I woke up at eight o’clock. Alex asked me to get him dressed. Alex wanted hot chocolate and hot cereal for breakfast.
At 8:30 a.m. I phoned the hospital to tell them the Mercaptopurine Alex is taking is running out. Krisann said it was okay as Alex should have his last one tonight. I asked for Alex’s blood count but she said she would phone back.
Charlie went out at ten o’clock, grocery shopping. Shirley phoned and said they would be over at one o’clock.
I vacuumed the house and cleaned the bathrooms.
At eleven o’clock, Martina phoned back with Alex’s results. She said because Alex’s HGB is quite low we should watch and if Alex gets tired we should phone and then come in. Martina phoned thirty minutes later and said Dr R wants Alex to come in tomorrow. Dr R wants Alex to have blood.
Shirley phoned again and said if it was okay they would be over earlier. I finished doing the bathrooms and had a shower. I got dressed, then they came over.
Alex and Brent played in his room for about an hour. Then I told them to play outside in Alex’s pool. Alex went in the pool but Brent didn’t go in. He said he didn’t want to get wet. Alex thought this was funny and kept splashing Brent. They had a really good time together. It was really nice for Alex to have someone to play with.
They left at two o’clock.
It sure is hot today, I can’t believe it. It seems like it’s a heat wave. I heard on the radio that it’s 34C. My feet have been bothering me all day. I kept soaking them in cold water.
Alex fell asleep right when I put dinner on the table. He slept until seven o’clock. I tried to wake him up at six o’clock but he wouldn’t wake up. He’s really tired his HGB must be down.
Alex had dinner at seven o’clock, he ate about half of it. Later we went outside, he played in the pool for awhile. We dumped the water out and came inside.
Alex played and I read. At nine o’clock Alex said he wanted to go to bed. I read him a story but he didn’t go to sleep. We watched TV and at 11:30 p.m. Alex said he wanted a snack. He had milk and cookies. He brushed his teeth again and went to bed. He was still awake when Charlie came home. He said he had to give Charlie a hug then he would go to sleep.
I wrote in the journal for a couple of hours. I hadn’t written in the journal all weekend. It’s 12:10 a.m. I’m going to go to bed now.
No tests
Medicine
Bactrim 9:25 a.m. ------ 9:00 p.m.
Mercaptopurine ------- ------- 9:00 p.m.
Temperature 35.98 8:30 a.m. 36.79C 4:00 a.m. 36.58C 9:10 p.m.
Thursday, June 30, 2011
Tuesday, June 28, 2011
Diagnosis: Leukemia; June 28, 1987
We all woke up at nine o’clock. Alex and I had waffles for breakfast.
I cleaned up the house from last night. I was so tired last night, I didn’t’ bother cleaning up. I did the dishes and had a shower.
We all had lunch at home and then we went to the mall. I exchanged Alex’s sandals for a smaller size. We stopped at Dairy Queen on our way to Mom and Dad’s. We bought sundaes for everyone. Mom invited us for dinner. After dinner Charlie and Dad played pool.
I noticed Alex was chewing his finger nails, I told him to stop chewing them. He got annoyed. Then Mom told him he shouldn’t chew them. Alex said No way brat to Mom. I couldn’t believe he would say that. I told him to apologize right now. Alex cried and cried, he told me he was sorry. I told him to apologize to Mom. He went and apologized to Mom. I think it’s very important even though Alex is sick to discipline him. He can’t get away with anything just because he’s sick.
I gave Alex the liquid medicine before we left. I forgot to bring the Mercaptopurine. We left and got home around nine o’clock. Alex had his medicine and went to bed.
I went to bed after eleven o’clock.
No test
Medicine
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 9:00 p.m.
Temperature 36.17C 9:10 a.m. 36.89C 12:55 p.m. 36.88C 8:00 p.m.
I cleaned up the house from last night. I was so tired last night, I didn’t’ bother cleaning up. I did the dishes and had a shower.
We all had lunch at home and then we went to the mall. I exchanged Alex’s sandals for a smaller size. We stopped at Dairy Queen on our way to Mom and Dad’s. We bought sundaes for everyone. Mom invited us for dinner. After dinner Charlie and Dad played pool.
I noticed Alex was chewing his finger nails, I told him to stop chewing them. He got annoyed. Then Mom told him he shouldn’t chew them. Alex said No way brat to Mom. I couldn’t believe he would say that. I told him to apologize right now. Alex cried and cried, he told me he was sorry. I told him to apologize to Mom. He went and apologized to Mom. I think it’s very important even though Alex is sick to discipline him. He can’t get away with anything just because he’s sick.
I gave Alex the liquid medicine before we left. I forgot to bring the Mercaptopurine. We left and got home around nine o’clock. Alex had his medicine and went to bed.
I went to bed after eleven o’clock.
No test
Medicine
Bactrim 10:00 a.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 9:00 p.m.
Temperature 36.17C 9:10 a.m. 36.89C 12:55 p.m. 36.88C 8:00 p.m.
Monday, June 27, 2011
Diagnosis: Leukemia; June 27, 1987
I woke up at seven thirty and as soon as I got out of bed Alex woke up. We had waffles for breakfast and Alex watched cartoons on TV.
Charlie woke up at nine o’clock. When I talked to Mom last night she said Dad wanted to help Charlie with the drywall. I left a message for Charlie last night to phone them but he never did. I asked Charlie when he woke up, he said he didn’t need help. So I phoned and told Mom, Charlie didn’t need Dad’s help as he wasn’t ready to start the drywall in some spots.
I went to the mall around ten thirty. I bought Alex a pair of sandals. I couldn’t find any thongs. I bought Mom’s birthday present as well.
I came home around noon before I could come into the house Alex came running to tell me Grandma and Grandpa are coming! He sure was excited. Charlie said he was ready to do the drywall.
Charlie went out to buy a few things, he invited Mom and Dad for dinner.
Naomi sent us a present. Alex was excited, he got a transformer plane. Naomi sent me a memo book and earrings.
I tided up the house and got changed. Mom and Dad came around one o’clock. Charlie came back shortly afterwards.
Dad and Charlie went downstairs to do the drywall. Mom, Alex and I stayed upstairs. Alex wanted all my attention, he was driving me crazy. I feel terrible saying that.
I took Alex’s temperature at two o’clock and it was 38.31C He was very excited to have Grandma and Grandpa come over. Alex hasn’t had any visitors lately as a lot of his friends have had colds, chicken pox or tonsillitis.
We went for a walk, I thought it might calm Alex down a bit. I think we pooped Mom out we went along Mara drive.
I took Alex’s temperature at four o’clock and it was 38.59C. I phoned the hospital and talked to Sophia, a nurse. She said his temperature was too high. Sophia said we can do two things. One you can bring Alex to emergency or two you can wait and talk to a doctor. I told her I would wait for the doctor to phone. Sophia wasn’t too happy about that it seemed like she wanted us to come in.
The doctor phoned, Dr F. I told him Alex had a temperature and that he had finished his ARA-C shots. I also told him it had happened before. Dr F said it was normal to have a temperature after the ARA-C shots. He said it should last for twenty four hours and if Alex still had a temperature tomorrow I should phone back.
We had dinner around six o’clock. I took Alex’s temperature again at 6:55 p.m. and it had gone up to 38.88C It sure is worrisome when Alex’s temperature goes up like that.
Charlie and Dad went for a walk after dinner. I got Alex ready for bed and gave him his medicine. His temperature was 38.56C at eight o’clock. At least it has gone down a little bit.
Mom and Dad left at nine o’clock.
I took Alex’s temperature at 10:30 p.m. and it had come down quite a bit. It was 37.64C
We went to bed after eleven o’clock.
Not Test
Medicine
Bactrim 8:15 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00p.m.
Temperature 37.21C 8:15 a.m. 38.31C 2:01 p.m. 38.56C 8:00 p.m.
Charlie woke up at nine o’clock. When I talked to Mom last night she said Dad wanted to help Charlie with the drywall. I left a message for Charlie last night to phone them but he never did. I asked Charlie when he woke up, he said he didn’t need help. So I phoned and told Mom, Charlie didn’t need Dad’s help as he wasn’t ready to start the drywall in some spots.
I went to the mall around ten thirty. I bought Alex a pair of sandals. I couldn’t find any thongs. I bought Mom’s birthday present as well.
I came home around noon before I could come into the house Alex came running to tell me Grandma and Grandpa are coming! He sure was excited. Charlie said he was ready to do the drywall.
Charlie went out to buy a few things, he invited Mom and Dad for dinner.
Naomi sent us a present. Alex was excited, he got a transformer plane. Naomi sent me a memo book and earrings.
I tided up the house and got changed. Mom and Dad came around one o’clock. Charlie came back shortly afterwards.
Dad and Charlie went downstairs to do the drywall. Mom, Alex and I stayed upstairs. Alex wanted all my attention, he was driving me crazy. I feel terrible saying that.
I took Alex’s temperature at two o’clock and it was 38.31C He was very excited to have Grandma and Grandpa come over. Alex hasn’t had any visitors lately as a lot of his friends have had colds, chicken pox or tonsillitis.
We went for a walk, I thought it might calm Alex down a bit. I think we pooped Mom out we went along Mara drive.
I took Alex’s temperature at four o’clock and it was 38.59C. I phoned the hospital and talked to Sophia, a nurse. She said his temperature was too high. Sophia said we can do two things. One you can bring Alex to emergency or two you can wait and talk to a doctor. I told her I would wait for the doctor to phone. Sophia wasn’t too happy about that it seemed like she wanted us to come in.
The doctor phoned, Dr F. I told him Alex had a temperature and that he had finished his ARA-C shots. I also told him it had happened before. Dr F said it was normal to have a temperature after the ARA-C shots. He said it should last for twenty four hours and if Alex still had a temperature tomorrow I should phone back.
We had dinner around six o’clock. I took Alex’s temperature again at 6:55 p.m. and it had gone up to 38.88C It sure is worrisome when Alex’s temperature goes up like that.
Charlie and Dad went for a walk after dinner. I got Alex ready for bed and gave him his medicine. His temperature was 38.56C at eight o’clock. At least it has gone down a little bit.
Mom and Dad left at nine o’clock.
I took Alex’s temperature at 10:30 p.m. and it had come down quite a bit. It was 37.64C
We went to bed after eleven o’clock.
Not Test
Medicine
Bactrim 8:15 a.m. ------ 8:00 p.m.
Mercaptopurine ------ ------ 8:00p.m.
Temperature 37.21C 8:15 a.m. 38.31C 2:01 p.m. 38.56C 8:00 p.m.
Diagnosis: Leukemia; June 26, 1987
Alex woke me up at eight o’clock, to tell me that the freezee pops were frozen. I told him he couldn’t have one until later. He said I KNOW!
Charlie had a dentist appointment at 7:45 a.m., he was gone when we got up.
Alex and I had breakfast, then we watched TV until Charlie came home. Charlie had to have a root canal, his mouth was still frozen. He has to go back in a couple of weeks.
Alex had a shower, it was the first time since Alex has been sick that he has had a shower. He screamed and cried, he said I don’t like showers. But once he was in it he quite enjoyed it.
I got Alex dressed then we went outside. Alex rode his bike while I swept the walkway. We came in, Alex and Charlie had something to eat. I had lunch around 11:30 a.m. then I cleaned up the kitchen. Charlie went to the bank.
At noon Shirley, Brent and Monique dropped by. Alex and Brent played outside. They left before one o’clock. We left shortly after to go to the hospital. We got there after one thirty, there weren’t very many people there. We had to wait until Martina came back from lunch.
Alex had a piece of cake, it was donated to the hospital by a Movie company. Krisann said Alex could take a poster home. He choose a snake poster.
Alex had a blood test and his medicine at 2:15 p.m. We left and came home.
Alex watched TV until dinner time. He didn’t eat much. He played until it was time for bed. Alex was asleep by 7:30 p.m. I read him a story before he went to sleep.
I watched TV for awhile then I wrote in the journal for about half an hour. It’s 9:30 p.m. and I’ll go to bed in awhile.
Tests
WBC 2.0
HGB 7.1
Platelets 89,000
ANC 1460
Medicine
Bactrim 8:15 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Dinemnhydrinate ------ 12:30 p.m. 4:00 p.m.
Temperature 36.79C 8:15 a.m. 36.77C 4:05 p.m. 37.51C 7:00 p.m.
Charlie had a dentist appointment at 7:45 a.m., he was gone when we got up.
Alex and I had breakfast, then we watched TV until Charlie came home. Charlie had to have a root canal, his mouth was still frozen. He has to go back in a couple of weeks.
Alex had a shower, it was the first time since Alex has been sick that he has had a shower. He screamed and cried, he said I don’t like showers. But once he was in it he quite enjoyed it.
I got Alex dressed then we went outside. Alex rode his bike while I swept the walkway. We came in, Alex and Charlie had something to eat. I had lunch around 11:30 a.m. then I cleaned up the kitchen. Charlie went to the bank.
At noon Shirley, Brent and Monique dropped by. Alex and Brent played outside. They left before one o’clock. We left shortly after to go to the hospital. We got there after one thirty, there weren’t very many people there. We had to wait until Martina came back from lunch.
Alex had a piece of cake, it was donated to the hospital by a Movie company. Krisann said Alex could take a poster home. He choose a snake poster.
Alex had a blood test and his medicine at 2:15 p.m. We left and came home.
Alex watched TV until dinner time. He didn’t eat much. He played until it was time for bed. Alex was asleep by 7:30 p.m. I read him a story before he went to sleep.
I watched TV for awhile then I wrote in the journal for about half an hour. It’s 9:30 p.m. and I’ll go to bed in awhile.
Tests
WBC 2.0
HGB 7.1
Platelets 89,000
ANC 1460
Medicine
Bactrim 8:15 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Dinemnhydrinate ------ 12:30 p.m. 4:00 p.m.
Temperature 36.79C 8:15 a.m. 36.77C 4:05 p.m. 37.51C 7:00 p.m.
Saturday, June 25, 2011
Diagnosis: Leukemia; June 25, 1987
I woke up before eight o’clock. I had a shower and got Alex dressed. Alex wanted hot cereal for breakfast. I got dressed and then we got ready to go to the hospital.
We got to the hospital after ten o’clock. Alex made a glitter star while we waited. At ten thirty Alex had his shot, he tried to pull away when Krisann put in the needle.
When we left we went to take Alex’s stars home that he had done. The woman from Child Life said oh you can’t take them home. I thought how dumb they get them to make them but they can’t take them home. She gave Alex a colouring book to take home.
We got home after eleven o’clock. Charlie went and cut the lawn. Alex wanted to go too, so we went outside. I sat down and read while Alex rode his bike.
Alex wanted peas, corn and French fries for lunch. We went in and I started cooking. Alex ate quite a bit. I had lunch and Alex wanted me to play. He wants to play with me all day long, it sure is tiring for me. First of all going to the hospital is an emotional strain on me. By the time we come home I feel really tired. Then I play with Alex and he’s quite demanding. It’ll be nice when he can see some of his friends. Right now it’s not a very good idea for him to come in contact with too many people. The doctor said chicken pox is going around. That’s all we’d need!
Alex had gravol around two o’clock. I thought if he had it later it might help. It seems that around three thirty Alex feels nauseated. It helped quite a bit , he felt a bit nauseated but not like yesterday where he tried to throw up.
We went outside and came back in at four o’clock. We watched a video and then I cooked dinner. We had dinner after five o’clock. I cleaned up the kitchen and Alex played with his cars and trucks.
