Samantha woke up at eight o’clock. After I fed her I had breakfast. Alex didn’t wake up until ten o’clock and that was because Charlie started his car and didn’t drive away right away. Otherwise I think he might have slept longer. Anyways he needed to get up since they are going to the hospital this afternoon.
I changed the sheets, did laundry, tided up the house and played a game of Othello with Alex. Charlie explained how to play the game. I had tied the computer before but I guess I was just lucky.
Charlie told Alex it was time to go and Alex started to cry. We were still playing the game. I said come on we’ll finish the game and then you can go. Alex said this morning he wasn’t feeling well so maybe that has something to do with it. Alex sure is emotional some days.
Samantha woke up at one o’clock. I gave her cereal first. She seems to like it a little bit better. Sam still spits some of the cereal out but at least not what I put in her mouth. It’s more watery what she spits out.
Samantha ate again at four o’clock. It sure was a long afternoon, Samantha wouldn’t go for a nap.
Charlie and Alex came home at four thirty. I was peeling potatoes to put around the roast. Charlie said what a day I’m exhausted. Then he poured Alex a drink and put it back into the cupboard. I didn’t realize it and Alex said to give him the cup. I ended up getting orange juice all over myself. Was I ever mad, he doesn’t seem to realize I don’t have an easy time either. I threw down the potato I was peeling and it landed in the hall. I said what were you doing, how stupid can you be? Charlie said you can see what kind of a day I’ve had. I had to change no doubt.
Anyways at the hospital they had quite a time with Alex. When Alex had his LP a nurse held onto him but she called another nurse Joanne and she had to call Mary to help. I asked Alex what happened. He said he was sitting up and they told him to lie down. He also told them he didn’t want to but they wouldn’t listen. He was really upset about what happened. He looked like he could cry. I said it’s more painful on your back isn’t it? Alex just nodded yes. I told Alex I was going to ask Pa what happened. Charlie said Alex was sitting up and the doctor put the wash on and Alex started to complain. So they had to put him on his stomach. Charlie said he’s never seen Alex so bad. I always found he reacted quite badly to the wash but if I talked to him he would calm down. This conversation actually took place on the 16th.
Alex asked me what Pa said so I told him. Alex said it really hurts. Alex said on the way home Pa told me the boy beside me passed away and I’m lucky to be alive. He was looking at me, so I knew he wanted an answer. I said yes, I knew that but he had a different type of cancer. When he came to the hospital he was in stage 4 which is the last stage. It’s better to treat in stage 1. His parents were told treatment might not work but they decided to go ahead with it. I think Alex understood some of it. Alex seemed quite upset about this prospect and said it’s not nice to die. I said no it’s not, we like to grow up, get married, have children, take our kids to the park and to Turtle movies. At least Alex smiled at that.
I sure didn’t agree with Charlie telling Alex that. Alex has enough emotional problems.
It was pretty quiet while I cooked dinner they both stayed away from me! Charlie because of the orange juice and Alex because he told me Lanie’s orange juice tastes better than ours. I’ve really had it about this persons food tasting better than ours. I try to do my best for Alex and that’s all I can do.
After dinner I fed Samantha she went back for a nap at eight o’clock.
Alex went to bed at eight thirty. I went to bed at eight thirty. I went to bed after feeding Samantha at eight thirty.
Tests
WBC 2.8
HGB 13.1
Platelets 281
ANC 2156
Medication
Erythromid 10:00 a.m. 5:00 p.m. 8:00 p.m.
Bactrim 9:00 a.m. -------- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Prednisone ------- ------- 8:30 p.m.
Methotrexiate *given at hospital*
Sunday, April 27, 2014
Diagnosis: Leukemia; May 13, 1990
Samantha woke up at eight o’clock. After her feeding we had our breakfast. It bugs Alex that we have to wait!
Samantha had a nap while I did laundry and tided up the house.
Charlie and Alex went shopping. They came home around one o’clock. Charlie bought Alex a turtle suit as well as a new turtle guy. Charlie said K-Mart had Turtle figures so he figured he had better buy it in case they couldn’t find Turtle pants at the mall. He said Woodward’s and the Bay didn’t have any but Zellers had Turtle suits for $25.99.
I was really surprised Charlie would buy the Turtle suit!
Samantha had another feeding at about the same time they came home.
We left at three o’clock for Mom and Dad’s. I fed Samantha again at four o’clock. At least she didn’t complain too much at dinner.
Samantha has learnt to groan which is really something. Talking loudly I don’t mind so much but groaning that’s something else!
Alex and I played video games after dinner while Charlie watched Sam. I tried a couple of the games but I enjoyed Othello. Dad said we could borrow it.
We got home around nine o’clock. Samantha had another feeding then I put her to bed.
I went to bed at ten o’clock. Alex and Charlie went to bed about the same item.
No Tests
Medication
Erythromid 9:00 a.m. 4:00 p.m. 9:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
Samantha had a nap while I did laundry and tided up the house.
Charlie and Alex went shopping. They came home around one o’clock. Charlie bought Alex a turtle suit as well as a new turtle guy. Charlie said K-Mart had Turtle figures so he figured he had better buy it in case they couldn’t find Turtle pants at the mall. He said Woodward’s and the Bay didn’t have any but Zellers had Turtle suits for $25.99.
I was really surprised Charlie would buy the Turtle suit!
Samantha had another feeding at about the same time they came home.
We left at three o’clock for Mom and Dad’s. I fed Samantha again at four o’clock. At least she didn’t complain too much at dinner.
Samantha has learnt to groan which is really something. Talking loudly I don’t mind so much but groaning that’s something else!
Alex and I played video games after dinner while Charlie watched Sam. I tried a couple of the games but I enjoyed Othello. Dad said we could borrow it.
We got home around nine o’clock. Samantha had another feeding then I put her to bed.
I went to bed at ten o’clock. Alex and Charlie went to bed about the same item.
No Tests
Medication
Erythromid 9:00 a.m. 4:00 p.m. 9:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
Diagnosis: Leukemia; May 12, 1990
I woke up at eight thirty. When I checked Samantha her arm was in between the bars. She sure likes to get close to the sides of the crib.
After Samantha’s second feeding we went to buy plants. My Mother’s Day present form Alex and Sam. Then we went to Lougheed Mall. We bought Mom writing paper, kitchen mitts and a kitchen towel.
We got home at three thirty. I fed Samantha again and she went for a nap.
Alex was disappointed he couldn’t find any Turtle pants. Charlie had promised he could have something since Alex has to have a back poke on Monday. Charlie said he would take him tomorrow.
Charlie started dinner by getting the chicken ready and put it in the oven. I did the vegetables and cleaned up the kitchen once Samantha had gone for a nap.
After dinner I did the dishes. Samantha woke up at six thirty for her feeding.
Alex went to bed at eight thirty.
Samantha was in her crib but didn’t sleep until nine o’clock. Then I had to wake her up for her next feeding.
We went to bed at eleven o’clock.
No Tests
Medication
Erythromid 9:00 a.m. 3:00 p.m. 7:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
After Samantha’s second feeding we went to buy plants. My Mother’s Day present form Alex and Sam. Then we went to Lougheed Mall. We bought Mom writing paper, kitchen mitts and a kitchen towel.
We got home at three thirty. I fed Samantha again and she went for a nap.
Alex was disappointed he couldn’t find any Turtle pants. Charlie had promised he could have something since Alex has to have a back poke on Monday. Charlie said he would take him tomorrow.
Charlie started dinner by getting the chicken ready and put it in the oven. I did the vegetables and cleaned up the kitchen once Samantha had gone for a nap.
After dinner I did the dishes. Samantha woke up at six thirty for her feeding.
Alex went to bed at eight thirty.
Samantha was in her crib but didn’t sleep until nine o’clock. Then I had to wake her up for her next feeding.
We went to bed at eleven o’clock.
No Tests
Medication
Erythromid 9:00 a.m. 3:00 p.m. 7:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Diagnosis: Leukemia; May 11, 1990
I woke up at eight o’clock just soaked. My milk had started to leak and it was on the sheets and all over my nightgown.
I had a shower and got dressed. Samantha woke up by that time. Once she was fed I had my breakfast.
Charlie had given Alex his medicine and Alex had a shower and got dressed.
Samantha had a nap at ten o’clock and was still asleep when Alex went to school.
Alex and Charlie went shopping this morning. I rearranged Samantha and Alex’s closets, did our beds, the dishes and laundry.
They didn’t come home until almost noon. I was beginning to wonder if they would get home in time for Alex to go to school.
When I came home from taking Alex to school, Samantha had woken up. I fed her cereal on a spoon and she actually liked it! Was I ever surprised! I just hope it’ll continue that way.
Marty came home with Alex after school. He’s such a quiet child more on the sky side. He doesn’t talk much to me. They seem to have a good time playing. Marty brought Mario Brothers 3 with him.
Bonny came at four forty five to get Marty. She said he was going to Tak Won Do. Marty really enjoys it.
We had pizza for dinner. Alex’s all time favourite, for the moment anyways!
Samantha woke up before six o’clock. She stayed up until her next feeding which was after nine o’clock.
Alex went to bed at nine o’clock. Sam and I went to bed at ten thirty.
No Tests
Medication
Erythromid 8:00 a.m. 4:00 p.m. 8:00 p.m.
Bactrim 8:00 a.m. -------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
I had a shower and got dressed. Samantha woke up by that time. Once she was fed I had my breakfast.
Charlie had given Alex his medicine and Alex had a shower and got dressed.
Samantha had a nap at ten o’clock and was still asleep when Alex went to school.
Alex and Charlie went shopping this morning. I rearranged Samantha and Alex’s closets, did our beds, the dishes and laundry.
They didn’t come home until almost noon. I was beginning to wonder if they would get home in time for Alex to go to school.
When I came home from taking Alex to school, Samantha had woken up. I fed her cereal on a spoon and she actually liked it! Was I ever surprised! I just hope it’ll continue that way.
Marty came home with Alex after school. He’s such a quiet child more on the sky side. He doesn’t talk much to me. They seem to have a good time playing. Marty brought Mario Brothers 3 with him.
Bonny came at four forty five to get Marty. She said he was going to Tak Won Do. Marty really enjoys it.
We had pizza for dinner. Alex’s all time favourite, for the moment anyways!
Samantha woke up before six o’clock. She stayed up until her next feeding which was after nine o’clock.
Alex went to bed at nine o’clock. Sam and I went to bed at ten thirty.
No Tests
Medication
Erythromid 8:00 a.m. 4:00 p.m. 8:00 p.m.
Bactrim 8:00 a.m. -------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis: Leukemia; May 10, 1990
I woke up at eight forty. Just the day everyone sleeps in and we have to go somewhere.
I had a shower and got dressed before I woke Samantha up. Alex woke up shortly afterwards. Charlie gave him his pill.
We have to be at school for 10:10 for the big school photo. By the time we got to school the kindergarten class had already gone outside. Then we had to battle our way through all the other grades who had lined up in the hall. We finally made it there and Alex got in line. It didn’t take long for the other grades to line up and to have the picture taken.
We went to Marla’s and arrived at ten forty five. It didn’t give the kids too much time to play. I fed Samantha before lunch. Then I took Alex to school. Sam and I went home to get a few things before going back to Marla’s.
The time sure goes by quickly with the kids in school. We hardly have a chance to talk. I fed Samantha again at two o’clock changed her and it was time to leave.
I didn’t have to pick up Alex, he’s going to Carter’s today. When Samantha and I got home I put her down for a nap.
I phoned Miriam to see how they were doing and what time I should pick Alex up. Miriam asked what shift Charlie was on. I said afternoon shift. She said then she would bring Alex home, it’s easier with Hamilton than Samantha.
