I woke up at eight thirty. I had a shower, got dressed and had my breakfast. Charlie had started to pack the china. I’m not able to do any of it so I just watched. I was going to do some of it until my blood pressure went up. Then I was told to rest. I keep an inventory of each box in case we want to get something. Charlie packed a lot of boxes, twenty boxes from the dining room, living room and part of the kitchen.
Charlie went grocery shopping and came home around four o’clock. We decided to have fishn’chips, so Charlie had to go out again. There sure isn’t much I can eat when I’m off sugar and salt.
We ate dinner at five thirty, the fishn’chips would have tasted better with salt and vinegar! Oh well not much I can do.
We went to Mom and Dad’s after dinner. I came home at nine o’clock. Alex and I were in bed by ten o’clock.
No tests
Medication
Mercaptopurine ------ ------ 9:30 p.m.
Temperature 36.96C 10:30 a.m. 36.20C 9:30 p.m.
Monday, September 30, 2013
Sunday, September 29, 2013
Diagnosis: Leukemia; September 29, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast.
I made the beds and did the dishes. I had washed the baby clothes last night. Alex was pretty funny when we were looking through the boxes. Practically every item he said ah isn’t that cute. When I showed Alex a undershirt, size 3 months he couldn’t believe he had worn it.
I went to the doctors before noon. Charlie took Alex to school. I had a long wait for the doctor. When Dr. C came in she said she had hoped she would be on time. When she took my blood pressure she kept on saying calm down. I was thinking to myself I am calm. My blood pressure was 140/80 so she had me lie down on my left side and it was 130/76. It was still up from last week which was 110/75. Dr. C said it means something when the blood pressure goes up 20 points. I told her when I was pregnant with Alex my blood pressure was quite high and it was checked quite often. Dr. C looked in my chart and said oh yes it was much higher. I said what was it? She said it was 165, maybe your more relaxed in this pregnancy. Dr. C said sometimes in a pregnancy the placenta doesn’t function right. I asked if the swelling and salty foods had anything to do with it. Dr. C didn’t think it had anything to do with it.
Dr. C had asked how Alex was doing. I told her the hospital had phoned this week and Dr. S wants to see Alex next week. She asked if it was for a bone marrow test. I said no they wanted to check Alex’s counts.
Dr. C said I want you to have your ultra sound next week instead of the tenth and I also want you to see an obstetrician next week. She said she would arrange everything for me. Dr. C wanted to see me earlier in the week but then realized I wouldn’t be able to with going to the diabetic clinic and Children’s Hospital.
Dr. C told me to rest in the afternoon. I think she realized I can’t do anything when I have a five year old to look after.
Dr. C asked if Mom could take my blood pressure daily and if it goes up to phone her right away.
I came home and had my lunch. After lunch I tried to relax and not do too much. It’s pretty hard to do.
I picked Alex up at three o’clock. I saw Miriam and told her Alex wanted Carter to come over on Monday. She said that would be okay. I told her Charlie would be taking Alex there and I would pick them up.
Alex and I came home, he watched tv and played awhile. We went to McDonald’s for dinner. I ordered a ¼ pounder but I had to have it without cheese and pickles. It sure doesn’t taste the same.
We went to Mom and Dad’s, Alex had a good time playing Nintendo with Dad.
We came home at nine o’clock. Alex watched Chip and Dale then he went to bed. I went to bed after Alex.
No Tests
Medication
Mercaptopurine ------ ------ 10:00 p.m.
Temperature 36.27C 11:30 a.m. 36.78C 4:30 p.m.
I made the beds and did the dishes. I had washed the baby clothes last night. Alex was pretty funny when we were looking through the boxes. Practically every item he said ah isn’t that cute. When I showed Alex a undershirt, size 3 months he couldn’t believe he had worn it.
I went to the doctors before noon. Charlie took Alex to school. I had a long wait for the doctor. When Dr. C came in she said she had hoped she would be on time. When she took my blood pressure she kept on saying calm down. I was thinking to myself I am calm. My blood pressure was 140/80 so she had me lie down on my left side and it was 130/76. It was still up from last week which was 110/75. Dr. C said it means something when the blood pressure goes up 20 points. I told her when I was pregnant with Alex my blood pressure was quite high and it was checked quite often. Dr. C looked in my chart and said oh yes it was much higher. I said what was it? She said it was 165, maybe your more relaxed in this pregnancy. Dr. C said sometimes in a pregnancy the placenta doesn’t function right. I asked if the swelling and salty foods had anything to do with it. Dr. C didn’t think it had anything to do with it.
Dr. C had asked how Alex was doing. I told her the hospital had phoned this week and Dr. S wants to see Alex next week. She asked if it was for a bone marrow test. I said no they wanted to check Alex’s counts.
Dr. C said I want you to have your ultra sound next week instead of the tenth and I also want you to see an obstetrician next week. She said she would arrange everything for me. Dr. C wanted to see me earlier in the week but then realized I wouldn’t be able to with going to the diabetic clinic and Children’s Hospital.
Dr. C told me to rest in the afternoon. I think she realized I can’t do anything when I have a five year old to look after.
Dr. C asked if Mom could take my blood pressure daily and if it goes up to phone her right away.
I came home and had my lunch. After lunch I tried to relax and not do too much. It’s pretty hard to do.
I picked Alex up at three o’clock. I saw Miriam and told her Alex wanted Carter to come over on Monday. She said that would be okay. I told her Charlie would be taking Alex there and I would pick them up.
Alex and I came home, he watched tv and played awhile. We went to McDonald’s for dinner. I ordered a ¼ pounder but I had to have it without cheese and pickles. It sure doesn’t taste the same.
We went to Mom and Dad’s, Alex had a good time playing Nintendo with Dad.
We came home at nine o’clock. Alex watched Chip and Dale then he went to bed. I went to bed after Alex.
No Tests
Medication
Mercaptopurine ------ ------ 10:00 p.m.
Temperature 36.27C 11:30 a.m. 36.78C 4:30 p.m.
Saturday, September 28, 2013
Diagnosis: Leukemia; September 28, 1989
I woke up at eight o’clock. I had woken up quite a few times in the night. I was just having a good sleep when Alex woke me up. I was in a deep sleep, oh well. I made Alex his breakfast then I had a shower and got dressed.
I made the beds and put away the dishes. We took Alex to school and Miriam gave me their address and phone number. I told her Alex was diagnosed with Leukemia and he couldn’t be around anyone who is sick. I asked her to get Alex to phone me when they got home, if she didn’t mind. It makes me feel so much better. She said it would be no problem. I told her Alex has a cough and if she didn’t want Alex to go home I understood. She said no, it was okay. She said it must be hard with Alex being ill. Did he go to preschool? I said it’s hard and he didn’t go to preschool. She said it’ll be harder for him not getting sick. I said we’ve already noticed since Alex started school there’s not much we can do.
Charlie and I drove to Mom and Dad’s but they weren’t home, so we drove around Ranch Park. We saw a new listing on Daybreak. Charlie phoned Dean when we got home. It’s listed by ReMax for $209,000!
Mom phoned to say they had come by. I said we came to see you! We must of just missed each other. I told her we saw a house on Daybreak but it’s $209, 000. Mom said you should take a look at it they might come down. They would have to come down twenty or thirty thousand, which I doubt they would. Mom said you never know. I told her I would be down later.
I waited for Alex to phone me. He phoned at three ten, he said he had a good time at school and he was at Carter’s. I asked to talk to Carter’s mom. I told her I had to go out and gave her Mom and Dad’s phone number. I said I would pick Alex up at five o’clock.
I went to Mom and Dad’s, I asked Mom to check my blood pressure. It was still 140/80, I was hoping it would be lower. Mom thought it was good but I told her the doctor said it wasn’t.
I picked up Alex, the house was a bit hard to find. It’s a dead end street and the house is hidden. The house is very nice, twelve years old but it doesn’t have a basement. Miriam said it’s 1700 square feet. It seems bigger than that, I asked how much it was. She said they bought it a month and a half ago for $169, 900. I said that sure was a good price.
I met Miriam’s husband Derek, he’s quite tall. No wonder Carter is so tall for his age. He’s even taller than Patrick.
Miriam asked me if Alex knew he was Chinese. I told her I explained to Alex he was Chinese and Canadian. Alex had told me he wasn’t Chinese. He was Canadian just like me. Miriam said Carter said the same thing.
Derek thanked Alex for coming. I said thank you for having him.
When we got home, I started to cook dinner. We ate dinner at six o’clock. We watched Cosby, of course then Alex watched three Cosby’s. he went to bed at eight thirty.
I watched tv and went to bed at ten o’clock.
No tests
Medication
Cough syrup ------ 12:15 p.m. --------
Mercaptopurine ------ ------ 7:50 p.m.
Temperature 35.96C 10:25 a.m. 36.57C 7:50 p.m.
I made the beds and put away the dishes. We took Alex to school and Miriam gave me their address and phone number. I told her Alex was diagnosed with Leukemia and he couldn’t be around anyone who is sick. I asked her to get Alex to phone me when they got home, if she didn’t mind. It makes me feel so much better. She said it would be no problem. I told her Alex has a cough and if she didn’t want Alex to go home I understood. She said no, it was okay. She said it must be hard with Alex being ill. Did he go to preschool? I said it’s hard and he didn’t go to preschool. She said it’ll be harder for him not getting sick. I said we’ve already noticed since Alex started school there’s not much we can do.
Charlie and I drove to Mom and Dad’s but they weren’t home, so we drove around Ranch Park. We saw a new listing on Daybreak. Charlie phoned Dean when we got home. It’s listed by ReMax for $209,000!
Mom phoned to say they had come by. I said we came to see you! We must of just missed each other. I told her we saw a house on Daybreak but it’s $209, 000. Mom said you should take a look at it they might come down. They would have to come down twenty or thirty thousand, which I doubt they would. Mom said you never know. I told her I would be down later.
I waited for Alex to phone me. He phoned at three ten, he said he had a good time at school and he was at Carter’s. I asked to talk to Carter’s mom. I told her I had to go out and gave her Mom and Dad’s phone number. I said I would pick Alex up at five o’clock.
I went to Mom and Dad’s, I asked Mom to check my blood pressure. It was still 140/80, I was hoping it would be lower. Mom thought it was good but I told her the doctor said it wasn’t.
I picked up Alex, the house was a bit hard to find. It’s a dead end street and the house is hidden. The house is very nice, twelve years old but it doesn’t have a basement. Miriam said it’s 1700 square feet. It seems bigger than that, I asked how much it was. She said they bought it a month and a half ago for $169, 900. I said that sure was a good price.
I met Miriam’s husband Derek, he’s quite tall. No wonder Carter is so tall for his age. He’s even taller than Patrick.
Miriam asked me if Alex knew he was Chinese. I told her I explained to Alex he was Chinese and Canadian. Alex had told me he wasn’t Chinese. He was Canadian just like me. Miriam said Carter said the same thing.
Derek thanked Alex for coming. I said thank you for having him.
When we got home, I started to cook dinner. We ate dinner at six o’clock. We watched Cosby, of course then Alex watched three Cosby’s. he went to bed at eight thirty.
I watched tv and went to bed at ten o’clock.
No tests
Medication
Cough syrup ------ 12:15 p.m. --------
Mercaptopurine ------ ------ 7:50 p.m.
Temperature 35.96C 10:25 a.m. 36.57C 7:50 p.m.
Friday, September 27, 2013
Diagnosis: Leukemia; September 27, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast.
I tried doing nothing like Dr. B said but it’s very hard. For one thing I feel so much better now then I did in the beginning of the pregnancy. I found doing nothing is boring as well as depressing. Now that we’re moving I keep thinking of all the packing to be done.
I picked Alex up at three o’clock and we came home. Alex watched tv while I rested.
Alex has a new friend at kindergarten named Carter. Carter wanted Alex to come over and play at his house but his mother was going out. We arranged for tomorrow and Carter to come to our house another day. I was surprised that Alex wanted to go to someone else’s house. He hasn’t been to anyone’s house for a very long time.
We ate dinner at six o’clock. After dinner we watched tv. Alex put away his toys, he realizes I can’t do it and he’s very good about putting his toys away.
Alex went to bed at eight o’clock. I watched tv, wrote in the journal and went to bed at eleven o’clock.
No tests
Medication
Cough Syrup 11:40 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ----- 7:15 p.m.
Temperature 36.25C 10:00 a.m. ------ 36.36C 8:00 p.m.
I tried doing nothing like Dr. B said but it’s very hard. For one thing I feel so much better now then I did in the beginning of the pregnancy. I found doing nothing is boring as well as depressing. Now that we’re moving I keep thinking of all the packing to be done.
I picked Alex up at three o’clock and we came home. Alex watched tv while I rested.
Alex has a new friend at kindergarten named Carter. Carter wanted Alex to come over and play at his house but his mother was going out. We arranged for tomorrow and Carter to come to our house another day. I was surprised that Alex wanted to go to someone else’s house. He hasn’t been to anyone’s house for a very long time.
We ate dinner at six o’clock. After dinner we watched tv. Alex put away his toys, he realizes I can’t do it and he’s very good about putting his toys away.
Alex went to bed at eight o’clock. I watched tv, wrote in the journal and went to bed at eleven o’clock.
No tests
Medication
Cough Syrup 11:40 a.m. ------- 8:00 p.m.
Mercaptopurine ------ ----- 7:15 p.m.
Temperature 36.25C 10:00 a.m. ------ 36.36C 8:00 p.m.
Thursday, September 26, 2013
Diagnosis: Leukemia; September 26, 1989
I woke up at seven thirty. I had a shower, got dressed and had my breakfast. Alex was already up and playing with his turtles.
I made and changed the beds then I got ready to go to the hospital. I had a time finding a parking space. The parking lot was full so I parked on the street.
The nurse took my weight, I had put on weight but not as much as two weeks again. Last week I had lost weight so from two weeks ago my weight is not yet the same.
Then I saw Ann, she said the blood sugars are good. You don’t have too much longer to go. I said yes, I can hardly wait. She asked me about the swelling in my feet. I said it seems to come and go.
I saw Dr. B next, she asked me if I had any swelling. I told her in my feet, mostly my right foot. She said they don’t look too bad. Dr. B asked me if I had any trouble with my blood pressure. I said not that I know of. She took my blood pressure, sitting up, lying down and on my side. Dr. B said my blood pressure was up. I asked her what my blood pressure was? Dr. B said it was 140/80. The last time I remember my blood pressure was 110/60 so it’s really up. She asked me when I was seeing Dr. C next. I told her this Friday. Dr. B said she would be phoning her this afternoon to see if she wanted to see me earlier.