I gave Alex his medicine at seven o’clock. Then I got him ready for bed. Alex has had a runny nose today and he has been sneezing quite a bit. I thought if he had a good sleep he might not get it so bad. I read Alex a story and he was asleep by 7:40 p.m.
I put some kitchen things into the microwave cart. I watched TV and wrote two letters.
I wrote in the journal for about an hour. It’s almost eleven o’clock, I’ll go to bed soon.
No tests
Medicine
Bactrim 8:45 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Dimenhydrinate 8:45 a.m. 2:50 p.m. ------
Temperature 36.67C 8:45 a.m. 37.37C 2:50 p.m. 37.46C 7:00 p.m.
We got to the hospital after ten o’clock. Alex made a glitter star while we waited. At ten thirty Alex had his shot, he tried to pull away when Krisann put in the needle.
When we left we went to take Alex’s stars home that he had done. The woman from Child Life said oh you can’t take them home. I thought how dumb they get them to make them but they can’t take them home. She gave Alex a colouring book to take home.
We got home after eleven o’clock. Charlie went and cut the lawn. Alex wanted to go too, so we went outside. I sat down and read while Alex rode his bike.
Alex wanted peas, corn and French fries for lunch. We went in and I started cooking. Alex ate quite a bit. I had lunch and Alex wanted me to play. He wants to play with me all day long, it sure is tiring for me. First of all going to the hospital is an emotional strain on me. By the time we come home I feel really tired. Then I play with Alex and he’s quite demanding. It’ll be nice when he can see some of his friends. Right now it’s not a very good idea for him to come in contact with too many people. The doctor said chicken pox is going around. That’s all we’d need!
Alex had gravol around two o’clock. I thought if he had it later it might help. It seems that around three thirty Alex feels nauseated. It helped quite a bit , he felt a bit nauseated but not like yesterday where he tried to throw up.
We went outside and came back in at four o’clock. We watched a video and then I cooked dinner. We had dinner after five o’clock. I cleaned up the kitchen and Alex played with his cars and trucks.
I gave Alex his medicine at seven o’clock. Then I got him ready for bed. Alex has had a runny nose today and he has been sneezing quite a bit. I thought if he had a good sleep he might not get it so bad. I read Alex a story and he was asleep by 7:40 p.m.
I put some kitchen things into the microwave cart. I watched TV and wrote two letters.
I wrote in the journal for about an hour. It’s almost eleven o’clock, I’ll go to bed soon.
No tests
Medicine
Bactrim 8:45 a.m. ------ 7:00 p.m.
Mercaptopurine ------ ------ 7:00 p.m.
Dimenhydrinate 8:45 a.m. 2:50 p.m. ------
Temperature 36.67C 8:45 a.m. 37.37C 2:50 p.m. 37.46C 7:00 p.m.
Friday, June 24, 2011
Diagnosis: Leukemia; June 24, 1987
I woke up after eight o’clock. Alex was asleep in our bed and Charlie was sleeping in Alex’s bed. I had a shower and told Charlie it was almost 8:30 a.m. I dried my hair and woke Alex up. I got dressed and got Alex dressed.
I gave Alex his medicine and he said he didn’t want breakfast. He just wanted cheese he said.
We left before 9:30 a.m. and arrived at the hospital after ten o’clock. Alex painted while we waited. He had his shot before eleven o’clock. Alex cried when the shot went in, he tried to pull his arm away. Alex didn’t want to blow bubbles.
We stopped at a Won Ton House, went home and had lunch.
We went outside after lunch, Charlie washed his car. Alex rode his bike most of the time. We came inside, Alex wanted a popsicle. He watched Porky Pig on TV.
Charlie left for work before three o’clock. Alex and I went outside and washed my car. I moved the car into the garage and started vacuuming it. Before I finished, Alex said his stomach hurt. We went upstairs, he said he was going to throw up. I got him a bowl but he didn’t throw up. He said he would feel better if he threw up. I told him it’s not good for his stomach to throw up every day.
Alex said popsicles help his stomach, he had two more.
We had dinner, then we went outside. I vacuumed the rest of my car and cleaned the back seat. It had gotten quite dirty from the car seat. I moved my car out and swept the floor. Alex rode his bike, somehow or other he fell off. He said he didn’t hurt himself or hit his head. He said I don’t know how I could of fallen off my bike. I told him that’s why the doctor doesn’t want you to ride your bike when your blood is low. This helped Alex a lot to understand why he can’t ride his bike.
We went inside after seven o’clock. Alex wanted popcorn, I made some and we watched TV. He said he wanted to watch a movie I had taped. While it was on he kept asking me questions. He wants my attention all the time. I turned the TV off as he started slapping me and calling me a brat. Alex cried and cried, I told him if he was good and stopped crying he could watch TV.
I got him dressed and he watched TV. I phoned Mom. Alex had fallen asleep while I was on the phone.
I had cleaned his bed sheets so I put them on his bed. I moved Alex to his bed. I watched TV for awhile, then I wrote in the journal for about an hour. It’s eleven o’clock and I’ll be getting ready for bed.
No tests
Medicine
Bactrim 9:00 a.m. ----- 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Dimenhydrinate 9:00 a.m. 12:45 p.m. -------
Temperature 36.67C 9:00 a.m. 36.73 C 12:50 p.m. 36.06C 7:10 p.m.
I gave Alex his medicine and he said he didn’t want breakfast. He just wanted cheese he said.
We left before 9:30 a.m. and arrived at the hospital after ten o’clock. Alex painted while we waited. He had his shot before eleven o’clock. Alex cried when the shot went in, he tried to pull his arm away. Alex didn’t want to blow bubbles.
We stopped at a Won Ton House, went home and had lunch.
We went outside after lunch, Charlie washed his car. Alex rode his bike most of the time. We came inside, Alex wanted a popsicle. He watched Porky Pig on TV.
Charlie left for work before three o’clock. Alex and I went outside and washed my car. I moved the car into the garage and started vacuuming it. Before I finished, Alex said his stomach hurt. We went upstairs, he said he was going to throw up. I got him a bowl but he didn’t throw up. He said he would feel better if he threw up. I told him it’s not good for his stomach to throw up every day.
Alex said popsicles help his stomach, he had two more.
We had dinner, then we went outside. I vacuumed the rest of my car and cleaned the back seat. It had gotten quite dirty from the car seat. I moved my car out and swept the floor. Alex rode his bike, somehow or other he fell off. He said he didn’t hurt himself or hit his head. He said I don’t know how I could of fallen off my bike. I told him that’s why the doctor doesn’t want you to ride your bike when your blood is low. This helped Alex a lot to understand why he can’t ride his bike.
We went inside after seven o’clock. Alex wanted popcorn, I made some and we watched TV. He said he wanted to watch a movie I had taped. While it was on he kept asking me questions. He wants my attention all the time. I turned the TV off as he started slapping me and calling me a brat. Alex cried and cried, I told him if he was good and stopped crying he could watch TV.
I got him dressed and he watched TV. I phoned Mom. Alex had fallen asleep while I was on the phone.
I had cleaned his bed sheets so I put them on his bed. I moved Alex to his bed. I watched TV for awhile, then I wrote in the journal for about an hour. It’s eleven o’clock and I’ll be getting ready for bed.
No tests
Medicine
Bactrim 9:00 a.m. ----- 7:00 p.m.
Mercaptopurine ------ ------- 7:00 p.m.
Dimenhydrinate 9:00 a.m. 12:45 p.m. -------
Temperature 36.67C 9:00 a.m. 36.73 C 12:50 p.m. 36.06C 7:10 p.m.
Thursday, June 23, 2011
Diagnosis: Leukemia; June 23, 1987
I woke up at eight o’clock. It’s Charlie’s birthday today! Charlie and Alex were still asleep so I went and had a shower. I dried my hair then got dressed. Charlie and Alex woke up, Alex brought Charlie his birthday present. Alex said to Charlie, HAPPY FATHER’S DAY, Pa! I couldn’t blame him for being confused. I think he doesn’t know the difference between Mother/Father’s Day and Birthdays.
Alex wanted scrambled eggs made in the microwave. He thinks it’s really something cooking food in it. We got ready to go to the hospital, we have to be there at ten o’clock. We left at 9:30 a.m. and got there after ten o’clock.
About ten or fifteen minutes after we got there Martina did a small I.V. She took blood and gave Alex his ARA-C. Alex was really good, the role playing has helped him quite a bit. He blew bubbles when Martina put the needle in and out. We waited until eleven o’clock for Alex’s LP. Lorraine held Alex while Dr S did the LP. It seems like the other nurses don’t know how to hold Alex except Krisann. Every time Krisann hasn’t done it, there always seems to be a problem. Alex started to cry as soon as he got on the table. He cried most of the time Lorraine held him. It seemed to take longer than usual. Alex kept on straightening his back which stops the flow of the fluid. They had to keep moving him into a curled position.
Alex picked a prize from the box, he took a toy jeep.
I told Dr S what happened with Kurt yesterday. She said tonsillitis is contagious because you cannot be certain it is tonsillitis, it could be a number of things.
When Lorraine came to check Alex’s temperature she asked if he had come in contact with any infections. I told her about the tonsillitis. I asked her if Alex could get it and how long before we would know. She asked if we were inside and I said no Alex had been riding his bike when Kurt came over. Lorraine said the chances of Alex catching it outside are less than indoors. She said it would take about a week before we would know.
You know it really irritates me to think Kurt was outside playing. I can remember when were kids, if we had a temperature during the day we were not let outside to play. I can remember Mom saying if you’re too sick to go to school you’re too sick to play outside. Nora had said it’s not contagious. I sure want to phone her up and say by the way tonsillitis is contagious. You know Nora you should watch who Kurt plays with, all the neighbourhood kids will be getting it. I don’t have the nerve but I wish I did!
I sure hope Alex doesn’t get sick, it’s scary to think about him catching anything. So far he’s been very lucky.
We left at noon, Alex wanted chicken. We stopped at Brownies on the way home. Charlie dropped us off and went to Save-on-Foods.
Alex didn’t eat anything, he said he felt sick and wanted to lie down. He fell asleep within ten or fifteen minutes. I had lunch and made rice for Charlie.
Charlie came home and I helped him make Poached Fish. It was a recipe in the Microwave cookbook. We put the microwave on the shelf, then I cleaned up the kitchen. It sure looks a lot better with the microwave on the stand and off the counter. I can’t stand my counter space to be cluttered.
Alex woke up and we sang Happy Birthday to Charlie. Charlie and I had a piece of cake. Alex said his stomach hurt and he wanted to go back to bed.
Charlie left for work before three o’clock. I had to call him back from downstairs, Alex wanted Charlie to give him a hug.
At three thirty Alex threw up, unfortunately he threw up all over his pillow. I ran and got a bowl, he threw up some more. It wasn’t time for some gravol so we had to wait. Alex seemed okay afterwards.
At four o’clock Alex wanted to go outside and ride his bike. I find it amazing how children recover so fast. I mean half an hour ago he was throwing up and now he’s riding his bike. Half an hour later Alex said his stomached hurt. I told him we had better go inside and he should rest awhile. That maybe later we could come out again.
We had something to eat at five thirty and then watched TV. I put away the laundry and did some more laundry. I did the dishes and then we played a lot of games.
Alex told me it was time for my poke. He copied everything that happened today. He said I had to have two pokes. When I told him it was his turn he had a fit! He said I already had my poke, I don’t want another one.
Alex listened to two tape and book sets and then went to sleep. He was asleep by 10 :30 p.m.
I wrote in the journal for forty five minutes. It’s 11:20 p.m. and time for me to go to bed.
Tests
WBC 2.1
HGB 7.9
Platelets 209,000
ANC 1617
Medicine
Bactrim 9:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------- 9:00 p.m.
Dimenhydrinate 9:00 a.m. 12:45 p.m. ------
Temperature 36.05C 11:00 a.m. 36.14C 4:30 p.m. 36.30C 9:00 p.m.
Alex wanted scrambled eggs made in the microwave. He thinks it’s really something cooking food in it. We got ready to go to the hospital, we have to be there at ten o’clock. We left at 9:30 a.m. and got there after ten o’clock.
About ten or fifteen minutes after we got there Martina did a small I.V. She took blood and gave Alex his ARA-C. Alex was really good, the role playing has helped him quite a bit. He blew bubbles when Martina put the needle in and out. We waited until eleven o’clock for Alex’s LP. Lorraine held Alex while Dr S did the LP. It seems like the other nurses don’t know how to hold Alex except Krisann. Every time Krisann hasn’t done it, there always seems to be a problem. Alex started to cry as soon as he got on the table. He cried most of the time Lorraine held him. It seemed to take longer than usual. Alex kept on straightening his back which stops the flow of the fluid. They had to keep moving him into a curled position.
Alex picked a prize from the box, he took a toy jeep.
I told Dr S what happened with Kurt yesterday. She said tonsillitis is contagious because you cannot be certain it is tonsillitis, it could be a number of things.
When Lorraine came to check Alex’s temperature she asked if he had come in contact with any infections. I told her about the tonsillitis. I asked her if Alex could get it and how long before we would know. She asked if we were inside and I said no Alex had been riding his bike when Kurt came over. Lorraine said the chances of Alex catching it outside are less than indoors. She said it would take about a week before we would know.
You know it really irritates me to think Kurt was outside playing. I can remember when were kids, if we had a temperature during the day we were not let outside to play. I can remember Mom saying if you’re too sick to go to school you’re too sick to play outside. Nora had said it’s not contagious. I sure want to phone her up and say by the way tonsillitis is contagious. You know Nora you should watch who Kurt plays with, all the neighbourhood kids will be getting it. I don’t have the nerve but I wish I did!
I sure hope Alex doesn’t get sick, it’s scary to think about him catching anything. So far he’s been very lucky.
We left at noon, Alex wanted chicken. We stopped at Brownies on the way home. Charlie dropped us off and went to Save-on-Foods.
Alex didn’t eat anything, he said he felt sick and wanted to lie down. He fell asleep within ten or fifteen minutes. I had lunch and made rice for Charlie.
Charlie came home and I helped him make Poached Fish. It was a recipe in the Microwave cookbook. We put the microwave on the shelf, then I cleaned up the kitchen. It sure looks a lot better with the microwave on the stand and off the counter. I can’t stand my counter space to be cluttered.
Alex woke up and we sang Happy Birthday to Charlie. Charlie and I had a piece of cake. Alex said his stomach hurt and he wanted to go back to bed.
Charlie left for work before three o’clock. I had to call him back from downstairs, Alex wanted Charlie to give him a hug.
At three thirty Alex threw up, unfortunately he threw up all over his pillow. I ran and got a bowl, he threw up some more. It wasn’t time for some gravol so we had to wait. Alex seemed okay afterwards.
At four o’clock Alex wanted to go outside and ride his bike. I find it amazing how children recover so fast. I mean half an hour ago he was throwing up and now he’s riding his bike. Half an hour later Alex said his stomached hurt. I told him we had better go inside and he should rest awhile. That maybe later we could come out again.
We had something to eat at five thirty and then watched TV. I put away the laundry and did some more laundry. I did the dishes and then we played a lot of games.
Alex told me it was time for my poke. He copied everything that happened today. He said I had to have two pokes. When I told him it was his turn he had a fit! He said I already had my poke, I don’t want another one.
Alex listened to two tape and book sets and then went to sleep. He was asleep by 10 :30 p.m.
I wrote in the journal for forty five minutes. It’s 11:20 p.m. and time for me to go to bed.
Tests
WBC 2.1
HGB 7.9
Platelets 209,000
ANC 1617
Medicine
Bactrim 9:00 a.m. ------- 9:00 p.m.
