Charlie woke me up at 7:30 a.m., we had to be at the hospital at 9:00 a.m. I had a shower and got ready to go. Alex didn’t get up until 7:45 a.m. by the time we all got ready it was 8:30 a.m.
The traffic on the freeway was pretty heavy, so we didn’t get to the hospital until 9:15 a.m. I thought we were late and that they would be complaining but when we checked his name off it said 9:30 a.m. So we were early not late!
After waiting for forty five minutes, I asked what was happening with Alex. The nurse said hasn’t he had blood taken? I told her no and she said well we might as well weigh Alex now and then maybe they’ll be ready to take blood when we come back.
After he was finished being weighed they were ready to take blood. Alex was really good, he didn’t even cry. This is the first time he didn’t cry.
We had to wait forty five minutes for the blood test. Then Dr R called us into the treatment room and told us the blood count for Alex was good. He also told us that the bone marrow from last Friday was a normal bone marrow. He said therapy still had to continue as a Leukemia cell could be in a spot that they couldn’t detect and it would then multiply and then take over the bone marrow, if therapy didn’t continue.
Dr R said he had ordered the chemotherapy drugs, so Alex would be having an I.V. and it would take about four hours to go through. Dr R looked at Alex’s thumb and the skin was coming off so he pulled the rest of the skin off. The doctor said his thumb was healed and he told Alex not to suck his thumb any more.
We went back to the waiting and play room. Alex painted, coloured and played with the toys and the computer.
Around eleven o’clock Alex had his I.V. put in by Lenore. She’s really good at putting it in. It always seems that she’s the only one who can put it in properly.
Before the I.V. was put in the nurse gave Charlie a prescription for Mercaptopurine. Charlie went and got the prescription filled. Alex and I went and got Charlie when it was time for the I.V. as Alex wanted Charlie to come in as well.
Alex cried quite a bit when he had the I.V. put in. He worked himself up before it was put in as he knew it was going to hurt.
Alex played some more and then about 15 minutes later he wanted to lie down. Alex cried and cried while he lied on the bed. He was so tired I don’t think he know what he wanted.
I left and got my lunch, when I came back Alex was asleep. It was 12:30 p.m. After I had my lunch, Charlie and I did a crossword puzzle.
Charlie left at two o’clock. Alex woke up just after Charlie left and he had to go to the bathroom. We came back and he wanted to sit at the table. Alex watched TV. most of the afternoon. Alex went to the bathroom about four times.
The I.V. first started with glucose water, anti-vomiting drug, cyclophosphamide, glucose water, Arabinoside cytosine (ARA-C), glucose water, a drug to make Alex urinate, anti-vomiting drugs and then glucose water.
I phoned Mom to let her know we might not have to stay overnight. Dr R said if Alex didn’t throw-up we could go home. Krisann gave us a list of things to look for, Alex has to drink a lot of fluids and go to the bathroom regularly. I have to make sure he urinates until I go to sleep. If Alex starts vomiting and isn’t drinking any fluids, I’m to phone the hospital and we may have to go to emergency.
Mom asked us to come for dinner, which will make things a lot easier.
We left the hospital at 4:45 p.m. and went to Mom and Dad’s for dinner. Alex went into Mom and Dad’s bed and slept until 6:30 p.m. We went home shortly afterwards. We got home around seven o’clock and Alex had his medicine. Alex had some juice, chips and a bowl of pea soup.
Alex went to bed after eight o’clock.
I cleaned up the house and did the dishes. I put Alex’s laundry in the washer.
I woke Alex up at ten o’clock to go to the bathroom. He didn’t mind at all and he was able to go.
Krisann said I should wake up Alex at midnight, take him to the bathroom and get him to drink more fluids.
I wrote in the journal until after eleven o’clock. I’m going to make Alex’s bed and then get ready for bed. I’ll try and get Alex to go to the bathroom and drink some more fluids. Then I’ll go to bed.
Tests
WBC 8.6
HGB 11.7
Platelets 290,000
ANC 5,676
Medicine
Prednisone 8:00 a.m. 2.5mg ----- 7:00 p.m. 2.5 mg
Bactrim 8:15 a.m. ----- 7:00 p.m.
Nelstat ----------------------------------------------------
Mercaptopurine ------ ------- 8:00 p.m.
Temperature 36.96C 8:10 a.m. ------- 36.91C 8:00 p.m.
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