I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed. I did the laundry, changed the sheets and did the dishes.
We went to the hospital at twelve fifteen. It was so crowded at the clinic that we sat out in the hall for half an hour. Alex had his blood test after we had been there for forty five minutes. Krisann weighed and measured Alex, she said she would send his prescription for chemo right away.
We saw Dr. S half an hour later. I told her Alex had been sneezing and Alex said he had a cough as well. She checked Alex’s chest and back and said they were clear.
Just a little while later we went to the pharmacy. We stopped at the gift shop. Alex said he wanted something to eat but he decided on a prize instead. He wanted to get the Ghostbusters doodle art. Alex had already gotten something from the cafeteria earlier.
When we got back to the clinic we waited fifteen minutes until Alex had his chemo. Tina the head nurse gave Alex his I.V. push. She really helped Alex forget about the pain. She made the blood peek out and she would say get back in there blood. Alex said hey Mr. Blood and get back in there. Alex didn’t cry at all, it took his mind right off having his poke. I was really proud of him. I told him he was really good and he didn’t even cry. Alex said no I wasn‘t. He always denies that he was brave or good.
We picked up Alex’s prescription and went home. Alex fell asleep on the way home. When we got home Alex woke up right away. Alex colored while I cooked dinner. After dinner I colored with Alex, we colored until seven thirty. Then Alex got ready for bed.
I watched tv and went to bed at eleven o’clock.
Tests
WBC 5.4
HGB 13.6
Platelets 286
ANC 4212
Medication
Bactrim 10:30 a.m. ----- 5:00 p.m.
Mercaptopurine ----- ----- 5:00 p.m.
Methotrexiate ----- ----- 5:00 p.m.
Prednisone ----- 5:00 p.m. 7:30 p.m.
Wednesday, January 30, 2013
Diagnosis: Leukemia; January 29, 1989
I woke up at ten o’clock. Alex said he wanted Chinese pancakes for breakfast. We asked Charlie to make then but he said he didn’t want to do it. So I ended up making them. Charlie didn’t have any, he went grocery shopping shortly afterwards.
I had a shower and got dressed after we had breakfast. Charlie came back around noon, I put away the groceries.
The house was in a mess so I spent the rest of the afternoon tiding it up and doing the laundry.
Alex phoned Kurt at twelve thirty and invited him over. Nora phoned ten minutes after Kurt got here to asked me if it was okay if she went out with Dirk on an errand. I said sure that was okay. It sure was funny the way she asked!
Kurt stayed until five o’clock when Nora phoned to asked me to send him home. She had phoned at three o’clock to say they were home and to send Kurt home any time. They were enjoying themselves so much I let Kurt stay longer.
We went to Burger King for dinner. Alex decided that he was going to have burger bundles but they don’t have them anymore. Alex said if he couldn’t have burger bundles he didn’t want anything to eat. Charlie ordered him a hamburger and fires with a drink which Alex did eat.
We went to Mom and Dad’s, we brought the movie we had rented. We had a lot of trouble with Alex. He wanted to sit in front of Charlie. We moved him three times before it was okay with Alex. Alex wanted me to color but I didn’t want to. I don’t mind coloring when we’re at home but not when we’re out.
We came home at ten o’clock. Alex was really mad that he had to go to bed. Alex stomped his feet and screamed he was too tired to get ready for bed.
I went to bed shortly after Alex.
No Tests
Medication
Mercaptopurine ------ ----- 10:00 p.m.
Temperature 36.11C 10:00 p.m.
I had a shower and got dressed after we had breakfast. Charlie came back around noon, I put away the groceries.
The house was in a mess so I spent the rest of the afternoon tiding it up and doing the laundry.
Alex phoned Kurt at twelve thirty and invited him over. Nora phoned ten minutes after Kurt got here to asked me if it was okay if she went out with Dirk on an errand. I said sure that was okay. It sure was funny the way she asked!
Kurt stayed until five o’clock when Nora phoned to asked me to send him home. She had phoned at three o’clock to say they were home and to send Kurt home any time. They were enjoying themselves so much I let Kurt stay longer.
We went to Burger King for dinner. Alex decided that he was going to have burger bundles but they don’t have them anymore. Alex said if he couldn’t have burger bundles he didn’t want anything to eat. Charlie ordered him a hamburger and fires with a drink which Alex did eat.
We went to Mom and Dad’s, we brought the movie we had rented. We had a lot of trouble with Alex. He wanted to sit in front of Charlie. We moved him three times before it was okay with Alex. Alex wanted me to color but I didn’t want to. I don’t mind coloring when we’re at home but not when we’re out.
We came home at ten o’clock. Alex was really mad that he had to go to bed. Alex stomped his feet and screamed he was too tired to get ready for bed.
I went to bed shortly after Alex.
No Tests
Medication
Mercaptopurine ------ ----- 10:00 p.m.
Temperature 36.11C 10:00 p.m.
Tuesday, January 29, 2013
Diagnosis: Leukemia; January 28, 1989
Last night when I was getting ready for bed I realized I hadn’t given Alex his medicine. I woke him up which took me quite awhile to do. Alex finally did take his medicine and went right back to sleep.
Alex has been sleeping in his own bed for quite a number of days now which has been wonderful. Maybe that’s why I was so tired from not getting a proper sleep.
I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed. I did the dishes and tided up the house. I worked around the house rest of the afternoon.
We went to a Won Ton House for dinner then we went to Rogers. They just opened a new video store near Lougheed mall. They have two day rentals which are good especially for children movies.
When we got home Alex watched his movie. Then he went to bed at nine o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 4:30 p.m.
Alex has been sleeping in his own bed for quite a number of days now which has been wonderful. Maybe that’s why I was so tired from not getting a proper sleep.
I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed. I did the dishes and tided up the house. I worked around the house rest of the afternoon.
We went to a Won Ton House for dinner then we went to Rogers. They just opened a new video store near Lougheed mall. They have two day rentals which are good especially for children movies.
When we got home Alex watched his movie. Then he went to bed at nine o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 4:30 p.m.
Sunday, January 27, 2013
Diagnosis: Leukemia; January 27, 1989
I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed.
Alex asked me to color with him. He’s using his felt markers. We did that for about half an hour then I tided up the house and did the dishes.
After lunch I did the laundry. We went to McDonald’s for dinner. We didn’t leave until six o’clock. Kurt had come over to play with Alex. After dinner we went to the mall. Alex said he wanted a toy. Since Alex hasn’t been to the mall for awhile I decided to buy him one. Alex decided he wanted Playmobile, a cowboy with a horse. We got home at eight o’clock, I let Alex play with his new toy until nine o’clock. Alex wanted to take his new toy to bed with him.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ----- 11:30 p.m.
Mercaptopurine ----- ----- 11:30 p.m.
Alex asked me to color with him. He’s using his felt markers. We did that for about half an hour then I tided up the house and did the dishes.
After lunch I did the laundry. We went to McDonald’s for dinner. We didn’t leave until six o’clock. Kurt had come over to play with Alex. After dinner we went to the mall. Alex said he wanted a toy. Since Alex hasn’t been to the mall for awhile I decided to buy him one. Alex decided he wanted Playmobile, a cowboy with a horse. We got home at eight o’clock, I let Alex play with his new toy until nine o’clock. Alex wanted to take his new toy to bed with him.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ----- 11:30 p.m.
Mercaptopurine ----- ----- 11:30 p.m.
Saturday, January 26, 2013
Diagnosis: Leukemia; January 26, 1989
I woke up at ten o’clock. After Alex and I had breakfast, I got dressed, cleaned the bathrooms and washed the floors. When I finished I had a shower and got dressed.
After lunch I did the dishes and tided up the house. Alex says he really likes his room since we changed it around. His bed is still on the wall with the light switch, but we took everything off the shelves and took the desk piece off.
Hopefully Alex will be able to sleep in his own bed since we changed his room. Alex was very helpful, he took most of the stuff off the shelves. Then he helped me clean the shelves. Alex also helped me to put everything back.
Mom phoned just after four o’clock to invite us to dinner. She had planned on having the woman who came to talk to them about amputation to stay for dinner, but she couldn’t stay.
When we got there Dad told me what the women had to say. She felt Dad should find other alternatives. She said she felt that because of his problem he should have it amputated. She’s really into herbs and was trying to convince Dad to take them.
We stayed until eight o’clock. When we got home Alex got ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 5:00 p.m.
After lunch I did the dishes and tided up the house. Alex says he really likes his room since we changed it around. His bed is still on the wall with the light switch, but we took everything off the shelves and took the desk piece off.
Hopefully Alex will be able to sleep in his own bed since we changed his room. Alex was very helpful, he took most of the stuff off the shelves. Then he helped me clean the shelves. Alex also helped me to put everything back.
Mom phoned just after four o’clock to invite us to dinner. She had planned on having the woman who came to talk to them about amputation to stay for dinner, but she couldn’t stay.
When we got there Dad told me what the women had to say. She felt Dad should find other alternatives. She said she felt that because of his problem he should have it amputated. She’s really into herbs and was trying to convince Dad to take them.
We stayed until eight o’clock. When we got home Alex got ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 5:00 p.m.
Friday, January 25, 2013
Diagnosis: Leukemia; January 25, 1989
I woke up at nine o’clock. Alex and I had breakfast then I had a shower and got dressed. Then I did the dishes and tided up the house.
After lunch we went to Alex’s class. He was pretty excited about going. I came home and vacuumed the house. Charlie had been out earlier and dropped in at Mom and Dad’s. He was on his way to London Drugs, so he picked up a few things for them.
I picked Alex up from his class at two thirty. Alex said they made pinwheel sandwiches and he ate all of his. He said I know how to make them and I’ll make some for you.
Alex phone Kurt and asked him to come and play. Kurt stayed until five thirty.
I had started to cook dinner at five, so we ate dinner before six o’clock.
After dinner I did the dishes and tided up the house. We then watched tv until it was time for Alex to get ready for bed. He was asleep just after eight o’clock.
I watched tv, wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:50 a.m. ----- 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.72C 5:30 p.m.
After lunch we went to Alex’s class. He was pretty excited about going. I came home and vacuumed the house. Charlie had been out earlier and dropped in at Mom and Dad’s. He was on his way to London Drugs, so he picked up a few things for them.
I picked Alex up from his class at two thirty. Alex said they made pinwheel sandwiches and he ate all of his. He said I know how to make them and I’ll make some for you.
Alex phone Kurt and asked him to come and play. Kurt stayed until five thirty.
I had started to cook dinner at five, so we ate dinner before six o’clock.
After dinner I did the dishes and tided up the house. We then watched tv until it was time for Alex to get ready for bed. He was asleep just after eight o’clock.
I watched tv, wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:50 a.m. ----- 5:30 p.m.
Mercaptopurine ------ ------ 5:30 p.m.
Temperature 36.72C 5:30 p.m.
Diagnosis: Leukemia; January 24, 1989
I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed. I tided up the house and did the dishes.
After lunch we stopped at Mom and Dad’s. Mom asked me to mail a parcel for her and pick up two 6/49 lottery tickets and two scratches.