Dr. B said I want you to rest more, don’t do any work and no grocery shopping. She asked how I had been sleeping. I told her the last few nights not very well. She said how come. I told her the baby has been kicking a lot so it’s been hard to sleep. I’ve been taking my son to kindergarten. Dr. B asked if anything stressful was happening. Not that taking Alex to kindergarten is stressful. I just find it very tiring. I also told her the problems Alex has been having due to his blood counts being so low. She asked how long he has had Leukemia. I told her for two years now. Dr. B said that’s a good sign. I can tell you not to worry but that’s a hard thing to do. Did he have a bone marrow test? I said yes and he has to have another one next month. She asked why is that. I said because there were immature cells either from it being done too soon after chemotherapy or it being cancer cells.
Dr. B asked me to ask Mary about salt. When I told Mary she said are you retaining fluids. I said yes and my blood pressure is up. She said then the foods you should avoid are ham, processed meats, cheese, pickles and goods that obviously have salt like chips and pretzels. Also no salt on cooked food but you can cook with salt.
Mary said your weight is okay, you put on this time. So all you have to do is have your non stress test.
I had to wait a long time for my turn on the non stress test. Unfortunately I forgot to bring a snack so it didn’t help when I was having the test. The baby didn’t like my position and kept kicking for quite awhile. The nurse said the baby has the hick ups. I told her if I change positions it usually stops. After awhile it did stop but the readings weren’t so good as the last few times. I think it was because I didn’t have my snack.
I left the clinic at twelve forty five. When I came home I had lunch right away, I was so hungry I had the shakes.
After lunch I worked on my knitting. I picked Alex up from school at three o’clock.
Alex played and watched tv after school. There are a lot of shows for him to watch like, Super Mario Brothers and three Teenage Mutant Ninja Turtles.
We ate dinner at six o’clock. After dinner we watched tv. Alex put away his toys since I’m not suppose to do anything now. Alex went to bed at eight o’clock. He sang me a song they learnt in school today.
In December for awhile I will ride a crocodile down the chicken soupy Nile. Paddle once paddle twice paddle chicken soup with rice.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- -------- 7:00 p.m.
Cough Syrup 9:00 a.m. ------ 9:00 p.m.
Temperature 36.00C 9:00 a.m. 36.08C 9:00 p.m.
I made and changed the beds then I got ready to go to the hospital. I had a time finding a parking space. The parking lot was full so I parked on the street.
The nurse took my weight, I had put on weight but not as much as two weeks again. Last week I had lost weight so from two weeks ago my weight is not yet the same.
Then I saw Ann, she said the blood sugars are good. You don’t have too much longer to go. I said yes, I can hardly wait. She asked me about the swelling in my feet. I said it seems to come and go.
I saw Dr. B next, she asked me if I had any swelling. I told her in my feet, mostly my right foot. She said they don’t look too bad. Dr. B asked me if I had any trouble with my blood pressure. I said not that I know of. She took my blood pressure, sitting up, lying down and on my side. Dr. B said my blood pressure was up. I asked her what my blood pressure was? Dr. B said it was 140/80. The last time I remember my blood pressure was 110/60 so it’s really up. She asked me when I was seeing Dr. C next. I told her this Friday. Dr. B said she would be phoning her this afternoon to see if she wanted to see me earlier.
Dr. B said I want you to rest more, don’t do any work and no grocery shopping. She asked how I had been sleeping. I told her the last few nights not very well. She said how come. I told her the baby has been kicking a lot so it’s been hard to sleep. I’ve been taking my son to kindergarten. Dr. B asked if anything stressful was happening. Not that taking Alex to kindergarten is stressful. I just find it very tiring. I also told her the problems Alex has been having due to his blood counts being so low. She asked how long he has had Leukemia. I told her for two years now. Dr. B said that’s a good sign. I can tell you not to worry but that’s a hard thing to do. Did he have a bone marrow test? I said yes and he has to have another one next month. She asked why is that. I said because there were immature cells either from it being done too soon after chemotherapy or it being cancer cells.
Dr. B asked me to ask Mary about salt. When I told Mary she said are you retaining fluids. I said yes and my blood pressure is up. She said then the foods you should avoid are ham, processed meats, cheese, pickles and goods that obviously have salt like chips and pretzels. Also no salt on cooked food but you can cook with salt.
Mary said your weight is okay, you put on this time. So all you have to do is have your non stress test.
I had to wait a long time for my turn on the non stress test. Unfortunately I forgot to bring a snack so it didn’t help when I was having the test. The baby didn’t like my position and kept kicking for quite awhile. The nurse said the baby has the hick ups. I told her if I change positions it usually stops. After awhile it did stop but the readings weren’t so good as the last few times. I think it was because I didn’t have my snack.
I left the clinic at twelve forty five. When I came home I had lunch right away, I was so hungry I had the shakes.
After lunch I worked on my knitting. I picked Alex up from school at three o’clock.
Alex played and watched tv after school. There are a lot of shows for him to watch like, Super Mario Brothers and three Teenage Mutant Ninja Turtles.
We ate dinner at six o’clock. After dinner we watched tv. Alex put away his toys since I’m not suppose to do anything now. Alex went to bed at eight o’clock. He sang me a song they learnt in school today.
In December for awhile I will ride a crocodile down the chicken soupy Nile. Paddle once paddle twice paddle chicken soup with rice.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- -------- 7:00 p.m.
Cough Syrup 9:00 a.m. ------ 9:00 p.m.
Temperature 36.00C 9:00 a.m. 36.08C 9:00 p.m.
Wednesday, September 25, 2013
Diagnosis: Leukemia; September 25, 1989
I woke up at eight o’clock. At least I slept better last night. I didn’t wake up so many times in the night.
I had a shower, got dressed and had my breakfast. Alex wasn’t up when I had my shower but he was when I came out.
He was annoyed that Charlie was watching tv. Alex said I never get to watch tv anymore. I told him Charlie only gets to watch tv during the morning since he works at night. No matter what Alex was still mad.
It must have been ten o’clock or later before Alex finally had his breakfast. He had his lunch shortly afterwards. Alex didn’t want to have a shower but I told him he must have a shower when he goes to school.
Charlie and I took Alex to school. Morgan stopped me on the way to the car. She said you sold your house, have you found another house yet? I said no not yet but my parents said we could stay with them. Morgan said well you can always rent. Then she asked when we were moving out. I told her October 31st. One of the other women asked when I was due. I told her the 17th. She said October? I said yes. She said but your so teeny. I told her that I had become a diabetic so that’s probably why. Mark said no junk food! The other women said when it rains it pours!
We drove around Rank Park then we went to get some boxes from the Liquor store.
After lunch I watched tv and did my knitting. Charlie left for work at two thirty. I went to pick Alex up at three o’clock. Alex invited Patrick over, Morgan said she would send him over. They played until five o’clock that’s when Patrick said he had to be home.
We ate dinner at six o’clock. After dinner we watched Cosby, of course! Alex and I put away his toys then he watched the second Cosby. Alex went to bed at eight o’clock. I went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 6:00 p.m.
Methotrexiate ------ ----- 6:00 p.m.
Temperature 36.65 10:30 a.m. ------ 36.74 8:00 p.m.
I had a shower, got dressed and had my breakfast. Alex wasn’t up when I had my shower but he was when I came out.
He was annoyed that Charlie was watching tv. Alex said I never get to watch tv anymore. I told him Charlie only gets to watch tv during the morning since he works at night. No matter what Alex was still mad.
It must have been ten o’clock or later before Alex finally had his breakfast. He had his lunch shortly afterwards. Alex didn’t want to have a shower but I told him he must have a shower when he goes to school.
Charlie and I took Alex to school. Morgan stopped me on the way to the car. She said you sold your house, have you found another house yet? I said no not yet but my parents said we could stay with them. Morgan said well you can always rent. Then she asked when we were moving out. I told her October 31st. One of the other women asked when I was due. I told her the 17th. She said October? I said yes. She said but your so teeny. I told her that I had become a diabetic so that’s probably why. Mark said no junk food! The other women said when it rains it pours!
We drove around Rank Park then we went to get some boxes from the Liquor store.
After lunch I watched tv and did my knitting. Charlie left for work at two thirty. I went to pick Alex up at three o’clock. Alex invited Patrick over, Morgan said she would send him over. They played until five o’clock that’s when Patrick said he had to be home.
We ate dinner at six o’clock. After dinner we watched Cosby, of course! Alex and I put away his toys then he watched the second Cosby. Alex went to bed at eight o’clock. I went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ------ ----- 6:00 p.m.
Methotrexiate ------ ----- 6:00 p.m.
Temperature 36.65 10:30 a.m. ------ 36.74 8:00 p.m.
Diagnosis: Leukemia; September 24, 1989
I woke up at eight thirty. I had another night where I didn’t sleep very well. The baby did a lot of kicking, he or she didn’t like the way I was lying down. Once I changed positions the baby stopped kicking so much. The other problem is my bladder kept on getting full and there was a pain. I don’t know if it was my bladder or something else.
I had my shower, got dressed and had breakfast. Alex was already up, he was watching tv.
Later in the morning Alex asked me if today was Kelly’s birthday today or tomorrow. I said today is Kelly’s birthday and he’s eight years old. Alex said we should make something and put a candle on it. I said putting a candle on something isn’t a good idea. Kelly will be scared of the fire on the candle. How about a rice crispy square, Kelly really likes them. Alex said okay. We went out to the back deck and sang “Happy Birthday” to Kelly and gave him his treat.
Charlie came back from grocery shopping. Alex told him what we had done. Charlie thought that was pretty silly.
After lunch we went to Metrotown. I need to buy a bathrobe and a pair of slippers. I found the bathrobe at Woodward’s and slippers at Sears. I had trouble getting the slippers to fit. My feet are swollen still and I can hardly wear my shoes.
We went to the Won Ton House in Vancouver to buy barbequed meat. Then we bought a submarine sandwich for Alex and myself. I have a lot of cravings in this pregnancy then with Alex. Actually with Alex I didn’t have any cravings at all.
Alex and I ate dinner when we got home. Charlie went to cut the lawn.
After dinner we watched tv. Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Prednisone ------- ------ 7:30 p.m.
Mercaptopurine ------- ------ 7:30 p.m.
Temperature 35.98C 9:30 a.m.
I had my shower, got dressed and had breakfast. Alex was already up, he was watching tv.
Later in the morning Alex asked me if today was Kelly’s birthday today or tomorrow. I said today is Kelly’s birthday and he’s eight years old. Alex said we should make something and put a candle on it. I said putting a candle on something isn’t a good idea. Kelly will be scared of the fire on the candle. How about a rice crispy square, Kelly really likes them. Alex said okay. We went out to the back deck and sang “Happy Birthday” to Kelly and gave him his treat.
Charlie came back from grocery shopping. Alex told him what we had done. Charlie thought that was pretty silly.
After lunch we went to Metrotown. I need to buy a bathrobe and a pair of slippers. I found the bathrobe at Woodward’s and slippers at Sears. I had trouble getting the slippers to fit. My feet are swollen still and I can hardly wear my shoes.
We went to the Won Ton House in Vancouver to buy barbequed meat. Then we bought a submarine sandwich for Alex and myself. I have a lot of cravings in this pregnancy then with Alex. Actually with Alex I didn’t have any cravings at all.
Alex and I ate dinner when we got home. Charlie went to cut the lawn.
After dinner we watched tv. Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Prednisone ------- ------ 7:30 p.m.
Mercaptopurine ------- ------ 7:30 p.m.
Temperature 35.98C 9:30 a.m.
Monday, September 23, 2013
Diagnosis: Leukemia; September 23, 1989
I woke up at seven thirty. I had a shower, got dressed and had my breakfast.
I haven’t been sleeping that well lately, I should say the last few days. I had pain last night on the left side, I think it’s my bladder.
Charlie and I cleaned up the house since Dean said he would be over today. Charlie phoned him at noon but he said he wasn’t planning on coming over. I wish he would of said that last night when I talked to him. Dean asked Charlie to turn the sign around to read sold. Charlie said to me he felt funny changing the sign around.
After lunch we took Alex to get his hair cut. He wanted to go to Smarty Cuts which is located beside the library at Lincoln Centre. The woman did a good job on cutting Alex’s hair. Alex said a lot better than when we went to Topy’s. Smarty Cuts has special chairs for the kids and a tv with cartoons on it.
We also went to Westwood mall to see their Grand opening. It looks better than it did and there were quite a few people there.
We came home around two o’clock.
I was so tired from not having a good sleep last night that I went for a nap. I work up at four thirty.
We went to Yan’s for dinner in Port Moody. We came home afterwards. Mom still has her cold so we can’t see them just yet.
We watched tv, Alex went to be at nine o’clock. It was pretty hard getting him to go to bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone ------ ------ 8:00 p.m.
Temperature 36.47C 9:45 a.m. ------ 36.20C 8:00 p.m.
I haven’t been sleeping that well lately, I should say the last few days. I had pain last night on the left side, I think it’s my bladder.
Charlie and I cleaned up the house since Dean said he would be over today. Charlie phoned him at noon but he said he wasn’t planning on coming over. I wish he would of said that last night when I talked to him. Dean asked Charlie to turn the sign around to read sold. Charlie said to me he felt funny changing the sign around.
After lunch we took Alex to get his hair cut. He wanted to go to Smarty Cuts which is located beside the library at Lincoln Centre. The woman did a good job on cutting Alex’s hair. Alex said a lot better than when we went to Topy’s. Smarty Cuts has special chairs for the kids and a tv with cartoons on it.
We also went to Westwood mall to see their Grand opening. It looks better than it did and there were quite a few people there.
We came home around two o’clock.
I was so tired from not having a good sleep last night that I went for a nap. I work up at four thirty.
We went to Yan’s for dinner in Port Moody. We came home afterwards. Mom still has her cold so we can’t see them just yet.
We watched tv, Alex went to be at nine o’clock. It was pretty hard getting him to go to bed.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------ ------ 8:00 p.m.
Prednisone ------ ------ 8:00 p.m.
Temperature 36.47C 9:45 a.m. ------ 36.20C 8:00 p.m.
Sunday, September 22, 2013
Diagnosis: Leukemia; September 22, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast. Alex woke up at nine o’clock. Since Alex started back on his medication, I’ve noticed a big change in him. He’s once again cranky and moody.
I left for the doctor’s at eleven o’clock. I didn’t have to wait very long. Dr. C asked about Alex, I told her his counts had come up. When I told her Alex would have to have another bone marrow test a day before my due date. Dr. C was really upset, she said do they know what your due date is? I said probably not. Dr. C said you better tell them to change the appointment. I told her once they make the appointment you can’t change it. She said in that case make sure you have a ride to the hospital. I had told her Charlie was taking the day off to take him to the hospital. I said my parents will be here. Dr. C said where do they live, are they close by? I said they only live a few blocks away.