I started to make dinner at four thirty. Alex came home at four forty five. They didn’t come in as Miriam said she left the oven on.
Samantha ate at six thirty, we had dinner and I had done the dishes.
Alex went to bed at nine o’clock.
Samantha ate at ten o’clock. She had gone for a nap earlier.
I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Erythromid 9:00 a.m. ------ 12:10 p.m. 5:10 p.m.
I had a shower and got dressed before I woke Samantha up. Alex woke up shortly afterwards. Charlie gave him his pill.
We have to be at school for 10:10 for the big school photo. By the time we got to school the kindergarten class had already gone outside. Then we had to battle our way through all the other grades who had lined up in the hall. We finally made it there and Alex got in line. It didn’t take long for the other grades to line up and to have the picture taken.
We went to Marla’s and arrived at ten forty five. It didn’t give the kids too much time to play. I fed Samantha before lunch. Then I took Alex to school. Sam and I went home to get a few things before going back to Marla’s.
The time sure goes by quickly with the kids in school. We hardly have a chance to talk. I fed Samantha again at two o’clock changed her and it was time to leave.
I didn’t have to pick up Alex, he’s going to Carter’s today. When Samantha and I got home I put her down for a nap.
I phoned Miriam to see how they were doing and what time I should pick Alex up. Miriam asked what shift Charlie was on. I said afternoon shift. She said then she would bring Alex home, it’s easier with Hamilton than Samantha.
I started to make dinner at four thirty. Alex came home at four forty five. They didn’t come in as Miriam said she left the oven on.
Samantha ate at six thirty, we had dinner and I had done the dishes.
Alex went to bed at nine o’clock.
Samantha ate at ten o’clock. She had gone for a nap earlier.
I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Erythromid 9:00 a.m. ------ 12:10 p.m. 5:10 p.m.
Diagnosis: Leukemia; May 9, 1990
Samantha woke up at seven thirty. She’s had a cough for quite a few days but doesn’t have a temperature, thank goodness.
Alex didn’t wake up until 7:30 a.m. he had his pill, a shower and had to wait until nine thirty for breakfast.
Samantha only had a nap for half an hour. I gave her cereal and breast milk.
I took Alex to school. Alex asked Patrick to come over but Morgan said no. She’s going to the airport and flying home to see her father, who’s quite ill. Her mother-in-law is coming to look after Patrick and Peter.
I went to London Drugs and bought Samantha a few things; soothers, bibs and a new spoon. I also bought Alex more stickers for his Turtle sticker book.
Samantha was still awake when I got home. I fed her again at one thirty.
When we got home from school I told Alex he couldn’t eat until four o’clock. Of course he was annoyed when I gave him his pill before dinner. He said he was still hungry.
We ate dinner at five o’clock. Samantha woke up at seven o’clock, she wanted to go into her crib at eight o’clock. She didn’t fall asleep until nine o’clock.
Alex got ready for bed he read his book then I read him a story. Alex is doing really good at reading.
I woke Samantha up for her last feeding of the day at ten o’clock. Then we went to bed.
No Tests
Medication
Bactrim 8:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Erythromid 7:30 a.m. 11:00 a.m. 7:00 p.m.
Alex didn’t wake up until 7:30 a.m. he had his pill, a shower and had to wait until nine thirty for breakfast.
Samantha only had a nap for half an hour. I gave her cereal and breast milk.
I took Alex to school. Alex asked Patrick to come over but Morgan said no. She’s going to the airport and flying home to see her father, who’s quite ill. Her mother-in-law is coming to look after Patrick and Peter.
I went to London Drugs and bought Samantha a few things; soothers, bibs and a new spoon. I also bought Alex more stickers for his Turtle sticker book.
Samantha was still awake when I got home. I fed her again at one thirty.
When we got home from school I told Alex he couldn’t eat until four o’clock. Of course he was annoyed when I gave him his pill before dinner. He said he was still hungry.
We ate dinner at five o’clock. Samantha woke up at seven o’clock, she wanted to go into her crib at eight o’clock. She didn’t fall asleep until nine o’clock.
Alex got ready for bed he read his book then I read him a story. Alex is doing really good at reading.
I woke Samantha up for her last feeding of the day at ten o’clock. Then we went to bed.
No Tests
Medication
Bactrim 8:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Erythromid 7:30 a.m. 11:00 a.m. 7:00 p.m.
Diagnosis: Leukemia; May 8, 1990
Samantha woke me up at seven thirty. After I fed her I made breakfast.
We make Alex have his pill then take a shower which he doesn’t like. Alex would much prefer eating first!
Charlie and Alex went out shopping around ten o’clock. While Samantha and I had a nap. I really needed it at that point. I slept until twelve thirty. When I got up Charlie was coming back from taking Alex to school.
Samantha woke up while I was making my lunch. I fed her cereal and then breast milk. I’m still having quite a time with her. By late afternoon I was feeling pretty good, not so tired like I usually am.
I had sat in the car when I got to school. Miriam parked beside me, she said she would get Alex and bring him to the car. When Alex came to the car he was really annoyed. He said why didn’t you come and get me. I said Miriam said she would get you. Alex wasn’t too happy. Miriam wasn’t happy with Carter. He ran ahead with Alex before she could tell Alex. So she said here I am standing there with Scott wondering where Alex and Carter are.
Wanda and Luke came to the door but Alex told them he couldn’t play. Then Rick came to the door. I told him Alex wasn’t feeling well. He came back later with a get well card. That was nice of them. Alex put it on the fridge.
Samantha ate at three o’clock and again at six thirty.
Alex went to bed at nine o’clock. I had been talking to Joan. She has to see quite a few doctors. First because of her being diabetic and second because of her loosing one of the twins. She said the doctor said the baby looks healthy but there is still a blood clot which could be absorbed or aborted. If she has any more bleeding to call him right away. Joan isn’t to do anything much but rest to be on the safe side. She says she’s pretty tired anyways.
Samantha ate again at ten o’clock then we both went to bed.
No tests
Medication
Erythromid 8:00 a.m. 3:05 p.m. 7:00 p.m.
Bactrim ------ ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
We make Alex have his pill then take a shower which he doesn’t like. Alex would much prefer eating first!
Charlie and Alex went out shopping around ten o’clock. While Samantha and I had a nap. I really needed it at that point. I slept until twelve thirty. When I got up Charlie was coming back from taking Alex to school.
Samantha woke up while I was making my lunch. I fed her cereal and then breast milk. I’m still having quite a time with her. By late afternoon I was feeling pretty good, not so tired like I usually am.
I had sat in the car when I got to school. Miriam parked beside me, she said she would get Alex and bring him to the car. When Alex came to the car he was really annoyed. He said why didn’t you come and get me. I said Miriam said she would get you. Alex wasn’t too happy. Miriam wasn’t happy with Carter. He ran ahead with Alex before she could tell Alex. So she said here I am standing there with Scott wondering where Alex and Carter are.
Wanda and Luke came to the door but Alex told them he couldn’t play. Then Rick came to the door. I told him Alex wasn’t feeling well. He came back later with a get well card. That was nice of them. Alex put it on the fridge.
Samantha ate at three o’clock and again at six thirty.
Alex went to bed at nine o’clock. I had been talking to Joan. She has to see quite a few doctors. First because of her being diabetic and second because of her loosing one of the twins. She said the doctor said the baby looks healthy but there is still a blood clot which could be absorbed or aborted. If she has any more bleeding to call him right away. Joan isn’t to do anything much but rest to be on the safe side. She says she’s pretty tired anyways.
Samantha ate again at ten o’clock then we both went to bed.
No tests
Medication
Erythromid 8:00 a.m. 3:05 p.m. 7:00 p.m.
Bactrim ------ ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Diagnosis: Leukemia; May 7, 1990
Samantha woke up at seven thirty. Charlie and Alex were already up. They left at eight o’clock for the hospital.
At nine o’clock Charlie phoned. He asked me when Alex had a chest x-ray last. I told him October 1988 why? Charlie said Dr. K wants another x-ray because I told him Alex has been coughing a lot.
After I had hung up I started thinking about it. I sure didn’t like the idea of Alex having another x-ray unless it was really necessary.
I phoned back but they said Alex had already gone for an x-ray.
Charlie phoned when he got back, he said the doctor thought he heard something in Alex’s chest. He said he had to go as Dr. K had come back from x-ray.
I had a shower, got dressed and did work around the house. I kept wondering how Alex was and wishing Charlie would hurry up and phone.
They arrived home at noon. Alex couldn’t have any treatment because of his cough. His counts were good, so I don’t know why he couldn’t have the LP. Better for Alex anyways. The doctor started Alex on an antibiotic.
Alex wanted to go to school, so we got ready. I told Mrs. Wall what happened. She said is he feeling alright. I said yes he feels fine.
Samantha was having a nap. I fed her again at two o’clock. Charlie isn’t feeling too good after going to the hospital. I can relate to that, it always wore me out.
When I picked Alex up I was able to leave Samantha at home with Charlie. Charlie took the day off.
Alex was annoyed when we got home. I gave him a pill (the new antibiotic) and told him he couldn’t eat until four o’clock. Alex said I’m so hungry I have to eat. It should be interesting for the next ten days!
At six o’clock I told Alex he couldn’t eat anything so I could give him his next pill. Of course the same production!
Alex went to bed at nine o’clock. I went to bed at ten o’clock. Samantha had eaten at nine o’clock.
Tests
WBC 6.7
HGB 13.9
Platelets 299
ANC 5226
Medication
Erythromid ------- 3:00 p.m. 8:00 p.m.
Bactrim ------ ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Methotrexiate ------- ----- 9:00 p.m.
At nine o’clock Charlie phoned. He asked me when Alex had a chest x-ray last. I told him October 1988 why? Charlie said Dr. K wants another x-ray because I told him Alex has been coughing a lot.
After I had hung up I started thinking about it. I sure didn’t like the idea of Alex having another x-ray unless it was really necessary.
I phoned back but they said Alex had already gone for an x-ray.
Charlie phoned when he got back, he said the doctor thought he heard something in Alex’s chest. He said he had to go as Dr. K had come back from x-ray.
I had a shower, got dressed and did work around the house. I kept wondering how Alex was and wishing Charlie would hurry up and phone.
They arrived home at noon. Alex couldn’t have any treatment because of his cough. His counts were good, so I don’t know why he couldn’t have the LP. Better for Alex anyways. The doctor started Alex on an antibiotic.
Alex wanted to go to school, so we got ready. I told Mrs. Wall what happened. She said is he feeling alright. I said yes he feels fine.
Samantha was having a nap. I fed her again at two o’clock. Charlie isn’t feeling too good after going to the hospital. I can relate to that, it always wore me out.
When I picked Alex up I was able to leave Samantha at home with Charlie. Charlie took the day off.
Alex was annoyed when we got home. I gave him a pill (the new antibiotic) and told him he couldn’t eat until four o’clock. Alex said I’m so hungry I have to eat. It should be interesting for the next ten days!
At six o’clock I told Alex he couldn’t eat anything so I could give him his next pill. Of course the same production!
Alex went to bed at nine o’clock. I went to bed at ten o’clock. Samantha had eaten at nine o’clock.
Tests
WBC 6.7
HGB 13.9
Platelets 299
ANC 5226
Medication
Erythromid ------- 3:00 p.m. 8:00 p.m.
Bactrim ------ ------ 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Methotrexiate ------- ----- 9:00 p.m.
Diagnosis: Leukemia; May 6, 1990
Samantha woke up at seven thirty, she was really hungry. No wonder she missed one of her feedings.