Then we went to see Dr. C. We had to wait twenty minutes in the waiting room which was really unusual. Then we had to wait another ten minutes in the examining room. When we finally saw Dr. C she said that we had been put out of order so we should have been first but were last. Dr. C examined Alex, she said he seemed to be doing okay.
After seeing the doctor we went to the Post Office to mail Mom’s parcel then we went to Save-On-Foods to buy a few things and the tickets.
Then we went to Mom and Dad’s. I wasn’t planning on staying that long but Mom asked us to stay for dinner. We stayed until seven o’clock. I was so tired I could hardly stay awake. When we got home Alex got ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
After lunch we stopped at Mom and Dad’s. Mom asked me to mail a parcel for her and pick up two 6/49 lottery tickets and two scratches.
Then we went to see Dr. C. We had to wait twenty minutes in the waiting room which was really unusual. Then we had to wait another ten minutes in the examining room. When we finally saw Dr. C she said that we had been put out of order so we should have been first but were last. Dr. C examined Alex, she said he seemed to be doing okay.
After seeing the doctor we went to the Post Office to mail Mom’s parcel then we went to Save-On-Foods to buy a few things and the tickets.
Then we went to Mom and Dad’s. I wasn’t planning on staying that long but Mom asked us to stay for dinner. We stayed until seven o’clock. I was so tired I could hardly stay awake. When we got home Alex got ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 8:00 p.m.
Wednesday, January 23, 2013
Diagnosis: Leukemia; January 23, 1989
I woke up at ten o’clock. I had a shower, got dressed and had breakfast with Alex. I changed the sheets on the beds and did the laundry. We had lunch then we left to go to the hospital at one o’clock.
We got to the hospital half an hour and luckily Mary did Alex’s blood test almost right away. We saw Dr. S half an hour or so later. She said Alex’s blood count was up so she was increasing his medication, Mercaptopurine to ¾ of a pill alternating to 1 pill daily, Methotrexiate to 5 pills weekly, Bactrim and Prednisone stay the same.
We left after three o’clock. We stopped at the mall and Alex picked out a transformer as his prize. We got home at four o’clock.
I talked to mom before we had dinner. She said Dad is having a lot of trouble sleeping at night. His foot was going numb and keeping him awake.
After dinner we watched tv. I find going to the hospital always takes a lot out of me.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
Tests
WBC 4.3
HGB 13.8
Platelets 310
ANC 3096
Medication
Bactrim 10:30 a.m. ----- 6:00 p.m.
Mercaptopurine ------ ----- 6:00 p.m.
Methotrexiate ------ ------ 6:00 p.m.
Temperature 36.0C 6:00 p.m.
We got to the hospital half an hour and luckily Mary did Alex’s blood test almost right away. We saw Dr. S half an hour or so later. She said Alex’s blood count was up so she was increasing his medication, Mercaptopurine to ¾ of a pill alternating to 1 pill daily, Methotrexiate to 5 pills weekly, Bactrim and Prednisone stay the same.
We left after three o’clock. We stopped at the mall and Alex picked out a transformer as his prize. We got home at four o’clock.
I talked to mom before we had dinner. She said Dad is having a lot of trouble sleeping at night. His foot was going numb and keeping him awake.
After dinner we watched tv. I find going to the hospital always takes a lot out of me.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
Tests
WBC 4.3
HGB 13.8
Platelets 310
ANC 3096
Medication
Bactrim 10:30 a.m. ----- 6:00 p.m.
Mercaptopurine ------ ----- 6:00 p.m.
Methotrexiate ------ ------ 6:00 p.m.
Temperature 36.0C 6:00 p.m.
Tuesday, January 22, 2013
Diagnosis: Leukemia; January 22, 1989
I woke up at nine o’clock. I had a terrible headache as soon as I woke up. Charlie had put the heat on when he got up which was a few hours before and that’ll do it for me.
It had snowed last night again, it sure has snowed a lot this year, or I should say this winter. Mom was going to get Dad this morning, he’s being discharged today. I had told Mom is she didn’t want to drive one of us would take her. We didn’t hear from Mom until later.
I had a shower, got dressed and then Alex and I had breakfast. Charlie went grocery shopping around ten o’clock.
Mom phoned before eleven o’clock the first thing she said was what happened to you last night. I said we went to the Auto show last night. Mom said I thought you were going to bring Alex down here while you went to the Auto show. I said no I told you it was okay we would bring Alex with us.
Then Mom said she got Dad. She wasn’t too sure how they were going to manage. Mom said they went to Pharmasave to get Dad’s prescription for pain killers but they weren’t open yet. I said I could get the prescription filled if they wanted. I said I would be down shortly.
When Charlie got back form grocery shopping. I went to Mom and Dad’s then I went to Save-On-Foods where I got the prescription.
I went back to Mom and Dad’s, I stayed awhile. Dad said he was feeling okay, he wasn’t in any pain. He explained to us why he hadn’t gone through with the amputation. As far as I was concerned there wasn’t any need for it. It’s a terrible decision to make and if he has to take more time to decide that’s okay. Dad said he could have told the doctor to go ahead with the amputation but he just couldn’t do it.
I came home at two or three o’clock. Patrick had come over before I left earlier. I had asked him if he had been sick lately. Patrick said a long time ago. I said ask your Mom and come back. Patrick did come back, he said his mom wasn’t home but his dad was and that he had been sick a long time ago. I said okay you can come and play.
I tided up the house then it was time to cook dinner. After dinner I did the dishes and we went down to Mom and Dad’s. I thought Charlie acted a bit odd towards Dad. The thought of the amputation has affected him more so it seems.
Alex wasn’t good at all. I had to tell him to stay away from Dad. I had visions of him tripping and landing on Dad’s foot. He has enough problems as it is. Alex kept asking me to do things. He did a lot of complaining.
We came home at nine o’clock. Alex was really mad when I told him to get ready for bed. I went to bed shortly after Alex.
No Tests
Medication
Mercaptopurine ------ ----- 11:00 p.m.
Temperature 36.38C 11:00 p.m.
It had snowed last night again, it sure has snowed a lot this year, or I should say this winter. Mom was going to get Dad this morning, he’s being discharged today. I had told Mom is she didn’t want to drive one of us would take her. We didn’t hear from Mom until later.
I had a shower, got dressed and then Alex and I had breakfast. Charlie went grocery shopping around ten o’clock.
Mom phoned before eleven o’clock the first thing she said was what happened to you last night. I said we went to the Auto show last night. Mom said I thought you were going to bring Alex down here while you went to the Auto show. I said no I told you it was okay we would bring Alex with us.
Then Mom said she got Dad. She wasn’t too sure how they were going to manage. Mom said they went to Pharmasave to get Dad’s prescription for pain killers but they weren’t open yet. I said I could get the prescription filled if they wanted. I said I would be down shortly.
When Charlie got back form grocery shopping. I went to Mom and Dad’s then I went to Save-On-Foods where I got the prescription.
I went back to Mom and Dad’s, I stayed awhile. Dad said he was feeling okay, he wasn’t in any pain. He explained to us why he hadn’t gone through with the amputation. As far as I was concerned there wasn’t any need for it. It’s a terrible decision to make and if he has to take more time to decide that’s okay. Dad said he could have told the doctor to go ahead with the amputation but he just couldn’t do it.
I came home at two or three o’clock. Patrick had come over before I left earlier. I had asked him if he had been sick lately. Patrick said a long time ago. I said ask your Mom and come back. Patrick did come back, he said his mom wasn’t home but his dad was and that he had been sick a long time ago. I said okay you can come and play.
I tided up the house then it was time to cook dinner. After dinner I did the dishes and we went down to Mom and Dad’s. I thought Charlie acted a bit odd towards Dad. The thought of the amputation has affected him more so it seems.
Alex wasn’t good at all. I had to tell him to stay away from Dad. I had visions of him tripping and landing on Dad’s foot. He has enough problems as it is. Alex kept asking me to do things. He did a lot of complaining.
We came home at nine o’clock. Alex was really mad when I told him to get ready for bed. I went to bed shortly after Alex.
No Tests
Medication
Mercaptopurine ------ ----- 11:00 p.m.
Temperature 36.38C 11:00 p.m.
Monday, January 21, 2013
Diagnosis: Leukemia; January 21, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast. Alex was watching tv when I left to pick up Mom. We got to the hospital at eleven o’clock.
Dad was in a good mood. His leg is still bothering him but then the lower part of his leg isn’t getting enough blood.
Joan came around noon. Shortly afterwards Dad asked Mom to take us to the cafeteria to buy us lunch. It was a good idea as it helped Mom to explain to Joan exactly what Dad was faced with.
Mom and I stayed until three o’clock. Joan was still there when we left. I wondered how Paul made out with the kids. Joan said she hadn’t been on her own for 19 months.
I told Mom when we got home Charlie wants to go to the Auto show. Mom said send Alex down and I’ll look after him while you’re there. I said no that’s okay we’ll bring him with us.
When I got home Charlie wanted to leave right away but I wanted to have a rest before we left.
We went to Shaghai for dinner then we went to the car show. We saw Jolene and her friend Marc. I don’t think Marc wanted to have too much to do with us. He didn’t talk to us at all. They left after a few minutes. Charlie said he saw Marc pull Jolene away.
Alex really enjoyed the car show he went into almost every car. We were able to get some more posters for his room.
We got home at ten o’clock. Alex got ready for bed even though he didn’t want to go to bed. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 a.m.
Dad was in a good mood. His leg is still bothering him but then the lower part of his leg isn’t getting enough blood.
Joan came around noon. Shortly afterwards Dad asked Mom to take us to the cafeteria to buy us lunch. It was a good idea as it helped Mom to explain to Joan exactly what Dad was faced with.
Mom and I stayed until three o’clock. Joan was still there when we left. I wondered how Paul made out with the kids. Joan said she hadn’t been on her own for 19 months.
I told Mom when we got home Charlie wants to go to the Auto show. Mom said send Alex down and I’ll look after him while you’re there. I said no that’s okay we’ll bring him with us.
When I got home Charlie wanted to leave right away but I wanted to have a rest before we left.
We went to Shaghai for dinner then we went to the car show. We saw Jolene and her friend Marc. I don’t think Marc wanted to have too much to do with us. He didn’t talk to us at all. They left after a few minutes. Charlie said he saw Marc pull Jolene away.
Alex really enjoyed the car show he went into almost every car. We were able to get some more posters for his room.
We got home at ten o’clock. Alex got ready for bed even though he didn’t want to go to bed. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 9:00 a.m.
Sunday, January 20, 2013
Diagnosis: Leukemia; January 20, 1989
I woke up at ten o’clock. I sure feel tired. Of course it doesn’t help that Alex sleeps in our bed practically every night. Last night Alex came to our room at four o’clock. I brought him back to his room. Alex stamped his feet and slammed the door. There was no way he was going to sleep in his room. I said there is no way I’m sleeping in our room with you and Pa, I’ll sleep in your bed and you can sleep with Pa. Alex said okay and went to sleep with Pa. I thought Alex would say no, the little sneak.
We had breakfast then I had a shower and got dressed. I phoned Mom to tell her I wasn’t going to the hospital. I was too tired and I thought they needed the time together.