Mercaptopurine ------- ------- 9:00 p.m.
Dimenhydrinate 9:00 a.m. 12:45 p.m. ------
Temperature 36.05C 11:00 a.m. 36.14C 4:30 p.m. 36.30C 9:00 p.m.
Wednesday, June 22, 2011
Diagnosis: Leukemia; June 22, 1987
I woke up at nine o’clock. Charlie was sleeping in Alex’s bed. Alex had come into bed again. Alex and Charlie woke up shortly after I had. Charlie went to put out the garbage.
We went to Consumers’ Distributing to buy a microwave stand. I went into the store while Charlie and Alex stayed in the car. Then we went to Save-on-Foods, Charlie went in and we stayed in the car.
We came home after twelve o’clock. Charlie started to assemble the microwave stand. Charlie worked on it from 12:30 to 2:30 p.m. He had lunch in between. I made him a sandwich and tea. The stand is almost finished, it’ll be good to have the microwave on it.
I cleaned up the house. Alex was really cranky today. He complained about everything. I sure wish I knew what the matter was that he has been so cranky. The past few days he has argued about anything and everything. I phoned the hospital and got the results of Alex’s blood test from Friday. Alex fell asleep at 3:30 p.m.
I baked a birthday cake for Charlie. Alex asked me if we could have a cake for Pa’s birthday. I made icing and then heated up some leftovers.
At six o’clock I woke Alex up and asked him if he wanted dinner. He was cranky but once he was awake he was in a good mood.
We had dinner then I did the dishes. I iced the cake and then we went outside. Krisann said Alex could ride his bike since his platelet count was up. When we were outside Kurt came over. I told him to ask his mother if it was okay. Nora came over and asked if Kurt could come and play with Alex. I told her I asked Kurt to ask her if it was okay. I asked her if he had a cold. She said well he has tonsillitis and he has had a temperature today. I said Alex is not allowed to be in contact with people who have been sick. Kurt didn’t understand very well. Alex understood why Kurt couldn’t come over. I told Alex, Kurt had something wrong with his throat and it might make Alex sick.
I couldn’t believe she would let him outside when he’s sick, I had told her that Alex cannot come in contact with people who have colds, mumps, measles and chicken pox. People sure are funny.
We came into the house after eight o’clock. We had a snack and then Alex had a bath. Alex is still scared that he is going to hurt himself in the bathtub.
Alex played with his cars until ten thirty. I read him a couple of stories and he went to bed at 10:45 p.m.
I wrote in the journal off and on all night. I hadn’t written in it for a couple of days. I had a bit of catching up to do. I’ll go to bed soon , it’s 10:55 p.m.
No tests
Medicine
Bactrim 10:00 a.m. ----9:30 p.m.
Mercaptopurine ------ ----- 9:30 p.m.
Temperature 35.61C 9:35 p.m.
We went to Consumers’ Distributing to buy a microwave stand. I went into the store while Charlie and Alex stayed in the car. Then we went to Save-on-Foods, Charlie went in and we stayed in the car.
We came home after twelve o’clock. Charlie started to assemble the microwave stand. Charlie worked on it from 12:30 to 2:30 p.m. He had lunch in between. I made him a sandwich and tea. The stand is almost finished, it’ll be good to have the microwave on it.
I cleaned up the house. Alex was really cranky today. He complained about everything. I sure wish I knew what the matter was that he has been so cranky. The past few days he has argued about anything and everything. I phoned the hospital and got the results of Alex’s blood test from Friday. Alex fell asleep at 3:30 p.m.
I baked a birthday cake for Charlie. Alex asked me if we could have a cake for Pa’s birthday. I made icing and then heated up some leftovers.
At six o’clock I woke Alex up and asked him if he wanted dinner. He was cranky but once he was awake he was in a good mood.
We had dinner then I did the dishes. I iced the cake and then we went outside. Krisann said Alex could ride his bike since his platelet count was up. When we were outside Kurt came over. I told him to ask his mother if it was okay. Nora came over and asked if Kurt could come and play with Alex. I told her I asked Kurt to ask her if it was okay. I asked her if he had a cold. She said well he has tonsillitis and he has had a temperature today. I said Alex is not allowed to be in contact with people who have been sick. Kurt didn’t understand very well. Alex understood why Kurt couldn’t come over. I told Alex, Kurt had something wrong with his throat and it might make Alex sick.
I couldn’t believe she would let him outside when he’s sick, I had told her that Alex cannot come in contact with people who have colds, mumps, measles and chicken pox. People sure are funny.
We came into the house after eight o’clock. We had a snack and then Alex had a bath. Alex is still scared that he is going to hurt himself in the bathtub.
Alex played with his cars until ten thirty. I read him a couple of stories and he went to bed at 10:45 p.m.
I wrote in the journal off and on all night. I hadn’t written in it for a couple of days. I had a bit of catching up to do. I’ll go to bed soon , it’s 10:55 p.m.
No tests
Medicine
Bactrim 10:00 a.m. ----9:30 p.m.
Mercaptopurine ------ ----- 9:30 p.m.
Temperature 35.61C 9:35 p.m.
Tuesday, June 21, 2011
Diagnosis: Leukemia; June 21, 1987
I woke up at nine o’clock. Charlie had gone to sleep in Alex’s bed. Alex has started coming into our bed again.
Charlie was downstairs starting on the drywall. Alex woke up and took Charlie’s Father’s Day present to him. Alex said HAPPY FATHER’S DAY, Papa! It sure sounded cute.
I made waffles for breakfast and then we got ready to go out. We had a take out lunch from Burger King. Then we went to a number of stores about a microwave shelf. Most places seem quite expensive.
Then we went to Mom and Dad’s for dinner. We stayed until nine o’clock and we went home. I had given Alex his medicine before we left. He fell asleep on the way home.
I put Alex in his bed, I didn’t bother to change his clothes. He seemed quite cranky. He has been very cranky over the weekend. I don’t know what’s the matter with him. I don’t know if he’s frustrated by going to the hospital so much or if it’s medicine.
I went to bed at 10:30 p.m. I feel very tired.
No tests
Medicine
Bactrim 9:30 a.m. ----- 8:25 p.m.
Mercaptopurine ----- ------ 8:25 p.m.
Temperature 36.70C 11:00 a.m. 36.89C 8:25 p.m.
Charlie was downstairs starting on the drywall. Alex woke up and took Charlie’s Father’s Day present to him. Alex said HAPPY FATHER’S DAY, Papa! It sure sounded cute.
I made waffles for breakfast and then we got ready to go out. We had a take out lunch from Burger King. Then we went to a number of stores about a microwave shelf. Most places seem quite expensive.
Then we went to Mom and Dad’s for dinner. We stayed until nine o’clock and we went home. I had given Alex his medicine before we left. He fell asleep on the way home.
I put Alex in his bed, I didn’t bother to change his clothes. He seemed quite cranky. He has been very cranky over the weekend. I don’t know what’s the matter with him. I don’t know if he’s frustrated by going to the hospital so much or if it’s medicine.
I went to bed at 10:30 p.m. I feel very tired.
No tests
Medicine
Bactrim 9:30 a.m. ----- 8:25 p.m.
Mercaptopurine ----- ------ 8:25 p.m.
Temperature 36.70C 11:00 a.m. 36.89C 8:25 p.m.
Monday, June 20, 2011
Diagnosis: Leukemia; June 20, 1987
I woke up at nine o’clock, everyone else was asleep. I started making waffles for breakfast, it wasn’t long before everyone woke up.
Alex and I had breakfast, before we started the delivery truck came with the drywall. Charlie had to help carry in the drywall as there was only one guy. I thought it was pretty dumb since the drywall is pretty heavy. I don’t know how he would of done it if Charlie wasn’t home. I guess the guy thought Charlie would help him since they know each other.
I had a shower and got dressed. Charlie went to Lougheed mall. Alex and I played games while Charlie was gone.
I went out in the afternoon to look for a microwave shelf. I came back at four o’clock. Charlie had been working on the drywall and asked me to go buy a pizza. Before I left I helped Charlie lift up the drywall. I left around 4:30 p.m.
I came home at five o’clock and started to cook the pizza. We had dinner around 5:30 p.m. I rented a movie for Alex and after dinner he watched it. He fell asleep after six o’clock, I hadn’t given him his medicine yet so I’ll have to wake him up soon.
I woke Alex at 7:30 p.m., he sure was mad that I woke him up. I gave him his medicine and got him ready for bed. I put Alex in bed and he started to cry. He said but I haven’t helped Pa with the walls. I took Alex downstairs but he didn’t help Charlie he just watched.
Alex finally fell asleep at ten o’clock. I cleaned up the house and watched TV for awhile.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ -------- 7:30 p.m.
Temperature 36.70C 11:00 a.m. 36.89C 10:00 p.m.
Alex and I had breakfast, before we started the delivery truck came with the drywall. Charlie had to help carry in the drywall as there was only one guy. I thought it was pretty dumb since the drywall is pretty heavy. I don’t know how he would of done it if Charlie wasn’t home. I guess the guy thought Charlie would help him since they know each other.
I had a shower and got dressed. Charlie went to Lougheed mall. Alex and I played games while Charlie was gone.
I went out in the afternoon to look for a microwave shelf. I came back at four o’clock. Charlie had been working on the drywall and asked me to go buy a pizza. Before I left I helped Charlie lift up the drywall. I left around 4:30 p.m.
I came home at five o’clock and started to cook the pizza. We had dinner around 5:30 p.m. I rented a movie for Alex and after dinner he watched it. He fell asleep after six o’clock, I hadn’t given him his medicine yet so I’ll have to wake him up soon.
I woke Alex at 7:30 p.m., he sure was mad that I woke him up. I gave him his medicine and got him ready for bed. I put Alex in bed and he started to cry. He said but I haven’t helped Pa with the walls. I took Alex downstairs but he didn’t help Charlie he just watched.
Alex finally fell asleep at ten o’clock. I cleaned up the house and watched TV for awhile.
No tests
Medicine
Bactrim 10:00 a.m. ------ 7:30 p.m.
Mercaptopurine ------ -------- 7:30 p.m.
Temperature 36.70C 11:00 a.m. 36.89C 10:00 p.m.
Sunday, June 19, 2011
Disgnosis: Leukemia; June 19, 1987
I woke up before eight o’clock. Charlie was still asleep, so I couldn’t have a shower yet. Alex woke up once I got up. He wanted orange juice and he wanted to watch TV.
At eight thirty Alex had breakfast and Charlie woke up. Charlie had a shower then I had mine. I got Alex dressed and Charlie brushed Alex’s teeth. We left for the hospital at 9:30 a.m., we have to be there by ten o’clock. It was pretty busy today we had to wait about an hour for Alex to have his shot. They had to take blood so they did a small I.V. and then put the ARA-C medicine into the I.V. The nurse said how good Alex was he hardly cried at all, I guess some kids cry a lot.
We went to London Drugs and Shanghai Gardens and then we went home. We had lunch then Charlie went out. I gave Alex some more gravol at 1:15 pm.
Charlie came home, Alex and I played with his lite brite.
I took Kelly for a walk, Alex didn’t want to come. Charlie and Alex played with the lite brite while Kelly and I went for a walk.
I finished knitting the blanket for Paige.
Alex wanted to have a nap but if he does he’ll be up quite late tonight. We went outside, Charlie had gone to work. We played ball, Alex is still unable to ride his bike. I swept some of the garage. We went in at four o’clock, Alex wanted to have dinner. I heated up the soup and rice from lunch. I had a snack later on.
I cleaned up the house then Alex and I played some games.
Alex went to bed at nine o’clock. Shirley had phoned and said she would be over around 10:30 p.m. I did the dishes and tided up. At ten o’clock I wrote in the journal for 45 minutes.
I guess I’ll go to bed late, at least we don’t have to go to the hospital. I’m hoping to be able to sleep in tomorrow morning. Shirley hasn’t come yet it’s now 10:50 a.m. She phoned and said Aaron had just come back. She said she would be over soon. May said she was taking Christopher out for his birthday and wondered about Alex coming. As far as I know Alex will not be able to go. Dr R had said Alex couldn’t go to public places such as Restaurants and Malls. It maybe dumb of me but I thought she would of done things a little differently and had it at home. I found it a bit hurtful at how she went about it but maybe it’s wrong of me. It’s Brent’s party not Alex’s.
I’ll go to bed after Shirley goes home.
Tests
WBC 13
HGB 8.4
Platelets 289,000
ANC 935
Medicine
Bactrim 9:00 a.m. ------ 7:30 p.m.
Mercaptopurine ----- ----- 7:30 p.m.
Dimenhydrinate 9:00 a.m. 1:15 p.m. ------
Temperature 36.89C 9:05 a.m. 37.06C 7:30 p.m.
At eight thirty Alex had breakfast and Charlie woke up. Charlie had a shower then I had mine. I got Alex dressed and Charlie brushed Alex’s teeth. We left for the hospital at 9:30 a.m., we have to be there by ten o’clock. It was pretty busy today we had to wait about an hour for Alex to have his shot. They had to take blood so they did a small I.V. and then put the ARA-C medicine into the I.V. The nurse said how good Alex was he hardly cried at all, I guess some kids cry a lot.
We went to London Drugs and Shanghai Gardens and then we went home. We had lunch then Charlie went out. I gave Alex some more gravol at 1:15 pm.
Charlie came home, Alex and I played with his lite brite.
I took Kelly for a walk, Alex didn’t want to come. Charlie and Alex played with the lite brite while Kelly and I went for a walk.
I finished knitting the blanket for Paige.
Alex wanted to have a nap but if he does he’ll be up quite late tonight. We went outside, Charlie had gone to work. We played ball, Alex is still unable to ride his bike. I swept some of the garage. We went in at four o’clock, Alex wanted to have dinner. I heated up the soup and rice from lunch. I had a snack later on.
I cleaned up the house then Alex and I played some games.
Alex went to bed at nine o’clock. Shirley had phoned and said she would be over around 10:30 p.m. I did the dishes and tided up. At ten o’clock I wrote in the journal for 45 minutes.
I guess I’ll go to bed late, at least we don’t have to go to the hospital. I’m hoping to be able to sleep in tomorrow morning. Shirley hasn’t come yet it’s now 10:50 a.m. She phoned and said Aaron had just come back. She said she would be over soon. May said she was taking Christopher out for his birthday and wondered about Alex coming. As far as I know Alex will not be able to go. Dr R had said Alex couldn’t go to public places such as Restaurants and Malls. It maybe dumb of me but I thought she would of done things a little differently and had it at home. I found it a bit hurtful at how she went about it but maybe it’s wrong of me. It’s Brent’s party not Alex’s.
I’ll go to bed after Shirley goes home.
Tests
WBC 13
HGB 8.4
Platelets 289,000
ANC 935
Medicine
Bactrim 9:00 a.m. ------ 7:30 p.m.
Mercaptopurine ----- ----- 7:30 p.m.
Dimenhydrinate 9:00 a.m. 1:15 p.m. ------
Temperature 36.89C 9:05 a.m. 37.06C 7:30 p.m.
Saturday, June 18, 2011
Diagnosis: Leukemia; June 18, 1987
I woke up at eight o’clock. I got Alex dressed, Charlie got Alex his breakfast. We got ready to go to the hospital, we have to be there at ten o’clock. We left the house at 9:30 a.m.
We got to the hospital after ten o’clock. Child life was there and they were getting the kids to make Father’s Day cards. Alex and I made one together. Alex had his shot and we left.