Sam went for a nap at nine thirty. I did some work around the house until she woke up at noon. Samantha and I went to Mom and Dad’s. Mom and Dad were just coming home when I arrived. They had just come from Woolco. After they got their stuff out of the car, they had an argument. Mom claimed she had labels in the shopping cart and Dad said there weren’t any. Dad started to swear and Mom said there isn’t any point in talking to you any more you aren’t listening to me. Dad said you aren’t listening to me.
So much for having a nice quiet visit. Dad didn’t come near us most of the time. He was probably still mad! Mind you he went out later to get Mom’s labels.
When I got home at three o’clock. I started to cook dinner. Unfortunately the power went off at five o’clock and dinner wasn’t totally cooked. Charlie cooked it on the barbeque. Apparently the transformer blew, next door had power but we didn’t. Charlie thought there was something wrong with our electricity because Lola had power. Luckily we didn’t have a problem.
Charlie got Alex ready for bed at eight thirty. I fed Samantha at nine o’clock and went to bed shortly afterwards.
No Tests
Medication
Mercaptopurine ----- ------ 8:30 p.m.
Sam went for a nap at nine thirty. I did some work around the house until she woke up at noon. Samantha and I went to Mom and Dad’s. Mom and Dad were just coming home when I arrived. They had just come from Woolco. After they got their stuff out of the car, they had an argument. Mom claimed she had labels in the shopping cart and Dad said there weren’t any. Dad started to swear and Mom said there isn’t any point in talking to you any more you aren’t listening to me. Dad said you aren’t listening to me.
So much for having a nice quiet visit. Dad didn’t come near us most of the time. He was probably still mad! Mind you he went out later to get Mom’s labels.
When I got home at three o’clock. I started to cook dinner. Unfortunately the power went off at five o’clock and dinner wasn’t totally cooked. Charlie cooked it on the barbeque. Apparently the transformer blew, next door had power but we didn’t. Charlie thought there was something wrong with our electricity because Lola had power. Luckily we didn’t have a problem.
Charlie got Alex ready for bed at eight thirty. I fed Samantha at nine o’clock and went to bed shortly afterwards.
No Tests
Medication
Mercaptopurine ----- ------ 8:30 p.m.
Diagnosis: Leukemia; May 2, 1990
Alex woke me up off and on last night. He coughed and coughed but still was asleep a couple of times. Alex coughed so much he sounded like he was going to throw up.
Charlie gave him cough medicine at five thirty.
Samantha woke up at eight o’clock. She usually cries a little bit then talks away until I get her.
I made bacon and eggs for breakfast. Alex doesn’t’ like eggs so, he just had bacon. He only had one piece of bacon. We don’t know what has happened to him.
I had a shower while Charlie looked after Sam. When I got out Charlie was in the bedroom. Samantha and Alex were in the living room. Charlie gives Alex too many things to do a baby isn’t a child’s responsibility.
Samantha was complaining so I got her ready for a nap. Then I made the beds, did the laundry, did the dishes and tided up the kitchen.
Charlie and Alex went grocery shopping. Charlie didn’t want to take Alex but Alex promised he wouldn’t want to buy anything.
I finally got a chance to relax.
Charlie took Alex to school. I don’t see why I have to take him all the time. It’s Charlie’s responsibility too.
Samantha woke up again at twelve o’clock. I gave her cereal which she still takes on my finger. I’m hoping she’ll take it on a spoon soon. Even on my finger she doesn’t like it that much though.
After I picked Alex up from school, I fed Samantha. She fell asleep for awhile but just as I was going to take her upstairs she woke up.
We ate dinner at five o’clock and Samantha was still awake. After dinner I fed her again, I figured there wasn’t any point in waiting another hour.
Samantha fell asleep at six thirty but woke up again at seven o’clock. Luckily she went back to sleep when I gave her her soother.
Alex is doing speak and read. At school he’s learning to read. Sure is a lot earlier than when I went to school.
It’s after eight o’clock, time for Alex to go to bed. I’m going to bed after I feed Samantha.
No Tests
Medication
Bactrim 11:50 a.m. ------- 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
Charlie gave him cough medicine at five thirty.
Samantha woke up at eight o’clock. She usually cries a little bit then talks away until I get her.
I made bacon and eggs for breakfast. Alex doesn’t’ like eggs so, he just had bacon. He only had one piece of bacon. We don’t know what has happened to him.
I had a shower while Charlie looked after Sam. When I got out Charlie was in the bedroom. Samantha and Alex were in the living room. Charlie gives Alex too many things to do a baby isn’t a child’s responsibility.
Samantha was complaining so I got her ready for a nap. Then I made the beds, did the laundry, did the dishes and tided up the kitchen.
Charlie and Alex went grocery shopping. Charlie didn’t want to take Alex but Alex promised he wouldn’t want to buy anything.
I finally got a chance to relax.
Charlie took Alex to school. I don’t see why I have to take him all the time. It’s Charlie’s responsibility too.
Samantha woke up again at twelve o’clock. I gave her cereal which she still takes on my finger. I’m hoping she’ll take it on a spoon soon. Even on my finger she doesn’t like it that much though.
After I picked Alex up from school, I fed Samantha. She fell asleep for awhile but just as I was going to take her upstairs she woke up.
We ate dinner at five o’clock and Samantha was still awake. After dinner I fed her again, I figured there wasn’t any point in waiting another hour.
Samantha fell asleep at six thirty but woke up again at seven o’clock. Luckily she went back to sleep when I gave her her soother.
Alex is doing speak and read. At school he’s learning to read. Sure is a lot earlier than when I went to school.
It’s after eight o’clock, time for Alex to go to bed. I’m going to bed after I feed Samantha.
No Tests
Medication
Bactrim 11:50 a.m. ------- 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
Diagnosis: Leukemia; May 3-5, 1990
May 3, 1990
Samantha ate at eight, eleven, two, six and ten o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ------- ------- 8:00 p.m.
May 4, 1990
Samantha ate at eight, eleven, two, six and eleven o’clock.
I suppose we had pizza for dinner that’s all Alex ever wants right now.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
May 5, 1990
Samantha woke up at eight o’clock. Charlie was already up watching TV. Alex didn’t wake up until around nine o’clock.
I told Alex to have a shower. Alex was really annoyed about it and complained all the way there.
After breakfast and after Charlie and Alex had their showers I asked Charlie to watch Samantha while I had my shower. Charlie said hmmm, he always says that when he doesn’t want to do something. It really annoys me as she’s his child too and it doesn’t hurt him to watch her occasionally.
Well I finally had my shower. Charlie and Alex were outside. Charlie was washing his car and Alex asked me to get his bike.
Finally a chance to relax. I must need it. Last night I was so dizzy when I went to bed the room was spinning.
Alex and I left at 11:55 a.m. for Sharon’s party. Only two boys at the party; Alex and another boy. A lot of the kids were already there. They said here comes Alex! Sharon opened the door and I said bye Alex see you later. Aimee said she you later. I said have fun!
I said to Charlie when I got home we had better tidy up the house. Mom had phoned about voting. I’m sure they’ll drop by since the school is so close.
Samantha woke up, I put her in the playpen. I was about to make her cereal when Mom and Dad came to the door. Mom said they came so we could go vote.
Mom fed Samantha cereal, she had as much trouble as I do usually. Mom thinks I should try it in a bottle but I don’t like that idea.
When we came home from voting, Mom and Dad left shortly afterwards.
Samantha finished eating and went for a nap.
I picked Alex up from Sharon’s at four o’clock. Aimee said Alex did really well at bowling, he knocked down three pins. I said that’s good as Alex has never been bowling.
When we got home Alex told us all about the party. He seemed to really enjoy it.
We went to a won Ton House for dinner. Samantha didn’t like sitting in the high chair, so I held her while we ate.
We went to London Drugs afterwards and met Marla there. She said her car was in the shop last week, so she couldn’t have us over. We could get together next week, how about Wednesday. I said sure that would be fine.
We came home and Samantha had a nap. She ate again at nine o’clock.
Alex went to bed at ten o’clock and so did I.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
Samantha ate at eight, eleven, two, six and ten o’clock.
Alex went to school today.
No Tests
Medication
Mercaptopurine ------- ------- 8:00 p.m.
May 4, 1990
Samantha ate at eight, eleven, two, six and eleven o’clock.
I suppose we had pizza for dinner that’s all Alex ever wants right now.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
May 5, 1990
Samantha woke up at eight o’clock. Charlie was already up watching TV. Alex didn’t wake up until around nine o’clock.
I told Alex to have a shower. Alex was really annoyed about it and complained all the way there.
After breakfast and after Charlie and Alex had their showers I asked Charlie to watch Samantha while I had my shower. Charlie said hmmm, he always says that when he doesn’t want to do something. It really annoys me as she’s his child too and it doesn’t hurt him to watch her occasionally.
Well I finally had my shower. Charlie and Alex were outside. Charlie was washing his car and Alex asked me to get his bike.
Finally a chance to relax. I must need it. Last night I was so dizzy when I went to bed the room was spinning.
Alex and I left at 11:55 a.m. for Sharon’s party. Only two boys at the party; Alex and another boy. A lot of the kids were already there. They said here comes Alex! Sharon opened the door and I said bye Alex see you later. Aimee said she you later. I said have fun!
I said to Charlie when I got home we had better tidy up the house. Mom had phoned about voting. I’m sure they’ll drop by since the school is so close.
Samantha woke up, I put her in the playpen. I was about to make her cereal when Mom and Dad came to the door. Mom said they came so we could go vote.
Mom fed Samantha cereal, she had as much trouble as I do usually. Mom thinks I should try it in a bottle but I don’t like that idea.
When we came home from voting, Mom and Dad left shortly afterwards.
Samantha finished eating and went for a nap.
I picked Alex up from Sharon’s at four o’clock. Aimee said Alex did really well at bowling, he knocked down three pins. I said that’s good as Alex has never been bowling.
When we got home Alex told us all about the party. He seemed to really enjoy it.
We went to a won Ton House for dinner. Samantha didn’t like sitting in the high chair, so I held her while we ate.
We went to London Drugs afterwards and met Marla there. She said her car was in the shop last week, so she couldn’t have us over. We could get together next week, how about Wednesday. I said sure that would be fine.
We came home and Samantha had a nap. She ate again at nine o’clock.
Alex went to bed at ten o’clock and so did I.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis: Leukemia; April 26-May 1, 1990
April 26, 1990
Samantha woke up at eight o’clock. After her feeding it was time for Alex and I to have breakfast.
The morning goes by quite quickly and we have to go to school.
Samantha usually has a feeding before or after we go to school and again when we get home.
We came home after school. Charlie is on afternoon shift so Alex and I had dinner together.
After dinner we watched TV and played video games.
Samantha ate at six thirty and again at ten o’clock. Then we went to bed.
No Tests
Medication
Bactrim -------- -------- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
April 27, 1990
Samantha ate probably between seven and eight o’clock. The morning went by quickly with feeding Samantha, making breakfast and tiding up the house. I had a shower, got dressed, then it was time to take Alex to school.
Samantha had another feeding when we came home from school. When we picked Alex up from school, Alex requested pizza for dinner instead of going to McDonald’s which makes it a lot easier.
Samantha had two more feedings before going to bed. Alex went to bed at nine o’clock.
No Tests
Medication
Bactrim ------- ------ 9:00 p.m.
Mercaptopurine ------ ------- 9:00 p.m.
April 28, 1990
Samantha ate at seven, eleven, three thirty, six thirty and ten o’clock.
I didn’t do much today, just rested.
We had a Chinese Food take out for dinner.
