I had given Alex his medicine at midnight. The alarm clock went off at 5:45 a.m. I got up and got Alex his medicine and a drink. Alex was really good, he didn’t complain at all, he said he wanted to go to the kitchen to have his medicine so he wouldn’t spill the medicine on the bed. Alex went back to bed
I wasn’t going to go back to bed but I was so tired I did. I woke up at 7:20 p.m. I didn’t have much time. I knew we would be late. I had a shower and got dressed.
I woke Alex up and gave him his medicine, Bactrim. The I got him dressed. Charlie was asleep in Alex’s bed, I asked Charlie if he was coming to the hospital. He said he would come later.
Alex and I left after eight o’clock. We got to the hospital at 8:45 a.m. We didn’t have to wait long. Mary came to tell us she was ready to do Alex’s blood test. Alex didn’t complain at all when he got his finger pricked. When we were waiting for Mary to put the band aid on she put Alex’s blood in a machine. She then keyed in Alex’s code and within a few minutes the machine showed what Alex’s blood was. It was amazing that it comes up so fast. Alex’s blood is up, so he doesn’t need a transfusion today. I sure was glad of that I’m so tired and it’s so much nicer to be at home.
I phoned Charlie, it took me three times before I could get him. I told him we would be home soon. We got home before ten o’clock. Charlie was giving Kelly a flea bath. Hopefully Kelly won’t get anymore fleas.
I went out at ten thirty, I felt I really needed a break. Everything is starting to get to me. Sometimes I feel like I could just scream. I feel totally frustrated. The hospital has such a lousy system. They change the appointment times or dates, don’t tell me what the medicine will do, it’s side effects, even the way they had us change doctors. I found that very irritating. Dr S said one day way back did Dr R tell you he wants me to look after Alex. We said no he didn’t say anything. Then Dr R comes over and then tells us. Surely they can plan things a little better. I like Dr S she’s quite easy to take to but it was very poorly done. Don’t get me wrong I’m extremely grateful for the care Alex is receiving.
Anyways I went to the bank and the mall. I bought a present for Mom from Alex. I bought Alex some colored paper, tissue paper and glue. I thought we could do a picture this afternoon.
I came home before one o’clock. As I came in the door, Alex told me a guy had come and delivered some wood for the bathroom.
I had my lunch, Alex and Charlie had already eaten. Charlie and Alex went for a drive. My car has been smelling, it smells like burnt rubber to me.
I phoned Mom to let her know Alex didn’t need a transfusion. Charlie and Alex came back when I was still on the phone. Charlie said he was going to take my car for an oil change. He came back after two o’clock. They told him something else was wrong with the car. Charlie said he’ll probably take it in tomorrow.
Charlie left for work before three o’clock.
Alex and I made a picture with the new supplies. I cut the tissue paper and he did all the gluing and placement of the paper. Then we went down to the basement and wrote on the chalk board. We brought the board upstairs as it’s too messy and dirty downstairs for Alex to be down there. Once Charlie has finished with the drywall it should be okay.
I started cooking dinner and we had dinner at five o’clock. It seems like around five o’clock to seven o’clock I feel like I could fall asleep. I watched TV while Alex played. He started to fall asleep at six o’clock but I woke him up to have his medicine. After that he was fine, he played until eight o’clock.
I told him to clean up his room and I would read him a story. He told me he couldn’t do it. I said if you get them off the shelves you can put them away. He said I only have two arms!
Alex fooled around for about fifteen minutes. I told him to get into bed since he wasn’t going to clean up his room. Alex fell asleep before eight o’clock. I watched TV until after nine o’clock and cleaned up the house, mostly putting away Alex’s toys. Then I wrote in the journal for about forty five minutes.
It sure is lonely at night, I wished there was someone to talk to, but there’s really no one to talk to about all my troubles. It makes me feel really depressed. Most of my friends are married and I hate to bother them when there husbands are home.
It’s ten o’clock, I’ll wait until midnight when I give Alex his medicine and then go to bed.
Tests
WBC 1.2
HGB 9.9
Platelets 39,000
ANC 696
Medicine
Bactrim 8:00 a.m. ----- 7:00 p.m.
Orbenin 12:00 a.m. 6:00 a.m. 12:00 p.m. 6:00 p.m.
Temperature 36.82C 7:00 p.m.
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