We stopped at London Drugs on the way home. We got home at 11:45 a.m. I had lunch and gave Alex some more gravol. I went out shopping, I bought a present for Carrie.
I came home after two o’clock. Alex and I played downstairs for awhile. Alex watched TV at four o’clock, he started to fall asleep so I woke him up. I knew if he fell asleep he would be up all night.
We had dinner at five o’clock and then we went outside and did some gardening. We came in at 7:30 p.m. Alex had a snack and his medicine. Alex said he wanted to play on his bed before he went to sleep, but he wouldn’t put away his toys or his clothes. Usually he helps me put away his laundry, he puts away his underwear and his socks. I told him he had to help or he would go right to bed. He said NO and when I said fine you can go right to bed. He said I’m sorry, I’m sorry. I said I’m sorry but it’s too late, please get into bed. He cried but he was asleep in minutes.
I did some knitting for an hour and a half. I phoned Laura and told her Alex couldn’t come to Carrie’s party. Laura said Oh you talked to Jolene a couple of days ago? I said yes and she said I guess she told you that they split up. I said WHAT! Laura said Don’t tell her I told you.
It sure was a shock, you just don’t know what is in store for each of us. I felt really bad for them. They’ve been married a really long time. They both must be experiencing a lot of pain. I feel that the reason they haven’t told us is that we have gone through so much lately.
I wrote in the journal for about half an hour.
I’m going to bed, it’s 11:20 p.m.
No tests
Medicine
Bactrim 9:00 a.m. ----- 7:25 p.m.
Mercaptopurine ------- ------- 7:35 p.m.
Dimenhydrinate 9:00 a.m. 12:30 p.m. -----
Temperature 36.29C 9:15 a.m. 36.76C 12:30 p.m. 36.18 7:30 p.m.
We got to the hospital after ten o’clock. Child life was there and they were getting the kids to make Father’s Day cards. Alex and I made one together. Alex had his shot and we left.
We stopped at London Drugs on the way home. We got home at 11:45 a.m. I had lunch and gave Alex some more gravol. I went out shopping, I bought a present for Carrie.
I came home after two o’clock. Alex and I played downstairs for awhile. Alex watched TV at four o’clock, he started to fall asleep so I woke him up. I knew if he fell asleep he would be up all night.
We had dinner at five o’clock and then we went outside and did some gardening. We came in at 7:30 p.m. Alex had a snack and his medicine. Alex said he wanted to play on his bed before he went to sleep, but he wouldn’t put away his toys or his clothes. Usually he helps me put away his laundry, he puts away his underwear and his socks. I told him he had to help or he would go right to bed. He said NO and when I said fine you can go right to bed. He said I’m sorry, I’m sorry. I said I’m sorry but it’s too late, please get into bed. He cried but he was asleep in minutes.
I did some knitting for an hour and a half. I phoned Laura and told her Alex couldn’t come to Carrie’s party. Laura said Oh you talked to Jolene a couple of days ago? I said yes and she said I guess she told you that they split up. I said WHAT! Laura said Don’t tell her I told you.
It sure was a shock, you just don’t know what is in store for each of us. I felt really bad for them. They’ve been married a really long time. They both must be experiencing a lot of pain. I feel that the reason they haven’t told us is that we have gone through so much lately.
I wrote in the journal for about half an hour.
I’m going to bed, it’s 11:20 p.m.
No tests
Medicine
Bactrim 9:00 a.m. ----- 7:25 p.m.
Mercaptopurine ------- ------- 7:35 p.m.
Dimenhydrinate 9:00 a.m. 12:30 p.m. -----
Temperature 36.29C 9:15 a.m. 36.76C 12:30 p.m. 36.18 7:30 p.m.
Friday, June 17, 2011
Diagnosis: Leukemia; June 17, 1987
I woke up around eight o’clock. I had a shower and got dressed. We have to be at the hospital at ten o’clock. I gave Alex his medicine and he had cereal for breakfast. I got Alex dressed and brushed his teeth. We left the house at 9:30 a.m.
We arrived at the hospital at ten o’clock. It was really quiet which is unusual. Alex had his shot and I asked Dr S if Alex could go to Carrie’s party. The doctor said Alex shouldn’t go because if Alex was to get sick his treatment would have to stop for about three weeks.
We left the hospital at eleven o’clock and went to a Won Ton House for a take out. We came home and had lunch. After lunch I explained to Alex that Dr S didn’t want Alex to go because he might get sick. He said that it was okay.
Charlie went outside to cut the grass. Alex is playing with his cars and trucks.
Alex and I went for a walk with Kelly, surprisingly enough Alex wanted to walk.
I phoned Mom and she said she has a cold, I’ll have to ask Dr S if Alex can come in contact with her.
Charlie went to work around 2:45 p.m. I vacuumed the house then Alex and I played some games. Alex made up a new game today. He said to me, you haven’t had a poke for awhile so it’s time for your poke. We sat on the bed and Alex said this is a really big poke. He told me to start blowing bubbles and then he poked my hand. I made out that it really hurt and started blowing bubbles faster. He said it doesn’t hurt anymore, I’ve stopped poking you. You can stop blowing bubbles.
We had dinner at five o’clock and Alex ate most of his dinner. I bought chocolate syrup to put on ice cream, I thought it might help Alex eat ice cream. Ever since the nurse put medicine on his ice cream Alex won’t eat it. I gave Alex vanilla ice cream with the syrup but he wouldn’t eat it.
After dinner we went downstairs and cleaned the basement, then we went outside watered the bedding plants and played with the soccer ball. Alex and I threw it back and forth.
We came in the house at 7:30 p.m., made popcorn and watched TV. I got Alex ready for bed and Annie called. I finally got off the phone at 9:15 p.m. Alex told me to get off the phone, he wanted to go to sleep. I read Alex a story and he went to sleep after ten o’clock.
I had to give Alex colace as he hasn’t had a bowel movement since Saturday or Sunday. I gave him half the dose this time as he usually has diarrhea when he has it.
I wrote in the journal for half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Dimenhydrinate 9:00 a.m. 12:30 p.m. -------
Colace ------ ------- 8:00 p.m.
Temperature 36.79C 9:15 a.m. 36.77C 2:05 p.m. 35.64C 8:05 p.m.
We arrived at the hospital at ten o’clock. It was really quiet which is unusual. Alex had his shot and I asked Dr S if Alex could go to Carrie’s party. The doctor said Alex shouldn’t go because if Alex was to get sick his treatment would have to stop for about three weeks.
We left the hospital at eleven o’clock and went to a Won Ton House for a take out. We came home and had lunch. After lunch I explained to Alex that Dr S didn’t want Alex to go because he might get sick. He said that it was okay.
Charlie went outside to cut the grass. Alex is playing with his cars and trucks.
Alex and I went for a walk with Kelly, surprisingly enough Alex wanted to walk.
I phoned Mom and she said she has a cold, I’ll have to ask Dr S if Alex can come in contact with her.
Charlie went to work around 2:45 p.m. I vacuumed the house then Alex and I played some games. Alex made up a new game today. He said to me, you haven’t had a poke for awhile so it’s time for your poke. We sat on the bed and Alex said this is a really big poke. He told me to start blowing bubbles and then he poked my hand. I made out that it really hurt and started blowing bubbles faster. He said it doesn’t hurt anymore, I’ve stopped poking you. You can stop blowing bubbles.
We had dinner at five o’clock and Alex ate most of his dinner. I bought chocolate syrup to put on ice cream, I thought it might help Alex eat ice cream. Ever since the nurse put medicine on his ice cream Alex won’t eat it. I gave Alex vanilla ice cream with the syrup but he wouldn’t eat it.
After dinner we went downstairs and cleaned the basement, then we went outside watered the bedding plants and played with the soccer ball. Alex and I threw it back and forth.
We came in the house at 7:30 p.m., made popcorn and watched TV. I got Alex ready for bed and Annie called. I finally got off the phone at 9:15 p.m. Alex told me to get off the phone, he wanted to go to sleep. I read Alex a story and he went to sleep after ten o’clock.
I had to give Alex colace as he hasn’t had a bowel movement since Saturday or Sunday. I gave him half the dose this time as he usually has diarrhea when he has it.
I wrote in the journal for half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------- 8:00 p.m.
Dimenhydrinate 9:00 a.m. 12:30 p.m. -------
Colace ------ ------- 8:00 p.m.
Temperature 36.79C 9:15 a.m. 36.77C 2:05 p.m. 35.64C 8:05 p.m.
Thursday, June 16, 2011
Diagnosis: Leukemai; June 16, 1987
I woke up before eight o’clock. I didn’t sleep very well, I woke up at three o’clock and Alex had wet through to the sheets. I asked Amber to help me take off Alex’s t-shit as it was soaked. She changed the sheets as well.
I tossed and turned almost all night. Finally I fell asleep and then I felt someone hitting me. Alex was upset as the nurse was changing his diaper. They have to measure Alex’s urine. He has to void so much every so many hours.
Alex started throwing up just when breakfast came. He wasn’t actually throwing up it was more like he was spitting up. Around 8:30 a.m. the nurse brought Alex his Bactrim. About 5 minutes later he threw up the medicine.
We had to wait all morning for the doctor to do Alex’s spinal tap. Alex was really good through out it. We came back to the room and Alex fell asleep. Dr B said Alex could go home after lunch.
We left the hospital after 1:30 p.m., we had to go to the clinic to make an appointment for tomorrow. We got home around 2:30 p.m. and Alex had fallen asleep in the car, I put him to bed.
Alex slept until four o’clock, he said his stomach hurt so I gave him some gravol.
We had dinner at five o’clock, Alex ate about half of his dinner. Alex played with his new toys and watched TV.
Jolene phoned and invited us to Carrie’s birthday party. We’ll have to ask the doctor if it is all right. Jolene said she has chronic Bronchitis and that she has been on a new medication since last week. She said by Saturday she’ll have been on it for seven days which is what the doctor told her to do. So she’ll stop taking the medication on the weekend.
Alex and I had a race to see who could finish the puzzle first. Alex beat me, he thought that was great. He can do the big puzzles by himself but he always asks for help.
We played three card games and then Alex went to his room to play. He’s not tired, I guess he’ll go to sleep quite late.
I wrote in the journal for about an hour. I’ll go to bed soon, once Alex is asleep!
No tests
Medicine
Bactrim ----- ----- 9:00 a.m.
Mercaptopurine ----- ----- 9:00 a.m.
Dimenhydrinate ------ 4:30 p.m. ------
Temperature 36.62C 9:00 a.m.
* the nurse gave Alex his medicine in the morning
I tossed and turned almost all night. Finally I fell asleep and then I felt someone hitting me. Alex was upset as the nurse was changing his diaper. They have to measure Alex’s urine. He has to void so much every so many hours.
Alex started throwing up just when breakfast came. He wasn’t actually throwing up it was more like he was spitting up. Around 8:30 a.m. the nurse brought Alex his Bactrim. About 5 minutes later he threw up the medicine.
We had to wait all morning for the doctor to do Alex’s spinal tap. Alex was really good through out it. We came back to the room and Alex fell asleep. Dr B said Alex could go home after lunch.
We left the hospital after 1:30 p.m., we had to go to the clinic to make an appointment for tomorrow. We got home around 2:30 p.m. and Alex had fallen asleep in the car, I put him to bed.
Alex slept until four o’clock, he said his stomach hurt so I gave him some gravol.
We had dinner at five o’clock, Alex ate about half of his dinner. Alex played with his new toys and watched TV.
Jolene phoned and invited us to Carrie’s birthday party. We’ll have to ask the doctor if it is all right. Jolene said she has chronic Bronchitis and that she has been on a new medication since last week. She said by Saturday she’ll have been on it for seven days which is what the doctor told her to do. So she’ll stop taking the medication on the weekend.
Alex and I had a race to see who could finish the puzzle first. Alex beat me, he thought that was great. He can do the big puzzles by himself but he always asks for help.
We played three card games and then Alex went to his room to play. He’s not tired, I guess he’ll go to sleep quite late.
I wrote in the journal for about an hour. I’ll go to bed soon, once Alex is asleep!
No tests
Medicine
Bactrim ----- ----- 9:00 a.m.
Mercaptopurine ----- ----- 9:00 a.m.
Dimenhydrinate ------ 4:30 p.m. ------
Temperature 36.62C 9:00 a.m.
* the nurse gave Alex his medicine in the morning
Wednesday, June 15, 2011
Diagnosis: Leukemia; June 15, 1987
The alarm went off around 7:30 a.m., I got up and had a shower. I felt tired, I find it really difficult getting up so early. I got dressed, had breakfast and got an overnight bag ready for the hospital. I don’t think Alex’s blood count will be up but we have to be prepared. We left the house after 8:30 a.m. we have to be at the hospital at nine o’clock.
We got to the hospital after nine o’clock. It sure was busy in the clinic. At ten o’clock Alex had an I.V. started, the nurse said Alex’s blood count was up. The just have to wait for the platelet count. We had to keep asking the nurses what was happening. I asked Lorraine, she’s a new nurse if Alex would be getting chemotherapy today and would we be seeing the doctor. She said I would expect so. Finally around noon I asked Krisann and she said Alex’s platelet count was up and he would be getting chemotherapy. They sure don’t tell us much at the clinic. After one o’clock I asked Krisann how long it would be for the chemotherapy to come. She said it should be in soon.
Charlie left at 1:30 p.m., he had to go home and get ready to go to work.
Chemotherapy finally started at two o’clock. Alex fell asleep. Krisann asked me what time we had left when Alex had Cyclophosphamide the last time. I had told Lorraine that I thought Alex should be admitted as he wasn’t drinking very much. I told Krisann this but she didn’t seem to know anything about it. Later she told me she had told Evelyn the receptionist to phone admitting. Krisann said I should go to admitting to sign the papers since Alex was asleep.
When I came back from admitting, Krisann said in about ten minutes she would take us upstairs. Dr S came and said Alex’s platelet count was 101,000.
We went upstairs after three o’clock, most of the rooms were occupied. We went into the baby room, room #5. Alex wanted to go to the playroom right away. We went there and then he had a nap. Alex didn’t get his dinner tray until 5:45 p.m. He ate about half of his dinner. Mom and Dad came up, they brought me dinner. They left around eight o’clock.
Alex was wide awake, I had bought him a puzzle since I didn’t bring him any toys. Mom and Dad brought a parcel that a friend of theirs in the states sent Alex. He got magnetic blocks and a 3 way tumble set. Alex wanted to play with his new toys.
We finally got to sleep around ten o’clock. I was really tired and Alex was talking a lot.
Tests
WBC 1.3
HGB 9.9
Platelets 197,000
ANC 488
Medicine
Bactrim 8:23 a.m.
*the nurse gave Alex his medicine in the evening
We got to the hospital after nine o’clock. It sure was busy in the clinic. At ten o’clock Alex had an I.V. started, the nurse said Alex’s blood count was up. The just have to wait for the platelet count. We had to keep asking the nurses what was happening. I asked Lorraine, she’s a new nurse if Alex would be getting chemotherapy today and would we be seeing the doctor. She said I would expect so. Finally around noon I asked Krisann and she said Alex’s platelet count was up and he would be getting chemotherapy. They sure don’t tell us much at the clinic. After one o’clock I asked Krisann how long it would be for the chemotherapy to come. She said it should be in soon.
Charlie left at 1:30 p.m., he had to go home and get ready to go to work.
Chemotherapy finally started at two o’clock. Alex fell asleep. Krisann asked me what time we had left when Alex had Cyclophosphamide the last time. I had told Lorraine that I thought Alex should be admitted as he wasn’t drinking very much. I told Krisann this but she didn’t seem to know anything about it. Later she told me she had told Evelyn the receptionist to phone admitting. Krisann said I should go to admitting to sign the papers since Alex was asleep.
