Samantha woke up at eight o’clock. After I fed her I had breakfast. Alex didn’t wake up until ten o’clock and that was because Charlie started his car and didn’t drive away right away. Otherwise I think he might have slept longer. Anyways he needed to get up since they are going to the hospital this afternoon.
I changed the sheets, did laundry, tided up the house and played a game of Othello with Alex. Charlie explained how to play the game. I had tied the computer before but I guess I was just lucky.
Charlie told Alex it was time to go and Alex started to cry. We were still playing the game. I said come on we’ll finish the game and then you can go. Alex said this morning he wasn’t feeling well so maybe that has something to do with it. Alex sure is emotional some days.
Samantha woke up at one o’clock. I gave her cereal first. She seems to like it a little bit better. Sam still spits some of the cereal out but at least not what I put in her mouth. It’s more watery what she spits out.
Samantha ate again at four o’clock. It sure was a long afternoon, Samantha wouldn’t go for a nap.
Charlie and Alex came home at four thirty. I was peeling potatoes to put around the roast. Charlie said what a day I’m exhausted. Then he poured Alex a drink and put it back into the cupboard. I didn’t realize it and Alex said to give him the cup. I ended up getting orange juice all over myself. Was I ever mad, he doesn’t seem to realize I don’t have an easy time either. I threw down the potato I was peeling and it landed in the hall. I said what were you doing, how stupid can you be? Charlie said you can see what kind of a day I’ve had. I had to change no doubt.
Anyways at the hospital they had quite a time with Alex. When Alex had his LP a nurse held onto him but she called another nurse Joanne and she had to call Mary to help. I asked Alex what happened. He said he was sitting up and they told him to lie down. He also told them he didn’t want to but they wouldn’t listen. He was really upset about what happened. He looked like he could cry. I said it’s more painful on your back isn’t it? Alex just nodded yes. I told Alex I was going to ask Pa what happened. Charlie said Alex was sitting up and the doctor put the wash on and Alex started to complain. So they had to put him on his stomach. Charlie said he’s never seen Alex so bad. I always found he reacted quite badly to the wash but if I talked to him he would calm down. This conversation actually took place on the 16th.
Alex asked me what Pa said so I told him. Alex said it really hurts. Alex said on the way home Pa told me the boy beside me passed away and I’m lucky to be alive. He was looking at me, so I knew he wanted an answer. I said yes, I knew that but he had a different type of cancer. When he came to the hospital he was in stage 4 which is the last stage. It’s better to treat in stage 1. His parents were told treatment might not work but they decided to go ahead with it. I think Alex understood some of it. Alex seemed quite upset about this prospect and said it’s not nice to die. I said no it’s not, we like to grow up, get married, have children, take our kids to the park and to Turtle movies. At least Alex smiled at that.
I sure didn’t agree with Charlie telling Alex that. Alex has enough emotional problems.
It was pretty quiet while I cooked dinner they both stayed away from me! Charlie because of the orange juice and Alex because he told me Lanie’s orange juice tastes better than ours. I’ve really had it about this persons food tasting better than ours. I try to do my best for Alex and that’s all I can do.
After dinner I fed Samantha she went back for a nap at eight o’clock.
Alex went to bed at eight thirty. I went to bed at eight thirty. I went to bed after feeding Samantha at eight thirty.
Tests
WBC 2.8
HGB 13.1
Platelets 281
ANC 2156
Medication
Erythromid 10:00 a.m. 5:00 p.m. 8:00 p.m.
Bactrim 9:00 a.m. -------- 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Prednisone ------- ------- 8:30 p.m.
Methotrexiate *given at hospital*
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