 1990
It’s Valentine’s Day! I got flowers from Charlie and chocolates form Alex.
It snowed so hard today we couldn’t go out for Valentine’s dinner.
Charlie didn’t get home for a couple more hours than he usually does. He got stuck in traffic.
No tests
Medication
Cough syrup 10:00 a.m. ------- 9:00 p.m.
Bactrim ------- ----- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
It snowed so hard today we couldn’t go out for Valentine’s dinner.
Charlie didn’t get home for a couple more hours than he usually does. He got stuck in traffic.
No tests
Medication
Cough syrup 10:00 a.m. ------- 9:00 p.m.
Bactrim ------- ----- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Thursday, February 13, 2014
Diagnosis: Leukemia; February 13, 1990
Samantha woke up at seven o’clock. After her feeding I made breakfast then I put Sam back to her crib. I had my shower and got dressed.
I made Alex his breakfast did my chores around the house and gave Alex his lunch. Then it was time to get ready to go to school.
Alex sure is excited about Valentine’s Day, that’s all he seems to think about and talk about. Lettie said Joy is doing the same thing. Mrs. Wall didn’t send a note home about what they’re doing at least I never got one. Alex has been telling me what’s happening on Valentine’s Day. That’s pretty good for him.
Patrick came home with us after school today. That’s always a treat for me as I get some peace and quiet while they are playing. Alex doesn’t talk to me until his friend goes home.
In the car, Patrick said babies sure are cute. When my brother was a baby I use to tickle his feet until he fell over.
When Morgan came to get Patrick she said she had gone to the doctors. She said she had been coughing a lot lately. The doctor said she had a slight case of pneumonia. Morgan said Tony had it for three weeks but it didn’t get bad like hers.
I told her Marty’s sister has whooping cough. Morgan was surprised, she said she thought whooping cough had been wiped out.
We ate dinner at five thirty. Samantha ate at seven o’clock. Sam and Alex went to bed about the same time. I went to bed at ten o’clock.
No Tests
Medication
Cough syrup 10:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------8:00 p.m.
I made Alex his breakfast did my chores around the house and gave Alex his lunch. Then it was time to get ready to go to school.
Alex sure is excited about Valentine’s Day, that’s all he seems to think about and talk about. Lettie said Joy is doing the same thing. Mrs. Wall didn’t send a note home about what they’re doing at least I never got one. Alex has been telling me what’s happening on Valentine’s Day. That’s pretty good for him.
Patrick came home with us after school today. That’s always a treat for me as I get some peace and quiet while they are playing. Alex doesn’t talk to me until his friend goes home.
In the car, Patrick said babies sure are cute. When my brother was a baby I use to tickle his feet until he fell over.
When Morgan came to get Patrick she said she had gone to the doctors. She said she had been coughing a lot lately. The doctor said she had a slight case of pneumonia. Morgan said Tony had it for three weeks but it didn’t get bad like hers.
I told her Marty’s sister has whooping cough. Morgan was surprised, she said she thought whooping cough had been wiped out.
We ate dinner at five thirty. Samantha ate at seven o’clock. Sam and Alex went to bed about the same time. I went to bed at ten o’clock.
No Tests
Medication
Cough syrup 10:00 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------8:00 p.m.
Diagnosis: Leukemia; February 12, 1990
Samantha woke up at four o’clock, she was lying on her back. I put her back on her tummy and gave her her soother. Sam went back to sleep again.
I woke up at eight o’clock. Samantha was still asleep, so I had a shower and got dressed. By that time Samantha was awake.
I’m rather concerned about Sam. She keeps on bringing up milk, it’s a wonder she keeps anything down.
After we picked Alex from school we went to the doctors. I asked Dr. C why Alex’s counts had gone up so much. She said it could be that Alex has a virus which will make his counts go way up.