When I came back from admitting, Krisann said in about ten minutes she would take us upstairs. Dr S came and said Alex’s platelet count was 101,000.
We went upstairs after three o’clock, most of the rooms were occupied. We went into the baby room, room #5. Alex wanted to go to the playroom right away. We went there and then he had a nap. Alex didn’t get his dinner tray until 5:45 p.m. He ate about half of his dinner. Mom and Dad came up, they brought me dinner. They left around eight o’clock.
Alex was wide awake, I had bought him a puzzle since I didn’t bring him any toys. Mom and Dad brought a parcel that a friend of theirs in the states sent Alex. He got magnetic blocks and a 3 way tumble set. Alex wanted to play with his new toys.
We finally got to sleep around ten o’clock. I was really tired and Alex was talking a lot.
Tests
WBC 1.3
HGB 9.9
Platelets 197,000
ANC 488
Medicine
Bactrim 8:23 a.m.
*the nurse gave Alex his medicine in the evening
Tuesday, June 14, 2011
Diagnosis: Leukemia; June 14, 1987
I woke up around ten o’clock, Kelly was barking. I had breakfast and made Alex hot chocolate. He couldn’t make up his mind what he wanted for breakfast.
Charlie went outside to wash his car. Alex played with his cars. I wrote in the journal from 10:30 a.m. to 11:30 a.m.
Alex wanted ravioli for breakfast, he said he didn’t want cereal, toast or eggs. Alex only ate a little bit and then he said he didn’t like it. Charlie ate the ravioli, he heated it up in the microwave. I had a shower and got dressed. After lunch I went to the mall.
I bought Charlie and Dad their Father’s Day present and Charlie’s birthday present. Then I went to Art Knapp’s and bought some bedding plants. I got home around 3:30 p.m. We had dinner at 5:30 p.m., after dinner we all went outside. I planted the bedding plants. Alex and Kelly played together, Charlie watched them.
We came in at 7:30 p.m., Charlie went to Save-on-Foods for groceries. I got Alex ready for bed. When Charlie came home Alex wanted to help with the groceries. Charlie put Alex to bed and read him a story.
I did some knitting for about half an hour then I picked up Alex’s toys. I wrote in the journal for about half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 11:20 a.m. ----- 7:40 p.m.
Temperature 36.30C 7:30 p.m.
Charlie went outside to wash his car. Alex played with his cars. I wrote in the journal from 10:30 a.m. to 11:30 a.m.
Alex wanted ravioli for breakfast, he said he didn’t want cereal, toast or eggs. Alex only ate a little bit and then he said he didn’t like it. Charlie ate the ravioli, he heated it up in the microwave. I had a shower and got dressed. After lunch I went to the mall.
I bought Charlie and Dad their Father’s Day present and Charlie’s birthday present. Then I went to Art Knapp’s and bought some bedding plants. I got home around 3:30 p.m. We had dinner at 5:30 p.m., after dinner we all went outside. I planted the bedding plants. Alex and Kelly played together, Charlie watched them.
We came in at 7:30 p.m., Charlie went to Save-on-Foods for groceries. I got Alex ready for bed. When Charlie came home Alex wanted to help with the groceries. Charlie put Alex to bed and read him a story.
I did some knitting for about half an hour then I picked up Alex’s toys. I wrote in the journal for about half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 11:20 a.m. ----- 7:40 p.m.
Temperature 36.30C 7:30 p.m.
Monday, June 13, 2011
Diagnosis: Leukemia; June 13, 1987
I woke up around nine o’clock. I had breakfast then I asked Alex what he wanted for breakfast. He said that he wanted hot cereal. I made him the cereal and then he said he didn’t want it. He said that he wanted soup. I told him he couldn’t have anything else until he ate the cereal. He asked me to feed him. I fed him a few times and he said he didn’t want any more. Charlie fed him the rest, he made a game out of it and Alex was quite happy to finish it. After the cereal he wanted a sandwich, I didn’t think he would finish it but he did. This is the first time in awhile he has eaten so much.
I had a shower and got dressed then I went to the bank and the mall. After the bank I stopped at London Drugs. I met Marla there she was with Lanie, we talked outside of London Drugs for about half an hour. Marla invited Alex and I over next week, she said maybe we could go to White Pine Beach for a picnic.
Then I went to the mall, I phoned Charlie before I started shopping. He said someone had bought us a microwave. I said what did they do that for? Charlie said they’re coming over, well they said see you later. I said you mean Jolene? He said no Mom and Dad. I said what did they do that for? I never expected them to buy us a microwave. Bart had wanted to buy us one as he had sold our old house. He wanted to buy us something as a house warming gift. We had told him no as we didn’t have the room for it. It sure was nice of Mom and Dad to buy it for us.
I bought some groceries as I thought they were bring it over, then I went home. Charlie said he was really surprised they would buy it for us. I had lunch and I also made Alex lunch. Alex didn’t eat much.
The electrician came to do the wiring of the basement.
Alex and I did the press-out book.
The electrician finished around three o’clock.
Alex and I made brownies to take to Mom and Dad.
We left around five o’clock, we went to Arby’s for dinner. We got to Mom and Dad’s around seven o’clock. The microwave is really nice, they bought one for themselves as well.
We came home around ten o’clock. Alex had fallen asleep in the car. I gave him his medicine before we left. I put Alex in his bed when we got home.
Charlie put the microwave on the counter. We will have to buy a stand for it as it takes up too much space.
I went to bed around 11:30 p.m.
No tests
Medicine
Bactrim 9:30 a.m. ----- 9:50 p.m.
Temperature 36.37C 12:45 p.m.
I had a shower and got dressed then I went to the bank and the mall. After the bank I stopped at London Drugs. I met Marla there she was with Lanie, we talked outside of London Drugs for about half an hour. Marla invited Alex and I over next week, she said maybe we could go to White Pine Beach for a picnic.
Then I went to the mall, I phoned Charlie before I started shopping. He said someone had bought us a microwave. I said what did they do that for? Charlie said they’re coming over, well they said see you later. I said you mean Jolene? He said no Mom and Dad. I said what did they do that for? I never expected them to buy us a microwave. Bart had wanted to buy us one as he had sold our old house. He wanted to buy us something as a house warming gift. We had told him no as we didn’t have the room for it. It sure was nice of Mom and Dad to buy it for us.
I bought some groceries as I thought they were bring it over, then I went home. Charlie said he was really surprised they would buy it for us. I had lunch and I also made Alex lunch. Alex didn’t eat much.
The electrician came to do the wiring of the basement.
Alex and I did the press-out book.
The electrician finished around three o’clock.
Alex and I made brownies to take to Mom and Dad.
We left around five o’clock, we went to Arby’s for dinner. We got to Mom and Dad’s around seven o’clock. The microwave is really nice, they bought one for themselves as well.
We came home around ten o’clock. Alex had fallen asleep in the car. I gave him his medicine before we left. I put Alex in his bed when we got home.
Charlie put the microwave on the counter. We will have to buy a stand for it as it takes up too much space.
I went to bed around 11:30 p.m.
No tests
Medicine
Bactrim 9:30 a.m. ----- 9:50 p.m.
Temperature 36.37C 12:45 p.m.
Sunday, June 12, 2011
Diagnosis: Leukemia; June 12,1987
Kelly woke me up at eight o’clock. He was barking at a guy that came to finish the basement. Alex woke up as well.
Alex wanted hot chocolate and I had my breakfast. I had a shower then got dressed.
Alex had gotten some money from his Grandparents in Brunei a couple of years ago, it was in Singapore money. We went to the Royal Bank downtown to change it into Canadian dollars. We stopped at a Won Ton House and McDonalds and brought lunch home.
After lunch Charlie went to the bank. Alex and I looked through the Consumers’ Distributing catalogue. Alex said he wanted a digger truck.
Around 1:30 p.m. I went out. I went to Toy City and the mall, to first check the price on the truck. Consumers was the cheapest, I bought it and went home. I got home at four o’clock, and I started dinner. We had dinner after five o’clock.
Alex played with his new truck most of the night. After dinner we went for a walk. Alex went to bed around 9:30 p.m. I wrote in the journal from 8:30 p.m. to 10:00 p.m. I’ll probably go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:15 a.m. ---- 7:50 p.m.
Alex wanted hot chocolate and I had my breakfast. I had a shower then got dressed.
Alex had gotten some money from his Grandparents in Brunei a couple of years ago, it was in Singapore money. We went to the Royal Bank downtown to change it into Canadian dollars. We stopped at a Won Ton House and McDonalds and brought lunch home.
After lunch Charlie went to the bank. Alex and I looked through the Consumers’ Distributing catalogue. Alex said he wanted a digger truck.
Around 1:30 p.m. I went out. I went to Toy City and the mall, to first check the price on the truck. Consumers was the cheapest, I bought it and went home. I got home at four o’clock, and I started dinner. We had dinner after five o’clock.
Alex played with his new truck most of the night. After dinner we went for a walk. Alex went to bed around 9:30 p.m. I wrote in the journal from 8:30 p.m. to 10:00 p.m. I’ll probably go to bed around eleven o’clock.
No tests
Medicine
Bactrim 9:15 a.m. ---- 7:50 p.m.
Saturday, June 11, 2011
Diagnosis; Leukemia; June 11, 1987
I woke up around seven o’clock. I had a shower and got dressed then I had breakfast. I got an overnight bag ready, I packed Alex’s medicine, toothbrush and tooth paste and some snacks as well. We left around nine o’clock, we had to be at the hospital by 9:30 a.m.
Charlie stayed home as the builder was coming to fix the cement in the basement.
We got to the hospital after 9:30 a.m. Just after we got there Lenore tried to start an I.V. for Alex but his veins won’t come up. She put hot towels on Alex’s hands and then wrapped them with a diaper.
We waited about 15 minutes and then Lenore tried again. Alex started to cry but Lenore asked Corina to hold Alex’s arm. Lenore gave Alex his ARA-C and took some blood as well. They had to wait to find out the blood count before they could start the I.V. Alex was scheduled to have aldophosphamide but his blood count had to be over 100,000 for platelets and over 1,000 for the ANC. We waited for about an hour and then Dr S took us to a room to check Alex. Dr R asked her to look after Alex now. Dr R told us whenever he was busy she would look after Alex.
Dr S does all the bone marrow and spinal taps. She said that Alex’s platelet count was low and that they would postpone the I.V. until Alex’s blood count was back up again. Dr S said Alex would have to have blood today as his HGB was 5.4.
We had to wait for them to match and clean the blood. They started the blood I.V. at 12:15 p.m.. Krisann said it takes about three or four hours for it to go through.
Alex wouldn’t lie down, he said he wasn’t tired. Every time I talked to anyone he kept interrupting me, he seems to need my attention all the time. I found him very cranky, anytime I touched one of the toys he wanted it.
We left the hospital around four o’clock just before we left Alex had diarrhea. Mom asked us for dinner so we went there after the hospital. We stayed until after seven o’clock, I gave Alex his medicine before we left. Dr S said to stop the Mercaptopurine and to continue giving Alex the Bactrim as it is for infection.
Alex fell asleep on the way home, I put him into his bed when we got home. I watched TV, I felt totally exhausted from all the events of the day. I find going to the hospital takes everything out of me. I went to bed after ten o’clock.
Tests
WBC 1.6
HGB 5.7
Platelets 53,000
ANC 1392
Medicine
Bactrim 8:30 p.m. ----- 7:15 p.m.
Temperature 36.79C 8:30 p.m. 36.98C 7:15 p.m.
Charlie stayed home as the builder was coming to fix the cement in the basement.
We got to the hospital after 9:30 a.m. Just after we got there Lenore tried to start an I.V. for Alex but his veins won’t come up. She put hot towels on Alex’s hands and then wrapped them with a diaper.
We waited about 15 minutes and then Lenore tried again. Alex started to cry but Lenore asked Corina to hold Alex’s arm. Lenore gave Alex his ARA-C and took some blood as well. They had to wait to find out the blood count before they could start the I.V. Alex was scheduled to have aldophosphamide but his blood count had to be over 100,000 for platelets and over 1,000 for the ANC. We waited for about an hour and then Dr S took us to a room to check Alex. Dr R asked her to look after Alex now. Dr R told us whenever he was busy she would look after Alex.
Dr S does all the bone marrow and spinal taps. She said that Alex’s platelet count was low and that they would postpone the I.V. until Alex’s blood count was back up again. Dr S said Alex would have to have blood today as his HGB was 5.4.
We had to wait for them to match and clean the blood. They started the blood I.V. at 12:15 p.m.. Krisann said it takes about three or four hours for it to go through.
Alex wouldn’t lie down, he said he wasn’t tired. Every time I talked to anyone he kept interrupting me, he seems to need my attention all the time. I found him very cranky, anytime I touched one of the toys he wanted it.
We left the hospital around four o’clock just before we left Alex had diarrhea. Mom asked us for dinner so we went there after the hospital. We stayed until after seven o’clock, I gave Alex his medicine before we left. Dr S said to stop the Mercaptopurine and to continue giving Alex the Bactrim as it is for infection.
Alex fell asleep on the way home, I put him into his bed when we got home. I watched TV, I felt totally exhausted from all the events of the day. I find going to the hospital takes everything out of me. I went to bed after ten o’clock.
Tests
WBC 1.6
HGB 5.7
Platelets 53,000
ANC 1392
Medicine
Bactrim 8:30 p.m. ----- 7:15 p.m.
Temperature 36.79C 8:30 p.m. 36.98C 7:15 p.m.
Diagnosis: Leukemia; June 10, 1987
I woke up around nine o’clock. Alex was still asleep, he had come into our bed in the night. I had breakfast and then Alex woke up around ten o’clock. He said he was tired and wanted to stay in bed. Alex asked me to make him some cereal. I brought him cereal and juice and I fed him in bed.
When I went to give him his medicine he fought and I had to get Charlie to hold him. Just recently Alex has been fighting taking his medicine, I think he’s just tired of taking so much medicine.
Alex and I sat and watched TV. I did some knitting. Alex wanted fruit cup for lunch. I fed him and he only ate about half and he drank all the juice. He said he didn’t want anymore.
We went back and sat and watched TV. Alex fell asleep around three o’clock. I phoned the hospital to check his blood count. The first time Krisann said it wasn’t written in his cart yet and she said she would check it on the computer. When she came back on the phone she said she would have to call me back in ten minutes as someone was using the computer.
At 3:45 p.m. Krisann hadn’t phoned back so I called. Krisann wasn’t there so I talked to another nurse. She gave me the blood count and I told her Alex was tired and I wondered if his HBG was down. I thought he would need blood. I don’t know why she got this idea but she said just because his HBG is down doesn’t mean we have to stop chemotherapy. I never even mentioned chemotherapy being stopped. I just wanted them to know that Alex might need blood. I then told her Alex hadn’t had a bowel movement since Sunday and I wondered if he should take Colace or if it was okay. The nurse said well I better get Krisann to phone you as I don’t know anything about that.
Alex had fallen asleep on the couch and I went to move him to his bed but he woke up.
About ten minutes later Krisann phoned back, she apologized that she didn’t phone earlier but she got held up by a doctor. She said doctors sure can carry on.
I told her about Alex being unable have a bowel movement and was it normal. Krisann said Alex should have a bowel movement every three days. She then said to give Alex the Colace now and then tomorrow morning.