Alex and Sam went to bed at eight thirty.
No Tests
Medication
Bactrim ------ ------- 8:30 p.m.
Mercaptopurine ------ ------ 8:30 p.m.
April 29, 1990
Samantha ate at seven, eleven, three, six and ten o’clock.
We went to visit Mom and Dad. After we had our dinner. We came home at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
April 30, 1990
Samantha ate at eight, eleven, two, six thirty and ten o’clock.
Alex went to school today. Charlie is on afternoon shift so it’s just Alex and I having dinner together.
No Tests
Medication
Bactrim 9:00 a.m. -------- 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
May 1, 1990
I took Samantha and Alex to the doctor. We saw Dr. F, she was happy to see that Sam had put on a pound in less than a month. The doctor checked them both over and said they were okay.
No Tests
Medication
Mercaptopurine ------- ------ 8:00 p.m.
Samantha woke up at eight o’clock. After her feeding it was time for Alex and I to have breakfast.
The morning goes by quite quickly and we have to go to school.
Samantha usually has a feeding before or after we go to school and again when we get home.
We came home after school. Charlie is on afternoon shift so Alex and I had dinner together.
After dinner we watched TV and played video games.
Samantha ate at six thirty and again at ten o’clock. Then we went to bed.
No Tests
Medication
Bactrim -------- -------- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
April 27, 1990
Samantha ate probably between seven and eight o’clock. The morning went by quickly with feeding Samantha, making breakfast and tiding up the house. I had a shower, got dressed, then it was time to take Alex to school.
Samantha had another feeding when we came home from school. When we picked Alex up from school, Alex requested pizza for dinner instead of going to McDonald’s which makes it a lot easier.
Samantha had two more feedings before going to bed. Alex went to bed at nine o’clock.
No Tests
Medication
Bactrim ------- ------ 9:00 p.m.
Mercaptopurine ------ ------- 9:00 p.m.
April 28, 1990
Samantha ate at seven, eleven, three thirty, six thirty and ten o’clock.
I didn’t do much today, just rested.
We had a Chinese Food take out for dinner.
Alex and Sam went to bed at eight thirty.
No Tests
Medication
Bactrim ------ ------- 8:30 p.m.
Mercaptopurine ------ ------ 8:30 p.m.
April 29, 1990
Samantha ate at seven, eleven, three, six and ten o’clock.
We went to visit Mom and Dad. After we had our dinner. We came home at nine o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 p.m.
April 30, 1990
Samantha ate at eight, eleven, two, six thirty and ten o’clock.
Alex went to school today. Charlie is on afternoon shift so it’s just Alex and I having dinner together.
No Tests
Medication
Bactrim 9:00 a.m. -------- 8:30 p.m.
Mercaptopurine ------- ------ 8:30 p.m.
May 1, 1990
I took Samantha and Alex to the doctor. We saw Dr. F, she was happy to see that Sam had put on a pound in less than a month. The doctor checked them both over and said they were okay.
No Tests
Medication
Mercaptopurine ------- ------ 8:00 p.m.
Thursday, April 24, 2014
Diagnosis: Leukemia; April 25, 1990
Samantha woke up at eight o’clock. We’ll have to really hurry this morning. Marla, Lanie and Paxton are coming over.
After I fed Samantha I had a shower, got dressed and had my breakfast.
Alex didn’t like the idea of getting ready so fast. I tided up the house. I never did have the opportunity to clean the house properly.
Then came at ten thirty. They had come from the dentist. Alex and Lanie played downstairs. Paxton stayed upstairs, he likes to talk to Charlie. He asked Marla if Charlie would be home.
Paxton stayed with Sam and I while Marla took Lanie to school and Charlie took Alex to school.
Paxton talked quite a bit to me. He said he weighs 60 pounds, he’s six and Lanie is 4.
I measure Paxton on Alex’s chart, he’s two inches shorter then Alex was at that age.
At lunch time Lanie told me we were lucky because we have Alligator soup. They can’t find it except in tomato soup.
Marla came back at one o’clock. I told her about measuring Paxton. She said that’s good because she doesn’t have anything to go by. She has Lanie’s but girls growth is suppose to be different.
Lanie and Paxton left at two thirty. Samantha and I left at two forty five.
Alex watched TV after school. We ate dinner at five o’clock. Samantha ate gain at six thirty.
Sam and Alex went to bed at eight o’clock. I woke Sam up at ten o’clock for her feeding then we went to bed.
No Tests
Medicating
Bactrim ------- ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
After I fed Samantha I had a shower, got dressed and had my breakfast.
Alex didn’t like the idea of getting ready so fast. I tided up the house. I never did have the opportunity to clean the house properly.
Then came at ten thirty. They had come from the dentist. Alex and Lanie played downstairs. Paxton stayed upstairs, he likes to talk to Charlie. He asked Marla if Charlie would be home.
Paxton stayed with Sam and I while Marla took Lanie to school and Charlie took Alex to school.
Paxton talked quite a bit to me. He said he weighs 60 pounds, he’s six and Lanie is 4.
I measure Paxton on Alex’s chart, he’s two inches shorter then Alex was at that age.
At lunch time Lanie told me we were lucky because we have Alligator soup. They can’t find it except in tomato soup.
Marla came back at one o’clock. I told her about measuring Paxton. She said that’s good because she doesn’t have anything to go by. She has Lanie’s but girls growth is suppose to be different.
Lanie and Paxton left at two thirty. Samantha and I left at two forty five.
Alex watched TV after school. We ate dinner at five o’clock. Samantha ate gain at six thirty.
Sam and Alex went to bed at eight o’clock. I woke Sam up at ten o’clock for her feeding then we went to bed.
No Tests
Medicating
Bactrim ------- ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Diagnosis: Leukemia; April 23-24, 1990
April 23, 1990
Samantha woke up at eight o’clock. After her feeding I made breakfast.
I did some work around the house before taking Alex to school.
Samantha ate around eleven o’clock and again at two o’clock.
The time when Alex is away at school seems to go very quickly. After school Alex usually watches Turtles then plays Turtles until it’s dinner time.
We ate dinner at five o’clock. Samantha ate again at six thirty. She had a nap at eight o’clock and ate again at ten o’clock. Alex was in bed by eight thirty.
I went to bed at eleven o’clock after feeding Sam.
No tests
Medication
Bactrim -------- ----- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate ------ ------ 8:00 p.m.
April 24, 1990
Samantha woke up at seven thirty. Then after her feeding I made breakfast. Alex really loves eating bacon for breakfast. Sometimes he’ll have toast with bacon.
I took Alex to school. Then I fed Samantha. I usually feed Sam cereal at the second feeding. She still doesn’t like eating just yet.
I picked Alex up from school, when we came home from school, I fed Samantha and she went for a nap.
We ate dinner at five o’clock. Sam ate again at six thirty. She went for a nap around eight o’clock.
Alex went to bed at eight o’clock too! I fed Samantha again at ten o’clock then we went to bed.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Samantha woke up at eight o’clock. After her feeding I made breakfast.
I did some work around the house before taking Alex to school.
Samantha ate around eleven o’clock and again at two o’clock.
The time when Alex is away at school seems to go very quickly. After school Alex usually watches Turtles then plays Turtles until it’s dinner time.
We ate dinner at five o’clock. Samantha ate again at six thirty. She had a nap at eight o’clock and ate again at ten o’clock. Alex was in bed by eight thirty.
I went to bed at eleven o’clock after feeding Sam.
No tests
Medication
Bactrim -------- ----- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Methotrexiate ------ ------ 8:00 p.m.
April 24, 1990
Samantha woke up at seven thirty. Then after her feeding I made breakfast. Alex really loves eating bacon for breakfast. Sometimes he’ll have toast with bacon.
I took Alex to school. Then I fed Samantha. I usually feed Sam cereal at the second feeding. She still doesn’t like eating just yet.
I picked Alex up from school, when we came home from school, I fed Samantha and she went for a nap.
We ate dinner at five o’clock. Sam ate again at six thirty. She went for a nap around eight o’clock.
Alex went to bed at eight o’clock too! I fed Samantha again at ten o’clock then we went to bed.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Thursday, April 10, 2014
Diagnosis: Leukemia; April 10, 1990
Samantha woke up at eight o’clock. Samantha went for a nap at nine thirty.
I wasn’t going to send Alex to school today. Alex wants to go so badly that I decided maybe it would be okay. The reason I wasn’t going to send Alex to school was that he had a headache yesterday. I thought maybe he would need a bit more rest.
I fed Sam before going to school. I asked Morgan if she could take Alex after school. Samantha has a doctors appointment at 2:10 p.m. and I’m not sure if I can make it back on time. Morgan said she would.
Samantha and I went to the bank and then to the mall.
We saw Dr. F, she said Samantha should be on Pablum by now. She wants Samantha to start on iron drops. She said b careful with it as it can cause constipation.
Dr. F wants to see Samantha in two weeks.
We stopped at Westwood mall then we went home. We got home at three thirty. I put Samantha to bed when we got home. Charlie got home shortly afterwards.
I picked Alex up form Patrick’s at four forty five. I asked Morgan if Patrick could come over tomorrow. She said that would be great, I was planning on going grocery shopping after school. We’re going to the Gulf Islands Thursday morning.
We ate dinner at five thirty. After dinner I fed Samantha, she went back to bed at seven o’clock. Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Prednisone ------- ----- 8:30 p.m
I wasn’t going to send Alex to school today. Alex wants to go so badly that I decided maybe it would be okay. The reason I wasn’t going to send Alex to school was that he had a headache yesterday. I thought maybe he would need a bit more rest.
I fed Sam before going to school. I asked Morgan if she could take Alex after school. Samantha has a doctors appointment at 2:10 p.m. and I’m not sure if I can make it back on time. Morgan said she would.
Samantha and I went to the bank and then to the mall.
We saw Dr. F, she said Samantha should be on Pablum by now. She wants Samantha to start on iron drops. She said b careful with it as it can cause constipation.
Dr. F wants to see Samantha in two weeks.
We stopped at Westwood mall then we went home. We got home at three thirty. I put Samantha to bed when we got home. Charlie got home shortly afterwards.
I picked Alex up form Patrick’s at four forty five. I asked Morgan if Patrick could come over tomorrow. She said that would be great, I was planning on going grocery shopping after school. We’re going to the Gulf Islands Thursday morning.
We ate dinner at five thirty. After dinner I fed Samantha, she went back to bed at seven o’clock. Alex went to bed at nine o’clock. I went to bed after feeding Samantha.
No Tests
Medication
Mercaptopurine ------ ----- 8:30 p.m.
Prednisone ------- ----- 8:30 p.m
Diagnosis: Leukemia; Apirl 9, 1990
Samantha woke up at eight thirty. I sure was tired this morning. I could hardly get out of bed.
Charlie and Alex left for the hospital at nine o’clock. They had to go drop off Tina and Beau’s jackets at their friends house. Lin said they would be leaving tomorrow morning.
I fed Samantha again at ten thirty then she went for a nap.
I did quite a few loads of laundry, did the beds and cleaned up the kitchen.
Charlie and Alex came home at one o’clock. Everything seemed to go okay. Alex’s counts were up so Dr. K increased Alex’s medication; Mercaptopurine to one pill daily, Methotrexiate to 6 pills weekly, prednisone and Septra stay the same.
Charlie said next month Alex has to have an LP.
Alex said they saw Sheila. She said to say hi to Samantha and me. Alex said she works upstairs that’s why we haven’t seen her for awhile.
Charlie said Lenore is quitting. Lenore wants someone to share her work but they won’t allow it.