After Dr. C had checked Alex she checked Samantha. Sam has grown, she’s now 26”, her weight isn’t very good it’s only gone up ½ an ounce. Mind you it went form 10.11 ½ pounds to 10.7 pounds then back to 10.12 pounds today. Dr. C said it might be because Samantha had been sick last month. I told her that Sam is bringing up milk in her crib. Dr. C said to keep Samantha upright after her feeding. The tube to the stomach is quite lax at times but will get better later on. Dr. C said she wants to see her in two weeks to check her weight.
We went to London Drugs to buy Samantha cereal, Dr. C said she could start on cereal. We came home and Charlie was already home.
Charlie started cooking dinner and I finished it.
At Samantha’s next feeding I gave her cereal. She cried while I was trying to get her to eat. Later I read it’s better to give them cereal after they have their milk until they are use to it. Samantha shuttered when I first gave it to her. Alex was trying to help but unfortunately it just made matters worse. Sam just started crying more. I ended up not giving her too much. It was rather discouraging as it seemed to be pretty easy when Alex started on cereal.
We watched TV after dinner. Alex went to bed at nine o’clock. I’m having quite a time getting Alex to go to bed on time. It’s eight, nine or ten o’clock before he goes. Alex thinks Samantha should go to bed first but it doesn’t always work out that way.
I went to bed after Samantha had her feeding and had gone to sleep.
No tests
Medication
Cough syrup 11:00 a.m. ——- 8:00 p.m.
Bactrim 10:00 a.m. —— 7:00 p.m.
Mercaptopurine ——- ——7:00 p.m.
Methotrexiate ——- ——7:00 p.m.
I woke up at eight o’clock. Samantha was still asleep, so I had a shower and got dressed. By that time Samantha was awake.
I’m rather concerned about Sam. She keeps on bringing up milk, it’s a wonder she keeps anything down.
After we picked Alex from school we went to the doctors. I asked Dr. C why Alex’s counts had gone up so much. She said it could be that Alex has a virus which will make his counts go way up.
After Dr. C had checked Alex she checked Samantha. Sam has grown, she’s now 26”, her weight isn’t very good it’s only gone up ½ an ounce. Mind you it went form 10.11 ½ pounds to 10.7 pounds then back to 10.12 pounds today. Dr. C said it might be because Samantha had been sick last month. I told her that Sam is bringing up milk in her crib. Dr. C said to keep Samantha upright after her feeding. The tube to the stomach is quite lax at times but will get better later on. Dr. C said she wants to see her in two weeks to check her weight.
We went to London Drugs to buy Samantha cereal, Dr. C said she could start on cereal. We came home and Charlie was already home.
Charlie started cooking dinner and I finished it.
At Samantha’s next feeding I gave her cereal. She cried while I was trying to get her to eat. Later I read it’s better to give them cereal after they have their milk until they are use to it. Samantha shuttered when I first gave it to her. Alex was trying to help but unfortunately it just made matters worse. Sam just started crying more. I ended up not giving her too much. It was rather discouraging as it seemed to be pretty easy when Alex started on cereal.
We watched TV after dinner. Alex went to bed at nine o’clock. I’m having quite a time getting Alex to go to bed on time. It’s eight, nine or ten o’clock before he goes. Alex thinks Samantha should go to bed first but it doesn’t always work out that way.
I went to bed after Samantha had her feeding and had gone to sleep.
No tests
Medication
Cough syrup 11:00 a.m. ——- 8:00 p.m.
Bactrim 10:00 a.m. —— 7:00 p.m.
Mercaptopurine ——- ——7:00 p.m.
Methotrexiate ——- ——7:00 p.m.
Diagnosis: Leukemia; February 11, 1990
Samantha woke up at five o’clock but I gave her her soother and she went back to sleep. Sam woke up again at six thirty this time she wouldn’t take her soother.
After I had fed Sam I made breakfast and did the dishes while she was in the swing.
When Sam went back to bed I had a shower and got dressed.