After I got off the phone I told Alex he would have to have the Colace as he hadn’t had a bowel movement. Alex then ran to the bathroom and tried to go. He cried and screamed that he didn’t want to take the medicine that it would be sour. I finally had to take him out of the bathroom and into the kitchen and sit him down. He said he wanted a drink of ginger ale and a muffin. I gave him the Colace and he seemed to be surprised about the taste. He said Mama it taste like mint.
We played a game until five o’clock and then I went and got dinner ready. Alex ate quite a bit of dinner and then he asked me to play with his big cars with him.
At 6:30 p.m. I gave Alex a bath and as usual he screamed and yelled, that he couldn’t have a bath. He said it would hurt his eyes and that the shampoo would go into his eyes and ears. I just went ahead and started the bath water . The best thing is to ignore his complaints.
I find it really tiring when Alex starts fighting with us over everything. Even eating he has something to say about it. He says such silly things. He’ll say “I’m going to knock you down” or I’ll keep slamming my door” or “I’ll spit my medicine out” or “I’ll throw up”.
In the morning I feel like I haven’t slept long. I feel tired most of the day it’s not until evening that I get a little more energetic but I find by ten o’clock I’m staring to feel tired again.
I read Alex three books and then he said he wanted pea soup. By eight o’clock Alex was in bed and he fell asleep not long after.
I watched TV for awhile then I took the garbage downstairs and did the dishes. Around nine o’clock I watched TV and did some more knitting. At ten o’clock I started writing in the journal. It’s now eleven o’clock, I’ll go and get ready for bed.
No tests
Medicine
Bactrim 10 :00 p.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 8:00 p.m.
Colace ----- ----- 4:00 p.m.
Temperature 37.06C 10:00 a.m. 36.99C 12:10 p.m.
When I went to give him his medicine he fought and I had to get Charlie to hold him. Just recently Alex has been fighting taking his medicine, I think he’s just tired of taking so much medicine.
Alex and I sat and watched TV. I did some knitting. Alex wanted fruit cup for lunch. I fed him and he only ate about half and he drank all the juice. He said he didn’t want anymore.
We went back and sat and watched TV. Alex fell asleep around three o’clock. I phoned the hospital to check his blood count. The first time Krisann said it wasn’t written in his cart yet and she said she would check it on the computer. When she came back on the phone she said she would have to call me back in ten minutes as someone was using the computer.
At 3:45 p.m. Krisann hadn’t phoned back so I called. Krisann wasn’t there so I talked to another nurse. She gave me the blood count and I told her Alex was tired and I wondered if his HBG was down. I thought he would need blood. I don’t know why she got this idea but she said just because his HBG is down doesn’t mean we have to stop chemotherapy. I never even mentioned chemotherapy being stopped. I just wanted them to know that Alex might need blood. I then told her Alex hadn’t had a bowel movement since Sunday and I wondered if he should take Colace or if it was okay. The nurse said well I better get Krisann to phone you as I don’t know anything about that.
Alex had fallen asleep on the couch and I went to move him to his bed but he woke up.
About ten minutes later Krisann phoned back, she apologized that she didn’t phone earlier but she got held up by a doctor. She said doctors sure can carry on.
I told her about Alex being unable have a bowel movement and was it normal. Krisann said Alex should have a bowel movement every three days. She then said to give Alex the Colace now and then tomorrow morning.
After I got off the phone I told Alex he would have to have the Colace as he hadn’t had a bowel movement. Alex then ran to the bathroom and tried to go. He cried and screamed that he didn’t want to take the medicine that it would be sour. I finally had to take him out of the bathroom and into the kitchen and sit him down. He said he wanted a drink of ginger ale and a muffin. I gave him the Colace and he seemed to be surprised about the taste. He said Mama it taste like mint.
We played a game until five o’clock and then I went and got dinner ready. Alex ate quite a bit of dinner and then he asked me to play with his big cars with him.
At 6:30 p.m. I gave Alex a bath and as usual he screamed and yelled, that he couldn’t have a bath. He said it would hurt his eyes and that the shampoo would go into his eyes and ears. I just went ahead and started the bath water . The best thing is to ignore his complaints.
I find it really tiring when Alex starts fighting with us over everything. Even eating he has something to say about it. He says such silly things. He’ll say “I’m going to knock you down” or I’ll keep slamming my door” or “I’ll spit my medicine out” or “I’ll throw up”.
In the morning I feel like I haven’t slept long. I feel tired most of the day it’s not until evening that I get a little more energetic but I find by ten o’clock I’m staring to feel tired again.
I read Alex three books and then he said he wanted pea soup. By eight o’clock Alex was in bed and he fell asleep not long after.
I watched TV for awhile then I took the garbage downstairs and did the dishes. Around nine o’clock I watched TV and did some more knitting. At ten o’clock I started writing in the journal. It’s now eleven o’clock, I’ll go and get ready for bed.
No tests
Medicine
Bactrim 10 :00 p.m. ------ 8:00 p.m.
Mercaptopurine ----- ------ 8:00 p.m.
Colace ----- ----- 4:00 p.m.
Temperature 37.06C 10:00 a.m. 36.99C 12:10 p.m.
Thursday, June 9, 2011
Diagnosis: Leukemia; June 9, 1987
Alex woke me up before eight o’clock, he wanted to get dressed. I had breakfast and Alex said he wanted hot cereal. I gave him his cereal and he said he didn’t like it, he said he wanted a muffin.
He did a lot of complaining. I find that after he has had four shots for four days, on the fifth day he’s really cranky and he usually has a bit of a temperature.
I vacuumed the house, cleaned the bathrooms and washed all the floors. Then I had a shower, by that time it was almost one o’clock. I had lunch, Alex had lunch already with Charlie. As usual he didn’t eat much.
Charlie went to the bank, Alex and I went outside. We blew some bubbles and then Alex rode his bike. Charlie bought some donuts, so we all went inside and had some.
Around three o’clock we went for a drive, Alex said he wanted to go to a park. Halfway there he fell asleep, we went to the video store and rented a couple of movies. We went to Lions Park, Alex didn’t go on much. He said he would fall down and hurt himself. He went on the merry-go-round and the tires.
We went home and had dinner. Alex had about three bites of his corn on the cob, one piece of meat and a couple of French fries. After dinner Alex played with his cars.
A electrician came over for an estimate for the wiring in the basement.
I gave Alex his medicine around eight o’clock. He fought the whole time, Charlie had to hold him while I gave him the medicine.
I put Alex to bed around 8:30 p.m., he told me he was sorry and would I read him a story. I read him a story and he went to sleep.
I wrote in the journal for about half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ---- 8:10 p.m.
Mercaptopurine ------ ------ 8:10 p.m.
Dimenhydrinate ------ ----- ------
Temperature 37.08C 3:30 p.m. 37.81C 8:15 p.m.
He did a lot of complaining. I find that after he has had four shots for four days, on the fifth day he’s really cranky and he usually has a bit of a temperature.
I vacuumed the house, cleaned the bathrooms and washed all the floors. Then I had a shower, by that time it was almost one o’clock. I had lunch, Alex had lunch already with Charlie. As usual he didn’t eat much.
Charlie went to the bank, Alex and I went outside. We blew some bubbles and then Alex rode his bike. Charlie bought some donuts, so we all went inside and had some.
Around three o’clock we went for a drive, Alex said he wanted to go to a park. Halfway there he fell asleep, we went to the video store and rented a couple of movies. We went to Lions Park, Alex didn’t go on much. He said he would fall down and hurt himself. He went on the merry-go-round and the tires.
We went home and had dinner. Alex had about three bites of his corn on the cob, one piece of meat and a couple of French fries. After dinner Alex played with his cars.
A electrician came over for an estimate for the wiring in the basement.
I gave Alex his medicine around eight o’clock. He fought the whole time, Charlie had to hold him while I gave him the medicine.
I put Alex to bed around 8:30 p.m., he told me he was sorry and would I read him a story. I read him a story and he went to sleep.
I wrote in the journal for about half an hour. I’ll go to bed soon.
No tests
Medicine
Bactrim 9:00 a.m. ---- 8:10 p.m.
Mercaptopurine ------ ------ 8:10 p.m.
Dimenhydrinate ------ ----- ------
Temperature 37.08C 3:30 p.m. 37.81C 8:15 p.m.
Diagnosis: Leukemia; June 8, 1987
I woke up before eight o’clock, I had breakfast, had a shower then I got dressed. Charlie had gotten Alex breakfast but he didn’t eat much. We left around nine o’clock, we had to be at the hospital at 9:30 a.m.
We got to the hospital at 9:40 a.m. and we didn’t have to wait long. Lenore did a small I.V. so she could take blood and give Alex his ARA-C shot as well. Alex fought the whole time Lenore was trying to give Alex the I.V. I think he was just mad that he was having it.
We got home at eleven o’clock and I went grocery shopping, I came home at noon. Charlie and Alex were outside, Charlie was cutting the grass.
Alex came inside to have lunch, I gave him some more gravol. He ate about half of the rice. He played with his toys after lunch.
Mom phoned and said a friend of hers from the states is sending Alex a present. It sure was nice of her. She apparently phoned her son in law who Mom guesses is a doctor to talk about Alex’s illness and he told her that his chances were very high. He said it usually hits adults a lot harder. Her told her that Canadian hospitals are good and that Alex was in good care.
I had lunch then Alex wanted me to play airport with him. Alex had a nap from three o’clock to five o’clock. I woke him up for dinner. He was really cranky, he didn’t eat much.
During the time he was asleep I did some work at my desk and wrote three letters.
Alex played with his cars while I did some more knitting. Alex wanted his big trucks, they had dirt on them so I washed them and brought them upstairs. Alex played with his trucks in his room while I did my knitting.
I gave Alex his medicine at nine o’clock and just as I was giving him the liquid medicine he moved and it went all over his clothes and the floor. I got Alex changed and ready for bed. I put him to bed, he screamed and yelled. Alex was asleep after ten o’clock.
I wrote in the journal for about half an hour. I’ll go to bed around eleven o’clock.
Tests
WBC 5.5
HGB 7.4
Platelets 111,000
ANC 5,005
Medicine
Bactrim 8:30 a.m. ------ 9:00 p.m.
Mercaptopurine ----- ------ 9:00 p.m.
Dimenhydrinate 8:30 a.m. 12:30 p.m. ------
Temperature 36.08C 10:00 a.m. 37.17C 9:30 p.m.
We got to the hospital at 9:40 a.m. and we didn’t have to wait long. Lenore did a small I.V. so she could take blood and give Alex his ARA-C shot as well. Alex fought the whole time Lenore was trying to give Alex the I.V. I think he was just mad that he was having it.
We got home at eleven o’clock and I went grocery shopping, I came home at noon. Charlie and Alex were outside, Charlie was cutting the grass.
Alex came inside to have lunch, I gave him some more gravol. He ate about half of the rice. He played with his toys after lunch.
Mom phoned and said a friend of hers from the states is sending Alex a present. It sure was nice of her. She apparently phoned her son in law who Mom guesses is a doctor to talk about Alex’s illness and he told her that his chances were very high. He said it usually hits adults a lot harder. Her told her that Canadian hospitals are good and that Alex was in good care.
I had lunch then Alex wanted me to play airport with him. Alex had a nap from three o’clock to five o’clock. I woke him up for dinner. He was really cranky, he didn’t eat much.
During the time he was asleep I did some work at my desk and wrote three letters.
Alex played with his cars while I did some more knitting. Alex wanted his big trucks, they had dirt on them so I washed them and brought them upstairs. Alex played with his trucks in his room while I did my knitting.
I gave Alex his medicine at nine o’clock and just as I was giving him the liquid medicine he moved and it went all over his clothes and the floor. I got Alex changed and ready for bed. I put him to bed, he screamed and yelled. Alex was asleep after ten o’clock.
I wrote in the journal for about half an hour. I’ll go to bed around eleven o’clock.
Tests
WBC 5.5
HGB 7.4
Platelets 111,000
ANC 5,005
Medicine
Bactrim 8:30 a.m. ------ 9:00 p.m.
Mercaptopurine ----- ------ 9:00 p.m.
Dimenhydrinate 8:30 a.m. 12:30 p.m. ------
Temperature 36.08C 10:00 a.m. 37.17C 9:30 p.m.
Tuesday, June 7, 2011
Diagnosis: Leukemia; June 7, 1987
I woke up before eight o’clock. Alex and I had waffles for breakfast. I think he might have had two small squares. I gave him a ¼ of a gravol pill. It seems to really help him if he has one before he has his ARA-C shot.
I did the dishes and got Alex dressed. Then I had a shower and got dressed. We left the house after nine thirty. We had to wait about ten minutes after we got to the hospital for the medicine. The medicine has to come from the pharmacy.
We went to Kentucky Fried Chicken for a take out and then went to English Bay and ate lunch on the grass. After lunch we went to Mom and Dad’s. We brought Alex’s bike and Dad attached an umbrella to Alex’s bike, he sure looked cute!
We left at eight o’clock. I gave Alex his medicine before we left, as last week he feel asleep on the way home and I had to wake him up. He was just furious when I did wake him up and I had a heck of a time getting him to take his medicine.
Alex feel asleep on the way home and when we got home I put him to bed.
George, Lorna, George’s sister and brother-in-law came over around nine thirty. They brought Alex a box of cookies. Charlie wanted George to look at the basement and give him an idea as to how to finish the basement.
Lorna asked about Alex, she was quite concerned about him which was nice. I’ve noticed a lot of people don’t now how to talk about Alex. It’s almost like they’re afraid to ask.
They left after ten o’clock, I put Alex’s sheets on his bed. I moved Alex to his bed. I had put him in our bed when we got home.
I wrote in the journal for about half an hour. It’s 11:30 and I’m about ready for bed.
No tests
Medication
Bactrim 9:30 a.m. ----- 7:40 p.m.
Mercaptopurine ------ ----- 7:40 p.m.
Dimenhydrinate 9:30 a.m. 1:05 p.m. 4:30 p.m.
Temperature 36.82C 9:30 a.m. 37.21 1:05 p.m. 37.41C 7:50 p.m.
I did the dishes and got Alex dressed. Then I had a shower and got dressed. We left the house after nine thirty. We had to wait about ten minutes after we got to the hospital for the medicine. The medicine has to come from the pharmacy.
We went to Kentucky Fried Chicken for a take out and then went to English Bay and ate lunch on the grass. After lunch we went to Mom and Dad’s. We brought Alex’s bike and Dad attached an umbrella to Alex’s bike, he sure looked cute!
We left at eight o’clock. I gave Alex his medicine before we left, as last week he feel asleep on the way home and I had to wake him up. He was just furious when I did wake him up and I had a heck of a time getting him to take his medicine.
Alex feel asleep on the way home and when we got home I put him to bed.
George, Lorna, George’s sister and brother-in-law came over around nine thirty. They brought Alex a box of cookies. Charlie wanted George to look at the basement and give him an idea as to how to finish the basement.
Lorna asked about Alex, she was quite concerned about him which was nice. I’ve noticed a lot of people don’t now how to talk about Alex. It’s almost like they’re afraid to ask.
They left after ten o’clock, I put Alex’s sheets on his bed. I moved Alex to his bed. I had put him in our bed when we got home.
I wrote in the journal for about half an hour. It’s 11:30 and I’m about ready for bed.
No tests
Medication
Bactrim 9:30 a.m. ----- 7:40 p.m.
Mercaptopurine ------ ----- 7:40 p.m.
Dimenhydrinate 9:30 a.m. 1:05 p.m. 4:30 p.m.
Temperature 36.82C 9:30 a.m. 37.21 1:05 p.m. 37.41C 7:50 p.m.