Alex wanted to play outside but I said no. I want him to rest. Of course Alex was mad.
Charlie had to go to work. He wanted to take the day off but they wouldn’t allow it.
Alex played outside later in the afternoon. The only trouble with him playing outside is that he forgets how tired he is until I call him inside. Then he’ll cry at any little thing.
We ate dinner at five thirty. I had fed Samantha at two o’clock given her a bath and fed her again at six thirty.
Alex went to bed at eight o’clock. It sure is hard getting him to bed. There’s always some kind of complaint.
I went to bed at ten thirty, after I had fed Samantha. Charlie came home at that time.
Tests
WBC 4.7
HGB 12.3
Platelet 252
ANC 4230
Medication
Bactrim 8:30 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ------ 8:00 p.m.
Methotrexiate ------ ------ 8:00 p.m.
Temperature 37.50 2:00 p.m.
Charlie and Alex left for the hospital at nine o’clock. They had to go drop off Tina and Beau’s jackets at their friends house. Lin said they would be leaving tomorrow morning.
I fed Samantha again at ten thirty then she went for a nap.
I did quite a few loads of laundry, did the beds and cleaned up the kitchen.
Charlie and Alex came home at one o’clock. Everything seemed to go okay. Alex’s counts were up so Dr. K increased Alex’s medication; Mercaptopurine to one pill daily, Methotrexiate to 6 pills weekly, prednisone and Septra stay the same.
Charlie said next month Alex has to have an LP.
Alex said they saw Sheila. She said to say hi to Samantha and me. Alex said she works upstairs that’s why we haven’t seen her for awhile.
Charlie said Lenore is quitting. Lenore wants someone to share her work but they won’t allow it.
Alex wanted to play outside but I said no. I want him to rest. Of course Alex was mad.
Charlie had to go to work. He wanted to take the day off but they wouldn’t allow it.
Alex played outside later in the afternoon. The only trouble with him playing outside is that he forgets how tired he is until I call him inside. Then he’ll cry at any little thing.
We ate dinner at five thirty. I had fed Samantha at two o’clock given her a bath and fed her again at six thirty.
Alex went to bed at eight o’clock. It sure is hard getting him to bed. There’s always some kind of complaint.
I went to bed at ten thirty, after I had fed Samantha. Charlie came home at that time.
Tests
WBC 4.7
HGB 12.3
Platelet 252
ANC 4230
Medication
Bactrim 8:30 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ----- 8:00 p.m.
Prednisone ------ ------ 8:00 p.m.
Methotrexiate ------ ------ 8:00 p.m.
Temperature 37.50 2:00 p.m.
Diagnosis: Leukemia; April 8, 1990
Samantha let me sleep in until eight thirty this morning. That sure was a nice birthday present!
After I fed Samantha I made breakfast. The I had a shower and got dressed.
I gave Samantha another feeding then we went to Mom and Dad’s to do a few things. When I tried to open the garage door it wouldn’t open. Then we went inside the house and they were home. Well they had come home but had gone out again. We stayed for quite awhile but they still didn’t come so we left. We saw them coming along Mara Drive, so we went back.
They’re looking good. Mom said Dad has improved 100%. That sure was good to hear. They told us about what had happened in the camp this year.
We got home after two o’clock. I sure was hungry we hadn’t had lunch yet except Alex.
Lin phoned around four o’clock. She said they were stuck at Pender Harbour and wouldn’t be able to get another ferry until 8:20 p.m. Charlie talked to her and they decided to cancel our dinner plans.
We invited Mom and Dad over for dinner, Charlie went and got Chinese food for dinner.
Alex helped me blow out the candles on my cake. It took me two blows!
Mom and Dad left before eight o’clock.
Alex went to bed at nine o’clock.
Joan phoned to wish me a Happy Birthday. She told me she’s pregnant and due November 11th. That sure is exciting news! It’ll be a boy, I think so anyways.
I went to bed at midnight.
No Tests
Medication
Mercaptopurine ------ ----- 9:30 p.m.
After I fed Samantha I made breakfast. The I had a shower and got dressed.
I gave Samantha another feeding then we went to Mom and Dad’s to do a few things. When I tried to open the garage door it wouldn’t open. Then we went inside the house and they were home. Well they had come home but had gone out again. We stayed for quite awhile but they still didn’t come so we left. We saw them coming along Mara Drive, so we went back.
They’re looking good. Mom said Dad has improved 100%. That sure was good to hear. They told us about what had happened in the camp this year.
We got home after two o’clock. I sure was hungry we hadn’t had lunch yet except Alex.
Lin phoned around four o’clock. She said they were stuck at Pender Harbour and wouldn’t be able to get another ferry until 8:20 p.m. Charlie talked to her and they decided to cancel our dinner plans.
We invited Mom and Dad over for dinner, Charlie went and got Chinese food for dinner.
Alex helped me blow out the candles on my cake. It took me two blows!
Mom and Dad left before eight o’clock.
Alex went to bed at nine o’clock.
Joan phoned to wish me a Happy Birthday. She told me she’s pregnant and due November 11th. That sure is exciting news! It’ll be a boy, I think so anyways.
I went to bed at midnight.
No Tests
Medication
Mercaptopurine ------ ----- 9:30 p.m.
Diagnosis: Leukemia; April 7, 1990
Samantha woke me up at six o’clock. Everyone else woke up shortly afterwards.
I gave Sam to Charlie while I had a shower. Then I got dressed and had my breakfast.
Lin and family left at nine o’clock. They decided to stay with their friends in Vancouver.
We went to the mall. Alex and Samantha bought me a t-shirt for my birthday. I tried on shoes but they didn’t fit.
We got home around three o’clock. I fed Samantha and put her down for a nap.
We ate dinner at five thirty. Earlier Alex had fallen down outside. He cried and cried in pain. He took the skin off his knee but it didn’t look very bad to me. He carried on for an hour or more. Alex must be over tired.
Later in the evening Alex was limping around. I was wondering if he hadn’t broken his leg or maybe twisted it. I looked at his leg before he went to bed and it looks okay, it’s not swollen. Hopefully he’ll be okay tomorrow.
Alex went to bed at nine o’clock. I went to bed at ten thirty.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
I gave Sam to Charlie while I had a shower. Then I got dressed and had my breakfast.
Lin and family left at nine o’clock. They decided to stay with their friends in Vancouver.
We went to the mall. Alex and Samantha bought me a t-shirt for my birthday. I tried on shoes but they didn’t fit.
We got home around three o’clock. I fed Samantha and put her down for a nap.
We ate dinner at five thirty. Earlier Alex had fallen down outside. He cried and cried in pain. He took the skin off his knee but it didn’t look very bad to me. He carried on for an hour or more. Alex must be over tired.
Later in the evening Alex was limping around. I was wondering if he hadn’t broken his leg or maybe twisted it. I looked at his leg before he went to bed and it looks okay, it’s not swollen. Hopefully he’ll be okay tomorrow.
Alex went to bed at nine o’clock. I went to bed at ten thirty.
No Tests
Medication
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis: Leukemia; April 6, 1990
Samantha woke up before seven o’clock. I have a lot to do today. Lin phoned at ten last night. They decided to stay with us. The house needs to be tided up and vacuumed.
Sam went for a nap after her feeding. I did laundry, put things away and cleaned.
I fed Samantha again at ten o’clock. We left for school at eleven thirty with the baking. When we got to the school Lettie offered to bring it in. I thanked her, I really appreciated it. It would have been rather difficult otherwise.
When we got home I put Samantha in the playpen, but she was tired so I put her down for a nap.
After I had my lunch I vacuumed the house. It was time for another feeding.
Alex got back from his field trip at 2:45 p.m., so we left at that time to get him. The class was back from their fried trip to the Burnaby Museum.
When we got home from school I put Samantha down for a nap. I did a few things around the house then wrote in the journal. Charlie got back late as he went to Mom and Dad’s to get the roof racks.
We left before five to go to McDonald’s. After we finished eating we went to United Buy and Sell to buy a mattress for the guest bedroom.
We left shortly after we had come home. We went to Alex’s school for their Fun Fair. It was quite good but really hot. We saw Shirley, Aaron, Brent and Monique there. We walked around with them. Alex played bowling, we went on the cake walk, the bake sale, and Alex played pistol shooting. At the bake sale we didn’t see my cup cakes. I guess someone bought them! I was thinking of buying them back. Alex thought that was pretty funny!
We saw some of Alex’s classmates, Carter and a few of the girls. A couple of them won a cake at the cake walk.
Alex bought brownies at the bake sale. When we got home I put Samantha in her crib for a nap. I had a shower, it sure was hot in the school!
Lin, Simon, Tina and Beau arrived around nine thirty. We had made up the guest bedroom for them and expected Tina so sleep in Alex’s room. Tina wanted to sleep with Lin. They all slept in the guest bedroom which must have been rather crowded.
Samantha ate at ten o’clock. Lin took a few pictures of her.
I went to bed at eleven thirty.
No Tests
Medication
Bactrim 8:30 a.m. ------- 11:00 p.m.
Mercaptopurine ------- ------ 11:00 p.m.
Sam went for a nap after her feeding. I did laundry, put things away and cleaned.
I fed Samantha again at ten o’clock. We left for school at eleven thirty with the baking. When we got to the school Lettie offered to bring it in. I thanked her, I really appreciated it. It would have been rather difficult otherwise.
When we got home I put Samantha in the playpen, but she was tired so I put her down for a nap.
After I had my lunch I vacuumed the house. It was time for another feeding.
Alex got back from his field trip at 2:45 p.m., so we left at that time to get him. The class was back from their fried trip to the Burnaby Museum.
When we got home from school I put Samantha down for a nap. I did a few things around the house then wrote in the journal. Charlie got back late as he went to Mom and Dad’s to get the roof racks.
We left before five to go to McDonald’s. After we finished eating we went to United Buy and Sell to buy a mattress for the guest bedroom.
We left shortly after we had come home. We went to Alex’s school for their Fun Fair. It was quite good but really hot. We saw Shirley, Aaron, Brent and Monique there. We walked around with them. Alex played bowling, we went on the cake walk, the bake sale, and Alex played pistol shooting. At the bake sale we didn’t see my cup cakes. I guess someone bought them! I was thinking of buying them back. Alex thought that was pretty funny!
We saw some of Alex’s classmates, Carter and a few of the girls. A couple of them won a cake at the cake walk.
Alex bought brownies at the bake sale. When we got home I put Samantha in her crib for a nap. I had a shower, it sure was hot in the school!
Lin, Simon, Tina and Beau arrived around nine thirty. We had made up the guest bedroom for them and expected Tina so sleep in Alex’s room. Tina wanted to sleep with Lin. They all slept in the guest bedroom which must have been rather crowded.
Samantha ate at ten o’clock. Lin took a few pictures of her.
I went to bed at eleven thirty.
No Tests
Medication
Bactrim 8:30 a.m. ------- 11:00 p.m.
Mercaptopurine ------- ------ 11:00 p.m.
Diagnosis: Leukemia; April 5, 1990
Samantha woke up at six thirty. After I had fed her I had my breakfast. Alex woke up at eight o’clock. I made Alex his breakfast. All he’s eating for breakfast now is hot cereal, apple flavour.
Then I had a shower, got dressed and did a few things around the house.
Samantha was in her crib but she didn’t go for a nap.
Lanie phoned to ask Alex to bring his sticker book. She sure sounded different on the phoned.
We left at ten o’clock to go to Marla’s. when we got there Paxton and Lanie were outside. I said hi Paxton. He was surprised to see us. He said Alex is here. I said what have you got. He said dirt. I said dirt? What are you doing? Paxton said I’m planting carrots.