I asked Dr. C when she would be away. She said she was going on a seminar on the 11th, 12th, and 13th of October. If I went into labour after hours she would be doing the delivery. The only thing is if I’m downtown at the seminar I might get stuck in traffic and not make it, she said. I told her Dr. W didn’t make it for Alex’s delivery.
Dr. C felt for the baby’s position. I asked her what the hard bump in the middle of my stomach was. She said she thought it was probably the baby’s bottom. Dr. C said she couldn’t determine the position of the baby, so she wants me to go for an ultra sound. Dr. said it’s better to know the position of the baby so we are prepared. She thinks it might be breached, I didn’t tell her Mom had Blair breached. I always thought the baby could move right up until it’s born.
Dr. C also ordered a blood test to check my iron and folic acid level.
I went to the lab and had my blood test. I also went to the reception to book the appointment for the ultra sound. She seemed to be annoyed that I only wanted a Tuesday appointment. Dr. C said I might as well go the same day as when I go to the clinic. The receptionist said she would phone later as there wasn’t anyone there.
I went to Safeway to buy a few groceries then I went home. Charlie had taken Alex to school.
I tided up the house after I had my lunch. Charlie phoned Dean, he phoned back later to say he got a verbal confirmation that the purchasers mortgage had gone through. That sure was good news. I’ll feel better when we get it in writing.
Charlie went to work, I went to pick Alex up before three o’clock. Mrs. Wall said to Alex show your Mom around the classroom since she didn’t come last night. I told her I hadn’t been able to come. She said I hadn’t missed much.
Alex showed me where the story books are kept, the toys and where they did the games. Alex said he did the dinosaur game and he got a sticker.
We went home right after school. Alex watched tv, he did phone a few of his friends but they were already playing. Alex really wanted to play with someone, and was quite upset.
We made rice crispy squares which Alex really enjoyed.
We ate diner at six o’clock, after dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- ----- 7:30 p.m.
Prednisone ------ ------ 7:30 p.m.
I left for the doctor’s at eleven o’clock. I didn’t have to wait very long. Dr. C asked about Alex, I told her his counts had come up. When I told her Alex would have to have another bone marrow test a day before my due date. Dr. C was really upset, she said do they know what your due date is? I said probably not. Dr. C said you better tell them to change the appointment. I told her once they make the appointment you can’t change it. She said in that case make sure you have a ride to the hospital. I had told her Charlie was taking the day off to take him to the hospital. I said my parents will be here. Dr. C said where do they live, are they close by? I said they only live a few blocks away.
I asked Dr. C when she would be away. She said she was going on a seminar on the 11th, 12th, and 13th of October. If I went into labour after hours she would be doing the delivery. The only thing is if I’m downtown at the seminar I might get stuck in traffic and not make it, she said. I told her Dr. W didn’t make it for Alex’s delivery.
Dr. C felt for the baby’s position. I asked her what the hard bump in the middle of my stomach was. She said she thought it was probably the baby’s bottom. Dr. C said she couldn’t determine the position of the baby, so she wants me to go for an ultra sound. Dr. said it’s better to know the position of the baby so we are prepared. She thinks it might be breached, I didn’t tell her Mom had Blair breached. I always thought the baby could move right up until it’s born.
Dr. C also ordered a blood test to check my iron and folic acid level.
I went to the lab and had my blood test. I also went to the reception to book the appointment for the ultra sound. She seemed to be annoyed that I only wanted a Tuesday appointment. Dr. C said I might as well go the same day as when I go to the clinic. The receptionist said she would phone later as there wasn’t anyone there.
I went to Safeway to buy a few groceries then I went home. Charlie had taken Alex to school.
I tided up the house after I had my lunch. Charlie phoned Dean, he phoned back later to say he got a verbal confirmation that the purchasers mortgage had gone through. That sure was good news. I’ll feel better when we get it in writing.
Charlie went to work, I went to pick Alex up before three o’clock. Mrs. Wall said to Alex show your Mom around the classroom since she didn’t come last night. I told her I hadn’t been able to come. She said I hadn’t missed much.
Alex showed me where the story books are kept, the toys and where they did the games. Alex said he did the dinosaur game and he got a sticker.
We went home right after school. Alex watched tv, he did phone a few of his friends but they were already playing. Alex really wanted to play with someone, and was quite upset.
We made rice crispy squares which Alex really enjoyed.
We ate diner at six o’clock, after dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Mercaptopurine ------- ----- 7:30 p.m.
Prednisone ------ ------ 7:30 p.m.
Diagnosis: Leukemia; September 21, 1989
I woke up at eight thirty. I had a shower, got dressed and had my breakfast.
Alex woke up at seven thirty. He doesn’t seem to require as much sleep as he did before.
I went out at ten o’clock to get my hair cut. Since I’ve been pregnant my hair has been become quite damaged and split. It’s cut quite short, the shortest it’s been for awhile but it’ll be easy to keep for the next while. I need something easy now and when the baby comes.
I came home at eleven thirty. I had my snack and got Alex ready for school. They have to bring a snack as they stay form 12:30 p.m. until 3:00 p.m.
Charlie came with us to the school. After we had taken Alex to school we drove around Ranch Park then we went to Super store. I hadn’t been since it opened. It’s too big for me to walk around. The childrens’clothing does seem to be well priced.
After we came home I had my lunch. I cleaned up the house put away some of Alex’s toys. Then it was time to go and get Alex.
When we first went to take Alex to school, the other kids said Alex is here. One girl even told Mrs Wall.
Alex said he was the special friend today. He got to do what the teacher usually does. He also told them about his summer memories poster.
When we came home Alex watched tv while I relaxed.
We ate dinner at five thirty. After dinner we watched Cosby then Alex went to bed. Alex helped me put away his toys before he went to sleep. Alex told me while I was tucking him into bed that school really tires him out.
I watched tv and went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ----- ----- 5:30 p.m.
Prednisone ------ ----- 5:30 p.m.
Temperature 37.03C 10:00 a.m. 36.73C 4:00 p.m. 35.99C 8:50 p.m.
Alex woke up at seven thirty. He doesn’t seem to require as much sleep as he did before.
I went out at ten o’clock to get my hair cut. Since I’ve been pregnant my hair has been become quite damaged and split. It’s cut quite short, the shortest it’s been for awhile but it’ll be easy to keep for the next while. I need something easy now and when the baby comes.
I came home at eleven thirty. I had my snack and got Alex ready for school. They have to bring a snack as they stay form 12:30 p.m. until 3:00 p.m.
Charlie came with us to the school. After we had taken Alex to school we drove around Ranch Park then we went to Super store. I hadn’t been since it opened. It’s too big for me to walk around. The childrens’clothing does seem to be well priced.
After we came home I had my lunch. I cleaned up the house put away some of Alex’s toys. Then it was time to go and get Alex.
When we first went to take Alex to school, the other kids said Alex is here. One girl even told Mrs Wall.
Alex said he was the special friend today. He got to do what the teacher usually does. He also told them about his summer memories poster.
When we came home Alex watched tv while I relaxed.
We ate dinner at five thirty. After dinner we watched Cosby then Alex went to bed. Alex helped me put away his toys before he went to sleep. Alex told me while I was tucking him into bed that school really tires him out.
I watched tv and went to bed at ten o’clock.
No Tests
Medication
Mercaptopurine ----- ----- 5:30 p.m.
Prednisone ------ ----- 5:30 p.m.
Temperature 37.03C 10:00 a.m. 36.73C 4:00 p.m. 35.99C 8:50 p.m.
Friday, September 20, 2013
Diagnosis: Leukemia; September 20, 1989
I woke up at six thirty. Actually I didn’t sleep well last night, I must of woken up at least three times. I’m really worried about Alex. It’s hard to know what’ll happen now.
I had a shower, got dressed and had breakfast. Alex woke up at seven o’clock. He had breakfast after he had his shower and got dressed.
We left for the hospital at eight fifteen. The traffic wasn’t very good on the freeway. When we got to the hospital it took us fifteen minutes to find a parking space.
Alex’s appointment is for nine o’clock but we got to the clinic at nine twenty. It was nine forty before he had his blood test.
Alex and I went to the cafeteria, Alex had a chocolate donut. He wanted chocolate milk as well but I said no that was too much chocolate at one time.
It was ten forty five before Alex had his LP. I heard Laurel say to the other nurses, 4.9 that sure is a lot better form the last time he was in. I thought they couldn’t be talking about Alex. I checked the printout and sure enough Alex’s WBC is 4.9, his ANC hadn’t come in yet. I didn’t get my hopes up that it had come up. Since all the numbers from the Neutrophils down make up the WBC.
I talked to Charlie before Alex’s LP. He had stayed home to wait for the appraiser to come. The appraiser had phoned last night, I told him we had an appointment and I didn’t know when we would be back. He gave me his pager number to let him know. So I asked Charlie if he had gotten a hold of him yet. Charlie said he would be there at eleven o’clock. Charlie asked about Alex I told him his WBC is 4.9 and his ANC wasn’t here yet. Charlie said to phone him back when I knew more.
So anyways Alex had his LP, his ANC is 3087. It sure came up in one week. Alex was really upset that he had to have an LP. When the nurse put him on the table, he said but it’s going to hurt. I said I thought you told me it was better than a bone marrow test. Alex said yes but it still hurts. I said yes it does but it has to be done so they can check the water in your back to make sure its okay.
Dr. S told him I would hold him during his LP. I told her I wouldn’t be able to as I have back problems. Even if I was able to I don’t know where I would put my stomach!
Joanne held Alex while I showed him the pop up books. Another nurse was standing by watching. I had never seen her before, she must be new.
Alex is really good through out the whole procedure. He just had a normal problem with it. Once it’s all over with he’s fine. It’s too bad he couldn’t sit straight but he usually sits crooked.
Joanne took Alex to the waiting area to lie down. There were a lot of people there now. I had to sit across the room from Alex which he didn’t seem to like.
I asked Joanne if Dr. S had left Alex’s prescription yet. Another nurse was just bringing it. I told Alex I was going to the pharmacy. He said don’t take too long. Alex asked me to buy him chocolate raisins.
The pharmacist said it would be half an hour for the prescription. I bought Alex his raisins and myself some grapes.
On the way back to the clinic Dr. S stopped me. She told me she was going to stop the Septra. She said she thought it might be interfering with Alex’s counts.
During Alex’s LP, Dr. S told me Alex would have to have another bone marrow test. They would have to check it to make sure the immature cells were gone. I said so you’ll do that at least three weeks after Alex has chemotherapy? Dr. S said we’ll do it just before he has chemotherapy. I’ll schedule it for next month.
I phoned Charlie to let him know that Alex’s counts were up and that he had a LP. Charlie said that sure is good news. I’ll phone Mom and tell her. I said okay.
At eleven forty, Margaret called Alex to have his chemotherapy. Unfortunately Laurel threw Alex’s medicine out. Margaret had opened two patients medicine together and had done the other child’s first. Now we have to wait for another forty five minutes.
Laurel did apologize a couple of times but there was nothing to be done.
Margaret said Alex doesn’t mind staying longer do you Alex? Alex said no he doesn’t mind. I said he might not mind but I sure do.
At twelve thirty, Alex finally had his chemo. Lorraine blew bubbles for Alex which helped him get his mind off of it.
I showed Margaret Alex’s arm where his skin has become scarred. I wondered if it was where the chemo had burnt the inside tissue. One of the nurses had put the needle in the vein, but it had gone through to the other side. The chemo went into the tissue instead of the vein. Karen said most likely it was.
We got home after one o’clock. It was too late to take Alex to school and anyways he had enough for one day.
Charlie said the appraiser had been at eleven o’clock. He took a lot of pictures of the house, inside and out. The appraiser checked the walls, looked at the paint. Charlie told him all the features of the house and gave him the house plans. The appraiser said he would mail them back to him.
Charlie went to work at two thirty. Alex and I went to see Mrs. Wall at his school at two thirty. We also returned Alex’s library book.
Mrs. Wall told Alex she was happy to see him. I told her the doctor said Alex could come back to school tomorrow. She said that’s really good.
I asked Mrs. Wall if she had heard anything about the measles break out and if there were any in the school. She said she hadn’t heard anything but she would let me know.
Mrs. Wall gave Alex a squirrel to cut out and a picture for him to draw of himself. She said she wouldn’t give him too many things to do just yet.
We went to the bank and then to the mall. Alex wanted to buy sewer swingin Donatello and I said he could also have Rockn’roll Michelangelo. We went to McDonald’s for dinner and came home.
I was exhausted from everything we had to do today.
Alex played with his new toys and even put Donatello in the bath tub.
Alex went to bed at eight o’clock. I watched tv and went to bed at nine o’clock.
Tests
WBC 4.9
HGB 13.6
Platelets 311
ANC 3087
Medication
Mercaptopurine ------ ------ 6:30 p.m.
Prednisone ------- ------ 6:30 p.m.
Temperature 36.21C 7:45 a.m. 36.67C 7:20 p.m.
I had a shower, got dressed and had breakfast. Alex woke up at seven o’clock. He had breakfast after he had his shower and got dressed.
We left for the hospital at eight fifteen. The traffic wasn’t very good on the freeway. When we got to the hospital it took us fifteen minutes to find a parking space.
Alex’s appointment is for nine o’clock but we got to the clinic at nine twenty. It was nine forty before he had his blood test.
Alex and I went to the cafeteria, Alex had a chocolate donut. He wanted chocolate milk as well but I said no that was too much chocolate at one time.
It was ten forty five before Alex had his LP. I heard Laurel say to the other nurses, 4.9 that sure is a lot better form the last time he was in. I thought they couldn’t be talking about Alex. I checked the printout and sure enough Alex’s WBC is 4.9, his ANC hadn’t come in yet. I didn’t get my hopes up that it had come up. Since all the numbers from the Neutrophils down make up the WBC.
I talked to Charlie before Alex’s LP. He had stayed home to wait for the appraiser to come. The appraiser had phoned last night, I told him we had an appointment and I didn’t know when we would be back. He gave me his pager number to let him know. So I asked Charlie if he had gotten a hold of him yet. Charlie said he would be there at eleven o’clock. Charlie asked about Alex I told him his WBC is 4.9 and his ANC wasn’t here yet. Charlie said to phone him back when I knew more.
So anyways Alex had his LP, his ANC is 3087. It sure came up in one week. Alex was really upset that he had to have an LP. When the nurse put him on the table, he said but it’s going to hurt. I said I thought you told me it was better than a bone marrow test. Alex said yes but it still hurts. I said yes it does but it has to be done so they can check the water in your back to make sure its okay.
Dr. S told him I would hold him during his LP. I told her I wouldn’t be able to as I have back problems. Even if I was able to I don’t know where I would put my stomach!