I tided up the house and did the dishes. Charlie had gone shopping but he came back around noon.
I was so tired I went for a nap at one o’clock. I woke up around the time Charlie left for work. Alex was watching his tape.
I phoned Dad at the hospital to see how he was. He said he was feeling okay. His leg still is hurting and is having trouble sleeping at night.
Mom phoned shortly afterwards to tell me she was home. I told her we were going to McDonald’s and did she want anything. Mom said she didn’t.
We went to McDonald’s at five o’clock. There was hardly anyone there, it sure was unusual. After Alex had played in the playroom, we went to see Mom.
Mom said when she got home from the hospital she felt she needed to do something for Dad. She decided to call the amputee association. She talked to a women who said they would send someone to talk to Dad.
We came home at eight o’clock. Alex was tired and complaining as usual. Alex went to bed at nine o’clock. I watched tv and went to bed at eleven o’clock.
No tests
Medication
Bactrim 10:00 a.m. ------- 4:30 p.m.
Mercaptopurine 10:00 a.m. ------- ------
We had breakfast then I had a shower and got dressed. I phoned Mom to tell her I wasn’t going to the hospital. I was too tired and I thought they needed the time together.
I tided up the house and did the dishes. Charlie had gone shopping but he came back around noon.
I was so tired I went for a nap at one o’clock. I woke up around the time Charlie left for work. Alex was watching his tape.
I phoned Dad at the hospital to see how he was. He said he was feeling okay. His leg still is hurting and is having trouble sleeping at night.
Mom phoned shortly afterwards to tell me she was home. I told her we were going to McDonald’s and did she want anything. Mom said she didn’t.
We went to McDonald’s at five o’clock. There was hardly anyone there, it sure was unusual. After Alex had played in the playroom, we went to see Mom.
Mom said when she got home from the hospital she felt she needed to do something for Dad. She decided to call the amputee association. She talked to a women who said they would send someone to talk to Dad.
We came home at eight o’clock. Alex was tired and complaining as usual. Alex went to bed at nine o’clock. I watched tv and went to bed at eleven o’clock.
No tests
Medication
Bactrim 10:00 a.m. ------- 4:30 p.m.
Mercaptopurine 10:00 a.m. ------- ------
Saturday, January 19, 2013
Diagnosis: Leukemia; January 19, 1989
I woke up at eight thirty. I had a shower and while I was in there, Alex was knocking on the door. He seems to have to know where I am or do everything with me. For the last week Alex has been sleeping in our bed. He usually comes into our bed after two o’clock. I’m usually too tired to argue with him.
After my shower I got dressed and made our breakfast. I got ready to pick Mom up and go to the hospital. We left at ten o’clock and stopped at Pharmasave.
Dad seemed to be feeling pretty good with the exception that he still has pain in his foot.
While we were there, Dr. F came to talk to Dad and Mom. Dr. F explained that Dad was scheduled to have surgery today. They were going to see what shape the lower arteries were in. They haven’t been able to find a pulse as yet. Dr. F said they would try and graph the artery but if it was plugged up with gristle they wouldn’t be able to. Dr. F said to Dad since you don’t want it amputated if it’s unsuccessful then we will just leave it and you’ll go home once it has started to heal. That’s another problem, his leg might have trouble healing. I asked Dr. F what happens to the arteries when they’re plugged. He said they probably would wither away. Dr. F told Dad he would be very limited, he would only be able to walk to the bathroom. He would be in a lot of pain and he would have to come back into the hospital to have it amputated when he had made up his mind. Dad said he understood that but he still didn’t want to go through with the amputation just yet. Dr. F sad he could understand that, it’s very hard to make the decision.
Dad insisted that we go down to the cafeterias for lunch. Mom didn’t really want to go but Dad kept on about it. He asked me but I said if Mom wanted to go that I would go too. After much insisting from Dad we went to the cafeteria. Mom said she didn’t want to but she had a sandwich anyways. I had a sandwich as well. I find it’s too long by the time we get home.
The nurse came in at one thirty, she said he had to get ready for surgery, they would be coming soon. We stayed as long as we could but at two fifteen Mom said we had better get going. We didn’t get home until after three o’clock. Charlie was annoyed because he said he would be late for work. There was nothing I could do. I stayed that long because I thought Mom wanted to stay as long as possible.
Mom phoned at four thirty, she said the doctor had phone and the surgery was unsuccessful. Mom was very upset and started to cry on the phone. I told her if she needed me to come down I would. She said right now she’s in shock, she thanked me anyways.
We ate dinner at five thirty. It was hard to do anything when I received such bad news. I explained to Alex what was happening to Grandpa. He understand what would happen. Alex said that was terrible.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine 9:00 a.m. ------ -----
Temperature 36.33C 7:30 p.m.
After my shower I got dressed and made our breakfast. I got ready to pick Mom up and go to the hospital. We left at ten o’clock and stopped at Pharmasave.
Dad seemed to be feeling pretty good with the exception that he still has pain in his foot.
While we were there, Dr. F came to talk to Dad and Mom. Dr. F explained that Dad was scheduled to have surgery today. They were going to see what shape the lower arteries were in. They haven’t been able to find a pulse as yet. Dr. F said they would try and graph the artery but if it was plugged up with gristle they wouldn’t be able to. Dr. F said to Dad since you don’t want it amputated if it’s unsuccessful then we will just leave it and you’ll go home once it has started to heal. That’s another problem, his leg might have trouble healing. I asked Dr. F what happens to the arteries when they’re plugged. He said they probably would wither away. Dr. F told Dad he would be very limited, he would only be able to walk to the bathroom. He would be in a lot of pain and he would have to come back into the hospital to have it amputated when he had made up his mind. Dad said he understood that but he still didn’t want to go through with the amputation just yet. Dr. F sad he could understand that, it’s very hard to make the decision.
Dad insisted that we go down to the cafeterias for lunch. Mom didn’t really want to go but Dad kept on about it. He asked me but I said if Mom wanted to go that I would go too. After much insisting from Dad we went to the cafeteria. Mom said she didn’t want to but she had a sandwich anyways. I had a sandwich as well. I find it’s too long by the time we get home.
The nurse came in at one thirty, she said he had to get ready for surgery, they would be coming soon. We stayed as long as we could but at two fifteen Mom said we had better get going. We didn’t get home until after three o’clock. Charlie was annoyed because he said he would be late for work. There was nothing I could do. I stayed that long because I thought Mom wanted to stay as long as possible.
Mom phoned at four thirty, she said the doctor had phone and the surgery was unsuccessful. Mom was very upset and started to cry on the phone. I told her if she needed me to come down I would. She said right now she’s in shock, she thanked me anyways.
We ate dinner at five thirty. It was hard to do anything when I received such bad news. I explained to Alex what was happening to Grandpa. He understand what would happen. Alex said that was terrible.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine 9:00 a.m. ------ -----
Temperature 36.33C 7:30 p.m.
Friday, January 18, 2013
Diagnosis: Leukemia; January 18, 1989
I woke up at nine o’clock. I made breakfast for Alex then I started to do my housework. The house was in a mess and with Marla and the kids coming for lunch I had my work cut out for me. I didn’t have breakfast and started right away.
I talked to Mom this morning to tell her I wouldn’t be going to the hospital today. She said that was okay and was going up herself shortly.
I vacuumed the house, tided up the house, made our beds, and cleaned the bathrooms.
Marla phoned at eleven o’clock, she asked if we were still getting together for lunch today. I said yes Alex is looking forward to it. Marla said you’re sure? I said yes. She said we’ll be over in half an hour.
I started to make our lunch, I made egg sandwiches. I also tided up the basement before they came. They arrived bored I had finished.
Paxton sure had changed he looked like he had grown but Marla said he hadn’t. Paxton has a lot more hair and he’s put on more weight. He doesn’t look so babyish anymore.
Alex and Lanie played for awhile before lunch. Lanie said she wanted a cheese sandwich for lunch. I also made Paxton a cream cheese sandwich.
The kids played really well together. Paxton seems to play a lot better now. He doesn’t need Marla to keep him busy.
They left at three o’clock. I did the dishes while Alex played.
Mom phoned at four o’clock. She said Dad was about the same. Dad had the anagram this morning it showed the arteries in the lower part of his leg but they couldn’t tell what shape it’s in. They’ll have to operate tomorrow.
We had dinner at five o’clock. After dinner we played video games. Then we watched tv, I was sure tired it was all I could do to stay awake.
Alex went to bed at eight o’clock. I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
I talked to Mom this morning to tell her I wouldn’t be going to the hospital today. She said that was okay and was going up herself shortly.
I vacuumed the house, tided up the house, made our beds, and cleaned the bathrooms.
Marla phoned at eleven o’clock, she asked if we were still getting together for lunch today. I said yes Alex is looking forward to it. Marla said you’re sure? I said yes. She said we’ll be over in half an hour.
I started to make our lunch, I made egg sandwiches. I also tided up the basement before they came. They arrived bored I had finished.
Paxton sure had changed he looked like he had grown but Marla said he hadn’t. Paxton has a lot more hair and he’s put on more weight. He doesn’t look so babyish anymore.
Alex and Lanie played for awhile before lunch. Lanie said she wanted a cheese sandwich for lunch. I also made Paxton a cream cheese sandwich.
The kids played really well together. Paxton seems to play a lot better now. He doesn’t need Marla to keep him busy.
They left at three o’clock. I did the dishes while Alex played.
Mom phoned at four o’clock. She said Dad was about the same. Dad had the anagram this morning it showed the arteries in the lower part of his leg but they couldn’t tell what shape it’s in. They’ll have to operate tomorrow.
We had dinner at five o’clock. After dinner we played video games. Then we watched tv, I was sure tired it was all I could do to stay awake.
Alex went to bed at eight o’clock. I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ------ 5:00 p.m.
Mercaptopurine ------ ------ 5:00 p.m.
Thursday, January 17, 2013
Diagnosis: Leukemia; January 17, 1989
I woke up at eight thirty. After I had breakfast I phoned Mom to tell her I was going up to the hospital at the same time and I would be coming home at the same time. Mom said she thought Dad might need her longer than that. I said I would find someone to look after Alex so we could stay longer. Mom said that would be good. She seems to need the added support that I can giver her.
I got ready to go but first I phoned Marla to ask her if she would be able to look after Alex. Marla said she was taking Lanie to her skating lesson at two o’clock but she could take Alex with them. I said as long as you don’t mind and it’s not too much trouble. Marla said it was no trouble she would pick Alex up at one thirty.
I told Charlie that Marla would pick Alex up at one thirty. That they would be going to the ice rink and that Alex had to wear his snow suit. I explained to Alex why he had to go with Marla. Alex said that was okay.
I picked up Mom, and we stopped at Pharmasave to buy a few things for Dad.
When we got to the hospital, Dad was in another room, a semi-private. Dad seemed to have accepted the news quite well.
Jeff came to see Dad about half an hour after we got there. It really helped Dad to get his mind off his troubles even for a moment. Jeff left around one o’clock.
Dad sure was funny he kept on poking at Mom. He seemed to disagree with Mom on just about everything they talked about. Maybe he’s just feeling bad about what he had done to himself.