We went in through the front door. Marla said they’re planting the seeds in the flower pots.
The morning went by pretty quickly. We had lunch at eleven thirty then it was time to take the kids to school. We left at 12:05 p.m. and got to school at 12:15 p.m. so we went home since I forgot to get Alex his snack. I also brought the bag of clothes to be retuned to Marla.
After I had taken Alex to school I went back to Marla’s. We got there before she did. We had a visit before we had to go back to get the kids.
Marla said her father had two heart attacks one at work and one at home. She said they weren’t considered a serious heat attack. He seems to have recovered and is coming over with Marla’s mother possibly in the summer.
Marla’s babysitter is taking eight weeks off in the summer, she’s going to Europe. Marla won’t be working during that time.
When Alex, Sam and I came home from school, I made a chocolate cake and did the dishes. Samantha was taking a nap and was she ever tired. She didn’t have a nap all day.
Charlie got home at four o’clock. We started to cook dinner, we ate at five thirty.
Charlie helped me to do the cake, it had to be cut off the top, so it was flat when it was flipped over. Then I iced it Alex had the leftover icing.
I fed Samantha at six thirty and again at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Then I had a shower, got dressed and did a few things around the house.
Samantha was in her crib but she didn’t go for a nap.
Lanie phoned to ask Alex to bring his sticker book. She sure sounded different on the phoned.
We left at ten o’clock to go to Marla’s. when we got there Paxton and Lanie were outside. I said hi Paxton. He was surprised to see us. He said Alex is here. I said what have you got. He said dirt. I said dirt? What are you doing? Paxton said I’m planting carrots.
We went in through the front door. Marla said they’re planting the seeds in the flower pots.
The morning went by pretty quickly. We had lunch at eleven thirty then it was time to take the kids to school. We left at 12:05 p.m. and got to school at 12:15 p.m. so we went home since I forgot to get Alex his snack. I also brought the bag of clothes to be retuned to Marla.
After I had taken Alex to school I went back to Marla’s. We got there before she did. We had a visit before we had to go back to get the kids.
Marla said her father had two heart attacks one at work and one at home. She said they weren’t considered a serious heat attack. He seems to have recovered and is coming over with Marla’s mother possibly in the summer.
Marla’s babysitter is taking eight weeks off in the summer, she’s going to Europe. Marla won’t be working during that time.
When Alex, Sam and I came home from school, I made a chocolate cake and did the dishes. Samantha was taking a nap and was she ever tired. She didn’t have a nap all day.
Charlie got home at four o’clock. We started to cook dinner, we ate at five thirty.
Charlie helped me to do the cake, it had to be cut off the top, so it was flat when it was flipped over. Then I iced it Alex had the leftover icing.
I fed Samantha at six thirty and again at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Diagnosis: Leukemia; April 4, 1990
Samantha woke up at seven o’clock. Sam went for a nap at nine o’clock.
I had a shower, got dressed, did the dishes, made the beds and did the laundry.
I fed Samantha again at eleven o’clock. Then we left to take Alex to school.
When we came back I put Samantha to bed. I had lunch, made cupcakes for Alex’s school then it was time to wake Samantha up for her feedings. She stayed up for an hour or so then she went for a nap.
I cleaned up the kitchen and wrote in the journal. Charlie got home at four o’clock.
I picked Alex up from Patrick’s at four forty five. I said to her Alex is running and he knows he’s not suppose to. She said I wish I had known. Morgan seemed rather alarmed. I said well he knows, don’t worry about it.
We went to Safeway and Save On Foods to buy a few groceries.
When we got home Charlie had dinner ready. He said where were you, I thought you had an accident. I said we went to two places, what do you expect.
After dinner I fed Samantha she had woken up just after I had left.
Sam went for a nap at seven o’clock. I wrote in the journal. I fed Sam again at nine o’clock.
Alex went to bed before nine o’clock. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim ------- ------- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
I had a shower, got dressed, did the dishes, made the beds and did the laundry.
I fed Samantha again at eleven o’clock. Then we left to take Alex to school.
When we came back I put Samantha to bed. I had lunch, made cupcakes for Alex’s school then it was time to wake Samantha up for her feedings. She stayed up for an hour or so then she went for a nap.
I cleaned up the kitchen and wrote in the journal. Charlie got home at four o’clock.
I picked Alex up from Patrick’s at four forty five. I said to her Alex is running and he knows he’s not suppose to. She said I wish I had known. Morgan seemed rather alarmed. I said well he knows, don’t worry about it.
We went to Safeway and Save On Foods to buy a few groceries.
When we got home Charlie had dinner ready. He said where were you, I thought you had an accident. I said we went to two places, what do you expect.
After dinner I fed Samantha she had woken up just after I had left.
Sam went for a nap at seven o’clock. I wrote in the journal. I fed Sam again at nine o’clock.
Alex went to bed before nine o’clock. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim ------- ------- 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Diagnosis: Leukemia; April 3, 1990
Alex woke up at eleven thirty last night complaining of terrible pain in his leg. I gave him Tempra and a hot water bottle, he went back to sleep.
Today is Alex’s birthday, HAPPY BIRTHDAY ALEX! It’s hard to believe Alex is six years old. Just think six years ago at 4:08 a.m. he was born. One of the happiest moments of my life!
Yesterday Alex said he was really dump when he said he had a stupid party. I said yes I know I’m still mad.
Samantha woke up at six thirty. She fell asleep while nursing so I put her back to bed and I went back to bed myself. I awoke again at nine o’clock. I could hear Samantha talking to herself but she wasn’t complaining. I made breakfast for Alex and wished him a HAPPY BIRTHDAY! I had a shower before Sam started to cry.
I fed Samantha, made Alex his lunch did a few things around the house then it was time to take Alex to school.
Morgan asked me if Patrick was coming to our house today. I said not that I know of but he was welcome to come over. She said sure if it was okay. I said yes. Morgan said then I’ll pick Patrick up at five o’clock.
When we got home I had my lunch. Samantha went for a nap. I had to wake her up at two o’clock for her feeding then we picked Alex and Patrick up from school.
Alex was annoyed Patrick was coming over. He said then I won’t be able to play outside. He wanted to play with Luke and Wanda. I said yes you will.
They played for awhile inside then Alex asked if they could go outside. I said as long as Patrick wants to go outside. He said he did.
Alex and Patrick played with Luke, Wanda and Rick. They were all Turtles except Rick who was Shredder.
After they had been out awhile I noticed Patrick was staying away form them. He sure didn’t look very happy. In the meantime Charlie had come home from work. Alex asked him to take off the training wheels. Alex had a hard time starting without the training wheels he gave up and went into the house.
It was better that Alex went into the house they were able to play turtles before Patrick went home.
Morgan came to get Patrick before five o’clock. I gave Patrick a Turtle cup to take home since he didn’t seem to have a very good time.
I finished preparing dinner. Sam woke up for her feeding. I was able to feed her before we ate dinner.
After dinner I did the dishes and wrote in the journal.
I gave Alex a turtle Hat today. I always think it’s nice to get something actually on your birthday.
Alex played outside with Luke and Wanda until seven forty five. He said he was mad I didn’t call him when Cosby was on. I said I called you at seven twenty five and you said not yet please can’t I stay out a little longer. I said okay so don’t complain I didn’t call you.
Mom phoned at eight o’clock to wish Alex a Happy Birthday! She actually sang to Alex.
I talked to Mom, I said the kids thought the sheets were rad! What do you mean she said. I said radical, it’s a new saying with them. Rad short for radical.
Mom said not to send any more mail. It takes a couple of weeks to get there.
Alex went to bed at eight thirty. I wrote in the journal, fed Samantha and went to bed at eleven thirty.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Today is Alex’s birthday, HAPPY BIRTHDAY ALEX! It’s hard to believe Alex is six years old. Just think six years ago at 4:08 a.m. he was born. One of the happiest moments of my life!
Yesterday Alex said he was really dump when he said he had a stupid party. I said yes I know I’m still mad.
Samantha woke up at six thirty. She fell asleep while nursing so I put her back to bed and I went back to bed myself. I awoke again at nine o’clock. I could hear Samantha talking to herself but she wasn’t complaining. I made breakfast for Alex and wished him a HAPPY BIRTHDAY! I had a shower before Sam started to cry.
I fed Samantha, made Alex his lunch did a few things around the house then it was time to take Alex to school.
Morgan asked me if Patrick was coming to our house today. I said not that I know of but he was welcome to come over. She said sure if it was okay. I said yes. Morgan said then I’ll pick Patrick up at five o’clock.
When we got home I had my lunch. Samantha went for a nap. I had to wake her up at two o’clock for her feeding then we picked Alex and Patrick up from school.
Alex was annoyed Patrick was coming over. He said then I won’t be able to play outside. He wanted to play with Luke and Wanda. I said yes you will.
They played for awhile inside then Alex asked if they could go outside. I said as long as Patrick wants to go outside. He said he did.
Alex and Patrick played with Luke, Wanda and Rick. They were all Turtles except Rick who was Shredder.
After they had been out awhile I noticed Patrick was staying away form them. He sure didn’t look very happy. In the meantime Charlie had come home from work. Alex asked him to take off the training wheels. Alex had a hard time starting without the training wheels he gave up and went into the house.
It was better that Alex went into the house they were able to play turtles before Patrick went home.
Morgan came to get Patrick before five o’clock. I gave Patrick a Turtle cup to take home since he didn’t seem to have a very good time.
I finished preparing dinner. Sam woke up for her feeding. I was able to feed her before we ate dinner.
After dinner I did the dishes and wrote in the journal.
I gave Alex a turtle Hat today. I always think it’s nice to get something actually on your birthday.
Alex played outside with Luke and Wanda until seven forty five. He said he was mad I didn’t call him when Cosby was on. I said I called you at seven twenty five and you said not yet please can’t I stay out a little longer. I said okay so don’t complain I didn’t call you.
Mom phoned at eight o’clock to wish Alex a Happy Birthday! She actually sang to Alex.
I talked to Mom, I said the kids thought the sheets were rad! What do you mean she said. I said radical, it’s a new saying with them. Rad short for radical.
Mom said not to send any more mail. It takes a couple of weeks to get there.
Alex went to bed at eight thirty. I wrote in the journal, fed Samantha and went to bed at eleven thirty.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Diagnosis: Leukemia; April 2, 1990
Samantha woke up at six thirty, too early for me. Fortunately she went to bed at eight o’clock. I went to bed as well.
Alex woke me up at nine o’clock to make him breakfast. Samantha was awake but wasn’t crying. I fed her at ten thirty. When we came back from school Sam wanted to go to sleep.
I woke Samantha up at two o’clock for her feeding then it was time to get Alex.
Alex said he wanted Marty to come over. I said did you asked him yet. He said yes. I said where’s his mother. Bonny was just coming in the door. She said it was okay. I said I’m sorry you couldn’t have known earlier. She said that was okay. Bonny said she was sorry she didn’t come to the party. I said that was okay. She said she was glad she didn’t have to go. I felt rather insulted, I don’t know what her problem is.
I put Samantha to bed when we got home. When Charlie got home, I went to Save on foods to buy paper. Alex used up at least two packages of paper. When I got back Marty had gone home.
Alex walked across the coffee table. He’s lucky the glass didn’t break. Charlie was really mad at him.
We ate dinner at five thirty. I fed Samantha at six thirty and eight o’clock.
Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Methotrexiate ------ ----- 8:00 p.m.
Alex woke me up at nine o’clock to make him breakfast. Samantha was awake but wasn’t crying. I fed her at ten thirty. When we came back from school Sam wanted to go to sleep.