Joanne held Alex while I showed him the pop up books. Another nurse was standing by watching. I had never seen her before, she must be new.
Alex is really good through out the whole procedure. He just had a normal problem with it. Once it’s all over with he’s fine. It’s too bad he couldn’t sit straight but he usually sits crooked.
Joanne took Alex to the waiting area to lie down. There were a lot of people there now. I had to sit across the room from Alex which he didn’t seem to like.
I asked Joanne if Dr. S had left Alex’s prescription yet. Another nurse was just bringing it. I told Alex I was going to the pharmacy. He said don’t take too long. Alex asked me to buy him chocolate raisins.
The pharmacist said it would be half an hour for the prescription. I bought Alex his raisins and myself some grapes.
On the way back to the clinic Dr. S stopped me. She told me she was going to stop the Septra. She said she thought it might be interfering with Alex’s counts.
During Alex’s LP, Dr. S told me Alex would have to have another bone marrow test. They would have to check it to make sure the immature cells were gone. I said so you’ll do that at least three weeks after Alex has chemotherapy? Dr. S said we’ll do it just before he has chemotherapy. I’ll schedule it for next month.
I phoned Charlie to let him know that Alex’s counts were up and that he had a LP. Charlie said that sure is good news. I’ll phone Mom and tell her. I said okay.
At eleven forty, Margaret called Alex to have his chemotherapy. Unfortunately Laurel threw Alex’s medicine out. Margaret had opened two patients medicine together and had done the other child’s first. Now we have to wait for another forty five minutes.
Laurel did apologize a couple of times but there was nothing to be done.
Margaret said Alex doesn’t mind staying longer do you Alex? Alex said no he doesn’t mind. I said he might not mind but I sure do.
At twelve thirty, Alex finally had his chemo. Lorraine blew bubbles for Alex which helped him get his mind off of it.
I showed Margaret Alex’s arm where his skin has become scarred. I wondered if it was where the chemo had burnt the inside tissue. One of the nurses had put the needle in the vein, but it had gone through to the other side. The chemo went into the tissue instead of the vein. Karen said most likely it was.
We got home after one o’clock. It was too late to take Alex to school and anyways he had enough for one day.
Charlie said the appraiser had been at eleven o’clock. He took a lot of pictures of the house, inside and out. The appraiser checked the walls, looked at the paint. Charlie told him all the features of the house and gave him the house plans. The appraiser said he would mail them back to him.
Charlie went to work at two thirty. Alex and I went to see Mrs. Wall at his school at two thirty. We also returned Alex’s library book.
Mrs. Wall told Alex she was happy to see him. I told her the doctor said Alex could come back to school tomorrow. She said that’s really good.
I asked Mrs. Wall if she had heard anything about the measles break out and if there were any in the school. She said she hadn’t heard anything but she would let me know.
Mrs. Wall gave Alex a squirrel to cut out and a picture for him to draw of himself. She said she wouldn’t give him too many things to do just yet.
We went to the bank and then to the mall. Alex wanted to buy sewer swingin Donatello and I said he could also have Rockn’roll Michelangelo. We went to McDonald’s for dinner and came home.
I was exhausted from everything we had to do today.
Alex played with his new toys and even put Donatello in the bath tub.
Alex went to bed at eight o’clock. I watched tv and went to bed at nine o’clock.
Tests
WBC 4.9
HGB 13.6
Platelets 311
ANC 3087
Medication
Mercaptopurine ------ ------ 6:30 p.m.
Prednisone ------- ------ 6:30 p.m.
Temperature 36.21C 7:45 a.m. 36.67C 7:20 p.m.
Diagnosis: Leukemia; September 19, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast.
Every day now I have to count how many movements the baby has. Within fifteen minutes or half an hour the baby moves two times. I remember when I was pregnant with Alex he didn’t move around that much. This baby is a lot more active than Alex.
I went to the diabetic clinic just after ten o’clock. There were quite a few people there. I had to wait quite awhile for the nurse, doctor and dietician. The nurse said I lost weight which is different. Ann said my blood sugars were good and I didn’t have too much longer to go. I said it sure isn’t what I expected. She said you’ve been coming for a long time.
When I saw the doctor, she said you’re doing well and your blood sugars are good. Dr. B said you’re passed the time when the blood sugars get worse. Usually between the 30th and 35th week the blood sugars get worse and insulin would be needed at that time. Dr. B said not saying they won’t get worse but we’ll keep an eye on them. Keep testing two days of every week. She said the only other problem to watch out for is water retention and high blood pressure. She said you’re doing well right now.
I saw Mary, she said you lost weight. Are you eating less? I said no but I’m more active much more active than I was at the beginning of my pregnancy. Mary said I think we will just keep things the way they are unless you feel you need more food. I said no I’m fine with the diet.
Then I had to wait to have my non stress test. All this waiting sure is hard to stand.
When I had my non stress test the baby moved about thirty times and I had one contraction. I didn’t feel the contraction at all.
By the time I left it was twelve thirty. It’s a lot better having a one o’clock appointment. It took only an hour but a morning appointment takes two hours.
I went to the mall afterwards, I had lunch and did some shopping. I got home at one thirty.
Alex watched tv while I did my knitting.
We ate dinner at five o’clock. The food didn’t agree with me. I had diarrhea. Some of the chicken rice wasn’t that hot. I reheated it up once I realized it. I hope I don’t get food poisoning. I remember years ago I ate rice with chicken flavouring and got food poisoning. I thought it was plain rice but Charlie had added chicken stock. I was really sick for a day or two.
After dinner we watched Cosby of course! Alex went to bed at eight o’clock. I watched tv, wrote in the journal and I’m going to bed soon.
No Tests
No Medication
Temperature 35.27 8:50 a.m. 36.05C 3:30 p.m. 36.10C 8:00 p.m.
Every day now I have to count how many movements the baby has. Within fifteen minutes or half an hour the baby moves two times. I remember when I was pregnant with Alex he didn’t move around that much. This baby is a lot more active than Alex.
I went to the diabetic clinic just after ten o’clock. There were quite a few people there. I had to wait quite awhile for the nurse, doctor and dietician. The nurse said I lost weight which is different. Ann said my blood sugars were good and I didn’t have too much longer to go. I said it sure isn’t what I expected. She said you’ve been coming for a long time.
When I saw the doctor, she said you’re doing well and your blood sugars are good. Dr. B said you’re passed the time when the blood sugars get worse. Usually between the 30th and 35th week the blood sugars get worse and insulin would be needed at that time. Dr. B said not saying they won’t get worse but we’ll keep an eye on them. Keep testing two days of every week. She said the only other problem to watch out for is water retention and high blood pressure. She said you’re doing well right now.
I saw Mary, she said you lost weight. Are you eating less? I said no but I’m more active much more active than I was at the beginning of my pregnancy. Mary said I think we will just keep things the way they are unless you feel you need more food. I said no I’m fine with the diet.
Then I had to wait to have my non stress test. All this waiting sure is hard to stand.
When I had my non stress test the baby moved about thirty times and I had one contraction. I didn’t feel the contraction at all.
By the time I left it was twelve thirty. It’s a lot better having a one o’clock appointment. It took only an hour but a morning appointment takes two hours.
I went to the mall afterwards, I had lunch and did some shopping. I got home at one thirty.
Alex watched tv while I did my knitting.
We ate dinner at five o’clock. The food didn’t agree with me. I had diarrhea. Some of the chicken rice wasn’t that hot. I reheated it up once I realized it. I hope I don’t get food poisoning. I remember years ago I ate rice with chicken flavouring and got food poisoning. I thought it was plain rice but Charlie had added chicken stock. I was really sick for a day or two.
After dinner we watched Cosby of course! Alex went to bed at eight o’clock. I watched tv, wrote in the journal and I’m going to bed soon.
No Tests
No Medication
Temperature 35.27 8:50 a.m. 36.05C 3:30 p.m. 36.10C 8:00 p.m.
Wednesday, September 18, 2013
Diagnosis: Leukemia; September 18, 1989
I woke up at eight o’clock. I had a shower got dressed and had my breakfast.
Judy of Season Realty had phoned last night, she has a client who wants to see the house at twelve or twelve thirty.
So here we are again cleaning up the house. At least we don’t have to do so many things since we did most of the cleaning yesterday.
Dean phoned before eleven o’clock, he said Chris of Multiple Realty had an offer from his client. Dean said he would be over at eleven thirty.
Dean came first then Chris came shortly afterwards. The offer is for $177, 000 financing to be arranged by the 26th, to include the fridge, stove, dishwasher all drapes and vacuum canister. We felt it was a good offer. Dean said he wants the date for the financing to be changed to September 22nd. Chris said his client should be able to accept that. We had to initial the changes and so will the other people. Now we will have to wait for the financing to go through.
Judy arrived before we were finished. Dean told Charlie to tell he to wait a few minutes that there was someone in the house. She left and came back fifteen minutes later.
I went to Save On Foods to buy a few groceries and picked up Kelly.
Dean phoned later in the afternoon, he said Heather of Royal LePage wants to bring a client at seven thirty. He said she knows that there has been an offer.
We ate dinner at five thirty. After dinner we watched Cosby. Then we tided up the house and put away Alex’s toys.
Heather and her client arrived at seven thirty. They stayed for quite awhile.
Alex got ready for bed then he watched the second Cosby show. Alex went to bed at eight o’clock.
I watched tv and went to bed at nine o’clock. I was really tired.
No Tests
Medication
Bactrim -------- 2:45 p.m. 8:40 p.m.
Temperature 36.56 9:25 a.m. 36>75 6:00 p.m. 36.17 8:00 p.m.
Judy of Season Realty had phoned last night, she has a client who wants to see the house at twelve or twelve thirty.
So here we are again cleaning up the house. At least we don’t have to do so many things since we did most of the cleaning yesterday.
Dean phoned before eleven o’clock, he said Chris of Multiple Realty had an offer from his client. Dean said he would be over at eleven thirty.
Dean came first then Chris came shortly afterwards. The offer is for $177, 000 financing to be arranged by the 26th, to include the fridge, stove, dishwasher all drapes and vacuum canister. We felt it was a good offer. Dean said he wants the date for the financing to be changed to September 22nd. Chris said his client should be able to accept that. We had to initial the changes and so will the other people. Now we will have to wait for the financing to go through.
Judy arrived before we were finished. Dean told Charlie to tell he to wait a few minutes that there was someone in the house. She left and came back fifteen minutes later.
I went to Save On Foods to buy a few groceries and picked up Kelly.
Dean phoned later in the afternoon, he said Heather of Royal LePage wants to bring a client at seven thirty. He said she knows that there has been an offer.
We ate dinner at five thirty. After dinner we watched Cosby. Then we tided up the house and put away Alex’s toys.
Heather and her client arrived at seven thirty. They stayed for quite awhile.
Alex got ready for bed then he watched the second Cosby show. Alex went to bed at eight o’clock.
I watched tv and went to bed at nine o’clock. I was really tired.
No Tests
Medication
Bactrim -------- 2:45 p.m. 8:40 p.m.
Temperature 36.56 9:25 a.m. 36>75 6:00 p.m. 36.17 8:00 p.m.
Diagnosis: Leukemia; September 17, 1989
I woke up before eight o’clock. I heard Charlie in the bathroom which woke me up.
I had a shower, got dressed and had my breakfast.
We got a call from Chris of Multiple Realty, he said his client wants to see the house at 2:30 P.M. We also got a call from Charlie of Park Georgia. He said he would bring his client at two o’clock.
We got busy and cleaned up the house. I did the bathrooms, dusted most of the house and vacuumed the basement. Charlie vacuumed the rest of the house and cleaned the bath tubs.
I took Kelly to Mom and Dad’s and went shopping. I went to the mall and bought Alex a pair of turtle mitts and a turtle belt. They were 25% off, which was good.
My hip was really bothering me, too much housework. By the time I got home I could hardly walk. I feel like I need a cane to walk! Even in the house I have to hold onto something or I feel like I’m going to fall down.
When I got home Charlie said Chris’ client came at two thirty. He said Chris didn’t come but his client gave him Chris’ card. Charlie said they asked a lot of questions and seemed quite interested in the house.
Charlie said Charlie cancelled as his client couldn’t make it. He didn’t phone until three o’clock.
We ate dinner at six o’clock. After dinner we watched tv. Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
No Tests
No -Medication
Temperature 36.74C 9:15 a.m. 36.89C 6:00 p.m. 36.17C 8:00 p.m.
I had a shower, got dressed and had my breakfast.
We got a call from Chris of Multiple Realty, he said his client wants to see the house at 2:30 P.M. We also got a call from Charlie of Park Georgia. He said he would bring his client at two o’clock.
We got busy and cleaned up the house. I did the bathrooms, dusted most of the house and vacuumed the basement. Charlie vacuumed the rest of the house and cleaned the bath tubs.
I took Kelly to Mom and Dad’s and went shopping. I went to the mall and bought Alex a pair of turtle mitts and a turtle belt. They were 25% off, which was good.
My hip was really bothering me, too much housework. By the time I got home I could hardly walk. I feel like I need a cane to walk! Even in the house I have to hold onto something or I feel like I’m going to fall down.
When I got home Charlie said Chris’ client came at two thirty. He said Chris didn’t come but his client gave him Chris’ card. Charlie said they asked a lot of questions and seemed quite interested in the house.
Charlie said Charlie cancelled as his client couldn’t make it. He didn’t phone until three o’clock.
We ate dinner at six o’clock. After dinner we watched tv. Alex went to bed at eight o’clock. I went to bed at eleven o’clock.
No Tests
No -Medication
Temperature 36.74C 9:15 a.m. 36.89C 6:00 p.m. 36.17C 8:00 p.m.
Monday, September 16, 2013
Diagnosis: Leukemia; September 16, 1989
I woke up at eight thirty. I had a shower and got dressed. Alex was already up and dressed. He was wrapping presents for one of his turtles birthday’s!
I’m still having a lot of trouble getting Alex to eat. Especially breakfast, he doesn’t seem to like having breakfast any more.
We went out before noon to look at a few houses. One was too close to Lougheed Highway and the other one was across the street from a school. Being that close to the school isn’t a good idea. Especially for Charlie, I’m sure the noise would bother him.
We came home and had lunch. Charlie went out in the afternoon, he’s really bored.
I talked to Mom, she said she has a sore throat now. Dad had it a few days ago but he’s okay now. We can’t go there now if Alex got near them I’m sure he would get it.
We went for a drive at four thirty and got a take out.
We ate dinner at six o’clock. After dinner I washed the dishes and tided up the house. Before Alex went to bed we picked up his toys.
Alex went to bed at eight o’clock, but at nine o’clock he was up asking for a cup of water. I told him that was the last time I wanted him out of bed.