We left at three o’clock. We picked Alex up at Marla’s. She invited us in for tea but I said my Mom wasn’t really up to it. Marla then asked about Dad. I told her that the doctor thought he would have to have part of his leg off. Marla said boy some doctors sure are blunt. We said our goodbyes. I said see you tomorrow for lunch. Marla said are your sure, we can change it to another day. I said no tomorrow is fine.
When we got in the car I told Mom, Marla had invited us in for tea. Mom said it’s too close to dinner. I don’t think she was up to it anyways.
Alex said they had a really good time. He said Lanie got Playmobile for Christmas. They played with that and some other stuff.
Mom invited us for dinner, I said we could stop and pick something up. Mom said no she had chicken or sausages we could have. We had chicken, baked potatoes and peas. We stayed until eight o’clock. Alex was getting tired.
We talked about Dad and his condition Mom is upset that Dad would do such a thing to himself. She felt she tried to watch him but unfortunately he sneaked out while she was sewing. Dad claims he didn’t know you couldn’t do a lot of things.
When we got home I got Alex ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ----- ----- 7:30 p.m.
Temperature 35.22C 7:30 p.m.
I got ready to go but first I phoned Marla to ask her if she would be able to look after Alex. Marla said she was taking Lanie to her skating lesson at two o’clock but she could take Alex with them. I said as long as you don’t mind and it’s not too much trouble. Marla said it was no trouble she would pick Alex up at one thirty.
I told Charlie that Marla would pick Alex up at one thirty. That they would be going to the ice rink and that Alex had to wear his snow suit. I explained to Alex why he had to go with Marla. Alex said that was okay.
I picked up Mom, and we stopped at Pharmasave to buy a few things for Dad.
When we got to the hospital, Dad was in another room, a semi-private. Dad seemed to have accepted the news quite well.
Jeff came to see Dad about half an hour after we got there. It really helped Dad to get his mind off his troubles even for a moment. Jeff left around one o’clock.
Dad sure was funny he kept on poking at Mom. He seemed to disagree with Mom on just about everything they talked about. Maybe he’s just feeling bad about what he had done to himself.
We left at three o’clock. We picked Alex up at Marla’s. She invited us in for tea but I said my Mom wasn’t really up to it. Marla then asked about Dad. I told her that the doctor thought he would have to have part of his leg off. Marla said boy some doctors sure are blunt. We said our goodbyes. I said see you tomorrow for lunch. Marla said are your sure, we can change it to another day. I said no tomorrow is fine.
When we got in the car I told Mom, Marla had invited us in for tea. Mom said it’s too close to dinner. I don’t think she was up to it anyways.
Alex said they had a really good time. He said Lanie got Playmobile for Christmas. They played with that and some other stuff.
Mom invited us for dinner, I said we could stop and pick something up. Mom said no she had chicken or sausages we could have. We had chicken, baked potatoes and peas. We stayed until eight o’clock. Alex was getting tired.
We talked about Dad and his condition Mom is upset that Dad would do such a thing to himself. She felt she tried to watch him but unfortunately he sneaked out while she was sewing. Dad claims he didn’t know you couldn’t do a lot of things.
When we got home I got Alex ready for bed. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ----- ----- 7:30 p.m.
Temperature 35.22C 7:30 p.m.
Diagnosis: Leukemia; January 16, 1989
I woke up at eight thirty. I made breakfast for Alex and myself. I got ready to go pick Mom up to go to the hospital. We left at ten o’clock. Charlie stayed home with Alex.
It took us quite awhile to find a parking space. When we got to Dad’s room he was fast asleep. I would have just let him sleep but Mom tried waking him up. First of all she called Dad but he didn’t wake up. I sort of wondered about him but I did notice his breathing was normal. Mom started to hit his hand. She seemed to bet getting a little alarmed but Dad finally woke up. When he did Dad didn’t know where he was or who we were. It took Dad awhile but he finally realized where he was. He really looked out of it.
Mom went to the nurses station to give them Dad’s medication, they didn’t have any in the hospital. While she was gone Dad held onto my hand really tight. He said he didn’t sleep well last night. Dad said he was awake until three o’clock this morning because the pain was so bad. It was the third medication they gave him. The first two didn’t take and they had to wait so many hours before giving Dad another medication. So finally at three o’clock the nurse said are you still awake. Dad said yes. Then she asked if he had slept at all. Dad said no. The nurse said she would get something, she came back with a shot and that finally helped.
When mom came back he held onto her hand. Dad avoided talking to Mom about him shovelling the snow. He dozed on and off while we were there. We left before two o’clock, I had to be home so Charlie could go to work.
I asked Mom in for something to eat but she wanted to go home. I asked Mom to phone me when she heard from the doctor. Dad’s to have an operation to see what’s wrong with his leg.
I had something to eat. Then Alex and I built Lego. Alex phoned Kurt but Kurt said he didn’t want to play, maybe tomorrow. Alex was really upset but there was nothing I could do about it.
We ate dinner at six o’clock. After dinner we played video games. After I had gotten Alex to bed I phoned Mom. She said she hadn’t heard from the doctor yet and was getting quite concerned. Dad was suppose to have his surgery at six o’clock, Mom said she phoned the hospital and the nurse told her the surgery was changed to nine o’clock. This was in a later conversation with Mom. She asked me what time I would be up. I said Charlie got home at midnight but I usually go to bed at eleven thirty. Mom said she would phone if she got any word from the doctor before then.
I watched tv and wrote in the journal. Mom phoned before eleven thirty. She was very upset the doctor had phoned with not very good news. Dr. F said they couldn’t find any arteries in Dad’s foot. They couldn’t tell why or what was wrong with the arteries. Dr. F said he wanted to do an anagram tomorrow to see if the arteries could be located.
I went to bed after I talked to Mom. It was hard to get to sleep.
No Tests
Medication
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------- 3:45 p.m. -------
Methotrexiate ------ 3:45p.m. ------
It took us quite awhile to find a parking space. When we got to Dad’s room he was fast asleep. I would have just let him sleep but Mom tried waking him up. First of all she called Dad but he didn’t wake up. I sort of wondered about him but I did notice his breathing was normal. Mom started to hit his hand. She seemed to bet getting a little alarmed but Dad finally woke up. When he did Dad didn’t know where he was or who we were. It took Dad awhile but he finally realized where he was. He really looked out of it.
Mom went to the nurses station to give them Dad’s medication, they didn’t have any in the hospital. While she was gone Dad held onto my hand really tight. He said he didn’t sleep well last night. Dad said he was awake until three o’clock this morning because the pain was so bad. It was the third medication they gave him. The first two didn’t take and they had to wait so many hours before giving Dad another medication. So finally at three o’clock the nurse said are you still awake. Dad said yes. Then she asked if he had slept at all. Dad said no. The nurse said she would get something, she came back with a shot and that finally helped.
When mom came back he held onto her hand. Dad avoided talking to Mom about him shovelling the snow. He dozed on and off while we were there. We left before two o’clock, I had to be home so Charlie could go to work.
I asked Mom in for something to eat but she wanted to go home. I asked Mom to phone me when she heard from the doctor. Dad’s to have an operation to see what’s wrong with his leg.
I had something to eat. Then Alex and I built Lego. Alex phoned Kurt but Kurt said he didn’t want to play, maybe tomorrow. Alex was really upset but there was nothing I could do about it.
We ate dinner at six o’clock. After dinner we played video games. After I had gotten Alex to bed I phoned Mom. She said she hadn’t heard from the doctor yet and was getting quite concerned. Dad was suppose to have his surgery at six o’clock, Mom said she phoned the hospital and the nurse told her the surgery was changed to nine o’clock. This was in a later conversation with Mom. She asked me what time I would be up. I said Charlie got home at midnight but I usually go to bed at eleven thirty. Mom said she would phone if she got any word from the doctor before then.
I watched tv and wrote in the journal. Mom phoned before eleven thirty. She was very upset the doctor had phoned with not very good news. Dr. F said they couldn’t find any arteries in Dad’s foot. They couldn’t tell why or what was wrong with the arteries. Dr. F said he wanted to do an anagram tomorrow to see if the arteries could be located.
I went to bed after I talked to Mom. It was hard to get to sleep.
No Tests
Medication
Bactrim 9:00 a.m. ------ 6:00 p.m.
Mercaptopurine ------- 3:45 p.m. -------
Methotrexiate ------ 3:45p.m. ------
Tuesday, January 15, 2013
Diagnosis: Leukemia; January 15, 1989
I woke up at nine o’clock. Alex and I had breakfast. After breakfast I put the oven on self clean, cleaned the rims of the burners, and the top of the oven. Then I went to have my shower. When I was still in the shower Charlie knocked on the door. He said he was taking Dad to the hospital. I said WHAT! Charlie repeated what he said and I said what happened? Charlie said he fell. I said what was he doing? Charlie said he was shovelling the snow and fell. I said okay, you had better go. By the time I had gotten out of the shower Charlie had gone. I figured there was no point in phoning to Mom and Dad’s that they would have been gone by then.
It had snowed a lot yesterday and last night. I asked Alex if he wanted to go outside with me that I was going to shovel the snow. Alex said he wanted to come. We hadn’t been outside very long when Mom and Charlie came by. Mom said they had decided to call an ambulance. They were afraid Dad was going to pass out in the car. Mom said Dad was in a lot of pain. They left to go to the hospital and would let me know what happens.
Alex and I stayed out half an hour later. Alex said he wanted to come in and have lunch. Alex made us half a sandwich each. After lunch we went outside again. Alex went inside after about half an hour. I told him I wanted to finish shovelling the snow. Alex said that was okay, he was going to watch a tape. He said he would call me if the phone was for me.
Alex called me to the phone twice. First time is was Shirley, she said she was going to drop by if that was okay. I told her I was shovelling the snow but I was almost finished. The second time Charlie phoned to tell me they were at Emergency and Dad was going to have his leg x-rayed. Charlie said not to over do it when I was shovelling the snow. I said it’s a bit late I’m almost finished.
I finished shovelling the snow at two thirty. Shirley came shortly afterwards. She didn’t stay long since Alex and I had to return the movies. When we got home Charlie was home already. He said Dad was being admitted today.
We started to cook dinner. I made rice pudding in the slow cooker. We ate dinner at six o’clock. After dinner I did the dishes then I left to go to Mom and Dad’s. It’s been very hard on Mom, she’s really annoyed with Dad that he would do such a dumb thing. Mom said to me the thing that gets her is that he just didn’t damage his leg but he’s affecting his life as well as her own. And who knows other peoples lives. I stayed until nine o’clock and came home.
I did a few things and phoned Mom to tell her I was going to the hospital tomorrow morning. If she wanted to go with me I thought I would get there around eleven. Mom said that would be good.
I got ready for bed. Alex left me a message. The message said Mama don’t look in closet surprise. I sure was tempted to look in the closet. I went to bed before eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 5:00 p.m.
Temperature 36.5C 5:00 p.m.
