I woke up after eight o’clock and as soon as I got out of bed Alex got up as well. I got Alex his breakfast and gave him his medicine. He wanted to get dressed right away. Then I had a shower and got dressed.
We left the house for the hospital at 9:20 a.m. We got to the hospital at ten o’clock. Alex had his blood test at 10:30 a.m.
Janice came and talked with us. I told her that they don’t give us enough information about what we should be doing. I also told her that I had kept Alex quiet the whole week and I was hoping that it would help Alex’s blood to come up. She said I should talk to the doctor about it. She made no comment about the lack of information, it seems like Janice doesn’t want to get involved.
I asked a nurse if Alex’s blood count had come back yet. The nurse said yes and gave me the computer sheet. She also said they were going ahead with the LP and Alex would start maintenance. Boy that sure was a relief off my mind.
Charlie went to get Alex his lunch, he wasn’t gone any time when Lorraine said they were ready to do Alex’s LP. This place really amazes me they don’t even warn you when they’ll be doing anything. I knew Alex would be having an LP if his blood count was up but I expected the doctor to come and tell us that it was okay to go ahead. I then had to go and look for Charlie, Alex won’t go into the treatment room without both of us. Charlie was just on his way back. We took Alex into the treatment room and Dr S told us Alex’s blood count was okay to go ahead. I told Dr S what I had done last week with keeping Alex quiet and I was wondering if that was why Alex’s ANC had come up so much. She said oh no it has nothing to do with it. When the bone marrow decides to repair itself it does and nothing you do will make any difference. The way she talked it was like you must be kidding what a weird idea.
I still think keeping Alex quiet really helped his blood to come up like it did.
Alex had an LP, he seems to be getting worse during the LP. He fights now when he has it done. He knows what’s going to happen when he goes into the treatment room.
Dr S said the next time Alex has an LP he’ll have to have medication to calm him down. She said he’s getting strong and is harder to control. I can’t reason with him he just won’t listen.
Alex picked a toy out of the box, the treasure chest, then we got him to lie down for about an hour.
At 1:15 p.m. Lenore gave Alex the Vincristine IV push. The first time she put it in his arm, he screamed that it really hurt. He didn’t stop until she took it out. Lenore said Alex never complained before, so she thought it must be in wrong. Lenore took it out and tried the other arm, but he did the same thing he screamed and screamed. Lenore put 20cc of water in to make sure it was okay then she put the Vincristine in. If it had been in wrong it would of hurt when the Vincristine went in.
After that we left, we went to Mom and Dad’s. They asked us to stay for dinner. Alex fell asleep not long after we got there. I put him in Mom and Dad’s bedroom.
Friends of Mom and Dad’s dropped by, they knew them from Sun Vista RV Resort in Yuma Arizona.
We left at eight o’clock, we had to keep Alex awake until nine o’clock to give him his medicine.
Alex went to bed shortly after nine o’clock.
I went to bed around eleven o’clock.
Tests
WBC 4.1
HGB 12.1
Platelets 474,000
ANC 2050
Medicine
Septra 8:50 a.m. ----- 9:00 p.m.
Mercaptopurine ----- ----- 9:00 p.m.
Prednisone ----- 4:00 p.m. 9:00 p.m.
Temperature 36.40 8:50 a.m. 36.18C 9:00 p.m.
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