I watched tv and went to bed at eleven thirty.
No Tests
No Medication
Temperature 36.68C 9:40 a.m. 37.17C 1:55 p.m. 36.82C 8:00 p.m.
I’m still having a lot of trouble getting Alex to eat. Especially breakfast, he doesn’t seem to like having breakfast any more.
We went out before noon to look at a few houses. One was too close to Lougheed Highway and the other one was across the street from a school. Being that close to the school isn’t a good idea. Especially for Charlie, I’m sure the noise would bother him.
We came home and had lunch. Charlie went out in the afternoon, he’s really bored.
I talked to Mom, she said she has a sore throat now. Dad had it a few days ago but he’s okay now. We can’t go there now if Alex got near them I’m sure he would get it.
We went for a drive at four thirty and got a take out.
We ate dinner at six o’clock. After dinner I washed the dishes and tided up the house. Before Alex went to bed we picked up his toys.
Alex went to bed at eight o’clock, but at nine o’clock he was up asking for a cup of water. I told him that was the last time I wanted him out of bed.
I watched tv and went to bed at eleven thirty.
No Tests
No Medication
Temperature 36.68C 9:40 a.m. 37.17C 1:55 p.m. 36.82C 8:00 p.m.
Sunday, September 15, 2013
Diagnosis: Leukemia; September 15, 1989
I woke up at eight o’clock. I had a shower, got dressed and had my breakfast.
I wrote in the journal for about an hour. I wrapped Pearl’s present and Charlie went out and mailed it.
In the afternoon I worked on my knitting. I haven’t done it for quite awhile. Mind you I’m almost finished, I just have to do the collar and the front middle where the button wholes go.
Alex and I left to go to the doctors. We didn’t have to wait very long in the waiting room but we had to wait quite awhile in the examining room.
Dr. C said your Mom tells me Alex’s counts are down. I said yes. I told her Alex’s ANC is 294 and he has been off his chemo pills for three weeks now. His counts haven’t come up just yet. I also said I wasn’t too pleased about Alex having a bone marrow test. I explained that Alex had it too soon after having chemo and finished his prednisone. Dr. C understood what I was talking about but didn’t comment on it. She checked Alex out and said you seem to be okay Alex, what’s going on with you. You seem to have become sensitive to chemotherapy all of a sudden.
Then it was my turn, she gave me a kick chart to fill out. She said to record ten movements of the baby daily.
Dr. C checked the baby and she said the baby’s heartbeat is 150. She also checked my blood pressure which is 120/60. I told her my feet were swelling up. She said are you putting up your feet? I said yes I am. My feet seem to swell up in the evening. Dr. C said the callus on my foot would be giving me pain as it is so thick. She said try soaking and removing it or using a corn pad. If that doesn’t work I’ll send you to a foot doctor.
Unfortunately I forgot to ask her about calcium supplements.
We went to McDonald’s drive through and came home. Alex plays a lot with his toys since he can’t go anywhere. He’s in such a good mood it’s unbelievable. Since August he’s put on two pounds the doctor said.
We watched Cosby, it comes on twice daily. Alex gets to watch the second one only if he’s in his pajamas and has put way all his toys.
Alex was in bed by eight o’clock. I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:30 a.m. ----- 8:00 p.m.
Temperature 36.41 9:30 a.m. 36.96 4:35 p.m. 36.38C 8:00 p.m.
I wrote in the journal for about an hour. I wrapped Pearl’s present and Charlie went out and mailed it.
In the afternoon I worked on my knitting. I haven’t done it for quite awhile. Mind you I’m almost finished, I just have to do the collar and the front middle where the button wholes go.
Alex and I left to go to the doctors. We didn’t have to wait very long in the waiting room but we had to wait quite awhile in the examining room.
Dr. C said your Mom tells me Alex’s counts are down. I said yes. I told her Alex’s ANC is 294 and he has been off his chemo pills for three weeks now. His counts haven’t come up just yet. I also said I wasn’t too pleased about Alex having a bone marrow test. I explained that Alex had it too soon after having chemo and finished his prednisone. Dr. C understood what I was talking about but didn’t comment on it. She checked Alex out and said you seem to be okay Alex, what’s going on with you. You seem to have become sensitive to chemotherapy all of a sudden.
Then it was my turn, she gave me a kick chart to fill out. She said to record ten movements of the baby daily.
Dr. C checked the baby and she said the baby’s heartbeat is 150. She also checked my blood pressure which is 120/60. I told her my feet were swelling up. She said are you putting up your feet? I said yes I am. My feet seem to swell up in the evening. Dr. C said the callus on my foot would be giving me pain as it is so thick. She said try soaking and removing it or using a corn pad. If that doesn’t work I’ll send you to a foot doctor.
Unfortunately I forgot to ask her about calcium supplements.
We went to McDonald’s drive through and came home. Alex plays a lot with his toys since he can’t go anywhere. He’s in such a good mood it’s unbelievable. Since August he’s put on two pounds the doctor said.
We watched Cosby, it comes on twice daily. Alex gets to watch the second one only if he’s in his pajamas and has put way all his toys.
Alex was in bed by eight o’clock. I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:30 a.m. ----- 8:00 p.m.
Temperature 36.41 9:30 a.m. 36.96 4:35 p.m. 36.38C 8:00 p.m.
Diagnosis: Leukemia; September 14, 1989
I woke up at seven thirty. Alex was already up, he went to watch tv. I had a shower and got dressed. While I was in the bathroom Alex asked me if it was hot or cold outside. I told him three times before he finally heard me. I’m sure that woke Charlie up.
I did the dishes, tided up the house and did the laundry.
I went out just after ten o’clock. Charlie said your going to leave me by myself in the house. I thought that was pretty funny considering I have to be the one home when an agent comes to show the house.
I went to London Drugs then I went to the mall. I was having a lot of pain in my leg and my foot so I didn’t stay long.
Charlie said Dean had been and gone. He said Dean would phone later about another client who he bringing this afternoon.
After lunch Alex said he was really bored. Charlie said he would take him to the park. I said I would stay home. I went for a nap after they left.
I got up just after two thirty. I heard Charlie leaving, for some reason he didn’t wake me up. The phone rang, Alex said he would get it. He never came to get me, so I figured it was Mom . When I got up Alex told me Dean had phoned. I said did he want me to phone him. Alex said yes. I was really impressed that Alex had taken the message so well.
I phoned Dean and he said I hope I didn’t wake you. I said no. He said he has a client flying in from Hong Kong but depending if their plane is on time he wouldn’t know the time for sure. Did you want me to phone you back later. I said yes.
He also said the woman that came this afternoon is interested in the house. She wants to bring her husband to see it. He wouldn’t be able to come until Saturday.
Dean phoned back at four o’clock. He said his client had gotten lost but they would be here at five thirty. I said okay.
I finished writing in the journal then I made sure the house was in order.
They came at five thirty. They spent a lot of time in the house.
We ate dinner at six o’clock. After dinner we watched tv. I wrote in the journal.
Dean brought the client from this morning back at eight thirty. I guess they changed their minds about waiting.
Alex went to bed at nine o’clock. I wrote in the journal and watched tv
No Tests
No Medication
Temperature 36.87C 9:00 a.m. 36.75C 12:30 p.m. 36.26C 9:10 p.m.
I did the dishes, tided up the house and did the laundry.
I went out just after ten o’clock. Charlie said your going to leave me by myself in the house. I thought that was pretty funny considering I have to be the one home when an agent comes to show the house.
I went to London Drugs then I went to the mall. I was having a lot of pain in my leg and my foot so I didn’t stay long.
Charlie said Dean had been and gone. He said Dean would phone later about another client who he bringing this afternoon.
After lunch Alex said he was really bored. Charlie said he would take him to the park. I said I would stay home. I went for a nap after they left.
I got up just after two thirty. I heard Charlie leaving, for some reason he didn’t wake me up. The phone rang, Alex said he would get it. He never came to get me, so I figured it was Mom . When I got up Alex told me Dean had phoned. I said did he want me to phone him. Alex said yes. I was really impressed that Alex had taken the message so well.
I phoned Dean and he said I hope I didn’t wake you. I said no. He said he has a client flying in from Hong Kong but depending if their plane is on time he wouldn’t know the time for sure. Did you want me to phone you back later. I said yes.
He also said the woman that came this afternoon is interested in the house. She wants to bring her husband to see it. He wouldn’t be able to come until Saturday.
Dean phoned back at four o’clock. He said his client had gotten lost but they would be here at five thirty. I said okay.
I finished writing in the journal then I made sure the house was in order.
They came at five thirty. They spent a lot of time in the house.
We ate dinner at six o’clock. After dinner we watched tv. I wrote in the journal.
Dean brought the client from this morning back at eight thirty. I guess they changed their minds about waiting.
Alex went to bed at nine o’clock. I wrote in the journal and watched tv
No Tests
No Medication
Temperature 36.87C 9:00 a.m. 36.75C 12:30 p.m. 36.26C 9:10 p.m.
Friday, September 13, 2013
Diagnosis: Leukemia; September 13, 1989
I woke up at seven thirty. Alex was just getting up when I closed his door. He sure is happy these days being off his medicine. He always wakes up in a good mood. It sure is strange that his ANC is so low.
I had a shower, got dressed and had my breakfast. Alex also had breakfast, his shower and got dressed.
We left for the hospital before nine o’clock. Once we got to the hospital we had to wait about fifteen minutes for Alex to have his blood test. Mary wasn’t there today, Mike did Alex’s blood test. Alex wanted me to come in with him. I had to hold his hand while it was being done.
Then we waited for the results I wasn’t expecting Alex’s counts to come up too much. I didn’t expect it to drop so much. His ANC went down to 294 from 700 last week.
We saw Dr. S, I told her Alex had a mouth sore, a sore throat and was sneezing this past week. She said Alex could have some kind of virus and that was why his counts had dropped. Dr. S said they would have to wait until next week and if Alex’s counts didn’t come up he would have to have another bone marrow test. She said she conferred with Dr. R and that was his discission.
I had talked to Heather about Alex’s counts. She said sometimes when patients are on chemotherapy it will make their counts low. I said it seemed strange that just the ANC was dropping down. When Alex was first sick all his counts went down. Heather said that was because the Leukemia cells were taking over and there was no room for the good cells.
I asked Heather how the WBC and ANC are connected. She said they add up all the figures from the neutrofils down and that gives the the WBC count.
Heather asked if Alex is taking Septra. I said yes he is she said they might take him off that as it sometimes interferes with their counts.
I asked DR. S about that. She said because Alex might have a virus it wasn’t’ advisable. It might make things worse.
By the time we left it was eleven o’clock. Nora came over while we were getting into the house. She told Alex, Kurt hadn’t expected on getting a present from him. He sure liked his present. She said Kurt had tried it our last night in the bather tub. We had bought him Sewer Swing Donatello.
We went into the house to get things for Alex to take to Mom and Dad’s. Charlie said don’t bother, mom is coming here Dad has a sore throat.
Mom came at twelve thirty. We left to meet Dean at a house. I wasn’t too impressed with the house. It had no dining room and the square footage of the main floor is 1090. It was just too small for me. Charlie really liked the backyard but it would be nice to get a private yard and a house we both like in our price range of course!
We came home to get Alex’s library book. We went to the school and I briefly talked to Mrs. Wall. I told her Alex had to go back next week and he wouldn’t be in school until at least that time. Mrs. Wall said I could get Alex another book.
After that we drove around Ranch Park to look for any houses but we didn’t see anything. We came home and Mom left shortly afterwards.
I was pretty upset by Alex’s counts. It’s such a worry not knowing whets wrong with him.
We ate dinner at five thirty. My patience are wearing very thin theses days. Alex dropped the butter container on the floor then he spilt his juice. Then he said he wasn’t hungry anymore. What a trying time we’re having!
Alex went to bed at eight o’clock. I wrote in the journal until eight thirty. Kelly had a seizure tonight half an hour after he had his pill. He had it upstairs so I had to move him to the kitchen. He usually cuts his tongue. Then I had to take him down to the backyard to wash him down.
It sure has been one depressing day.
Dean phoned just after nine o’clock. He said he had a client from Winnipeg whom he wanted to bring tomorrow morning. He said between ten thirty and eleven.
Then I had to do a bit of cleaning as I didn’t want to do all of it tomorrow morning.
By the time I had my snack I was exhausted. My feet have really swelled up tonight. I was probably on my feet too much today.
I went to bed at eleven thirty.
Tests
WBC 2.1
HGB 13.6
Platelets 365
ANC 294
Medication
Bactrim ------ 2:45 p.m. 7:45 p.m.
Temperature 36.65C 7:30 a.m. 36.57C 2:45 p.m. 35.94C 7:45 p.m.
I had a shower, got dressed and had my breakfast. Alex also had breakfast, his shower and got dressed.
We left for the hospital before nine o’clock. Once we got to the hospital we had to wait about fifteen minutes for Alex to have his blood test. Mary wasn’t there today, Mike did Alex’s blood test. Alex wanted me to come in with him. I had to hold his hand while it was being done.
Then we waited for the results I wasn’t expecting Alex’s counts to come up too much. I didn’t expect it to drop so much. His ANC went down to 294 from 700 last week.
We saw Dr. S, I told her Alex had a mouth sore, a sore throat and was sneezing this past week. She said Alex could have some kind of virus and that was why his counts had dropped. Dr. S said they would have to wait until next week and if Alex’s counts didn’t come up he would have to have another bone marrow test. She said she conferred with Dr. R and that was his discission.
I had talked to Heather about Alex’s counts. She said sometimes when patients are on chemotherapy it will make their counts low. I said it seemed strange that just the ANC was dropping down. When Alex was first sick all his counts went down. Heather said that was because the Leukemia cells were taking over and there was no room for the good cells.
I asked Heather how the WBC and ANC are connected. She said they add up all the figures from the neutrofils down and that gives the the WBC count.
Heather asked if Alex is taking Septra. I said yes he is she said they might take him off that as it sometimes interferes with their counts.
I asked DR. S about that. She said because Alex might have a virus it wasn’t’ advisable. It might make things worse.
By the time we left it was eleven o’clock. Nora came over while we were getting into the house. She told Alex, Kurt hadn’t expected on getting a present from him. He sure liked his present. She said Kurt had tried it our last night in the bather tub. We had bought him Sewer Swing Donatello.
We went into the house to get things for Alex to take to Mom and Dad’s. Charlie said don’t bother, mom is coming here Dad has a sore throat.
Mom came at twelve thirty. We left to meet Dean at a house. I wasn’t too impressed with the house. It had no dining room and the square footage of the main floor is 1090. It was just too small for me. Charlie really liked the backyard but it would be nice to get a private yard and a house we both like in our price range of course!