It had snowed a lot yesterday and last night. I asked Alex if he wanted to go outside with me that I was going to shovel the snow. Alex said he wanted to come. We hadn’t been outside very long when Mom and Charlie came by. Mom said they had decided to call an ambulance. They were afraid Dad was going to pass out in the car. Mom said Dad was in a lot of pain. They left to go to the hospital and would let me know what happens.
Alex and I stayed out half an hour later. Alex said he wanted to come in and have lunch. Alex made us half a sandwich each. After lunch we went outside again. Alex went inside after about half an hour. I told him I wanted to finish shovelling the snow. Alex said that was okay, he was going to watch a tape. He said he would call me if the phone was for me.
Alex called me to the phone twice. First time is was Shirley, she said she was going to drop by if that was okay. I told her I was shovelling the snow but I was almost finished. The second time Charlie phoned to tell me they were at Emergency and Dad was going to have his leg x-rayed. Charlie said not to over do it when I was shovelling the snow. I said it’s a bit late I’m almost finished.
I finished shovelling the snow at two thirty. Shirley came shortly afterwards. She didn’t stay long since Alex and I had to return the movies. When we got home Charlie was home already. He said Dad was being admitted today.
We started to cook dinner. I made rice pudding in the slow cooker. We ate dinner at six o’clock. After dinner I did the dishes then I left to go to Mom and Dad’s. It’s been very hard on Mom, she’s really annoyed with Dad that he would do such a dumb thing. Mom said to me the thing that gets her is that he just didn’t damage his leg but he’s affecting his life as well as her own. And who knows other peoples lives. I stayed until nine o’clock and came home.
I did a few things and phoned Mom to tell her I was going to the hospital tomorrow morning. If she wanted to go with me I thought I would get there around eleven. Mom said that would be good.
I got ready for bed. Alex left me a message. The message said Mama don’t look in closet surprise. I sure was tempted to look in the closet. I went to bed before eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 5:00 p.m.
Temperature 36.5C 5:00 p.m.
Monday, January 14, 2013
Diagnosis: Leukemia; January 14, 1989
Alex woke me up at nine o’clock. Alex was calling is anyone up or who’s up. Nobody was up yet so I went into his room. Alex said since your up can I have breakfast. I said yes I guess so. Charlie got up as well.
I asked Alex what he wanted for breakfast but he said he didn’t know. It took him an hour before he decided what he wanted. I had breakfast in the meantime. After I had gotten Alex his hot cereal for breakfast I had a shower and got dressed.
Charlie asked what time we should go to the bank to transfer our accounts. I said it looks like it’s trying to snow so we had better go soon. By the time we got ready it had already started to snow.
We were able to transfer our accounts and Alex got a green machine piggy bank. Alex was happy about that. When we left the bank it was really snowing. We went to the lighting store to get Alex a lamp for his room. We went to Simon Fraser University then towards Hastings Street. The road to S.F.U. was really covered but it wasn’t too bad to drive on. On the way back the road was really covered and very slippery. We had to drive very slowly or we would have slid all over the place!
We stopped at the video store and rented a couple of movies. We knew we wouldn’t be going anywhere tonight.
We had lunch when we got home. Charlie put up Alex’s light and made the frame for the puzzle. I did the dishes and vacuumed the house.
Alex went out to play in the snow. He can’t stay out for very long. His face gets very red and if he does stay out too long it really hurts when he comes inside. When Alex was in the front Kurt, Patrick and Benjamin asked him to help them roll a big snowball. Alex didn’t want to and came inside.
Alex seems to be by himself quite a bit, of course one factor is because of his Leukemia. It could have a lot to do with his personality. With all the medication he is one he may not be the same person, as if he wasn’t taking any medication. He and I do spend a lot of time together. The other kids come to ask him to come over or to play but it’s very rare that Alex will seek one of his friends out.
A little later on Alex went to the backyard to shovel the snow. He said he didn’t want any kids bugging him.
We ordered pizza for dinner. Alex was annoyed because on the way home Charlie said he was going to Burger King for dinner. Alex said Charlie would have to order one hundred pizzas. Charlie said so I’ll order one hundred pizzas. When Alex talks like that you either have to agree with him or tell him to quit it.
After dinner we played video games. Alex and I played bumper cars after Alex had his snack. I had put the leftover pizza in the freezer and did the dishes.
Alex went to bed at eight thirty. Alex complained that he didn’t want to go to bed. I told him to stop saying that, he needs his sleep.
I watched the video once Alex was in bed. I wrote in the journal until eleven thirty. I’m going to bed soon.
No Tests
Medication
Mercaptopurine ----- ----- 8:00 p.m.
Temperature 35.16C 8:00 p.m.
I asked Alex what he wanted for breakfast but he said he didn’t know. It took him an hour before he decided what he wanted. I had breakfast in the meantime. After I had gotten Alex his hot cereal for breakfast I had a shower and got dressed.
Charlie asked what time we should go to the bank to transfer our accounts. I said it looks like it’s trying to snow so we had better go soon. By the time we got ready it had already started to snow.
We were able to transfer our accounts and Alex got a green machine piggy bank. Alex was happy about that. When we left the bank it was really snowing. We went to the lighting store to get Alex a lamp for his room. We went to Simon Fraser University then towards Hastings Street. The road to S.F.U. was really covered but it wasn’t too bad to drive on. On the way back the road was really covered and very slippery. We had to drive very slowly or we would have slid all over the place!
We stopped at the video store and rented a couple of movies. We knew we wouldn’t be going anywhere tonight.
We had lunch when we got home. Charlie put up Alex’s light and made the frame for the puzzle. I did the dishes and vacuumed the house.
Alex went out to play in the snow. He can’t stay out for very long. His face gets very red and if he does stay out too long it really hurts when he comes inside. When Alex was in the front Kurt, Patrick and Benjamin asked him to help them roll a big snowball. Alex didn’t want to and came inside.
Alex seems to be by himself quite a bit, of course one factor is because of his Leukemia. It could have a lot to do with his personality. With all the medication he is one he may not be the same person, as if he wasn’t taking any medication. He and I do spend a lot of time together. The other kids come to ask him to come over or to play but it’s very rare that Alex will seek one of his friends out.
A little later on Alex went to the backyard to shovel the snow. He said he didn’t want any kids bugging him.
We ordered pizza for dinner. Alex was annoyed because on the way home Charlie said he was going to Burger King for dinner. Alex said Charlie would have to order one hundred pizzas. Charlie said so I’ll order one hundred pizzas. When Alex talks like that you either have to agree with him or tell him to quit it.
After dinner we played video games. Alex and I played bumper cars after Alex had his snack. I had put the leftover pizza in the freezer and did the dishes.
Alex went to bed at eight thirty. Alex complained that he didn’t want to go to bed. I told him to stop saying that, he needs his sleep.
I watched the video once Alex was in bed. I wrote in the journal until eleven thirty. I’m going to bed soon.
No Tests
Medication
Mercaptopurine ----- ----- 8:00 p.m.
Temperature 35.16C 8:00 p.m.
Sunday, January 13, 2013
Diagnosis: Leukemia; January 13, 1989
I woke up at nine o’clock. This is the first day since Christmas that I haven’t felt very tired.
Charlie had given Alex his breakfast. I had my breakfast, a shower and got dressed.
Alex asked if he could take the police station apart and build the one in the pamphlet. I said that was okay as long as I didn’t have to build it. Since I had built the other one yesterday.
I went out to the bank, Port Coquitlam Recreational Centre, Overwaitea and Port Moody Recreational Centre. I wanted to see if Alex wanted to go to any classes this winter, I picked up their Winter schedule.
When I came home Charlie and Alex were putting the police station together.
Kurt had been over in the morning for a little while before he went to kindergarten.
We had lunch then I cleaned the fridge, the small appliances, the counter tops, and the microwave it took me most of the afternoon.
Alex phoned and asked Kurt to come over to play. Alex and Kurt played while I finished cleaning. Nora phoned at five thirty and asked Alex to send Kurt home.
We ate dinner at six o’clock. After dinner we played a few games and video games.
Alex got ready for bed at eight o’clock. We did speak and read then Alex got into bed.
I watched tv and wrote in the journal. I went to bed after eleven o’clock.
No Tests
Medication
Bactrim ------ 4:00 p.m. 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Temperature 37.0C 8:30 p.m.
Charlie had given Alex his breakfast. I had my breakfast, a shower and got dressed.
Alex asked if he could take the police station apart and build the one in the pamphlet. I said that was okay as long as I didn’t have to build it. Since I had built the other one yesterday.
I went out to the bank, Port Coquitlam Recreational Centre, Overwaitea and Port Moody Recreational Centre. I wanted to see if Alex wanted to go to any classes this winter, I picked up their Winter schedule.
When I came home Charlie and Alex were putting the police station together.
Kurt had been over in the morning for a little while before he went to kindergarten.
We had lunch then I cleaned the fridge, the small appliances, the counter tops, and the microwave it took me most of the afternoon.
Alex phoned and asked Kurt to come over to play. Alex and Kurt played while I finished cleaning. Nora phoned at five thirty and asked Alex to send Kurt home.
We ate dinner at six o’clock. After dinner we played a few games and video games.
Alex got ready for bed at eight o’clock. We did speak and read then Alex got into bed.
I watched tv and wrote in the journal. I went to bed after eleven o’clock.
No Tests
Medication
Bactrim ------ 4:00 p.m. 8:30 p.m.
Mercaptopurine ------ ----- 8:30 p.m.
Temperature 37.0C 8:30 p.m.
Diagnosis: Leukemia; January 12, 1989
I woke up at ten o’clock. Alex slept in our bed last night. When Charlie started to snore Alex yelled at him to stop snoring. It was all I could do not to laugh at him. Alex moved around a lot and took up a lot of room it sure was hard to get a good nights sleep.
Alex and I had breakfast then I had a shower and got dressed. Alex and I played COPS in the morning then I went to London Drugs. I got home around two o’clock. Charlie left for work at two thirty.
Alex took his Lego apart and asked me to help him build another police station. Kurt phoned just after we had started. He wanted Alex to come over. I had to talk Alex into going over since he wanted to do the Lego. I promised I would figure out what pieces were needed for the police station.
While Alex was gone I watched tv and figure out what pieces Alex needed for the Lego. Alex came home at five o’clock.
I had made stew in the slow cooker this morning. I added flour and water for the gravy. We ate dinner at six o’clock. After dinner we worked on the Lego. We finally finished it at seven thirty. Alex played with it until eight o’clock, when I told him to get ready for bed. Alex said he would try to sleep in his own bed tonight. I said that would be really good.
I watched tv and wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine 10:00 a.m. ------ -----
Alex and I had breakfast then I had a shower and got dressed. Alex and I played COPS in the morning then I went to London Drugs. I got home around two o’clock. Charlie left for work at two thirty.
Alex took his Lego apart and asked me to help him build another police station. Kurt phoned just after we had started. He wanted Alex to come over. I had to talk Alex into going over since he wanted to do the Lego. I promised I would figure out what pieces were needed for the police station.
While Alex was gone I watched tv and figure out what pieces Alex needed for the Lego. Alex came home at five o’clock.