Marla phoned while I was cleaning the bathtub. She said Lanie has come down with the chickenpox. They first noticed one spot Saturday night then this morning she had quite a few spots on her torso. Marla felt quite badly but there isn’t much we can do.
I phoned the hospital and talked to Dr. Ch, she said because Lanie came down with it on Saturday night she wouldn’t be contagious until Thursday night. So Alex would be okay and wouldn’t need the chickenpox vaccination.
Of course when I told Charlie he said Alex shouldn’t have played with Lanie. I said then Alex shouldn’t go to school since chickenpox is in the school Charlie said he didn’t know that. I said I told you about the case on Friday. Charlie said he didn’t remember.
The doctor said Alex should go to school or else he would miss a lot of school.
In the afternoon I went to Mom and Dad’s. I brought over the two playpens, two boxes of pictures, pillows and a sleeping bag. We ate dinner at five thirty. Samantha didn’t wake up at eight o’clock like she usually does, so I woke her up at ten o’clock.
Alex had gone to bed at nine o’clock. I went to bed after Sam had gone to bed.
No Tests
Medication
Mercaptopurine —— —— 8:00 p.m.
After I had fed Sam I made breakfast and did the dishes while she was in the swing.
When Sam went back to bed I had a shower and got dressed.
Marla phoned while I was cleaning the bathtub. She said Lanie has come down with the chickenpox. They first noticed one spot Saturday night then this morning she had quite a few spots on her torso. Marla felt quite badly but there isn’t much we can do.
I phoned the hospital and talked to Dr. Ch, she said because Lanie came down with it on Saturday night she wouldn’t be contagious until Thursday night. So Alex would be okay and wouldn’t need the chickenpox vaccination.
Of course when I told Charlie he said Alex shouldn’t have played with Lanie. I said then Alex shouldn’t go to school since chickenpox is in the school Charlie said he didn’t know that. I said I told you about the case on Friday. Charlie said he didn’t remember.
The doctor said Alex should go to school or else he would miss a lot of school.
In the afternoon I went to Mom and Dad’s. I brought over the two playpens, two boxes of pictures, pillows and a sleeping bag. We ate dinner at five thirty. Samantha didn’t wake up at eight o’clock like she usually does, so I woke her up at ten o’clock.
Alex had gone to bed at nine o’clock. I went to bed after Sam had gone to bed.
No Tests
Medication
Mercaptopurine —— —— 8:00 p.m.
Diagnosis: Leukemia; February 10, 1990
Samantha woke me up just after six o’clock. I gave Sam her soother but she only slept for another half hour, so I got up and fed her. Sam stayed up until almost nine o’clock.
I had made breakfast for Alex and myself while Samantha was in her swing. After I had put Sam to bed I had a shower, got dressed, did our beds and the laundry.
Samantha ate again at eleven thirty. She ate for about forty five minutes. She needs to start on cereal, she’s always very hungry now when she eats.
We all went to the mall at one o’clock. Alex wanted to spend his money but I talked him out of it. I said if he didn’t complain and was good I would give him 50 cents. Alex is trying to save up for the Batmobile which is $21.98 at Woodward’s. Alex now has $5.00, so if he works hard and cleans up his room, he’ll soon have enough money.
We went to Smarty Cuts afterwards. The woman who usually cuts Alex’s hair wasn’t there today. So I told this woman that Alex wanted a Brush cut. She told me she wouldn’t be able to do it as she didn’t have the brush on the razor. I told her just to cut it, he didn’t want it that short. Anyways Alex got his hair cut and it ended up being quite short. Charlie thought it was too short but I think it looks good.
When we came home I fed Samantha. Charlie started to cook dinner. When I had put Sam back to bed I finished cooking.
After dinner I made a cake then watched TV. Sam had another feeding at eight o’clock. Sam, Alex and I went to bed at ten o’clock.