We came home to get Alex’s library book. We went to the school and I briefly talked to Mrs. Wall. I told her Alex had to go back next week and he wouldn’t be in school until at least that time. Mrs. Wall said I could get Alex another book.
After that we drove around Ranch Park to look for any houses but we didn’t see anything. We came home and Mom left shortly afterwards.
I was pretty upset by Alex’s counts. It’s such a worry not knowing whets wrong with him.
We ate dinner at five thirty. My patience are wearing very thin theses days. Alex dropped the butter container on the floor then he spilt his juice. Then he said he wasn’t hungry anymore. What a trying time we’re having!
Alex went to bed at eight o’clock. I wrote in the journal until eight thirty. Kelly had a seizure tonight half an hour after he had his pill. He had it upstairs so I had to move him to the kitchen. He usually cuts his tongue. Then I had to take him down to the backyard to wash him down.
It sure has been one depressing day.
Dean phoned just after nine o’clock. He said he had a client from Winnipeg whom he wanted to bring tomorrow morning. He said between ten thirty and eleven.
Then I had to do a bit of cleaning as I didn’t want to do all of it tomorrow morning.
By the time I had my snack I was exhausted. My feet have really swelled up tonight. I was probably on my feet too much today.
I went to bed at eleven thirty.
Tests
WBC 2.1
HGB 13.6
Platelets 365
ANC 294
Medication
Bactrim ------ 2:45 p.m. 7:45 p.m.
Temperature 36.65C 7:30 a.m. 36.57C 2:45 p.m. 35.94C 7:45 p.m.
Thursday, September 12, 2013
Diagnosis: Leukemia; September 12, 1989
I woke up at eight thirty. Alex and Charlie were already up. After Charlie had finished his shower, I had my shower. Charlie went out shopping by the time I got out of the shower.
Alex and I had breakfast then I cleaned the carpet where Kelly had thrown up. I thought I had gotten it last night but I didn’t. Then I made our beds and tided up the house.
I left at one o’clock to go to the diabetic clinic. Charlie took Alex down to Mom and Dad’s.
I got to the clinic early, there weren’t very many people there. I had to wait quite awhile before the nurse came to weigh me. It was two o’clock by the time I talked to Ann. My glucose had gone up but I had a bran muffin this morning. I told her my right ankle had been swelling up the last few days.
Then I saw the doctor, Dr. B will be back next week. The doctor took my blood pressure and measured the baby.
Next I saw Mary, she said I had put on a pound but that was okay. She asked if I had any swelling. I told her my right ankle had started to swell. I also asked if that was due to my diet. She said only if my blood pressure was to go up it would. She said usually when your pregnant the body wants to put on weight and retain fluids. Therefore that’s why the body swells up.
Then I had the non stress test, it sure doesn’t take very long. The baby moved about fifteen times while I was there. This time I had one contraction but I didn’t feel anything.
By the time I left it was two forty five. I stopped at London Drugs on the way to Mom and Dad’s. I bought a new thermometer in Celsius. It’s easier having it in Celsius when that’s what the hospital uses. I also bought Pearl’s birthday present and Alex a Curious George book.
Alex was playing Mario with Dad when I got there. I stayed for a little while then Alex and I came home.
We ate dinner at five thirty. Kurt brought Alex a birthday bag and told me he was sorry Alex couldn’t come to his party. I told him Alex had a present for him and told him to wait. I gave him the present while Alex said Happy Birthday Kurt!
After dinner Alex and I colored some pictures we had drawn. Alex went to bed at eight o’clock. I watched tv, wrote in the journal and will go to bed soon.
No Tests
No Medication
Temperature 36.66 9:00 a.m. 37.16 C 11:30 a.m. 36.47C 4:05 p.m. 36.58C 7:30 p.m.
Alex and I had breakfast then I cleaned the carpet where Kelly had thrown up. I thought I had gotten it last night but I didn’t. Then I made our beds and tided up the house.
I left at one o’clock to go to the diabetic clinic. Charlie took Alex down to Mom and Dad’s.
I got to the clinic early, there weren’t very many people there. I had to wait quite awhile before the nurse came to weigh me. It was two o’clock by the time I talked to Ann. My glucose had gone up but I had a bran muffin this morning. I told her my right ankle had been swelling up the last few days.
Then I saw the doctor, Dr. B will be back next week. The doctor took my blood pressure and measured the baby.
Next I saw Mary, she said I had put on a pound but that was okay. She asked if I had any swelling. I told her my right ankle had started to swell. I also asked if that was due to my diet. She said only if my blood pressure was to go up it would. She said usually when your pregnant the body wants to put on weight and retain fluids. Therefore that’s why the body swells up.
Then I had the non stress test, it sure doesn’t take very long. The baby moved about fifteen times while I was there. This time I had one contraction but I didn’t feel anything.
By the time I left it was two forty five. I stopped at London Drugs on the way to Mom and Dad’s. I bought a new thermometer in Celsius. It’s easier having it in Celsius when that’s what the hospital uses. I also bought Pearl’s birthday present and Alex a Curious George book.
Alex was playing Mario with Dad when I got there. I stayed for a little while then Alex and I came home.
We ate dinner at five thirty. Kurt brought Alex a birthday bag and told me he was sorry Alex couldn’t come to his party. I told him Alex had a present for him and told him to wait. I gave him the present while Alex said Happy Birthday Kurt!
After dinner Alex and I colored some pictures we had drawn. Alex went to bed at eight o’clock. I watched tv, wrote in the journal and will go to bed soon.
No Tests
No Medication
Temperature 36.66 9:00 a.m. 37.16 C 11:30 a.m. 36.47C 4:05 p.m. 36.58C 7:30 p.m.
Wednesday, September 11, 2013
Diagnosis: Leukemia; September 11, 1989
I woke up at eight o’clock. I had a shower, got dressed and had breakfast.
Alex woke up at nine o’clock. He didn’t have breakfast until much later.
I changed the sheets on our bed, did laundry and tided up the house.
Betty-Sue phoned at noon to make an appointment for three or three thirty.
Charlie was still home so he helped me make sure the house was in good order.
Alex said a car parked in the driveway. Then the people got out, talked for awhile, got back in the car and left. I had been out in the backyard. Alex said they didn’t ring the doorbell. So I didn’t know if they changed their minds or what happened.
Betty-Sue arrived back about fifteen minutes later. They must of gone to look at another house down the block.
Mom phoned while they were here. She asked if Alex wanted to come down for awhile. I said no he’s not too bored now. She said why don’t you come down for dinner, we still have the leftovers from yesterday. I said that would be nice. We will be down in awhile as someone is here looking at the hosue.
We went to Mom and Dad’s at four o’clock. We ate dinner at five o’clock. After dinner Alex played Nintendo while we watched tv.
We came home at seven thirty. Lawrence of Realty Horizons left a message. I phoned the number he left and they paged him. Lawrence said they were at Columbia near North Road and wanted to see our house tonight if that was convenient. I said that would be fine.
They arrived at eight fifteen. Lawrence apologized for coming so late. I said that was okay. The client, a woman said we phoned you earlier. I said we had just come back. She sure seemed to be rude. Then she said can we start in the basement. I said yes go right ahead.
They were downstairs for quite awhile and when they came upstairs, Lawrence asked about the bathroom downstairs. I told him the plumbing was roughed in. The woman asked me if Mariner Way was quite noisy. I said no, not for me. She said to Lawrence I guess further down Mariner Way is nosier.
They went out to the back deck then looked at the rest of the house and left.
Alex went to bed at nine o’clock. I watched tv, wrote in the journal and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:25 a.m. ------- 8:00 p.m.
Temperature 36.5 9:00 a.m. 37.0C 3:45 p.m. 35.55C 8:30 p.m.
Alex woke up at nine o’clock. He didn’t have breakfast until much later.
I changed the sheets on our bed, did laundry and tided up the house.
Betty-Sue phoned at noon to make an appointment for three or three thirty.
Charlie was still home so he helped me make sure the house was in good order.
Alex said a car parked in the driveway. Then the people got out, talked for awhile, got back in the car and left. I had been out in the backyard. Alex said they didn’t ring the doorbell. So I didn’t know if they changed their minds or what happened.
Betty-Sue arrived back about fifteen minutes later. They must of gone to look at another house down the block.
Mom phoned while they were here. She asked if Alex wanted to come down for awhile. I said no he’s not too bored now. She said why don’t you come down for dinner, we still have the leftovers from yesterday. I said that would be nice. We will be down in awhile as someone is here looking at the hosue.
We went to Mom and Dad’s at four o’clock. We ate dinner at five o’clock. After dinner Alex played Nintendo while we watched tv.
We came home at seven thirty. Lawrence of Realty Horizons left a message. I phoned the number he left and they paged him. Lawrence said they were at Columbia near North Road and wanted to see our house tonight if that was convenient. I said that would be fine.
They arrived at eight fifteen. Lawrence apologized for coming so late. I said that was okay. The client, a woman said we phoned you earlier. I said we had just come back. She sure seemed to be rude. Then she said can we start in the basement. I said yes go right ahead.
They were downstairs for quite awhile and when they came upstairs, Lawrence asked about the bathroom downstairs. I told him the plumbing was roughed in. The woman asked me if Mariner Way was quite noisy. I said no, not for me. She said to Lawrence I guess further down Mariner Way is nosier.
They went out to the back deck then looked at the rest of the house and left.
Alex went to bed at nine o’clock. I watched tv, wrote in the journal and went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:25 a.m. ------- 8:00 p.m.
Temperature 36.5 9:00 a.m. 37.0C 3:45 p.m. 35.55C 8:30 p.m.
Diagnosis: Leukemia; September 10, 1989
I woke up at eight o’clock. I had a shower, got dressed and had breakfast. After breakfast I made banana muffins. Alex had one for breakfast. Charlie had two when he came back from grocery shopping.
I put the laundry on, made the beds, cleaned the bathrooms, swept the floors and vacuumed a few spots in the house.
Betty-Sue from Royal LePage brought a client through at noon. She’s expecting November 28th. I thought she was due before me. Her client asked if we were competing!
Not long after they left Mom and Dad came. They brought Alex a painting smock and army socks. They also bought a box of diapers for the baby.
They didn’t stay very long, they took Kelly with them. Better for Kelly as he can’t come in the house yet. Some more people are coming at four o’clock.
We went out after they had left. We looked at a few more houses, went to Pharmasave and came home.
At two thirty Lex from Sutton came. They weren’t suppose to come until four o’clock, we weren’t’ exactly ready.
We had just gotten Alex into bed and it was pretty hard getting him into bed.. First of all he refused to get into bed. Then he got mad after he had his story. He said Pa wouldn’t let him get his Kleenex. Charlie said he never said that at all. When Alex heard there was someone coming he had a fit. He started to cry, he said he couldn’t be in bed when someone is coming in the house. I told him to get out of bed but when they left he had to go back to bed.
The client that Lex brought works at the same company as Charlie, that sure was funny.
Mom invited us for dinner, she had left us a message but we didn’t get it.
Alex and I went down after four thirty. Charlie was waiting for Dean to phone back.
After dinner we played a game of cards. Alex watched Howard the Duck. Alex says it’s a really good movie. It looks pretty silly to me.
We came home at eight thirty. Alex had a snack and got ready for bed. By the time he got into bed it was ten o’clock. I went to bed as well.
No Tests
No medication
Temperature 35.83C 8:30 a.m. 36.0C 12:00 p.m. 36.16C 10:00 p.m.
I put the laundry on, made the beds, cleaned the bathrooms, swept the floors and vacuumed a few spots in the house.
Betty-Sue from Royal LePage brought a client through at noon. She’s expecting November 28th. I thought she was due before me. Her client asked if we were competing!
Not long after they left Mom and Dad came. They brought Alex a painting smock and army socks. They also bought a box of diapers for the baby.
They didn’t stay very long, they took Kelly with them. Better for Kelly as he can’t come in the house yet. Some more people are coming at four o’clock.
We went out after they had left. We looked at a few more houses, went to Pharmasave and came home.
At two thirty Lex from Sutton came. They weren’t suppose to come until four o’clock, we weren’t’ exactly ready.
We had just gotten Alex into bed and it was pretty hard getting him into bed.. First of all he refused to get into bed. Then he got mad after he had his story. He said Pa wouldn’t let him get his Kleenex. Charlie said he never said that at all. When Alex heard there was someone coming he had a fit. He started to cry, he said he couldn’t be in bed when someone is coming in the house. I told him to get out of bed but when they left he had to go back to bed.
The client that Lex brought works at the same company as Charlie, that sure was funny.
Mom invited us for dinner, she had left us a message but we didn’t get it.
Alex and I went down after four thirty. Charlie was waiting for Dean to phone back.
After dinner we played a game of cards. Alex watched Howard the Duck. Alex says it’s a really good movie. It looks pretty silly to me.
We came home at eight thirty. Alex had a snack and got ready for bed. By the time he got into bed it was ten o’clock. I went to bed as well.
No Tests
No medication
Temperature 35.83C 8:30 a.m. 36.0C 12:00 p.m. 36.16C 10:00 p.m.
Monday, September 9, 2013
Diagnosis: Leukemia; September 9, 1989
I woke up at eight o’clock. Alex had woken up and was putting his turtles in a McDonald’s bag. I had breakfast first then I had a shower and got dressed.
Alex had gotten dressed already and was watching tv. Alex had breakfast at nine o’clock. He wanted to have lunch right away but Charlie told him to wait awhile.
Mom phoned while Alex was having breakfast. She said she took Jeff’s blood for the diabetic test. Before dinner it was 3.0 and after dinner it was 14.0. Jeff didn’t know that was a bad number to have. Mom explained to him he had better get on a diabetic diet right away. That 14.0 was an unacceptable number to have. Jeff’s foot is still infected which is probably due to his diabetes.
In the morning I spent it tiding up the house. You never know when someone might want to show the house.
After lunch we had planned to go out but Lindsey from Royal LePage called. He came at two thirty, he told his clients that Mariner Way would be expanded to four lanes. I’m sure that turned them off.
We went to the bank, BCAA and then we went to Lions Park. Alex had fallen asleep so he was surprised when we got to the park. Alex enjoyed himself at the park, he went on everything.
We picked up fish and chips and came home. We had an early dinner. Unfortunately I forgot to have my afternoon snack. I didn’t feel very good probably a lack of food.
After dinner Charlie cut the grass. I did a bit of gardening and came in.
I’ve been taking Alex’s temperature throughout the day. It’s been normal or abnormal. It sure is difficult not know what’s wrong with Alex. It says in the hospital literature that a low ANC count can have a temperature, mouth sores, tiredness, etc. Alex did have mouth sores but he’s been rinsing with mouth wash and it’s gone now.