I had made stew in the slow cooker this morning. I added flour and water for the gravy. We ate dinner at six o’clock. After dinner we worked on the Lego. We finally finished it at seven thirty. Alex played with it until eight o’clock, when I told him to get ready for bed. Alex said he would try to sleep in his own bed tonight. I said that would be really good.
I watched tv and wrote in the journal. I went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine 10:00 a.m. ------ -----
Saturday, January 12, 2013
Diagnosis: Leukemia; January 11, 1989
I woke up at ten o’clock. Alex slept in our bed again last night. It’s hard to get a good night sleep with all three of us in the same bed!
Charlie had taken his car in for a tune-up so he wasn’t home when we got up.
Alex and I had breakfast, Charlie phoned around eleven and asked me to pick him up in an hour at Coquitlam Centre. He wanted me to drive him to the car dealer to pick up his car. Then he phoned back again and asked me to come as soon as I could. Luckily I had a shower and gotten dressed.
Alex and I got home around noon. Charlie got home shortly afterwards. I went out to the mall and came home at two o’clock.
Alex and I played a game of Yahtzee. Kurt phoned Alex at three thirty. Alex asked him to come over here. They played in the spare room and Alex’s room until Nora phoned at five thirty. They played COPS and used the Proton pak.
We ate dinner at six o’clock. Then we watched tv and played Guess Who.
Alex went to bed at eight o’clock. He complained again that he wouldn’t have a good sleep. I told him I didn’t want to hear that every night. Alex said the reason he comes to our bed is that he’s afraid of ghosts.
Alex did finally get into bed and go to sleep. I wrote in the journal and watched tv. I went to bed at ten o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ----- 4:30 p.m.
Mercaptopurine 10:00 a.m. ------ -----
Temperature 36.83C
Charlie had taken his car in for a tune-up so he wasn’t home when we got up.
Alex and I had breakfast, Charlie phoned around eleven and asked me to pick him up in an hour at Coquitlam Centre. He wanted me to drive him to the car dealer to pick up his car. Then he phoned back again and asked me to come as soon as I could. Luckily I had a shower and gotten dressed.
Alex and I got home around noon. Charlie got home shortly afterwards. I went out to the mall and came home at two o’clock.
Alex and I played a game of Yahtzee. Kurt phoned Alex at three thirty. Alex asked him to come over here. They played in the spare room and Alex’s room until Nora phoned at five thirty. They played COPS and used the Proton pak.
We ate dinner at six o’clock. Then we watched tv and played Guess Who.
Alex went to bed at eight o’clock. He complained again that he wouldn’t have a good sleep. I told him I didn’t want to hear that every night. Alex said the reason he comes to our bed is that he’s afraid of ghosts.
Alex did finally get into bed and go to sleep. I wrote in the journal and watched tv. I went to bed at ten o’clock.
No Tests
Medication
Bactrim 10:00 a.m. ----- 4:30 p.m.
Mercaptopurine 10:00 a.m. ------ -----
Temperature 36.83C
Thursday, January 10, 2013
Diagnosis: Leukemia; January 10, 1989
I woke up at nine o’clock. Alex and I had breakfast then I had a shower and got dressed. I made our beds, did the laundry and the dishes.
Alex and I played most of the afternoon. We played COPS, I helped Alex build a house out of Lego and then we played a game.
We ate dinner at five thirty. After dinner we played video games and another game then we watched tv.
I asked Alex to get ready for bed at seven thirty. After Alex had gotten dressed and we had done speak and read. I told Alex to get into bed. Alex complained that he wouldn’t have a good sleep. He’s been coming into our bed around two o’clock the last few nights. Alex moves around a lot when he sleeps with us and doesn’t sleep for quite awhile after he comes into bed. It seems to me that ever time Alex’s counts are low he has trouble sleeping and usually comes into bed with us. Mind you he hasn’t come into bed with us for a very long time. I usually have the least amount of space in the bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 5:00 p.m.
Alex and I played most of the afternoon. We played COPS, I helped Alex build a house out of Lego and then we played a game.
We ate dinner at five thirty. After dinner we played video games and another game then we watched tv.
I asked Alex to get ready for bed at seven thirty. After Alex had gotten dressed and we had done speak and read. I told Alex to get into bed. Alex complained that he wouldn’t have a good sleep. He’s been coming into our bed around two o’clock the last few nights. Alex moves around a lot when he sleeps with us and doesn’t sleep for quite awhile after he comes into bed. It seems to me that ever time Alex’s counts are low he has trouble sleeping and usually comes into bed with us. Mind you he hasn’t come into bed with us for a very long time. I usually have the least amount of space in the bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 5:00 p.m.
Wednesday, January 9, 2013
Diagnosis: Leukemia; January 9, 1989
I woke up at nine o’clock. I had breakfast and made Alex his breakfast. Alex had told me I couldn’t have toast for breakfast. I told him that he wasn’t going to tell me what I couldn’t eat. Alex said okay you can have toast.
After breakfast I had a shower and got dressed. I made our beds, did the laundry and the dishes.
We had an early lunch then we left for the hospital. The roads were okay but I had a hard time finding a parking space.
Krisann weighed Alex and also measured him. There wasn’t much of a change since they had done it last week.
Mary had trouble getting the blood out of Alex’s finger. She said in future she might have to take it from him arm. She also said Alex’s fingers were getting tough. That will be a big problem, hopefully it won’t happen for awhile.
Alex was able to have his LP, his ANC was normal. Alex asked me if we could go. I said no not yet. Alex asked if he had to have a poke in his arm. I said no not in your arm. He said somewhere else? I said yes and he asked where. I told him in his back. Alex was very upset, he almost cried right in the waiting room. I explained to Alex why it had to be done. Alex said it hurts over and over again. Alex did understand why it had to be done but now he realizes when he gets his pokes especially the back one it hurts a lot. I really don’t know what to tell him. Alex knows he should keep still but he still fights it anyways. He’s become of an age where he identifies with pain and he’s not old enough to be told not to act that way.
Anyway we went to have the LP done. Once Alex was in position he started to fight having the LP done. I held onto Alex while he was sitting up for his LP. Alex started to scream as soon as Dr. S. touched his back. Unfortunately my ear was an inch from Alex’s mouth. The doctor, Krisann and I talked to Alex. Alex kept saying it’s going to hurt. I told him it was okay to cry but please don’t scream. Alex said it’s going to hurt. I said I know it’s going to hurt but the more you move, scream and tense up the longer it’s going to take. It’s going to have to be done and I already told you why.
Alex calmed down a little bit. Krisann read stories to Alex while the doctor froze Alex’s back. Alex started to cry but at least he didn’t scream.
While the doctor was waiting for the freezing to take. She said to me I should have a talk with Alex and explain why he has to keep still. I told her last week when Alex had his chemo he pulled his arm away. She was rather surprised. She said at Alex’s age he should understand that he has to keep still. I thought to myself Dr. S. doesn’t have children, she couldn’t anyways.
Finally it was all over and I took Alex out to the waiting room to a bed to lie down for an hour. Alex was feeling pretty upset so I tried to cheer him up with the stuffed toys they had in the room. Alex started to laugh when I made the animals pop up at him from the bottom of the bed.
I went to the pharmacy and came back. Alex and I played some more with the stuffed toys. I went back to get Alex’s pills then it was time to go.
We left at four thirty and went to McDonald’s for dinner. Alex slept most of the way there. We came home after dinner, Alex got his prize. Alex was really happy to get Buttons McBoom Boom, a crook from COPS. Alex played with all his COPS figures. He wanted me to play as well but I was too tired.
Alex got ready for bed at eight o’clock, he took Buttons McBoom Boom and some other figures to bed with him.
I watched tv and went to bed at eleven o’clock.
Tests
WBC 3.2
HGB 13.2
Platelets 313
ANC 1120
Medication
Bactrim 9:30 a.m. ----- 7:00 p.m.
Mercaptopurine ----- ----- 7:00 p.m.
After breakfast I had a shower and got dressed. I made our beds, did the laundry and the dishes.
We had an early lunch then we left for the hospital. The roads were okay but I had a hard time finding a parking space.
Krisann weighed Alex and also measured him. There wasn’t much of a change since they had done it last week.
Mary had trouble getting the blood out of Alex’s finger. She said in future she might have to take it from him arm. She also said Alex’s fingers were getting tough. That will be a big problem, hopefully it won’t happen for awhile.
Alex was able to have his LP, his ANC was normal. Alex asked me if we could go. I said no not yet. Alex asked if he had to have a poke in his arm. I said no not in your arm. He said somewhere else? I said yes and he asked where. I told him in his back. Alex was very upset, he almost cried right in the waiting room. I explained to Alex why it had to be done. Alex said it hurts over and over again. Alex did understand why it had to be done but now he realizes when he gets his pokes especially the back one it hurts a lot. I really don’t know what to tell him. Alex knows he should keep still but he still fights it anyways. He’s become of an age where he identifies with pain and he’s not old enough to be told not to act that way.
Anyway we went to have the LP done. Once Alex was in position he started to fight having the LP done. I held onto Alex while he was sitting up for his LP. Alex started to scream as soon as Dr. S. touched his back. Unfortunately my ear was an inch from Alex’s mouth. The doctor, Krisann and I talked to Alex. Alex kept saying it’s going to hurt. I told him it was okay to cry but please don’t scream. Alex said it’s going to hurt. I said I know it’s going to hurt but the more you move, scream and tense up the longer it’s going to take. It’s going to have to be done and I already told you why.
Alex calmed down a little bit. Krisann read stories to Alex while the doctor froze Alex’s back. Alex started to cry but at least he didn’t scream.
While the doctor was waiting for the freezing to take. She said to me I should have a talk with Alex and explain why he has to keep still. I told her last week when Alex had his chemo he pulled his arm away. She was rather surprised. She said at Alex’s age he should understand that he has to keep still. I thought to myself Dr. S. doesn’t have children, she couldn’t anyways.
Finally it was all over and I took Alex out to the waiting room to a bed to lie down for an hour. Alex was feeling pretty upset so I tried to cheer him up with the stuffed toys they had in the room. Alex started to laugh when I made the animals pop up at him from the bottom of the bed.
I went to the pharmacy and came back. Alex and I played some more with the stuffed toys. I went back to get Alex’s pills then it was time to go.
We left at four thirty and went to McDonald’s for dinner. Alex slept most of the way there. We came home after dinner, Alex got his prize. Alex was really happy to get Buttons McBoom Boom, a crook from COPS. Alex played with all his COPS figures. He wanted me to play as well but I was too tired.
Alex got ready for bed at eight o’clock, he took Buttons McBoom Boom and some other figures to bed with him.
I watched tv and went to bed at eleven o’clock.
Tests
WBC 3.2
HGB 13.2
Platelets 313
ANC 1120
Medication
Bactrim 9:30 a.m. ----- 7:00 p.m.
Mercaptopurine ----- ----- 7:00 p.m.
Tuesday, January 8, 2013
Diagnosis: Leukemia; January 8, 1989
I woke up at ten o’clock. Alex and Charlie were already up. Alex had cereal for breakfast. I had my breakfast then Alex said he wanted to build the police station from the Lego set which he had taken apart. Alex and I had made the small station on Friday. Alex wanted to do it himself, so I just made sure he knew where everything should go.