No tests
Medication
Mercaptopurine —— —– 8:00 p.m.
I had made breakfast for Alex and myself while Samantha was in her swing. After I had put Sam to bed I had a shower, got dressed, did our beds and the laundry.
Samantha ate again at eleven thirty. She ate for about forty five minutes. She needs to start on cereal, she’s always very hungry now when she eats.
We all went to the mall at one o’clock. Alex wanted to spend his money but I talked him out of it. I said if he didn’t complain and was good I would give him 50 cents. Alex is trying to save up for the Batmobile which is $21.98 at Woodward’s. Alex now has $5.00, so if he works hard and cleans up his room, he’ll soon have enough money.
We went to Smarty Cuts afterwards. The woman who usually cuts Alex’s hair wasn’t there today. So I told this woman that Alex wanted a Brush cut. She told me she wouldn’t be able to do it as she didn’t have the brush on the razor. I told her just to cut it, he didn’t want it that short. Anyways Alex got his hair cut and it ended up being quite short. Charlie thought it was too short but I think it looks good.
When we came home I fed Samantha. Charlie started to cook dinner. When I had put Sam back to bed I finished cooking.
After dinner I made a cake then watched TV. Sam had another feeding at eight o’clock. Sam, Alex and I went to bed at ten o’clock.
No tests
Medication
Mercaptopurine —— —– 8:00 p.m.
Thursday, February 6, 2014
Diagnosis: Leukemia; February 3-9, 1990
February 3, 1990
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 4, 1990
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
February 5, 1990
Samantha woke up at five thirty . Charlie got up shortly afterwards, he’s taking Alex to the hospital for his monthly treatment.
At seven o’clock I put Sam back to her crib and woke Alex up. I made him breakfast, got him to have a shower and get dressed. They left after eight o’clock. I went back to bed.
Samantha woke up again at ten thirty. I fed her, Sam usually stays up for one and half hours or two hours now.
When Sam went back to bed I had a shower, got dressed and had my breakfast. I tided up the house, did the dishes, changed the beds and did the laundry.
Alex and Charlie came home at one o’clock. Alex’s counts had really jumped, his ANC level had gone from 1944 to 7600. Normal for ANC is from 2400 to 7500, 7600 is abnormal. It sure is strange how it goes up and down.
Alex seemed to do okay when he had his LP. Charlie said he cried but that’s pretty normal. Most adults say that having an LP is very painful
Alex’s school didn’t phone as I told Mrs. Wall Alex would be away today.
Samantha had another feeding at three thirty. Charlie left for work before four o’clock. He tried getting the day off but they said they were too busy.
Alex and I ate dinner at five thirty. I then did the dishes and tided up the house. Later we watched TV before Alex went to bed.
I went to bed at ten thirty, after I had fed Samantha and put her to bed.
Tests
WBC 8.0
HGB 13.7
Platelets 295
ANC 7600
Medication
Bactrim ------- 2:00 p.m. 8:00 p.m.
Mercaptopurine -------- 2:00 p.m. --------
Prednisone -------- 2:00 p.m. -------
February 6, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Prednisone ------ ----- 9:00 p.m.
February 7, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 9:30 p.m.
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
Temperature 36.24 9:00 a.m.
February 8, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 7:00 p.m.
Prednisone ------ ----- 7:00 p.m.
Temperature 36.17C 9:00 a.m.
February 9, 1990
No Tests
Medication
Cough syrup 11:00 a.m. ------ 11:00 p.m.
Bactrim 10:00 a.m. ------ 11:00 p.m.
Mercaptopurine ------ ----- 11:00 p.m.
*there were little or no entries for this week. You must realized that I was anemic, nursing a baby and looking after a 5 year old. I remember I was so tired that I could barely get out of bed.
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 4, 1990
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
February 5, 1990
Samantha woke up at five thirty . Charlie got up shortly afterwards, he’s taking Alex to the hospital for his monthly treatment.