Alex got ready for bed t eight o’clock. He said he wants to sleep in our room. I told him it would be for one more night then he would have to sleep in his room. The paint smell is pretty well gone now. It sure takes a long time to go away.
I’m writing in the journal. It’s almost nine o’clock, I’m going to watch tv, have my snack and go to bed.
No Tests
No Medication
Temperature 37.0C 9:10 a.m. 37.22 11:35 a.m.37.27C 12:30 p.m. 36.94C 5:00 p.m. 37.11C 8:30 p.m.
Alex had gotten dressed already and was watching tv. Alex had breakfast at nine o’clock. He wanted to have lunch right away but Charlie told him to wait awhile.
Mom phoned while Alex was having breakfast. She said she took Jeff’s blood for the diabetic test. Before dinner it was 3.0 and after dinner it was 14.0. Jeff didn’t know that was a bad number to have. Mom explained to him he had better get on a diabetic diet right away. That 14.0 was an unacceptable number to have. Jeff’s foot is still infected which is probably due to his diabetes.
In the morning I spent it tiding up the house. You never know when someone might want to show the house.
After lunch we had planned to go out but Lindsey from Royal LePage called. He came at two thirty, he told his clients that Mariner Way would be expanded to four lanes. I’m sure that turned them off.
We went to the bank, BCAA and then we went to Lions Park. Alex had fallen asleep so he was surprised when we got to the park. Alex enjoyed himself at the park, he went on everything.
We picked up fish and chips and came home. We had an early dinner. Unfortunately I forgot to have my afternoon snack. I didn’t feel very good probably a lack of food.
After dinner Charlie cut the grass. I did a bit of gardening and came in.
I’ve been taking Alex’s temperature throughout the day. It’s been normal or abnormal. It sure is difficult not know what’s wrong with Alex. It says in the hospital literature that a low ANC count can have a temperature, mouth sores, tiredness, etc. Alex did have mouth sores but he’s been rinsing with mouth wash and it’s gone now.
Alex got ready for bed t eight o’clock. He said he wants to sleep in our room. I told him it would be for one more night then he would have to sleep in his room. The paint smell is pretty well gone now. It sure takes a long time to go away.
I’m writing in the journal. It’s almost nine o’clock, I’m going to watch tv, have my snack and go to bed.
No Tests
No Medication
Temperature 37.0C 9:10 a.m. 37.22 11:35 a.m.37.27C 12:30 p.m. 36.94C 5:00 p.m. 37.11C 8:30 p.m.
Sunday, September 8, 2013
Diagnosis: Leukemia; September 8, 1989
I woke up at eight thirty. I had a shower, got dressed and had breakfast.
After breakfast I tided up the house. That’s all I ever seem to do. We have to keep the house neat and clean to be able to sell it.
Nance from Multiple Realty phoned last night. She said she has a client whom she wants to show the house, at four thirty today.
I let Alex have all his toys out until a half hour before they came. It makes it so much easier and he doesn’t complain!
Charlie came home at four o’clock. I told him to hurry up and have a shower as they would be here soon.
They arrived just after four thirty. The one guy is from down the block. It sort of made us wonder why he was looking.
We took Alex to the drive through at McDonald’s. I don’t know why he likes eating there, when he eats hardly anything at all.
Then we went to the mall, Alex and Charlie waited in the car. I went to buy Alex a prize and Kurt his present.
I had talked to Dr. S this afternoon. She said the bone marrow test shows immature cells. She asked me when Alex had his chemotherapy last. I told her the date which I couldn’t figure out, don’t they look at the chart. She said the recovery rate for the bone marrow cells is two weeks after they finish taking prednisone. She didn’t say Alex had the bone marrow too early but when I figured out when he finished his prednisone it doesn’t work out right. Alex finished his prednisone on the 25th, so two weeks from the 26th would be the 9th or 10th of September. That makes a difference of three or four days.
Dr. S said Alex cannot go to school, go to public places and he can’t go to Kurt’s party.
She also said if Alex’s counts weren’t up he would have to have another bone marrow test. They wouldn’t be able to do it for another two weeks. For some reason they can’t do them a week apart.
I asked her what it meant by immature cells. Dr. S said the immature cells could be cells recovering from chemo or they could be blast cells. Blast cells are Leukemia or cancer cells. She said at this time it’s difficult to distinguish between the two.
When I told Alex what the doctor said. Alex was really upset. He looked like he was going to cry. I think not going to school bothered him more than anything.
At least Alex got to go to school today. I didn’t talk to Dr. S until after we came back from school.
I feel like I’m having one of those days. Just as I’m about to leave to get Alex from school Kelly had a seizure. There wasn’t enough time to clean him up. He had blood all over his fur. This is just getting to be too much for me.
Anyways getting back to the mall. I bought Alex a prize since he was so upset. The turtle cycle and Kurt’s present is swing Donatello. Alex was really interested in Kurt’s present. He said Kurt will sure like that.
Then I picked up Kelly’s pills from Save On Foods. I was able to get the vet to increase the pills from 50 to 100. It was ridiculous before, 50 pills last hardly anytime at all.
We came home at seven thirty. Alex had a snack and got ready for bed. He was in bed by nine o’clock. I went to bed at ten thirty.
No Tests
Medication
Bactrim 12:30 p.m. ------ 8:30 p.m.
Temperature 37.0C 5:30 p.m.
After breakfast I tided up the house. That’s all I ever seem to do. We have to keep the house neat and clean to be able to sell it.
Nance from Multiple Realty phoned last night. She said she has a client whom she wants to show the house, at four thirty today.
I let Alex have all his toys out until a half hour before they came. It makes it so much easier and he doesn’t complain!
Charlie came home at four o’clock. I told him to hurry up and have a shower as they would be here soon.
They arrived just after four thirty. The one guy is from down the block. It sort of made us wonder why he was looking.
We took Alex to the drive through at McDonald’s. I don’t know why he likes eating there, when he eats hardly anything at all.
Then we went to the mall, Alex and Charlie waited in the car. I went to buy Alex a prize and Kurt his present.
I had talked to Dr. S this afternoon. She said the bone marrow test shows immature cells. She asked me when Alex had his chemotherapy last. I told her the date which I couldn’t figure out, don’t they look at the chart. She said the recovery rate for the bone marrow cells is two weeks after they finish taking prednisone. She didn’t say Alex had the bone marrow too early but when I figured out when he finished his prednisone it doesn’t work out right. Alex finished his prednisone on the 25th, so two weeks from the 26th would be the 9th or 10th of September. That makes a difference of three or four days.
Dr. S said Alex cannot go to school, go to public places and he can’t go to Kurt’s party.
She also said if Alex’s counts weren’t up he would have to have another bone marrow test. They wouldn’t be able to do it for another two weeks. For some reason they can’t do them a week apart.
I asked her what it meant by immature cells. Dr. S said the immature cells could be cells recovering from chemo or they could be blast cells. Blast cells are Leukemia or cancer cells. She said at this time it’s difficult to distinguish between the two.
When I told Alex what the doctor said. Alex was really upset. He looked like he was going to cry. I think not going to school bothered him more than anything.
At least Alex got to go to school today. I didn’t talk to Dr. S until after we came back from school.
I feel like I’m having one of those days. Just as I’m about to leave to get Alex from school Kelly had a seizure. There wasn’t enough time to clean him up. He had blood all over his fur. This is just getting to be too much for me.
Anyways getting back to the mall. I bought Alex a prize since he was so upset. The turtle cycle and Kurt’s present is swing Donatello. Alex was really interested in Kurt’s present. He said Kurt will sure like that.
Then I picked up Kelly’s pills from Save On Foods. I was able to get the vet to increase the pills from 50 to 100. It was ridiculous before, 50 pills last hardly anytime at all.
We came home at seven thirty. Alex had a snack and got ready for bed. He was in bed by nine o’clock. I went to bed at ten thirty.
No Tests
Medication
Bactrim 12:30 p.m. ------ 8:30 p.m.
Temperature 37.0C 5:30 p.m.
Diagnosis: Leukemia; September 7, 1989
I woke up at eight thirty. I had a shower, got dressed and had my breakfast.
I did the dishes and tided up the house.
Alex’s temperature has been up around normal which is high for him. Alex’s temperature is usually 35 or 36.
Beth from Park Georgia phoned. She wants to bring a client at five o’clock.
When Charlie came home at four o’clock. I told him they would be coming soon. I had tided up the house earlier.
We ate dinner at five thirty, after dinner we watched tv.
The hospital hasn’t gotten the tests results back yet. Dr. S said she would phone today or tomorrow. As yet I haven’t heard anything. It sure is hard waiting for the results.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
No Medication
Temperature 36.83C 11:15 a.m. 36.44C 12:50 p.m.
I did the dishes and tided up the house.
Alex’s temperature has been up around normal which is high for him. Alex’s temperature is usually 35 or 36.
Beth from Park Georgia phoned. She wants to bring a client at five o’clock.
When Charlie came home at four o’clock. I told him they would be coming soon. I had tided up the house earlier.
We ate dinner at five thirty, after dinner we watched tv.
The hospital hasn’t gotten the tests results back yet. Dr. S said she would phone today or tomorrow. As yet I haven’t heard anything. It sure is hard waiting for the results.
Alex went to bed at eight o’clock. I watched tv and went to bed at eleven o’clock.
No Tests
No Medication
Temperature 36.83C 11:15 a.m. 36.44C 12:50 p.m.
Friday, September 6, 2013
Diagnosis: Leukemia; September 6, 1989
I woke up at seven o’clock to the alarm. I had a shower, got dressed and had my breakfast. I woke Alex up at seven thirty. He had a shower, got dressed and had his breakfast.
We left for the hospital before eight o’clock. We should have left earlier since the traffic is always so bad at that time. We also should have gone along Como Lake instead of trying to go on the freeway. By the time we got to the hospital it was nine o’clock. We were half an hour late but nobody said anything.
We had to wait for awhile before Alex had his blood test. Unfortunately Alex’s ANC was still the same. I can’t understand why it hasn’t come up. He gets a lot of rest, he doesn’t go to public places and he eats quite well. The only think is that his appetite has decreased. I don’t know if it is due to him being off his medication or because his counts are low.
When we saw Dr. S, she said Alex would have to have a bone marrow test. She said she thought maybe waiting a few days but because his counts haven’t changed they had better do the bone marrow test today.
It was very upsetting for me to watch him go through it. When the doctor started to screw the instrument into Alex’s back that’s when he started to cry. The doctor had frozen his back so he couldn’t feel it but it still must cause some kind of pain. I found out about a week later some of his problems concerning the bone marrow test. Alex said his back felt funny like it was a piece of ice. I asked him if it hurt anywhere. He said where the doctor was pushing in his back and down around his bum. I tried to explain that the doctor freezes his back to make it go to sleep. Alex said it can’t talk so how can it go to sleep. I couldn’t convince him about the freezing. The problem for Alex is his back feeling like ice and not knowing what the doctor is doing.
After the bone marrow test was done we came home. We stopped at McDonald’s drive through. We had lunch at home.
The doctor said Alex could go to school. So I took him over at twelve twenty. I went to the mall to buy Alex a present for being so good during the bone marrow tests. I couldn’t believe how still he kept throughout it. I bought him the turtle van and Krang.
By the time I did that it was time to get Alex. Kindergarten is only an hour this week. Mrs. Wall said I could have an interview at three o’clock today. I said that would be a good idea so I could explain what was happening right now.
Alex and I went back to school at three o’clock. Alex played in the kindergarten class while I talked to Mrs. Wall. I told Mrs. Wall that Alex had a bone marrow test this morning. She was quite surprised that Alex was not in pain or feeling sick. I explained that the doctor was going to tell me what the bone marrow test will show.
Mrs. Wall said she would tell the other parents to be careful when they bring their children to class.
We also discussed about different things in the school. I’m to buy a exercise book for class. The school also puts out a newsletter every month.
Alex and I stopped at Mom and Dad’s. Mom had bought Alex a prize for going to the hospital. Alex got a video of Golden Book stories, the gingerbread man, Goldilocks and the three bears and the three little pigs. Alex was really happy to get it.
We came home just after four o’clock. Charlie was already home from work. We ate dinner at five thirty. We didn’t do very much after dinner. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
Tests
WBC 213
HGB 13.6
Platelets 213
ANC 700
Medication
Bactrim 9:00 a.m. ------ 8:00 p.m.
We left for the hospital before eight o’clock. We should have left earlier since the traffic is always so bad at that time. We also should have gone along Como Lake instead of trying to go on the freeway. By the time we got to the hospital it was nine o’clock. We were half an hour late but nobody said anything.
We had to wait for awhile before Alex had his blood test. Unfortunately Alex’s ANC was still the same. I can’t understand why it hasn’t come up. He gets a lot of rest, he doesn’t go to public places and he eats quite well. The only think is that his appetite has decreased. I don’t know if it is due to him being off his medication or because his counts are low.
When we saw Dr. S, she said Alex would have to have a bone marrow test. She said she thought maybe waiting a few days but because his counts haven’t changed they had better do the bone marrow test today.
It was very upsetting for me to watch him go through it. When the doctor started to screw the instrument into Alex’s back that’s when he started to cry. The doctor had frozen his back so he couldn’t feel it but it still must cause some kind of pain. I found out about a week later some of his problems concerning the bone marrow test. Alex said his back felt funny like it was a piece of ice. I asked him if it hurt anywhere. He said where the doctor was pushing in his back and down around his bum. I tried to explain that the doctor freezes his back to make it go to sleep. Alex said it can’t talk so how can it go to sleep. I couldn’t convince him about the freezing. The problem for Alex is his back feeling like ice and not knowing what the doctor is doing.
After the bone marrow test was done we came home. We stopped at McDonald’s drive through. We had lunch at home.
The doctor said Alex could go to school. So I took him over at twelve twenty. I went to the mall to buy Alex a present for being so good during the bone marrow tests. I couldn’t believe how still he kept throughout it. I bought him the turtle van and Krang.
By the time I did that it was time to get Alex. Kindergarten is only an hour this week. Mrs. Wall said I could have an interview at three o’clock today. I said that would be a good idea so I could explain what was happening right now.
Alex and I went back to school at three o’clock. Alex played in the kindergarten class while I talked to Mrs. Wall. I told Mrs. Wall that Alex had a bone marrow test this morning. She was quite surprised that Alex was not in pain or feeling sick. I explained that the doctor was going to tell me what the bone marrow test will show.
Mrs. Wall said she would tell the other parents to be careful when they bring their children to class.
We also discussed about different things in the school. I’m to buy a exercise book for class. The school also puts out a newsletter every month.
Alex and I stopped at Mom and Dad’s. Mom had bought Alex a prize for going to the hospital. Alex got a video of Golden Book stories, the gingerbread man, Goldilocks and the three bears and the three little pigs. Alex was really happy to get it.