Charlie had gone grocery shopping and came back around noon. I put away the groceries, had a shower and got dressed.
I was planning on going out but it was snowing so hard that I didn’t know if it would be such a good idea. Charlie said he would go out first to see how the roads were. He came back quite quickly. Charlie said the roads are really slippery that he did donuts down Chilko and missed hitting a lamp post. I definitely wasn’t going anywhere.
I took Kelly for a walk, there weren’t too many people out. It was snowing quite hard. Some teenagers were out to have a snowball fight. One guy threw a snowball at me and one of the girls said that wasn’t funny. I just looked at him and thought what a nerd.
When I came back Alex was working on the police station. I helped him finish the helicopter.
At three o’clock I put the roast in the oven. We ate dinner at six o’clock. Charlie and Alex had been outside earlier shovelling the snow. After dinner Alex and I played video games then we played Guess Who and did the Ghostbusters puzzle.
Alex went to bed at nine o’clock. I went to bed shortly afterwards.
No Tests
Medication
Prednisone 12:00 p.m. ------ ------
Charlie had gone grocery shopping and came back around noon. I put away the groceries, had a shower and got dressed.
I was planning on going out but it was snowing so hard that I didn’t know if it would be such a good idea. Charlie said he would go out first to see how the roads were. He came back quite quickly. Charlie said the roads are really slippery that he did donuts down Chilko and missed hitting a lamp post. I definitely wasn’t going anywhere.
I took Kelly for a walk, there weren’t too many people out. It was snowing quite hard. Some teenagers were out to have a snowball fight. One guy threw a snowball at me and one of the girls said that wasn’t funny. I just looked at him and thought what a nerd.
When I came back Alex was working on the police station. I helped him finish the helicopter.
At three o’clock I put the roast in the oven. We ate dinner at six o’clock. Charlie and Alex had been outside earlier shovelling the snow. After dinner Alex and I played video games then we played Guess Who and did the Ghostbusters puzzle.
Alex went to bed at nine o’clock. I went to bed shortly afterwards.
No Tests
Medication
Prednisone 12:00 p.m. ------ ------
Monday, January 7, 2013
Diagnosis: Leukemia; January 7, 1989
We woke up at ten o’clock. Charlie and Alex were arguing in the bathroom. Alex said he was watching tv first and Charlie said No, I’m watching it first. They kept on saying that . Charlie had said to Alex why don’t you buy your own tv. Alex said I have no dollars only pennies. Charlie said you could come and work with me. At this point Alex was getting mad which I don’t blame him. Alex said I would get to tired and fall down. That was when I told him to watch tv in our room. So Alex watched tv while I had my breakfast.
After breakfast I dressed and cleaned the dining room furniture. Halfway through cleaning Mom phoned. She said she thinks she might have the flu. She’s been feeling cold and not feeling that good last night.
I made Alex his breakfast and continued cleaning the furniture. Charlie came back from shopping, he said the roads were okay, a lot better then last night. I had a shower, got dressed and had lunch with Alex.
I went to the mall in the afternoon. There were a lot of people there which surprised me. I got back at four o’clock.
Charlie ordered dinner from Sek Kee and we at after five o’clock. Alex and I played video games after dinner. Then we did a puzzle and a couple of games. Alex went to bed at nine o’clock. He’s not as irritable, cranky and tired as he had been earlier this week.
I watched tv and wrote in the journal. I’m going to bed soon, it’s after eleven o’clock.
No Tests
Medication
Prednisone 12:00 p.m. 4:30 p.m.
Temperature 36.55C 4:30 p.m.
After breakfast I dressed and cleaned the dining room furniture. Halfway through cleaning Mom phoned. She said she thinks she might have the flu. She’s been feeling cold and not feeling that good last night.
I made Alex his breakfast and continued cleaning the furniture. Charlie came back from shopping, he said the roads were okay, a lot better then last night. I had a shower, got dressed and had lunch with Alex.
I went to the mall in the afternoon. There were a lot of people there which surprised me. I got back at four o’clock.
Charlie ordered dinner from Sek Kee and we at after five o’clock. Alex and I played video games after dinner. Then we did a puzzle and a couple of games. Alex went to bed at nine o’clock. He’s not as irritable, cranky and tired as he had been earlier this week.
I watched tv and wrote in the journal. I’m going to bed soon, it’s after eleven o’clock.
No Tests
Medication
Prednisone 12:00 p.m. 4:30 p.m.
Temperature 36.55C 4:30 p.m.
Sunday, January 6, 2013
Diagnosis: Leukemia; January 6, 1989
I woke up at ten thirty. Alex and I had breakfast then I got dressed and cleaned the bathrooms. Charlie went out shopping, when he came back I went out. I had my lunch before I left. I went to Toy City to see if they had any COP figures. I wanted to get one as a Hospital prize for next week. Toy City didn’t have any so I went to consumers. I asked the clerk if they had any COPS figures before filling out the order form. Usually they don’t have the popular items especially after Christmas. They had Big Boss and Buttons McBoom Boom. Alex had said he wanted McBoom Boom so I got that one. Then I went to London Drugs and came home.
When Alex saw the bag he thought he was getting it today. I told him it was a hospital prize and he would get it on Monday. Alex was really mad and threw himself on the floor. He said he couldn’t wait that long. Alex calmed down after awhile.
Charlie went to work at two thirty. Alex and I built a different police station with his Lego.
We had leftovers, Charlie had bought at lunch time. It was Chow Mien and Rice noodles. Then we played video games. I vacuumed the basement and sorted through Alex’s old clothes and put them into boxes. Alex had a good time going through all his clothes. He kept on saying I remember this short or paints this is my favourite. Then he said these are you’re shoes Mama. I said how could they be my shoes. Alex said oh ya that’s silly of me. I wrote down the clothing and the size while Alex put them in the box. Alex really enjoyed doing it.
We went outside at seven thirty to shovel the snow. It’s been snowing since four thirty and didn’t stop until about nine o’clock. Alex helped me shoves the snow then we had a snowball fight.
We watched tv then at eight o’clock Alex got ready for bed. We did speak and read instead of a story then he got into bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ----- 5:30 p.m.
Prednisone 10:30 a.m. 2:30 p.m. ------
Temperature 36.27C 2:30 p.m.
When Alex saw the bag he thought he was getting it today. I told him it was a hospital prize and he would get it on Monday. Alex was really mad and threw himself on the floor. He said he couldn’t wait that long. Alex calmed down after awhile.
Charlie went to work at two thirty. Alex and I built a different police station with his Lego.
We had leftovers, Charlie had bought at lunch time. It was Chow Mien and Rice noodles. Then we played video games. I vacuumed the basement and sorted through Alex’s old clothes and put them into boxes. Alex had a good time going through all his clothes. He kept on saying I remember this short or paints this is my favourite. Then he said these are you’re shoes Mama. I said how could they be my shoes. Alex said oh ya that’s silly of me. I wrote down the clothing and the size while Alex put them in the box. Alex really enjoyed doing it.
We went outside at seven thirty to shovel the snow. It’s been snowing since four thirty and didn’t stop until about nine o’clock. Alex helped me shoves the snow then we had a snowball fight.
We watched tv then at eight o’clock Alex got ready for bed. We did speak and read instead of a story then he got into bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ----- 5:30 p.m.
Prednisone 10:30 a.m. 2:30 p.m. ------
Temperature 36.27C 2:30 p.m.
Saturday, January 5, 2013
Diagnosis: Leukemia; January 5, 1989
Alex slept in our bed last night, he said he didn’t want to sleep in his own bed. Charlie got Alex his own pillow so I wouldn’t have to share my pillow with him.
At nine o’clock Alex said he wanted to get out of bed. He came back shortly afterwards, to tell me he wanted to have breakfast. When I didn’t move Alex said it’s morning aren’t you going to get our of bed. I said I guess I’ll have to!
I made Alex and my breakfast, Alex said what are you having? I said I’m having toast. Alex said again? I said yes again I like it okay!
After breakfast I had a shower and got dressed. I wrote in the journal for awhile.
At noon I told Alex to go have a nap. Alex was made he had to have a nap. I told him he had been cranky all day and cried so easily that he needed to have a nap. At one thirty Charlie said that Alex was out of bed. I went into his room and told him to get into bed. Alex said he had slept already and wasn’t tired anymore. I said okay but I don’t want to hear you crying or getting mad. Alex said he wouldn’t do that.
Alex had a shower and got dressed. We played school, Alex was the teacher, Mr. Paulin. Alex picked out his own name. I was Amanda a little girl in Mr. Paulin’s class. We colored, did speak and read, had lunch, played then I went home to my Mama.
After playing school we watched TV and I wrote in the journal.
We had dinner at five o’clock. After dinner we played snakes and ladders and video games. Then Alex had a snack and got read for bed. Alex was in bed by seven thirty. Alex said he was really tired.
I watched TV and wrote in the journal. I’m going to bed soon.
No Tests
Medication
Prednisone 9:30 a.m. 3:00 p.m. -----
Temperature 36.0C 9:30 a.m. 36.61C 3:00 p.m.
At nine o’clock Alex said he wanted to get out of bed. He came back shortly afterwards, to tell me he wanted to have breakfast. When I didn’t move Alex said it’s morning aren’t you going to get our of bed. I said I guess I’ll have to!
I made Alex and my breakfast, Alex said what are you having? I said I’m having toast. Alex said again? I said yes again I like it okay!
After breakfast I had a shower and got dressed. I wrote in the journal for awhile.
At noon I told Alex to go have a nap. Alex was made he had to have a nap. I told him he had been cranky all day and cried so easily that he needed to have a nap. At one thirty Charlie said that Alex was out of bed. I went into his room and told him to get into bed. Alex said he had slept already and wasn’t tired anymore. I said okay but I don’t want to hear you crying or getting mad. Alex said he wouldn’t do that.
Alex had a shower and got dressed. We played school, Alex was the teacher, Mr. Paulin. Alex picked out his own name. I was Amanda a little girl in Mr. Paulin’s class. We colored, did speak and read, had lunch, played then I went home to my Mama.
After playing school we watched TV and I wrote in the journal.
We had dinner at five o’clock. After dinner we played snakes and ladders and video games. Then Alex had a snack and got read for bed. Alex was in bed by seven thirty. Alex said he was really tired.
I watched TV and wrote in the journal. I’m going to bed soon.
No Tests
Medication
Prednisone 9:30 a.m. 3:00 p.m. -----
Temperature 36.0C 9:30 a.m. 36.61C 3:00 p.m.
Friday, January 4, 2013
Diagnosis: Leukemia; January 4, 1989
I woke up at nine o’clock. I tried to get up earlier but I just couldn’t get out of bed! Alex and I had breakfast then I had a shower and got dressed.
Charlie went out shopping and when he came back I went out. I bought stamps and went to the Library to photo copy the schedule for Alex’s medication and came home.
In the afternoon I watched a tape while Alex watched TV in our room. I have quite a few videos taped I haven’t seen yet.
We ate dinner at five o’clock. After dinner we played a board game and video games.