Diagnosis: Leukemia; June 6, 1987
I woke up at 8:30 a.m. and had a shower. I got ready to go to the hospital, we had to be there around ten o’clock.
Alex had breakfast and I gave him some gravol. I thought it might help. Charlie had gotten him dressed and then we left around 9:30 a.m. We got to the hospital after ten o’clock. We didn’t have to wait as the medicine was already.
Alex wasn’t very good this time, he screamed and yelled. He was trying to get away from the needle and I had to hold him really tight.
We left the hospital and got home after eleven o’clock. Charlie went outside to paint the flower barrels and Alex wanted to go too. Alex rode his bike while Charlie painted. I wrote in journal from 11:10 a.m. to 12:10 a.m.
I went outside to see what Alex and Charlie were doing. Kurt came over for a little while, Nora came to get him, it was lunchtime. Alex and I went in for lunch. Alex didn’t eat much he wanted to go back outside and do some painting like Pa. He said where’s my paint brush? I told him he didn’t have one like Pa’s. Alex started to cry because he said he wanted to paint too.
I took Alex outside, so he could paint. Charlie let him paint with his paintbrush on a box.
I went back inside to eat my lunch.
At three o’clock we all went out to buy some bedding plants.
We came back after four o’clock and started getting the barrel ready for the plants. Charlie put in the rocks for drainage and the top soil.
Mom phoned and by the time I went out again Charlie had finished. The barrel was ready for the plants. We finished and went into the house at 5:30 p.m. I started dinner and we finished after six o’clock.
We went for a drive, we went to White Pine Beach but it wasn’t open. We didn’t go down, we decided to go to MacDonald’s and have an ice cream cone. We came home at 7:30 p.m., Alex, Charlie and Kelly went for a walk. I cleaned up the kitchen and after they came back I gave Alex his medicine and got Alex ready for bed.
At 8:30 p.m. Alex was in his room, he wanted to play with his cars. Alex fell asleep at 9:30 p.m., he was mad because I took away his cars.
I finished reading the booklets on Leukemia that Janice the social worker gave us. Then I watched TV and did my crossword puzzle book. I’ll get ready for bed it’s almost eleven o’clock.
No Tests
Medicine
Bactrim 9:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Dimenhydrinate 9:00 a.m. 12:40 p.m. 4:30 p.m.
Temperature 36.09C 10:00 a.m. 36.77C 12:40 p.m. 36.95C 4:30 p.m. 37.52C 8:00 p.m.
Alex had breakfast and I gave him some gravol. I thought it might help. Charlie had gotten him dressed and then we left around 9:30 a.m. We got to the hospital after ten o’clock. We didn’t have to wait as the medicine was already.
Alex wasn’t very good this time, he screamed and yelled. He was trying to get away from the needle and I had to hold him really tight.
We left the hospital and got home after eleven o’clock. Charlie went outside to paint the flower barrels and Alex wanted to go too. Alex rode his bike while Charlie painted. I wrote in journal from 11:10 a.m. to 12:10 a.m.
I went outside to see what Alex and Charlie were doing. Kurt came over for a little while, Nora came to get him, it was lunchtime. Alex and I went in for lunch. Alex didn’t eat much he wanted to go back outside and do some painting like Pa. He said where’s my paint brush? I told him he didn’t have one like Pa’s. Alex started to cry because he said he wanted to paint too.
I took Alex outside, so he could paint. Charlie let him paint with his paintbrush on a box.
I went back inside to eat my lunch.
At three o’clock we all went out to buy some bedding plants.
We came back after four o’clock and started getting the barrel ready for the plants. Charlie put in the rocks for drainage and the top soil.
Mom phoned and by the time I went out again Charlie had finished. The barrel was ready for the plants. We finished and went into the house at 5:30 p.m. I started dinner and we finished after six o’clock.
We went for a drive, we went to White Pine Beach but it wasn’t open. We didn’t go down, we decided to go to MacDonald’s and have an ice cream cone. We came home at 7:30 p.m., Alex, Charlie and Kelly went for a walk. I cleaned up the kitchen and after they came back I gave Alex his medicine and got Alex ready for bed.
At 8:30 p.m. Alex was in his room, he wanted to play with his cars. Alex fell asleep at 9:30 p.m., he was mad because I took away his cars.
I finished reading the booklets on Leukemia that Janice the social worker gave us. Then I watched TV and did my crossword puzzle book. I’ll get ready for bed it’s almost eleven o’clock.
No Tests
Medicine
Bactrim 9:00 a.m. ----- 8:00 p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Dimenhydrinate 9:00 a.m. 12:40 p.m. 4:30 p.m.
Temperature 36.09C 10:00 a.m. 36.77C 12:40 p.m. 36.95C 4:30 p.m. 37.52C 8:00 p.m.
Sunday, June 5, 2011
Diagnosis: Leukemia; June 5, 1987
Charlie woke us up around eight o’clock. We had to be at the hospital by 9:30 a.m. While I had a shower and got dressed Charlie got Alex dressed.
Alex’s appetite has gone back to normal where he doesn’t eat too much especially for breakfast. He had two bites of a toast then he asked for cereal but he didn’t eat much of it.
We left the house after nine o’clock. We were late getting there but it didn’t seem to matter. They were a lot of people there, there weren’t any beds left.
We waited about an hour before they did anything. Lenore took us into a room and she did a small I.V. This was to take blood and then put the ARA-C in. At least Alex didn’t have to have two pokes. We waited a little while longer in the waiting area then a doctor was ready to do Alex’s Lumbar Puncture. Alex screamed a lot during it but it was because they had to hold him really tight. After we finished Dr R talked to us and said the doctor who did the LP would check Alex. The doctor checked Alex and gave us a prescription for Bactrim.
Before we went into the treatment room for the LP , Janice (social worker) came by to talk to us. In front of Alex I told her what sort of things Alex had been doing and what his behaviour is like. Next thing I know Alex has left and was playing on the opposite end of the room.
We had to wait an hour after Alex had the LP, he has to lie down. This was to prevent him from getting a headache. The doctor said they can get a headache for three days and it makes them quite ill.
We left the hospital at 12:30 p.m., Alex was asleep but when we got to the car he woke up. Alex said his throat and stomach hurt which usually means he is going to throw up. I put a blanket around him and got a plastic bag ready just in case. Alex didn’t throw up in the car.
I put him in his bed when we got home and got him to take some gravol. Just as I was putting it in his mouth he started to throw up. I took him into the bathroom so he could throw up into the toilet but he stopped. Then I cleaned his teeth and got him to take some mouthwash.
I put Alex in our bed and he slept for a hour or so. He threw up some more and I cleaned his teeth again and he took some mouthwash.
Alex had a few bites of a cheese sandwich and a couple grapes. He went back to sleep and slept until three o’clock.
Annie phoned twice, the first time I told her I would phone her back. The second time an hour later she said did you try to phone me? I said no and she said oh, because I was on the phone to the bank. Then she starts telling me her problems as usual. I tell her about Alex but it seems like she’s not really interested, she just wants my advice about her problem.
Finally I told her I had to check Alex and give him some more medicine. I didn’t have to give Alex any medicine but it was the only way to get off the phone. I feel bad doing things like that but if I don’t I’d be on the phone for a couple of hours at least.
Mom phoned not long after I got off and said, Annie must of phoned. I said yes. She said isn’t it terrible that she keeps you on the phone. I then told her what I did to get off. Mom said that’s the only way though.
Alex woke up and wanted me to sit with him and watch TV. Then at four o’clock Charlie went out, Alex and I did the new puzzle. Ten minutes later he threw up all over himself, the dining room chair and little on the carpet.
I got him changed and then we watched TV again, until Charlie came back with dinner.
Alex didn’t eat much as he said it hurt when he ate.
After dinner I told Alex I was taking Kelly for a walk and he could sit with Pa. Alex said he wanted to go, so we all went. Alex rode his bike which is rather amazing since he had been sick not long ago.
At seven o’clock I went to the mall to look for a booster car seat. I came back at eight o’clock, Alex was feeling fine now. He was running around as usual. At nine thirty I gave Alex the Bactrim and he spat it out. He really made me mad and we had a big fight. I yelled at him and he yelled at me.
I got him ready for bed and brushed his teeth and got him to take some mouthwash.
Alex was asleep by ten o’clock. I cleaned the house and wrote in the journal. I went to bed at eleven thirty.
Tests
WBC 2.4
HGB 8.4
Platelets 109,000
ANC 1704
Medicine
Bactrim 8:45 a.m. ------ 10:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
Dimenhydrinate ------ 1:30 p.m. 5:30 p.m.
Alex’s appetite has gone back to normal where he doesn’t eat too much especially for breakfast. He had two bites of a toast then he asked for cereal but he didn’t eat much of it.
We left the house after nine o’clock. We were late getting there but it didn’t seem to matter. They were a lot of people there, there weren’t any beds left.
We waited about an hour before they did anything. Lenore took us into a room and she did a small I.V. This was to take blood and then put the ARA-C in. At least Alex didn’t have to have two pokes. We waited a little while longer in the waiting area then a doctor was ready to do Alex’s Lumbar Puncture. Alex screamed a lot during it but it was because they had to hold him really tight. After we finished Dr R talked to us and said the doctor who did the LP would check Alex. The doctor checked Alex and gave us a prescription for Bactrim.
Before we went into the treatment room for the LP , Janice (social worker) came by to talk to us. In front of Alex I told her what sort of things Alex had been doing and what his behaviour is like. Next thing I know Alex has left and was playing on the opposite end of the room.
We had to wait an hour after Alex had the LP, he has to lie down. This was to prevent him from getting a headache. The doctor said they can get a headache for three days and it makes them quite ill.
We left the hospital at 12:30 p.m., Alex was asleep but when we got to the car he woke up. Alex said his throat and stomach hurt which usually means he is going to throw up. I put a blanket around him and got a plastic bag ready just in case. Alex didn’t throw up in the car.
I put him in his bed when we got home and got him to take some gravol. Just as I was putting it in his mouth he started to throw up. I took him into the bathroom so he could throw up into the toilet but he stopped. Then I cleaned his teeth and got him to take some mouthwash.
I put Alex in our bed and he slept for a hour or so. He threw up some more and I cleaned his teeth again and he took some mouthwash.
Alex had a few bites of a cheese sandwich and a couple grapes. He went back to sleep and slept until three o’clock.
Annie phoned twice, the first time I told her I would phone her back. The second time an hour later she said did you try to phone me? I said no and she said oh, because I was on the phone to the bank. Then she starts telling me her problems as usual. I tell her about Alex but it seems like she’s not really interested, she just wants my advice about her problem.
Finally I told her I had to check Alex and give him some more medicine. I didn’t have to give Alex any medicine but it was the only way to get off the phone. I feel bad doing things like that but if I don’t I’d be on the phone for a couple of hours at least.
Mom phoned not long after I got off and said, Annie must of phoned. I said yes. She said isn’t it terrible that she keeps you on the phone. I then told her what I did to get off. Mom said that’s the only way though.
Alex woke up and wanted me to sit with him and watch TV. Then at four o’clock Charlie went out, Alex and I did the new puzzle. Ten minutes later he threw up all over himself, the dining room chair and little on the carpet.
I got him changed and then we watched TV again, until Charlie came back with dinner.
Alex didn’t eat much as he said it hurt when he ate.
After dinner I told Alex I was taking Kelly for a walk and he could sit with Pa. Alex said he wanted to go, so we all went. Alex rode his bike which is rather amazing since he had been sick not long ago.
At seven o’clock I went to the mall to look for a booster car seat. I came back at eight o’clock, Alex was feeling fine now. He was running around as usual. At nine thirty I gave Alex the Bactrim and he spat it out. He really made me mad and we had a big fight. I yelled at him and he yelled at me.
I got him ready for bed and brushed his teeth and got him to take some mouthwash.
Alex was asleep by ten o’clock. I cleaned the house and wrote in the journal. I went to bed at eleven thirty.
Tests
WBC 2.4
HGB 8.4
Platelets 109,000
ANC 1704
Medicine
Bactrim 8:45 a.m. ------ 10:00 p.m.
Mercaptopurine ------ ------ 10:00 p.m.
Dimenhydrinate ------ 1:30 p.m. 5:30 p.m.
Diagnosis: Leukemia; June 4, 1987
I woke up at nine o’clock, I had breakfast and then I had a shower. Alex didn’t want any breakfast. He use to do this before he got Leukemia, so I feel he’s okay.
Alex has become very mouthy this last week. I really don’t know what to do with him. He spits at us, blows at us, tells us especially me to shut my face. I’ve been putting him into his room but it doesn’t seem to do any good. Mom suggested I take away some of his toys. I will if he keeps on carry on this way and I’ve told him so.
Alex has totally drained me by eleven o’clock. I feel like I could go to bed and sleep for hours. This morning he argued with me off and on. Charlie had gone out, he came back around eleven. I went to the mall and came back at 12:30 p.m. The first thing Alex said was so what did you buy me? I said you think I should buy you something every time I go out and he said YES!
I had lunch and Alex started arguing with me and told me what to do, which really irks me. Alex said he wanted to make cookies so I started it. He was watching TV so he didn’t do much of it.
We had dinner at six o’clock, Alex wanted steak. I BBQ the steak and we also had peas and corn. Alex ate all the peas and corn and about half of the steak.
After dinner we went for a walk, then Alex rode his bike out on the driveway. Later we did some gardening. We came in at eight o’clock. I gave Alex a bath and he was absolutely furious, he screamed and yelled. Then I got Alex ready for bed, he said he was hungry. I gave him a snack with his medicine.
When he went to bed he wanted a story. I told him why would I read you a story when you’ve acted so bad? He’s got to learn to act better. He’s really taking advantage of the situation.
I cleaned up the house and watched TV by this time it was after nine o’clock. I started writing in the journal after ten o’clock. I’ll get ready for bed soon its almost eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------8:40 p.m.
Mercaptopurine ------ ------ 8:40 p.m.
Temperature 36.28C 9:15 a.m.36.48C 8:40 p.m.
Alex has become very mouthy this last week. I really don’t know what to do with him. He spits at us, blows at us, tells us especially me to shut my face. I’ve been putting him into his room but it doesn’t seem to do any good. Mom suggested I take away some of his toys. I will if he keeps on carry on this way and I’ve told him so.
Alex has totally drained me by eleven o’clock. I feel like I could go to bed and sleep for hours. This morning he argued with me off and on. Charlie had gone out, he came back around eleven. I went to the mall and came back at 12:30 p.m. The first thing Alex said was so what did you buy me? I said you think I should buy you something every time I go out and he said YES!
I had lunch and Alex started arguing with me and told me what to do, which really irks me. Alex said he wanted to make cookies so I started it. He was watching TV so he didn’t do much of it.
We had dinner at six o’clock, Alex wanted steak. I BBQ the steak and we also had peas and corn. Alex ate all the peas and corn and about half of the steak.
After dinner we went for a walk, then Alex rode his bike out on the driveway. Later we did some gardening. We came in at eight o’clock. I gave Alex a bath and he was absolutely furious, he screamed and yelled. Then I got Alex ready for bed, he said he was hungry. I gave him a snack with his medicine.
When he went to bed he wanted a story. I told him why would I read you a story when you’ve acted so bad? He’s got to learn to act better. He’s really taking advantage of the situation.
I cleaned up the house and watched TV by this time it was after nine o’clock. I started writing in the journal after ten o’clock. I’ll get ready for bed soon its almost eleven o’clock.