I woke Samantha up at two o’clock for her feeding then it was time to get Alex.
Alex said he wanted Marty to come over. I said did you asked him yet. He said yes. I said where’s his mother. Bonny was just coming in the door. She said it was okay. I said I’m sorry you couldn’t have known earlier. She said that was okay. Bonny said she was sorry she didn’t come to the party. I said that was okay. She said she was glad she didn’t have to go. I felt rather insulted, I don’t know what her problem is.
I put Samantha to bed when we got home. When Charlie got home, I went to Save on foods to buy paper. Alex used up at least two packages of paper. When I got back Marty had gone home.
Alex walked across the coffee table. He’s lucky the glass didn’t break. Charlie was really mad at him.
We ate dinner at five thirty. I fed Samantha at six thirty and eight o’clock.
Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Methotrexiate ------ ----- 8:00 p.m.
Diagnosis: Leukemia; March 7-13, 1990
March 7, 1990
I talked to Dr. C last night. She said Alex’s hearing wouldn’t come back until after he stopped his medication. I told her Dr. Ch wanted Alex to continue on the medication for another week. She said oh I should have consulted with them first. I said it seemed to be okay with them.
No Tests
Medication
Septra S 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------- ------- 8:00 p.m.
March 8, 1990
No Tests
Medication
Septra S 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
March 9, 1990
No Tests
Medication
Septra S 11:00 a.m. ------ 11:00 p.m.
Mercaptopurine ------ ----- 11:00 p.m.
March 10, 1990
No Tests
Medication
Septra S 10:30 a.m. ------ 10:30 p.m.
Mercaptopurine ------ ----- 10:30 p.m.
March 11, 1990
No Tests
Medication
Septra S 11:00 a.m. ------ 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
March 12, 1990
Alex went to the hospital today. Dr. Ch said Alex’s ears were clear and not red so he was able to have his chemotherapy.
Tests
WBC 4.3
HGB 12.6
Platelets 318
ANC 3591
Medication
Prednisone ------ ------ 8:30 p.m.
Bactrim ------ ----- 8:30 p.m.
Mercaptopurine ------ -----8:30 p.m.
Methotrexiate ------- ----- 8:30 p.m.
March 13, 1990
Alex’s school were having their class pictures done today.
No Tests
Medication
Prednisone ------ ------ 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
I talked to Dr. C last night. She said Alex’s hearing wouldn’t come back until after he stopped his medication. I told her Dr. Ch wanted Alex to continue on the medication for another week. She said oh I should have consulted with them first. I said it seemed to be okay with them.
No Tests
Medication
Septra S 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------- ------- 8:00 p.m.
March 8, 1990
No Tests
Medication
Septra S 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
March 9, 1990
No Tests
Medication
Septra S 11:00 a.m. ------ 11:00 p.m.
Mercaptopurine ------ ----- 11:00 p.m.
March 10, 1990
No Tests
Medication
Septra S 10:30 a.m. ------ 10:30 p.m.
Mercaptopurine ------ ----- 10:30 p.m.
March 11, 1990
No Tests
Medication
Septra S 11:00 a.m. ------ 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
March 12, 1990
Alex went to the hospital today. Dr. Ch said Alex’s ears were clear and not red so he was able to have his chemotherapy.
Tests
WBC 4.3
HGB 12.6
Platelets 318
ANC 3591
Medication
Prednisone ------ ------ 8:30 p.m.
Bactrim ------ ----- 8:30 p.m.
Mercaptopurine ------ -----8:30 p.m.
Methotrexiate ------- ----- 8:30 p.m.
March 13, 1990
Alex’s school were having their class pictures done today.
No Tests
Medication
Prednisone ------ ------ 8:00 p.m.
Mercaptopurine ------- ------ 8:00 p.m.
Diagnosis: Leukemia; March 6, 1990
I took Samantha to the Simon Fraser Health Unit for her shots. The receptionist weighed Samantha, she weighs 10 pounds 15 ounces and measure 24 ¾”. the receptionist asked me how old she was. She said she was too small for four months.
When the nurse came the receptionist whispered to her that the baby was too small and skinny.
By the time I saw the nurse I was rather irritated. She said Samantha weight was too low. I told her Samantha had been ill in January and hadn’t put on much weight since then. She suggested feeding Samantha on both sides and have her checked again in a few weeks.
They sure make you feel like you’re inadequate. Mind you I was comparing her schedule with Alex’s when he was a baby. That wasn’t a good idea no doubt. Hopefully Samantha will put on more weight soon.
No Tests
Medication
Septra S ------ 1:00 p.m. 8:00 p.m.
Mercaptopurine ------ 1:00 p.m. ------
Methotrexiate ------ ------ 8:00 p.m.
Temperature 36.34C 8:00 p.m.
When the nurse came the receptionist whispered to her that the baby was too small and skinny.
By the time I saw the nurse I was rather irritated. She said Samantha weight was too low. I told her Samantha had been ill in January and hadn’t put on much weight since then. She suggested feeding Samantha on both sides and have her checked again in a few weeks.
They sure make you feel like you’re inadequate. Mind you I was comparing her schedule with Alex’s when he was a baby. That wasn’t a good idea no doubt. Hopefully Samantha will put on more weight soon.
No Tests
Medication
Septra S ------ 1:00 p.m. 8:00 p.m.
Mercaptopurine ------ 1:00 p.m. ------
Methotrexiate ------ ------ 8:00 p.m.
Temperature 36.34C 8:00 p.m.
Diagnosis: Leukemia; March 1-5, 1990
March 1, 1990
No Tests
Medication
Septra ------- 12:00 p.m. 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
March 2, 1990
No Tests
Medication
Septra S ------ 12:00 p.m. 8:00 p.m.
March 3, 1990
It’s been tough having Alex having ear infections. The one ear is plugged all the time. I read in a book that once medication is started in 24 hours the ear should become unplugged. So far it hasn’t happened so I’ll have to phone Dr. C on Monday.
We have to repeat ourselves a lot and Alex gets really annoyed. He says you know I can’t hear properly.
No Tests
Medication
Septra S ------ 5:00 p.m. 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
March 4, 1990
No Tests
Medication
Septra S ----- 4:00 p.m. 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
March 5, 1990
Alex went to the hospital with Charlie today. Dr. Ch said Alex couldn’t have chemo because of his ear infections. Alex’s blood counts were okay but if he had chemo it might cause his ear infections to get worse. She said to continue on the medication for another week. Alex goes again on the 12th.
Tests
WBC 2.1
HGB 12.4
Platelets 275
ANC 1743
Medication
Septra S ------ 12:00 p.m. 8:00 p.m.
No Tests
Medication
Septra ------- 12:00 p.m. 8:00 p.m.
Mercaptopurine ------- ----- 8:00 p.m.
March 2, 1990
No Tests
Medication
Septra S ------ 12:00 p.m. 8:00 p.m.
March 3, 1990
It’s been tough having Alex having ear infections. The one ear is plugged all the time. I read in a book that once medication is started in 24 hours the ear should become unplugged. So far it hasn’t happened so I’ll have to phone Dr. C on Monday.
We have to repeat ourselves a lot and Alex gets really annoyed. He says you know I can’t hear properly.
No Tests
Medication
Septra S ------ 5:00 p.m. 10:00 p.m.
Mercaptopurine ------ ----- 10:00 p.m.
March 4, 1990
No Tests
Medication
Septra S ----- 4:00 p.m. 9:00 p.m.
Mercaptopurine ------ ----- 9:00 p.m.
March 5, 1990
Alex went to the hospital with Charlie today. Dr. Ch said Alex couldn’t have chemo because of his ear infections. Alex’s blood counts were okay but if he had chemo it might cause his ear infections to get worse. She said to continue on the medication for another week. Alex goes again on the 12th.
Tests
WBC 2.1
HGB 12.4
Platelets 275
ANC 1743
Medication
Septra S ------ 12:00 p.m. 8:00 p.m.
Diagnosis: Leukemia; April 1, 1990
Samantha woke up at seven o’clock. After I fed her I had my breakfast.
I washed Alex’s comforter, laundry, and bath mats. I tided up the house and finished setting up the table with Alex’s help.
At noon I phoned Morgan. She said she was going to bring Patrick over at one o’clock. I said we have to be at the caboose at one o’clock so could you bring Patrick to our house at twelve forty and pick him up at four thirty? She said okay.
Then we got ready. I put Sam in her purple dress which looked really cute, she even has socks to match. Alex said Samantha you look so cute.
Patrick arrived at that time, Tony had brought him over. We went to the cars, we both took our cars so we could take the kids back to our house.
Alex and Patrick talked about Turtles all the way there. They were pretty excited to say the least.
The caboose was empty when we got there so we were able to go in right away. The hostess’ name is Samantha, I thought that was pretty funny.
All the kids were on time except for Lannie and Paxton. I phoned Marla to ask where she was. She said James had just phoned her to tell her it was daylight savings time. She said she would be there as soon as possible.
Nora stayed for a little while. I asked her about Liana. She said she lives on Lost Lake Drive. So she’s look after Dr. F’s receptionists’ baby. She said she isn’t much bigger than Samantha and weighs 15 pounds. Liana is 3 pounds heavier and six weeks older than Sam. Liana is eating solids, has been eating Pablum for four weeks now. So she didn’t start pablum until she was six months old.
Nora left after about half an hour. Marla came at one forty. Edward came with Monique but they didn’t stay very long. Andrea was at home with company. She’s due in the middle of the month.
Marla said it really threw her when James phoned. She had their stuff in the dryer so they had to wear something else.
The kids were pretty noisy at one point they scared Samantha. She started to cry, they had just gotten too noisy.
The hostess took them to the kitchen after they had their lunch. She also played a game with them.
We left at two thirty. Brent with Marla. Marla said thanks a lot Charlie, I’ll get you for that! She told me later Brent told her how poor they were that they had no money. I found he really got on my nerves. He would run all over the caboose. I would tell him to stop and he would say he wasn’t doing anything.
They sat down at the table when we got home. Brent knocked over his drink before I could get the cake to the table. Some of the kids actually had two pieces of cake. Miriam claimed kids don’t eat bought cake that it’s a waste. They almost ate all of the cake.
Alex opened his presents. He opened ours first which he seemed to really like; the Turtle Sewer. Then Samantha’s wacky wind up Raphael and Beebop. Grandma and Grandpa gave him Turtle sheets, jeans and a shirt. Patrick gave him the Turtle plunger, Carter gave him dinosaur stencils and markers, Brent gave him money, Rick gave him ring raiders, Lannie and Paxton gave him Turtle sticker book and wonder women, Kurt gave him Superman and Wacky wind up Raphael, Monique gave him a song book and cassette.
Then I took them downstairs to watch The Land Before Time. Most of them complained they had seen it. Brent complained the most, he said he had seen it five million times. I didn’t want to put on the Turtle tape. I thought everyone would like it. Oh well you can’t please everyone.
Alex wouldn’t go downstairs, I told him everyone was waiting and to go downstairs. Alex started to cry, I took him aside and told him to stop it. He said he wanted to open the sewer. I said no some of the pieces might get lost. He could open something else. It took quite awhile but he finally decided on something.
It ended up that Lannie and Paxton were the only one s watching the movie. I guess it wasn’t the best party but unfortunately I didn’t have the energy to make it better. I was looking after Samantha and feeding her.
Marla and I had a good time talking. People came to get their kids at four thirty or four forty five. Marla left as well.
Shirley didn’t come until five o’clock. I had started to clean up. She didn’t make any move to leave so we asked her to stay for dinner.
They left at seven o’clock.