Alex has been so cranky all day that I told him to get ready for bed an hour early. Alex has said quite a few times how come I’m so hungry. I told him it was because he’s taking Prednisone. Alex said oh I hate that stuff.
Alex and I did speak and read before he went to bed. Alex was asleep by seven o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ----- 5:00 p.m.
Prednisone 9:00 a.m. 3:15 p.m. ------
Temperature 36.72C 9:00 a.m.35.61C 3:15 p.m. 36.05C 5:00 p.m.
Charlie went out shopping and when he came back I went out. I bought stamps and went to the Library to photo copy the schedule for Alex’s medication and came home.
In the afternoon I watched a tape while Alex watched TV in our room. I have quite a few videos taped I haven’t seen yet.
We ate dinner at five o’clock. After dinner we played a board game and video games.
Alex has been so cranky all day that I told him to get ready for bed an hour early. Alex has said quite a few times how come I’m so hungry. I told him it was because he’s taking Prednisone. Alex said oh I hate that stuff.
Alex and I did speak and read before he went to bed. Alex was asleep by seven o’clock.
I wrote in the journal and watched TV. I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ----- 5:00 p.m.
Prednisone 9:00 a.m. 3:15 p.m. ------
Temperature 36.72C 9:00 a.m.35.61C 3:15 p.m. 36.05C 5:00 p.m.
Thursday, January 3, 2013
Diagnosis: Leukemia; January 3, 1989
I woke up at ten o’clock. Alex and I had breakfast then I had a shower and got dressed. I made the beds, did the dishes and the laundry. He had an early lunch since we had to go to the hospital this afternoon.
We left at twelve fifteen for the hospital. There were quite a few people there already. Mary was back thank goodness. Otherwise it takes a couple of hours to get the results back from upstairs. I asked if she was okay and she said she was.
At two o’clock, Krisann asked us the routine questions. While she was doing this Dr. S asked if she had Alex’s chart. The doctor said to Krisann so low. Krisann said yes I don’t know why. After Dr. S had left I asked her if Alex’s blood count was in. Krisann said yes that Alex’s ANC was low. Krisann said it might be because Alex has been coughing and sneezing.
We saw Dr. S shortly afterwards, she said that Alex’s ANC was too low and that they wouldn’t be able to do the LP today. Dr. S said she was stopping Mercaptopurine and Methotrexiate. She also said to continue giving Alex Septra and Prednisone.
Joan, Krisann and Dr. S all asked us what happened to Alex’s eye. They actually asked Alex what happened but he didn’t answer them. Usually he doesn’t answer them anyways. I told them what happened to Alex. Dr. S looked at me sort of funny.
We went to the pharmacy then we came back. We waited awhile before it was time for Alex to have his Vincristine. Alex was very upset when Lenore was putting the needle in. Alex tried to pull his arm away. Lenore had to stop and call Krisann into the room to help hold Alex’s arm. I talked to Alex and tried to explain that if he didn’t keep his arm still that Lenore might have to do it again. Alex cried and cried. He said it was going to really hurt. I said it’ll hurt but if you blow it won’t hurt so much. Alex said he couldn’t blow. Finally it was done and Alex calmed down.
We left the hospital, we had gone a block when I realized we had forgotten to pick up Alex’s pills. I said I forgot to pick up your pills. Alex said why didn’t you remind me. I said what are you talking about you didn’t remember either. Alex said we were both silly.
We finally were able to leave the hospital. The second time we didn’t have to pay for parking.
We went to Lougheed mall where Alex decided he wanted a G.I. Joe as a prize. Then we went to the drive through at McDonald’s and came home.
When we got home I phoned Mom to let her know we were home and what had happened. Someone had left a message on the machine, a child. I don’t know who it was.
We had dinner at five o’clock. After dinner we played a game and video games.
Alex go ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
Tests
WBC 1.4
HGB 13.3
Platelets 257
ANC 882
Medication
Prednisone ----- ------ 5:00 p.m.
We left at twelve fifteen for the hospital. There were quite a few people there already. Mary was back thank goodness. Otherwise it takes a couple of hours to get the results back from upstairs. I asked if she was okay and she said she was.
At two o’clock, Krisann asked us the routine questions. While she was doing this Dr. S asked if she had Alex’s chart. The doctor said to Krisann so low. Krisann said yes I don’t know why. After Dr. S had left I asked her if Alex’s blood count was in. Krisann said yes that Alex’s ANC was low. Krisann said it might be because Alex has been coughing and sneezing.
We saw Dr. S shortly afterwards, she said that Alex’s ANC was too low and that they wouldn’t be able to do the LP today. Dr. S said she was stopping Mercaptopurine and Methotrexiate. She also said to continue giving Alex Septra and Prednisone.
Joan, Krisann and Dr. S all asked us what happened to Alex’s eye. They actually asked Alex what happened but he didn’t answer them. Usually he doesn’t answer them anyways. I told them what happened to Alex. Dr. S looked at me sort of funny.
We went to the pharmacy then we came back. We waited awhile before it was time for Alex to have his Vincristine. Alex was very upset when Lenore was putting the needle in. Alex tried to pull his arm away. Lenore had to stop and call Krisann into the room to help hold Alex’s arm. I talked to Alex and tried to explain that if he didn’t keep his arm still that Lenore might have to do it again. Alex cried and cried. He said it was going to really hurt. I said it’ll hurt but if you blow it won’t hurt so much. Alex said he couldn’t blow. Finally it was done and Alex calmed down.
We left the hospital, we had gone a block when I realized we had forgotten to pick up Alex’s pills. I said I forgot to pick up your pills. Alex said why didn’t you remind me. I said what are you talking about you didn’t remember either. Alex said we were both silly.
We finally were able to leave the hospital. The second time we didn’t have to pay for parking.
We went to Lougheed mall where Alex decided he wanted a G.I. Joe as a prize. Then we went to the drive through at McDonald’s and came home.
When we got home I phoned Mom to let her know we were home and what had happened. Someone had left a message on the machine, a child. I don’t know who it was.
We had dinner at five o’clock. After dinner we played a game and video games.
Alex go ready for bed at eight o’clock. I watched TV and went to bed at eleven o’clock.
Tests
WBC 1.4
HGB 13.3
Platelets 257
ANC 882
Medication
Prednisone ----- ------ 5:00 p.m.
Diagnosis: Leukemia; January 2, 1989
I woke up at ten o’clock. Alex and I had breakfast. Then I had a shower and got dressed. Charlie went out shopping while I took down the decorations off the tree. Alex was at Kurt’s house playing, which was a good time for me to take down the decorations.
Alex came home at twelve thirty, he said they were having lunch. The first thing Alex said when he came upstairs was why are you taking the decorations down. I said Christmas is over and it’s time to take the decorations down.
I asked Charlie to take the tree outside after he had lunch. Then I vacuumed the living room, it took me awhile since I had to vacuum all the needles up from the Christmas tree. Charlie left for work at two thirty. I decided to arrange the living room differently for a change.
Alex and Kurt were playing in his room. Kurt had come over at one o’clock. When Alex came into the living room he said WHAT! I didn’t say anything then Alex said how come the furniture is like that. I said I wanted to have the furniture different for a change.
Nora phoned at four o’clock and asked us to send Kurt home.
I started to cook dinner, we ate at five thirty. Alex decided he didn’t like his dinner. I told him if he didn’t finish his dinner he wouldn’t get anything else until breakfast tomorrow. Alex was really mad at me, he screamed I don’t want to!
When I told Alex it was almost time for bed. Alex said he wanted his dinner heated up so he could finish it and have a snack. Alex finished his dinner and had a snack then he got ready for bed. Alex was asleep by eight thirty. I watched TV and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ------ 5:45 p.m.
Mercaptopurine 10:30 a.m. ----- -----
Methotrexiate *to be given at the hospital tomorrow
Temperature 36.94C 4:00 p.m.
Alex came home at twelve thirty, he said they were having lunch. The first thing Alex said when he came upstairs was why are you taking the decorations down. I said Christmas is over and it’s time to take the decorations down.
I asked Charlie to take the tree outside after he had lunch. Then I vacuumed the living room, it took me awhile since I had to vacuum all the needles up from the Christmas tree. Charlie left for work at two thirty. I decided to arrange the living room differently for a change.
Alex and Kurt were playing in his room. Kurt had come over at one o’clock. When Alex came into the living room he said WHAT! I didn’t say anything then Alex said how come the furniture is like that. I said I wanted to have the furniture different for a change.
Nora phoned at four o’clock and asked us to send Kurt home.
I started to cook dinner, we ate at five thirty. Alex decided he didn’t like his dinner. I told him if he didn’t finish his dinner he wouldn’t get anything else until breakfast tomorrow. Alex was really mad at me, he screamed I don’t want to!
When I told Alex it was almost time for bed. Alex said he wanted his dinner heated up so he could finish it and have a snack. Alex finished his dinner and had a snack then he got ready for bed. Alex was asleep by eight thirty. I watched TV and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 10:30 a.m. ------ 5:45 p.m.
Mercaptopurine 10:30 a.m. ----- -----
Methotrexiate *to be given at the hospital tomorrow
Temperature 36.94C 4:00 p.m.
Wednesday, January 2, 2013
Diagnosis: Leukemia; January 1, 1989
I woke up at ten o’clock. I made pancakes for breakfast. Alex had cereal earlier but he wanted pancakes as well. After breakfast I had a shower and got dressed. Then I changed the sheets on our beds, did the laundry, the dishes and tided up the house.
I had invited Mom and Dad over for dinner tonight but Mom said she had already taken out a ham. So she asked us down. I said I would bring dessert but Mom said she had already made a pie. I said boy you’ve really gotten ahead of me.
We went down to their house at four thirty. We ate dinner at five o’clock. After dinner Alex watched E.T. Mom had bought the movie before Christmas. We played a game. Alex asked us to play his game after we had finished playing ours. Grandpa, Granma, Alex and I played bumper cars.
We went home around ten o’clock. I told Alex to get ready for bed. He complained again that he didn’t want to go to bed. I said last night you went to bed four hours after your bedtime and tonight you’re going to bed two hours after your bedtime. Alex finally got into bed, he was asleep pretty soon afterwards.
I watched TV and went to bed after eleven o’clock.
No Tests
Medication
Mercaptopurine 10:30 a.m. ------ -----
I had invited Mom and Dad over for dinner tonight but Mom said she had already taken out a ham. So she asked us down. I said I would bring dessert but Mom said she had already made a pie. I said boy you’ve really gotten ahead of me.
We went down to their house at four thirty. We ate dinner at five o’clock. After dinner Alex watched E.T. Mom had bought the movie before Christmas. We played a game. Alex asked us to play his game after we had finished playing ours. Grandpa, Granma, Alex and I played bumper cars.
We went home around ten o’clock. I told Alex to get ready for bed. He complained again that he didn’t want to go to bed. I said last night you went to bed four hours after your bedtime and tonight you’re going to bed two hours after your bedtime. Alex finally got into bed, he was asleep pretty soon afterwards.
I watched TV and went to bed after eleven o’clock.
No Tests
Medication
Mercaptopurine 10:30 a.m. ------ -----
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