At seven o’clock I put Sam back to her crib and woke Alex up. I made him breakfast, got him to have a shower and get dressed. They left after eight o’clock. I went back to bed.
Samantha woke up again at ten thirty. I fed her, Sam usually stays up for one and half hours or two hours now.
When Sam went back to bed I had a shower, got dressed and had my breakfast. I tided up the house, did the dishes, changed the beds and did the laundry.
Alex and Charlie came home at one o’clock. Alex’s counts had really jumped, his ANC level had gone from 1944 to 7600. Normal for ANC is from 2400 to 7500, 7600 is abnormal. It sure is strange how it goes up and down.
Alex seemed to do okay when he had his LP. Charlie said he cried but that’s pretty normal. Most adults say that having an LP is very painful
Alex’s school didn’t phone as I told Mrs. Wall Alex would be away today.
Samantha had another feeding at three thirty. Charlie left for work before four o’clock. He tried getting the day off but they said they were too busy.
Alex and I ate dinner at five thirty. I then did the dishes and tided up the house. Later we watched TV before Alex went to bed.
I went to bed at ten thirty, after I had fed Samantha and put her to bed.
Tests
WBC 8.0
HGB 13.7
Platelets 295
ANC 7600
Medication
Bactrim ------- 2:00 p.m. 8:00 p.m.
Mercaptopurine -------- 2:00 p.m. --------
Prednisone -------- 2:00 p.m. -------
February 6, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
Prednisone ------ ----- 9:00 p.m.
February 7, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 9:30 p.m.
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ----- 8:00 p.m.
Temperature 36.24 9:00 a.m.
February 8, 1990
No Tests
Medication
Cough syrup 9:00 a.m. ------ 9:00 p.m.
Mercaptopurine ------ ----- 7:00 p.m.
Prednisone ------ ----- 7:00 p.m.
Temperature 36.17C 9:00 a.m.
February 9, 1990
No Tests
Medication
Cough syrup 11:00 a.m. ------ 11:00 p.m.
Bactrim 10:00 a.m. ------ 11:00 p.m.
Mercaptopurine ------ ----- 11:00 p.m.
*there were little or no entries for this week. You must realized that I was anemic, nursing a baby and looking after a 5 year old. I remember I was so tired that I could barely get out of bed.
Diagnosis: Leukemia; January 27-February 2, 1990
January 27, 1990
No Tests
medication
Bactrim ------- ----- 10:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
January 28, 1990
No Tests
medication
Mercaptopurine ------ ------ 7:00 p.m.
January 29, 1990
No Tests
medication
Mercaptopurine ------ ------ 7:00 p.m.
January 30, 1990
There’s no school today. It’s the teachers professional day today.
No Tests
Medication
Bactrim 9:15 a.m. ------- 9:00 p.m.
Mercaptopurine 9:15 a.m. ------ 9:00 p.m.
Methotrexiate ------- ------ 9:00 p.m.
Temperature 36.59C 9:00 p.m.
January 31, 1990
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 1, 1990
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 2, 1990
No Tests
medication
Bactrim 10:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
No Tests
medication
Bactrim ------- ----- 10:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
January 28, 1990
No Tests
medication
Mercaptopurine ------ ------ 7:00 p.m.
January 29, 1990
No Tests
medication
Mercaptopurine ------ ------ 7:00 p.m.
January 30, 1990
There’s no school today. It’s the teachers professional day today.
No Tests
Medication
Bactrim 9:15 a.m. ------- 9:00 p.m.
Mercaptopurine 9:15 a.m. ------ 9:00 p.m.
Methotrexiate ------- ------ 9:00 p.m.
Temperature 36.59C 9:00 p.m.
January 31, 1990
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 1, 1990
No Tests
medication
Mercaptopurine ------ ------ 8:00 p.m.
February 2, 1990
No Tests
medication
Bactrim 10:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
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