I washed Alex’s turtle sheets, so he could have them on his bed tonight.
Alex went to bed at nine o’clock and was really bad. He said to me his party was really stupid. I said what? Alex cried and cried. He said he really wanted Rat King. I said it wasn’t in the store so how were people going to buy it? I was really annoyed he would say such a thing. Alex said he was sorry but I was still mad. I went to a lot of work and look at the thanks I get!
I went to bed at eleven o’clock after I had cleaned up.
No tests
Medication
Mercaptopurine ------- ----- 9:00 p.m.
I washed Alex’s comforter, laundry, and bath mats. I tided up the house and finished setting up the table with Alex’s help.
At noon I phoned Morgan. She said she was going to bring Patrick over at one o’clock. I said we have to be at the caboose at one o’clock so could you bring Patrick to our house at twelve forty and pick him up at four thirty? She said okay.
Then we got ready. I put Sam in her purple dress which looked really cute, she even has socks to match. Alex said Samantha you look so cute.
Patrick arrived at that time, Tony had brought him over. We went to the cars, we both took our cars so we could take the kids back to our house.
Alex and Patrick talked about Turtles all the way there. They were pretty excited to say the least.
The caboose was empty when we got there so we were able to go in right away. The hostess’ name is Samantha, I thought that was pretty funny.
All the kids were on time except for Lannie and Paxton. I phoned Marla to ask where she was. She said James had just phoned her to tell her it was daylight savings time. She said she would be there as soon as possible.
Nora stayed for a little while. I asked her about Liana. She said she lives on Lost Lake Drive. So she’s look after Dr. F’s receptionists’ baby. She said she isn’t much bigger than Samantha and weighs 15 pounds. Liana is 3 pounds heavier and six weeks older than Sam. Liana is eating solids, has been eating Pablum for four weeks now. So she didn’t start pablum until she was six months old.
Nora left after about half an hour. Marla came at one forty. Edward came with Monique but they didn’t stay very long. Andrea was at home with company. She’s due in the middle of the month.
Marla said it really threw her when James phoned. She had their stuff in the dryer so they had to wear something else.
The kids were pretty noisy at one point they scared Samantha. She started to cry, they had just gotten too noisy.
The hostess took them to the kitchen after they had their lunch. She also played a game with them.
We left at two thirty. Brent with Marla. Marla said thanks a lot Charlie, I’ll get you for that! She told me later Brent told her how poor they were that they had no money. I found he really got on my nerves. He would run all over the caboose. I would tell him to stop and he would say he wasn’t doing anything.
They sat down at the table when we got home. Brent knocked over his drink before I could get the cake to the table. Some of the kids actually had two pieces of cake. Miriam claimed kids don’t eat bought cake that it’s a waste. They almost ate all of the cake.
Alex opened his presents. He opened ours first which he seemed to really like; the Turtle Sewer. Then Samantha’s wacky wind up Raphael and Beebop. Grandma and Grandpa gave him Turtle sheets, jeans and a shirt. Patrick gave him the Turtle plunger, Carter gave him dinosaur stencils and markers, Brent gave him money, Rick gave him ring raiders, Lannie and Paxton gave him Turtle sticker book and wonder women, Kurt gave him Superman and Wacky wind up Raphael, Monique gave him a song book and cassette.
Then I took them downstairs to watch The Land Before Time. Most of them complained they had seen it. Brent complained the most, he said he had seen it five million times. I didn’t want to put on the Turtle tape. I thought everyone would like it. Oh well you can’t please everyone.
Alex wouldn’t go downstairs, I told him everyone was waiting and to go downstairs. Alex started to cry, I took him aside and told him to stop it. He said he wanted to open the sewer. I said no some of the pieces might get lost. He could open something else. It took quite awhile but he finally decided on something.
It ended up that Lannie and Paxton were the only one s watching the movie. I guess it wasn’t the best party but unfortunately I didn’t have the energy to make it better. I was looking after Samantha and feeding her.
Marla and I had a good time talking. People came to get their kids at four thirty or four forty five. Marla left as well.
Shirley didn’t come until five o’clock. I had started to clean up. She didn’t make any move to leave so we asked her to stay for dinner.
They left at seven o’clock.
I washed Alex’s turtle sheets, so he could have them on his bed tonight.
Alex went to bed at nine o’clock and was really bad. He said to me his party was really stupid. I said what? Alex cried and cried. He said he really wanted Rat King. I said it wasn’t in the store so how were people going to buy it? I was really annoyed he would say such a thing. Alex said he was sorry but I was still mad. I went to a lot of work and look at the thanks I get!
I went to bed at eleven o’clock after I had cleaned up.
No tests
Medication
Mercaptopurine ------- ----- 9:00 p.m.
Diagnosis: Leukemia; March 31, 1990
Samantha woke up at six thirty this morning. A bit too early for me. She stayed up until her next feeding which was at nine thirty.
When I put her down for a nap I vacuumed the house and washed the floors. I had washed the bathtub yesterday.
Charlie had to work today so I had to get everything ready for tomorrow.
I was able to have a shower since Samantha was asleep. Sam slept until two o’clock which was really long.
After Sam’s feeding we went to pick up Alex’s cake. The lady helped me take the cake to the car. I had Samantha in the snugly but it was still pretty hard. They did a good job on the cake.
We came home, Samantha stayed up until her next feeding which was four o’clock.
Charlie came home at four o’clock. We started to cook dinner at four thirty.
Alex had fallen asleep while watching TV, he must have been really tired.
Samantha woke up before seven o’clock. She probably would have slept longer but Alex made so much noise in his room he woke her up. Sam is a light sleeper, the slightest sound and she’s awake.
Samantha went to sleep again at nine after she had been fed. Alex went to bed not long after. He told me he was going to bed which was a surprise.
I went to bed around eleven o’clock.
No Tests
Medication
Mercaptopurine -------- ------- 8:00 p.m.
When I put her down for a nap I vacuumed the house and washed the floors. I had washed the bathtub yesterday.
Charlie had to work today so I had to get everything ready for tomorrow.
I was able to have a shower since Samantha was asleep. Sam slept until two o’clock which was really long.
After Sam’s feeding we went to pick up Alex’s cake. The lady helped me take the cake to the car. I had Samantha in the snugly but it was still pretty hard. They did a good job on the cake.
We came home, Samantha stayed up until her next feeding which was four o’clock.
Charlie came home at four o’clock. We started to cook dinner at four thirty.
Alex had fallen asleep while watching TV, he must have been really tired.
Samantha woke up before seven o’clock. She probably would have slept longer but Alex made so much noise in his room he woke her up. Sam is a light sleeper, the slightest sound and she’s awake.
Samantha went to sleep again at nine after she had been fed. Alex went to bed not long after. He told me he was going to bed which was a surprise.
I went to bed around eleven o’clock.
No Tests
Medication
Mercaptopurine -------- ------- 8:00 p.m.
Diagnosis: Leukemia; March 30, 1990
Samantha woke up at seven o’clock. She stayed up until the next feeding then she went for her nap.
I dusted the whole house which took at least two hours. No wonder I don’t dust very often.
Alex kept on asking me to play a game with him but I feel I really need to clean up the house for Alex’s party. I feel I’m not spending enough time with him. I’m either cleaning or doing something with Samantha.
I took Alex to school and came home. I fed Sam again, had lunch and watched TV.
This week has been good. I’ve only had to pick Alex up twice this week from school.
Samantha went for a nap at three o’clock. I fed her again before four o’clock.
We picked Alex up from Carter’s then we went to Boston Pizza . We went to the mall afterwards. I wanted to exchanged the Turtle socks I bought Alex but there weren’t any left.
Alex and Charlie played at the racetrack they had at centre court.
I gave Alex a loonie to buy a chocolate from Purdy’s. He sure made a big production. First he couldn’t make up his mind then he cried. I asked for my loonie back he cried no no. Charlie suggested a chocolate bar since Alex wanted something big. Alex went with Charlie and bought chocolate kisses.
We got home at seven thirty in time for Alex to watch Cosby. Alex went to bed between nine and ten o’clock.
I went to bed after Samantha’s feeding and she was asleep in her crib.
No Tests
Medication
Bactrim 10:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
I dusted the whole house which took at least two hours. No wonder I don’t dust very often.
Alex kept on asking me to play a game with him but I feel I really need to clean up the house for Alex’s party. I feel I’m not spending enough time with him. I’m either cleaning or doing something with Samantha.
I took Alex to school and came home. I fed Sam again, had lunch and watched TV.
This week has been good. I’ve only had to pick Alex up twice this week from school.
Samantha went for a nap at three o’clock. I fed her again before four o’clock.
We picked Alex up from Carter’s then we went to Boston Pizza . We went to the mall afterwards. I wanted to exchanged the Turtle socks I bought Alex but there weren’t any left.
Alex and Charlie played at the racetrack they had at centre court.
I gave Alex a loonie to buy a chocolate from Purdy’s. He sure made a big production. First he couldn’t make up his mind then he cried. I asked for my loonie back he cried no no. Charlie suggested a chocolate bar since Alex wanted something big. Alex went with Charlie and bought chocolate kisses.
We got home at seven thirty in time for Alex to watch Cosby. Alex went to bed between nine and ten o’clock.
I went to bed after Samantha’s feeding and she was asleep in her crib.
No Tests
Medication
Bactrim 10:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------ 9:00 p.m.
Diagnosis: Leukemia; March 29, 1990
Samantha woke up at seven o’clock. She seems to be feeling better but she still has her cold.
Samantha stayed up for the next feeding where she fell asleep while I was feeding her.
I cleaned all the bathrooms except for the bath tub. By that time it was time to take Alex to school. I went to the bank before we came home.
I fed Samantha, had my lunch and watch TV. Sam didn’t have a nap until after we got Alex from school.
Miriam asked if Alex could come over tomorrow. I was rather surprised since she told me before she didn’t have kids over on Fridays. I said sure that would be okay.
When we got home I put Samantha in her crib for a nap. Then I did some work around the house. It sure takes a lot of work and energy to get the house ready for Alex’s party.
Charlie came home at four o’clock. We ate dinner at five o’clock. Alex had been playing outside with his friends and was really annoyed he had to come in. Too bad Alex!
After dinner I fed Samantha and we went to the mall. Mom and Dad gave me money for my birthday. I bought two pillow shams, which I had wanted for quite awhile. They’re so expensive it’s not something you can just go out and buy.
When we got home I fed Samantha again before I put her to bed.
I went to bed at eleven o’clock
No Tests
Medication
Mercaptopurine ------- ----- 8:00 p.m.
Samantha stayed up for the next feeding where she fell asleep while I was feeding her.
I cleaned all the bathrooms except for the bath tub. By that time it was time to take Alex to school. I went to the bank before we came home.
I fed Samantha, had my lunch and watch TV. Sam didn’t have a nap until after we got Alex from school.
Miriam asked if Alex could come over tomorrow. I was rather surprised since she told me before she didn’t have kids over on Fridays. I said sure that would be okay.
When we got home I put Samantha in her crib for a nap. Then I did some work around the house. It sure takes a lot of work and energy to get the house ready for Alex’s party.
Charlie came home at four o’clock. We ate dinner at five o’clock. Alex had been playing outside with his friends and was really annoyed he had to come in. Too bad Alex!
After dinner I fed Samantha and we went to the mall. Mom and Dad gave me money for my birthday. I bought two pillow shams, which I had wanted for quite awhile. They’re so expensive it’s not something you can just go out and buy.
When we got home I fed Samantha again before I put her to bed.
I went to bed at eleven o’clock
No Tests
Medication
Mercaptopurine ------- ----- 8:00 p.m.
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