We came home just after four o’clock. Charlie was already home from work. We ate dinner at five thirty. We didn’t do very much after dinner. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
Tests
WBC 213
HGB 13.6
Platelets 213
ANC 700
Medication
Bactrim 9:00 a.m. ------ 8:00 p.m.
Thursday, September 5, 2013
Diagnosis: Leukemia; September 5, 1989
I woke up at seven o’clock this morning. We have to be at school at nine thirty this morning.
I had a shower, got dressed and had breakfast. I woke Alex up at eight o’clock. He had breakfast, a shower and got dressed. Alex is really excited about going to school.
We got to the school at nine thirty. The morning class was just leaving. Alex went to play with the other kids while I waited to talk to the teacher. The teachers name is Mrs. Wall. I told her that Alex may not be coming tomorrow afternoon as he has to go to Children’s’ Hospital tomorrow morning. I explained to her that Alex’s counts are low right now and it would be up to the doctor whether or not he should go to school. Mrs. Wall said she remembered me telling her about Alex’s condition.
Mrs. Wall explained about Kindergarten. The Children wouldn’t need their snacks until the 18th since they’re only there for an hour. The children should bring their shoes on the next day. Their summer memories poster could be brought later on.
We left at ten o’clock. I was exhausted by the time we got home. I rested for awhile then we had lunch and got ready to go. I took Alex to Mom and Dad’s while I went to royal Columbian Hospital.
There were quite a few people waiting. First of all I thought they were all waiting for the nurse but they were waiting to go in for the non stress test.
I saw Ann first, she said my blood sugar levels looked good. I told her I was having Charley horses. She said to talk to Mary about them.
Then I saw a doctor who I can’t remember her name, she’s taking over for Dr. B. I also told her about my Charley horses. The doctor told me to talk to Mary.
So I went to talk to Mary, when I told her about having Charley horses. She said she couldn’t increase my milk intake anymore. The only time to increase it was in the middle of the night. She said but only if you’re up. Mary said to check with my doctor about calcium supplements.
Then I had my non stress tests. I sat in a bed chair, so it’s quite comfortable. Around my stomach the nurse strapped a Doppler. The nurse explained how the machine works. The one side shows the baby’s heartbeat and the other side shows a contraction. Every time the baby moves I have to push a button which shows on the contraction side.
The nurse said I had two contraction while I was there. The baby moved at least ten times. The woman beside me came in first but was still there when I left. She kept on saying to the nurse that the baby must be asleep.
I got to Mom and Dad’s at three o’clock. We left at four o’clock. Charlie was already home form work when we got home.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
No Tests
No Medication
I had a shower, got dressed and had breakfast. I woke Alex up at eight o’clock. He had breakfast, a shower and got dressed. Alex is really excited about going to school.
We got to the school at nine thirty. The morning class was just leaving. Alex went to play with the other kids while I waited to talk to the teacher. The teachers name is Mrs. Wall. I told her that Alex may not be coming tomorrow afternoon as he has to go to Children’s’ Hospital tomorrow morning. I explained to her that Alex’s counts are low right now and it would be up to the doctor whether or not he should go to school. Mrs. Wall said she remembered me telling her about Alex’s condition.
Mrs. Wall explained about Kindergarten. The Children wouldn’t need their snacks until the 18th since they’re only there for an hour. The children should bring their shoes on the next day. Their summer memories poster could be brought later on.
We left at ten o’clock. I was exhausted by the time we got home. I rested for awhile then we had lunch and got ready to go. I took Alex to Mom and Dad’s while I went to royal Columbian Hospital.
There were quite a few people waiting. First of all I thought they were all waiting for the nurse but they were waiting to go in for the non stress test.
I saw Ann first, she said my blood sugar levels looked good. I told her I was having Charley horses. She said to talk to Mary about them.
Then I saw a doctor who I can’t remember her name, she’s taking over for Dr. B. I also told her about my Charley horses. The doctor told me to talk to Mary.
So I went to talk to Mary, when I told her about having Charley horses. She said she couldn’t increase my milk intake anymore. The only time to increase it was in the middle of the night. She said but only if you’re up. Mary said to check with my doctor about calcium supplements.
Then I had my non stress tests. I sat in a bed chair, so it’s quite comfortable. Around my stomach the nurse strapped a Doppler. The nurse explained how the machine works. The one side shows the baby’s heartbeat and the other side shows a contraction. Every time the baby moves I have to push a button which shows on the contraction side.
The nurse said I had two contraction while I was there. The baby moved at least ten times. The woman beside me came in first but was still there when I left. She kept on saying to the nurse that the baby must be asleep.
I got to Mom and Dad’s at three o’clock. We left at four o’clock. Charlie was already home form work when we got home.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at eleven o’clock.
No Tests
No Medication
Wednesday, September 4, 2013
Diagnosis: Leukemia; September 4, 1989
I woke up at nine o’clock. I had a shower, got dressed and had breakfast.
We got a call at nine thirty from Jeff, a realtor. He said he was in the area and wanted to bring a client in about half an hour. We had to hurry around the house to get it into order.
When the people were still here we got another call from Alberta of Lakeview Realty. She’s bringing someone at four fifteen today.
After lunch we went to buy barbequed meat, won ton and noodles from a Won Ton House in Vancouver. Charlie thought we would like to go for a drive but Alex and I just wanted to go home.
Mom had left us a message when we got back at two o’clock. I phoned her back, she said did I have a flyer from Canadian Tire? I was able to find it. Mom wants it because it has a scholarship for teenagers. Mom had left theirs out but Dad had thrown it in the garbage. Mom said Jeff is there now, so I said I would bring it down now.
Alex wanted to come with me. Jeff has put on quite a lot of weight. He’s having quite a lot of trouble walking. His foot is still infected probably due to his diabetes.
Alex and I came home at three o’clock.
Alberta and her client came at four o’clock. They came back again at five o’clock. They seem quite interested but it’s always hard to know.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ------- 7:45 p.m.
Temperature 36.05C 7:45 p.m.
We got a call at nine thirty from Jeff, a realtor. He said he was in the area and wanted to bring a client in about half an hour. We had to hurry around the house to get it into order.
When the people were still here we got another call from Alberta of Lakeview Realty. She’s bringing someone at four fifteen today.
After lunch we went to buy barbequed meat, won ton and noodles from a Won Ton House in Vancouver. Charlie thought we would like to go for a drive but Alex and I just wanted to go home.
Mom had left us a message when we got back at two o’clock. I phoned her back, she said did I have a flyer from Canadian Tire? I was able to find it. Mom wants it because it has a scholarship for teenagers. Mom had left theirs out but Dad had thrown it in the garbage. Mom said Jeff is there now, so I said I would bring it down now.
Alex wanted to come with me. Jeff has put on quite a lot of weight. He’s having quite a lot of trouble walking. His foot is still infected probably due to his diabetes.
Alex and I came home at three o’clock.
Alberta and her client came at four o’clock. They came back again at five o’clock. They seem quite interested but it’s always hard to know.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv and went to bed at ten o’clock.
No Tests
Medication
Bactrim 9:00 a.m. ------- 7:45 p.m.
Temperature 36.05C 7:45 p.m.
Tuesday, September 3, 2013
Diagnosis: Leukemia; September 3, 1989
I woke up at nine o’clock. I had a shower, got dressed and had breakfast.
There’s an agent coming later this afternoon so we got the house tided up this morning.
Charlie had painted Alex’s room last night. It was a good thing that I had set up Alex’s shelves in the spare room. The room sure smells after being painted. Alex slept in our room on the floor in a sleeping bag, which he quite enjoyed.
After the people had left we started to cook dinner. After dinner we went to Mom and Dad’s. It’s about the only place besides home that Alex can go to. Alex sure is getting good at Nintendo. He’s almost on the save level as Dad. I don’t do as well as Alex at all.
We came home at ten o’clock. Alex went to bed. I went to bed at eleven o’clock.
No Tests
Medication
Cough syrup ------- -------- 10:00 p.m.
There’s an agent coming later this afternoon so we got the house tided up this morning.
Charlie had painted Alex’s room last night. It was a good thing that I had set up Alex’s shelves in the spare room. The room sure smells after being painted. Alex slept in our room on the floor in a sleeping bag, which he quite enjoyed.
After the people had left we started to cook dinner. After dinner we went to Mom and Dad’s. It’s about the only place besides home that Alex can go to. Alex sure is getting good at Nintendo. He’s almost on the save level as Dad. I don’t do as well as Alex at all.
We came home at ten o’clock. Alex went to bed. I went to bed at eleven o’clock.
No Tests
Medication
Cough syrup ------- -------- 10:00 p.m.
Monday, September 2, 2013
Diagnosis: Leukemia; September 2, 1989
I woke up at eight thirty. I had a shower, got dressed and had breakfast.
I find it really difficult getting Alex to eat. He says there is nothing for him to eat. I’m still hoping it’ll help to bring his blood counts up. I just have to be really strict with him. When we were on holidays he must of eaten potato chips every day.
Charlie had to work overtime today. I had a call from Gabe to show the house at eleven thirty. I had to run around and get the house in good shape.
After they had left we had lunch then I took Alex to Mom and Dad’s. I went to the mall to buy Alex a pair of shoes for school. It was quite crowded at the Bay. I didn’t know it was scratch day today.
Alex liked his new runners I bought him and they fit. I was pretty lucky!
We came home at four o’clock. Charlie was already home from work.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv, had my snack and went to bed at eleven o’clock.
No Tests
Medication
Cough syrup ------ ------ 8:00 p.m.
Temperature 34.94C 4:20 p.m.
I find it really difficult getting Alex to eat. He says there is nothing for him to eat. I’m still hoping it’ll help to bring his blood counts up. I just have to be really strict with him. When we were on holidays he must of eaten potato chips every day.
Charlie had to work overtime today. I had a call from Gabe to show the house at eleven thirty. I had to run around and get the house in good shape.
After they had left we had lunch then I took Alex to Mom and Dad’s. I went to the mall to buy Alex a pair of shoes for school. It was quite crowded at the Bay. I didn’t know it was scratch day today.
Alex liked his new runners I bought him and they fit. I was pretty lucky!
We came home at four o’clock. Charlie was already home from work.
We ate dinner at five thirty. After dinner we watched tv. Alex went to bed at eight o’clock.
I watched tv, had my snack and went to bed at eleven o’clock.
No Tests
Medication
Cough syrup ------ ------ 8:00 p.m.
Temperature 34.94C 4:20 p.m.
Sunday, September 1, 2013
Diagnosis: Leukemia; September 1, 1989
Alex woke me up at eight o’clock. He said he wanted his breakfast. I made his breakfast then I had a shower and got dressed.
I had my breakfast and wrote in the journal. Then I made our beds, did laundry and did the dishes.
In the afternoon I didn’t do too much. I finally had a chance to relax.
Charlie came home at four o’clock. We went to McDonald’s drive-thru, I didn’t want Alex to go inside. I thought it would be better in helping his counts come up or at least not drop anymore.
We went to Mom and Dad’s afterwards. At least Alex had fun playing the video games. We came home at ten o’clock. Alex went to bed after he had his snack.
I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:50 a.m. ------ 6:00 p.m.
Cough Syrup 8:30 a.m. ------- 10:00 p.m.
Temperature 37.05 8:30 a.m. 36.72C 11:45 a.m.
I had my breakfast and wrote in the journal. Then I made our beds, did laundry and did the dishes.
In the afternoon I didn’t do too much. I finally had a chance to relax.
Charlie came home at four o’clock. We went to McDonald’s drive-thru, I didn’t want Alex to go inside. I thought it would be better in helping his counts come up or at least not drop anymore.
We went to Mom and Dad’s afterwards. At least Alex had fun playing the video games. We came home at ten o’clock. Alex went to bed after he had his snack.
I went to bed at eleven o’clock.
No Tests
Medication
Bactrim 11:50 a.m. ------ 6:00 p.m.
Cough Syrup 8:30 a.m. ------- 10:00 p.m.
Temperature 37.05 8:30 a.m. 36.72C 11:45 a.m.
Diagnosis: Leukemia; August 31, 1989
I woke up at seven forty, the phone was ringing. When I answered it they had the wrong number.
Alex was just getting up he must have heard the phone ring. I heated up Alex’s sausages then I had a shower, got dressed and had my breakfast.
After breakfast I did the dishes and tided up the house. Then I wrote in the journal until lunch time. I had gotten about a week behind so I’ve got a lot of writing to do. By lunch time I’m only a few days behind, so that was good. The only problem is I find it very tiring. Of course I tire very easily anyways!
Alex and I watched a Benji movie I had taped after lunch. I wrote in the journal until Charlie came home from work.
I hosed down the house at the back and the sundeck. It had gotten so dirty it really needed it.
We at dinner at six o’clock. After dinner Alex and I played Hamburger.
Charlie had gotten quite a few addresses from Dean, so he went to look at the houses. For some reason he wants to look at the location first. It’s going to be more work on our part which seems a bit dumb to me. That’s what they are getting paid for.
Charlie also went to Superstore to buy a few groceries.
Kelly had a seizure before eight o’clock. Unfortunately I had forgotten to give him his pill.
Charlie came home from Superstore he said the store was too big, most Superstores are too big.
Alex went to bed at eight o’clock. I put away all of Alex’s toys. He was too tired to do it.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Cough Syrup ------ ------ 8:00 p.m.
Temperature 36.94C 10:20 a.m.
Alex was just getting up he must have heard the phone ring. I heated up Alex’s sausages then I had a shower, got dressed and had my breakfast.
After breakfast I did the dishes and tided up the house. Then I wrote in the journal until lunch time. I had gotten about a week behind so I’ve got a lot of writing to do. By lunch time I’m only a few days behind, so that was good. The only problem is I find it very tiring. Of course I tire very easily anyways!
Alex and I watched a Benji movie I had taped after lunch. I wrote in the journal until Charlie came home from work.
I hosed down the house at the back and the sundeck. It had gotten so dirty it really needed it.
We at dinner at six o’clock. After dinner Alex and I played Hamburger.
Charlie had gotten quite a few addresses from Dean, so he went to look at the houses. For some reason he wants to look at the location first. It’s going to be more work on our part which seems a bit dumb to me. That’s what they are getting paid for.
Charlie also went to Superstore to buy a few groceries.
Kelly had a seizure before eight o’clock. Unfortunately I had forgotten to give him his pill.
Charlie came home from Superstore he said the store was too big, most Superstores are too big.
Alex went to bed at eight o’clock. I put away all of Alex’s toys. He was too tired to do it.
I watched tv and went to bed at eleven o’clock.
No Tests
Medication
Cough Syrup ------ ------ 8:00 p.m.
Temperature 36.94C 10:20 a.m.
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