Alex came into bed in the middle of the night. At about four or five o’clock, I got out of bed and went to Alex’s bed.
I woke up at 9:45 a.m. and Charlie had gotten Alex his breakfast. Alex had a sandwich, cereal and a piece of cheese. Alex said he was still hungry but I wanted him to wait, so I told him to watch TV. When Mr. Dressup and Sesame Street were over he could have lunch. Alex screamed and yelled and said he couldn’t wait. But he ended up watching it until it was time for lunch.
Alex and Charlie had noodles for lunch.
I went to the post office to mail Paige’s baby present. I got back before two o’clock. Alex and I played croquet, then I read Alex his new book.
Charlie went to work before three o’clock.
Alex and I made a banana cake, Alex sure loves to help with the baking.
I can really see that Alex is better since the prednisone has been tapered off. He is now down to 10mg a day. He’s not so irritable and he seems to be eating a little less. It doesn’t seem to bother him if he doesn’t get the food he wants.
We had dinner around five o’clock. We watched TV. after dinner and Alex played with the etch a sketch. Before going to bed Alex listened to Big Bird. Alex went to bed after eight o’clock. He took the etch a sketch to bed.
I watched TV. and did some knitting I’m trying to finish the blanket that I’m making for Paige.
I also did my laundry and got our bag read for tomorrow as Alex has to stay overnight. It bothers me thinking about going to the hospital. Alex is about to start the next phase, he maybe in overnight or he may have to stay for four or five days. It all depends on his blood count.
It makes me feel so bad that he has to go through all this treatment. I know it’s the only way he’s going to get better but I start thinking about how normal my childhood was and I just want Alex to have that too.
It’s really amazing how strong he is, it seems like he’s even stronger than an adult. Children and adults think so very differently. Alex gets over the pain very quickly, usually five minutes later he’s playing or if it was too exhausting he’ll lie down. The thing is I wonder how he’s doing emotionally, does it effect him in some way? It also makes me wonder with all the drugs they give him how does his body grow normally?
Well it makes me feel better to write this down. Sometimes it’s the only way to get it out. People don’t want to hear about it after awhile. They want to tell you their problems, especially Annie. I can’t deal with that now, I only have one thing on my mind and that’s my baby, Alex.
I’m going to bed now and it’s 11:30 p.m.
No tests
Medicine
Prednisone 9:50 a.m. 5mg ------ 7:30 p.m. 5 mg
Bactrim 10:50 a.m. ----- 8:00 p.m.
Nelstat --------------------- 8:15 p.m.
Temperature 36.25C 10:00 a.m. ------ 36.73C 7:30 p.m.
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