No tests
Medicine
Bactrim 9:00 a.m. ------8:40 p.m.
Mercaptopurine ------ ------ 8:40 p.m.
Temperature 36.28C 9:15 a.m.36.48C 8:40 p.m.
Friday, June 3, 2011
Diagnosis: Leukemia; June 3, 1987
I woke up around nine o’clock. Alex had come into bed with us during the night. He had gotten up around eight o’clock. I was awake but I went back to sleep. I didn’t get to sleep until after midnight. I was taking Alex’s temperature every hour, by midnight it had gone down.
I had breakfast and then had a shower and got dressed.
Alex had a bowl of cereal for breakfast and half an apple for a snack. Charlie made steamed chicken with steamed rice. Alex said he couldn’t wait. Charlie gave Alex a plate of chicken and rice. Alex didn’t eat very much. I put it in the fridge so he could have it for dinner.
Alex is very demanding right now. He tells us to get what ever he wants and if I tell him no, he usually makes a big deal out of it.
Today he was ordering me around like I was his servant. He’s really taking advantage of his being sick. Alex is a lot better than he was when he was first diagnosed. I feel he’s almost back to the way he use to be.
We all went for a walk, Alex rode his bike. Hopefully it’ll help strength his legs.
I had lunch when we got back and Charlie went out to buy some groceries.
Alex had some pea soup, he ate about half a bowl. He argued with me as I wanted to watch game shows while I had my lunch. He told me to go and watch TV in our room so he could watch his show in the living room. I wouldn’t have minded if he had asked me nicely but he orders me to go into another room and I will not stand for that. I let him know how I feel and he sure doesn’t like it.
Alex and I went to the basement. Alex played while I cleaned up the basement. Then we went to the garage. I swept the floor and Alex rode his bike on the driveway.
I started dinner after four o’clock. Alex wanted me to play taxi downstairs but I was too tired, he started screaming. I told him I was tired and wanted a rest.
We had dinner after five o’clock. Alex didn’t eat much rice and chicken.
Alex seemed to argue a lot tonight. Whatever I said it was wrong, it just didn’t seem to matter what I said!
I did some knitting while Alex played with his cars.
Mom phoned around seven o’clock and as usual Alex interrupted me and did a few things to cause trouble. He even asked me to read him a story while I was on the phone.
I got Alex ready for bed at eight o’clock. He played in his bed with his cars. He finally fell asleep at nine o’clock.
I did some more knitting from 8:30 p.m. to 10:00 p.m. I started writing in the journal at 10:30 p.m. I’ll get ready for bed soon, it’s 11:15 p.m.
No tests
Medicine
Bactrim 9:25 a.m. ----- 7:45 p.m.
Mercaptopurine ------ ------ 7:45 p.m.
Temperature 36.73C 9:25 a.m. 37.50C 7:45 p.m.
I had breakfast and then had a shower and got dressed.
Alex had a bowl of cereal for breakfast and half an apple for a snack. Charlie made steamed chicken with steamed rice. Alex said he couldn’t wait. Charlie gave Alex a plate of chicken and rice. Alex didn’t eat very much. I put it in the fridge so he could have it for dinner.
Alex is very demanding right now. He tells us to get what ever he wants and if I tell him no, he usually makes a big deal out of it.
Today he was ordering me around like I was his servant. He’s really taking advantage of his being sick. Alex is a lot better than he was when he was first diagnosed. I feel he’s almost back to the way he use to be.
We all went for a walk, Alex rode his bike. Hopefully it’ll help strength his legs.
I had lunch when we got back and Charlie went out to buy some groceries.
Alex had some pea soup, he ate about half a bowl. He argued with me as I wanted to watch game shows while I had my lunch. He told me to go and watch TV in our room so he could watch his show in the living room. I wouldn’t have minded if he had asked me nicely but he orders me to go into another room and I will not stand for that. I let him know how I feel and he sure doesn’t like it.
Alex and I went to the basement. Alex played while I cleaned up the basement. Then we went to the garage. I swept the floor and Alex rode his bike on the driveway.
I started dinner after four o’clock. Alex wanted me to play taxi downstairs but I was too tired, he started screaming. I told him I was tired and wanted a rest.
We had dinner after five o’clock. Alex didn’t eat much rice and chicken.
Alex seemed to argue a lot tonight. Whatever I said it was wrong, it just didn’t seem to matter what I said!
I did some knitting while Alex played with his cars.
Mom phoned around seven o’clock and as usual Alex interrupted me and did a few things to cause trouble. He even asked me to read him a story while I was on the phone.
I got Alex ready for bed at eight o’clock. He played in his bed with his cars. He finally fell asleep at nine o’clock.
I did some more knitting from 8:30 p.m. to 10:00 p.m. I started writing in the journal at 10:30 p.m. I’ll get ready for bed soon, it’s 11:15 p.m.
No tests
Medicine
Bactrim 9:25 a.m. ----- 7:45 p.m.
Mercaptopurine ------ ------ 7:45 p.m.
Temperature 36.73C 9:25 a.m. 37.50C 7:45 p.m.
Thursday, June 2, 2011
Diagnosis: Leukemia; June 2, 1987
I woke up at 9:45 a.m., Charlie was going to Save-On-Foods and he told me to get up. Alex had come into bed in the middle of the night but he had gotten up earlier. Charlie had gotten Alex dressed and given him breakfast. I had breakfast then waited until Charlie came back so I could have my shower. While we waited Alex and I watched TV.
After I had my shower I got dressed then we went outside. Charlie cut the grass, Alex rode his bike and I sat down and watched.
Nora and Kurt came over, Alex and Kurt rode their bikes together. Nora and Dirk have been acting rather strange since I told Nora about Alex. Both of them were avoiding us. They acted like we weren’t even there. Onetime Charlie had gone for a walk and on his way back he had seen Dirk. He went up to talk to Dirk. Dirk said I can’t talk now I have to cut my grass. Later on we saw Dirk talking to the neighbour for about 15 minutes.
To me it was quite upsetting as I didn’t know if they were going to ignore us for a long time or what. After awhile I just ignored the whole situation. I figured it was up to them to make the first move.
When Nora came over with Kurt it seemed like she didn’t want to know too much about Alex. I just kept it short and from now on I’m not going to discuss it unless she asks me.
Nora and I just talked about the neighbourhood and how it was developing. She knows a great deal about what house has been sold and who’s moving in. They left, Alex and I went into have lunch. Alex said he wasn’t feeling very well. Milk seems to bother his stomach, he has been drinking a lot of ginger ale.
Alex didn’t eat his lunch his appetite has decreased a great deal since he has been taken off Prednisone.
I went to Save-On-Foods and bought Alex a cartoon video tape. I came back after two o’clock.
Alex said he wasn’t feeling very well. His stomach was upset and he said he wasn’t going to throw up. We went for a walk I thought the fresh air might make him feel better. Alex stays inside a great deal which isn’t all that great but I guess he feels more secure inside. I know when I’ve been sick I don’t want to go anywhere.
After we came back Alex wanted to lie down in our bed. Alex watched TV while I did some work at my desk. Alex had a few bites of an apple and a cheese sandwich.
I had dinner after five o’clock. We played taxi-driver and then around seven o’clock Alex watched the Disney move, Herbie goes to Monte Carlo.
Alex’s temperature has been up since 3:50 p.m. Usually his temperature averages around 36C but at 3:50 p.m. his temperature was 37.49C. It’s gone as high as 37.98C tonight.
It’s quite worrisome when his temperature goes up. I just don’t know what Alex could get. His ANC is up but I haven’t got the reading from yesterdays blood test, so it might be low again.
Alex went to bed around eight o’clock. I did some more work at my desk until 9:45 p.m. then I cleaned up the house. I started writing in the journal after ten o’clock.
At 10:30 p.m. I took Alex’s temperature and it had gone up again to 37.98C. Alex wants to sleep with the covers on so this will make his fever or temperature go up.
I got ready for bed after eleven o’clock.
No tests
Medicine
Bactrim 9:45 a.m. ----- 8:00p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Temperature 36.45C 10:05 a.m. 37.49C 3:50 p.m. 37.98C 5:25 p.m. 37.91C 6:30 p.m. 37.75C 8:00 p.m. 37.98C 10:45 p.m.
After I had my shower I got dressed then we went outside. Charlie cut the grass, Alex rode his bike and I sat down and watched.
Nora and Kurt came over, Alex and Kurt rode their bikes together. Nora and Dirk have been acting rather strange since I told Nora about Alex. Both of them were avoiding us. They acted like we weren’t even there. Onetime Charlie had gone for a walk and on his way back he had seen Dirk. He went up to talk to Dirk. Dirk said I can’t talk now I have to cut my grass. Later on we saw Dirk talking to the neighbour for about 15 minutes.
To me it was quite upsetting as I didn’t know if they were going to ignore us for a long time or what. After awhile I just ignored the whole situation. I figured it was up to them to make the first move.
When Nora came over with Kurt it seemed like she didn’t want to know too much about Alex. I just kept it short and from now on I’m not going to discuss it unless she asks me.
Nora and I just talked about the neighbourhood and how it was developing. She knows a great deal about what house has been sold and who’s moving in. They left, Alex and I went into have lunch. Alex said he wasn’t feeling very well. Milk seems to bother his stomach, he has been drinking a lot of ginger ale.
Alex didn’t eat his lunch his appetite has decreased a great deal since he has been taken off Prednisone.
I went to Save-On-Foods and bought Alex a cartoon video tape. I came back after two o’clock.
Alex said he wasn’t feeling very well. His stomach was upset and he said he wasn’t going to throw up. We went for a walk I thought the fresh air might make him feel better. Alex stays inside a great deal which isn’t all that great but I guess he feels more secure inside. I know when I’ve been sick I don’t want to go anywhere.
After we came back Alex wanted to lie down in our bed. Alex watched TV while I did some work at my desk. Alex had a few bites of an apple and a cheese sandwich.
I had dinner after five o’clock. We played taxi-driver and then around seven o’clock Alex watched the Disney move, Herbie goes to Monte Carlo.
Alex’s temperature has been up since 3:50 p.m. Usually his temperature averages around 36C but at 3:50 p.m. his temperature was 37.49C. It’s gone as high as 37.98C tonight.
It’s quite worrisome when his temperature goes up. I just don’t know what Alex could get. His ANC is up but I haven’t got the reading from yesterdays blood test, so it might be low again.
Alex went to bed around eight o’clock. I did some more work at my desk until 9:45 p.m. then I cleaned up the house. I started writing in the journal after ten o’clock.
At 10:30 p.m. I took Alex’s temperature and it had gone up again to 37.98C. Alex wants to sleep with the covers on so this will make his fever or temperature go up.
I got ready for bed after eleven o’clock.
No tests
Medicine
Bactrim 9:45 a.m. ----- 8:00p.m.
Mercaptopurine ------ ------ 8:00 p.m.
Temperature 36.45C 10:05 a.m. 37.49C 3:50 p.m. 37.98C 5:25 p.m. 37.91C 6:30 p.m. 37.75C 8:00 p.m. 37.98C 10:45 p.m.
Wednesday, June 1, 2011
Diagnosis: Leukemia; June 1, 1987
The alarm woke Alex and myself up at nine o’clock. I got Alex dressed then Alex asked Charlie to get him breakfast. I went and had a shower then got ready to go to the hospital. We have to be there at eleven o’clock.
I think Alex is getting sick of going. We’ve been going since Thursday that’s five days of going to the hospital. He told me he hates the hospital and doesn’t want to go there.
We got to the hospital before eleven o’clock. There were pickets outside as there is a general strike. The Premier is trying to put through Bill 19 and 20. The labour doesn’t want it go go through.
We went into the parking lot so we had no trouble . The parking lot was free, they are on strike.
There weren’t that many nurses in the clinic but we didn’t have to wait too long. Lenore took blood the way they put an I.V. in and then put the medication (ARA-C) in through the needle and tube. Alex cried but not for long and then went to get his prize.
We left at 11:30 p.m., Charlie wanted Dim Sum so we went to Flamingo for a take out. We got home after twelve o’clock and had the Dim Sum. Alex watched TV. for awhile and Charlie went to work around 2:30 p.m.
At three o’clock Alex said his throat hurt which usually means he’s going to throw up. He said he wasn’t going to, I got him to drink some ginger ale. At four thirty he threw up. He said he was tired and went to sleep.
I had dinner and cleaned up the house. I woke him up at seven o’clock. Alex had some pea soup but he wasn’t that hungry.
We watched TV. and played some of Alex’s games. Alex had his medicine at nine o’clock and I told him it was time for bed. He screamed and yelled and tried to bite me and pull my hair. I had to hold him quite tight. I got him into his pajama’s and by this time he had calmed right down.
I read him Winnie-The-Pooh and then he went to sleep, I thought. Alex came out of his room at ten o’clock and said his pillow was wet and he wanted to sleep in our bed. Alex finally feel asleep at eleven o’clock.
I wrote in the journal from nine o’clock until eleven thirty. I’ll try and move Alex into his own bed and then I’ll go to bed.
Tests
WBC 3.8
HGB 9.9
Platelets 182,000
ANC 3,344
Medicine
Prednisone 9:45 a.m. 1mg ------ --------
Bactrim 9:45 a.m. ------- 8:55 p.m.
Mercaptopurine ------ ------ 8:55 p.m.
Dimenhydrinate 11:00 a.m. 3:30 p.m. ------
Temperature 37.03C 10:00 a.m. 36.47C 9:00 a.m.
I think Alex is getting sick of going. We’ve been going since Thursday that’s five days of going to the hospital. He told me he hates the hospital and doesn’t want to go there.
We got to the hospital before eleven o’clock. There were pickets outside as there is a general strike. The Premier is trying to put through Bill 19 and 20. The labour doesn’t want it go go through.
We went into the parking lot so we had no trouble . The parking lot was free, they are on strike.
There weren’t that many nurses in the clinic but we didn’t have to wait too long. Lenore took blood the way they put an I.V. in and then put the medication (ARA-C) in through the needle and tube. Alex cried but not for long and then went to get his prize.
We left at 11:30 p.m., Charlie wanted Dim Sum so we went to Flamingo for a take out. We got home after twelve o’clock and had the Dim Sum. Alex watched TV. for awhile and Charlie went to work around 2:30 p.m.
At three o’clock Alex said his throat hurt which usually means he’s going to throw up. He said he wasn’t going to, I got him to drink some ginger ale. At four thirty he threw up. He said he was tired and went to sleep.
I had dinner and cleaned up the house. I woke him up at seven o’clock. Alex had some pea soup but he wasn’t that hungry.
We watched TV. and played some of Alex’s games. Alex had his medicine at nine o’clock and I told him it was time for bed. He screamed and yelled and tried to bite me and pull my hair. I had to hold him quite tight. I got him into his pajama’s and by this time he had calmed right down.
I read him Winnie-The-Pooh and then he went to sleep, I thought. Alex came out of his room at ten o’clock and said his pillow was wet and he wanted to sleep in our bed. Alex finally feel asleep at eleven o’clock.
I wrote in the journal from nine o’clock until eleven thirty. I’ll try and move Alex into his own bed and then I’ll go to bed.
Tests
WBC 3.8
HGB 9.9
Platelets 182,000
ANC 3,344
Medicine
Prednisone 9:45 a.m. 1mg ------ --------
Bactrim 9:45 a.m. ------- 8:55 p.m.
Mercaptopurine ------ ------ 8:55 p.m.
Dimenhydrinate 11:00 a.m. 3:30 p.m. ------
Temperature 37.03C 10:00 a.m. 36.47C 9:00 a.m.
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